research-article

Health vlogger-viewer interaction in chronic illness management

Authors:

Wanda PrattAuthors Info & Claims

CHI '13: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

Pages 49 - 58

https://doi.org/10.1145/2470654.2470663

Published: 27 April 2013 Publication History

Abstract

Health video blogs (vlogs) allow individuals with chronic illnesses to share their stories, experiences, and knowledge with the general public. Furthermore, health vlogs help in creating a connection between the vlogger and the viewers. In this work, we present a qualitative study examining the various methods that health vloggers use to establish a connection with their viewers. We found that vloggers used genres to express specific messages to their viewers while using the uniqueness of video to establish a deeper connection with their viewers. Health vloggers also explicitly sought interaction with their viewers. Based on these results, we present design implications to help facilitate and build sustainable communities for vloggers.

References

[1]

Barrera, M., Ainlay, S. The Structure of Social Support: A Conceptual and Empirical Analysis. Journal of Community Psychology, 133--143. 1983.

[2]

Biemans, M., van Dijk, B., Dadlani, P., van Halteren, A. Let's Stay in Touch: Sharing Photos for Restoring Social Connectedness between Rehabilitants, Friends, and Family. In Proc. SICACCESS'09, 179--186.

Digital Library

[3]

Brubaker, J., Lustig, C., Hayes, G.R. PatientsLikeMe: Empowerment and Representation in a Patient-Centered Social Network. CSCW'10; Workshop on Research in Healthcare: Past, Present, and Future.

[4]

Byun, B., Awasthi, A., Chou, P.A., Kapoor, A., Lee, B., Czerwinski, M. Honest Signals in Video Conferencing. In Proc. ICME'11, 1--6.

Digital Library

[5]

Charmaz, K. Loss of Self: A Fundamental Form of Suffering in the Chronically Ill. Journal of Sociology of Health and Illness, 168--195. 1983.

[6]

Chou, W.S., Hunt, Y., Folkers, A., Auguston, E. Cancer Survivorship in the Age of YouTube and Social Media: A Narrative Analysis. Journal of Medical Internet Research. 2011.

[7]

Chung, D.S., Kim, S. Blogging Activity Among Cancer Patients and Their Companions: Uses, Gratifications, and Predictors of Outcomes. JASIST, 297--306. 2008.

Digital Library

[8]

Fernandez-Luque, L., Elahi, N., Grajales III, F.J. An Analysis of Personal Medical Information Disclosed in YouTube Videos Created by Patients with Multiple Sclerosis. Studies in Health Technology Information, 292--296. 2009.

[9]

Figueiredo, M.A., Prado, P., Camara, M.A., Alburquerque, A.M. Empowering Rural Citizen Journalism via Web 2.0 Technologies. In Proc. C&T'09, 77--84.

Digital Library

[10]

Foucault, M. The History of Sexuality, Vol. 1: An Introduction. Éditions Gallimard. 1978.

[11]

Grayson, D., Coventry, L. The Effects of Visual Proxemic Information in Video Mediated Communication. SIGCHI Bulletin, 30--39. 1998.

Digital Library

[12]

Griffith, M., Papacharissi, Z. Looking for You: An Analysis of Video Blogs. First Monday. 2010.

[13]

Goffman, E. The Presentation of Self in Everyday Life. Anchor. 1959.

[14]

Henderson, A. Abused Women and Peer-Provided Social Support: The Nature and Dynamics of Reciprocity in a Crisis Setting. Issues in Mental Health Nursing, 117--128. 1995.

[15]

Hibbard, E.S., Fels, D.I. The Vlogging Phenomena: A Deaf Perspective. In Proc. ASSETS'11, 59--66.

Digital Library

[16]

Hoff, T., Mishel, M., Rowe, I. Using New Media to Make HIV Personal: A Partnership of MTV and the Kaiser Family Foundation. Cases in Public Health Communication & Marketing '08, 190--197.

[17]

Hoffman, D.L, Fodor, M. Can You Measure the ROI of Your Social Media marketing? MIT Sloan Management Review, 41--49. 2010.

[18]

Inkpen, K., Du, H., Roseway, A., Hoff, A., Johns, P. Video Kids: Augmenting Close Friendships with Asynchronous Video Conversations in VideoPal. In Proc. CHI'12, 2387--2396.

Digital Library

[19]

Krause, N., Herzog, A.R., Baker, E. Providing Support to Others and Well-being in Later Life. Journal of Gerontology, 300--311. 1992.

[20]

Kurtz, L.F. Self-Help and Support Groups: A Handbook for Practitioners. Sage. 1997.

[21]

Lange, P.G. Commenting on comments: Investigating responses to antagonism on YouTube. Conference of the Society for Applied Anthropology '07, 1--26.

[22]

Lange, P.G. Publicly Private and Privately Public: Social Networking on YouTube. Journal of CMC, 361--380. 2008.

[23]

Markham, T. Hunched Over Their Laptops: Phenomenological Perspectives on Citizen Journalism. Presented at MeCCSA'10.

[24]

Matthews, N. Confessions to a New Public: Video Nation Shorts. Media Culture Society, 435--449. 2007.

[25]

Miller, E.A., Pole, A. Diagnosis Blog: Checking Up on Health Blogs in the Blogosphere. American Journal of Public Health, 1514--1519. 2010.

[26]

Molyneaux, H., O'Donnell, S. Patient Portals 2.0: The Potential for Online Video. In Proc. COACH'09, 1--15.

[27]

Nardi, B.A., Schiano, D.J., Gumbrecht, M., Swartz, L. Why We Blog. Communications of ACM '04, 41--46.

Digital Library

[28]

Nardi, B.A., Schiano, D.J., Gumbrecht, M. Blogging as Social Activity, or, Would You Let 900 Million People Read Your Diary? In Proc. CSCW'04, 222--231.

Digital Library

[29]

Olson, G.M., Olson, J.S. Distance Matters. HCI, 139--178. 2000.

Digital Library

[30]

Raun, T. DIY Therapy: Exploring Affective Aspects of Trans Video Blogs on YouTube. Palgrave Macmillian. 2012.

[31]

Renov, M., Suderburg, E. Resolutions: Contemporary Video Practices. University of Minneapolis Press. 1996.

[32]

Ressler, P.K., Bradshaw, Y.S., Gualtieri, L., Chui, K.K.H. Communicating the Experience of Chronic Pain and Illness Through Blogging. Journal of Medical Internet Research. 2012.

[33]

Ridgeway, P. Restorying Psychiatric Disability: Learning from First Person Recovery Narratives. Psychiatric Rehabilitation Journal, 335--343. 2001.

[34]

Schwartz, C.E., Sendor, R.M. Helping Others Helps Oneself: Response Shift Effects in Peer Support. Social Science & Medicine, 1563--1575. 1999.

[35]

Sundar, S.S., Edwards, H.H., Hu, Y., Stavrositu, C. Blogging for Better Health: Putting the "Public" Back in Public Health. Routledge. 2006.

[36]

Tan, L. Psychotherapy 2.0: MySpace Blogging as SelfTherapy. AJP, 143--163. 2008.

[37]

Thoits, P.A. Stress, Coping, and Social Support Processes: Where Are We? What Next? Journal of Health and Social Behavior, 53--79. 1995.

[38]

Tremayne, M. Blogging, Citizenship, and the Future of Media. Routledge. 2006.

Digital Library

[39]

Trier, J. "Cool" Engagements With YouTube: Part 1. Journal of Adolescent & Adult Literacy, 408--412. 2007.

[40]

Turkle, S. Looking Toward Cyberspace: Beyond Grounded Sociology. Contemporary Sociology, 643--648. 1999.

[41]

Valverde, M. Experience and Truth-Telling in a PostHumanist World: A Foucauldian Contribution to Feminist Ethical Relations. University of Illinois Press. 2004.

[42]

Waldron, J. YouTube, Fanvids, Forums, Vlogs and Blogs: Informal Music Learning in a Convergent Onand Offline Music Community.International Journal of Music Education, 1--16. 2012.

Cited By

Alrubaiaan RNair BAmir-Rad FAljanahi MKumar S VPrasad S(2024)Presurgical Infant Orthopedic Videos on YouTube™: A Thematic Analysis of Caregiver NarrativesThe Cleft Palate Craniofacial Journal10.1177/10556656241233115Online publication date: 23-Feb-2024
https://doi.org/10.1177/10556656241233115
Dunbar JPratt WBascom ECurrier CGarcia JSmith JSnyder JPollack A(2024)It's About the Journey - Capturing Stories of the Fluctuating Experiences of Youth Kidney Transplant PatientsProceedings of the ACM on Human-Computer Interaction10.1145/36537048:CSCW1(1-26)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3653704
Liu JZhang Y(2024)Modeling Health Video Consumption Behaviors on Social Media: Activities, Challenges, and CharacteristicsProceedings of the ACM on Human-Computer Interaction10.1145/36536998:CSCW1(1-28)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3653699
Show More Cited By

Index Terms

Health vlogger-viewer interaction in chronic illness management
1. Applied computing
  1. Life and medical sciences

Recommendations

Health Vlogs as Social Support for Chronic Illness Management

Studies have shown positive impact of video blogs (vlogs) on patient education. However, we know little on how patient-initiated vlogs shape the relationships among vloggers and viewers. We qualitatively analyzed 72 vlogs on YouTube by users diagnosed ...
Living with HIV/AIDS: Exploring Vloggers' Narratives on YouTube
SMSociety '18: Proceedings of the 9th International Conference on Social Media and Society

Video blogs (vlogging) on YouTube have become a growing source of health information for individuals who have HIV/AIDS. Our study investigates the types of information video bloggers (vloggers) choose to share around their experiences managing HIV/AIDS. ...
How self-disclosure builds cancer communities through authentic stories on YouTube: Mediating role of user participation in self-disclosure reciprocity
Abstract
Self-disclosure is a communication strategy widely used to convey authentic personal experiences among video bloggers (vloggers) on YouTube. While self-disclosure plays a vital role in attracting viewers, whether self-disclosure enables vlog ...
Highlights
- Self-disclosure for video blogging (vlogging) allows unique community interactions in YouTube communities.
- We explored the role of member contribution in reciprocity of self-disclosure in cancer vlog communities on YouTube.
- We ...

Comments

Information & Contributors

Information

Published In

cover image ACM Conferences

CHI '13: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

April 2013

3550 pages

ISBN:9781450318990

DOI:10.1145/2470654

General Chair:
Wendy E. Mackay
INRIA
,
Program Chairs:
Stephen Brewster
Glasgow University
,
Susanne Bødker
University of Aarhus

Copyright © 2013 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

Sponsors

SIGCHI: ACM Special Interest Group on Computer-Human Interaction

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 27 April 2013

Permissions

Request permissions for this article.

Request Permissions

Check for updates

Author Tags

Qualifiers

Research-article

Conference

CHI '13

Sponsor:

SIGCHI

CHI '13: CHI Conference on Human Factors in Computing Systems

April 27 - May 2, 2013

Paris, France

Acceptance Rates

CHI '13 Paper Acceptance Rate 392 of 1,963 submissions, 20%;

Overall Acceptance Rate 6,199 of 26,314 submissions, 24%

Contributors

Other Metrics

View Article Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

70
Total Citations
View Citations
1,222
Total Downloads

Downloads (Last 12 months)65
Downloads (Last 6 weeks)5

Reflects downloads up to 22 Sep 2024

Other Metrics

View Author Metrics

Citations

Cited By

Alrubaiaan RNair BAmir-Rad FAljanahi MKumar S VPrasad S(2024)Presurgical Infant Orthopedic Videos on YouTube™: A Thematic Analysis of Caregiver NarrativesThe Cleft Palate Craniofacial Journal10.1177/10556656241233115Online publication date: 23-Feb-2024
https://doi.org/10.1177/10556656241233115
Dunbar JPratt WBascom ECurrier CGarcia JSmith JSnyder JPollack A(2024)It's About the Journey - Capturing Stories of the Fluctuating Experiences of Youth Kidney Transplant PatientsProceedings of the ACM on Human-Computer Interaction10.1145/36537048:CSCW1(1-26)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3653704
Liu JZhang Y(2024)Modeling Health Video Consumption Behaviors on Social Media: Activities, Challenges, and CharacteristicsProceedings of the ACM on Human-Computer Interaction10.1145/36536998:CSCW1(1-28)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3653699
Cao JPeng XLiang FTong X(2024)"Voices Help Correlate Signs and Words": Analyzing Deaf and Hard-of-Hearing (DHH) TikTokers’ Content, Practices, and PitfallsProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642413(1-18)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642413
Kim HPak JChung MKim Y(2024)How self-disclosure builds cancer communities through authentic stories on YouTubeComputers in Human Behavior10.1016/j.chb.2024.108226156:COnline publication date: 9-Jul-2024
https://dl.acm.org/doi/10.1016/j.chb.2024.108226
Perangin-Angin RFiroz D(2024)Tourism Impact of Social Media Influencers on Entrepreneurship During COVID-19Tourism Entrepreneurship10.1007/978-3-031-61249-7_9(147-169)Online publication date: 11-Aug-2024
https://doi.org/10.1007/978-3-031-61249-7_9
Borgos-Rodriguez KPiper A(2023)Understanding Participation among Disabled Creators in Online MarketplacesProceedings of the ACM on Human-Computer Interaction10.1145/36101057:CSCW2(1-28)Online publication date: 4-Oct-2023
https://dl.acm.org/doi/10.1145/3610105
Karnatak NLoughrin BKuo TMateu-Silvernail OMedhi Thies IThies WJain M(2023) “Is it Even Giving the Correct Reading or Not?”: How Trust and Relationships Mediate Blood Pressure Management in IndiaACM Transactions on Computer-Human Interaction10.1145/360932730:6(1-27)Online publication date: 25-Sep-2023
https://dl.acm.org/doi/10.1145/3609327
Chen SChen XLu ZHuang Y(2023)"My Culture, My People, My Hometown": Chinese Ethnic Minorities Seeking Cultural Sustainability by Video BloggingProceedings of the ACM on Human-Computer Interaction10.1145/35795097:CSCW1(1-30)Online publication date: 16-Apr-2023
https://dl.acm.org/doi/10.1145/3579509
Schaadhardt AFu YPratt CPratt W(2023)“Laughing so I don’t cry”: How TikTok users employ humor and compassion to connect around psychiatric hospitalizationProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581559(1-13)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3581559
Show More Cited By

View Options

Get Access

Login options

Check if you have access through your login credentials or your institution to get full access on this article.

Full Access

Get this Publication

View options

PDF

View or Download as a PDF file.

eReader

View online with eReader.

Media

Figures

Other

Tables

View Table of Contents