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An Intimate Laboratory?: Prostheses as a Tool for Experimenting with Identity and Normalcy

Published: 07 May 2016 Publication History

Abstract

This paper is about the aspects of ability, selfhood, and normalcy embodied in people's relationships with prostheses. Drawing on interviews with 14 individuals with upper-limb loss and diverse experiences with prostheses, we find people not only choose to use and not use prosthesis throughout their lives but also form close and complex relationships with them. The design of "assistive" technology often focuses on enhancing function; however, we found that prostheses played important roles in people's development of identity and sense of normalcy. Even when a prosthesis failed functionally, such as was the case with 3D-printed prostheses created by an on-line open-source maker community (e-NABLE), we found people still praised the design and initiative because of the positive impacts on popular culture, identity, and community building. This work surfaces crucial questions about the role of design interventions in identity production, the promise of maker communities for accelerating innovation, and a broader definition of "assistive" technology.

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    cover image ACM Conferences
    CHI '16: Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems
    May 2016
    6108 pages
    ISBN:9781450333627
    DOI:10.1145/2858036
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    Published: 07 May 2016

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    Author Tags

    1. ability
    2. assistive technology
    3. design interventions
    4. identity
    5. normalcy
    6. prostheses

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    CHI'16: CHI Conference on Human Factors in Computing Systems
    May 7 - 12, 2016
    California, San Jose, USA

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    CHI '16 Paper Acceptance Rate 565 of 2,435 submissions, 23%;
    Overall Acceptance Rate 6,199 of 26,314 submissions, 24%

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    Cited By

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    • (2023)Barriers and Benefits: The Path to Accessible MakerspacesProceedings of the 25th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3597638.3608414(1-14)Online publication date: 22-Oct-2023
    • (2023)Towards a Social Justice Aligned Makerspace: Co-designing Custom Assistive Technology within a University EcosystemProceedings of the 25th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3597638.3608393(1-13)Online publication date: 22-Oct-2023
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    • (2023)A Review of the Potential and Path to the Large-Scale Adaptation of DIY in Assistive TechnologyDesign in the Era of Industry 4.0, Volume 110.1007/978-981-99-0293-4_86(1067-1079)Online publication date: 25-Jul-2023
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