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- research-articleAugust 2024
Reorientations: Practicing Grief and Hope in Post-Carbon Futures
PDC '24: Proceedings of the Participatory Design Conference 2024: Full Papers - Volume 1Pages 187–196https://doi.org/10.1145/3666094.3666104In response to a modernist optimistic path that has typically colonised narratives of addressing climate change, this paper explores and proposes a prototypical pedagogy that aims to unlearn privileges and restore a sense of commitment and involvement in ...
- short-paperSeptember 2022
Life-Death Interfaces: Tangible Ways of Legacy-Making, Grief, and Remembrance
MuC '22: Proceedings of Mensch und Computer 2022Pages 323–327https://doi.org/10.1145/3543758.3547533In this paper, we present the results of a design project that investigated new ways of preparing for one’s own death, of remembering loved ones and of joining others in grief. These ways include a pillow for remembering the voices of loved ones, an ...
- research-articleDecember 2020
Evaluating the Gradual Delivery of Knowledge-focused and Mindset-focused Messages for Facilitating the Acceptance of COPD
Proceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies (IMWUT), Volume 4, Issue 4Article No.: 160, Pages 1–23https://doi.org/10.1145/3432218Chronic Obstructive Pulmonary Disease (COPD) is a terminal, progressive lung condition which mainly affects older adults. The onset of symptoms, obstacles, and impairments brought about by COPD often necessitates a grieving process for patients. ...
- research-articleNovember 2020
Toxic Behaviors in Team-Based Competitive Gaming: The Case of League of Legends
CHI PLAY '20: Proceedings of the Annual Symposium on Computer-Human Interaction in PlayPages 81–92https://doi.org/10.1145/3410404.3414243Toxic behaviors in online gaming such as flaming and harassment have been gaining attention from the research community, yet little consensus has formed about what constitutes toxic behavior. Game developers usually maintain a classification system of ...
- short-paperNovember 2020
Illuminate: A Simulation Game to Instill Grounded Hope in Youth for Climate Action
CHI PLAY '20: Extended Abstracts of the 2020 Annual Symposium on Computer-Human Interaction in PlayPages 47–49https://doi.org/10.1145/3383668.3419920Increasing negative media about climate change and ecological loss has evoked feelings of hopelessness and loss for the future in youth. We created Illuminate in response, a mobile game which leverages resource management and storytelling to instill ...
- research-articleApril 2020Best Paper
ReFind: Design, Lived Experience and Ongoingness in Bereavement
- Jayne Wallace,
- Kyle Montague,
- Trevor Duncan,
- Luís P. Carvalho,
- Nantia Koulidou,
- Jamie Mahoney,
- Kellie Morrissey,
- Claire Craig,
- Linnea Iris Groot,
- Shaun Lawson,
- Patrick Olivier,
- Julie Trueman,
- Helen Fisher
CHI '20: Proceedings of the 2020 CHI Conference on Human Factors in Computing SystemsPages 1–12https://doi.org/10.1145/3313831.3376531We describe the design and use of ReFind, a handheld artefact made for people who are bereaved and are ready to re-explore their relationship to the deceased person. ReFind was made within a project seeking to develop new ways to curate and create ...
- research-articleNovember 2019
Orienting to Networked Grief: Situated Perspectives of Communal Mourning on Facebook
Proceedings of the ACM on Human-Computer Interaction (PACMHCI), Volume 3, Issue CSCWArticle No.: 27, Pages 1–19https://doi.org/10.1145/3359129Contemporary American experiences of death and mourning increasingly extend onto social network sites, where friends gather to memorialize the deceased. That "everyone grieves in their own way'' may be true, but it forecloses important questions about ...
- abstractApril 2018
Not Alone: Designing for Self-Disclosure and Social Support Exchange After Pregnancy Loss
CHI EA '18: Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing SystemsPaper No.: LBW047, Pages 1–6https://doi.org/10.1145/3170427.3188473Pregnancy loss is a common complication in pregnancy. Yet those who experience it can find it challenging to disclose this loss and feelings associated with it, and to seek support for psychological and physical recovery. We describe our process for ...
- research-articleApril 2018
Announcing Pregnancy Loss on Facebook: A Decision-Making Framework for Stigmatized Disclosures on Identified Social Network Sites
CHI '18: Proceedings of the 2018 CHI Conference on Human Factors in Computing SystemsPaper No.: 158, Pages 1–14https://doi.org/10.1145/3173574.3173732Pregnancy loss is a common experience that is often not disclosed in spite of potential disclosure benefits such as social support. To understand how and why people disclose pregnancy loss online, we interviewed 27 women in the U.S. who are social media ...
- abstractMay 2017
Self-disclosure and Response Behaviors in Socially Stigmatized Contexts on Social Media: The Case of Miscarriage
CHI EA '17: Proceedings of the 2017 CHI Conference Extended Abstracts on Human Factors in Computing SystemsPages 248–253https://doi.org/10.1145/3027063.3027137I investigate self-disclosure and the ways in which social computing systems can be designed to allow people to disclose sensitive or stigmatized experiences and find and provide support in their online social networks. My prior work has given me ...
- research-articleAugust 2016
Design for Rituals of Letting Go: An Embodiment Perspective on Disposal Practices Informed by Grief Therapy
ACM Transactions on Computer-Human Interaction (TOCHI), Volume 23, Issue 4Article No.: 21, Pages 1–37https://doi.org/10.1145/2926714People increasingly live their lives online, accruing large collections of digital possessions, which symbolically represent important relationships, events, and activities. Most HCI research on bereavement focuses on retaining these significant digital ...
- research-articleMay 2016
"PS. I Love You": Understanding the Impact of Posthumous Digital Messages
CHI '16: Proceedings of the 2016 CHI Conference on Human Factors in Computing SystemsPages 2920–2932https://doi.org/10.1145/2858036.2858504A number of digital platforms and services have recently emerged that allow users to create posthumous forms of communication, effectively arranging for the delivery of messages from "beyond the grave". Despite some evidence of interest and popularity ...
- research-articleNovember 2013
Virtual mourning and memory construction on Facebook: here are the terms of use
ASIST '13: Proceedings of the 76th ASIS&T Annual Meeting: Beyond the Cloud: Rethinking Information BoundariesArticle No.: 54, Pages 1–10This article investigates the online information practices of persons grieving and mourning the death of another via Facebook through an examination of how, or if, these practices and Facebook's terms of use policies have implications for those in ...
- research-articleFebruary 2013
Exploring remembrance and social support behavior in an online bereavement support group
CSCW '13: Proceedings of the 2013 conference on Computer supported cooperative workPages 1169–1180https://doi.org/10.1145/2441776.2441908Designing interactive systems that sensitively engage with end of life issues is a key challenge for CSCW as more and more people turn to the Internet to grapple with the realities of death. However, there are few studies that document how specific ...
- research-articleAugust 2012
Grieving online: the use of search engines in times of grief and bereavement
IIIX '12: Proceedings of the 4th Information Interaction in Context SymposiumPages 120–128https://doi.org/10.1145/2362724.2362747In this paper, we study the information goals in searches on the topic of grieving and bereavement. Using log analyses and content analyses we present a categorization system of grief and bereavement-related queries submitted to a major search engine, ...
- research-articleMay 2011
I said your name in an empty room: grieving and continuing bonds on facebook
CHI '11: Proceedings of the SIGCHI Conference on Human Factors in Computing SystemsPages 997–1000https://doi.org/10.1145/1978942.1979091In response to the death of a close friend or relative, bereaved individuals can use technology as part of the grieving process. We present a study that analyzes the messages of the friends and family of the deceased to their Facebook profile before and ...