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Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients

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Human-Computer Interaction – INTERACT 2021 (INTERACT 2021)

Part of the book series: Lecture Notes in Computer Science ((LNISA,volume 12933))

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Abstract

Patients on haemodialysis face complex care pathways, a high treatment burden and lower quality-of-life. Working with multidisciplinary domain experts, we have conducted several iterative development cycles to design, develop and evaluate a portal for patients on haemodialysis that can help them better understand and navigate their care pathways. A key functionality of the portal is to improve data and information sharing with clinicians, including on key aspects of quality-of-life through Patients Reported Outcome Measures. A case study was conducted with multidisciplinary experts and patients in the NHS Greater Glasgow and Clyde health board (Scotland), using interviews combined with the System Usability Scale (n = 26). Patients’ feedback and system use observations were used to further refine the system design requirements and functionalities. Key lessons include: a wide preference for tablet-based input vs paper, identification of case-specific accessibility issues and situational impairment, benefits of self-completed digital data collection in overcoming such issues and promoting patient independence and privacy, with considerations for maintaining perceived value and engagement with such systems and when to offer alternatives.

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Acknowledgements

This work was funded by a Strathclyde Centre for Doctoral Training (SCDT) Research Studentship in Digital Health and Analytics [45] (2018–2022). The authors would like to thank the dialysis nurses and patients for their participation in this work, while in the midst of a global pandemic. We would also like to thank Fabiano Pinatti (Aparecido F. P. de Carvalho) for his comments and improvement suggestions on earlier versions of this paper.

Author information

Authors and Affiliations

  1. Department of Computer and Information Sciences, University of Strathclyde, Glasgow, Scotland

    Ramsay Meiklem & Mark Dunlop

  2. Queen Elizabeth University Hospital, Glasgow, Scotland

    Karen Stevenson, Sabine Richarz, David B. Kingsmore & Peter Thomson

  3. Universitätsspital Basel, Petersgraben 4, 4031, Basel, Switzerland

    Sabine Richarz

  4. Centre for Medical Informatics, Usher Institute, University of Edinburgh, Edinburgh, Scotland

    Matt-Mouley Bouamrane

Authors
  1. Ramsay Meiklem
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  2. Karen Stevenson
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  5. Matt-Mouley Bouamrane
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  6. Mark Dunlop
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Correspondence to Ramsay Meiklem .

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Editors and Affiliations

  1. Department of Electrical and Information Engineering, Polytechnic University of Bari, Bari, Italy

    Carmelo Ardito

  2. Computer Science Department, University of Bari Aldo Moro, Bari, Italy

    Rosa Lanzilotti

  3. Computer Science Department, University of Pisa, Pisa, Italy

    Alessio Malizia

  4. Department of Computer Science, University of York, York, UK

    Helen Petrie

  5. Computer Science Department, University of Bari Aldo Moro, Bari, Italy

    Antonio Piccinno

  6. Computer Science Department, University of Bari Aldo Moro, Bari, Italy

    Giuseppe Desolda

  7. Microsoft Research, Redmond, WA, USA

    Kori Inkpen

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Meiklem, R. et al. (2021). Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients. In: Ardito, C., et al. Human-Computer Interaction – INTERACT 2021. INTERACT 2021. Lecture Notes in Computer Science(), vol 12933. Springer, Cham. https://doi.org/10.1007/978-3-030-85616-8_12

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  • DOI: https://doi.org/10.1007/978-3-030-85616-8_12

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-85615-1

  • Online ISBN: 978-3-030-85616-8

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