Abstract
The reality of a Parkinson’s Disease patient involves coping with the condition 24 hours a day for the rest of her or his life. A continuous decay of physical and sometimes cognitive functions makes activities of daily life progressively more difficult to accomplish. Many keep a diary where they take note of feelings, relevant events related to the daily routines, reaction to the medication, etc. Such diaries may prove extremely useful for a better understanding of the disease progression, both by the patient and by the doctor. The SENSE-PARK project went a step forward: it combines the patient diary notes (self-reported) with information gathered from movement sensors (automatic measurement) and a visualization mechanism combining the two. A system has been designed, prototyped and tested. Parkinson’s medical specialists, user experience experts, technologists and most important the patients themselves, were involved in this process.
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Keywords
- Parkinson’s Disease (PD)
- People with Parkinson’s (PwP’s)
- patient diaries
- marking of events
- symptom
- timeline
- chronic disease management
- self-management
- second level prevention
- activities of daily living (ADL)
- movement sensor
- accelerometer
- monitoring
- degenerative disease
- time correlation
- User Centred Design (UCD)
- participatory design
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Serrano, J.A., Thoms, A., Weber, P. (2014). Patients Initiated Timeline Marking of Events in Parkinson’s Disease: Visualization of Time Correlation between Patients Marked Events and Acquired Data from Sensors. In: Schmorrow, D.D., Fidopiastis, C.M. (eds) Foundations of Augmented Cognition. Advancing Human Performance and Decision-Making through Adaptive Systems. AC 2014. Lecture Notes in Computer Science(), vol 8534. Springer, Cham. https://doi.org/10.1007/978-3-319-07527-3_31
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DOI: https://doi.org/10.1007/978-3-319-07527-3_31
Publisher Name: Springer, Cham
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