Abstract
Privacy has been identified as a primary concern among stakeholders (i.e., service recipients, advocates, administrators, family) when using technology to provide residential services to individuals in need. This paper summarizes a study that distributed a survey to agencies that provide services (e.g., clinical, recreational) and resources (e.g., advocacy groups) to people with various types of disabilities (e.g., physical, sensory, intellectual, developmental) across the United States. The results led to several recommendations about how smart-home service providers can use technology in a way that promotes client privacy. In addition, we make several suggestions for how remote staff (i.e., individuals monitoring the information gathered by technology) can assist in the process of ensuring client privacy.
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References
Braddock, D., Hemp, R., Rizzolo, M. C., Tanis, E. S., Haffer, L., Lulinski, A., & Wu, J. (2013). State of the states in developmental disabilities 2013: The great recession and its aftermath. Boulder: Department of Psychiatry and Coleman Institute, University of Colorado, and Department of Disability and Human Development, University of Illinois at Chicago.
Brewer, J. L., Taber-Doughty, T., & Kubik, S. (2010). Safety assessment of a home-based telecare system for adults with developmental disabilities in Indiana: A multi-stakeholder perspective. Journal of Telemedicine and Telecare, 16, 265–269. https://doi.org/10.1258/jtt.2010.090902.
Chung, J., Demiris, G., & Thompson, H. J. (2016). Ethical considerations regarding the use of smart home technologies for older adults: An integrative review. Annual Review of Nursing Research, 34, 155–181. https://doi.org/10.1891/0739-6686.34.155.
Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). Hillside, NJ: Lawrence Erlbaum.
Demiris, G., & Hensel, B. K. (2008). Technologies for an aging society: A systematic review of “smart home” applications. Yearbook of Medical Informatics, 17, 33–40. https://doi.org/10.1055/s-0038-1638580.
DiGennaro Reed, F. D., & Reed, D. D. (2013). HomeLink support technologies at community living opportunities. Behavior Analysis in Practice, 6, 80–81. https://doi.org/10.1007/BF03391794.
DiGennaro Reed, F. D., Strouse, M. C., Jenkins, S. R., Price, J., Henley, A. J., & Hirst, J. M. (2014). Barriers to independent living for individuals with disabilities and seniors. Behavior Analysis in Practice, 7, 70–77. https://doi.org/10.1007/s40617-014-0011-6.
Dorsten, A., Sifford, K. S., Bharucha, A., Mecca, L. P., & Wactlar, H. (2009). Ethical perspective on emerging assistive technologies: Insights from focus groups with stakeholders in long-term care facilities. Journal of Empirical Research on Human Research Ethics: An International Journal, 4, 25–36. https://doi.org/10.1525/jer.2009.4.1.25.
Draper, H., & Sorell, T. (2012). Telecare, remote monitoring and care. Bioethics, 27, 365–372. https://doi.org/10.1111/j.1467-8519.2012.01961.x.
Essen, A. (2008). The two facets of electronic care surveillance: An exploration of the views of older people who live with monitoring devices. Social Science and Medicine, 67, 128–136. https://doi.org/10.1016/j.socscimed.2008.03.005.
Gerhardt, P. (2009). The current state of services for adults with autism. New York, NY: Organization for Autism Research.
Guise, V., Anderson, J., & Wiig, S. (2014). Patient safety risks associated with telecare: A systematic review and narrative synthesis of the literature. BMC Health Services Research, 14, 588–636. https://doi.org/10.1186/s12913-014-0588-z.
Health Insurance Portability and Accountability Act of 1996, Pub. L. No. 104-191, § 264, 110 Stat. 1936 (1996).
Kraus, L. (2017). 2016 disability statistics annual report. Durham: University of New Hampshire.
Mort, M., Roberts, C., Pols, J., Domenech, M., & Moser, I. (2015). Ethical implications of home telecare for older people: A framework derived from a multisited participative study. Health Expectations, 18, 438–449. https://doi.org/10.1111/hex.12109.
Niemeijer, A. R., Depla, M. F. I. A., Frederiks, B. J. M., & Hertogh, C. M. P. M. (2015). The experience of people with dementia and intellectual disabilities with surveillance technologies in residential care. Nursing Ethics, 22, 307–320. https://doi.org/10.1177/0969733014533237.
Powell, J., Gunn, L., Lowe, P., Sheehan, B., Griffiths, F., & Clarke, A. (2010). New networked technologies and carers of people with dementia: An interview study. Ageing and Society, 30, 1073–1088. https://doi.org/10.1017/S0144686X1000019X.
Venkatesh, V. (2000). Determinants of perceived ease of use: Integrating control, intrinsic motivation, and emotion into the technology acceptance model. Information Systems Research, 11, 342–365. https://doi.org/10.1287/isre.11.4.342.11872.
Wilkowska, W., Ziefle, M., & Himmel, S. (2015). Perceptions of personal privacy in smart home technologies: Do user assessments vary depending on the research method? In T. Tryfonas & I. Askoxylakis (Eds.), Human aspects of information security, privacy, and trust (pp. 592–603). Cambridge, UK: Springer International Publishing. https://doi.org/10.1007/978-3-319-20376-8_53.
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Brand, D., DiGennaro Reed, F.D., Morley, M.D. et al. A Survey Assessing Privacy Concerns of Smart-Home Services Provided to Individuals with Disabilities. Behav Analysis Practice 13, 11–21 (2020). https://doi.org/10.1007/s40617-018-00329-y
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DOI: https://doi.org/10.1007/s40617-018-00329-y