The International Classification of Functioning, Disability and Health (ICF) model of disability ... more The International Classification of Functioning, Disability and Health (ICF) model of disability holds that both personal and environmental factors predict participation. However, little is known about these predictors for people with dementia. Similarly, ‘partnership between patients and clinicians in research’ is a stated aim of UK government policy but little is known about what facilitates this in the dementia population, particularly with respect to peer research. This thesis sought to throw light on both areas. Part 1 comprises a systematic review of research about factors associated with social participation by adults with acquired cognitive impairment. Results showed that, in some studies, psychological factors (e.g. self-efficacy) social factors (e.g. caregiver functioning or social support), and societal factors (e.g. the built environment), and transport were associated with social participation. Part 2 comprises an interview-based, qualitative, empirical study of differe...
BackgroundPublic and patient involvement (PPI) is now established in dementia research. Barriers ... more BackgroundPublic and patient involvement (PPI) is now established in dementia research. Barriers and facilitators to engagement from family carers and people in early stages of dementia have been explored. However, specific barriers and facilitators to co‐research with people with dementia have not previously been investigated.ObjectiveTo discover the facilitators of, and barriers to, involving people with dementia as co‐researchers, from the perspectives of people with dementia, gatekeepers (family caregivers, ethics committee members, service providers) and researchers.DesignThematic analysis of data from individual interviews about the co‐research experience.ResultsFour themes emerged from interviews with 19 participants (five people with dementia): “getting one's head round it” (assumptions about research and dementia; different forms of language); practicalities (eg transport; accessibility of communication); “this feeling of safety” (perceptions of danger, protectiveness a...
The International Classification of Functioning, Disability and Health (ICF) model of disability ... more The International Classification of Functioning, Disability and Health (ICF) model of disability holds that both personal and environmental factors predict participation. However, little is known about these predictors for people with dementia. Similarly, ‘partnership between patients and clinicians in research’ is a stated aim of UK government policy but little is known about what facilitates this in the dementia population, particularly with respect to peer research. This thesis sought to throw light on both areas. Part 1 comprises a systematic review of research about factors associated with social participation by adults with acquired cognitive impairment. Results showed that, in some studies, psychological factors (e.g. self-efficacy) social factors (e.g. caregiver functioning or social support), and societal factors (e.g. the built environment), and transport were associated with social participation. Part 2 comprises an interview-based, qualitative, empirical study of differe...
BackgroundPublic and patient involvement (PPI) is now established in dementia research. Barriers ... more BackgroundPublic and patient involvement (PPI) is now established in dementia research. Barriers and facilitators to engagement from family carers and people in early stages of dementia have been explored. However, specific barriers and facilitators to co‐research with people with dementia have not previously been investigated.ObjectiveTo discover the facilitators of, and barriers to, involving people with dementia as co‐researchers, from the perspectives of people with dementia, gatekeepers (family caregivers, ethics committee members, service providers) and researchers.DesignThematic analysis of data from individual interviews about the co‐research experience.ResultsFour themes emerged from interviews with 19 participants (five people with dementia): “getting one's head round it” (assumptions about research and dementia; different forms of language); practicalities (eg transport; accessibility of communication); “this feeling of safety” (perceptions of danger, protectiveness a...
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Papers by Jacob Waite