The policy context and important contributions that children’s community nurses can make to deliv... more The policy context and important contributions that children’s community nurses can make to deliver this agenda are described. The evolution, range and scope of the roles and services of children’s community nursing are explored. A summary of key evidence concerning roles, policy and service development, and interventions is presented, along with future role development and research challenges. The roles of
AimTo determine the effectiveness of epilepsy self‐management interventions and explore the views... more AimTo determine the effectiveness of epilepsy self‐management interventions and explore the views and experiences of medication and seizures by children and young people.BackgroundExperiencing seizures and side‐effects from anti‐epileptic medicines have negative impacts on children and young people managing their epilepsy. Children commonly experiment with not taking epilepsy medication as prescribed and engage in unhealthy lifestyles.Design/Review MethodsMixed‐method systematic review with theory development. Cochrane quantitative methods and thematic synthesis of qualitative and survey evidence.Data SourcesEight databases were searched from earliest dates to July 2013.ResultsNineteen studies were included. Meta‐analysis was not possible. Zero of nine intervention studies showed improvement in anti‐epilepsy medication adherence. Skill‐based behavioural techniques with activities such as role play and goal setting with young people increased epilepsy knowledge and seizure self‐manag...
Wheelchairs for disabled children (≤ 18 years) can provide health, developmental and social benef... more Wheelchairs for disabled children (≤ 18 years) can provide health, developmental and social benefits. World Health Organisation and United Kingdom Government reports demonstrate the need for improved access to wheelchairs both locally and internationally. The use of health economics within this field is lacking. Provision of wheelchairs based on cost-effectiveness evidence is not currently possible. We conducted the first systematic review in this field to incorporate evidence of effectiveness, service user perspectives, policy intentions and cost-effectiveness in order to develop a conceptual framework to inform future research and service development. We used an adapted EPPI-Centre mixed-method systematic review design with narrative summary, thematic and narrative synthesis. 11 databases were searched. Studies were appraised for quality using one of seven appropriate tools. A conceptual framework was developed from synthesised evidence. 22 studies and 14 policies/guidelines were ...
AimThis mixed‐method systematic review aims to establish the current evidence base for ‘keep fit’... more AimThis mixed‐method systematic review aims to establish the current evidence base for ‘keep fit’, exercise or physical activity interventions for children and young people who use wheelchairs.BackgroundNurses have a vital health promotion, motivational and monitoring role in optimizing the health and well‐being of disabled children. Children with mobility impairments are prone to have low participation levels in physical activity, which reduces fitness and well‐being. Effective physical activity interventions that are fun and engaging for children are required to promote habitual participation as part of a healthy lifestyle. Previous intervention programmes have been trialled, but little is known about the most effective types of exercise to improve the fitness of young wheelchair users.DesignMixed‐method design using Cochrane systematic processes. Evidence regarding physiological and psychological effectiveness, health economics, user perspectives and service evaluations will be i...
It has been stated that nurse education in the United Kingdom (UK) currently draws upon Schön&... more It has been stated that nurse education in the United Kingdom (UK) currently draws upon Schön's concept of the reflective practitioner, and Benner's concept of the expert. Studies have explored the claim that experienced expert practitioners are unable to articulate all they know, and that their theoretical knowledge and clinical skills are of a qualitatively different type from that of novice practitioners. This paper aims to explain the differences between expert and novice performance using the example of administering an intramuscular injection of an analgesic agent to a patient in pain. Theoretical concepts concerning the nature of expertise are used to evaluate novice/expert performance in nursing. Criticisms of Benner's theory are developed in relationship to her methodology and the interpretation and assessment of nursing practice.
The impact of knowing your child is critically ill: a qualitative study of mothers' experienc... more The impact of knowing your child is critically ill: a qualitative study of mothers' experiences¶ Discussion in this paper is drawn from an exploratory study designed to elicit mothers' lived experiences of crisis and coping, and their experiences of nursing following the unexpected emergency admission of their child to the paediatric intensive care unit (PICU). An in‐depth critique of literature supporting this study has been published. Two theoretical perspectives serve as a basis for this exploratory study: firstly, the idea that in a crisis situation, a mother's ability to cope and function is influenced by therapeutic interventions of nurses by meeting her needs in a holistic way; and secondly, symbolic interactionism, that focuses on the meaning of events to mothers. Data were elicited through focused interviews with 10 mothers of children aged between 3 months and 15 years who had been admitted unexpectedly to the PICU with a life threatening condition. Findings re...
Title. Directly observed therapy and tuberculosis: how can a systematic review of qualitative res... more Title. Directly observed therapy and tuberculosis: how can a systematic review of qualitative research contribute to improving services? A qualitative meta‐synthesis Aim. This paper reports the findings from a qualitative meta‐synthesis concerning people with, or at risk of, tuberculosis, service providers and policymakers and their experiences and perceptions of tuberculosis and treatment.Background. Directly observed therapy is part of a package of interventions to improve tuberculosis treatment and adherence. A Cochrane systematic review of trials showed an absence of evidence for or against directly observed therapy compared with people treating themselves.Method. Qualitative systematic review methods were used to search, screen, appraise and extract data thematic analysis was used to synthesize data from 1990 to 2002, and an update of literature to December 2005. Two questions were addressed: ‘What does qualitative research tell us about the facilitators and barriers to acce...
Aim. This paper reports a qualitative study with ventilator‐dependent children and their parents... more Aim. This paper reports a qualitative study with ventilator‐dependent children and their parents, describing their experiences and meanings concerning the children's health and quality of life.Background. Recent medical advances have enabled children to survive premature birth, congenital anomalies, critical illness and accidents with long‐term use of mechanical ventilation to support breathing. In economically developed countries, the number of ventilator‐dependent children is increasing and many require nurse‐led home healthcare services. Debate has been polarized as to whether life on a ventilator is in the best interests of all children. The perspectives of ventilator‐dependent children are largely absent in the literature.Methods. Principles derived from Heideggerian phenomenology were used to describe how children and their parents interpreted and rationalized the quality of the child's ‘ventilator‐dependent’ life and their health. The study had two phases with data...
The policy context and important contributions that children’s community nurses can make to deliv... more The policy context and important contributions that children’s community nurses can make to deliver this agenda are described. The evolution, range and scope of the roles and services of children’s community nursing are explored. A summary of key evidence concerning roles, policy and service development, and interventions is presented, along with future role development and research challenges. The roles of
AimTo determine the effectiveness of epilepsy self‐management interventions and explore the views... more AimTo determine the effectiveness of epilepsy self‐management interventions and explore the views and experiences of medication and seizures by children and young people.BackgroundExperiencing seizures and side‐effects from anti‐epileptic medicines have negative impacts on children and young people managing their epilepsy. Children commonly experiment with not taking epilepsy medication as prescribed and engage in unhealthy lifestyles.Design/Review MethodsMixed‐method systematic review with theory development. Cochrane quantitative methods and thematic synthesis of qualitative and survey evidence.Data SourcesEight databases were searched from earliest dates to July 2013.ResultsNineteen studies were included. Meta‐analysis was not possible. Zero of nine intervention studies showed improvement in anti‐epilepsy medication adherence. Skill‐based behavioural techniques with activities such as role play and goal setting with young people increased epilepsy knowledge and seizure self‐manag...
Wheelchairs for disabled children (≤ 18 years) can provide health, developmental and social benef... more Wheelchairs for disabled children (≤ 18 years) can provide health, developmental and social benefits. World Health Organisation and United Kingdom Government reports demonstrate the need for improved access to wheelchairs both locally and internationally. The use of health economics within this field is lacking. Provision of wheelchairs based on cost-effectiveness evidence is not currently possible. We conducted the first systematic review in this field to incorporate evidence of effectiveness, service user perspectives, policy intentions and cost-effectiveness in order to develop a conceptual framework to inform future research and service development. We used an adapted EPPI-Centre mixed-method systematic review design with narrative summary, thematic and narrative synthesis. 11 databases were searched. Studies were appraised for quality using one of seven appropriate tools. A conceptual framework was developed from synthesised evidence. 22 studies and 14 policies/guidelines were ...
AimThis mixed‐method systematic review aims to establish the current evidence base for ‘keep fit’... more AimThis mixed‐method systematic review aims to establish the current evidence base for ‘keep fit’, exercise or physical activity interventions for children and young people who use wheelchairs.BackgroundNurses have a vital health promotion, motivational and monitoring role in optimizing the health and well‐being of disabled children. Children with mobility impairments are prone to have low participation levels in physical activity, which reduces fitness and well‐being. Effective physical activity interventions that are fun and engaging for children are required to promote habitual participation as part of a healthy lifestyle. Previous intervention programmes have been trialled, but little is known about the most effective types of exercise to improve the fitness of young wheelchair users.DesignMixed‐method design using Cochrane systematic processes. Evidence regarding physiological and psychological effectiveness, health economics, user perspectives and service evaluations will be i...
It has been stated that nurse education in the United Kingdom (UK) currently draws upon Schön&... more It has been stated that nurse education in the United Kingdom (UK) currently draws upon Schön's concept of the reflective practitioner, and Benner's concept of the expert. Studies have explored the claim that experienced expert practitioners are unable to articulate all they know, and that their theoretical knowledge and clinical skills are of a qualitatively different type from that of novice practitioners. This paper aims to explain the differences between expert and novice performance using the example of administering an intramuscular injection of an analgesic agent to a patient in pain. Theoretical concepts concerning the nature of expertise are used to evaluate novice/expert performance in nursing. Criticisms of Benner's theory are developed in relationship to her methodology and the interpretation and assessment of nursing practice.
The impact of knowing your child is critically ill: a qualitative study of mothers' experienc... more The impact of knowing your child is critically ill: a qualitative study of mothers' experiences¶ Discussion in this paper is drawn from an exploratory study designed to elicit mothers' lived experiences of crisis and coping, and their experiences of nursing following the unexpected emergency admission of their child to the paediatric intensive care unit (PICU). An in‐depth critique of literature supporting this study has been published. Two theoretical perspectives serve as a basis for this exploratory study: firstly, the idea that in a crisis situation, a mother's ability to cope and function is influenced by therapeutic interventions of nurses by meeting her needs in a holistic way; and secondly, symbolic interactionism, that focuses on the meaning of events to mothers. Data were elicited through focused interviews with 10 mothers of children aged between 3 months and 15 years who had been admitted unexpectedly to the PICU with a life threatening condition. Findings re...
Title. Directly observed therapy and tuberculosis: how can a systematic review of qualitative res... more Title. Directly observed therapy and tuberculosis: how can a systematic review of qualitative research contribute to improving services? A qualitative meta‐synthesis Aim. This paper reports the findings from a qualitative meta‐synthesis concerning people with, or at risk of, tuberculosis, service providers and policymakers and their experiences and perceptions of tuberculosis and treatment.Background. Directly observed therapy is part of a package of interventions to improve tuberculosis treatment and adherence. A Cochrane systematic review of trials showed an absence of evidence for or against directly observed therapy compared with people treating themselves.Method. Qualitative systematic review methods were used to search, screen, appraise and extract data thematic analysis was used to synthesize data from 1990 to 2002, and an update of literature to December 2005. Two questions were addressed: ‘What does qualitative research tell us about the facilitators and barriers to acce...
Aim. This paper reports a qualitative study with ventilator‐dependent children and their parents... more Aim. This paper reports a qualitative study with ventilator‐dependent children and their parents, describing their experiences and meanings concerning the children's health and quality of life.Background. Recent medical advances have enabled children to survive premature birth, congenital anomalies, critical illness and accidents with long‐term use of mechanical ventilation to support breathing. In economically developed countries, the number of ventilator‐dependent children is increasing and many require nurse‐led home healthcare services. Debate has been polarized as to whether life on a ventilator is in the best interests of all children. The perspectives of ventilator‐dependent children are largely absent in the literature.Methods. Principles derived from Heideggerian phenomenology were used to describe how children and their parents interpreted and rationalized the quality of the child's ‘ventilator‐dependent’ life and their health. The study had two phases with data...
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Papers by Jane Noyes