Supplemental digital content is available in the text. The term social model hospice first appear... more Supplemental digital content is available in the text. The term social model hospice first appeared late in the 20th century as a label for a complementary model to medical hospice care. Two decades later, the term is inconsistently defined and used by scholars, health care providers, public consumers, and those within the movement. The purpose of this review is to trace the development of the concept and confirm an evolving definition based on Rodgers' evolutionary method. Database and hand searching was done for the years 1975 to 2020, resulting in 25 publications for analysis. Unique antecedents include presence of a resource crisis, unmet needs falling outside the scope of medical hospice care, and desire to experience death outside the medical system and/or personal home. Attributes include a dedicated home, round-the-clock, individualized end-of-life care; care option when dying at home becomes unmanageable; collaboration with medical hospice services; nonprofit organization funded by community philanthropy; environment to support loved ones; and community volunteer involvement. Noted consequences are effective end-of-life care for dying patients and their families, innovative health care design, nationwide network of like-minded providers, and platform for end-of-life community education. Clarity of the concept will facilitate access to end-of-life care, further the model's development, formalize research endeavors, and foster community education.
American Journal of Hospice and Palliative Medicine®, 2013
Young adulthood is a time of immense growth and possibilities. As a result, it is also a time whe... more Young adulthood is a time of immense growth and possibilities. As a result, it is also a time when serious illness can have profound effects. This review examines the current data pertinent to young adult palliative care and discusses the challenges and opportunities where palliative medicine can enhance the care provided to this growing and vulnerable population. From the data, 2 primary themes emerged (1) ongoing young adult development not only generates unique biologic disease burdens and clinical treatment options but also requires frequent assessment and promotion and (2) binary health care systems often leave young adults without access to developmentally appropriate health care. Given its interdisciplinary approach, palliative care is uniquely poised to address the challenges known to caring for the seriously ill young adult.
Supplemental digital content is available in the text. The term social model hospice first appear... more Supplemental digital content is available in the text. The term social model hospice first appeared late in the 20th century as a label for a complementary model to medical hospice care. Two decades later, the term is inconsistently defined and used by scholars, health care providers, public consumers, and those within the movement. The purpose of this review is to trace the development of the concept and confirm an evolving definition based on Rodgers' evolutionary method. Database and hand searching was done for the years 1975 to 2020, resulting in 25 publications for analysis. Unique antecedents include presence of a resource crisis, unmet needs falling outside the scope of medical hospice care, and desire to experience death outside the medical system and/or personal home. Attributes include a dedicated home, round-the-clock, individualized end-of-life care; care option when dying at home becomes unmanageable; collaboration with medical hospice services; nonprofit organization funded by community philanthropy; environment to support loved ones; and community volunteer involvement. Noted consequences are effective end-of-life care for dying patients and their families, innovative health care design, nationwide network of like-minded providers, and platform for end-of-life community education. Clarity of the concept will facilitate access to end-of-life care, further the model's development, formalize research endeavors, and foster community education.
American Journal of Hospice and Palliative Medicine®, 2013
Young adulthood is a time of immense growth and possibilities. As a result, it is also a time whe... more Young adulthood is a time of immense growth and possibilities. As a result, it is also a time when serious illness can have profound effects. This review examines the current data pertinent to young adult palliative care and discusses the challenges and opportunities where palliative medicine can enhance the care provided to this growing and vulnerable population. From the data, 2 primary themes emerged (1) ongoing young adult development not only generates unique biologic disease burdens and clinical treatment options but also requires frequent assessment and promotion and (2) binary health care systems often leave young adults without access to developmentally appropriate health care. Given its interdisciplinary approach, palliative care is uniquely poised to address the challenges known to caring for the seriously ill young adult.
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