Parents need to constantly monitor their children with inherited metabolic diseases (IMDs) and ha... more Parents need to constantly monitor their children with inherited metabolic diseases (IMDs) and have difficulty coordinating care. The aim of this descriptive study was to determine the symptoms and problems in children with IMDs and factors affecting caregiver burden. The study was conducted in a pediatric hospital. The study sample consisted of 47 mothers of children with IMDs. Data were collected using a descriptive characteristics form (DCF), a data collection form related to symptoms and problems (DCFSP), and a caregiver burden inventory (CBI). The most common specific problems were hepatomegaly (36.2%), developmental delay (27.7%), and muscle weakness (14.9%). Mothers’ CBI mean total score was 30.23 ± 19.65. Mothers whose children were partially or completely dependent had significantly higher scores than others. Mothers who expressed the family income status as “an expenses more than income” had higher CBI scores. Understanding the problems of children with IMD and factors eff...
Purpose: Obesity is one of the most important late effects that seen in survivors of childhood ac... more Purpose: Obesity is one of the most important late effects that seen in survivors of childhood acute lymphoblastic leukemia. In this literature review, it is aimed to determine frequency of obesity in survivors of childhood acute lymphoblastic leukemia and characteristics of survivors. Materials and Methods: Review of the literature was made on Pubmed and Wiley Interscience and 13 studies were examined that conducted between 2003 and 2013. Results: Frequency of obesity in survivors is between 4.6% and 38.2%. The prevalence of obesity showed increases in female and survivors treated high dose cranial radiation therapy and survivors with long-term steroid exposure. Conclusion: It was shown that obesity is the most common late effects in survivors and there has been many late effects such as growth and development problems, cardiac anomalies, hypertension with obesity.
Objective: The majority of problems and symptoms occur in the gastrointestinal system in children... more Objective: The majority of problems and symptoms occur in the gastrointestinal system in children with cancer. Parents have difficulty in coping with the nutritional problems and changing routines of children and need support in this respect. This study aimed to assess the nutritional problems of children with cancer and the information needs of their parents. Methods: This descriptive study was performed among children with cancer aged 3–18 years and their parents (n = 69). The data were collected through a data collection form developed by the researchers based on the literature. Results: The most prominent nutritional problems experienced by children were loss of appetite (85.5%), nausea (84.1%), vomiting (81.2%), fatigue (79.7%), and mucositis (66.7%). According to the parents, the factors causing these nutritional problems in children were physiological factors (100%) and the foods given to children in the hospital (65.2%). The parents mostly needed information about food–drug ...
BACKGROUND Simulation is an important learning-teaching tool for integrating theory and practice ... more BACKGROUND Simulation is an important learning-teaching tool for integrating theory and practice in nursing education. OBJECTIVE The aim of this study was to develop and to conduct the validity and reliability of a self-evaluation scale for simulation laboratory practices (SES-SLP) with undergraduate nurses. METHODS The study sample consisted of 220 undergraduate nursing students. Data were collected using a Descriptive Characteristic Form (DCF) and the 23-item Self-Evaluation Scale for Simulation Laboratory Practices (SES-SLP). RESULTS Cronbach's alpha value of the scale was 0.94. The scale comprised of two subscales: the developing factor (19 items) and the challenging factor (4 items). All items showed a statistically significant correlation (p < 0.05). CONCLUSIONS The SES-SLP is a valid and reliable scale that can be used to evaluate students' learning experience for simulation laboratory practices.
The aim of this study was to explore the perceptions of adolescents about spirituality via semist... more The aim of this study was to explore the perceptions of adolescents about spirituality via semistructured, in-depth interviews. Method/Design: A qualitative research design using interviews was performed with 17 adolescents in a mostly Muslim region in Turkey. Interviews were conducted via five open-ended questions. Findings: Three main categories and eight themes emerged from the analysis. The “Spirituality Meaning” category included five themes, such as mind, emotions, mind/emotions, ethical principles, and religion. Personal practices and environmental factors as well as mind, emotions, ethical principles, and religion themes were in the “Factors That Increase Spirituality” category. The theme living negativity was in the “Factors That Decrease Spirituality” category. Most of the adolescents (58.8%) stated that the meaning of spirituality was love, respect, and the ability to think, analyze, and synthesize. Conclusion: It is important to determine and evaluate the perceptions and...
Cocukluk cagi kanserlerinde 5 yillik sagkalim oranlari onemli olcude artmis ve sag kalanlarin fiz... more Cocukluk cagi kanserlerinde 5 yillik sagkalim oranlari onemli olcude artmis ve sag kalanlarin fiziksel ve psikososyal sagliginin surdurulmesi on plana cikmistir. Sag kalan cocuk ve adolesanlar uzun donemde kanserin kendisi ve tedavi maruziyetine bagli bircok sorunla karsilasmaktadir. Tedavinin tamamlanmasindan yillar sonra dahi ortaya cikabilen kardiyak, endokrin, norolojik, bilissel, psikolojik ve sosyal gec etkiler sag kalanlarin yasaminda onemli kisitliliklara neden olabilmektedir. Uzun sureli izlemler ile gec etkilerin onlenmesi ve erken donemde saptanmasi, cocugun fiziksel ve psikososyal gereksinimlerinin karsilanmasi, cocuk ve ailenin sosyal yasama uyumu ve cocugun ikincil risklerden korunmasi icin saglikli yasam tarzinin kazandirilmasi amaclanmaktadir. Izlemlerin etkin bir sekilde surdurulmesi icin kanit temelli yaklasimlara dayandirilmasi ve multidisipliner ekip tarafindan yurutulmesi gerekmektedir. Sag kalanlara uzun donemde butuncul ve aile merkezli bakimin sunulmasinda pe...
Parents need to constantly monitor their children with inherited metabolic diseases (IMDs) and ha... more Parents need to constantly monitor their children with inherited metabolic diseases (IMDs) and have difficulty coordinating care. The aim of this descriptive study was to determine the symptoms and problems in children with IMDs and factors affecting caregiver burden. The study was conducted in a pediatric hospital. The study sample consisted of 47 mothers of children with IMDs. Data were collected using a descriptive characteristics form (DCF), a data collection form related to symptoms and problems (DCFSP), and a caregiver burden inventory (CBI). The most common specific problems were hepatomegaly (36.2%), developmental delay (27.7%), and muscle weakness (14.9%). Mothers’ CBI mean total score was 30.23 ± 19.65. Mothers whose children were partially or completely dependent had significantly higher scores than others. Mothers who expressed the family income status as “an expenses more than income” had higher CBI scores. Understanding the problems of children with IMD and factors eff...
Purpose: Obesity is one of the most important late effects that seen in survivors of childhood ac... more Purpose: Obesity is one of the most important late effects that seen in survivors of childhood acute lymphoblastic leukemia. In this literature review, it is aimed to determine frequency of obesity in survivors of childhood acute lymphoblastic leukemia and characteristics of survivors. Materials and Methods: Review of the literature was made on Pubmed and Wiley Interscience and 13 studies were examined that conducted between 2003 and 2013. Results: Frequency of obesity in survivors is between 4.6% and 38.2%. The prevalence of obesity showed increases in female and survivors treated high dose cranial radiation therapy and survivors with long-term steroid exposure. Conclusion: It was shown that obesity is the most common late effects in survivors and there has been many late effects such as growth and development problems, cardiac anomalies, hypertension with obesity.
Objective: The majority of problems and symptoms occur in the gastrointestinal system in children... more Objective: The majority of problems and symptoms occur in the gastrointestinal system in children with cancer. Parents have difficulty in coping with the nutritional problems and changing routines of children and need support in this respect. This study aimed to assess the nutritional problems of children with cancer and the information needs of their parents. Methods: This descriptive study was performed among children with cancer aged 3–18 years and their parents (n = 69). The data were collected through a data collection form developed by the researchers based on the literature. Results: The most prominent nutritional problems experienced by children were loss of appetite (85.5%), nausea (84.1%), vomiting (81.2%), fatigue (79.7%), and mucositis (66.7%). According to the parents, the factors causing these nutritional problems in children were physiological factors (100%) and the foods given to children in the hospital (65.2%). The parents mostly needed information about food–drug ...
BACKGROUND Simulation is an important learning-teaching tool for integrating theory and practice ... more BACKGROUND Simulation is an important learning-teaching tool for integrating theory and practice in nursing education. OBJECTIVE The aim of this study was to develop and to conduct the validity and reliability of a self-evaluation scale for simulation laboratory practices (SES-SLP) with undergraduate nurses. METHODS The study sample consisted of 220 undergraduate nursing students. Data were collected using a Descriptive Characteristic Form (DCF) and the 23-item Self-Evaluation Scale for Simulation Laboratory Practices (SES-SLP). RESULTS Cronbach's alpha value of the scale was 0.94. The scale comprised of two subscales: the developing factor (19 items) and the challenging factor (4 items). All items showed a statistically significant correlation (p < 0.05). CONCLUSIONS The SES-SLP is a valid and reliable scale that can be used to evaluate students' learning experience for simulation laboratory practices.
The aim of this study was to explore the perceptions of adolescents about spirituality via semist... more The aim of this study was to explore the perceptions of adolescents about spirituality via semistructured, in-depth interviews. Method/Design: A qualitative research design using interviews was performed with 17 adolescents in a mostly Muslim region in Turkey. Interviews were conducted via five open-ended questions. Findings: Three main categories and eight themes emerged from the analysis. The “Spirituality Meaning” category included five themes, such as mind, emotions, mind/emotions, ethical principles, and religion. Personal practices and environmental factors as well as mind, emotions, ethical principles, and religion themes were in the “Factors That Increase Spirituality” category. The theme living negativity was in the “Factors That Decrease Spirituality” category. Most of the adolescents (58.8%) stated that the meaning of spirituality was love, respect, and the ability to think, analyze, and synthesize. Conclusion: It is important to determine and evaluate the perceptions and...
Cocukluk cagi kanserlerinde 5 yillik sagkalim oranlari onemli olcude artmis ve sag kalanlarin fiz... more Cocukluk cagi kanserlerinde 5 yillik sagkalim oranlari onemli olcude artmis ve sag kalanlarin fiziksel ve psikososyal sagliginin surdurulmesi on plana cikmistir. Sag kalan cocuk ve adolesanlar uzun donemde kanserin kendisi ve tedavi maruziyetine bagli bircok sorunla karsilasmaktadir. Tedavinin tamamlanmasindan yillar sonra dahi ortaya cikabilen kardiyak, endokrin, norolojik, bilissel, psikolojik ve sosyal gec etkiler sag kalanlarin yasaminda onemli kisitliliklara neden olabilmektedir. Uzun sureli izlemler ile gec etkilerin onlenmesi ve erken donemde saptanmasi, cocugun fiziksel ve psikososyal gereksinimlerinin karsilanmasi, cocuk ve ailenin sosyal yasama uyumu ve cocugun ikincil risklerden korunmasi icin saglikli yasam tarzinin kazandirilmasi amaclanmaktadir. Izlemlerin etkin bir sekilde surdurulmesi icin kanit temelli yaklasimlara dayandirilmasi ve multidisipliner ekip tarafindan yurutulmesi gerekmektedir. Sag kalanlara uzun donemde butuncul ve aile merkezli bakimin sunulmasinda pe...
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