BackgroundDespite the importance of family and its relationship to positive transplant outcomes, ... more BackgroundDespite the importance of family and its relationship to positive transplant outcomes, little is known about family experiences following organ transplantation from the perspective of the transplant recipients. The literature is also devoid of information that describes the family experiences of Muslim transplant recipients.AimsThe purpose of this study was to describe Muslim transplant recipients’ family experiences following organ transplantation.MethodsA hermeneutical phenomenological approach was employed to determine the emergent themes present in the data. The sample was composed of 12 Muslim organ transplant recipients (heart, kidney and liver) living in Iran. Semi-structured interviews were conducted with each participant.ResultsThe primary constitutive pattern that emerged from the interview data was ‘Altered Family Relationships’ and three themes: fear in relationships, abnormal relationships, and the family at the centre of organ transplant issues.ConclusionsThere are several important findings in this study, notably that Muslim transplant recipients describe their family experiences following organ transplantation as ‘altered’ and not as they were pre-transplant. More research is needed that focuses on the family experience post-transplant, and how Muslim transplant recipient families are impacted by the transplant experience.
DOAJ (DOAJ: Directory of Open Access Journals), Apr 1, 2017
Introduction: Thalassemia can impose adverse effects on the individual, family and community. It ... more Introduction: Thalassemia can impose adverse effects on the individual, family and community. It is therefore important to specify the needs of children with thalassemia and their parents. This study intended to assess the knowledge and educational needs of adolescents suffering from thalassemia major and active members of the family in Bandar Abbas. Methods: This cross-sectional descriptive-analytic study was conducted in 2014 in Bandar Abbas on 70 adolescents with thalassemia major and active members of the family. The Data were gathered by interview and using a questionnaire. The research instrument used in this study was demographic information questionnaire and need assessment self-made questionnaire for needs assessment. The need assessment self-made questionnaire was two parts. The first part consisted of 22 questions in three areas: the recognition of the nature of the disease (16 questions), nutrition (3 questions) and prevention (3 questions). And the second part contains 24 terms that specified the educational needs of the individual. The collected data was analyzed using SPSS software version 16. Results: Regarding the measurement of awareness, the highest score in the area of prevention and the lowest score belonged to the nature of the disease. The "I do not know" response to the 4 questions on the nature of the disease was 50% percent among the adolescents and more than 75% among the active members. Also, in relation to the need assessment, the highest score in both groups was related to "need more information about modern treatment methods". Conclusion: According to the results, adolescents with thalassemia major and active members of the family need to be trained in all areas studied, especially the nature of the disease, treatment and complications of the disease.
Introduction:Hysterectomy is one of the most frequently performed major surgical procedures, whic... more Introduction:Hysterectomy is one of the most frequently performed major surgical procedures, which is non emergent in 90 of cases and is performed in order to enhance women’s quality of life rather than to save life. Recent studies in this field have manifested different outcomes. This research was conducted with the aim of determining the quality of life after hysterectomy in women with natural menopause and women who had undergone surgery. Methods:This cross-sectional study was performed at least 3 months after hysterectomy, on180 women who were selected by random sampling. Quality of life was measured with Ferrans and Powers Quality of Life Index, which contained 66 items. Data was analyzed using descriptive statistical methods and Chi square test, Pearson correlation and variance analysis by SPSS14 software. Results:Mean of quality of life was 11.93 ± 2.55 (min 8.5, Max 21.5). Mean of quality of life score in pre-hysterectomy menopause, post-hysterectomy menopause and non menopause were respectively (12.54±2.73), (11.4±2.31) and (11.58±2.251), and was significantly different in three groups (P=0.003). Social psychological subscales of life quality showed a significant difference in three groups. Conclusion:Low qualities of life were seen after hysterectomy particularly for social and psychological aspects in premenopausal women. Use of alternative treatments for relief of symptoms is recommended as an important component of treatment for these women.
Background: Having an infant in the neonatal intensive care unit (NICU) is a stressful and painfu... more Background: Having an infant in the neonatal intensive care unit (NICU) is a stressful and painful experience. Unlike to normal births, this birth is associated with admission and separation of infant from parents. The aim of this study was to compile the supporting-emotional needs of Iranian parents who have a premature infant admitted in (NICU). Methods: This study was performed using qualitative research approach. Twelve participants including 9 parents whose infant had been hospitalized in NICU; two nurses and one physician were also selected for sampling purposes. Data were gathered using semi-structured interview. Data were analyzed by inductive content analysis approach. Results: Four subcategories emerged from data analysis expressed supporting-emotional needs of parents of premature infants admitted in NICU. These subcategories were: Need for interaction with infant, Need to medical team's empathy, need to exchange support with spouse, and Need to get help from others. Conclusion: In order to develop mutual bonding with infant and attain parental roles, parents need to be close their neonate, also receive empathy and support to find a way to meet their needs. Participants in this study announced that resolving these needs can help parents to feel more confidence in infant's care and reduce their negative feelings.
Background: Chronic nature of thalassemia causes changes in different aspects of life in patients... more Background: Chronic nature of thalassemia causes changes in different aspects of life in patients, including their self-efficacy. The aim of this study was to determine the effect of family-centered empowerment program on the self-efficacy of adolescents with Thalassemia major. Methods: A quasi-experimental study was performed on adolescents with thalassemia major in 2013 in Bandar Abbas, Iran. The participants were divided into intervention and control groups, respectively. Research instruments included demographic data questionnaire, need assessment self-made questionnaire, general self-efficacy scale, and sickle cell self-efficacy scale. After collecting the data from the pre-intervention step, family-centered empowerment program was implemented for the intervention group and secondary test was conducted six weeks after the intervention and the results were analyzed by statistical SPSS-21 software, using independent t-test, paired t-test, Chi-square and Fisher's exact test, and descriptive statistics. A significance level of P<0.05 was considered as significant. Results: The mean and standard deviation of the adolescents' age were 16±1.9 in the intervention group and 15.2±2 in the control group. Independent t-test showed a significant difference between the two groups after the intervention for both self-efficacies (P<0.01 and P=0.02). In the control group, the results of general self-efficacy scores after six weeks' time were reduced compared to the previous one while disease-related self-efficacy scores in the same group after six weeks' time increased and paired t-test indicated a significant difference in the mean scores for both self-efficacies in both groups. Conclusion: Implementation of family-centered empowerment program for patients with thalassemia major is practically feasible and it can increase self-efficacy in these patients. It is suggested that the program should be used in comprehensive care protocols of children and adolescents. Trial Registration Number: IRCT201407211788N8.
BackgroundDespite the importance of family and its relationship to positive transplant outcomes, ... more BackgroundDespite the importance of family and its relationship to positive transplant outcomes, little is known about family experiences following organ transplantation from the perspective of the transplant recipients. The literature is also devoid of information that describes the family experiences of Muslim transplant recipients.AimsThe purpose of this study was to describe Muslim transplant recipients’ family experiences following organ transplantation.MethodsA hermeneutical phenomenological approach was employed to determine the emergent themes present in the data. The sample was composed of 12 Muslim organ transplant recipients (heart, kidney and liver) living in Iran. Semi-structured interviews were conducted with each participant.ResultsThe primary constitutive pattern that emerged from the interview data was ‘Altered Family Relationships’ and three themes: fear in relationships, abnormal relationships, and the family at the centre of organ transplant issues.ConclusionsThere are several important findings in this study, notably that Muslim transplant recipients describe their family experiences following organ transplantation as ‘altered’ and not as they were pre-transplant. More research is needed that focuses on the family experience post-transplant, and how Muslim transplant recipient families are impacted by the transplant experience.
DOAJ (DOAJ: Directory of Open Access Journals), Apr 1, 2017
Introduction: Thalassemia can impose adverse effects on the individual, family and community. It ... more Introduction: Thalassemia can impose adverse effects on the individual, family and community. It is therefore important to specify the needs of children with thalassemia and their parents. This study intended to assess the knowledge and educational needs of adolescents suffering from thalassemia major and active members of the family in Bandar Abbas. Methods: This cross-sectional descriptive-analytic study was conducted in 2014 in Bandar Abbas on 70 adolescents with thalassemia major and active members of the family. The Data were gathered by interview and using a questionnaire. The research instrument used in this study was demographic information questionnaire and need assessment self-made questionnaire for needs assessment. The need assessment self-made questionnaire was two parts. The first part consisted of 22 questions in three areas: the recognition of the nature of the disease (16 questions), nutrition (3 questions) and prevention (3 questions). And the second part contains 24 terms that specified the educational needs of the individual. The collected data was analyzed using SPSS software version 16. Results: Regarding the measurement of awareness, the highest score in the area of prevention and the lowest score belonged to the nature of the disease. The "I do not know" response to the 4 questions on the nature of the disease was 50% percent among the adolescents and more than 75% among the active members. Also, in relation to the need assessment, the highest score in both groups was related to "need more information about modern treatment methods". Conclusion: According to the results, adolescents with thalassemia major and active members of the family need to be trained in all areas studied, especially the nature of the disease, treatment and complications of the disease.
Introduction:Hysterectomy is one of the most frequently performed major surgical procedures, whic... more Introduction:Hysterectomy is one of the most frequently performed major surgical procedures, which is non emergent in 90 of cases and is performed in order to enhance women’s quality of life rather than to save life. Recent studies in this field have manifested different outcomes. This research was conducted with the aim of determining the quality of life after hysterectomy in women with natural menopause and women who had undergone surgery. Methods:This cross-sectional study was performed at least 3 months after hysterectomy, on180 women who were selected by random sampling. Quality of life was measured with Ferrans and Powers Quality of Life Index, which contained 66 items. Data was analyzed using descriptive statistical methods and Chi square test, Pearson correlation and variance analysis by SPSS14 software. Results:Mean of quality of life was 11.93 ± 2.55 (min 8.5, Max 21.5). Mean of quality of life score in pre-hysterectomy menopause, post-hysterectomy menopause and non menopause were respectively (12.54±2.73), (11.4±2.31) and (11.58±2.251), and was significantly different in three groups (P=0.003). Social psychological subscales of life quality showed a significant difference in three groups. Conclusion:Low qualities of life were seen after hysterectomy particularly for social and psychological aspects in premenopausal women. Use of alternative treatments for relief of symptoms is recommended as an important component of treatment for these women.
Background: Having an infant in the neonatal intensive care unit (NICU) is a stressful and painfu... more Background: Having an infant in the neonatal intensive care unit (NICU) is a stressful and painful experience. Unlike to normal births, this birth is associated with admission and separation of infant from parents. The aim of this study was to compile the supporting-emotional needs of Iranian parents who have a premature infant admitted in (NICU). Methods: This study was performed using qualitative research approach. Twelve participants including 9 parents whose infant had been hospitalized in NICU; two nurses and one physician were also selected for sampling purposes. Data were gathered using semi-structured interview. Data were analyzed by inductive content analysis approach. Results: Four subcategories emerged from data analysis expressed supporting-emotional needs of parents of premature infants admitted in NICU. These subcategories were: Need for interaction with infant, Need to medical team's empathy, need to exchange support with spouse, and Need to get help from others. Conclusion: In order to develop mutual bonding with infant and attain parental roles, parents need to be close their neonate, also receive empathy and support to find a way to meet their needs. Participants in this study announced that resolving these needs can help parents to feel more confidence in infant's care and reduce their negative feelings.
Background: Chronic nature of thalassemia causes changes in different aspects of life in patients... more Background: Chronic nature of thalassemia causes changes in different aspects of life in patients, including their self-efficacy. The aim of this study was to determine the effect of family-centered empowerment program on the self-efficacy of adolescents with Thalassemia major. Methods: A quasi-experimental study was performed on adolescents with thalassemia major in 2013 in Bandar Abbas, Iran. The participants were divided into intervention and control groups, respectively. Research instruments included demographic data questionnaire, need assessment self-made questionnaire, general self-efficacy scale, and sickle cell self-efficacy scale. After collecting the data from the pre-intervention step, family-centered empowerment program was implemented for the intervention group and secondary test was conducted six weeks after the intervention and the results were analyzed by statistical SPSS-21 software, using independent t-test, paired t-test, Chi-square and Fisher's exact test, and descriptive statistics. A significance level of P<0.05 was considered as significant. Results: The mean and standard deviation of the adolescents' age were 16±1.9 in the intervention group and 15.2±2 in the control group. Independent t-test showed a significant difference between the two groups after the intervention for both self-efficacies (P<0.01 and P=0.02). In the control group, the results of general self-efficacy scores after six weeks' time were reduced compared to the previous one while disease-related self-efficacy scores in the same group after six weeks' time increased and paired t-test indicated a significant difference in the mean scores for both self-efficacies in both groups. Conclusion: Implementation of family-centered empowerment program for patients with thalassemia major is practically feasible and it can increase self-efficacy in these patients. It is suggested that the program should be used in comprehensive care protocols of children and adolescents. Trial Registration Number: IRCT201407211788N8.
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