Abstract
In this paper we explore the ways in which young adults with cancer (aged 17-24) build support networks through computer mediated personal networks. The support networks are influenced by technological affordances and the ongoing experiences of living with the illness and treatment regimes. We report a single, in-depth case study of one young adult with cancer and her use of mobile telephony and web based social networking sites in building support networks. Three important themes emerge from this case. First, in this context computer mediated communications (CMC) are not exclusive to the maintenance of online relationships, but mediate networks of “core”, “significant,” and new ties (primarily online) over time. Second, the social engagement between the subject and members of their social networks is dynamic with different modes of communication predominant at different points in time and different relationships significant at different points in time depending on state of illness, treatment and context. Finally, the interplay between CMC and different ties influence the characteristics of the networks, which is characterized by bridging and segmenting networks.
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References
Boase, J., Horrigan, B. J., Wellman, B. & Rainie, L. (2006) Pew Report: The Strength of InternetTies. Washington, Pew Internet and American Life Project.
Boase, J. & Wellman, B. (2006) Personal Relationships: On and Off the Internet. In Perlman, D. & Vangelisti, L. A. (Eds.) Handbook of Personal Relations. Cambridge, Cambridge University Press.
Bleyer, W. A. (2002) Cancer in older adolescents and young adults: Epidemiology, diagnosis, treatment, survival, and importance of clinical trials. Medical and Pediatric Oncology, 38, 1–10.
Bleyer, A. & Barr, R. D. (2006) Highlights and Challengers. IN Bleyer, A., M, O. L., Barr, R. D. & Ries, L. (Eds.) Cancer Epidemiology in Older Adolescents and Young Adults 15 to 29 Years of Age, Including SEER Incidence and Survival: 1975-2000. Bethesda, MD, National Cancer Institute.
Bowker, N. (2008) Participating in the World (Wide Web): Social Connections for People with Disabilities IN Holland, S. (Ed.) Remote Relationships in a Small World. New York, Peter Lang.
Castells, M. (2001) The Internet galaxy: reflections on the Internet, business, and society, New York; Oxford, Oxford University Press.
Davis, H., Vetere, F. & Ashkanasy, S. (2008) Towards Social Connection for Young People with Cancer. Proceedings of the 19th Australasian conference on Computer-Human Interaction: Designing for Habitat & Habitus. Cairns, Australia, ACM.
Ettinger, R. S. & Heiney, S. P. (1993) Cancer in adolescents and young adults. Psychosocial concerns, coping strategies, and interventions. Cancer, 71, 3276–80.
Foth, M. & Hearn, G. (2007) Networked Individualism of Urban Residents: Discovering the Communicative Ecology in Inner-City Apartment Buildings. Information, Communication & Society, 10, 749 – 772.
Granovetter, M. S. (1973) The Strength of Weak Ties. American Journal of Sociology, 78, 1360.
Greenhalgh, T. & Taylor, R. (1997) Papers that go beyond numbers (qualitative research). BMJ, 315, 740–3.
Haythornthwaite, C. (2002) Strong, Weak, and Latent Ties and the Impact of New Media. The Information Society, 18, 385–401.
Høybye, M. T., Johansen, C. & Tjørnhøj-Thomsen, T. (2005) Online Interaction. Effects of Storytelling in an Internet Breast Cancer Support Group. Psycho-Oncology, 14, 211–220.
Kavanaugh, A., Zin, T., Rosson, M., Carroll, J., Schmitz, J. & Kim, B. (2007) Local Groups Online: Political Learning and Participation. Computer Supported Cooperative Work (CSCW), 16, 375–395.
Licoppe, C. & Smoreda, Z. (2005) Are social networks technologically embedded?: How networks are changing today with changes in communication technology. Social Networks, 27, 317–335.
Marsden, P. V. (1990) Network Data and Measurement. Annual Review of Sociology, 16, 435–463.
Mynatt, E. D., O'day, V. L., Adler, A. & Ito, M. (1998) Network Communities: Something Old, Something New, Something Borrowed. Computer Supported Cooperative Work (CSCW), 7, 123–156.
Munkvold, G. & Ellingsen, G. (2007) Common Information Spaces Along the Illness Trajectories of Chronic Patients. Ecscw 2007.
Nardi, B. A., Whittaker, S. & Schwarz, H. (2000) It's Not What You Know It's Who You Know. First Monday [online].
Preece, J. & Maloney-Krichmar, D. (2003) Online Communities: Focusing on Sociability and Usability IN Jacko, J. & Sears, A. A. (Eds.) Handbook of Human-Computer Interaction. Mahwah, NJ, Lawrence Erlbaum Associates Inc. Publishers.
Rice, R. E. (1994) Network Analysis and Computer-Mediated Communication Systems in Wasserman, S. & Galaskiewicz, J. (Eds.) Advances in social network analysis: research in the social and behavioral sciences Thousand Oaks, California, Sage Publications.
Thomas, D. M., Seymour, J. F., O'brien, T., Sawyer, S. M. & Ashley, D. M. (2006) Adolescent and young adult cancer: a revolution in evolution? Internal Medicine Journal, 36, 302–307.
Walsham, G. (1995) Interpretive case studies in IS research: nature and method. European Journal of Information Systems, 4, 8.
Wellman, B., Quan-Haase, A., Boase, J., Chen, W., Hampton, K., Isabel Isla, D. D. & Miyata, K. (2003) The Social Affordance of the Internet for Networked Individualism Journal of Computer Mediated Communication.
Wellman, B. (2001) Physical Place and Cyberplace: The Rise of Personalized Networking. International Journal of Urban and Regional Research, 25, 227–252.
Wellman, B. & Gulia, M. (1999) Virtual Community as Community: Net Surfers Don't Ride Alone. In Smith, A. M. & Kollock, P. (Eds.) Communities in Cyberspace. London, Routledge.
Wellman, B. (1996) For a Social Network Analysis Of Computer Networks: A Sociological Perspective On Collaborative Work And Virtual Community. Proceedings of the 1996 ACM SIGCPR/SIGMIS Conference on Computer Personnel Research. Denver, Colorado, United States, ACM.
Wellman, B. (2007) The Network Is Personal: Introduction to a Special Issue of Social Networks. Social Networks, 29, 349–356.
Woodgate, R. L. (1998) Adolescents' perspectives of chronic illness: “It's hard”. Journal of Pediatric Nursing, 13, 210–223.
Yin, R. K. (2002) Case Study Research: Design and Methods, Thousand Oaks, California, Sage Publications.
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Ashkanasy, S., Vetere, F., Davis, H., Shanks, G. (2009). Finding the other 5%: Understanding the role of social networking technologies in building personal networks for young adults with cancer. In: Wagner, I., Tellioğlu, H., Balka, E., Simone, C., Ciolfi, L. (eds) ECSCW 2009. Springer, London. https://doi.org/10.1007/978-1-84882-854-4_6
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DOI: https://doi.org/10.1007/978-1-84882-854-4_6
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