Discourse in translational ethics has typically focused on the relationship between investigators... more Discourse in translational ethics has typically focused on the relationship between investigators and research subjects, but rarely between researchers themselves. Understanding inter-researcher responsibilities is critical in translational teams where members use discipline-specific methods that are often opaque to their colleagues. Potential conflicts such as in the underlying assumptions of the methods can result in eroded trust, and compromised research aims. To address this problem, we developed an approach called Method Intuition, which guides translational researchers to explain without jargon, the goals, procedures, limitations, and research issues related to the methods they use. Preliminary results reveal that the approach can lead to unexpected research insights due to the increased transparency and comprehension of methods. These results suggest that discourse in translational ethics should include inter-researcher responsibilities.
Given the expansion of genetics in medicine, there is a growing need to develop approaches to eng... more Given the expansion of genetics in medicine, there is a growing need to develop approaches to engage patients in understanding how genetics affects their health. Various qualitative methods have been applied to gain a deeper understanding of patient perspectives in topics related to genetics. Community dialogues (CD) are a bi-directional research method that invites community members to discuss a pertinent, challenging topic over the course of a multi-week period and the community members openly discuss their positions on the topic. Authors discuss the first application of the CD method to the topic of pharmacogenetics testing. Additional CD are needed to engage diverse participant populations on this topic to improve genetics literacy, enhance physician engagement and drive policy change.
The Vwire project initiates an open source and extensible environment for producing, sharing and ... more The Vwire project initiates an open source and extensible environment for producing, sharing and discussing visually ordered data sets in the humanities. Even those existing database tools that allow researchers to see multiple images simultaneously do not allow for the active and intuitive configuration of the images - like arranging snapshots on a table - that Vwire provides. Already implemented as an add-on module for Plone 4 (a mature and recently much improved Content Management System [CMS]), Vwire leverages existing technology and extends the visualization tools available to humanities researchers. We propose a test case using a small group of Teotihuacan stone masks, which are of archaeological and art historical importance, and we will elicit collaboration between experts from both fields to help refine and troubleshoot the existing tool.
In this chapter the editors interview Dr. Deborah Winslow about her work at the National Science ... more In this chapter the editors interview Dr. Deborah Winslow about her work at the National Science Foundation (NSF) and the evolution of data management plans (DMPs) in Anthropology and the Social, Behavioral and Economic Sciences (SBE). She outlines what the NSF expects to see in a DMP and what not to include. The conversation moves into how anthropologists collaborate with “adjacent disciplines” and how the ideas and terms for data, and the expectations of data change. She emphasizes thinking about the kind of data you will collect and what you plan to do with those data later, in terms of requirements for sharing and ultimately archiving them. The conversation ends with a discussion about student research and formulating appropriate research questions.
Luis is an Aymara boy whom I have known since his birth in 1996. Although he and his mother were ... more Luis is an Aymara boy whom I have known since his birth in 1996. Although he and his mother were not initially central to my research on migration in the Andes, they belong to the family I worked with in El Alto, Bolivia. During a return visit ten years later, I recognized the importance of his story within my research, and thus reviewed my field notes and photo library to find images and stories about them. Photography plays a major role in my research, as I use images as mementos as well as stimuli for discussion. With the benefit of 20/20 hindsight and 15 years’ distance, Luis and Basilia represent the quintessential migrant experience, one I may have overlooked if I had not asked new questions of old data. [Aymara, Bolivia, compadrazco, El Alto, image analysis, migration, photo essay]
Discourse in translational ethics has typically focused on the relationship between investigators... more Discourse in translational ethics has typically focused on the relationship between investigators and research subjects, but rarely between researchers themselves. Understanding inter-researcher responsibilities is critical in translational teams where members use discipline-specific methods that are often opaque to their colleagues. Potential conflicts such as in the underlying assumptions of the methods can result in eroded trust, and compromised research aims. To address this problem, we developed an approach called Method Intuition, which guides translational researchers to explain without jargon, the goals, procedures, limitations, and research issues related to the methods they use. Preliminary results reveal that the approach can lead to unexpected research insights due to the increased transparency and comprehension of methods. These results suggest that discourse in translational ethics should include inter-researcher responsibilities.
Given the expansion of genetics in medicine, there is a growing need to develop approaches to eng... more Given the expansion of genetics in medicine, there is a growing need to develop approaches to engage patients in understanding how genetics affects their health. Various qualitative methods have been applied to gain a deeper understanding of patient perspectives in topics related to genetics. Community dialogues (CD) are a bi-directional research method that invites community members to discuss a pertinent, challenging topic over the course of a multi-week period and the community members openly discuss their positions on the topic. Authors discuss the first application of the CD method to the topic of pharmacogenetics testing. Additional CD are needed to engage diverse participant populations on this topic to improve genetics literacy, enhance physician engagement and drive policy change.
The Vwire project initiates an open source and extensible environment for producing, sharing and ... more The Vwire project initiates an open source and extensible environment for producing, sharing and discussing visually ordered data sets in the humanities. Even those existing database tools that allow researchers to see multiple images simultaneously do not allow for the active and intuitive configuration of the images - like arranging snapshots on a table - that Vwire provides. Already implemented as an add-on module for Plone 4 (a mature and recently much improved Content Management System [CMS]), Vwire leverages existing technology and extends the visualization tools available to humanities researchers. We propose a test case using a small group of Teotihuacan stone masks, which are of archaeological and art historical importance, and we will elicit collaboration between experts from both fields to help refine and troubleshoot the existing tool.
In this chapter the editors interview Dr. Deborah Winslow about her work at the National Science ... more In this chapter the editors interview Dr. Deborah Winslow about her work at the National Science Foundation (NSF) and the evolution of data management plans (DMPs) in Anthropology and the Social, Behavioral and Economic Sciences (SBE). She outlines what the NSF expects to see in a DMP and what not to include. The conversation moves into how anthropologists collaborate with “adjacent disciplines” and how the ideas and terms for data, and the expectations of data change. She emphasizes thinking about the kind of data you will collect and what you plan to do with those data later, in terms of requirements for sharing and ultimately archiving them. The conversation ends with a discussion about student research and formulating appropriate research questions.
Luis is an Aymara boy whom I have known since his birth in 1996. Although he and his mother were ... more Luis is an Aymara boy whom I have known since his birth in 1996. Although he and his mother were not initially central to my research on migration in the Andes, they belong to the family I worked with in El Alto, Bolivia. During a return visit ten years later, I recognized the importance of his story within my research, and thus reviewed my field notes and photo library to find images and stories about them. Photography plays a major role in my research, as I use images as mementos as well as stimuli for discussion. With the benefit of 20/20 hindsight and 15 years’ distance, Luis and Basilia represent the quintessential migrant experience, one I may have overlooked if I had not asked new questions of old data. [Aymara, Bolivia, compadrazco, El Alto, image analysis, migration, photo essay]
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