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Child and adolescent telepsychiatry in New South Wales: moving beyond clinical consultation

Australasian Psychiatry, 2003
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Australasian Psychiatry • Vol 11 Supplement • 2003 RURAL AND REMOTE POPULATIONS S117 Child and adolescent telepsychiatry in New South Wales: moving beyond clinical consultation Jean Starling, Robyn Rosina, Kenneth Nunn and David Dossetor Objectives: Telepsychiatry has been demonstrated to be an effective and acceptable way to deliver psychiatry services to remote and rural areas. This paper describes the initial evaluation of the Child and Adolescent Psycho- logical Telemedicine Outreach Service (CAPTOS) in New South Wales and the changes made to the service after the initial evaluation. Methods: The evaluation investigated patients’, rural clinicians’ and CAPTOS psychiatrists’ satisfaction with the quality of the service and the technology. Results: There were 136 rural families, 20 rural clinicians and eight psy- chiatrists. Overall, satisfaction was high with the rural families and clini- cians being the most satisfied (95–99% very or mostly satisfied). CAPTOS psychiatrists felt that they were usually able to perform an adequate con- sultation (87%) but few (16%) felt the consultations were as satisfactory as a face to face consultation. Because of the initial evaluation, and the ongoing collaboration with rural clinicians, further services were developed using the technology and the developing professional networks. These initia- tives included telenursing, professional skills development, sabbaticals for rural clinicians and a clinical skills workshop for rural clinicians. Conclusions: This study confirms telepsychiatry as a useful service for remote and rural children and families. The results also suggest some reasons why urban clinicians show the least enthusiasm for the service. Ways of addressing some of the limitations of the service are suggested, and the expansion of CAPTOS to meet the needs of rural clinicians is discussed. Key words: adolescent, child, mental health, telehealth. BACKGROUND he size of the problem: Rural and remote communities have high levels of economic and social disadvantage. They also have poorer health. Standardised death rates are higher in rural and remote areas. 1 Among other health indicators, infant mortality, road vehicle accidents, and injuries both from accidents and interpersonal violence are higher in remote areas. 2 Suicide rates are higher and rural young men have the highest rate of suicide in Australia. 3 However, access to health care is poor. There is inaccessibility to all forms of health care, including general practitioners, medical specialists and non-medical health care practitioners. 2 This is particularly so for mental health practitioners, despite the need for early intervention to prevent long-term disability. 4 Rural and remote services: In NSW the services available to young people with psychological problems vary, depending on the local teams that are available. Young people and their families may be seen by mental health nurses, psychologists, social workers, paediatricians, Aboriginal mental Jean Starling Head of Department, Department of Psychological Medicine, The Children’s Hospital at Westmead, Westmead, NSW, Australia Robyn Rosina Nurse Manager, NSW Child & Adolescent Mental Health Services Network, John Hunter Hospital, Newcastle, Australia Kenneth Nunn Director, NSW Child & Adolescent Mental Health Services Network, John Hunter Hospital, Newcastle, Australia David Dossetor Chair of Division, Division of Psychological, Developmental & Rehabilitation Medicine, The Children’s Hospital at Westmead, Westmead, NSW, Australia Correspondence: Dr Jean Starling, Child & Adolescent Psychological Telemedicine Outreach Service (CAPTOS), Department of Psychological Medicine, The Children’s Hospital at Westmead, Locked Bag 4001, Westmead, NSW 2145, Australia. Email: jeans@chw.edu.au T
Australasian Psychiatry • Vol 11 Supplement • 2003 S118 health workers or other mental health professionals. All of these professionals are referred to as rural clinicians in this paper. Some are new graduates with no clinical experience, while others have years of experience but no formal training. Models of service delivery in telepsychiatry: Telepsy- chiatry has been used to deliver services since the mid 1990s. In the USA, Canada and Australia, 5–9 services were mainly provided to communities at least several hours of travel time from the psychiatrist. In the UK 10 and some North American services, 11 telepsychiatry was used over smaller distances, for populations that could not easily access services. These included links to local clinics that were geographically close but had no public transport access, or putting small screens attached to telephones into homes of patients who had difficulty getting to clinics. Australian child and adolescent serv- ices have used telepsychiatry for clinical care, consulta- tion, supervision, teaching and administration. 6,12 THE DEVELOPMENT AND INITIAL EVALUATION OF THE CAPTOS SERVICE The Child and Adolescent Psychological Telemedi- cine Outreach Service (CAPTOS) started as a pilot program to Dubbo and Burke from December 1996 to July 1997. 12 There were 72 video conferencing inter- views and 54 patients were seen. Although only 24% of families returned a satisfaction questionnaire, they reported a high level of satisfaction with the service. After evaluation of the pilot program, the NSW Health Department funded staff and equipment so the CAPTOS Service could extend from the Children’s Hospital at Westmead (CHW) to all of remote and rural NSW (except for the Southern Area). This service was evaluated between September 1999 and Septem- ber 2000 inclusive. 13 There were 136 telepsychiatry clinical consultations between eight CHW psychia- trists and 20 rural clinicians. These consultations consisted of new patient consultations with interview (32%), repeat consultations with interview (13%), consultations without interview (19%) and review without interview (30%). Multiprofessional case con- ferences and other discussions made up the remain- ing 6% of consultations. The full evaluation included questions on diagnosis, measures of functioning, 14 a family assessment measure 15 and a child behaviour checklist. 16 The results of these measures have been described in detail in a previous paper. 13 The mean age of the young people seen was 11.9 years (SD = 3.7, range = 4–23 years). Sixty-five per cent were male, and 28% had safety or at risk issues. As shown in Table 1, the most common diagnostic group was the behaviour disorders (37%), followed by depression (22%) and anxiety disorders (13%). Table 2 shows that both rural clinicians and rural families had high levels of satisfaction with the services, as measured by a service satisfaction ques- tionnaire. 13 Ninety-six per cent of families and 99% of Table 2: Results of the service satisfaction questionnaire (rural families and clinicians) SSQ question Family Rural clinician Quality of service good or excellent 96% (78/81) 99% (102/103) Received the service they wanted 96% (80/83) 99% (102/103) Very or mostly satisfied with the service received 96% (80/83) 99% (102/103) Would be inconvenient or very inconvenient to attend a face to face consultation 80% (66/82) 89% (85/96) Table 1: Diagnoses made at telepsychiatry consultation Diagnosis made at consultation Number Percentage Behaviour disorders (Conduct, Oppositional Defiant, ADHD) 50 37% Depression 30 22% Anxiety Disorders (Generalised, Separation, OCD, PTSD) 18 13% Developmental Disorder (Aspergers, Autism, Learning Disorders) 9 7% Psychotic Disorders (Schizophrenia, Bipolar Disorder, Psychosis NOS) 6 4% Eating Disorders 5 4% Other disorders (Adjustment Disorders, V Codes) 6 12% Totals 134 100%
RURAL AND REMOTE POPULATIONS Child and adolescent telepsychiatry in New South Wales: moving beyond clinical consultation Jean Starling, Robyn Rosina, Kenneth Nunn and David Dossetor Objectives: Telepsychiatry has been demonstrated to be an effective and acceptable way to deliver psychiatry services to remote and rural areas. This paper describes the initial evaluation of the Child and Adolescent Psychological Telemedicine Outreach Service (CAPTOS) in New South Wales and the changes made to the service after the initial evaluation. Methods: The evaluation investigated patients’, rural clinicians’ and CAPTOS psychiatrists’ satisfaction with the quality of the service and the technology. Results: There were 136 rural families, 20 rural clinicians and eight psychiatrists. Overall, satisfaction was high with the rural families and clinicians being the most satisfied (95–99% very or mostly satisfied). CAPTOS psychiatrists felt that they were usually able to perform an adequate consultation (87%) but few (16%) felt the consultations were as satisfactory as a face to face consultation. Because of the initial evaluation, and the ongoing collaboration with rural clinicians, further services were developed using the technology and the developing professional networks. These initiatives included telenursing, professional skills development, sabbaticals for rural clinicians and a clinical skills workshop for rural clinicians. Conclusions: This study confirms telepsychiatry as a useful service for remote and rural children and families. The results also suggest some reasons why urban clinicians show the least enthusiasm for the service. Ways of addressing some of the limitations of the service are suggested, and the expansion of CAPTOS to meet the needs of rural clinicians is discussed. Key words: adolescent, child, mental health, telehealth. BACKGROUND Robyn Rosina Nurse Manager, NSW Child & Adolescent Mental Health Services Network, John Hunter Hospital, Newcastle, Australia Kenneth Nunn Director, NSW Child & Adolescent Mental Health Services Network, John Hunter Hospital, Newcastle, Australia David Dossetor Chair of Division, Division of Psychological, Developmental & Rehabilitation Medicine, The Children’s Hospital at Westmead, Westmead, NSW, Australia Correspondence: Dr Jean Starling, Child & Adolescent Psychological Telemedicine Outreach Service (CAPTOS), Department of Psychological Medicine, The Children’s Hospital at Westmead, Locked Bag 4001, Westmead, NSW 2145, Australia. Email: jeans@chw.edu.au T he size of the problem: Rural and remote communities have high levels of economic and social disadvantage. They also have poorer health. Standardised death rates are higher in rural and remote areas.1 Among other health indicators, infant mortality, road vehicle accidents, and injuries both from accidents and interpersonal violence are higher in remote areas.2 Suicide rates are higher and rural young men have the highest rate of suicide in Australia.3 However, access to health care is poor. There is inaccessibility to all forms of health care, including general practitioners, medical specialists and non-medical health care practitioners.2 This is particularly so for mental health practitioners, despite the need for early intervention to prevent long-term disability.4 Rural and remote services: In NSW the services available to young people with psychological problems vary, depending on the local teams that are available. Young people and their families may be seen by mental health nurses, psychologists, social workers, paediatricians, Aboriginal mental Australasian Psychiatry • Vol 11 Supplement • 2003 Jean Starling Head of Department, Department of Psychological Medicine, The Children’s Hospital at Westmead, Westmead, NSW, Australia S117 health workers or other mental health professionals. All of these professionals are referred to as rural clinicians in this paper. Some are new graduates with no clinical experience, while others have years of experience but no formal training. Models of service delivery in telepsychiatry: Telepsychiatry has been used to deliver services since the mid 1990s. In the USA, Canada and Australia,5–9 services were mainly provided to communities at least several hours of travel time from the psychiatrist. In the UK10 and some North American services,11 telepsychiatry was used over smaller distances, for populations that could not easily access services. These included links to local clinics that were geographically close but had no public transport access, or putting small screens attached to telephones into homes of patients who had difficulty getting to clinics. Australian child and adolescent services have used telepsychiatry for clinical care, consultation, supervision, teaching and administration.6,12 THE DEVELOPMENT AND INITIAL EVALUATION OF THE CAPTOS SERVICE The Child and Adolescent Psychological Telemedicine Outreach Service (CAPTOS) started as a pilot program to Dubbo and Burke from December 1996 to July 1997.12 There were 72 video conferencing interviews and 54 patients were seen. Although only 24% of families returned a satisfaction questionnaire, they reported a high level of satisfaction with the service. Table 1: After evaluation of the pilot program, the NSW Health Department funded staff and equipment so the CAPTOS Service could extend from the Children’s Hospital at Westmead (CHW) to all of remote and rural NSW (except for the Southern Area). This service was evaluated between September 1999 and September 2000 inclusive.13 There were 136 telepsychiatry clinical consultations between eight CHW psychiatrists and 20 rural clinicians. These consultations consisted of new patient consultations with interview (32%), repeat consultations with interview (13%), consultations without interview (19%) and review without interview (30%). Multiprofessional case conferences and other discussions made up the remaining 6% of consultations. The full evaluation included questions on diagnosis, measures of functioning,14 a family assessment measure15 and a child behaviour checklist.16 The results of these measures have been described in detail in a previous paper.13 The mean age of the young people seen was 11.9 years (SD = 3.7, range = 4–23 years). Sixty-five per cent were male, and 28% had safety or at risk issues. As shown in Table 1, the most common diagnostic group was the behaviour disorders (37%), followed by depression (22%) and anxiety disorders (13%). Table 2 shows that both rural clinicians and rural families had high levels of satisfaction with the services, as measured by a service satisfaction questionnaire.13 Ninety-six per cent of families and 99% of Diagnoses made at telepsychiatry consultation Australasian Psychiatry • Vol 11 Supplement • 2003 Diagnosis made at consultation S118 Behaviour disorders (Conduct, Oppositional Defiant, ADHD) Depression Anxiety Disorders (Generalised, Separation, OCD, PTSD) Developmental Disorder (Aspergers, Autism, Learning Disorders) Psychotic Disorders (Schizophrenia, Bipolar Disorder, Psychosis NOS) Eating Disorders Other disorders (Adjustment Disorders, V Codes) Totals Table 2: Number Percentage 50 30 18 9 6 5 6 134 37% 22% 13% 7% 4% 4% 12% 100% Results of the service satisfaction questionnaire (rural families and clinicians) SSQ question Quality of service good or excellent Received the service they wanted Very or mostly satisfied with the service received Would be inconvenient or very inconvenient to attend a face to face consultation Family Rural clinician 96% (78/81) 96% (80/83) 96% (80/83) 80% (66/82) 99% (102/103) 99% (102/103) 99% (102/103) 89% (85/96) rural clinicians rated the quality of service as good or excellent, were very or mostly satisfied with the services, and felt that the service received was what was wanted. As shown in Table 3 there was disagreement between rural families and CHW clinicians about their satisfaction with technology, as measured by a Technology Evaluation Questionnaire (TEQ).13 Rural families found that the equipment was easy to use (97%) and interfered little with the consultation (97%). Less than half of the CHW clinicians (48%) found the equipment easy to use, although 87% felt that it didn’t interfere with the consultation. Rural families felt that the sound (91%), picture (95%) and overall quality (96%) were good or excellent. In contrast, CHW clinicians were less happy with the technology. Overall, only 26% were happy with the sound, 14% with the picture, and 18% with the overall quality of the link-up. Finally, 91% of rural families felt that telepsychiatry was as good or almost as good as a face to face consultation, compared with 16% of the CHW clinicians. There were several conclusions drawn from the pilot study and initial evaluation of the CAPTOS service. Rural clinicians and families were highly satisfied with the telepsychiatry service. They were extremely positive about the quality of the service and adapted easily to the technology. In contrast, CHW clinicians, while positive about their ability to conduct an adequate service over the telescreen, had concerns about the technical quality of the link-up. They also felt that telepsychiatry was not as good as a face to face consultation. However, as the telepsychiatry service developed it became clear that there were other limitations to the mental health services provided to rural families. For the telepsychiatry service to work, rural clinicians were expected to prepare case summaries, sit in on consultations and implement treatment recommendations. At times, this proved difficult. Rural clinicians had various levels of clinical skills. They did not always have the experience needed to implement specific treatment programs. Some were new graduates, and needed high levels of supervision, often not The CAPTOS service also came to realise that there were many other health professionals who filled the gaps in child and adolescent mental health services. General practitioners frequently waited weeks for mental health back up, so often managed complex cases alone. The rural hospital paediatric and general wards were the main resource used to manage in a crisis. The CAPTOS service also found that rural clinicians were isolated from each other by distance, and had difficulty learning from each other or developing professional networks. Telepsychiatry developed links between CHW and rural clinicians, but did not develop networks across remote and rural areas. Because of these concerns about the limitations of a service providing only telepsychiatry, the CAPTOS service was expanded to provide other services. The services that were developed are detailed in the following section of this paper. NEW SERVICE DEVELOPMENTS IN CAPTOS Telenursing This service started in late 2001 and has been described by Rosina et al.17 The Clinical Nurse Consultancy service (CNC) serves a network of 27 rural wards throughout NSW, with eight hospitals yet to be included at the time of writing. At times, all of these wards care for children or young people with mental health problems. The nurses on these wards rarely have specialised training in child and adolescent mental health. These nurses are concerned that they are being asked to perform tasks beyond their level of education and experience.18 The CAPTOS telenursing initiative aims to enhance the skills of rural nurses using the Caplan model.19 The focus of the CNC consultation can be clinical supervision, patient management issues, or problem solving for a specific situation. The CAPTOS CNC also offers rural site visits as well as the telemedicine consultations. Rural families’ and Children’s Hospital clinicians’ satisfaction with technology Technology Satisfaction Question Rural family CHW clinician Good or excellent ease of using equipment The equipment interfered with the consultation slightly or not at all The sound quality was good or excellent The visual quality was good or excellent The overall quality of the videolink was good or excellent Telepsychiatry is almost as good or as good as a face to face consultation 97% (77/79) 97% (77/79) 97% (77/79) 95% (75/79) 96% (76/79) 97% (77/79) 48% (65/136) 87% (118/136) 26% (36/136) 14% (19/136) 18% (25/136) 16% (22/136) Australasian Psychiatry • Vol 11 Supplement • 2003 Table 3: available close to their workplace. The high staff turnover exacerbated these problems. S119 Sabbaticals for rural clinicians that urban services show towards telemedicine,20,21 and talk about clinicians’ fear of technology and inability to change.11 Our study suggests other possible reasons for this reluctance. The most enthusiastic group in this study, rural families, must travel long distances to see a child psychiatrist. For those in remote NSW, this could entail two full days of travelling to attend a single appointment. This is not only expensive, but also disruptive to school and work commitments. If rural clinicians organise an opinion this way, they receive minimal feedback and are not able to be present at the consultation. This means that telepsychiatry is embraced with enthusiasm because of the absence of practical alternatives. However, urban clinicians use a different yardstick for comparison. Their benchmark is the face to face consultation, where a whole family is in their office, and they can pick up multiple cues from all family members. When a family is seen via telescreen, there are fewer cues, with particular difficulty interpreting non-verbal cues. This may help explain why urban clinicians rate telepsychiatry less favourably. Rural clinicians often have limited access to evidencebased information and training. Because of this, CAPTOS has been offering sabbaticals of a week to rural clinicians. The rural clinicians negotiate learning goals for their visit with their Child and Adolescent Mental Health Area Director, and are supported by a CHW clinician on their visit. The goals can vary from learning a clinical skill, researching a specific topic, or even writing a policy document. The visit not only helps achieve learning goals, but also allows the rural clinician to feel part of a wider CAPTOS network. Telepsychiatry by itself is a service with substantial limitations. It meets the rural clinician’s needs for psychiatry review and a second opinion. However, further services are needed to build the skills of rural clinicians and support rural networks. This paper has also presented some ways in which the CAPTOS service has attempted to meet these additional needs, both by using the telescreens and the other resources of the CAPTOS network. Evaluation of these additional services continues, and we hope that the CAPTOS service can continue to evolve to better support rural and remote clinicians. The clinical skills workshop REFERENCES Professional skills training Australasian Psychiatry • Vol 11 Supplement • 2003 Child and Adolescent Psychological Telemedicine Outreach Service started piloting training programs when it became clear that some rural clinicians lacked the skills to implement treatment recommendations. Family therapy was the most requested clinical skill. Since 2001, three rural teams have been involved in family therapy training. A rural area forms a training group of clinicians, and a CHW clinician skilled in family therapy becomes the supervisor. Preliminary theoretical reading is sent out, and the group meets once face to face to plan the course, which lasts 12 months. The group then meets via telescreen for tutorials and case discussions. At the end of the 12-month period the group has acquired basic family therapy assessment and treatment skills. A similar model is being piloted for individual work with children and adolescents. A CHW psychotherapist participates in theoretical and case discussions with a group of rural clinicians via the telescreen. S120 The CAPTOS service has coordinated two workshops for 40–50 rural clinicians with the goals of developing a collegiate network across rural areas, and developing clinical skills. The training included workshops on assessing preschoolers, primary aged children and adolescents, as well as training groups on various types of therapy. One of the highlights was the opportunity for rural clinicians to network with each other, and compare their solutions for rural problems. The evaluation of the workshop was positive, with the practical and interactive sessions receiving the best feedback. CONCLUSIONS Telepsychiatry has been demonstrated to be an effective way of augmenting child and adolescent mental health care to rural and remote areas. The evaluation of the CAPTOS service confirmed this conclusion. Surprisingly, we found telepsychiatry was more popular with rural clinicians and families than with urban clinicians. This is not an isolated finding. Other studies have lamented the lack of enthusiasm 1. Healthy Horizons. A framework for improving the health of rural, regional and remote Australians. [Cited 30 April 2003.] Available from URL:http://www.ruralhealth.org.au/nrhapublic/Index.Cfm?Category=HealthHorizons 2. Australian Institute of Health and Welfare. Health in rural and remote Australia. Canberra: AIHW, 1998. 3. Dudley MJ, Kelk NJ, Florio TM, Howard JP, Waters BGH. 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Community Mental Health Journal 2000; 36: 525–536. 10. McLaren P, Mohammedali A, Riley A, Gaughran F. Integrating interactive televisionbased psychiatric consultation into an urban community mental health service. Journal of Telemedicine and Telecare 1999; 5 (Suppl. 1): 100–102. 11. Whitten P, Rowe-Adjibogoun J. Success and failure in a Michigan telepsychiatry program. Journal of Telemedicine and Telecare 2002; 8 (Suppl. 3): 75–77. 16. Achenbach TM. Manual for the child behaviour checklist/4–18 and 1991 profile. Burlington VT: University of Vermont, Department of Psychiatry, 1991. 12. Dossetor D, Nunn K, Fairley M, Eggleton D. A child and adolescent outreach service for rural New South Wales: a telemedicine pilot study. Journal of Paediatrics and Child Health 1999; 35: 525–529. 17. Rosina R, Starling J, Nunn K, Dossetor D, Bridgland K. CAPTOS telenursing: clinical nurse consultancy for rural paediatric nurses. Journal of Telemedicine and Telecare 2002; 8 (Suppl. 3): 48–49. 13. Kopel H, Nunn K, Dossetor D. Evaluating satisfaction with a child and adolescent psychological telemedicine outreach service. Journal of Telemedicine and Telecare 2001; 7 (Suppl. 2): 35–40. 18. Hegney D. Job satisfaction and nurses in rural Australia. The Journal of Nursing Administration 2000; 30: 347–350. 14. Dossetor DR, Liddle J, Mellis C. Measuring health outcome in paediatrics: development of the RAHC measure of function (MOF). Journal of Paediatrics and Child Health 1997; 32: 519–524. 15. Rey J, Singh M, Hung S et al. A global scale to measure the quality of the family environment. Archives of General Psychiatry 1997; 54: 817–822. 19. Caplan G. The theory and practice of mental health consultation. London: Tavistock Publications, 1970. 20. Tanriverdi H, Iacono S. Diffusion of telemedicine: a knowledge barrier perspective. Telemedicine Journal 1999; 5: 223–244. 21. Walker J, Whetton S. The diffusion of innovation factors influencing the uptake of telehealth. 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