DOCUMENT RESUME
ED 416 655
AUTHOR
TITLE
INSTITUTION
SPONS AGENCY
PUB DATE
NOTE
CONTRACT
PUB TYPE
EDRS PRICE
DESCRIPTORS
IDENTIFIERS
EC 306 227
Bruder, Mary Beth
Collaboration: Putting the Puzzle Pieces Together.
Connecticut Univ. Health Center, Farmington.
Office of Special Education and Rehabilitative Services
(ED), Washington, DC.
1997-00-00
113p.; For related documents, see EC 306 226-228.
H029K30034
Non-Classroom (055)
Guides
MF01/PC05 Plus Postage.
*Agency Cooperation; Change Strategies; Delivery Systems;
*Disabilities; *Early Intervention; Evaluation Methods;
*Family Involvement; Individualized Family Service Plans;
Infants; Interdisciplinary Approach; *Interprofessional
Relationship; Postsecondary Education; Preschool Children;
Preschool Education; *Teacher Collaboration; Teacher
Education; Teaching Models; Toddlers
Connecticut
ABSTRACT
These training materials derive from a personnel preparation
special project that developed, implemented, and evaluated a teaching model
on collaborations necessary for effective delivery of early intervention.
Module 1 provides an overview of the history of early intervention and the
legal statutes that define early intervention. Module 2 describes ways in
which agencies can share the responsibilities of providing services to the
same audience, offers strategies for overcoming barriers, and discusses the
process of building collaborative relationships. Module 3 introduces the
concept of family-centered care as the foundation necessary for any
collaborative relationship that provides service to children and describes
the leading role the family plays in the development of the Individualized
Family Service Plan. Module 4 discusses ways that early intervention service
providers can work with the family to develop an early intervention program.
This module covers the factors that affect the development and maintenance of
the team, as well as strategies for overcoming barriers to the team process.
The last module presents the service provider with the tools necessary to
participate in a collaborative early intervention service delivery system.
Specifically, the module focuses on the importance of communication, trust
building, and negotiation. (CR)
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Reproductions supplied by EDRS are the best that can be made
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U.S. DEPARTMENT OF EDUCATION
Office of Educational Research and Improvement
EDUCAirIONAL RESOURCES INFORMATION
CENTER (ERIC)
his document has been reproduced as
received from the person or organization
originating it.
Minor changes have been made to
improve reproduction quality.
Points of view or opinions stated in this
document do not necessarily represent
official OERI position or policy.
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Collaboration:
Putting the Puzzle Pieces Together
INTRODUCTION
Collaboration is a challenging,
yet important goal for the field
of early intervention. As the
number of children who are eligible
for early intervention grows, it is
imperative that service providers and
agencies learn to work together to
maximize the available resources for
service delivery.
The purpose of this manual is to
highlight the important aspects of the
collaborative process for early
intervention. The analogy of a puzzle
has been used in the layout of the
manual because the underlying
principles as presented in each of the
manual's modules are essential for
successful early intervention
collaborations.
Introduction
Page 1
Module One:
Early Intervention
Collaborations
provides an overview of the history of
early intervention and the legal
statutes that define early intervention.
Within these statutes, are the program
requirements that underscore the
importance of collaboration in early
intervention services and the coordination that must accompany services
delivered by multiple agencies.
Module Two:
1111 Interagency
Collaborations
describes the ways in which agencies
can share the responsibilities of
providing services to the same
audience. The module acknowledges
the barriers to the collaborative
process, offers some strategies for
overcoming these barriers, and
discusses the process of building
collaborative relationships.
Module Three:
Family
Collaborations
introduces the concept of familycentered care as the foundation
necessary for any collaborative
relationship that provides services to
children. Through the framework of
the Individualized Family Service Plan
(IFSP), legislators mandated that
services be available to infants and
toddlers and their families. The familycentered IFSP ensures that
appropriate services are available to
the infant or toddler and his or her
family members by acknowledging the
leading role the family plays in the
IFSP process.
Module Four:
Team Collaborations
discusses the different ways
early intervention service providers can
work together with the family to provide
an early intervention program for the
child. The effectiveness of the program
strongly relies on the abilities of the
service providers and family members
to function as a team. This module
covers the factors that affect the
development and maintenance of the
team, as well as strategies for overcoming barriers to the team process.
Module Five: Skills
for Collaborations
presents the service provider
with the tools necessary to participate
in a collaborative early intervention
service delivery system. Specifically,
the module focuses on the importance
of communication, trust building, and
negotiation.
Collaboration: Putting the Puzzle Pieces Together
Page 2
Collaborations must occur among
families, service providers, and
agencies. To help illustrate the key
concepts of the collaborative process,
the manual presents a family story of
a little girl, Polly, who receives early
intervention services. At the end of
each module, you will be asked to
apply the concepts to Polly's service
delivery program. These activities are
designed to demonstrate the effort
that a collaborative relationship
requires, as well as the difference a
collaborative relationship can make to
a family and child.
Polly's Story
Polly is 18 months old and lives with her family in central Connecticut. She was
born prematurely at a tertiary care hospital, the sole survivor of a set of triplets.
Polly was hospitalized for 13 months following birth.
Her medical and
developmental conditions include:
Brain damage that resulted from spinal meningitis
Hydrocephalus, an enlargement of the head due to a buildup of fluid within
the brain (A shunt has been surgically inserted to drain excess fluid from the
cranial area.)
Episodes of congestive heart failure
Frequent infections that result in hospitalization
A dependency on oxygen
Self-abusive episodes, including severe head banging
Introduction
Page 3
As a result of these conditions, Polly and her family have been
receiving a variety of
services since she has been home, including:
Health care through her primary pediatrician
Occupational therapy once a week
Speech therapy once every other week
Physical therapy once a week
Home education through a regional education service center (RESC) twice
a week
Sixteen hours per day of home nursing care
Medical supply vendors for special formulas and oxygen
Specialty care at a variety of clinics at the tertiary care hospital
Numerous professionals visit Polly and her family at their home on a regular
basis. During the five months that Polly has been home, she has received
services from five therapists, two teachers, ten nurses, and a hospital-based team
composed of a physician, two nurses, a psychologist, a full range of therapists,
and a social worker. Also assigned to her "case" are two social workers, three
program supervisors, and three service coordinators from three separate
agencies.
It is not surprising that Polly's parents are often caught in the middle of conflicts
among the various professionals, each of whom seems to have a different opinion
about Polly's needs, appropriate treatments, payment options, and service
schedule. For example, the family has three case managers. Each manager gave
the family different information about eligibility for various public sources of
funding, including the Medicaid waiver. As a result, the family's application for
benefits was delayed and they had to pay several thousand dollars out-of-pocket
for Polly's cost of care. Additionally, the nursing agency and the various therapists
disagree about the amount of therapy Polly needs, resulting in a lack of
cooperation between the agency and therapists. Consequently, Polly's parents
feel that the services she receives often cause confusion in their lives. The
schedule for a typical week in their house looks like this:
Collaboration: Putting the Puzzle Pieces Together
Page 4
Monday:
16 hours
Tuesday:
16 hours
nursing, occupational therapy, Department of
Mental Retardation case manager
Wednesday:
16 hours
nursing, teacher, clinic visit at tertiary hospital,
physical therapy
Thursday:
16 hours
nursing,
Friday:
16 hours
-
nursing, speech therapy, adaptive equipment
fitting at tertiary care hospital
Saturday:
16 hours
-
nursing
Sunday:
16 hours
-
nursing
-
nursing, teacher, supervisor, Department of
Income Maintenance (DIM) case manager
physical therapy, vendor delivery,
nursing supervisor, teacher
Polly's parents have concluded that caring for her is not the primary cause of their
stress. Instead, they attribute it to the multiple layers of fragmented services that
has created so much havoc within their family. They are now seeking out-of-home
placement for Polly because they feel that they need to restore order back into their
lives. Neither feels "functional" with so many people in and out of their home. In
Polly's case, one of the purposes of P.L. 99-457 (to reduce the likelihood of
institutionalization) has not been realized.
Helping Polly Through
Collaboration
Polly is typical of many infants and
toddlers who have multiple
disabilities. The parents of these
children usually interact with a variety
of agencies and programs in order to
meet the unique intervention needs of
their child. Unfortunately, when trying
to gain access to these services,
parents are often confronted with a
multitude of incomprehensible
acronyms and an unwieldy maze of
agencies that differ in priorities,
mandates, geographic boundaries,
and administrative structures.
The needs of infants and toddlers
with disabilities have also created
many challenges for service
Introduction
Page 5
providers. Both federal legislation
and recommended practice mandate
that early intervention programs be
family-centered, comprehensive,
community-based and coordinated.
State and local service agencies are
presently struggling to develop such
programs.
Most often, early intervention
programs for infants and toddlers
with disabilities consist simply of
those services that are readily
available. While the program may
meet the needs of some families,
other families may require a number
of additional services that may be
more difficult to access. This is
especially true for those families who
have children with multiple needs.
For example, Polly's needs require
her to participate in a hospital followup clinic, hospital- and home-based
therapy, home health services
(including equipment maintenance),
and intervention program services
from three agencies. These services
are all limited in the type, frequency,
and location of their delivery, and this
dictates the options (or lack thereof)
available to Polly's family.
Additionally, the agencies providing
the services have different goals,
orientations, funding sources, and
continuing eligibility requirements that
further limit the availability of services.
Although it is clear that few agencies
have the resources to provide a
continuum of services to deal with all
of the issues that may affect an infant
or toddler with disabilities and his or
her family, services must be
restructured in such a way as to
maximize coordination and enhance,
rather than inhibit, family functioning.
When examining the unique services
required by Polly and her family, the
immediate challenge is to identify the
various agencies, professionals, and
payment sources currently involved in
the provision of early intervention
services in the community. While
interagency and multidisciplinary
coordination may be the first step
toward alleviating some of the stress
that Polly's family experiences, the
ultimate goal should be the
collaborative development of an
individualized family service plan
(IFSP) to be carried out under the
direction of the family. There are two
keys to this goal: family-centered
services and collaborative service
delivery. The purpose of this manual
is to discuss the collaborative
relationships required by Part H of
IDEA, and, in particular, the familycentered and multidisciplinary
interagency aspects of service
provision.
Collaboration: Putting the Puzzle Pieces Together
Page 6
Nft EWE-iv
N
COLLABORATIONS
M11111
Early childhood is an important
time in any person's life. For
children with disabilities, the
early years are critical for a number of
reasons. First, the earlier a child is
identified as having a developmental
delay or disability, the greater the
likelihood that the child will benefit
from intervention strategies. Second,
families benefit from the support
given to them through the intervention
process. Third, schools and
communities benefit from a decrease
in costs because more children come
to school ready to learn.
As a field, early intervention has been
defined as the provision of
educational or therapeutic services to
children under the age of eight.
Legislatively, "early intervention" is
used to describe the years birth to
three, while the term "early childhood
special education" or "preschool
special education" refers to the period
of preschool years (ages three
through five). This manual will use
the term "early intervention" as a
description of services provided to
children from birth to age three under
the Individuals with Disabilities
Education Act, Part H.
Early Intervention Collaborations
Page 7
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Historical Perspective
on Early Intervention
The history of early intervention spans
multiple disciplines and fields of
study. For example, the child development literature has provided early
intervention a theoretical focus that
has evolved from the transactional
model of development. At one time,
child development theory was polarized into two competing schools of
thought: a biologically based view of
development versus one that
stressed behavioral and environmental factors. The transactional
developmental theory represents a
synthesis of the two theories: it
emphasizes the interactive nature of
child development.
The transactional model of development recognizes the fact that the
interaction between the child and the
environment is a continual process in
which neither the child's status, nor
the environmental effects on that
status can be separately addressed.
This developmental model suggests
that the environment can be used to
modify a child's biological limitations,
and conversely, a deficient environment can lead to delays in a child's
development. This focus has greatly
influenced both early intervention
strategies and early intervention
service models, most notably on the
emphasis placed on a child's
relationship with his or her caregiver.
The maternal and child health field
has emphasized the role of government in designing and supporting
practices to promote the well being of
children. The Children's Bureau,
which was established by Congress
in 1912, collected data on such
issues as institutional care, mental
retardation, and the care of crippled
children. These data resulted in the
funding of a national network of
Maternal and Child Health centers
and an increase in public health
nursing.
In 1930, the White House Conference
on Child Health and Protection
recommended that programs for
crippled children be made available
in each state. The Social Security Act,
enacted in 1935, established
Maternal and Child Health Services,
as well as services for "crippled
children." Lastly, the Social Security
Act amendments in 1965 included
Medicaid services for children. In
particular, the Early and Periodic
Screening Diagnosis and Treatment
(EPSDT) program was initiated for all
children under age 21 who qualified
for Medicaid. EPSDT was funded to
assist in the early identification and
treatment of children's health and
developmental needs.
Collaboration: Putting the Puzzle Pieces Together
Page 8
.0
1,,
0
Activity 1.1
List the agencies in your state that utilize MCH funds.
The field of early childhood education
was also an important contributor to
current early intervention service
models. Initially, early childhood
programs were developed to serve
poor children and the parents of poor
children. The concept of kindergarten
was established in the early 1800's
by proponents such as Friedrich
Froebel in Germany, who
emphasized the importance of play
and learning for young children. The
first public school kindergarten
program was established in the
United States in 1872. At the turn of
the century, half of all kindergartens in
the U.S. were operated by public
school systems, although the major
focus was on the potential benefits of
such programs for children who were
poor.
The concept of preschool or nursery
school was firmly established in the
early 1900's, and, as with
kindergarten, the concept was
developed in Europe. In England, the
MacMillan sisters began nursery
schools to provide for the emotional
and physical well-being of poor
Early Intervention Collaborations
Page 9
children. Their focus was on the
development of self care,
responsibility, and educational
readiness skills. In Rome, Maria
Montessori also established early
education programs for poor children.
She had initially worked with children
who were mentally retarded and used
educational practices that
emphasized learning through active
involvement with the environment.
In the United States, both the
Depression and World War II resulted
in the government providing
assistance to expand early education
(both day programs and kindergarten)
opportunities for young children,
primarily as a support for working
mothers. However, between 1946
and the Kennedy Administration
(1960-63), early childhood programs
remained stagnant. President
Kennedy expanded the nation's
commitment to early care by
supporting legislation and
appropriations to assist working
mothers.
The largest government funded early
childhood program, Head Start, was
established in 1965. Head Start
began as a compensatory program
for four-year-old and five-year-old
children from low income families.
The program provided comprehensive early childhood services focusing
on health, education, social services,
and parent involvement. Other
compensatory programs for young
children were funded by a variety of
legislative initiatives, many of which
remain in effect today. For example,
the Community Coordinated Child
Care Program was established to
improve all early childhood programs
financed by federal funds.
Unfortunately, this effort was
inadequately funded, but it
represented an initial attempt by the
federal government to coordinate
federal initiatives for young children.
Most recently, the federal Family
Support Act (1988) and the Child Care
and Development Block Grant (1991)
recognized the importance of early
care and education programs. States
are authorized to coordinate such
programs to ensure accessibility by
families in need of child care, Head
Start, and other children's services.
Rather than draw a distinction
between nursery school,
compensatory programs, and child
care, proponents have recently
recommended the development of
integrated systems of early care and
education. However, fragmentation of
services and dwindling resources
continue to hamper efforts to build
capacity and to enhance the quality of
early childhood education so that all
children may benefit from such
programs.
Collaboration: Putting the Puzzle Pieces Together
Page 10
4.
Activity 1.2
List agencies in your state that receive either Head Start or Child Care and
Development Block Grant funds.
Lastly, the field of special education
contributed to the development of
early intervention through its
emphasis on remedial and
compensatory services and
instructional techniques. Special
education history began in the late
1700's in France with the story of
Victor, a child who had grown up with
wolves. Jean-Marc ltard developed
and provided an intensive education
program to teach Victor (who was
known as the "Wild Boy of Aveyron")
language and behavior skills. His
success led a student of his, Edourd
Sequin, to develop a physiological
method to educate children with
disabilities. This method
emphasized the importance of early
education and the use of detailed
assessment information from which
to develop a remediation plan.
Unfortunately, the techniques used by
Itard and Sequin were not universally
adopted, and the preferred treatment
for people with disabilities during the
1800's in both Europe and the United
States was institutionalization and
segregation from society.
Early Intervention Collaborations
Page 11
People with disabilities received
more benevolent attention after World
War II, partly because of the number
of injured veterans who returned
home with rehabilitation needs. A
Section for Exceptional Children was
established within the U.S. Office of
Education in 1946. As rehabilitation
services became more plentiful,
parents of children with disabilities
organized into advocacy groups to
increase the availability of services to
their children. Many advocacy
organizations became developers
and providers of preschool services.
During the Kennedy Administration
(1960-1963), the government became
more involved in providing services to
children with disabilities. This
commitment was formalized by
Congress in 1966 when the Section
for Exceptional Children was
expanded to the Bureau of Education
for the Handicapped within the U.S.
Office of Education. A number of
legislative initiatives also began in
this era, including the 1968
Handicapped Children's Early
Education Assistance Act. The act
provided federal funds to support
model demonstration programs to
educate infants and preschool-age
children with disabilities. This
impetus began to raise awareness
about the importance of early
intervention and an early childhood
branch was developed in the Office of
Special Education and Rehabilitation
Services within the U.S. Department
of Education. It was not until 1986
however that a federal mandate was
established to make special
education services available to all
preschool-age eligible children with
disabilities. This mandate was
established as P.L. 99-457, a set of
amendments to P.L. 94-142, the
Education of All Handicapped
Children Act (later renamed the
Individuals with Disabilities Education
Act, or IDEA).
IDEA mandated a free appropriate
public education to all school-age
children with disabilities. P.L. 99-457
then added to IDEA a number of
significant components specific to
children under age five. First,
services for eligible young children
(ages three through five) were
mandated under the provisions of
free appropriate public education
(Part B of P.L. 94-142). Second,
these amendments created
incentives for states to develop an
early intervention entitlement program
for children from birth through age two
(Part H). Through IDEA's Part H,
Congress identified an "urgent and
substantial need" to enhance the
development of infants and toddlers
with disabilities, to minimize the
likelihood of institutionalization and
the need of special education
services after this group reaches
Collaboration: Putting the Puzzle Pieces Together
Page 12
school age, and to enhance the
capacity of families to meet the
special needs of their infants and
toddlers with handicaps (Education of
the Handicapped Act Amendments of
1986, Section 671). To meet this
need, federal financial help was
made available to the states to
develop programs to deliver
interagency, multidisciplinary services
for all eligible children. Table 1-1
contains a listing of the system
components each state had to have
in place in order to qualify for Part H
federal funds. As of 1995, all U.S.
states and territories were
participating in Part H services.
_
Table 1-1: Early Intervention System Components
1.
A state definition of the term !'developmental delay."
2.
A timetable to ensure services.
3.
A multidisciplinary evaluation of each eligible child.
4.
An IFSP, including service coordination, for each eligible child and family.
5.
A comprehensive Child find campaign.
6.
A public awareness system:
7:
A central directory of Services and other resources.
8.
A comPrehensive program of personnel develoPment.
9.
Designation of a single line of responsibility in the lead agency.
10.
A:policy on contracting With local service providers.
11.
Procedures for timely reirritiursement of funds.
12.-
Procedural safeguards.
13.
PolicieS for personnel standards.
14.
A system for compiling data
Early Intervention Collaborations
Page 13
15
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Activity 1.3
Describe how each of the 14 components are being implemented in your state.
COMPONENTS
IMPLEMENTATION STATUS
1.
A state definition of the term "developmental
delay."
2.
A timetable to ensure services.
3.
A multidisciplinary evaluation of each
eligible child.
4.
An IFSP, including service coordination, for
each eligible child and family.
5.
A comprehensive child find campaign.
6.
A public awareness system.
7.
A central directory of services and other
resources.
8.
A comprehensive program of personnel
development.
9.
Designation of a single line of responsibility
in the lead agency.
10. A policy on contracting with local service
providers.
11.
Procedures for timely reimbursement of
funds.
12.
Procedural safeguards.
13.
Policies for personnel standards.
14. A system for compiling data.
Collaboration: Putting the Puzzle Pieces Together
Page 14
10
Program Requirements
Part H of IDEA recognized the fact that
no single agency or service provider
has all of the knowledge and skills
necessary to meet the multiple needs
of families participating in early
intervention. Many of the provisions of
the law require both coordination and
collaboration at the local, state, and
federal levels. For example, states
that are participating in the federal
program must initiate a number of
collaborative planning and
implementation activities. Among
these are:
The establishment of a statewide
interagency coordinating council
(ICC) composed of parents and
representatives from relevant
state agencies and service
providers.
The reauthorization of P.L. 99-457
requires that these councils
consist of between 15 and 25
members and that the chair not be
from the lead agency. Councils
may vary in how many agencies
are represented; at least 20% of
the membership must be parents
however.
The maintenance of a lead
agency for general
administration, supervision, and
monitoring of programs and
activities, including responsibility
for canying out the entry into
formal interagency agreements
and the resolution of disputes.
Approximately 21 states have
chosen the Department of
Education as their lead agency;
others have chosen their
Department of Health or
Department of Developmental
Disabilities or Mental Retardation.
The development of interagency
and multidisciplinary models of
service delivery for eligible
infants, toddlers, and their
families as specified in the IFSP,
which is directed by the family.
"Multidisciplinary" has been further
defined by the U.S. Department of
Education to mean efforts
involving persons representing at
least two professional disciplines.
The appointment of a service
coordinator to facilitate and
ensure the implementation of the
IFSP.
The service coordinator is
responsible for the implementation of the IFSP and for
ongoing coordination with other
agencies and individuals to
ensure the timely and effective
delivery of services. Part H of
Early Intervention Collaborations
I
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Page 15
IDEA does not designate any
single professional to assume
this role. In fact, the recent
reauthorization acknowledges
the rights of family members to
fill this role (for themselves or
others), if they obtain
"appropriate training." The
legislation defines the duties of
the service coordinator as
follows:
to assist and enable an eligible child
and the child's family to receive the
rights, procedural safeguards, and
services that are authorized under the
state's early intervention program.
Service coordinators are responsible
for coordinating all services across
agency lines and serving as the single
point of contact in helping parents to
obtain the services and assistance
they need (34 CFR p03.22).
Activity 1.4
Which of the four collaborative activities described above seems to be the most
challenging to you? Why?
Which of the collaborative activities seems to be the easiest? Why?
Collaboration: Putting the Puzzle Pieces Together
Page 16
Background on Service
Coordination
The recognition of the need for service
coordination stems from previous
experience in social work and nursing.
Professionals in these fields often
worked in the capacity of managing a
number of agency representatives that
had an impact on the day-to-day
functioning of people with developmental disabilities, mental illness, or
complex medical needs. As a result,
social workers and nurses may
receive more training than others in
the competencies necessary for
service coordination. The demands of
the early intervention system, however,
require that members of each
discipline involved in service delivery
receive adequate preparation to fulfill
both the spirit and intent of the law.
The regulations of Part H of IDEA do
not establish discipline-specific requirements for service coordinators.
Rather, the general qualifications are
the knowledge of:
early intervention legislation on
state and federal levels.
infants and toddlers with
disabilities.
available resources.
procedural safeguards available
to families.
The role of service coordinator is critical
to the implementation of the familycentered philosophy of the law. Rather
than act on behalf of families, or as a
restraint on optimal service provision,
the service coordinator must facilitate
the true intent of the law: to support
families in their caregiving role. Service
coordination must occur within a
collaborative problem-solving
partnership between the coordinator
and the family. The overall process
includes the following activities:
(1) coordinating the performance of
evaluations and assessments; (2)
facilitating and participating in the
development, review, and evaluation of
IFSPs; (3) assisting families in identifying available service providers; (4) coordinating and monitoring the delivery
of available services; (5) informing
families of the availability of advocacy
services; (6) coordinating with medical
and health providers; and (7) facilitating
the development of a transition plan to
preschool services, if appropriate.
In a coordinated system, the family and
child actively participate in a productive
and constructive process that views the
infant or toddler from his or her family's
perspective; this is the ultimate goal of
effective service coordination and
collaborative service delivery. For this
reason, service coordinators must have
excellent interpersonal, communication, negotiation, and facilitation skills.
Early Intervention Collaborations
Page 17
Activity 1.5
What steps/actions could a service coordinator take to make sure family-centered,
comprehensive, coordinated services are being delivered?
Inherent in these provisions is the
concept of a statewide system of
coordinated, comprehensive, multidisciplinary, interagency programs
of early intervention services for
infants and toddlers with disabilities
and their families. This concept
requires commitment by all service
agencies and providers to cooperatively and collaboratively plan,
implement, and evaluate services
that enhance the capacity of families
to meet the special needs of their
children. Clearly, the challenge to
the service delivery system is to
develop new interagency and
multidisciplinary models of early
intervention that meet the intent
of the law, and, most importantly,
the needs of families such as
Polly's.
Collaboration: Putting the Puzzle Pieces Together
Page 18
Activity 1.6
Now think about Polly's story. Does her service delivery plan meet the intent of
the laws governing early intervention?
Specifically state the aspects of her service delivery that are not compliant.
Early Intervention Collaborations
Page 19
Notes
Collaboration: Putting the Puzzle Pieces Together
Page 20
Collaboration is a term used to
describe efforts to unite people,
professionals, programs, or
agencies for the purpose of achieving
common goals that could not be
accomplished by an agency or
individual working alone. Infants and
toddlers with disabilities and their
families have needs that are diverse,
interrelated, and vary over time. No
single agency or service provider has
all of the skills necessary to meet the
needs of a child with disabilities and
his or her family. Service agencies
and providers must work together to
plan, implement, and evaluate services that enhance a family's ability to
meet the special needs of the child.
In order to do this, collaborations must
occur within all levels of service
delivery, beginning at the agency level.
There are three ways agencies and
service providers can come together
to serve young children with
disabilities: they can cooperate,
coordinate, and collaborate.
Cooperation
Cooperation is the first step in
developing an effective service
delivery system. It is characterized
by people, programs, and agencies
informally sharing information
Interagency Collaborations
Page 21
(e.g., brochures, mailing lists, newsletters, and trainings) to achieve dayto-day goals. Cooperation does not
require groups to be interdependent
or interactive in terms of their formal
policies, procedures, or activities. For
example, an early intervention service
provider cooperates with family
members by sharing information with
them regarding their child's disability,
the child's specific developmental
needs, and the services available to
meet those needs.
Coordination
When people begin to realize that they
share similar responsibilities, they
are ready to take the next step toward
effective service delivery: coordination. Coordination is characterized by
people, programs, and agencies
formally defining their roles and
responsibilities. This can result in
the elimination of any gaps or duplication in the service delivery system.
Like cooperation, coordination
requires agencies to share information and resources, but on a more
formal level. For example, as groups
begin to coordinate activities, they
begin to look at their policies in terms
of sharing information and resources,
but there are no formal changes in
the any particular agency's policies,
procedures, and goals.
Collaboration
When groups come together formally
to achieve a common goal, they are
collaborating. Collaboration is the
process of people, programs, and
agencies coming together to define
their policies, procedures, and activities in an effort to achieve a common
goal. The focus of the collaborating
group is to jointly find a solution to a
given problem. Collaboration
requires shared decision making,
resources, and power. The key to
collaboration is the realization that
no one alone has all the power,
resources, and expertise to deliver
the most effective services
possible. By giving up traditional
roles and coming together, the group
members can maximize their skills
and knowledge to create a more
effective service delivery system.
No single agency or service provider has all the skills
and knowledge necessary to meet the multiple needs
of a child with disabilities and his or her family.
Collaboration: Putting the Puzzle Pieces Together
Page 22
24
lip Activity 2.1
Collaboration involves people from different agencies or programs coming
together for the purpose of implementing an effective early intervention program
for a child with disabilities and his or her family. List some benefits of
collaboration for agencies, service providers, and families.
Benefits to
Families
Benefits to
Service Providers
Benefits to
Agencies
Interagency Collaborations
Page 23
2J
Early Intervention
Service Delivery
The degree to which each agency or
service provider works together with
others determines the nature of the
service delivery. The development of
cooperative arrangements for the
purpose of service delivery is a
common strategy that is used for
program improvement. Cooperative
arrangements are required by many
federal laws, and the desired
outcome is the development of an
interagency cooperative agreement.
However, cooperative arrangements
rarely result in improved services.
This is because cooperating
agencies and service providers
maintain their own autonomy, as well
as their own philosophy and service
goals, which may not be appropriate
for the target population.
Unfortunately, this model tends to
drive most initial attempts to organize
services for young children with
disabilities and their families.
In order to improve this situation, it has
been suggested that the focus of early
intervention should shift from
cooperative arrangements among
agencies and providers to
collaborations focused on joint service
delivery. A collaborative strategy is
appropriate in communities where the
need and intent is to make a
fundamental change the way services
are designed and delivered. This
requires that the involved agencies
and service providers agree on a
common philosophy and service goal
that can be achieved only through joint
agency activities. Collaboration is the
key to effective early intervention.
Unfortunately, the development of
collaborative early intervention service
systems remains an elusive goal for
many states. This is not surprising
considering that the service delivery
system is composed of independent
agencies, institutions, and
organizations, and each provide a
specific service or function. As a
result, each participating service
provider has his or her own
orientation toward the service system.
For example, hospitals and health
professionals view early intervention
very differently from community
oriented agencies and professionals.
However, Part H of IDEA mandates
that many agencies work together to
create joint activities focused on the
development of collaborative, early
intervention services.
Collaboration: Putting the Puzzle Pieces Together
Page 24
2G
mg Activity 2.2
List the agencies, programs, and services (both public and private) that are
available to families with infants and toddlers in your community.
Barriers to Collaboration
Table 2-1 identifies some common
barriers to successful collaborations.
The following are some of the most
common:
Competitiveness Between Agencies
and Providers
One barrier to collaboration is
competitiveness. Competition
between agencies and providers for
clients and services often exists.
Frequently, conflicts result from a lack
of accurate information about the
functions of other agencies or
providers. Agencies and service
providers must be prepared to share
information with each other so that
barriers to interdependent functioning
can be identified and removed. Many
existing agency and program policies
will need to be evaluated and refined
in order to develop collaborative
service delivery models.
Interagency Collaborations
Page 25
27
Table 2-1: Common Barriers to Collaboration
COMPETITIVENESS BETWEEN AGENCIES AND PROVIDERS
Turf Issues
Lack of Information About Other's Functions
Political Issues
LACK OF ORGANIZATIONAL STRUCTURE FOR COORDINATION
Differing Philosophies
Independent Goals
Haphazard. Team Process
Lack of a Facilitator
Lack of Monitoring and Evaluation Process
Lack of Planning
Lack of Power and Authority to Make and Implement Decision
TECHNICAL FACTORS
Resources: Staff, Time, Budget
Logistics: Distance, Geography
PERSONNEL
Parochial Interests
Resistance to Change
Staff Attitudes
Lack of Commitment to Community Needs
Questionable Administrative ,Support
DisciPline Specific Jargon and Perspectives
Lack of Organizational Structure for
Collaboration
Another collaboration barrier
results from a lack of an
organizational structure to facilitate
coordination between agencies
and providers. Traditionally, the
goals and philosophies of each
agency and service provider are
individually established. Therefore,
existing agency structures may not
Collaboration: Putting the Puzzle Pieces Together
Page 26
BEST COPY AVAILABLE
be conducive to the collaborative
planning and implementation of
decisions in a cooperative and
coordinated manner. The first step
in creating a collaborative
arrangement is the adoption of a
common vision by all involved in
the service delivery system. One
difficulty in establishing a shared
vision may be the existence of
differing interpretations of the
adequacy of the existing system.
This obstacle can only be
overcome when all participants are
willing to share in a process to
ensure open, continued
communication, negotiations, and
conflict management.
Technical Factors
Technical factors also interfere
with service delivery collaboration.
Scarce resources of staff, time,
and money are factors that inhibit
agencies from exerting the time
and effort to collaborate with other
agencies. In an age of shrinking
resources, collaborations are
often the only way to guarantee the
development of an integrated
service system. Logistical issues,
such as a distance and
geography, are also common
excuses for agencies to not work
collaboratively.
Personnel
The attitudes of personnel can
present the greatest barrier to
collaboration. Individuals who
resist change will find many
reasons why collaboration between
agencies and providers cannot
occur. Frequently, such resistance
indicates of a lack of commitment
to the more global needs of
children and families, a failure to
acknowledge the strengths of other
disciplines, or a lack of support
from administrative powers. The
people involved in the creation,
development, and implementation
of the collaborative service system
are a critical factor in the ultimate
success of such a model. Most
important is an effective leader. A
leader must be able to both
establish and "sell" the vision to all
participants. He or she also must
be able to translate the vision into
the reality of service delivery. Also
important is the competence and
commitment of the other
participants, in terms of both
policymaking and service delivery.
All participants should be provided
access to support and training as
their roles change with the
development and implementation
of a collaborative service delivery
system.
Interagency Collaborations
Page 27 27
2
itg Activity 2.3
From your own experience, list some examples of the common barriers to the
development of collaborative early intervention systems.
Interagency
Collaborations
A collaborative service delivery model
requires a new structure in which
agencies give up some of their
autonomy in order to provide optimal
services to children and their families.
Under Part H of IDEA, interagency
collaboration for the purpose of the
design and delivery of early
intervention services must occur at
both the state and community levels.
Ideally, these collaborations will be
closely aligned and allow for
comprehensive service provision that
benefits families and children.
Collaboration: Putting the Puzzle Pieces Together
Page 28
Activity 2.4
How do the agencies that provide early intervention services in your community
collaborate?
Though collaboration may not always
be possible, it is certainly the most
desirable style for professionals from
various agencies to use to interact
with one another. A more favorable
climate for collaboration occurs when
agencies, programs or groups share
a common philosophy and goal, and
the service delivery issue is a priority
for each of the service agencies.
However, there are several barriers
to implementing interagency
collaboration. For example, not all
participating agencies may agree on
the necessity for service improvements. There may be other priorities
influencing agencies, such as a
budget shortfall, or a history of
competition or negative relationships
among participants. Nevertheless,
federal legislation (Part H of IDEA) for
early intervention has clearly created
a need to prioritize collaboration,
which should facilitate the development of a favorable climate for
change to occur.
Interagency Collaborations
Page 29
31
IR Activity 2.5
Use the following checklist to assess the status of interagency coordination for
early intervention in your community. The checklist has five dimensions of
interagency coordination and characteristics that describe each. These
characteristics may have a positive or negative influence on interagency
collaboration. Please indicate the kind of influence each characteristic has on your
interagency group.
Scale:
+5
Positive
4
3
2
Somewhat Positive
1-
Neutral
Somewhat Neutral
Negative
CUMATE
1.
Past experience in interagency coordination
+5
4
3
2
1-
2.
Decision makers who have worked together over time
+5
4
3
2
1-
3
2
1-
3.
Trust level among key individuals
+5
4
4.
Attitude of key decision maker
+5
4
3
2
1-
5.
Support of key decision makers
+5
4
3
2
1-
6.
Local relationship with state level agency
+5
4
3
2
1-
7.
Interagency cooperation is a priority of program staff
+5
4
3
2
1-
8.
Program goal is priority of the community
+5
4
3
2
1-
9.
Past experience in program area
+5
4
3
2
1-
Delineation of agency roles and responsibilities
+5
4
3
2
1-
10.
RESOURCES
11.
Availability of financial resources
+5
4
3
2
1-
12.
Availability of personnel
+5
4
3
2
1-
13.
Quality of personnel
+5
4
3
2
1-
14.
Some program components already in place
+5
4
3
2
1-
15.
Funds budgeted to support coordination
+5
4
3
2
1-
16.
Time available for coordination efforts
+5
4
3
2
1-
17.
Availability of options for referral of services
+5
4
3
2
1-
18.
Coordination among resources to avoid gaps and duplication
+5
4
3
2
1-
7
Collaboration: Putting the Puzzle Pieces Together
Page 30
3.
POLICIES
19.
Existence of federal policies
+5
4
3
2
1-
20.
Existence of state policies
+5
4
3
2
1-.
21.
Federal and state policies are clear and understandable
+5
4
3
2
1-
22.
Consistency between state and federal policies
+5
4
3
2
1-
23.
Existence of local policies or guidelines
+5
4
3
2
1-
24.
Consistency between local policies or guidelines and federal and
state policies
+5
4
3
2
1-
25.
Existence of local interagency agreements
+5
4
3
2
1-
26.
Definitions of the roles of coordinating agencies
+5
4
3
2
1-
27.
Existence of state level interagency agreements
+5
4
3
2
1-
PEOPLE
28.
Key person(s) provides leadership in acceptance of a shared vision
+5
4
3
2
1-
29.
Key person(s) whose influence crosses agency boundaries
+5
4
3
2
1-
30.
Key person(s) provides leadership in planning and program
implementation
+5
4
3
2
1-
31.
Staff have skills in human relations, negotiation, conflict resolution
+5
4
3
2
1-
32.
Staff have diverse skills from various disciplines
+5
4
3
2
1-
33.
Staff recognize the importance of interagency cooperation
+5
4
3
2
1-
34.
Interagency cooperation is a priority of program staff
+5
4
3
2
1-
PROCESSES
35.
Existence of a formal systematic planning process
+5
4
3
2
1-
36.
Existence of a formal communication process (regular meetings,
newsletters, policy bulletins, etc.)
+5
4
3
2
1-
Existence of an informal communication network
(personal/professional relations)
+5
4
3
2
1-
38.
Existence of a dispute resolution mechanism
+5
4
3
2
1-
39.
Use of participatory planning using all relevant stakeholders
+5
4
3
2
1-
37.
Harbin, G., Dahaher, J., Bailer, D., & Eller, S. (1991). Status of states' eligibility policy for
preschool children with disabilities. Chapel Hill, NC: Carolina Policy Studies Program,
Frank Porter Graham Child Development Center, University of North Carolina at Chapel Hill.
Interagency Collaborations
Page 31
3
Collaboration:
Predictors of Success
There is no magic formula for
developing interagency models, but a
number of key ingredients have been
identified. In particular, Melaville and
Blank (1991) have identified the
following five variables that shape an
effective interagency collaborative
system:
The social and political climate
for change.
A more favorable climate for collaboration occurs when the targeted
service delivery issue is a priority
for each of the service agencies.
The processes of communication
and problem solving.
Interagency collaborations rely on
the adoption of a process to
establish goals and objectives,
clarify roles, make decisions, and
resolve conflicts.
The human dimension.
The people involved in the
creation, development, and
implementation of the interagency
service system are a critical factor
in the ultimate success of the
collaborative model.
The policies that support or
inhibit interagency collaboration.
Each participating agency and
program entering into an
interagency collaboration has a
set of rules and regulations which
governs its mandate, target
population, budgetary operations,
and service structure (including
staffing patterns). Agencies and
programs must be prepared to
identify and share these policies
with each other so that barriers to
interdependent functioning can be
identified and removed.
The availability of resources.
Interagency collaborative efforts
require new fiscal arrangements
to ensure the development and
delivery of services. Resources of
all kinds (fiscal, staff, time, in-kind
services) will have to be pooled to
establish the most efficient
delivery of services. In an age of
shrinking resources, interagency
collaborations are often the only
way to guarantee the development
of an integrated service system.
Early intervention is one area in
which resources must be jointly
pooled and funding levels must be
increased. Only then will states
be able to implement services in
conjunction with the spirit of Part H
of P.L. 99-457.
Collaboration: Putting the Puzzle Pieces Together
Page 32
3
Activity 2.6
Using the five predictors, describe the conditions for interagency collaboration in
your community's early intervention program/system.
The social and political climate for change.
The processes of communication and
problem-solving.
The human dimension.
The policies that support or inhibit
interagency collaboration.
The availability of resources.
Interagency Collaborations
Page 33
In both cooperative and coordinative
partnerships, the needs of the
interagency effort are secondary to the
needs of the single agencies. In a
collaborative effort, the interagency
effort is seen as a separate entity. As
such, it has needs that parallel those
of the individual agencies. Staff
members must have loyalty to both
the interagency program's goal and to
their single agencies. Decision
making authority rests with the
interagency group, whereas in
cooperative and coordinative efforts,
decision making typically lies with the
individual agencies. The interagency
group needs to develop collaborative
procedures that foster conflict
resolution, enhance trust, determine
the benefits to be derived from all
participants, share information, and
create an effective decision making
mechanism.
The development of trust is essential
in order for the interagency goal to be
met. Consensus building only works
when the participants trust that
everyone is committed to the same
objectives with no "hidden agendas,"
and when each single agency
believes that it is getting enough
benefits from the collaboration to
justify the investment of resources
that it is making. It is important for
each agency to have the opportunity to
discuss what it hopes to get out of the
collaboration, and to have input into
the design of processes and
procedures for the management of
the interagency unit.
Barriers to a successful change process are
related to
leadership,
external
and
forces,
motivation,
operational
factors.
Attention must be paid to these barriers to
prevent the process from stalling out.
Carl L. Hirshman and Steven L. Phillips
Collaboration: Putting the Puzzle Pieces Together
Page 34
3
IR Activity 2.7
Draw an organizational chart of key early intervention players (agencies, task
forces, committees, etc.) in your community. Next, identify strengths, opportunities,
barriers, and strategies for effecting change within the organization.
Interagency Collaborations
Page 35
3 I.
The Development of
Interagency
Collaborations
stages identified and described.
Progression through these stages
often appears linear, but in reality
collaborative groups often find
themselves overlapping some of the
stages as they progress. Kagan
(1991) outlines six stages in the life of
an interagency collaborative process.
There have been many theories put
forth about organizational
development, with a finite number of
Kagan's Stages of Interagency Collaborative Process
Stage 4:
Implementation
S
t
a
g
e
.
Stage 3:
Development
5:
Stage 6:
Termination
Stage 2:
Conceptualization
a
1
a
t
Stage 1:
Formation
0
n
4
Collaboration: Putting the Puzzle Pieces Together
Page 36
30
Formation
In this stage, someone initiates the
idea of collaboration; it is the
visioning stage. The vision arises in
response to a potential or actual
problem, and the initiating individual
identifies others who then become
stakeholders in the process. These
stakeholders together explore the
viability of the vision; they become
acquainted with each other and their
programs, partly to assess turf
issues; and, they begin to identify a
global mission.
Conceptualization
This stage begins when participants
adopt a formal policy statement and
objectives. They discuss each
person's expectations and reasons
for participating in the collaboration.
They agree on a common purpose
and direction. This is the stage in
which tasks, roles, and responsibilities are delineated, and a
decision-making model and
administrative structure for future
interagency activities are developed.
Development
Here a formal structure is developed
that will sustain the interagency entity.
The group identifies programs for
revision or expansion, establishes a
communication system, assigns
work group tasks, and selects locales
in which the work will take place.
Issues and conflicts within the group
are addressed and resolved, plans
are formulated, and seek acceptance
from the key decision-makers in their
own agencies.
Implementation
This is the action-intervention stage,
when the proposed revisions are put
into place. Decisions are carried out
at the administrative and service
delivery levels. Policy changes are
made to comply with decisions made
in previous stages, agencies interact
accordingly, and services are
improved.
Evaluation
Evaluation in any collaborative venture
is an ongoing process, and should
be conducted continuously. The unit
must always look at how accomplishments measure against expectations,
and whether the vision is becoming a
reality. Evaluative efforts should look
at four dimensions: 1) the effectiveness of the process (i.e., the
relationship between goals and
actual results); 2) equity; 3) the
adequacy of the effort, (i.e., were
Interagency Collaborations
Page 37
enough resources dedicated to the
effort to achieve the desired results);
and, 4) cost efficiency (i.e., was the
maximum return achieved from the
monetary investment).
Evaluation takes place at several
levels simultaneously. The first is the
level of the client Is service delivery
improving as anticipated? The
second is the level of the provider. Is
the job easier as a result of the
collaborative effort? The third is the
level of administrators and funders:
Are costs reduced and waste
eliminated?
Termination
Termination occurs when the
collaboration is no longer needed -either because the initial problem has
been solved, or because the benefits
of collaboration have failed to
outweigh the costs. The end of one
collaborative venture may precipitate
the beginning of another, as systems
and structures are scrutinized and
new procedures are developed to
meet the needs of a changing
environment.
IR Activity 2.8
Describe an interagency group you may be involved with and try to determine
which of the six steps you are focused on currently.
Collaboration: Putting the Puzzle Pieces Together
Page 38
40
IR Activity 2.9
At which level are Polly's early interventionists working: coordination, cooperation
or collaboration?
Describe the current barriers their team is experiencing.
Describe the benefits that Polly and her family would experience from a
collaborative approach to service delivery.
Interagency Collaborations
Page 39
Notes
Collaboration: Putting the Puzzle Pieces Together
Page 40
42
Every child is a member of a
family (however it defines itself)
and needs a home and a
secure relationship with an adult or
adults. These adults create a family
unit and have ultimate responsibility
for caregiving, supporting the child's
development, and for enhancing the
quality of the child's life. The
caregiving family must be seen as the
constant in the child's life, and
therefore, the primary unit for service
delivery. Early interventionists must
respect the individual families they
serve, and the decisions of these
families in directing their children's
early intervention programs.
Traditionally, families have been
viewed as being comprised of a
husband, wife and children, living
comfortably together in their own
home. However, this definition does
not describe most families today.
Anthropologists, sociologists, and
other professionals who study people
and their social relationships have
struggled to answer the question,
"What is a family?" Nearly every one
of us has grown up in a family and
has a sense of what a family is. Yet, it
is extremely difficult to create a
definition that includes all the
variations of a "family."
Family Collaborations
Page 41
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4
Activity 3.1
Take a few minutes to write your definition of a "family."
Now examine your definition and
consider the following questions:
Does your definition include single
parents raising children?
Does your definition include
grandparents and foster parents
raising children?
Does your definition include
extended family members?
The traditional concept of an "ideal
family" can be harmful because the
definition of a "traditional" family,
which has a married mother and
father living together with their
children causes us to label families
who don't fit this pattern as
"abnormal." For example, single
parents, unmarried adults raising
children, or childless couples are
often seen as social problems.
Variations in the makeup of families
Collaboration: Putting the Puzzle Pieces Together
Page 42
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44
are common. When non-traditional
families are viewed as problems, we
fail to recognize and respect a
family's strengths. Secondly, only a
small percentage of families today
actually resemble the traditional
family. In fact, according to the 1990
Census Data, only 37.2% of families
living in the United States and 35.3%
of families living in Connecticut fit the
definition of the "traditional family".
An updated, more relevant definition
of "family" was developed by a
legislative task force on young
children and their families in New
Mexico. This definition describes the
concept of family:
"We all come from families. Families
are big, small, extended, nuclear,
multi-generational, with one parent,
two parents, and grandparents. We
live under one roof or many. A family
can be as temporary as a few weeks,
as permanent as forever. We
become part of a family by birth,
adoption, marriage, or from a desire
for mutual support. As family
members we nurture, protect and
influence one another. Families are
dynamic and are a culture unto
themselves, with different values and
unique ways of realizing dreams.
Together, our families become the
source of our rich cultural heritage
and spiritual diversity. Each family
has strengths and qualities that flow
from individual members and from
the family as a unit. Our families
create neighborhoods, communities,
states, and nations."
No two families are exactly alike.
Families differ in their size, their
composition, and how they function.
Most importantly, all families have
strengths.
Parenting a Child with
Disabilities
Parents of young children with
disabilities rarely take on this
parenting role with any preparation for
the special challenges they will face.
Rather, the early days, weeks and
months of parental responsibility may
be spent in a blur of visits to the
hospital, physician's office and
special clinics with little or no
opportunity to adapt to the significant
change that has taken place in their
lives. While most parents report an
increase in the level of stress they
perceive after the birth of a child, the
parents of an infant with disabilities
must deal with unanticipated
pressures and responsibilities that
can make the parenting role appear
to be overwhelming.
Parents traditionally have been an
integral part of early intervention
Family Collaborations
Page 43
services. By far, their most significant
role has been that of service provider
or teacher of their child. The
implementation of this parent role
represents a somewhat restricted
view of parent involvement. All too
often, early intervention parent training
programs have imposed intrusive
demands and expectations on
parents that have altered their
interactional style with both the child
with disabilities and the rest of the
family.
The application of family systems
theory has prompted the
recommendation that early
intervention programs move away
from a narrow focus of the child and
encompass the broader and selfidentified needs of the enrolled
parents. The primary goal of early
intervention should be to facilitate the
parents' awareness of, and
adaptation to, their primary role of
parenting a child with disabilities.
One key to accomplishing this goal is
to recognize the ongoing stress of
parents and assist them to identify
and recruit support networks. By
changing the focus from child change
to parent-family adaptation, both
programs and parents will see
beneficial results.
Family support strategies should be
integral to any service delivery system
for families with infants and toddlers
who have disabilities. The support
strategies should be both formal
(e.g., assistance with insurance and
financial needs; identification of
respite services; training on medical
equipment) and informal (e.g.,
identifying existing community
resources; facilitating family
involvement within the school). The
overriding premise of such support is
that it must be individually matched to
the needs of the family, and the use of
such strategies should be directed by
the family.
The story, "A Trip to Holland," was
written by a parent describing how
she felt upon the birth of her child who
was identified as having Down
syndrome.
We must respect a family's priorities and
support their choices, no matter how different
from ours they may be.
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4 13
A Trip to Holland
When you're going to have a baby, it's like you're planning a vacation to.
You're all excited seeing the Coliseum, the Michaelangelo, the
gondolas of Venice. You get a whole bunch of guide books, you learn a few
phrases in Italian, so you can order in restaurants and get around the town.
When it comes time, you excitedly pack your bags, head for the airport, and
take off for Italy. Only when you land, your stewardess announces,
'Welcome to Holland' You look at one another in disbelief and shock,
saying 'Holland? I signed up for Italy.' But they explain that there's been a
change of plans and the plane has landed in Holland, and there you must
stay. 'But I. don't know anything about Holland. I don't want to stay here,'
you say. 'I never wanted to come to Holland. I don't know what you do in
Holland, and I don't want to learn.' But you do stay, and you go out and you
buy some new guide books. You learn some new phrases in a whole new
language, and you meet people that you never knew existed. But the
important thing is that you are not in a filthy, plague infested slum full of
pestilence and famine. You are simply in another place, a different place
than you'd planned. It's slower paced than Italy, less flashy than Italy, but
after you've been there a little while and you have a chance to catch your
breath, you begin to discover that Holland has windmills, Holland has tulips,
and Holland even has Rembrandts. But everyone you know is busy coming
and going to and from Italy, and they're all bragging about what a great a
time they had there. And for the rest of your life you will say 'Yes, that's
where I was going; that's where I was supposed to go; that's what I planned.'
And the pain of that will never, ever go away And you have to accept that
pain, because the loss of that dream, the loss of the plan, is a very, very
significant loss. But if you spend your life mourning the fact that you didn't
get to Italy, you will never be free to enjoy the very special, the very lovely
things about Holland.
Italy.
Emily Kingsley
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47
Activity 3.2
List family support services that are available in your community.
Family Centered Care
Family-centered care refers to a set
of beliefs, attitudes, and principles
that have been applied to the care
of children with special healthcare
needs and their caregiving
families. The philosophy of family-
centered care is based on the fact
that the family is the enduring and
central force in the life of a child,
and has a large impact on his/her
development and well-being.
Table 3-1 contains a list of the
principles of family centered care,
and they are further described.
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Page 46
Table 3-1: Principles of Family-Centered Care
.
Acknowledge the family as the constant in a child's life.
2. Facilitate collaboration at all levels of care.
3. Share unbiased and complete information with family members
about their child's care on an ongoing basis, and in an appropriate
and supportive manner.
4. Implement appropriate, comprehensive services that provide
emotional and financial support to meet the needs of families.
5. , Recognize the family's strengths, individuality, and methods of
coping.
6. Understand and incorporate the developmental needs of infants,
toddlers, and families into everyday routines and activities.
Encourage and facilitate parent-to-parent support.
Assure that services are flexible, accessible, and responsive to, the
family's needs.
Honor the racial, ethnic, cultural, and socioeconomic diversity of
families.
Family Collaborations
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Acknowledge the family as the
constant in a child's life.
Early intervention is part of a
child's life for a relatively short
period of time. It is essential to
recognize and respect the central
and lasting role the family plays in
the child's life.
Facilitate collaboration at all
levels of care.
Implement appropriate,
comprehensive services that
provide emotional and financial
support to meet the needs of
families.
Each family is unique, with its
own concerns, priorities, and
hopes for the future. A family's
needs may include respite,
childcare, parent-to-parent
support, transportation, and
assistive technology. The family
must have access to the supports
and services necessary to meet
those needs.
Successful intervention depends on
the ability of families and early
intervention service providers to
work together as partners. It is
important to respect the skills,
abilities, knowledge, and individual
dreams of families.
Recognize the family's
strengths, individuality, and
methods of coping.
Share unbiased and complete
information with family members
about their child's care on an
ongoing basis, and in an
appropriate and supportive
manner.
All families have individualized
coping behaviors that they use on
a daily basis. Services must
recognize the appearance and
value of these behaviors to each
member of the family.
Each family has the right to know
all the information available about
their child's needs and the service
options available to meet those
needs. This information should
be shared in an open, honest,
understandable, and sensitive
manner.
Understand and incorporate the
developmental needs of infants,
toddlers, and families into
everyday routines and
activities.
Families of children with medical
or developmental needs continue
to have the need to "be a family."
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Every family needs time to enjoy
friends, recreation, community
activities, and each other. Early
intervention should encourage
and support the child's
participation within the family's
daily activities.
Honor the racial, ethnic, cultural,
and socioeconomic diversity of
families.
Each family has its own beliefs,
values, and preferences. Early
interventionists can support
families by being open to and
accepting of diversity.
Encourage and facilitate parentto-parent support.
Family-centered care suggests that
all services revolve around the family,
as it is the family that will be the
constant in the child's life. Early
interventionists must become
sensitive to the changing needs of
the family as it copes with the
ongoing needs of the child.
Empathetic staff and flexible,
coordinated family-centered services
are crucial to the design of a
collaborative early intervention
service system.
Parent-to-parent support
provides families with an
opportunity to share and benefit
from each other's experiences
and knowledge. Early
interventionists can best support
families by being aware of local
advocacy and support
organizations.
Assure that services are
flexible, accessible, and
responsive to the family's
needs.
Family-centered care requires that
professionals should look closely at
what they do now and envision what
they can create. Look closely at their
current practices and ask questions
such as: Why are things done this
way? Is this the only way possible?
Is this the best way to do it? Is this
the way it has always been done?
Families often report that
inflexible services are a greater
source of stress than the care of
their children. Programs and
policies must be responsive to
the dynamic needs and goals of
families.
Family Collaborations
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JJ
Activity 3.3
Using the following definitions, assess whether the examples listed below are
family-centered, child-centered or system-centered.
Driving Forces:
S
System-centered: the strengths and needs of the system drive the delivery of services.
C
Child-centered: the strengths and needs of the child drive the delivery of services.
F
Family-centered: the strengths and needs of the family drive the delivery of services.
A family must bring their child to the office for case management services.
A complete assessment of a child and family is done.
Occupational therapy sessions are arranged according to a family's schedule.
Child care is provided for siblings while the child with disabilities receives treatment.
The office hours of the dentist are Monday through Friday, 9:00 a.m. - 4:00 p.m.
A physical therapist sends the order for a seating device home with the child.
Transportation to the clinic is available from 9:00 a.m. - 5:00 p.m.
Parent support groups may use the facility's conference room in the evenings.
A local school board's planning committee consists of professionals, parents, and
representatives from the community.
A child's medical records are available in three to five days after a release of information
is received.
A speech therapist comes to the home twice a week for a one hour session with a child.
A care plan developed by a multidisciplinary team is given to the parent.
School is closed for a day so that parent/teacher conferences can be held.
Parents choose to send their child with diabetes to a church camp instead of a special
camp for children with diabetes.
A hospital social worker arranges for all of the medical equipment ordered by a physician
for a child.
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J
Cultural Diversity
Just as the population of children
who are considered to have special
needs is not a homogeneous group,
neither are the children's families.
The early intervention professional
serving infants and toddlers with
disabilities will work with many
families who vary by background and
economic conditions, as well as by
family structure. Each family will
bring unique resources to the task of
parenting their child with special
needs, and each family will identify
unique needs which must be
addressed through early intervention.
In addition, early intervention
programs are becoming much
more sensitive to the cultural
background of the enrolled families.
This important variable contributes
to the composition and operation of
a family system. The families of
infants and toddlers in the early
intervention system represent all
facets of American society and
cultural backgrounds. The basic
cultural components that must be
considered as professionals work
with families include language,
communication style, religious
beliefs, values, customs, food
preferences and taboos; any of
these factors may affect the family's
perception of disabilities. Early
interventionists must have the ability
to understand the similarities and
differences between their own
cultural beliefs and values and
those of the families they serve.
The influence of cultural norms can
be more significant than the
influence of a specific intervention.
Early interventionists must develop
a sensitivity to the unique role these
variables play in each family
system.
Diversity should be valued. Diversity is not
right or wrong. Diversity is a dimension of
being that emphasizes the uniqueness of
each and every one of us.
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The first step in learning to be
sensitive involves self-awareness.
The awareness of individual
assumptions and values can help to
sensitize early interventionists to the
belief system of the families
receiving services. It is important to
recognize that one viewpoint
represents just one of the many
ways to look at the world.
sensitivity, early intervention service
providers should:
Recognize the diversity of other
cultures.
Develop individualized family
service plans that are culturally
acceptable.
Establish clear communication
(verbal and nonverbal) with all
families (through bilingual and
bicultural staff).
In addition to recognizing how
values affect decisions and
judgments, early interventionists
must learn about differences in the
cultures of the families served in
early intervention. Knowledge and
understanding of various cultures
will enable the early intervention
system to support families through
the 1FSP process. Cultural
sensitivity means being aware and
respectful of the unique cultural
needs, values, and norms of a child
and family. To demonstrate cultural
Provide all information in the
family's preferred language.
Encourage respect for different
values, beliefs, and practices.
Cross language barriers and
gain access to needed
community services facilitating
family empowerment.
Families should be at the center of the
service delivery system.
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J
Activity 3.4
Early intervention must be consistent with the family's beliefs and values. In order
to provide effective services, we must learn more about the family's values and
preferences. These preferences can include the family's:
feelings toward seeking assistance from people outside the family.
beliefs regarding food and mealtime rules.
views on acceptable behavior for children.
List some of your family's beliefs, values, and priorities, and identify their origin.
Family Collaborations
Page 53
The Family-Centered
IFSP
The Individualized Family Service Plan
(IFSP), mandated by Part H, is the
keystone to the services provided to an
infant or toddler with disabilities and his
or her family. The plan must be written
carefully to include the needs of the
child, and the parents or other caregivers as related to the child's needs.
With the focus on least restrictive,
natural environments and familycentered care, there must be respect for
the role of the family members. They
are the people who know the child best,
and who can delineate most accurately
the child's strengths and needs.
Elements of an IFSP:
1. Information about the child's
status, including present levels of
physical development (vision,
hearing, and health status), cognitive development, language and
speech development, psychosocial development, and self-help
skills, based on professionally
acceptable objective criteria.
2. A statement, made with the
concurrence of the family, of the
family's concerns, priorities, and
resources related to enhancing
the developmental outcomes of
the child.
3. A statement of the major outcomes
expected to be achieved for the
child and family and the criteria,
procedures, and timelines used to
determine: a) the degree to which
progress toward achieving the outcomes is being made; and, b)
whether modifications or revisions
of the outcomes or services are
necessary.
4. A statement of the early intervention services necessary to meet the
unique needs of the child and
family to achieve the stated outcomes including: a) the frequency,
intensity, location, and method of
delivering services; b) the payment
arrangements, if any; and, c) the
dates and duration of the services.
(Frequency and intensity define the
number of days or sessions that a
service will be provided, the length
of time the service is provided
during each session, and whether
the service is provided on an
individual or group basis. Location
means the place where the service
is provided. Method means how
the service is provided. Date
means the specific day the service
will start and the anticipated
number of weeks or months of
those services will be provided.)
5. A listing of other services that the
child needs that are not required
under the federal Early Intervention
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Program for Infants and Toddlers
with Disabilities and the steps that
will be taken to secure services
through private or public resources.
6. The name of the service coordinator who will be responsible for the
implementation of the IFSP and
coordination with other agencies
and persons.
7. A listing of the steps to be taken to
support the transition of the child,
upon reaching age three, to public
school preschools or preschool
services under Part B of the IDEA
or other services that may be
available, as is appropriate for the
child's needs.
.
Activity 3.5
In order to develop a family-centered IFSP, both early intervention service providers
and families must collaborate in the process.
Describe what information and skills early intervention service providers and
parents contribute to the development of the IFSP.
Professionals
Parents
Family Collaborations
Family Concerns,
Priorities and Resources
The child's strengths and .other
relevant information such as
favorite toys and games.
In order to develop an effective IFSP
for infants and toddlers with
disabilities, early interventionists
must become aware of each family's
concerns, priorities, and resources.
Furthermore, staff must be able to
communicate with the family in order
to establish collaborative goals for the
child, and to design appropriate
interventions that can be delivered in
the context of the family. A familycentered approach to providing
services to children and families is
dependent on a relationship between
early interventionists and families that
is based on mutual trust and respect.
Things the family finds to be
difficult (e.g., locating sources of
financial support, speaking with
physicians about the child's care,
filling out insurance forms).
The family's typical routine and
activities.
Early intervention service providers
must be open and sensitive to what
a family has to say. Families are
more comfortable and willing to
share their concerns when they
sense trust and respect.
Certain guidelines can assist service
providers and families when
collaborating to identify a family's
concerns, priorities, and resources.
These include:
Knowledge of the family's concerns,
priorities, and resources can be
gained through periodic interactions
with the family. Phone calls, home
visits, and casual conversations are
all opportunities to learn more about
the family. These contacts can be
used to identify:
The inclusion of family
information in the IFSP is
voluntary, not mandatory.
The names and roles of important
people in the family's life.
Regulations do not require that
family members participate in
activities to identify their family's
strengths and needs. Family
information is included in the IFSP
only with the family's consent.
Questions the family would like
answered.
The child's history.
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rJ
A need exists only if the family
feels it exists.
To provide family-centered
services, early interventionists
must recognize the difference
between helping families to identify
their needs and leading families to
agree with the needs they may see.
Only family members can
determine what aspects of their
lives are relevant to the child's
development
The family has the right to decide
what personal family information is
relevant to its child's care. Early
intervention service providers must
respect the decisions a family
makes. Only family information
directly related to the family's
expressed needs should be
discussed. The family should
never feel pressured to share
sensitive, personal information.
Families must have ongoing
opportunities to identify their
evolving needs and concerns.
Family responsibilities and
concerns can change rapidly or
slowly. Family members must be
provided with ongoing
opportunities to share their
thoughts and concerns as they
evolve.
The Role of the Family
in the IFSP Process
The family plays a leading role in the
development of an IFSP, which
provides the infant or toddler the best
possible early intervention program
including:
Referral for Services
Anyone involved with the child (family
members, professionals providing
services to the family, childcare
workers, etc.) can make a referral to
the early intervention system, as long
as the parents give permission. The
first responsibility of the early intervention system is to determine the family
members' concerns and priorities in
regard to their child's development.
Evaluation/Assessment Planning
Evaluation determines if the infant or
toddler is eligible for early intervention, while assessment of the child's
strengths and needs is an ongoing
process. As the child grows and
develops, assessments will change;
and, as the team, including the family,
becomes more comfortable with each
other, additional insights may arise.
In the traditional assessment model,
the family's needs and wants were
not taken into account until after the
service provider completed the
n
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Page 57
assessment. In the IFSP, as outlined
by Part H, the family's needs, wants,
and goals are essential to the
process, and must be identified
before any assessment activities are
planned.
Language associated with the
assessment should reflect family
values and preferences as much as
possible. Some families dislike or
misunderstand the term "evaluation,"
thinking of it as a test of some kind
that may be passed or failed. Service
providers on the team should pay
attention to the language the family
uses, and should feel free to ask the
family what terms they prefer, and
then use those terms throughout the
tenure of their relationship.
The team needs to gather and exchange information in the following
areas when planning an
assessment:
Child characteristics.
Family preferences for
involvement.
Family priorities for both the child
and family.
Child records and other data from
previous assessments or
diagnoses.
Asking parents such questions as
where they would like the assessment
to take place, what activities and toys
their child favors, what time of day their
child naps, who should be present at
the assessment, and what role the
parents prefer during the assessment
(e.g., helping with activities, sitting
quietly beside the child, or carrying out
some of the activities) will ensure that
parents are involved to the extent that
they desire, and that the child will be
treated according to the family's
wishes.
Assessment of a Child's Strengths
and Needs
All assessment activities must be
carried out with the signed informed
consent of the parents. Formal
observations or assessments should
be used only when absolutely
necessary, and then only with the
consent of the parent or legal
guardian. Unless the parents
specifically choose not to be present
at all meetings and assessment
activities, they should to be included
in all team activities.
It is important to assess the child's
strengths, as well as his or her
needs. Early intervention service
providers are often focused on what
the child cannot do, and they may
need help in recognizing what he or
she can do, and what the family has
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6G
learned from living with the child.
Insight about a child's strengths can
be gained by asking parents for
information such as: 1) a description
of the child, or a typical day with the
child; 2) what the child likes to do;
and, 3) recent changes or progress
the child has experienced.
The assessment must focus on the
child's current level of functioning,
including physical, emotional, social,
learning style, language development, and personal independence
abilities. There are many standardized tests, checklists, and observational measures available to gather
this information. The assessment
needs to be tailored to the individual
child, and to the wishes of the family.
Assessment results must always be
shared openly and honestly with all
members of the team. Parents and
service providers discuss the findings
so that everyone has a complete
understanding of the results and
interpretations.
Identification of the Family's
Concerns, Priorities, and Resources
The family's self-identified concerns,
priorities, and resources are shared
with the whole team through informal
discussions, home visits, phone
calls, and any other methods used by
the family.
Development of Outcomes
Outcomes are the changes the family
want to see happen for the child and
the entire family system. Outcomes
can be related to any area of a child's
development or family life. For example, a family's outcomes may include
the development of specific skills
related to eating, playing or dressing,
or the ability of the parents to go out
occasionally while their child is in the
care of someone they trust.
Outcomes, like the other sections of
the IFSP, are written without jargon,
and focus on useful skills.
Implementation and Service Delivery
The implementation of the IFSP
delivers the actual services and supports to meet the needs of the child
and family. As with the assessment
plan, service delivery must be familycentered, responsive to emerging
needs, supportive of family strengths,
and above all, flexible.
The family will decide how involved
they want to be in the actual provision
of services. Some families may want
to be very involved, while others may
choose to be minimally involved. The
degree of involvement may change as
the family's needs change, and the
team must be sure that the family is
supported in its decision, whatever that
decision may be.
Family Collaborations
Activity 3.6
Describe how families are currently involved within your agency or program in each
of these six components of the IFSP process.
Referral for Services
Assessment Planning
Assessment of a Child's Strengths
and Needs
Identification of the Family's Priorities,
Resources, and Concerns
Development of Outcomes
Implementation and Delivery of
Services
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Now think about Polly and her parents. What role is Polly' family playing in the
IFSP process?
Is Polly's service delivery child-, family- or system-centered?
What things can be done to make Polly's service delivery less stressful on her
family?
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6
Notes
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4
While infants and toddlers with
disabilities may require the
combined expertise of
numerous professionals providing
specialized services, the coordination
of both people and services is
frequently overwhelming. For
example, personnel having medical
expertise, therapeutic expertise,
educational/developmental expertise,
and social service expertise
traditionally have been involved in the
provision of services to infants and
toddlers with disabilities and their
families. Each of these service
providers may represent a different
professional discipline and a different
philosophical model of service
delivery. In fact, each discipline has it
own training sequence (some require
undergraduate, while others require
graduate degrees), licensing or
certification requirements (most of
which do not require age specialization for young children), and treatment
modality (e.g., occupational therapists
may focus on sensori-integration
techniques). In addition, many
disciplines have their own
professional organization that
encompasses the treatment needs of
persons across the entire life span,
instead of organizations focused on a
single age group. Nonetheless, as
Team Collaborations
services for young children with
disabilities continue to grow, so too
does the need for professionals.
Table 4-1 contains a list of the professional disciplines most typically
involved in services for young children
with disabilities and their families.
In order to improve the efficiency of
the individuals providing early
intervention, it has been suggested
that services be delivered through a
team approach. A group of
individuals does not become a team
spontaneously. A group becomes a
team when its members work
together to accomplish shared goals.
Team members pool their knowledge
to solve common problems and
implement mutually agreed upon
solutions.
Activity 4.1
Think about your own experiences with groups of people on teams, committees,
or boards. What helped the group function well?
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Table 4-1: Professional Disciplines in Early Intervention
Audiologist
Early childhood special educator
Neurologist
Nutritionist
Nurse
Occupational therapist
Ophthalmologist
Optometrist
Physician
Psychologist
Physical therapist
Social worker
Speech-language pathologist
Vision specialist
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Effective Teams
A truly effective team exists when
members share responsibility for
accomplishing common goals. An
or her concerns, thoughts, and
reactions. There is no single
person who is more important than
any other on an effective IFSP
team.
effective team will:
Have goals which are clearly
understood and communicated to
all team members.
A collaborative philosophy or
mission provides the team's
overall reason for existence and a
focus for its actions. A written
statement of the collaborative
philosophy will clearly delineate the
team's direction. A team will
function effectively to the extent that
its philosophy is clear and
accepted by all of its members.
Recognize the contributions of all
team members.
Effective teams are supportive,
creating an environment where
every team member feels
comfortable and free to express his
Communicate effectively among
members.
Effective communication occurs
when the listener clearly
understands the speaker's
intended message. Team
members communicate effectively
when they listen to what others are
saying and respond using
language that is understandable
and jargon free. While jargon
makes it easy for service providers
within a particular discipline to
communicate with each other, it
makes it difficult for a team
composed of multiple disciplines
and family members to
communicate effectively.
Miscommunications can occur
when individual team members
assign different meanings to the
same terms.
The highest level of achievement is attained
when the whole team is committed to the task,
and full use is made of each member's talents.
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Page 66
Activity 4.2
Use the chart below to determine if a group you are in is functioning as a team.
GROUPS
Members think they are grouped together
for administrative purposes only.
Individuals work independently; sometimes
at cross purposes with others.
Members tend to focus on themselves
because they are not sufficiently involved
in planning the unit's objectives. They
approach their job simply as a hired hand.
Members are told what to do rather than
being asked what the best approach would
Members contribute to the organization's
success by applying their unique talent
and knowledge to team objectives.
Members work in a climate of trust and are
encouraged to openly express ideas,
opinions, disagreements and feelings.
Questions are welcomed.
be. Suggestions are not encouraged.
O Members distrust the motives of
colleagues because they do not understand the role of other members. Expressions of opinion or disagreement are
considered divisive and non-supportive.
0 Members are so cautious about what they
say that real understanding is not possible.
Game playing may occur and communications traps be set to catch the unwary.
Members may receive good training but
are limited in applying it to the job by the
supervisor or other group members.
0 Members find themselves in conflict
situations which they do not know how to
resolve. Their supervisor may put off
intervention until serious damage is done.
Members practice open and honest
communication. They make an effort to
understand each other's point of view.
Members are encouraged to develop skills
and apply what they learn on the job.
They receive the support of the team.
Members recognize conflict is a normal
aspect of human interaction but they view
such situations as an opportunity for new
ideas and creativity. They work to resolve
conflict quickly and constructively.
Members participate in decisions affecting
the team but understand their leader must
make a final ruling when the team cannot
decide, or an emergency exists. Positive
results, not conformity are the goal.
0 Members may or may not participate in
decisions affecting the team. Conformity
often appears more important than
positive results.
From:
TEAMS
Members recognize their interdependence
and understand both personal and team
goats are best accomplished with mutual
support. Time is not wasted struggling
over "turf' or attempting personal gain at
the expense of others.
Members feel a sense of ownership for
their jobs and unit because they are
committed to goals they helped establish.
Maddux, R.E. (1988). Team building: An exercise in leadership. Crisp Publications
Team Collaborations
Page 67
6S
The types of teams that typically function within service delivery models for
young children with disabilities have
been identified as multidisciplinary,
interdisciplinary, and transdisciplinary. While the transdisciplinary team
model has been identified as the ideal
for early intervention, other team
models have also been identified and
used for service delivery. A number of
components that differentiate between
types of teams have been identified,
including the role of the family on the
team, the mode of communication
among team members, the roleclarification process, and the mode of
intervention. Table 4-2 provides an
overview of the three team models.
Table 4-2: Team Models
Guiding
Philosophy
Family
Participation
Assessment
MULTIDISCIPLINARY
Team members
recognize the
importance of
contributions from
other disciplines.
Family meets with
individual team
members.
Separate assessments
by team members.
Goal Setting
Team members
develop separate
plans for their
discipline.
Treatment
Team members
implement the part
of the service plan
related to their
discipline.
Informal lines.
Lines of
Communication
INTERDISCIPLINARY
Team members are
TRANSDISCIPLINARY
Team members make
willing and able to
a commitment to
develop, share, and
teach, learn, and work
be responsible for
together across
providing services that discipline boundaries
are a part of the total
to implement a
service plan.
unified service plan.
Family meets with
Family is full, active,
team or team
and participating
representative(s).
member of the team.
Separate assessments Team members and
by team members;
family plan and conmay use common
duct a comprehensive
tool.
assessment together.
Team members share Team members and
their separate plans
family develop a serwith one another.
vice plan based upon
family concerns, priorities, and resources.
Team members
A primary service
implement their secprovider is selected to
tion of the plan and
implement the plan
incorporate other sec- with the family.
tions where possible.
Periodic case-specific Regular team meeting
team meetings.
where continuous
transfer of information,
knowledge, and skills
are shared among
team members.
Collaboration: Putting the Puzzle Pieces Together
Page 68
7 6'
Multidisciplinary Teams
intervention, and follow-up with the
family through an "informing"
conference. There is minimal
integration across the disciplines,
and the family members are passive
recipients of information about their
child. This model makes it very
difficult to develop coordinated
integration across the disciplines,
and the family members are passive
recipients of information about
comprehensive programs for families
and their children. Figure 4-1 contains an overview of this type of team.
On a multidisciplinary team, the
professionals represent their own
discipline and provide isolated
assessment and intervention
services. This includes individual
report writing, individual goal setting,
and discipline-specific direct
intervention with the child and/or
family. The parent is invited to share
information with the professionals,
and the professionals in turn share
the information from assessment,
Figure 4-1: Flow of Information on a Multidisciplinary Team
Assessment:
SW
ST
OT
1
I
1
Post Assessment:
SW
ST
OT
Intervention:
SW
OT
1
I
ST
PT
RN
T
1
I
PT
RN
T
1
PT
RN
I
T
Key:
SW = Social Worker
ST = Speech Therapist
OT = Occupational Therapist
FT = Physical Therapist
RN = Registered Nurse
= Teacher
T
Report findings and program plan to parents
Team Collaborations
Page 69
Interdisciplinary Teams
On an interdisciplinary team, each of
the professionals carries out specific
disciplinary assessments and
interventions. The degree of
communication between the
professionals and the family
represents a formal commitment to
the sharing of information throughout
the process of assessment,
planning, and intervention. However,
the assessments and interventions
are usually implemented by
individuals representing separate
disciplines. In many cases, the
parents are active members of the
team, but their input is generally
considered secondary in importance
to the material collected by the
professionals. Figure 4-2 contains
an overview of this type of team.
Figure 4-2: Flow of Information on an Interdisciplinary Team
Assessment:
SW 4-* ST 4-401 4--P PT 4 RN 4-9T
Post Assessment:
SWII-ST I-00T 4- PT 4-0 RN 4-0T
Intervention:
SW 4-oST 4-40T I- PT
Key:
SW = Social Worker
ST = Speech Therapist
OT = Occupational Therapist
PT = Physical Therapist
RN = Registered Nurse
T
= Teacher
Chi Id
Family
Collaboration: Putting the Puzzle Pieces Together
Page 70
'7 2
RN HT
Transdisciplinary Teams
disciplinary approach involves a
greater degree of collaboration than
other service models and, for this
reason, may be difficult to implement.
It has, however, been identified as
ideal for the design and delivery of
services for infants and toddlers with
disabilities receiving early childhood
intervention. Figure 4-3 contains an
overview of this type of team.
The transdisciplinary approach
originally was conceived as a
framework for professionals to share
important information and skills with
primary caregivers. This approach
integrates a child's developmental
needs across the major
developmental domains. The trans-
Figure 4-3: Flow of Information on a Transdisciplinary Team
Assessment:
1 SW
4
ST
4
OT
4
PT
T
RN
4-
P
4
Post Assessment:
In terven tio n:
Key:
SW = So cial Worker
ST = Speech Therapist
OT = Occupational Therapist
PT = Physical Therapist
RN = Registered Nurse
= Teacher
T
P
= Parent
PCP = Primary Care Provider
Team Collaborations
Page 71
'7 3
A transdisciplinary approach requires
the team members to share roles
and systematically cross discipline
boundaries. The primary purpose of
the approach is to pool and integrate
the expertise of team members so
that more efficient and comprehensive assessment and intervention
services may be provided. The
communication style in this type of
team involves continuous give and
take between all members
(especially the parents) on a regular,
planned basis. The team members
teach, learn, and work together to
accomplish a common set of
intervention goals for a child. Role
differentiation between disciplines is
defined by the needs of the situation,
as opposed to discipline-specific
characteristics. Assessment,
intervention, and evaluation are
carried out jointly by designated
members of the team. This usually
results in a decrease in the numbers
of service providers that interact with
the child on a daily basis. Other
characteristics of the transdisciplinary
approach are joint team effort, joint
staff development to ensure
continuous skill development among
members, and role release.
Role release refers to a sharing and
exchange of certain roles and
responsibilities among team
members. It specifically involves
sharing of some functions
traditionally associated with a specific
discipline. For example, the physical
therapist may provide training and
support to the early childhood teacher
to enable her to position a child with
physical disabilities. Likewise, the
nurse may provide training to all team
members to monitor a child's seizure
activities. Effective implementation of
the role release process requires
adequate sharing of information and
training. Team members must have
a solid foundation in their own
discipline combined with a
knowledge base that recognizes the
roles and competencies of the other
disciplines represented on the team.
All team members have unique skills and
information they can share with others,
therefore role release must occur across all
team members.
Collaboration: Putting the Puzzle Pieces Together
Page 72
74
Activity 4.3
Write your job title, discipline and/or role on a team on a piece of paper. If you are
in a group, share it with others. Then throw the piece of paper away. How do you
feel? Would it help team development if we could "release" our role?
There are four assumptions that
govern the transdisciplinary team
model:
1.
Natural environments are the best
place to assess and develop
children's abilities.
through natural routines and
activities.
3. Discipline-specific goals and
objectives should be implemented
throughout the day and in all the
settings in which the child
functions.
2. Children should be taught clusters
of skills needed for everyday living.
These skills are best taught
4. Skills must be taught and
reinforced in the settings in which
they naturally occur.
3.1\
Team Collaborations
Page 73
75
Activity 4.4
List some advantages of the transdisciplinary approach in early intervention that
you recognize.
In the transdisciplinary approach, the
child's program is primarily
implemented by a single person or a
few persons with ongoing assistance
provided by team members from the
various disciplines. This strategy
facilitates the delivery of appropriate
interventions across developmental
domains throughout the child's day,
as opposed to having a specific
speech therapy session, fine motor
occupational therapy session, etc.
This does not mean that different
interventionists stop providing direct
services to children. In reality, in
order for early intervention to be
effective, all service providers need to
maintain direct contact with the child
with a disability. The provision of this
team model should never be used as
a strategy to justify the reduction of
staff.
Collaboration: Putting the Puzzle Pieces Together
Page 74
7
There are a number of factors a
transdisciplinary team must consider
as it prepares to assign roles and
responsibilities, including:
an open and trusting relationship
with the family, a supportive and
integrated team from which to
receive guidance, and an interest
in providing developmental support
and intervention to the child.
The needs of the child and family.
When assigning roles and responsibilities for service delivery, the
intervention team's first consideration should be the family's needs
and concerns related to the
development of the child. The
competencies of the individuals
selected to implement interventions should fit the child's needs
and abilities. When assigning
roles, the team should consider
carefully the competencies and
interests of individual service
providers rather than the specific
skills associated with a particular
discipline.
The skills and knowledge of
individual team members.
Service providers should be selected who have the skills needed to
address multiple needs. For
example, a special educator may be
selected as the primary interventionist because he or she can address
a particular child's cognitive, social,
and language needs. The speech
pathologist may serve as a consultant, helping the special educator
embed the child's communication
goals into daily activities.
The availability of service
providers.
For example, a speech pathologist
is trained to work effectively with
children who have speech and
language impairments. However,
if the child has other needs that
impact his or her speech development, the speech pathologist must
also be able to attend to those
needs; and, at times, those needs
might overlap into a different
developmental area, such as
motor or cognition. The most
important criteria for selecting
service providers is that they have
One of the assumptions of the transdisciplinary model is that children
should be taught skills needed for
everyday living. These skills are best
taught through natural routines and
activities. Some service providers,
who have the competencies to
address a child's needs, may not
have the access to the child's natural
environments. For example, a
physician may be the most familiar
and influential service provider for a
Team Collaborations
Page 75
"1
family with a child who has medical
needs. However, physicians typically
work in very specialized and isolated
settings. Therefore, an intervention
team might select a nurse as the
primary person responsible for
implementing the intervention program. The physician could consult
with the team on how to meet the
child's healthcare needs in the
home and other community settings.
Additionally, the physician may
continue to provide direct services by
monitoring the child's health and
dispensing medical treatment.
Although collaborative transdisciplinary service delivery teams appear
simple in concept, implementation of
this strategy can be difficult because of
the differences between it and the
more familiar structured, discipline
specific team structures. Barriers to
the effective use of this service delivery
strategy have been identified as
philosophical, professional, interpersonal, and administrative. In
particular, the time commitment
required to implement a collaborative
team model effectively across the
necessary disciplines and individuals
may be difficult for some early
childhood programs. Additionally,
many early childhood intervention staff
may not have expertise or experience
in a collaborative, transdisciplinary
team approach, thus diminishing the
feasibility of such a strategy.
Team Process
Whether developing an assessment
protocol or an IFSP, the common denominator to team effectiveness is
the use of a functional process. Unfortunately, many service providers
lack the skills necessary to maintain
an effective team process. These
skills include the ability to overcome
barriers, the motivation to accomplish
the team's mission and goals, and
the perseverance to maintain positive
interactions. Five factors that affect
the development and maintenance of
a team have been identified. It is
important for members to be aware of
these factors and to understand how
they influence team development and
maintenance.
Team Composition and
Representation
Many factors influence the
performance and development of the
team. Program or agency affiliation of
the members exerts a strong
influence on the team process. For
example, the resources available to a
team depend on the participating
programs and/or agencies. These
resources can include money,
administrative support, and time.
Teams with fewer resources need to
be more creative in identifying and
implementing solutions.
Collaboration: Putting the Puzzle Pieces Together
Page 76
Additionally, a group's size and
membership composition will affect
collaborative outcomes. Different
teams have variations in structure, and
all agencies and/or disciplines will not
necessarily be represented on every
team. The number of personnel and
the variety of roles each play may vary
dramatically, depending on the needs
of the child and his or her family and
on the purpose of the team.
Team Goals
Teams must devote time to identifying
their goals and objectives. A truly
effective team is made up of members who share responsibility for
accomplishing common goals. An
effective team:
Adopts goals that are clearly
understood, and communicated
to all team members.
A collaborative philosophy or mission is the team's overall reason
for existence and it provides the
team with a focus for its actions. A
written statement of the collaborative philosophy clearly delineates
the team's direction. A team
functions effectively to the extent
that its philosophy is clear and
agreed upon by all participants.
Activity 4.5
List the members of the early intervention team on which you currently serve.
Team Collaborations
1
Page 77
7Z
Shares ownership of the goals
and participates in setting them.
All team members (including the
family) need to feel that their input is
valued. This helps to ensure that
the goals are clearly understood by
everyone on the team.
-:- Delineates goals that are operationally defined and measurable.
understanding of what is expected,
and how success will be
determined and measured.
Conveys individual or personal
objectives with one another.
Since teams are comprised of
individuals, it is important to
respect the human elements of any
team.
Goals must be written in such a
way that everyone has a clear
Activity 4.6
List and describe the goals of the early intervention team to which you belong.
Collaboration: Putting the Puzzle Pieces Together
Page 78
Roles Within the Team
The members of a team are unique
individuals who possess different
skills, knowledge, and personalities.
To be effective, each team member
must be assigned a role and clearly
understand the identified
responsibilities. Ambiguity is a major
cause of conflict, therefore team
members must continually clarify their
current roles, including that of the
leader.
In addition to the typical professional
roles, responsibilities, and contributions of team members, members
will assume other roles with regard to
team development, maintenance, and
problem solving. These roles, or
functions as they are sometimes
called, must occur within the group in
order for the team to progress
effectively.
To facilitate an effective team
process, every team member has a
responsibility to:
Prepare family members for their
role on the team and encourage
their active participation.
Share their expertise with other
team members.
Offer recommendations for
addressing a service or a child's
need from his or her own
perspective or area of expertise.
Listen actively and use good
communication skills. Be clear
and concise when reporting
information, and avoid the use of
jargon that other team members
may not understand.
Recognize the contributions of
other team members, and
encourage the sharing of
information.
Team Work Style
The team's work style affects the
team's development and overall
effectiveness. Effective team
decisions result from the use of a
systematic problem solving process.
If that process occurs haphazardly,
the team is less likely to make
appropriate decisions. The
probability of an effective outcome is
increased when a formalized,
systematic process of problem
solving is applied. Systematic
problem solving ensures that
members are satisfied with, and
committed to, team decisions.
Team Collaborations
Activity 4.7
Describe the problem-solving process your team currently uses.
The literature offers a variety of
problem-solving models. One
model, PROJECT BRIDGE,
recommends a five-step process
which serves two functions. In the
first function, each step serves as a
check point for problem solving.
Concurrently, in its second capacity,
the process acts as an evaluation
tool to compare team ideas and
practices to the model of best
practices to exemplary services in
the field of early childhood education.
The steps include:
Problem formulation and
information gathering.
Describe the problem in clear and
observable terms. Identify
resources. Throughout, focus on
facts, rather than opinions.
Collaboration: Putting the Puzzle Pieces Together
Page 80
8r
Generating proposals for solution.
Generate as many alternatives as
possible. Withhold judgment and
build positively on all suggestions.
+ Selecting alternatives and testing
solutions.
Explore the available resources,
and evaluate the alternatives in
order to attain the best solution.
Decide whether or not the solution
makes good use of the resources,
is cost effective, and fits the needs
and goals of the child and family.
Action planning and
implementation.
Assign specific responsibilities to
individuals, determine timelines,
and develop procedures to monitor
the plan. Communicate the
finished document to all relevant
personnel.
Monitoring and evaluation.
Develop a scheme to judge the
success of any decisions. Include
in the scheme a unit of evaluation,
and how often to evaluate. Modify
the plan as needed.
Planned meetings are the hub of
the team process. The team must
work face-to-face in order to
function, and the planned meeting
serves as a vehicle for facilitating
the completion of the team's tasks
and the achievement of its goals. A
well-functioning team meets at
regularly scheduled times and all
team members attend. An effective
team meeting begins with a
purpose or goal identified in a
written agenda, and includes both
general team and specific individual charges and problem-solving
tasks. Distribute the agenda in
advance of the meeting so that team
members can prepare for
discussion of the issues.
Previously established meeting
roles (i.e., facilitator, recorder,
timekeeper, etc.), and rules
(including policies of confidentiality,
timeframes for topics, and orders
for procedure, etc.) will expedite
meeting activity. Keep a written
record of the attendees and the
meeting business to document
recommended actions, to provide
follow-up, and to track progress. A
well-planned meeting ensures that
communication between the team
members evolves into a habit.
Team Collaborations
-r
Page 81
Activity 4.8
Use the five-step problem-solving process of PROJECT BRIDGE to solve some of
the concerns of Polly's parents.
Problem formulation
and information gathering
Generating proposals
for solution
Collaboration: Putting the Puzzle Pieces Together
Page 82
8 Lip
Selecting alternatives
and testing solutions
Action planning
and implementation
Monitoring
and evaluation
Team Collaborations
Team Leadership
A team is comprised of individuals
who are products of their past
experiences and, consequently,
bring different attitudes, values, and
beliefs with them to the team.
Individuals also bring expectations
about the team: how it should
function and what it should
accomplish, for example. The
personalities of the team members
may ultimately determine the team's
effectiveness.
the formal leadership. Often, both
types of leaders operate
simultaneously. This can
precipitate problems if the team
members ignore the distinctions
between informal and formal roles
or misappropriate the functions of
each. A team leader has a number
of roles or functions with regard to a
team's development. The main
function of the leader is to focus the
team on its collective responsibility,
which is to ensure that collaborative
early intervention services are
delivered effectively.
Team leaders must adapt their style
to meet the diverse needs and
styles of the individuals who make
up the group. The team leader
should foster a climate in which all
members feel free to contribute their
ideas. In this atmosphere, the
members can express differing
viewpoints and proposed solutions.
Teams may have formal leaders
who are assigned, appointed, or
elected by group endorsement.
Informal leaders may emerge
because of their influence. The
team may accept or propel a person
into an informal leadership role for a
number of reasons: his or her
knowledge, skill, personal qualities,
or because of the ineffectiveness of
As previously stated, the leadership
role within an early intervention
service delivery team should be
assumed by the service coordinator.
The service coordinator has the
responsibility for ensuring that the
team members put aside their
individual agendas in order to focus
on the needs of the family and child.
The service coordinator will have to
facilitate the communication
process so that team members
develop mutual goals and
strategies with the family.
Communication is one skill which
all team members will have to
emphasize to develop an effective
and functional team process.
. Collaboration: Putting the Puzzle Pieces Together
Page 84
Activity 4.9
Who should be Polly's service coordinator, and how could the team organize her
service delivery plan to create a more transdisciplinary model?
Team Collaborations
Page 85
Notes
Collaboration: Putting the Puzzle Pieces Together
Page 86
SKILLS FOR
COLLABORATIONS
Collaborative service delivery
models yield a broad range of
benefits. The most important
benefit is identified as the improvement in service delivery to children with
disabilities and their families. Collaborative efforts enable parents and
service providers to efficiently locate
and manage the services required by
the family. Yet, service providers, as
well as the community, gain from the
collaborative model with a more
efficient and effective use of available
resources--manpower, material and
money--across agencies.
The mere recognition of the benefits
has not resulted in effective
collaborations. Today, collaborative
early intervention service systems
remain an elusive goal for many
states. Fragmented and isolated
services continue to occur by default,
rather than by choice, because
professionals have not had the
opportunity to learn and practice
alternative ways of working together.
Communication across disciplines is
one such skill that is key to the
collaborative process.
Skills for Collaborations
Page 87
The Communication
Process
books, and taped lectures are
examples of unilateral
communication.
On an average, individuals spend
70% of their waking hours communicating with others. Communication is
fundamental to all relationships, and
the substantial component of human
relationships. Easily taken for granted, good communication between
individuals is a complete and intricate
process which requires constant
attention and consistent application.
Directive communication is faceto-face, but again is only a oneway sharing of information.
Examples include lecturing,
directing, and explaining.
Communication is the process of
exchanging information between two
or more people. It is not only the exchange of information that is important, but the process by which the
information is exchanged. The communication process is impacted by
circumstance, situation, and context.
It is also affected by environment: the
physical, social, and emotional conditions. The more complex the task,
information, or goals, the more
important communication processes
are to successful outcomes.
During the process of communication, information can be shared in a
unilateral, directive, or transactional
manner.
Unilateral communication is oneway, and involves no face-to-face
contact. Films, videos, letters,
Transactional communication is
face-to-face and two-way. All
participants in the interaction are
involved in the exchange; all send
and receive messages, and all
speak and listen. The purpose of
transactional communication is to
arrive at shared meanings.
Components of
Communication
In order for good communication to
occur, we need a sender, a message,
and a receiver. The sender must be
able to formulate the information to be
transmitted, and to evaluate the
importance of that information to the
situation at hand. He or she then
converts the message into verbal and
nonverbal messages (nonverbal
messages are usually unconscious).
Finally, he or she sends the message
in a way that is appropriate for the
receiver in terms of form of expression and amount of information.
Collaboration: Putting the Puzzle Pieces Together
Page 88
9G
The receiver must be able to listen
actively, select what is important in
the verbal message, and recognize the messages being
conveyed nonverbally. The
receiver's state of mind and level
of comfort will impact one's ability
to attend to and receive
information. The receiver then
interprets the message, either
understanding or misunderstanding it. Accurate interpretation
is based on self-awareness, a
desire to understand, and a
willingness to ask for clarification.
After asking clarifying questions
and gaining all the important
information, the receiver can form
an opinion and a response. It is
difficult not to jump to opinions
and conclusions before all the
information is clearly understood.
let the speaker know through
verbal and nonverbal feedback
what was heard and how it was
understood and evaluated. In this
step, the receiver becomes the
sender.
In any spoken message,
approximately 7% of the meaning
is carried by the words used.
Another 38% of the meaning is
transmitted through the vocal
behavior of the speaker, including
the voice quality, intonation, rate of
speech, etc. The remaining 55%
of meaning is conveyed by
nonverbal behaviors. For
example, if someone says, "I'm
really glad to be here," and the
person is standing with eyes
downcast, shoulders stooped,
brow wrinkled, and arms crossed,
we would have a hard time
believing that the sender was
really glad to be there!
The next step for the receiver is to
respond to the message, and to
Communication
occurs
when
the
right
person says the right thing, to the right
people, at the right place, at the right time, and
in the right way to be heard and understood,
and to produce the desired response.
Nido R. Qubein
Skills for Collaborations
<> Activity 5.1
Think of two or three statements or remarks heard in your professional setting that
bother you (e.g., "That family will never be able to get their act together!"). What is it
that disturbs you about this statement? What does the statement imply to you?
Why does that implication bother you? Imagine the possible frames of reference
someone who makes such a statement may have. Try to generate four or five
different frames.
Collaboration: Putting the Puzzle Pieces Together
Page 90
Communication
Strategies
Good communication builds trust
because the listener interprets the
message exactly as the speaker
intended. This means the speaker
must be skilled at both verbal and
nonverbal message delivery.
Verbal Communication
Words must be clear and
understandable. To accomplish this,
the early interventionist should:
Clarify words that may have
more than one meaning.
For example: When communicating with a parent, an inappropriate statement would be, "At the
IFSP meeting, you will get the
results of the OT's assessment
and we will discuss options for an
oral motor stimulation."
A clearer, appropriate statement
could be, "We will be meeting to
discuss Melissa's feeding needs.
Jane Brown, the occupational
therapist, will explain what she
learned by watching Melissa. We will
then be able to discuss how to help
Melissa strengthen and coordinate
her sucking and swallowing so she
can learn to drink from a bottle."
Nonverbal Communication
For example, saying a child's
performance is "average", could
mean all children the same age as
the child are expected to do as
well, that 50% of the children his
age would be able to do it, or that it
is acceptable for the child's age.
Avoid using professional jargon.
Parents do need to learn the
terminology relating to their own
child's disability, but this should be
introduced and explained over
time. Whenever possible, common words should be used and all
abbreviations should be explained.
A lot of communication can be
transmitted nonverbally, sometimes
unintentionally. Early interventionists
should:
Monitor voice tone so it corresponds with the verbal message.
Supportive and helpful messages
will not be heard if an angry tone of
voice is used.
Speak clearly.
Be careful not to mumble or use a
voice that is too soft or booming.
Skills for Collaborations
Pace speech.
Listening Skills
Be careful not to talk too quickly or
too slowly.
In order to complete a communication
interchange that is helpful and
productive, early interventionists
should also be able to demonstrate
effective listening skills with parents.
To communicate interest in, and
acknowledgment of, what is being
said, early interventionists should:
Monitor facial expressions to
minimize misinterpretations.
If a person's facial expression
appears tired and bored, it may be
interpreted to mean indifference or
intolerance. If someone's
expression is always smiling and
happy even when discussing
difficult problems, it could be
interpreted as superficial,
insincere, and unempathetic.
Use open-ended questions to
clarify information.
Close-ended questions (answered
by one word or yes/no) should be
avoided except to clarify a point.
For example:
Use appropriate eye contact.
Eye contact indicates interest and
attention.
Open-ended:
How do you think Billy's
development will be affected by his
cerebral palsy?
+ Use appropriate gestures.
Nonverbal communication can
deliver the message. Be aware of
any distracting or repetitive
gestures that you use.
Close-ended:
Do you understand how Billy's
development will be affected by
his cerebral palsy?
Use subtle encouragers.
Monitor posture.
Posture can indicate interest.
Constant changes of position
suggest restlessness and
boredom.
Head nods, "umhmms," smiles or
other facial expressions, and
comments such as "Tell me more"
can be used to indicate interest
and a desire to hear more.
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94
Listen, and do not talk too much.
Reflect the parents' feelings.
Interruptions, unsolicited advice,
and comments that do not relate to
the topic indicate a lack of interest
in what is being said and may be
interpreted as being critical. This
may discourage parents from
saying more.
Reflecting feelings is more difficult
than repeating facts, but it is a
critical part of effective listening.
Paraphrase and summarize
comments.
It is important to periodically review
what has been said. This step
assures the parents that the
content, sequence, and facts have
been heard correctly. It is particularly important to do this at the end
of the meeting or conversation.
Clarify any words, time frames, or
expressions that may be misinterpreted.
For example, if a father says his son
has been hyperactive since he was
a baby, ask him to give you some
examples of the son's hyperactivity.
Also, clarify the child's age. In their
family, does "baby" mean infancy,
toddler period, or an age older than
age two?
Repeat back what was heard.
By simply repeating the information
given by the parent, acknowledgment and acceptance is
communicated.
Active listening is a skill that can be
developed to improve the listener's
ability to hear and interpret the
message accurately. The active
listener provides feedback to the
speaker about what the listener is
understanding, thereby allowing the
speaker to agree that what was
understood is what was intended, or,
if not, to clarify the speaker's intention.
Active listening communicates
respect, understanding, empathy, and
acceptance.
People can often solve their own
problems if given the chance.
Skills for Collaborations
9
Activity 5.2
For this activity, choose a partner. Decide who will be the message sender and
who will be the message receiver. The message sender should paraphrase the
situation facing Polly's family. The receiver should take notes on the verbal and
nonverbal messages that facilitate and inhibit the communication process.
Facilitators
Inhibitors
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Page 94
Barriers to
Communication
Communication always contains an
element of risk, thereby inhibiting the
exchange of information. Often a
dilemma exists between an individual's
need to communicate and be heard
and fear of rejection, failure, or ridicule.
People may deal with their fears by
keeping silent, censoring what they
say, pretending to agree, or phrasing
their thoughts in vague or ambiguous
ways. All of these behaviors interfere
with the communication process. On
teams, the amount of risk is compounded by the number of people present.
Sometimes people assume there is no
need to talk ("If it isn't broken, don't fix
it"), or that there is no need to listen
("She's talking to the PT; it really
doesn't concern me"), or they assume
there is no need to respond.
One-way communication, as in lecturing or telling someone how something
should be, can also inhibit communication by sending mixed messages.
Vocal expressions that block effective
communication include speaking in a
loud and fast voice, and using high or
aggressive tones, and using
infrequent pauses.
On the receiver's end, a noisy or
distracting environment, daydreams,
simultaneous thoughts about a
response to the speaker's message,
and emotional distraction are the four
elements most likely to prevent the
listener from accurately receiving the
message. People need to take
responsibility for their communication
by minimizing distractions when
possible, or postponing communication until a later time when the distractions will not be a factor. Listeners
need to pull themselves back from the
tendency to daydream, and make an
effort to concentrate on the speaker.
Sometimes stopping to take a break,
taking notes, asking questions, or
simply shifting one's body position can
help. The listener needs to let the
speaker complete the message
before considering a response.
Often it is difficult for us to listen for a
number of reasons. We are not
taught to listen, but rather to express
our own thoughts and opinions.
Assertive communication is rewarded
in many arenas, and sometimes
people are so busy talking that they
are unable to listen. Many times we
prejudge the speaker, and our preconceived notions make it difficult for
us to take the person seriously or to
really listen to what he or she has to
say. It is important for us to learn to
be aware and respectful of diverse
interests, opinions, and values,
including those that may be very
different from our own.
Skills for Collaborations
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97
Activity 5.3
Choose someone to tell a story to about "my first day at my current job" or "why I
became an early interventionist." Then ask the listener to repeat back to you the
story as they heard it. Both of you then fill out the following checklist on your
communication skills: evaluating them as you were telling the story (presenting)
and hearing it back (receiving).
Effective Communication Self Review
PRESENTING INFORMATION
Verbal Messages:
While presenting information to the listener I clarified the meaning of
any word that could have more than one meaning.
I avoided professional jargon.
Nonverbal Messages:
I tried to be aware of my tone of voice and kept it consistent with the
verbal message.
I spoke clearly at all times.
I paced my speech at all times.
Body language:
I tried to keep my facial expression consistent with the verbal message.
I used eye contact when appropriate.
I remained aware of my use of gestures, posture, and position at all
times.
RECEIVING INFORMATION
To communicate interest:
I used open-ended questions instead of close-ended whenever
possible.
I did little talking and more listening.
To communicate understanding:
I asked for clarification on points that were unclear.
I reflected facts and feelings back to the speaker.
I paraphrased and summarized the speaker's comments.
Collaboration: Putting the Puzzle Pieces Together
Page 96
YES
NO
Trust Building
understandings, and helps each
team member gain insight into the
values, experiences, and attitudes of
others.
Communication is facilitated when
the people communicating: 1) trust
one another; 2) feel confident that they
share the same goals; 3) work
together in the service of families;
and, 4) deal openly with any disputes
that may arise. When this occurs,
people feel comfortable asking
questions, clarifying information,
providing honest feedback,
challenging assumptions, admitting
that they do not have all the answers,
and deciding together on the best
course of action. When people are
comfortable with each other, there is
tacit permission to disagree, ask
questions, and not have all the
answers. Each member of the group
feels respected, listened to, and
valued.
Negotiation and
Conflict Resolution
Skills
During the collaborative process,
communication may result in conflict.
Conflict is any situation in which one
person or group perceives that
another person or group is 'interfering
with his or her goal attainment.
Conflict is a natural part of human
interaction and should not be feared,
but rather, managed. It is possible for
disputing parties to have all of their
needs met in a win/win resolution.
The development of trust is a slow
process. Someone takes a risk by
disclosing some small thing; the
team is supportive, the climate is
comfortable, and people learn that it
is okay to take risks. Gradually, the
risks become larger, as people
become more secure in their belief
that they will be supported and respected by the other team members.
People tend to approach conflict in a
variety of ways. There are five
common styles of conflict
management, each of which presents
benefits and drawbacks. The style of
conflict management used in a
situation often depends on the
content and context of the issue.
One style of conflict management is
the competitive style. This style is
characteristic of people who tend to
overpower others with whom they
have a conflict. Their goal is to win,
regardless of possible negative
This kind of open communication
fosters effective problem solving,
demonstrates empathy and
acceptance, minimizes mis-
Skills for Collaborations
9
consequences. This may be an
appropriate style to utilize when there
are ethical concerns or when one is
certain of being right. However, some
pitfalls of the competitive style are
that others may stop engaging in
meaningful interactions and
collaborative relations can be
seriously inhibited or destroyed.
Avoidance, a second style of conflict
management, occurs when people try
to avoid conflict by ignoring
discrepancies between their own
goals and those of others. When
conflict is emotionally laden and
people need time to regain their
composure, avoidance may be a very
appropriate and sensitive method for
handling conflict. However, this
approach can give a false sense that
all is well. By not addressing the
issue directly, conflict can continue to
plague the group and may escalate
as the result of inaction.
People who put aside their own
needs in order to ensure that others'
needs are met are engaging in an
accommodating style of conflict
management. Accommodating is
appropriate when the conflict is
relatively unimportant or when you are
unable to alter an adversarial
situation. The negative ramifications,
however, can prove very frustrating.
Frequent accommodation may result
in others devaluing your ideas over
time and may cause you to feel that
others are taking advantage of you.
A less surrendering style of conflict
management is compromising. In
the compromising style, people make
concessions on an issue while
asking others to do the same. This
can be a very useful approach when
the discussion has reached a
deadlock. Although a benefit of this
style is that the end result is usually
acceptable to all, compromising falls
short of meeting the needs of all.
Certainly the most desirable style of
conflict management is collaborative
problem solving. In this style, people
utilize a high degree of both assertion
and cooperation. Although the
collaborative style tends to be timeconsuming and requires a trusting
rapport among professionals, the
benefits provided bring new and
creative solutions to problems. The
collaborative process requires that all
members clarify the issues and
commonly determine the goals. This
shared commitment to collaboration
results in less conflict and greater
satisfaction for those involved.
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100
Activity 5.4
Use the following questionnaire to see what strategies you use to manage conflict.
THOMAS-KILMANN CONFLICT MODE INSTRUMENT*
Consider situations in which you find your wishes differing from those of another
person. How do you usually respond to such situations? Following are several
pairs of statements describing possible behavioral responses. For each pair,
please circle the "A" or "B" statement that is most characteristic of your own behavior. In many cases, neither the "A" nor the "B" statement may be very typical of
your behavior; but please select the response that you would be more likely to use.
A
1.
There are times when I let others take responsibility for solving the problem.
Rather than negotiate the things on which we disagree, I try to stress those
things upon which we both agree.
A I try to find a compromise solution.
B.
I attempt to deal with all of his/her and my concerns.
A I am usually firm in pursuing my goals.
B.
I might try to soothe the other's feelings and preserve our relationship.
A I try to find a compromise solution.
B.
I sometimes sacrifice my own wishes for the wishes of the other person.
A I consistently seek the other's help in working out
a solution.
B.
I try to do what is necessary to avoid useless tensions.
A I try to avoid creating unpleasantness for myself.
B.
I try to win my position.
A
try to postpone the issue until I have had some time to think it over.
B.
give up some points in exchange for others.
A I am usually firm in pursuing my goals.
I attempt to get all concerns and issues immediately out in the open.
A
feel that differences are not always worth worrying about.
B.
I make some effort to get my way.
A
am firm in pursuing my goals.
I try to find a compromise solution.
B.
2.
3.
4.
5.
6.
7
8.
g.
10
.
*Thomas/Kilmann, Thomas-Kilmann Conflict Mode Instrument, Copyright 1974, Xicom,
Inc., Tuxedo, New York.
Skills for Collaborations
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10
11
.
A
A
I attempt to get all concerns and issues immediately out in the open.
I might try to soothe the other's feelings and preserve our relationship.
I sometimes avoid taking positions which would create controversy.
I will let the other person have some of his/her positions if he/she lets me have
some of mine.
I propose a middle ground.
I press to get my points made.
I tell the other person my ideas to ask for his/hers.
I try to show the other person the logic and benefits of my position.
I might try to soothe the other's feelings and preserve our relationship.
I try to do what is necessary to avoid tensions.
I try not to hurt the other's feelings.
I try to convince the other person of the merits of my position.
I am usually firm in pursuing my goals.
I try to do what is necessary to avoid useless tensions.
If it makes other people happy, I might let them maintain their views.
I will let other people have some of their positions if they let me have some of
mine.
I attempt to get all concerns and issues immediately out in the open.
I try to postpone the issue until I have had some time to think it over.
I attempt to immediately work through our differences.
I try to find a fair combination of gains and losses for both of us.
In approaching negotiations, I try to be considerate of the other person's wishes.
I always lean toward a direct discussion of the problem.
I try to find a position that is intermediate between his/hers and mine.
B.
I assert my wishes.
A
I am very often concerned with satisfying all our wishes.
There are times when I let others take responsibility for solving the problem.
If the other's position seems very important to him/her, I would try to meet
his/her wishes.
I try to get the other person to settle for a compromise.
I try to show the other person the logic and benefits of my position.
In approaching negotiations, I try to be considerate of the other person's wishes.
I propose a middle ground.
I am nearly always concerned with satisfying all our wishes.
I sometimes avoid taking positions that would create controversy.
If it makes other people happy, I might let them maintain their views.
I am usually firm in pursuing my goals.
I usually seek the other's help in working out a solution.
I propose a middle ground.
I feel that differences are not always worth worrying about.
I try not to hurt the other's feelings.
I always share the problem with the other person so that we can work it out.
B.
12.
A
B.
13.
A
B.
14.
A
15.
A
16
A
17.
A
18.
A
B.
B.
B.
B.
B.
19.
A
20.
A
B.
B.
21.
A
B.
22.
23.
B.
24.
A
25.
A
B.
B.
26.
A
B.
27.
A
B.
28.
A
B.
29.
A
30.
A
B
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10
Scoring the Thomas-Kilmann Conflict Mode Instrument
Circle the letters below which you circled on each item of the questionnaire.
Competing
(forcing)
Collaborating
(problem solving)
Compromising
(sharing)
B
A
Avoiding
A
1
2.
3.
20.
21.
22.
23.
24.
25.
26.
27.
28.
29.
30.
B
A
4.
5.
6.
7.
8.
9.
10.
11.
12.
13.
14.
15.
16.
17.
18.
19.
Accommodating
(withdrawal)
B
B
A
A
B
B
A
A
B
A
B
A
B
A
B
A
B
A
B
B
B
A
A
A
A
B
B
A
B
A
B
A
A
B
B
A
B
B
A
A
B
A
B
A
B
A
B
A
A
B
B
A
B
B
A
Total number of items circled in each column
Competing
Collaborating
Compromising
Avoiding
Accommodating
In which column did you receive the highest score?
Skills for Collaborations
Page 101
Methods for Resolving
Conflict
Resolution of conflicting goals,
philosophies, and objectives is the
foundation for building collaborative
relationships. By following
prescribed steps to achieve
collaboration, shared commitment
and responsibility are the natural
byproducts that result from the
process. The steps involved require
members of interagency teams to
share not only their knowledge and
expertise, but also their
expectations. When entering into
interagency collaborations, it is
effective to have some agreed upon
guidelines that will be followed
when conflicts arise. These
guidelines should designate the
steps the group will take to resolve
conflict and the process by which
any negotiation of ideas will be
conducted.
Separate the People From the
Issues
Because people feel strongly about
their positions in a conflict, egos
become entangled with the issues.
Team members need to see
themselves as working side by side
to attack a mutual problem, rather
than each other.
Focus on Interests, Not Positions
Often in a conflict situation, people
state their positions, then become
determined and argue for that
position. In fact, there are underlying interests which are obscured
by positions and may never get
addressed, if positions are the
basis for the discussion. For
example, one team member may
argue that the team should set a
regular meeting schedule, while
another may want to set meeting
dates as the need to meet arises.
There appears to be no easy
solution to this conflict.
If we look beyond the positions to
the interests, we may find that the
first person needs to arrange
childcare for her child in order to
come to team meetings, and her
childcare person needs advance
notice. The second person may be
pressured by his or her supervisor
to spend more time in the office
catching up on paperwork. A
solution may be to set tentative
meeting dates on a regular basis,
with the understanding that some
may be canceled if they are not
needed. Active listening is a
powerful tool to let the other side
know that you have heard and
understood their interests.
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104
Invent Options for Mutual Gain
Setting aside a designated time to
brainstorm a number of possible
options decreases the urge to make
a decision quickly; it also opens the
door for new, creative solutions that
may not surface if people take an
adversarial stance and argue just to
win their position.
Insist that the Result Be Based on
Some Objective Standard
Rather than bending to someone's
will, find some objective way of
deciding an issue, or of testing the
decision. For example, if two team
members disagree on how often a
child should be seen for therapy, they
may decide to research the literature
to see what experience has been
suggested to be the optimal number
of hours/week for a child of that age
and ability to be seen.
cation. When conflicting attitudes
exist, strategies can be used to
stimulate new alternatives and
options. Among these strategies are:
1) problem solving; 2) brainstorming
new options; 3) selecting from among
new options; and, if consensus
cannot be attained, 4) engaging in
negotiations.
Negotiations
Effective negotiations can generate
amenable solutions to conflicts.
However, to keep negotiations
productive and on track, the following
activities must occur:
Suggest new options and
alternatives that would prove
mutually beneficial.
Carefully control anger and
resistance so that the process is
not hindered further.
Conflict often can be avoided or
quickly diffused by adhering to a
defined process. First, all members
should participate in clarifying the
issues. Once the issues have been
defined, the expectations and
outcomes should be set and agreed
upon by everyone involved. This
requires clear and open communi-
Be sure to use objective criteria for
making decisions and achieving
consensus.
Use newly offered alternatives to
find a solution that may be
commonly agreed upon and
accepted.
Skills for Collaborations
105
Activity 5.5
Fill out the following questionnaire to evaluate your negotiation skills
How Well Do You Negotiate?
A Self-Evaluation
Please circle the most appropriate answer.
1. Do you generally go into negotiations well prepared?
(a) Very frequently
(b) Often
(c) Sometimes
(d) Not very often
(e)
Play it by ear
2. How uncomfortable do you feel when facing direct conflict?
(a) Very uncomfortable
(d) Enjoy the challenge somewhat
(b) Quite uncomfortable
(e) Welcome the opportunity
(c) Don't like it but face it
3. How do you look at negotiation?
(a) Highly competitive
(b) Mostly competitive but a good part cooperative
(c) Mostly cooperative but a good part competitive
(d) Very cooperative
(e) About half cooperative and competitive
4. What kind of deal do you go for?
(a) A good deal for both parties
(b) A better deal for you
(c) A better deal for him
(d) A very good deal for you and
better than no deal for him
(e) Every person for themselves
5. Do you like to negotiate with merchants (furniture, cars, major appliances)?
(a) Love it
(d) Rather dislike it
(b) Like it
(e) Hate it
(c) Neither like nor dislike it
6. Are you a good listener?
(a) Very good
(b) Better than most
(c) Average
(d) Below average
(e) Poor listener
Karrass, Chester, L. (1989). Effective negotiating. Santa Monica, CA: Karrass.
Collaboration: Putting the Puzzle Pieces Together
Page 104
7. How do you feel about ambiguous situationssituations which have a good many pros
and cons?
(a) Very uncomfortable. Like things one way or another.
(b)
(c)
(d)
(e)
Fairly uncomfortable.
Don't like it but can live with it.
Undisturbed. Find it easy to live with.
Like it that way. Things are hardly ever one way or another.
8. How would you feel about negotiating a 10% raise with your boss if the average
raise in the department is 5%?
(a) Don't like it at all. Would avoid it.
(b) Don't like it but would make a pass at it reluctantly.
(c) Would do it with little apprehension.
(d) Make a good case and not afraid to try it.
(e) Enjoy the experience and look forward to it.
9. How good is your business judgment?
(a) Experience shows that it's very good
(b) Good
(c) As good as most other executives
(d) Not too good
(e) I hate to say it, but I guess I'm
not quite with it when it comes
to business matters.
10. When you have the power, do you use it?
(a) I use it to the extent I can
(b) I use it moderately without any guilt feelings
(c) I use it on behalf of fairness as I see fairness
(d) I don't like to use it
(e) I take it easy on the other fellow
11. How do you feel about getting perionally involved with the other party?
(a) I avoid it
(d) I'm attracted to getting close
(b) I'm not quite comfortable
(e) I go out of my way to get close,
(c) Not badnot good
I like it that way
12. How sensitive are you to the personal issues facing the opponent in negotiation? (The
non-business issues like job security, workload, vacation, getting along with the boss,
not rocking the boat.)
(a) Very sensitive
(d) Not too sensitive
(b) Quite sensitive
(e) Hardly sensitive at all
(c) Moderately
Skills for Collaborations
107
13. How committed are you to the opponent's satisfaction?
(a) Very committed. I try to see that
(d) I'm a bit concerned
he doesn't get hurt
(e) It's everyone for themselves
(b) Somewhat committed
(c) Neutral but I hope he doesn't
get hurt
14. Do you carefully study the limits of the other person's power?
(a) Very much so
(d) It's hard to do because I'm not
(b) Quite a bit
him
(c) I weigh it
(e) I let things develop at the
session
15. How do you feel about making a very low offer when you buy?
(a) Terrible
(d) It's hard to do
(b) Not too good but I do it sometimes (e) I make it a regular practice and
(c) I do it only occasionally
feel quite comfortable
16. How do you usually give in?
(a) Very slowly, if at all
(b) Moderately slowly
(c) About at the same pace he does
(d)
(e)
I try to move it along a little faster by giving more
I don't mind giving in hefty chunks and getting to the point
17. How do you feel about taking risks that affect your career?
(a) Take considerably larger risks than most people
(b) Somewhat more risk than most
(c) Somewhat less risk than most
(d) Take slight risk on occasion but not much
(e) Rarely take career risks
18. How do you feel with those of higher status?
(a) Very comfortable
(d) Somewhat uncomfortable
(b) Quite comfortable
(e) Very uncomfortable
(c) Mixed feelings
19. How well did you prepare for the negotiation of the last house or car you bought?
(a) Thoroughly
(d) Not well
(b) Quite well
(e) Played it by ear
(c) Moderately
Collaboration: Putting the Puzzle Pieces Together
Page 106
10S
20. How well do you think when not under pressure (compared to your peers)?
(a) Very well
(d) A little worse than most
(b) Better than most
(e) Not too good
(c) Average
21. How would you feel if you had to say, "I don't understand that", four times
after four explanations?
(a) Terriblewouldn't do it
(b) Quite embarrassed
(c) Would feel awkward
(d) Would do it without feeling too badly
(e) Wouldn't hesitate
22. How well do you handle tough questions in negotiations?
(a) Very well
(d) Below average
(b) Above average
(e) Poorly
(c) Average
23. Do you ask probing questions?
(a) Very good at it
(d) Not very good
(e) Pretty bad at it
(b) Quite good
(c) Average
24. Are you close-mouthed about your business?
(a) Very secretive
(b) Quite secretive
(c) Secretive
(d) Tend to say more than I should
(e) Talk too much
25. How confident are you about your knowledge in your own field or profession
(compared to your peers)?
(a) Much more confident than most
(d) Somewhat less confident
(b) Somewhat more confident
(e) Not very confident, frankly
(c) Average
26. You are the buyer of some construction services. The design is changed
because your spouse wants something different. The contractor now asks
for-more money for the change. You need him badly because he's well into
the job. How do you feel about negotiating the added price?
(a) Jump in with both feet
(b) Ready to work it out but not anxious to
(c) Don't like it but will do it
(d) Dislike it very much
(e) Hate the confrontation
Skills for Collaborations
Page 107
10S
INSTRUCTIONS
To evaluate yourself, check the answer key and add your positive and negative scores
separately. Subtract them from each other.
A score between +250 and +340 indicates you are probably negotiating well already. The
range of +180 to +250 suggests you have a good measure of the qualities it takes to
negotiate successfully. Negative scores, however, show that your skills needed for
effective negotiating can use improvement!
ANSWER KEY
1.
2.
3.
4.
5.
6.
7.
8.
9.
10.
11.
12.
13.
14.
15.
16.
17.
18.
19.
20.
21.
22.
23.
24.
25.
26.
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
(a)
+ 20
10
15
+ 10
+
3
+ 15
10
- 10
+ 20
+
5
- 15
+ 16
+ 12
+ 15
- 10
+ 15
+5
+ 10
+ 15
+ 15
- 8
+ 10
+ 10
+ 10
+ 12
+ 15
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
(b)
+ 15
5
+ 15
+
5
+6
+ 10
-
5
+
5
+ 15
+ 15
- 10
+ 12
+
6
+ 10
- 5
+ 10
+ 10
+8
+ 10
+ 10
- 3
+8
+8
+ 10
+8
+ 10
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
(c)
+5
+ 10
+ 10
10
+6
0
+5
+ 10
+5
+ 10
0
+4
0
+5
+5
3
0
+
+
+
+
3
5
5
3
+2
+3
+8
+4
0
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
(d)
- 10
+ 10
- 15
+ 10
-
- 10
+ 10
+ 13
- 10
- 5
+ 10
-
1 0
5
2
5
+ 15
- 10
3
3
5
0
+8
3
0
8
-
5
- 10
Collaboration: Putting the Puzzle Pieces Together
Page 108
3
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
(e)
20
5
+5
5
5
15
+ 10
+ 10
20
0
+ 15
15
10
10
+ 15
15
10
10
15
5
+ 12
10
5
15
10
15
Stages in the
Negotiating Process
and generating some additional
options and criteria for evaluating
them.
The negotiation process can be
broken into three stages:
Discussion
Here the parties talk together, working
towards agreement, and the same
four elements are the best subjects to
discuss. It is important to
acknowledge each person's feelings
of frustration and anger and
difficulties in communication, and to
thoroughly understand each other's
interests. Acknowledgment and
understanding puts everybody in a
good position to generate options
jointly that will benefit everyone, and to
reach agreement on objective
standards for resolving opposing
interests.
Analysis
In this stage, you are trying to
diagnose the situation--to gather
information, identify your own
interests and those of the other side,
note options already on the table, and
identify any criteria available as a
basis for agreement.
Planning
In this stage, you deal again with the
same four elements: generating
ideas, thinking about how to handle
the "people issues" (hostility, unclear
communications, biased perceptions,
etc.), prioritizing your own interests,
The use of these methods will result
in a wise and amicable agreement,
efficiently reached.
You cannot solve a problem from within
the same consciousness that created
that problem... you must think anew.
Einstein
Skills for Collaborations
1i
Activity 5.6
Get into groups of four. Using the stages of Negotiation Process (analysis,
planning, and discussion), describe some possible solutions to the problems
Polly's parents have with their current service delivery program. One person on
the team will play the role of Polly's parents, the other three will play the roles of the
case managers from the three different agencies.
Analysis:
Planning:
Discussion:
Collaboration: Putting the Puzzle Pieces Together
Page 110
112
Notes
Skills for Collaborations
Page 111
11 3
r
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