Cfhi Manual
Cfhi Manual
Cfhi Manual
Preface
This is an assessment and implementation manual about Child Friendly Healthcare (CFH) written for health
workers who plan, organise, provide or give care to children and their families. The manual defines CFH by
translating the articles of the United Nations Convention on the Rights of the Child (UNCRC) into simple CFH
Standards that are applicable to everyday healthcare practices. It provides a method and process for assessing
these and a simple structure for making any wanted or needed improvements so that children and their families
everywhere can receive the best possible healthcare, regardless of circumstance.
The Child Friendly Healthcare Initiative (CFHI), a child health quality improvement program, was developed by
Childhealth Advocacy International (CAI), Charity No: 1071486, in collaboration with The United Nations
Childrens Fund (UNICEF), The Child and Adolescent Department of Health and Development of the World
Health Organisation (WHO), the Royal College of Paediatrics and Child Health (RCPCH), UK and the Royal
College of Nursing (RCN), UK. The Community Fund, UK funded its pilot project.
The initial pilot development phase for the Child Friendly Healthcare Initiative finished at the end of 2002 and
the manual was written, edited and abridged in the period that followed. Consideration of differing publishing
options delayed the manual and tools being put into an easily accessible format until now. During that time
numerous changes and developments have been instigated and moved forward, at local, country and global
levels including many that have been influenced by the work undertaken and shared by the CFHI project.
However despite the time elapsed, the messages, truths, principles and practical methods promoted by the Child
Friendly Healthcare Initiative remain as valuable and needed as ever.
Dedication
This manual is dedicated to the many hundreds of children and their families and health workers from seven
main countries who participated in the pilot project, and whose thoughts, views and opinions it expresses. In
addition we thank many other individuals from a variety of organisations who have given their valuable time and
support to help develop the CFHI, and to our own families for their patience and understanding over the last
three years.
Abbreviations
AIDS: Acquired Immunodeficiency Syndrome
BFI: Baby Friendly Initiative
CAI: Child Advocacy International
CFH: Child Friendly Healthcare
CFHI: Child Friendly Healthcare Initiative
DFID: Department for International Development (UK)
EACH: European Association for Children in Hospital
EPI: Expanded Program for Immunisation
HIV: Human Immunodeficiency Virus
IMCI: Integrated Management of Childhood Illness
IMF: International Monetary Fund
IFMS: International Federation Medical Students
ORS: Oral Rehydration Solution
ORT: Oral Rehydration Therapy
PQCG: Paediatric Quality Care Group
WFP: World Food Program
WHO: World Health Organisation
WTO: World Trade Organisation
UNICEF: United Nations Childrens Fund
UNCRC: United Nations Convention of the Rights of the Child
UNMIK: United Nations Mission in Kosova
RCPCH: Royal College of Paediatrics and Child Health (UK)
RCN: Royal College of Nursing (UK) UK: United Kingdom
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Glossary
Section 1 explains why a Child Friendly Healthcare Initiative (CFHI) is needed, discusses the principles
involved and its relationship with the United Nations Convention on the Rights of the Child (UNCRC).
Child Friendly Healthcare (CFH) is defined.
Section 2 describes and discusses each of the 12 Child Friendly Healthcare Standards and their
supporting criteria.
Sections 3 and 4 explain how to find out if you are Child Friendly and how to use the findings from an
assessment to make it better, that is to plan, make and acknowledge improvements. They also explain
how others can help you. The concepts, ideas and processes in these chapters are not new, but simplified
in this book.
Section 5 explains useful activities that support best possible practice. It contains useful examples
collected during visits to the health facilities participating in the development of the program.
The Appendix which is to be placed on the website www.cfhiuk.org contains The CFH Toolkit.
The tools cover the assessment of all the aspects of healthcare for children and their families. Tool 1 is
designed to help identify, prioritise and select CFH Standards for improvement; Tool 2 provides a more
detailed assessment of the chosen aspect of care including identification of the level of care currently
provided and, if not the best possible, suggests improvements by planning and implementation of
realistic, and sustainable development.
The appendix also contains examples of the following forms and policies:
An evaluation form
A format for writing an assessment report
A policy for preventing and managing a needle stick injury
Data that can be collected to provide information about a populations health
A toy safety policy
A consent form
Essential equipment, medical supplies and drugs for emergencies
Job aides
Organising and running a training course
Writing and funding a project proposal
Biographies
Dr Meriel Susan Nicholson FRCP, FRCPCH, FRIPH
Project Director for the pilot of the CFHI
Sue is a retired Paediatrician with a wide experience of child health and paediatrics. Her working career included time spent
as a family planning doctor, a general practitioner, a community health doctor and a hospital consultant. Although she
practiced as a general paediatrician, special interests have included developmental paediatrics, child protection, school
health, neonatal medicine, infection control, rheumatology, International Child Health and the training of doctors and other
health workers. She was a member of EACD (European Association of Childhood Disability), an associate police surgeon
and a fellow of 3 Royal Colleges. Although interests outside medicine are centred round her 4 adult children and 6
grandchildren, she is also an accomplished skier and gardener.
Andrew Clarke BSc, RN (Child), RHV
Project Officer for the pilot of the CFHI now Honorary CFHI Director
Andrew is a paediatric nurse and Specialist Community Practitioner in public health. He currently divides his time between
the United Kingdom where he works as a community Health Visitor in East Lancashire, and Nepal where he is employed as
Health Advisor (practice and development) for the childrens charity Child Welfare Scheme.
His interests span across international maternal and child health, but particularly in care giving practices (attitudes and
approaches), symptom control, utilising communities as vehicles for change, child protection and clinical innovation with
low resources.
Andrew is married with two young children and a helpful family whose ongoing support makes his international work
possible and whom hed like to thank.
Sue Burr OBE FRCN HFRCPCH RSCN RGN RHV RNT MA
Sue Burr held a variety of posts in hospital, community, and educational settings focusing on the nursing of children prior to
being appointed the Royal College of Nursings (RCN) first Adviser in Paediatric Nursing in 1984 a post she held till her
retirement in 2002.
Sues career spanned many changes and her interest and passion was that the psychosocial needs of the child and their
family, with parents being real partners in care, should progress alongside developments in nurse education and clinical
advances.
As an active member of various national and international organisations such as Board member of UNICEF UK & Trustee
of Action for Sick Children and Contact A Family Sue was committed to multi-agency/multi-professional working.
Sues appointment in 1995 as a Specialist Adviser to the House of Commons Select Committee on Healths Inquiry into
Services for Children was in recognition of her standing and achievements in UK health policy.
Dr. David Southall OBE MBBS MD FRCPCH
David Southall is honorary medical director of Childhealth Advocacy International. He is the chair of the working party for
CFHI. His main interests are the safe and effective management of emergencies in pregnancy, infancy and childhood. He
has published many papers concerning the protection of children from abuse and is active in developing child protection
systems for poorly resourced countries. He is particularly worried about the concept of suffering and how little attention is
drawn to this in current international programs for mothers and children. He is also active in developing palliative care
systems for disadvantaged countries. He has directed the development of many teaching materials for managing
emergencies as well as a textbook of International Child Health Care.
He is a consultant paediatrician active in acute general paediatrics in the UK National Health Service and was Foundation
Professor of Paediatrics at Keele University before his retirement.
Alice Leahy BA, MBBS, MRCP, Msc
Consultant paediatrician at Southampton General Hospital and lead for paediatric resuscitation; mother of five
Oliver Ross MbChb, FRCA
Consultant paediatric anaesthetist at Southampton, medical humanitarian experience, five children (same ones as Alice
above)
CONTENTS
Glossary
Section 1: Why a Child Friendly Healthcare Initiative (CFHI)?
Why is a Child Friendly Healthcare Initiative needed?
A reminder about the United Nations Convention on the Rights of the Child (UNCRC)
What is different about the CFHI?
What are its aims and objectives?
What are its guiding principles?
Its history
Who owns it?
Who has contributed to it?
What has the CFHI already contributed to improving childrens healthcare
What is Child Friendly Healthcare (CFH)?
Section 2: The Standards and their supporting criteria
1. Keeping children out of hospital
2. Supporting the best possible healthcare
3. Giving care safely in a secure, clean child friendly environment
4. Giving child centred care
5. Sharing information
6. Equity and respecting a child as an individual with rights
7. Recognising and relieving pain and discomfort
8. Providing appropriate emergency care
9. Enabling play and learning
10. Protecting children (recognising and supporting a vulnerable or abused child)
11. Monitoring and promoting health
12. Supporting the best possible nutrition
Section 3: How Child Friendly are you? (How to assess the care you give)
A framework for promoting, assessing and improving CFH
To self-assess or use an external assessor?
The responsibilities of a CFH coordinator?
About the assessment process
About the CFH Toolkit
How to identify the quality of healthcare you give
Why meetings and who should attend?
How do children and families contribute to the assessment process?
How do health workers contribute to the assessment process?
Section 4: Making it better (How you can make improvements and how others can help)
Why make it better?
Forces that support change
Barriers against change
How to make improvements
How others can help
Why acknowledge effort?
Section 5: Useful supporting materials (A how to do it series of supporting activities)
1.
2.
3.
4.
5.
6.
7.
8.
9.
10.
11.
Draft copyright. APRIL 2005 All rights are reserved. The information and photographs in the various pages
of this book are protected under the Berne Convention for the protection of Literature and Artistic works, under
other international conventions and under national laws on copyright and neighbouring rights.
Extracts of the information may be reviewed, reproduced or translated for research or private study but not for
sale or for use in conjunction with commercial purposes. Any use of information in the book
should be accompanied by an acknowledgment of the CFHI/CAI as the source, citing the uniform resource
locator (URL) of the article. Reproduction or translation of substantial portions of this book, or any use of this
book other than for educational or other non-commercial purposes, requires explicit, prior
authorization in writing. Applications and enquiries should be addressed to the CFHI Advisory Committee, c/o
Childhealth Advocacy International, Conway Chambers, 83 Derby Road, Nottingham NG1 5BB. UK
Tel: +44 (0)115 9506662 Fax: +44 (0)115 9507733 Email: office@mcai.org.uk
Website: http://www.mcai.org.uk
Acknowledgements
The CFHI is indebted to the many individuals and organisations that have contributed to its development. It
would not be possible to name everyone, but we would like to especially thank:
Present and former members of the CFHI Advisory Committee:
Dr John Bridson, David Bull, Sue Burr, Dr Patricia Hamilton, Andrew Radford, Robert Smith, Professor David
Southall (Chair), and Dr Tony Williams
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The Community Fund, UK: For funding the pilot project, especially Ylva Sperling and Martin Wright
Pilot project assistants: Clare McNamara and Carol Rowley
Childhealth Advocacy International Staff: especially Meggie Szczesny
Our contacts at the Ministries of Health, WHO and UNICEF in Kosovo, Moldova, Pakistan and Uganda,
and also those at Dfid and UNMIK in Kosovo and Dfid in Uganda
The leaders, managers and senior health workers at the pilot sites:
Department of paediatrics and child health, Klinika Obstetrike Gjinekologjike, Gjilan Hospital, Kosovo
The Republican Childrens Hospital, Chisinau, Moldova
Childrens Hospital, Islamabad, Pakistan
Department of Child Health, Mulago Hospital Complex and Makere University Kampala, Uganda
Childrens services, Barnsley District General Hospital Trust, UK
Childrens services, Bro Morgannwg NHS Trust, Wales, UK
Derbyshire Childrens Hospital, England, UK
Yorkhill National Health Service Trust, Glasgow, Scotland, UK
Childrens services at Ulster Community and Hospital HSS Trust, Belfast, Northern Ireland, UK
Also childrens services at the Jubilee Hospital, Republic of South Africa and Bihac Hospital, Bosnia.
The CFHI coordinators for the pilot sites:
Dr Zijadin Hasani, Kosovo
Dr Tatiana Raba, Moldova
Dr Farrukh Qureshi, Pakistan
Dr Margaret Nakakeeto, Uganda
Dr Loretta Davis-Reynolds and Theresa Burkhill, Barnsley
Karen Healey, Karen Grant and Elizabeth Jones, Bridgend
Celia Cullen, Derby
Joe Skinner, Glasgow
Liz McElkerney and Roisin Coulter, Belfast
Interpreters for the pilot project:
Dr Mervan Tosca, Kosovo
Dr Evelina Cibotaru-Herghelegiu, Moldova
Dr Nick Jelamschi, Moldova
Nazia Mumtaz, Pakistan
Farida, Uganda
*UNICEF HQ for their interest and support
UK Committee for UNICEF for their sponsorship and support
The Department of Child and Adolescent Health and Development, WHO, Geneva especially Dr Hans
Troedsson and Dr Martin Weber
Action for Sick Children, England, especially Pamela Barnes
Action for Sick Children, Scotland, especially Gwen Garner
The European Association for Children in Hospital, especially Margreet van Bergen
Amberley Hall Nursery, Bristol UK for their active participation and on-going sponsorship, especially Mary
Butler and Ruth Robinson.
The play department Barnsley District General Hospital, UK for their active participation and on-going
sponsorship, especially Josie Evans
The International Medical Students Federation (IMSF)
The International Federation of Infection Control (IFIC)
The Infection Control Nurses Association, UK (ICNA) especially Esther Dias, for sponsoring the Infection
Control Nurse, Winifred Abong, from Uganda to attend the UK, ICNAs Annual Conference 2002
Pixel 8 Design, especially Nigel Dawes, for their sponsorship in designing the CFHI logo and for designing the
CFHI web site
Ann Morgan for designing the toolkit.
And the following individuals who contributed to the pilot project and/or this manual:
Armin Alagic, Mumtaz Begum, Peg Belson, Brigitte, Anne Casey, Shkumbin Dauti, Jane Frank, Dr Assad
Hafeez, Professor Mumtaz Hassan, John Hughan, Professor Mahmood Jamal, Dr Elizabeth Kiboneka, Christine
Kirkham, Dialeta Nela, Tess Little, Aileen McKenzie, Dr Isoke Muzora, Jane Nakaggw, Annette Naluyange,
Robert Nicholson, Dr Bernadette OHare, Angela OHiggins, Dr Christiane Ronald, Alban Rrustemi, Dr Marian
Scmidt, Tom Shearer, Fiona Smith, Dr Ecaterina Stasi, Julie Tate, Kent Thorburn, Dr Jo Venables and all the
others that are not individually mentioned.
CORE DATA SET is a minimum set of information related to a specific healthcare problem. It includes
demographic, treatment and outcome data.
CRITERIA provide the more detailed and practical information on how to achieve each CFH standard.
They can be described as structure, process or outcome criteria. They illustrate the standard and provide a
way of measuring it. (criteria describe activities to be performed, whereas standards state the level at
which they are to be performed. An essential criterion is one that must be met)
Structure criteria are the resources required in order to carry out the process stage of a standard
eg policies, procedures, documents, personnel, training, equipment
Process criteria are the actions undertaken by staff in order to achieve certain results. For
examples, assessment techniques and procedures or patient education
Outcome criteria are the desired effect of care in terms of patient responses, behaviour, clinical
condition, level of knowledge, satisfaction with care
DISABILITY is a lack or impairment of a particular capability or skill (The Child with a Handicap by
DMB Hall)
ETHNICITY concerns nations or races, it is about the customs, dress, food of a particular racial group or
cult.
EMOTIONAL MATURITY is reached when a person acts and behaves responsibly, is able to
contribute to the well-being of their community, and understands and is able to meet and support a childs
individual emotional needs.
FOOD SECURITY (GLOBAL) is a state of affairs where all people at all times have access to safe and
nutritious food to maintain a healthy and active life, and where there is no risk of house-holds losing
physical and economic access to adequate food (The State of Food Insecurity in the World 2003 Monitoring
progress towards the World Food Summit and Millennium Development Goals. Food and Agriculture Organisation
of the United Nations ISBN 92-5-104986-6).
GLOBALISATION is the process of increasing economic, political and social inter-dependence and
global integration that takes place as capital, traded goods, persons, concepts, images, ideas and values
diffuse across state boundaries (WHO definition)
A HANDICAP is any condition that prevents or hinders the pursuit or achievement of desired goals.
Sheridan M 1969
HEALTH is a state of complete physical, mental and social well-being and not merely the absence of
disease or infirmity. (Preamble to the Constitution of the World Health Organization as adopted by the
International Health Conference, New York, 19-22 June, 1946; signed on 22 July 1946 by the
representatives of 61 States (Official Records of the World Health Organization, no. 2, p. 100) and
entered into force on 7 April 1948. The Definition has not been amended since 1948.
HEALTHCARE is informed advice, assessment, monitoring, assistance or treatment given for health
reasons. It includes preventive, investigative, curative, palliative and supportive care.
Appropriate healthcare is the best possible* healthcare given without compromising the care given to
other children sharing the same health worker, health facility or health service.
Effective health care is healthcare that achieves its objectives.
Evidence-based healthcare is based on a process of systematically finding, appraising and using
contemporaneous research findings to support the healthcare given.
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A healthcare related policy is a written principle that governs an activity that health workers must
follow, about how to do something that must be followed by all health workers (a must do) for example
an evacuation policy, a drug safety policy, a hand washing policy and others.
A system of care is a clear detailed method for dealing with a situation, event or problem.
A HEALTHCARE ENVIRONMENT is any place where a patient is given informed advice,
assessment, monitoring, assistance or treatment.
A HEALTH FACILITY (HF) is an environment designated and funded for providing health care.
An In-patient HF is a hospital or other institution where users stay overnight for health reasons (ie. are
resident)
A HEALTHCARE PROVIDER is any organisation or individual that is in any way responsible for
planning, organising and/or providing health care.
A HEALTHCARE ORGANISATION is any authority that is responsible for providing healthcare
services.
Primary or community services are those health services whose health workers usually see the child and
family first. They are usually located near the childs home and give basic health care to a child living at
home whose health problem is not serious enough to require admission to a health facility, or an opinion
from another more skilled health worker.
Secondary/referral level/specialist services are those provided and given by childrens health workers
who see a child referred from primary care for a second opinion, or a specialist opinion, about their health
problem. They are usually able to admit a child for overnight healthcare and include all types of hospital
care.
A HEALTH WORKER is any person employed to give any form of health care, or who is working as a
volunteer.
A professional health worker is any person with a health or health related qualification who is employed
to give any form of health care, or who is working as a volunteer.
A skilled health worker has experience and special training to equip them for the job they are doing.
They may or may not have a professional qualification relating to childrens healthcare.
A key health worker is an identified individual with special responsibility, for example for a
child/family or a project/program such as infection control
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12
A TOOL assesses performance against a standard. Tools include interviews (open, semi-structured or
structured), questionnaires, structured observations, checklists and benchmarking.
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Section 1
Why a Child Friendly Healthcare Initiative (CFHI)?
An introduction
Such healthcare contravenes the articles of the United Nations Convention on the Rights of the Child
(UNCRC) and continues in every country in the world, rich and poor. During the pilot project for this
initiative over six hundred health workers, parents, carers and children in hospitals in eight countries were
interviewed between May 1999 and December 2002. Even in the most disadvantaged health facilities,
there were many examples of excellent care, but everywhere there was care that can only be described as
very child unfriendly.
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It is not surprising if health workers do not meet a childs mental, emotional and social health needs when
many children in the world do not have even their basic health needs met, but it is even more unforgivable
if these needs are overlooked when resources are such that a high level of healthcare is possible.
The first duty of a nurse is to the patient do no harm Florence Nightingale 1889
Worldwide most childrens health workers work hard to provide the best possible health care for each
child and their family. However many feel overwhelmed, undervalued and uncared for and many do not
know what the best possible care could be. The result is a lack of incentive to make the efforts required
for change. Allied to this is the belief that many resources are needed for change, leading to a sense of
helplessness when these are absent or hard to come by.
Others feel that they do not need to change, failing to recognise that good care can always be better. There
is always the need to constantly review provision of care to meet changing needs as the needs of any
society and its children change in response to new threats to health, such as changes in the economy or
population movements.
The quality of healthcare varies enormously between countries, between different healthcare
environments in the same country and within different clinical areas in the same health facility. It is
usually more dependant on the health workers responsible than on the resources available. Many
improvements can be made without an increase in existing resources by changing behaviours and
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attitudes, creating more opportunities for sharing knowledge and skills, better leadership and team
working and understanding and practicing the articles of the UNCRC.
During the pilot study, many of the health workers interpreted what Child Friendly Healthcare means
differently. There was a lack of awareness about the UNCRC and many misconceptions about the
contents of its articles. Senior health workers in positions of authority, believed that childrens rights and
Child Friendly Healthcare (which they often thought was only about play and communication) were not
important priorities as they were much too busy looking after ill children. These health workers when
questioned more closely knew little about the articles of the UNCRC. In many of the countries visited the
UNCRC was not in the nursing or medical school curricula, nor was it a topic usually covered by lifelong education/training opportunities.
Every health worker in every country from the Government Minister to the health worker that cleans the
toilets, often the lowest paid and least valued health worker yet amongst the most important, has an
essential contribution to make to the provision of healthcare. Virtually all the worlds countries have
ratified the UNCRC, so health workers have a responsibility to follow its philosophies during their daily
work. The CFHI has developed simple Child Friendly Healthcare Standards that translate its articles
into every day health practices.
Promoting, assessing and supporting these CFH Standards will contribute to sustainable improvements
in the quality of healthcare received by children and families across the world, whatever the
circumstances.
A reminder about the United Nations Convention on the Rights of the Child
UNCRC adopted by the United Nations assembly on 22nd November 1989, is a legal International
document of unprecedented scope. The convention with its 54 articles is the most widely accepted
International convention in the world with all but one country ratifying it. It is about a childs right to
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The articles of the Convention, which were developed following wide global consultation and research,
apply to every child from birth to 18 years of age without discrimination. They focus on a childs best
interests and, although they reinforce the role of the family as the main carers and protectors, they also reaffirm the States responsibility to provide legal and other protection. The Convention is different from
other human rights laws as it recognises that, because of the special vulnerability of children, they need
special laws and care to support their nurture and protection. It respects cultural values but also highlights
the importance of international cooperation.
By ratifying the Conventions 54 articles, 192 governments of the worlds 193 countries have pledged to
review their national laws and practices to comply with these. A democratically elected International
Committee monitors compliance via mandatory five-year progress reports from these countries.
The Convention is divided into three parts.
Part 1 (the main part) contains the 41 articles that relate to childrens rights.
Part 2 has four articles that are concerned with a countrys implementation and monitoring of the
convention; in particular a countrys obligations to actively inform their citizens about the
convention and to contribute to the monitoring committee.
Part 3 contains nine articles about its administration.
The articles that relate directly to childrens health care are:
Article 2: Equal rights to care with no discrimination for any reason
Article 3: Whenever an adult makes any decision about a child or takes any action that affects the child
this should be what is best for the child
Article 6: The right to live
Article 7: The right to a name and nationality, and to be cared for by parents
Article 9: The right to remain with parents, or in contact with parents, unless this is contrary to the childs
best interests
Article 12 and 13: The right to receive information and express views and ideas freely
Article 19: The right to be protected from any form of harm including violence, neglect, and all types of
abuse
Article 23: The right of those with a disability (physical or mental) to lead a full and decent life within
their community
Article 24: The right to the highest standard of health and medical care attainable (the best possible
healthcare). In this article States are advised to place special emphasis on the provision of primary and
preventive health care, public health education, and the reduction of infant mortality, to encourage
international cooperation in this regard and to strive to ensure that no child is deprived of access to
effective health services
Article 27: The right to a standard of living adequate for physical, mental, spiritual, moral and social
development
Article 28: The right to education (school-type learning)
Article 30: The right of a child belonging to an ethnic, religious or linguistic minority to enjoy their
culture practice their religion and use their language
Article 31: The right to rest and play
Article 38: The right to be protected from and during armed conflicts, and not to be recruited to take part
in hostilities, especially before 15 years of age
Article 42: Is about the duty of the state to ensure that childrens rights relating to health are made known
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In countries that have ratified the UNCRC, all health workers at all levels have a duty to ensure that its
principles are followed during their day to day delivery of healthcare to children and families. The CFH
Standards enable them to do this by translating the articles into everyday healthcare practices
What is different about the CFHI from other programs?
It has a global mandate since it derives its principles from the articles of the UNCRC
It is not prescriptive or dictatorial (imposed by a higher authority) but belongs to all health
workers
The suggested practical approaches of the assessment and improvement program are relevant and
applicable to health workers and health planners at all levels, in any healthcare environment and
in any country, as they have been developed with the help of health workers and families in
many different countries and health care environments.
It can be used for self-assessment or can be supported by invited external assessors
Its assessment process seeks the ideas and possible solutions to problems from the health
workers, children and their parents/carers thereby giving them a voice in helping to develop their
own services and healthcare systems
It enables and empowers local health workers to solve their own problems and find a way
forward, however small, to improve the care they give to children and their families
Any health care improvements made as a result of the program reflect what health workers want,
what children and families want and what is feasible
It raises levels of awareness by promoting what is possible and sharing good ideas
It is a vehicle for other local, country and international programs, especially those seeking
standards. It aims to promote all other validated programs.
It can easily be modified and adapted to suit local circumstance
It is low-cost or cost-neutral
What are the programs guiding principles?
1. Child Friendly Healthcare at its best possible level of practice
2. All activities to be based on the rights of the child linked with the responsibilities and duties of
health workers in partnership with parents/carers, other significant family members and friends to
meet these rights within the healthcare context.
3. Planned improvements arising from the program to be compatible with a countrys own plans for
health and acceptable to the countries health care providers at organisational level.
4. To be a positive, encouraging and motivating experience for children, families and health
workers.
5. To seek the views and opinions of children and their families in the assessment process and
reflect these in the prioritising, planning, and implementing of improvements.
6. The views and opinions of all involved health care workers (managers, health professionals,
other types of health worker such as ward cleaners, porters, security staff, engineers etc) to be
sought in developing and implementing the program and to be reflected in the prioritising,
planning, and implementing of improvements.
7. Barriers to providing the best possible CFH and the forces to create changes that achieve this to
be identified by the assessment process.
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8. The focus for improvement to be on making the best and most appropriate use of existing
resources and systems of care, facilitating changes of attitude and behaviour, and optimising the
skills, approaches and knowledge of health workers.
9. Planned improvements in healthcare to be:
Facilitated by encouraging the sharing of good ideas, examples of good practice, skills and
knowledge within a healthcare environment and from other healthcare environments in the
same country and other countries
Facilitated by empowering health workers to identify and prioritise their problems, find their
own solutions to these and to function better by raising their awareness to the possibilities
Enabled by promoting team problem solving approaches
Acceptable to the religious, ethnic and cultural beliefs of the people involved providing these
are compatible with the articles of the UNCRC
Appropriate, sustainable and where possible achievable within the available resources
Implemented in a prioritised staged way
Any support for improvements from outside the healthcare environment to be provided first
by harnessing and coordinating any existing international humanitarian aid and other possible
in-country support.
10. Advocacy to be encouraged and used at an appropriate level to seek more resources or additional
support (new humanitarian aid projects), when without such input the healthcare available is
significantly compromised.
11. Regular review and evaluation of all activities
The history of the CFHI program
The idea for a global initiative dedicated to improving the healthcare experiences of children and their
families originated within the medical and nursing professions in the UK in the early 90s following the
adoption by the United Nations General Assembly of the Convention on the Rights of The Child
(UNCRC) on 22nd November 1989.
The concept of developing Standards of care based on the articles of the UNCRC was influenced by the
work of a number of other non-medical organisations dedicated to the well being of children.
In 1996 a small delegation presented a proposal for a CFHI based on such Standards to UNICEF New
York, who supported the idea. In 1999 a grant was received from the Community Fund UK by Child
Advocacy International (CAI), a non-governmental organisation and now the lead agency for the CFHI,
to undertake a pilot project for the Initiative in hospitals in the UK (also funded by a small grant from
UNICEF UK) and in hospitals in five other countries.
In November 2000, a first draft of these Standards was published in Pediatrics 1 and later the same year
the Child and Adolescent Department of Health and Development of the World Health Organisation
offered technical support to the project followed by help with identifying hospitals in four countries, in
addition to those in the UK, where the pilot project was acceptable to the regional and country UNICEF
and WHO representatives.
The remit of the pilot project was to research and consult widely to develop the CFH Standards and their
supporting criteria, to promote and support child friendly healthcare practices, and with the help of the
health workers and families in the chosen hospitals to develop the methodology and processes to assess
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and improve Child Friendly Healthcare. These are described in this book. The CFHI is guided by an
Advisory Committee.
The number of sites that contributed to the pilot project was limited by the time and resources available.
More countries and health facilities have requested inclusion in any second phase pilot. However the
tools and methods developed have been designed to help health workers make progress with Child
Friendly Healthcare themselves without the need for an officially supported program.
Who owns CFH?
Wisdom, like knowledge and skills, is for sharing not owning
Child Friendly Healthcare does not belong to any organisation or individual, it belongs to every health
worker who practices it. The initiative to promote CFH and the program to assess and improve care has
no formal accrediting body and is therefore currently owned by the health workers who use it.
What is Child Friendly Healthcare?
The best possible integrated health care provided by health workers who minimise the fear, anxiety and
suffering of children and their families by supporting and practicing the 12 Child Friendly Healthcare
Standards.
Who else can promote Child Friendly Healthcare?
Any committed health worker who is familiar with its practices and principles can promote CFH by
sharing information about the CFHI and the UNCRC with others in the same healthcare environment, in
other healthcare environments in the same country and with health workers in other countries. Child
Friendly Healthcare belongs to every health worker that looks after children and families whether they
are involved in planning, organising, providing or giving care.
What is the best possible healthcare?
The practice of CFH Standards at their best possible level of practice.
The best possible:
Considers the childs best interests
Covers the preventive, investigative, curative and palliative aspects of health care taking into
account the most up-to-date evidence-base for each care given
Is affordable and effective
Is appropriate, taking into account the resources (human and material) and technology available
and the needs of other children sharing these
Is child centred* (see below)
What are a childs best interests
For healthcare to be in a childs best interests, any action or decision taken on behalf of a child must:
- Accommodate the circumstances of the situation
- Consider the childs needs and safety to be paramount
- Consult the child (whenever possible) and relevant others
- Balance this with the wishes and needs of the parents and other carers wherever possible
- Incorporate common sense
- Look at both present and future needs
- Be reviewed regularly and revised if circumstances change (be flexible)
20
References:
Southall DP, Burr S. The Child-friendly healthcare Initiative (CFHI): Healthcare Provision in Accordance with
The UN Convention on The Rights of the Child. Pediatrics 2000; 106(5): 10541064.
Clarke A, Nicholson S. How Child Friendly are you. Paediatric Nursing 2001(13) 5:1215.
Southall DP, Coulter B, Ronald C, Nicholson S, Parke S, Editors. International Child Health Care - A
practice manual for hospitals worldwide.Child Advocacy International. London: BMJ Books; 2002.
Duke T, Tamburlini G. Improving the quality of Paediatric Care in peripheral Hospitals in Developing
Countries. The Paediatric Quality Care Group. Arch Dis Child 2003; 88: 563 565
UNICEF. State of the Worlds Children UNICEF; 2005
United Nations Convention on the Rights of the child (UNCRC). London: The UK Committee for
UNICEF; 2000.
United Nations General Assembly: Convention on the Rights of the Child. New York: United Nations;
1989.available from http://www.unicef.org/crc/crc.htm
21
Section 2
The Standards and their supporting criteria
Child Friendly Healthcare is the best possible integrated healthcare provided by
health workers who minimise the fear, anxiety and suffering of children and their
families by supporting and practicing the following 12 standards:
1. Keeping children out of hospital (and other health facilities or institutions) unless this is best for the
child: Relates to CRC Articles 9, 24, 25, 3
2. Supporting and giving the best possible healthcare: Relates to CRC Articles 2, 6, 23, 24, 37
3. Giving healthcare safely in a secure, clean child friendly environment: Relates to CRC Article 3
4. Giving child centred healthcare: Relates to CRC Articles 5, 9, 14, 37
5. Sharing information and keeping parents and children consistently and fully informed and involved in
all decisions: Relates to CRC Articles 9, 12, 13, 17
6. Providing equity of care and treating the child as an individual with rights: Relates to CRC Articles 2, 7,
8, 9, 16, 23, 27, 29, 37
7. Recognising and relieving pain and discomfort: Relates to CRC Article 19
8. Giving appropriate resuscitation, emergency and continuing care for very ill children: Relates to CRC
Articles 6, 24
9. Enabling play and learning: Relates to CRC Articles 6, 28, 29, 31
10. Recognising, protecting and supporting vulnerable or abused children: Relates to CRC Articles 3, 11,
19, 21, 20, 25, 32, 33, 34, 35, 36, 37, 39
11. Monitoring and promoting health: Relates to CRC Articles 6, 17, 23, 24, 33
12. Supporting best possible nutrition: Relates to CRC Articles 3, 24, 26, 27
There are four supporting criteria common to all the CFH Standards, and although omitted from the
beginning of each of the descriptions of the 12 standards below, in the interests of space, their importance
cannot be overemphasised.
Each of these 4 topics are covered in detail in Section 5
Mission statements.
Education and training. Healthcare standards will not be met unless all healthcare workers have
the motivation and the facilities to keep up to date with current practices. They must also receive
training to allow them to work in line with improved standards.
Data collection and management. This a key component of an effective, functioning health care
system.
22
Audit Participation in audit is an essential process for all those involved in provision of
healthcare. It ensures that necessary changes are made to meet with accepted standards, and that
all aspects of healthcare are kept continually under review
23
STANDARD 1: Keeping children out of hospital (and other health facilities or institutions)
unless this is best for the child
Health care providers, organizations and individual health care workers, share a responsibility to
advocate for children and to reduce the fear, anxiety and suffering of children and their families by
ensuring that they keep a child in a hospital, or other health facility, only when this is in the childs
best interests.
24
Discussion
Best practice is to recognise and treat children with illnesses, disabilities and other physical or mental
health problems in the community as soon as possible as this can prevent children needing a hospital visit
or admission. Also to admit children, or place children in institutions, only if appropriate health care
cannot be given at home. Care at home is always preferable. When care at home is not appropriate, fear
anxiety and suffering can be minimised by making the hospital experience as child friendly as possible.
A child friendly ward entrance (looking from the ward to the hall and lifts)
Good community preventive health programs that include health education, to help parents recognise
when their child is ill, health screening, the monitoring of childrens growth and development and the
close monitoring of pregnant women (safe motherhood programs) can limit the number of children
needing hospital care. Ideally this type of high quality health care is provided by comprehensive primary
health care services that are appropriate, effective, affordable and easily accessible to all families,
regardless of their financial status.
Doctors and nurses are expensive to train and employ. Overseas training programs in rich countries are
not always appropriate for disadvantaged countries. Doctors and nurses receiving training in rich
countries may want to use the skills they have acquired in the well resourced health services they have
become accustomed to and be inclined not to return to their own poorly resourced country. The
International Community has a responsibility to discourage, not encourage, this migration, and to
advocate for better working conditions for health workers in their own countries rather than poach
workers to support their own health services.
A team comprised of different types of health worker with appropriate delegation of tasks can make
health care more accessible to more people. In countries where doctors and nurses are scarce, or not
affordable, effective early healthcare can be given to children by generic health workers (ideally from the
local community) trained to provide a lower level of basic care using guidelines for managing the
25
common conditions (for example WHOs Integrated Management of Childhood Illness (IMCI) Program
with its clear referral guidelines and early management/treatment strategies). The few trained doctors and
nurses can then be deployed to support them and provide a higher level of care in the centres. This system
is cost-effective and works well in Nepal with its sparse population and remote villages.
Such innovative systems to use skills effectively can also improve the delivery of healthcare in
communities in advantaged countries. For example, a peripheral hospital under threat of closure in
Northern Ireland, UK is now staffed solely by nurses who use guidelines to assess and treat minor
accidents and emergencies, and have tele-communication support from doctors in the nearest large centre.
Tele-medicine technology that enables doctors working many miles away to see x-rays and give advice
to the nurses providing the service locally
.
In advantaged countries, even when accessible, affordable integrated health services do exist, children are
still admitted to and remain in hospital unnecessarily. Some of these admissions can be prevented by:
Effective triage when first seen
Rapid same day access to a referral level (specialist) opinion if needed
Appropriate emergency management and treatment
Good communication between all health workers to limit unnecessary delays in treatment and
discharge
Specialist care supervised by referral level/specialist health workers given at home when possible
Referral/specialist level day care facilities whenever possible for assessment, investigation and
treatment so that children can sleep at home if they live nearby
A Child Friendly day surgical unit
26
Many children with complex or chronic illnesses (for example mental health problems, asthma, diabetes,
disability and others) can be successfully managed at home if there are specialised referral services with
attached out-reach services that can provide the necessary support for parents. Care in the home is of
course only feasible when these resources are available, the children live within easy reach of these
services and home conditions are satisfactory.
Standardised admission, daily review and discharge policies, and verbal and written discharge plans can
reduce the length of time a child remains an in-patient. Best practice is to develop these in collaboration
with parents and primary care and/or other relevant community professionals. To be effective they need
to include a diagnosis or reason for the childs admission, a prognosis and clear instructions concerning
any actions, treatment or follow-up necessary that will have implications for carers and health care staff in
the community. There are clear advantages to writing this information into parent-held child health
records
Arrangements for follow-up by the hospital, if this is necessary, and/or prescribing and dispensing drugs
for taking home need to be made well before the child is due to leave so that unnecessary delays for a
family are minimised. Delay in dispensing drugs or a long wait to be discharged for any reason is
unacceptable practice.
Best practice is for the length of stay in an in-patient health facility to depend on research evidence
integrated with local knowledge, and evidence based treatment regimes which should be adopted for the
common childhood conditions. Children should not be kept in hospital for unethical treatments such as
painful intra-muscular injections (when oral drugs would work equally well), for treatments that can be
given at home, or for the convenience of health workers.
In all countries, but particularly in many poorly resourced countries, children are sometimes abandoned in
health facilities. These children often receive inadequate nutrition with minimal stimulation
(developmental and play opportunities) and no normal one-to-one care. An attachment to a single carer is
essential for a childs long-term mental health and development so discharge rapidly to caring foster
families rather than institutions is best practice.
Advocacy by health workers for early fostering and/or adoption for abandoned children and/or those in
need of protection and care is important.
Finally good data management, regular audit leading to evaluated change, and joint education/training
opportunities for all health workers (community health services and the referral level services) will all
contribute to meeting this Standard thereby keeping children with their families at home as much as
possible.
References
United Nations General Assembly: Convention on the Rights of the Child. Articles 9, 24,25, 3. New
York: United Nations; 1989 available from http://www.unicef.org/crc/crc.htm
Hall D, Elliman D, editors. Health for All Children. 4 th ed. Oxford: Oxford University Press. 2003
Department of Child and Adolescent Health and Development, World Health Organisation. Management
of the Child with A Serious Infection or Severe Malnutrition, Guidelines for care at the first referral level
for developing countries. Department of Child and Adolescent Health and Development. Geneva: WHO,
2000
27
Southall DP, Coulter B, Ronald C, Nicholson S, Parke S, editors. International Child Health Care - A
practice manual for hospitals worldwide. Child Advocacy International. London: BMJ Books; 2002.
Department of Child and Adolescent Health and Development, World Health Organisation The Integrated
Management of Childhood Illness (IMCI) - a World Health Organisation Program for delivering
healthcare to children, supported by UNICEF. Geneva: WHO. Available from http://www.who.int/childadolescent-health/integr.htm
Swartz L, Dick J. Managing chronic disease in less developed countries. BMJ 2002; 325:914-5
28
A board with information for parents/carers about how they can ask questions or share a concern. It
gives information about who to contact and how, showing photographs of those responsible for the
different aspects of management and healthcare.
Supporting criteria
1. A transparent (open) management team for a health facility who delegate:
The management of all the important support services to lead health workers who are accountable
and responsible for the organisation, quality, budget and training for their service
Important healthcare tasks (such as immunisation, infection control, breast feeding, resuscitation
child protection, audit, lifelong learning and others) to lead health workers who have
responsibility for the policies, job aides, quality of practice and training
2. Open management of health workers that:
Appoints and dismisses health workers, validates qualifications, assesses suitability for
employment, has a health worker identification system, enables safe staffing levels, identifies and
addresses intimidation (bullying) and has system for disciplining health workers
Screens health workers for health problems, provides advice about the prevention of work related
medical, psychological and emotional problems and supports those in individual health workers
when these occur
3. Provision of effective investigative and therapeutic health support services relevant for the level of
care given.
4. Provision of effective general support services (such as security, food preparation, laundry, cleaning
and other services) relevant for the level of care given and the type of health care environment.
29
5. Essential material resources relevant for the level of care given and the type of health care
environment, including:
Health facilities that are suitable for the level of care given and needed
Appropriate, effective, safe and sustainable clinical and non-clinical equipment (essential list of
equipment compatible with WHO recommendations)
A free or affordable, safe, secure supply of essential drugs and disposables with standardised
policies for their use (essential lists compatible with WHO recommendations)
6. Appropriate evidence-based systems of care, policies, clinical guidelines and other job aides that
are known about and used by all the health workers working in the same healthcare environment.
7. Lifelong (during and after training) learning (education/training) opportunities (self, internal and
external) about the UNCRC and Child Friendly Healthcare and access to published research and other
healthcare literature.
9. Effective management of written information (data) that includes the use and organisation of health
records, coding systems for health problems and the collection and examination of reliable data for
important key indicators about childrens health.
10. Multidisciplinary clinical audit linked to evaluated change/s for all health workers (See Section 5).
11. Access to ethical advice on clinical and research issues for all health workers
12. Risk management procedures owned and run by local health workers linked to wider risk analysis at
hospital and national level. Covered in Standard 3
Discussion
In order to give the best possible care to children and families, health workers need to integrate the
highest quality scientific evidence with clinical expertise and the opinions of the family
(Moyer VA. Elliot EJ. Preface in Evidence Based Paediatrics and Child Health).
Health care of any type that is in a child and familys best interests has to be balanced with what is
possible, and with the needs of other children sharing the same health worker, health facility or health
service.
It is the responsibility of health workers at an organisational level to ensure these services, structures,
resources and activities are in place. It is the responsibility of the health workers who give the care in
partnership with the child and family to access, use and participate in these. If this is not possible because
they either do not exist, or are of low quality, health workers have a responsibility to advocate for these
and to continually try to make it better. Advocacy is an individual and collective responsibility inspired
by strong, but open and accountable leadership that delegates.
There is evidence to show that support services and generic clinical tasks (such as immunisation,
breastfeeding advice, infection control, child protection and others) are usually of higher quality when
delegated, providing the nominated health workers are also given the authority to effectively coordinate
the task and to develop, monitor and maintain the quality of its practice. When developing their services
best practice for these coordinators is to:
30
Follow any existing evidence-based recommendations made by WHO and other International and
National Organisations
Acquire and regularly update their skills and knowledge
Consider the evidence-base for their actions and policies
Lifelong learning opportunities and access to the evidence that supports best possible healthcare are
essential requirements for health workers if they are to increase their skills. Best practice is therefore for
all professional health workers to have access during working hours to a library that has up to date
medical and nursing books and journals, to the Internet, and to general and specialist professional
continuing life-long education/training. However it is important to remember that access to evidence and
other learning opportunities does not necessarily lead to a change from poor practice to good practice.
Policies, standardised systems of care, clinical guidelines and other job aides all contribute to supporting
the best possible healthcare. However to be used successfully they need to be owned and their value
recognised.
Health workers, both professional and non-professional, are valuable. Striving to provide the best
possible healthcare is challenging and stressful, physically, intellectually and emotionally. It is therefore
not surprising that health workers are more likely, than the general population, to develop work-related
physical and mental health problems. Open terms of employment and being mentored and nurtured by
employers helps prevent their loss to the country, health service and health facility. Systems for the
support and care of the care givers are essential if they are to provide the best possible service.
Good data management is also important as reliable and appropriate data are needed to support all aspects
of health care planning and provision, audit and advocacy. This starts with the clinical record, includes
the recording of high quality information, the effective organisation and management of records, the
reliable coding of disease and the collection and examination of this information to produce reliable
statistics for the key childhood indicators of health. All health workers have a vital part to play in this
chain.
31
Effective manual data management in Moldova reflected by this well organised low-cost storage system
The final criterion for providing the best possible health care is to have access to reliable independent
advice on the many ethical issues associated with clinical practice and research.
However difficult, best practice is to allow and make time (without compromising patient care) for these
important support activities during normal working hours. All these support activities are described in
more detail in later sections of this book, especially in Section five which explains the best way to do
these.
References
United Nations General Assembly: Convention on the Rights of the Child. Articles 2, 6, 23, 24, 37. New
York: United Nations; 1989 available from http://www.unicef.org/crc/crc.htm
Nunez O, Carroll W, Hopkins M, Southall DP. Ethical systems within the hospital. In Southall DP,
Coulter B, Ronald C, Nicholson S, Parke S, editors. International Child Health Care-A practice manual
for hospitals worldwide. Child Advocacy International. London: BMJ Books; 2002.p11-15
.
District Health Facilities Guidelines for Development and Operations. WHO Regional Publications,
Western Pacific Series No 22.WHO 1998. Available from
http://www.wpro.who.int/pdf/pub/2003catalogue.pdf
Moyer VA, Elliot EJ, Davis RL, Gilbert R, Klassen T, Logan S, Mellis C, Williams K, editors. Evidencebased Paediatrics and Child Health.London. BMJ Books; 2000.
Meates M, Duperrex O, Gilbert R, Logan S, editors. Practising Evidence-based Child Health. Abingdon:
Radcliffe Medical Press; 2000
32
Committee on Quality of health care in America, Institute of Medicine. Crossing the Quality Chasm: A
new health system for the 21st century. Washington, DC: National Academy Press; 2001.
World Health Organisation. Maintenance and Repair of Laboratory, diagnostic imaging, and hospital
equipment. Geneva: WHO; 1994.
World Health Organisation. Counterfeit drugs guidelines for the development of measures to combat
counterfeit drugs. Geneva: WHO; 1999
World Health Organisation Model Formulary, Geneva: WHO; 2002. Available from
http://www.who.int/medicines or
http://www.who.int/medicines/organization/par/edl/expcom13/eml13_en.doc
Newton PN, White NJ, Rozendaal JA, Green MD. Murder by fake drugs. BMJ 2002; 324: 800 - 801.
Salvatierra-Gonzalez R, Benguigui Y. Antimicrobial resistance in the Americas magnitude and
containment of the problem. Washington DC: Pan American Health Organisation. 2000
Kraesten E; Vandepitte J. Basic Laboratory Procedures in Clinical Bacteriology. 2 nded. Geneva: WHO;
2001.
World Health Organisation. Manual of Basic Techniques for a Health Laboratory, 2 nd ed. Geneva: WHO;
2002.
World Health Organisation. Medical Records Manual A guide for Developing Countries. Geneva:
WHO; 2002.
Tamburlini G, Ronfani L, Buzzetti R. Development of a child health indicator system in Italy. Eur. J. of
Public Health 2001; 11: 11 17
Williamson A, Marcovitch H. Getting ADC to paediatricians in developing countries. Arch. Dis. Child.
2001; 85(1).
Vincent C, Taylor-Adams S, Chapman EJ, Hewitt D, Prior S, Strange P, Tizzard A. How to Investigate
and Analyse Clinical Incidents: clinical risk unit and association of litigation and risk management
protocol. BMJ 2000; 320: 777- 81.
Davis D A, Thompson M A, Oxman A D, Haynes B. Evidence for the effectiveness of CME. A review
of 50 randomised controlled trials. JAMA 1992; 268: 1111 1117
Weindling AM. Education and Training: continuing professional development. Current Paediatrics 2001;
11: 369374
33
1. Effective security and general safety policies and systems of care to protect children, carers, visitors
and health workers from accidents or other dangers while they are in a health facility.
2. Policies and systems that are used by everyone to keep equipment and health care environments clean
enough to minimize the risk of acquiring a healthcare related infection
3. Other general infection control policies that are used by all health workers to minimize the risk of
acquiring a healthcare related infection
4. Systems and policies that are used by all health workers to minimise work related physical, emotional
and mental health problems in health workers
5. Evidence-based clinical guidelines and other job aides that are followed by all professional health
workers in the healthcare environment. These include ones about hand hygiene, fire safety and
evacuation, no smoking where there are children, the dangers of advertising, safe sharps disposal, and
management of needle stick injuries, lifting patients, food safety, laundry safety, safe waste disposal and
radiation protection. (See also standard 2)
Discussion
Every health worker has a responsibility to give healthcare safely and to make sure that the places where
they give care are as secure, clean and child friendly as possible.
Clean, safe Child Friendly ward in a hospital in Wales
34
It is very important to protect themselves and the children and families from dangers, also to protect
possessions from damage, loss or theft. Possible personal dangers for children, parents/carers, visitors
and/or health workers include:
Physical harm, for example abduction or a deliberate injury
An accidental injury from unsafe equipment, fittings, electrics, furniture, buildings
An unwanted side-effect from any system of care or treatment program
A healthcare related infection
A work related injury or illness such as HIV/AIDS, hepatitis, back injury or a stress related
mental health problem.
To prevent all these dangers best practice is for health workers and families to work together to identify
possible problems and solutions to prevent these. Health workers need to be able to report openly about
any security or safety concerns, without fear of losing their job or harming their career prospects. Families
need to be able to voice their concerns without fearing that their childs healthcare may be adversely
affected. Best practice is for all health facilities to have an effective system to assess, prioritise and
investigate these concerns properly.
To give healthcare safely there need to be enough health workers to look after the children that need
healthcare throughout the twenty-four hours. All too often in many of the countries visited during the
pilot project many health workers were present during the working day but very few during the late
afternoons, evenings and nights. Children are ill throughout the 24 hours, therefore staff need to be
allocated in safe numbers for every time period. Best practice is always to have enough health workers on
duty to ensure each individual childs safety. When there are few health workers it is even more important
to distribute these sensibly
To help limit the number of clinical mistakes, best practice is for everyone to use the same policies and
guidelines for giving healthcare programs and treatments, and also to use other job aides as reminders. To
develop a sense of ownership these need to be developed and introduced following wide consultation. It is
also important for clinical guidelines and other job aids to be compatible with WHO and/or other
International guidelines, and with any country and/or regional guidelines.
Examples include:
security, cleaning, waste disposal, hand washing and the control of infection.
common investigations and clinical procedures, blood transfusion.
lifting patients
the use of drugs and disposables and quality control measures for these that will minimise harm
caused by unnecessary or inappropriate treatment.
safe and appropriate use of blood and blood products
35
Responsibility for these and the management and prioritisation of risk can be delegated to named lead
health worker/s who is/are given the authority to develop, monitor and change these as well as coordinate
related activities.
Safety and security for people and possessions will also be helped by:
The use of name badges by health workers and a method for identifying inpatient children, such
as wrist bands
A security system and/or security health workers at the entrances of health facilities
Lockable storage facilities: but not for emergency equipment as this needs to be immediately
available
Having a system for children, families and health workers to report and investigate accidents,
drug administration errors and infections acquired during an in-patient stay
Accounting for health facility property
Accountability for, and secure storage of drugs and other disposables
Giving an individual named health worker the responsibility for protecting equipment, books and
other items
Using a structured system to reduce or eliminate losses due to accident or misadventure (Risk
management). The aim of risk management is to improve the quality of care by identifying and
reducing risks that might result in damage to a patient, visitor or health worker, or result in a
complaint and/or litigation
To minimise the dangers associated with a fire or other disaster, best practice is for all individual health
workers to:
Know about evacuation, fire management and other general safety measures, and to contribute to any
disaster practices.
Other ways to reduce accidents and harm include:
Keeping the utilities (electrical circuits and plumbing), buildings, fittings, medical and other
equipment and furniture in a good state of repair by good organisation and management, regular
maintenance, risk-prioritised repairs and funding.
Protecting children, their carers and health workers from radiation by using safe x-ray machines, lead
aprons, gonad protectors and guidelines for which health problems need an x-ray and which do not
36
Safety gates to help prevent children leaving a ward and on stairs that children may use.
Window safety catches or locks to prevent children falling from opened windows.
Banning possibly harmful advertising from a health facility, for example of formula milks
Not allowing smoking in areas where there are children, oxygen cylinders or flammable
liquids/gases
37
The effectiveness of hand washing and the cleanliness of the washing facilities and toilets in a health care
environment correlate well with the healthcare acquired infection rate.
The infections are caused by the micro-organisms that are always around in a healthcare environment.
They contaminate the hands and uniforms of health workers and colonise the sinks and other equipment.
Why is cleaning so important?
At least half of healthcare related infections can be prevented if health workers keep their hands, their
uniforms, the environment and the equipment scrupulously clean to reduce the number of organisms
around. It is essential that each individual health worker examines their own practice, keeps up-to-date
with infection control policies, especially hand-washing and follows such policies themselves as well as
ensuring that other health workers also comply.
Effective hand washing is the most important way a health worker
can prevent a healthcare acquired infection
38
39
An alcohol based product to use for hand cleaning when it is not possible or practical to wash
hands
Clean clothes always worn by health workers
A no touch policy that is followed by everyone. This means not touching anything or anyone
unless essential (the affectionate hugging of children is an essential act that must be allowed) and
only after hand washing.
Unhygienic, unsafe
parents/carers kitchen
Laundry
All bedding/curtains/towels/flannels must be regularly washed with a detergent/disinfectant. Access to
Industrial quality washing machines is preferable. Water temperatures of at least 60 degrees C and
preferably above should be used to destroy the micro-organisms on clothes and other materials. The
uniforms of health workers need to be kept clean and used only in the same clinical area to prevent
moving micro-organisms from one clinical area to another. If health workers visit more than one clinical
area they should change uniforms or clothes between each area or wear disposable protective clothing
over their own clothes when they move to a different clinical area
40
The equipment and furniture and the whole of the hospital including the grounds must also be kept
scrupulously clean.
A scrupulously clean environment is the responsibility of each and every person in the health care
environment
Health workers who clean are best supervised by professional health workers and given adequate status
and pay that recognises the importance of the work they are doing. They need access to sufficient
cleaning agents and materials, preferably colour coded for the different areas to be cleaned and induction
training about the health facilitys policies and cleaning systems.
Effective and supervised cleaning policies and systems for cleaning the entrances, corridors, wards
(floors, walls, window-sills, light fittings and curtains), toilets and washing facilities, kitchens and all
other areas in a health facility will contribute to reducing risk of acquired infections and should cover:
Cleaning methods used for all these different areas, also fittings, fixtures, furniture, bedding and
other non-clinical equipment
Cleaning frequency
Cleaning materials and for what - colour coding of cleaning cloths/materials for use on different
surfaces can be helpful.
Use of cleaning agents, including disinfectants in appropriate dilutions for the task
Effective management of spills of body fluid (blood, urine, vomit, faeces and saliva etc.)
The cleaners or, if cleaners are not always available, others need to be trained and supervised by
the senior health worker for the clinical area.
Waste disposal systems and waste separation. Safe waste disposal systems and policies will
prevent body fluids, faeces, drugs and disposables being a danger to others .
All these issues may be seen as costly for a health service but save costs when balanced against
the cost of the increase in hospital stay due to infection, the additional medications needed and
the sometimes unnecessary deaths.
41
What else can be done to reduce the risk of a healthcare related infection?
Micro-organisms become more difficult to treat if they develop a resistance to antibiotics. This occurs if
antibiotics are used indiscriminately. Best practice is for every health facility to develop and use an
antibiotic policy to control and restrict the use of antibiotics. For this to be effective all prescribing health
workers need to respect and follow the policy.
Other ways of reducing infection include:
Limiting the number of people who look after a child. The risk of cross contamination is
reduced if a childs parent/carer does as much of the childs care as possible and the number of
health workers who have contact with the child is limited, particularly in high-risk areas such as
intensive care
Avoiding crowding. Adequate space between beds will also limit the risk of cross-infection
42
Having a system to ensure that equipment, surfaces and other objects are cleaned before use by
another child
Having a lead health worker and when resources permit an infection control team to develop and
supervise all the infection control practices following wide consultation.
Having a wound management policy (including an umbilical cord management policy)
Having healthy staff
Best practice is for all health workers to have regular training about these security and safety issues and
an opportunity to audit compliance with the policies to see if these are achieved at the best possible level
with the resources available.
References:
United Nations General Assembly: Convention on the Rights of the Child. Article 3. New York: United
Nations; 1989 available from http://www.unicef.org/crc/crc.htm
OHiggins A, Nicholson S. Prevention of hospital-acquired infection. In Southall DP, Coulter B, Ronald
C, Nicholson S, Parke S, editors. International Child Health Care- A practical manual for hospitals
worldwide. Child Advocacy International. London: BMJ Books; 2002.p16-18.
Clinical Risk Management/risk management programmes. Available at riskmanagement@mps.org.uk
The International Federation for Infection Control. Infection Control: Basic Concepts and Practices. 2 nd
ed. Available at http://www.ific.narod.ru/Manual/toc.htm
Infection Control Nurses Association. CD-ROM training programme for heath workers: Hospital
Infection Control Principles and Practice. Available from www.icna.co.uk
Infection Control Nurses Association . Hand Decontamination Guidelines. Available from
www.icna.co.uk
Pellowe C, Pratt R, Loveday H, Harper P, Robinson N, Jones SRLJ. The epic project: updating the
evidence base for national evidence-based guidelines for preventing healthcare-associated infections in
NHS hospitals in England. A report with recommendations. The Journal of Hospital Infection. 2005;
59(4):373-374.
World Health Organisation. Tools for Assessing the Operation and Maintenance Status of Water Supply
and Sanitation in Developing Countries. Geneva: WHO 2001
Foodlink The Food and Drink Federation. The A to Z of food safety. Available at
http://www.foodlink.org.uk.
Pan American Health Organisation. The WHO Ten Golden Rules for Safe Food Preparation: WHO: 1989.
Available at http://www.paho.org/english/ped/te_gold.htm
Adams M, Motarjemi Y. Basic Food Safety for Health Workers. Geneva: WHO 1999.
World Health Organisation. Foodborne Diseases: a focus for health education. Geneva: WHO; 2000
World Health Organisation. Safe Blood and Blood Products Distance learning materials, WHO revised
edition. Geneva: WHO 2002.
43
World Health Organisation Blood Transfusion Safety. Clinical use of blood-Handbook and CD-Rom.
Geneva: WHO; 2002.
Safe blood starts with me. Blood saves lives. WHO. Leaflets from Department of Blood safety and
clinical Technology. www.who.int/topics/blood_safety/en/
Department of Health. Better blood Transfusion 2002: www.doh.gov.uk/blood/bbt2
Professional Core Competencies for Infection Control Nurses. ICNA Nov 2000. www.icna.co.uk
World Health Organisation. Maintenance and Repair of Laboratory, diagnostic imaging, and hospital
equipment. Geneva: WHO; 1994.
DAlessandro U. Insecticide treated bed nets to prevent malaria. BMJ 2001; 322: 249-250
Abdulla S, Schellenberg JA, Nathan R, Mukasa O, Marchant T, Smith T, et al. Impact on malaria
morbidity of a programme supplying insecticide treated nets in children under two years in Tanzania:
community cross-sectional study. BMJ 2001; 322: 270-273
World Health Organisation. Counterfeit drugs guidelines for the development of measures to combat
counterfeit drugs. Geneva: WHO; 1999
World Health Organisation Model Formulary, Geneva: WHO; 2002. Available from
http://www.who.int/medicines or
http://www.who.int/medicines/organization/par/edl/expcom13/eml13_en.doc
Newton PN, White NJ, Rozendaal JA, Green MD. Murder by fake drugs. BMJ 2002; 324: 800 - 801.
S Ratanawijitrasin S, Wondemagegnehu E. Effective Drug Regulation A Multicountry Study. Geneva:
WHO; 2002.
Mangum SS, Gruendeman B,. Infection Prevention in Surgical Settings. London: Elsevier; 2001.
World Health Organisation. WHO global strategy for the containment of Antimicrobial Resistance.
Geneva: WHO; 2001. Available from http://www.who.int/csr
Kraesten E; Vandepitte J. Basic Laboratory Procedures in Clinical Bacteriology. 2 nded. Geneva: WHO;
2001.
Appel W, Engbaek K, Heuck CC. Basics of Quality Assurance for Intermediate and Peripheral
Laboratories, 2nd ed. Geneva: WHO regional publications; 2002.
World Health Organisation. Manual of Basic Techniques for a Health Laboratory, 2 nd ed. Geneva: WHO;
2002.
Committee on Quality of health care in America, Institute of Medicine. Crossing the Quality Chasm: A
new health system for the 21st century. Washington, DC: National Academy Press; 2001.
Vincent C, Taylor-Adams S, Chapman EJ, Hewitt D, Prior S, Strange P, Tizzard A. How to Investigate
and Analyse Clinical Incidents: clinical risk unit and association of litigation and risk management
protocol. BMJ 2000; 320: 777- 81. Available from bmj.com.
44
Vincent C, Taylor-Adams S, Stanhope N. Framework for analysing risk and safety in medicine. BMJ
1998; 316:1154-7
45
46
Health workers need to always respect the parents role as the main carers. This means helping
parents/carers to care for their child as they would at home by working in partnership with parents/carers.
This includes enabling the child to follow their familiar routines wherever possible.
47
48
the number of different health workers each child sees is reduced (a patient allocation system). The use of
this system can also help with the organisation of care and improve information sharing between health
workers and families.
A simple reminder given to a child
about their nurse for the day
Note: In some countries it
might be more appropriate
to use Nurse and surname
Research shows that a welcoming, stimulating, pleasant environment that provides opportunities to play
and learn contributes to a faster recovery from illness, and faster catch up growth and development after a
slowing or stopping due to illness. The minimum quality for a healthcare environment is one that is
appropriate to the childs age and level of development and similar, or better, than found in the average
familys home.
Such suitable environments are easier to provide when children are cared for in childrens areas or wards
with different specialties going to the children rather than children going to adult areas for specialist
services. Many in-patient facilities do have separate areas for caring for children of different ages. It is
best if this age separation is flexible and more concerned with developmental age than actual
(chronological) age. If it is in the childs best interests to be cared for on an adult ward, it is important to
ensure that the children are cared for in a special area of the ward and that they have access to the same
range of stimulating opportunities, environment and care as provided in childrens wards.
To minimise fear, anxiety and suffering during investigations and treatments, best practice is for treatment
areas, X-ray departments and other areas used by children also to have Child Friendly environments,
and be staffed by health workers with Child Friendly behaviours and attitudes. Stairs, long corridors,
waiting areas and treatment rooms can all be especially frightening for children. These can be made
Child Friendly at little cost by using local materials and resources thus reducing a childs fear, anxiety
and distress.
Child Friendly stairs, UK hospital
49
It is important that healthcare environments for children are easy for families to reach. Often childrens
wards are on the high floors of multi-storey buildings. Even if there is a lift, it is still difficult for parents
to access these, especially if they are carrying their children, other children and/or other possessions. It is
difficult to escape down many flights of stairs if the building needs evacuating, especially when carrying
frightened children. It is important to provide access to and supervise outside play areas (especially
beneficial to children recovering from illnesses).
Hospitals need to have suitable and adequate facilities for resident parents/carers including somewhere to
sleep, preferably near the child (particularly if the child is breast fed or very young). For young children
beds that provide enough room for both child and parent to sleep together can be beneficial. Best practice
is to have a chair at the bedside for the parent/carer to sit on during the day, storage for their possessions,
adequate washing and toileting areas, food and drink provision and a suitably furnished area for
relaxation. Best practice is for these to be of the same standard as found in the average family home.
50
It is also important to have private, suitably furnished areas for giving explanations and other sensitive
information to parents/carers and for mothers to breastfeed, the latter with facilities for expressing breast
milk The support, care and understanding parents/carers and families need if their child dies is best
provided by their familiar health workers in an environment that is as pleasant as possible. Best practice
is always to advise parents/carers about all the facilities, and to provide written or pictorial instructions
about their use
Poverty is repeatedly shown to have a direct link with a childs health, educational achievement and
emotional development. When a poor family is unable to meet their childs needs, the State has a duty to
intervene by providing financial and other support. Health workers are ideally placed through their
intimate knowledge of a family to identify poverty and other adverse psychosocial circumstances, and to
support a familys response to their individual problems. Best practice is to identify any special
difficulties or problems for the child and family by asking about these early, ideally in the initial history
taking. Any special difficulties and problems need to be taken into account when planning care and
supported as much as possible. This support includes referring a child and/or their family to a social
welfare or similar service, if these exist.
To prevent additional anxiety, fear and suffering, it is particularly important to support the emotional
needs of all ill children and their families.
Audit can include children and parent satisfaction surveys, looking at the number of children cared for
in adult wards without access to the facilities available to children compared with the number cared for in
separate childrens areas
Finally health workers also need support if they are to cope with the considerable stresses imposed by
giving this child centred care in partnership with parents. Access to support systems enable health
workers to avoid the burn-out that may lead to incapacity and/or deprive the health service of their skills
and experience (See also Section 5).
References:
United Nations General Assembly: Convention on the Rights of the Child. Articles 5, 9, 14, 37 New
York: United Nations; 1989 available from http://www.unicef.org/crc/crc.htm
Royal College of Paediatrics and Child Health. Helpful Parenting. London: RCPCH; 2002
Stenbak, E. Care of children in hospital : a study. Copenhagen Albany: WHO Publications; 1986.
Lansdown R. Children in Hospital. A guide for Family and Carers. Oxford; New York: Oxford University
Press; 1996
Bowlby J. A secure base-clinical applications of attachment theory. London: Routledge, 1988
Bowlby J. Maternal care and mental health. Geneva: WHO; 1951
Bowlby J. Child Care and the growth of love. 2 nd ed. Harmondsworth: Penguin; 1965
51
52
STANDARD 5:
Sharing information and keeping parents and children consistently
and fully informed and involved in all decisions.
Health care providers, organizations and individual health workers, share a responsibility
to advocate for children and to reduce the fear and suffering of children and their families
by ensuring that they keep parents and children consistently and fully informed and
involved in all decisions
Supporting criteria
1. The wearing of name badges by all health workers who also introduce themselves to children and
families:
2. A system for making children and families aware of their rights to information:
3. Policies, systems and/or practices that ensure children and families are given sufficient understandable
information about:
Their specific health problem/s
Any changes in their condition
Investigations and procedures
(these make it easier for them to contribute to decision making, to give fully informed consent and to
share any necessary special care)
4. Giving information to children and families about the ward facilities and routines, and about relevant
general health issues:
5. Interpreters who are available, and used when necessary
6. Systems to investigate and address complaints, positive comments and to seek the opinions, views and
ideas of all health workers, children, their parents and families
7. The sharing of healthcare related information by health workers in a way that enables consistency of
information giving to children and families, confidentiality, and clinical effectiveness
8. Ways of sharing non-clinical (general) information between health workers that are effective.
9. Having and using communication tools, appropriate for the circumstances, to aid effective
communication (information sharing), especially for summoning help urgently
Discussion
People who use health services need to know what to expect, how to use the services provided, who to
complain to if something goes wrong and how to do this, and to be fully informed in a way that they
understand about anything that might affect them. These issues are best covered in a written statement
that is prominently displayed in the healthcare environment
53
Ward rules
54
Health workers know the names of their patients and their families. Children and families want and have a
right to know the names of the health workers looking after them. Best practice is therefore for all health
workers to wear identification (such as name badges) and to introduce themselves to the child and family.
55
Some individual health workers can feel protective about the families they look after. While this is
usually good, it can sometimes create a dependence that causes families to lose confidence in the care
given by other health care providers. This is made even worse if a competitive atmosphere develops
between different health workers and health care environments, especially when one undermines the care
of the other. Such undermining makes it difficult for families who may need the care that can only be
provided by the denigrated health workers or health facility at some future time. It is therefore important
for health workers working in different situations to support and communicate well with each other, to
share and promote consistent good practice and to be positive about all who contribute to providing
healthcare for children and families, even if mistakes have been made.
56
Communication tools vary depending on the technologies available and the task. Even basic low cost
tools such as hand bells for summoning help and hand made hospital signing systems will achieve
objectives. The important priority is to identify what needs to be communicated and then to decide what
method or tool to use. It is up to individuals to employ the technologies available in the most appropriate
way. A well-sited communication board for sharing non-clinical information may be as effective as
individual more expensive handouts. The important issues are that the information is put on the board, the
board is easy to see, the information is understandable and in large enough print for people to read, or in
pictorial format for families unable to read.
It is also important for parents/carers to be able to share information about their child with other family
members and friends. The resources for and a system to enable this are of paramount importance,
especially for distant family members.
A low-cost private manned telephone in a childrens
hospital in Eastern Europe. This enables parents/carers
to contact their friends and relatives. Until the retired
health worker in the picture persuaded the authorities to
allow him to install the telephone, parents/carers had no
secure way of contacting their relatives.
Finally best practice is to audit compliance with the policies and systems for information sharing and
participation to make sure they are achieving their objectives.
References
United Nations General Assembly: Convention on the Rights of the Child. Articles 9,12,13, 17 New
York: United Nations; 1989 available from http://www.unicef.org/crc/crc.htm
Leavitt L. When Terrible Things Happen A parents Guide to Talking with Their Children. American
Academy of Pediatrics, Johnson & Johnson Pediatric Institute LLC. Available from www.jjpi.com
Gillick competence. Gillick v West Norfolk and Wisbech Area Health Authority [1985] 3 All ER 402
(HL).
Flatman D. Consulting children: are we listening? Paediatr Nurs. 2002 Sep;14(7):28-31.
Richman N, Save The Children Fund. Communicating with Children. Helping Children in Distress.
London: Save the Children; 1993.
Richman N. Helping Children in difficult circumstances-a teachers manual (Save the Children,
Development Manuals). London: Save The Children; 1996.
Reddy N, Ratna K, editors. A journey in childrens participation, Bangalore: The Concerned for Working
Children;2002. Available from www.workingchild.org
57
Silverman J, Kurtz S, Draper J. Skills for Communicating with Patients. Abingdon: Radcliffe Medical
Press; 1998
Misteil S. The Communicators Pocket book. Management Pocket Books Laurel House, Station
Approach, Alresford, Hants, SO24 9JH. UK; ISBN 1 870471 41 5
58
STANDARD 6:
rights
Health care providers, organisations and individual health workers, share a responsibility to
advocate for children and to reduce the fear, anxiety and suffering of children and their families by
ensuring that children have equity of health care and by treating them as individuals without
discrimination giving them culturally and developmentally appropriate rights to privacy, dignity,
respect and confidentiality.
Supporting criteria
1. Policies and systems of care that ensure equal access to and opportunities for preventive, investigative,
curative and palliative health care that meet the needs of the individual child
2. Policies and systems of care that ensure there is no discrimination concerning age, sex, race, ethnicity,
legitimacy, disability or any other reason
3. Policies and systems of care to ensure individuality (that include birth registration and use of the date
of birth, a clinical record number, use of preferred name and language, provision of personal space,
knowledge of personal preferences, access to and use of personal possessions and clothes).
4. Policies and systems of care that ensure respect and preservation of dignity from degrading and
unnecessary procedures and treatments.
5. Policies and systems of care that ensure cultural and developmentally appropriate visual and sound
privacy (especially when dressing, washing, toileting, when undergoing procedures, being given
treatment and when dying; also provision of privacy for possessions):
6. Policies and systems of care that ensure written and verbal confidentiality.
Discussion
Despite ratification of the UNCRC, inequity and discrimination continue to occur in most countries
regardless of resources. A childs right to survival should not be dependant on their sex, age, legitimacy,
whether or not they have a disability, their family wealth, racial origin, religion, ethnic origin or any other
59
factor. Health workers are ideally placed to set an example to others by developing systems and policies to
ensure there is no discrimination.
Equity of health care for children is dependant on many things. How far the family live from a health
facility, whether there are health workers to provide care near a childs home, whether there is transport to
a health facility and/or whether there is a health facility within easy reach, all influence equity. However
the two most important influencing factors in many of the worlds countries are the individual familys
wealth and their knowledge about health.
In many countries there are often good private health services but inadequately resourced public services
that are inaccessible to many families. Even if a child from a poor family does access the services,
inequity remains if the family cannot find the money for investigations, necessary drugs and treatments or
experience a lower level of nursing and medical care than others.
In well-resourced countries there can still be differing qualities of care given in different geographical
areas and by different services in the same health facility. Children who are admitted to separate
childrens hospitals or to childrens wards generally get better care and opportunities than children cared
for on adult wards; for example they have better access to play facilities and specialised nursing skills.
Some children looked after in a childrens ward are also seen in adult facilities such as accident and
emergency, x-ray and some surgical outpatient departments. These departments may not always meet the
needs of the differing age groups of child patients who use their services.
Country and global inequity also exists for investigation and treatments, particularly regarding the
availability and affordability of appropriate essential drugs and other clinical equipment. Advocacy to
drug companies to make drugs more affordable in the disadvantaged countries often helps and needs to
continue. Drug donations need regulation to ensure they are needed, appropriate for their purpose, of good
quality and in-date. Drugs should not be tested without informed consent in any country and continued
advocacy will be needed to ensure patient safety.
Equity is not only about giving the same care to each child, but is also about giving the care necessary to
meet the individual childs health needs.
A child has a right to be recognised and respected as a unique person with individual physical, emotional,
social and spiritual needs. Health workers can respect a childs individuality by ensuring that they:
Approach a child in an age and developmentally appropriate way
Use the childs preferred name
Give a child their own health registration number at birth and ideally also a written birth
certificate when there are the resources to do this
Ask about and accommodate when possible and appropriate a childs likes and dislikes
Allow personal space and personal possessions such as clothes and toys
Seek, listen to and acknowledge the childs opinions, views and ideas
Ensure that a child feels he or she always matters.
Include any special needs in a childs daily care plan and make this plan in conjunction with the
child and parents
A child also has the right to have their dignity preserved, their privacy respected and confidentiality
maintained (all appropriate to age and culture). Frequently, these rights are not respected for a child. In
addition to having policies and systems of care, constant vigil is needed by health workers to ensure that
they do not contribute to any unnecessary fear, anxiety or suffering by failing to respect these rights.
60
The inclusion of education/training about the articles of the UNCRC and other human rights topics in the
core training curriculum of students and in the regular life-long learning for health professionals will help
all health workers understand and meet this Standard.
References
United Nations General Assembly: Convention on the Rights of the Child. Articles 2, 7, 8, 9, 16, 23, 27,
29, 37. NewYork: United Nations; 1989 available from http://www.unicef.org/crc/crc.htm
Dimond B. Patients rights, responsibilities and the nurse. 2nd ed. Salisbury: Quay Books; 1999.
Human Rights Act 1998. London: The Stationery Office; 1998. Available from
http://www.hmso.gov.uk/acts/acts1998/19980042.htm
Marshall K. Childrens rights in the balance. London: Stationary Office Books; 1997
Verhellen E. Monitoring Childrens Rights. The Hague; Boston: Martinus Nijhoff; 1996
Franklin B. The handbook of childrens rights: comparative policy and practice. London, New York:
Routledge; 1995
British Medical Association. Consent, Rights and Choices in Healthcare for Children and Young People.
London: BMJ Books; 2000
Aldridge M, Wood J. Interviewing children a guide for child care and forensic practitioners. Chichester,
New York: Wiley; 1998
Sheikh A, Gatrad AR, Editors. Caring for Muslim Patients. Abingdon: Radcliffe Medical Press; 2000
Alderson P. Young Children's Rights, Exploring Beliefs, Principles and Practice. London: Save the
Children. Jessica Kingsley Publishers; 2000
61
STANDARD 7:
Health care providers, organisations and individual health workers, share a responsibility to
advocate for children and to reduce the fear, anxiety and suffering of children and their families by
ensuring that they recognise, assess and relieve the physical and psychological pain and discomfort
of children.
Supporting criteria
1. A separate pain and other symptom management/palliative care service/s with lead health
professionals and/or multi-disciplinary team/s
2. Systems of care, guidelines and job aides (for example tools to assess and relieve pain) to help with
symptom recognition, symptom assessment and restraint for procedures
3. Written guidelines, evidence based wherever possible, used by everyone to help with symptom relief,
that include advice on the relief of different types of pain and other distressing symptoms (both physical
and psychological), and on how to use non-pharmacological and pharmacological pain relieving
strategies in the different ages groups:
4. Material resources including:
A safe, secure supply of free or affordable essential drugs for symptom relief that includes opiates
and non-opiates
Distraction toys and other resources to aid non-pharmacological pain and other symptom
management
5. The use of individual pain (and other symptom) plans made with the children and their parent/carer
6. Psychosocial support for children, families and health workers
Discussion
The pilot project found large numbers of children in the participating countries suffering from
uncontrolled pain and other distressing symptoms, both physical and psychological.
62
Improved technology and potential advances in care do not always protect or improve the treatment of
these distressing symptoms and can on occasion be an additional cause. Routine procedures (without pain
relief), such as dressing wounds are frequent causes of unnecessary pain and suffering for a child. In some
countries it is common for a child to be paralysed by drugs or partially sedated without concurrent and
appropriate pain relief.
The State has a role to play in making it better for children by not restricting or blocking the availability
of vital pain relieving drugs (including opiates) due to security concerns or outdated and mistaken beliefs
about their appropriateness for use in children and misplaced concerns about risks of addiction.
In countries where opiates are available, there may be a reluctance to use them due to these misguided
beliefs and also a lack of understanding about how to use them. Whilst it is upsetting for health workers
when they are unable to help a distressed child, the effects on the child and their family are much worse
and can only be imagined, especially if the child has a chronic illness, a terminal illness or any other lifelimiting condition.
It is ethically wrong and a failure of a health professionals duty for a child to suffer from uncontrolled
pain or other distressing symptoms. This is particularly the case for a child who has a permanent
disability that is associated with chronic symptoms or one who cannot be cured of their illness and may
be near the end of their life. Relieving pain and distressing symptoms is not always about cure, but is
about making the experience of living now more bearable (that is improving the quality of remaining
life).
Effective relief from pain and other distressing symptoms from birth to adulthood could be better if health
workers:
Were more aware of the suffering and discomfort that all children may experience (including
newborn babies) due to pain and other distressing symptoms
Always anticipating a childs pain and other distressing symptoms
Gave a higher priority to relieving each individual childs pain and other distressing symptoms
Made greater use of pain and symptom relieving drugs, both non opiates and opiates
Understood and used simple non-pharmaceutical methods that can help (supportive, cognitive,
behavioural and physical)
Knew about and anticipated all the things that can make the experience of pain or other symptom
worse.
To make it better best practice is for health workers to have core (during initial training) and regular
education/training opportunities on the recognition, assessment and treatment of pain and other
distressing symptoms. Best possible practice is also facilitated by having, whenever possible, separate
skilled health professionals who lead and guide the treatment of pain and other symptoms. Having a
multidisciplinary team dedicated to symptom relief and other aspects of palliative care, and using
standardised guidelines for managing pain and other distressing symptoms, are known to be effective
ways of improving care and sharing good practice.
The childs normal health worker working together with the child and their carers (who know the child
best) can often reduce pain and other distressing symptoms by:
Planning each individual childs care as each child responds differently to pain and other
distressing symptoms.
63
Anticipating pain and taking effective measures and/or giving drugs before the symptoms occur,
for example before a procedure or operation. Children with recurrent distressing symptoms
should not wait for these to re-occur before receiving relief.
Using pain/symptom assessment tools to help them recognise and assess a childs symptoms and
guide the care they need.
Giving drugs in a way that does not cause more pain and distress. Drugs are often still given in a
way that is painful for the child, for example by intra muscular injection. The same drugs are
frequently available and equally effective as an intravenous or oral preparation, often at a lower
cost.
Advocating for the childs needs to be met, if they are unable to meet these needs themselves.
Before using drugs, or where they are unavailable there is much that can be done to relieve suffering and
make an unpleasant experience more bearable, such as:
Being honest with the child and preparing them for what might be a painful experience can help
them to cope. Anxiety and mistrust of health workers will make the experience worse
Using appropriate play, stimulation and distraction to help in the management of pain and other
symptoms
Using heat, cold, touch and other comfort measures as these can sometimes help the distress of
pain and other symptoms.
Giving psychological support, simple kindness and involving parents and other familiar carers
where possible.
References
United Nations General Assembly: Convention on the Rights of the Child. Articles 19. NewYork: United
Nations; 1989 available from http://www.unicef.org/crc/crc.htm
Southall D. Pain control in children. In Southall DP, Coulter B, Ronald C, Nicholson S, Parke S, Editors.
International Child Health Care- A practical manual for hospitals worldwide. Child Advocacy
International. London: BMJ Books; 2002. p87-107.
World Health Organisation. Cancer Pain Relief and Palliative Care in Children. Geneva: WHO; 1998
World Health Organisation. Symptom relief in terminal illness. Geneva: WHO; 1998.
Vessey J, Carlson K, McGill J. Use of distraction with children during an acute pain experience. Nursing
research. 1994; 43(6): 369-372
Royal College of Paediatrics and Child Health. Prevention and control of pain in children. A manual for
healthcare professionals. London: BMJ books; 1997
Doorbar P, McClarey M. Ouch! Sort it out: Childrens experience of pain. London: Royal College of
Nursing 1999.
64
STANDARD 8: Giving appropriate resuscitation, emergency and continuing care for very
ill children
Healthcare providers, organisations and individual health care workers, share a responsibility to
advocate for children and to reduce the fear, anxiety and suffering of children and their families by
giving appropriate emergency care to children.
*Emergency signs in children that need immediate assessment and treatment include:
An obstructed airway (obstruction to breathing/choking)
Severe respiratory distress (severe problem with breathing)
Central cyanosis (blue mucous membranes)
Shock (weak fast pulse + capillary refill longer than 3 seconds)
Coma (unconscious and unresponsive)
A convulsion (fit)
Signs suggesting severe dehydration in a child with diarrhoea (any two of the following: lethargy,
sunken eyes, very slow return of skin after skin pinching)
*Priority signs in children that need assessing and treating urgently (ideally within thirty minutes of
arrival) include:
Visible severe wasting
Oedema of both feet
Severe pallor of the palms of the hands
Lethargy, drowsiness or reduced level of consciousness/responsiveness
Continual irritability and restlessness
Major burns
Any signs of respiratory distress (any breathing problem)
A sick young infant 2 months old and a child with an urgent referral note from any other health
facility/health worker should also be considered a priority.
*Reference:
The Management of the child with a serious infection or severe malnutrition guidelines for care at
the first referral level in developing countries, Department of Child and Adolescent Health and
Development, World Health Organisation.
Supporting criteria
1. Provision of appropriate resuscitation/emergency and continuing care for very ill children, coordinated
by lead health workers and, in a hospital, given by safe numbers of skilled health workers throughout the
24 hour period:
2. In any healthcare environment a system for triage (seeing the sickest children first) with:
A policy for placing children into categories of severity
Essential equipment such as thermometers, soap and towels, weighing machine, stethoscopes etc
Job aides that include the WHO emergency and priority signs*, oral re-hydration volumes and
methods of reducing a fever and managing convulsions, shock, respiratory failure, coma etc.
A system for getting help:
And in a health facility also:
A separate child and family friendly area for triage
65
A suitable child and family friendly area for waiting families that has a free and adequate supply
of safe oral fluids
A private area for children who have died and their families
3. In any healthcare environment a system for providing appropriate resuscitation and emergency care
with:
A resuscitation policy
Job aides for life support:
Standardised (used by everyone) clinical guidelines for managing the common emergencies
Oxygen available at all times and in sufficient amounts with the equipment to administer it safely
Essential* appropriate resuscitation equipment (clean, regularly checked and accessible)
A secure supply of essential emergency drugs and standardised guidelines for their use:
A system for getting help
And in a health facility also:
A separate child and family friendly area for resuscitating a child and giving emergency care
preferably near the triage and/or assessment area
A suitable child and family friendly area for waiting families
A private child and family friendly area for children who die, and their families
*Essential means that all the equipment and drugs that are on the countrys essential equipment and drug
lists for providing acute care, if such lists exist, are available. For examples of essential equipment and
drugs refer to International Child Health, Pocket Emergency Paediatric Care and/or WHOs
Management of the child with a serious infection or severe malnutrition and/or the Emergency Maternal
and Child Healthcare (EMCH) programme.
4. In a hospital, a system for providing appropriate continuing care to very ill children in a child and
family friendly area, ideally separate from adult patients, that has:
A monitoring policy that includes essential monitoring of vital parameters (for examples
depending on resources heart rate, respiratory rate, oxygen saturation, blood glucose levels and
temperature) and monitoring parameters
Appropriate monitoring equipment
Monitoring charts for recording vital parameters
Oxygen available at all times and in sufficient amounts with the equipment to administer it safely
Appropriate resuscitation equipment (clean, regularly checked and accessible)
A secure supply of essential drugs and standardised guidelines for their use
Child and family friendly waiting area/s for families
A separate child and family friendly area for children who die and their families with culturally
appropriate privacy
5. Systems for transferring very ill children with:
Written policies for transfer to a hospital from the community or from a health facility, internal
transfer within a hospital and for transfer from one hospital to another
Standardised clinical guidelines for managing the common emergencies
Transfer of clinical information
Skilled health workers for accompanying a child during transfer
Access to safe and reliable transport for transfer
Monitoring and other equipment for use during transfer
Portable oxygen supply for transfer
66
6. Access to a service/s or system/s for providing psychosocial support to children, their families and
health workers when suffering life threatening illness or injury
Discussion
The early onset of appropriate resuscitation and emergency healthcare in neonates, both before and after
birth, and for very ill or injured children is essential as delays not only cause harm that may result in
unnecessary death or handicap, but may also make early treatment less effective and more prolonged.
Immediate triage to detect emergency and priority signs on arrival at a health facility (in a hospital
available for the whole twenty-four hours), is essential. Children with emergency signs need to be treated
immediately and those with priority signs urgently and before registration, to minimise unnecessary
deaths and disabilities. (SEE WHO ETAT programme and the CAI/ALSG EMCH project).
As a childs condition can change rapidly,
close monitoring by skilled health care
workers is essential to detect the early
warning signs of deterioration in very ill or
injured children, also those undergoing
surgery and those who have been given
systemic analgesia and/or sedation
A childrens area for
giving emergency care in
an adult accident
Department
Summary
The most important issues for the care of an acutely ill child are in sequence:
1. Early recognition of severe illness by the family and community health care workers.
2. Immediate treatment where the child is living, by the community health care workers.
3. Early and efficient transport to the nearest primary or secondary referral health care facility for
treatment, ideally with appropriate health care given during transport by health care workers.
4. Effective triage, that is available 24 hours a day, given on arrival.
5. Regular and effective monitoring of children at risk of deteriorating, with appropriate
preventative interventions effective care of very ill children.
6. Immediate implementing of any necessary emergency health care in the primary or secondary
referral health care environment, by health care workers who are trained to do this and also have
the necessary material resources readily available.
67
Monitoring in a high
dependency/intensive care unit
in Pakistan
The above system needs to be integrated and is dependant on a well-managed collaborative network of
health care services, effective health education for parents, effective training for all health workers,
efficient transport services and the necessary human and material resources. (See EMCH programme)
To ensure that health workers give the best possible emergency care and critical care, best practice is to
develop and use guidelines and other job aides that act as reminders for life support and the common
illnesses that can cause severe illnesses in children. Guidelines and job aides need to be accessible and
evidence-based and used by everyone. Community, outpatient, and inpatient staff should all be trained
together in emergency care.
68
Working together is vitally important to ensure the provision of the best possible care for the very sick
pregnant woman and child in order to reduce mortality and morbidity.
The systems used should draw on the programs of Safe Motherhood, the Integrated Management of
Childhood Illness, essential antenatal, perinatal and postpartum care, essential care of the newborn, basic
life support (neonates and children), neonatal and paediatric life support and advanced paediatric life
support and the new Emergency Maternal and Child Healthcare (EMCH) program.
To provide the best possible and appropriate care, best practice is also to have regular meetings to review
the systems used to ensure they are achieving their objectives. All those involved in providing triage,
resuscitation, emergency and critical care need to attend these audit meetings. Specific issues for audit
must include the circumstances leading to childhood deaths.
69
European Resuscitation Council Guidelines for Basic and Advanced Paediatric Life Support . Available
from www.resus.org.uk
D Carapiet, J Fraser, A Wade, P W Buss, R Bingham. Changes in paediatric resuscitation knowledge
among doctors. Arch Dis Child 2001; 84(5) :412-414
McQuillan P, Pilkington S, Allan A, Taylor B, Short A, Morgan G et al. Confidential enquiry into quality
of care before admission to Intensive Care. Br Med J 1998; 316(7148): 1853 8
71
European Resuscitation Council Guidelines for Basic and Advanced Paediatric Life Support . Available
from www.resus.org.uk
D Carapiet, J Fraser, A Wade, P W Buss, R Bingham. Changes in paediatric resuscitation knowledge
among doctors. Arch Dis Child 2001; 84(5) :412-414
McQuillan P, Pilkington S, Allan A, Taylor B, Short A, Morgan G et al. Confidential enquiry into quality
of care before admission to Intensive Care. Br Med J 1998; 316(7148): 1853 8
71
STANDARD 9:
Health care providers, organizations and individual health workers, share a responsibility to
advocate for children and to reduce the fear, anxiety and suffering of children and their families by
ensuring that they enable children to play and learn.
Discussion
State parties recognise the right of the child to rest and leisure, to engage in play and recreational
activities appropriate to the age of the child. UNCRC: Article 31
Play is a natural part of childhood and a vital factor in the mental, social and emotional growth of
children - National Association of Hospital Play Staff, UK.
Play is not just a way of passing time and entertaining children, but is an important way for well or ill
children to make sense of the world around them. It also helps them cope with any special problems and
difficulties and enables them to develop to their full potential. It is important to remember that an ill child
is a normal child in an abnormal situation, so having sensory stimulation and the opportunity to play is
even more important when a child is ill.
72
Play and sensory stimulation within health care is often thought of as trivial or of little importance,
despite its many benefits and the low cost involved. Many health workers (and sometimes parents) feel
that an ill child has no need to play or be stimulated, and that this should wait until they are better.
However, this underestimates the importance of play and its role in helping an ill child.
Malnourished
children and their
mothers learning
how to play in a
Ugandan
Hospital.
Some of the reasons why play and sensory stimulation are important enough to be given a higher priority
by health workers include:
1. A faster recovery from illness
Research evidence shows that ill children who are given the opportunity to play get better faster than
those that dont. Play is a normal part of every childs life, whether it is spontaneous (free) or
helped.
2. Better physical, mental, emotional and social development
The physical and mental stimulation of play is vital to help children develop to their full potential.
Body growth, muscle development, fine and gross motor skills, sensory skills and a childs ability to
learn, interact socially and make sense of the world around them are all helped by play. Children who
73
are ill, injured, malnourished, developmentally delayed or who have a disability have an even greater
need for play and the help to do this.
3. Reduction of a childs anxiety and stress
When a child is ill or in a healthcare environment, such as a hospital, many of the things that were
familiar to the child disappear and are replaced with unfamiliar and often frightening situations,
environments, people, smells and sounds that the child has no control over. Play helps a child to
regain some familiarity and control over their surroundings and to understand some of the things that
might happen to them by pretend playing, drawing and talking. Bringing a familiar toy from home
can also help. For children admitted for non-emergency treatment, an earlier visit to the hospital is
helpful. Although play may happen spontaneously, a child who is anxious or frightened often
withdraws and may need help to play.
74
en dr t
From the childs point of view, refusing to comply with unpleasant treatments is reasonable
behaviour. By using play many potential difficulties can be overcome, thereby improving compliance
and the eventual outcome for the child.
5. Better communication with the child
Health workers need to be able to communicate effectively with children to find out how they feel
and to gain their views and opinions about what is happening to them or may happen in the future.
This is difficult for health workers if a child is ill, frightened, anxious or distressed. Many children
find it easier to express their feelings and distress through play rather than by using words. A child
might also find it easier to talk about how he/she feels when they are playing. Play allows a child to
express their anger or sadness, frustrations, fears and also happiness.
The aims of a health facility play service are therefore to aid normality, help children develop,
communicate and contribute to and cope with their healthcare experience in the best possible way,
in order to improve their health outcomes.
In a hospital some ways play can be supported are by:
All health workers acquiring the skills to enable children to play
Providing the best possible play opportunities in every clinical area used by or visited by children.
Supervising play at the bedside where necessary and appropriate
Employing skilled play specialists or nominated health workers to organise and supervise play by
working together with health workers and parents/carers.
Identifying separate and supervised play areas for child patients and for child visitors (who are
not patients) where they can be left by a carer for a limited period of time.
Bare playroom before improvements
75
Health workers visiting the home or working in a community also have an important role in encouraging
and supporting play to make it an enjoyable, stimulating and learning experience for the children and their
families.
Supporting criteria for learning
76
Frequent missed school attendance because of physical illness, learning difficulties or mental health
problems
The non-attendance of children who will be living (and dying) from chronic deteriorating diseases.
Every ill and disabled child has the right to a stimulating school-type education (UNCRC). It is
important that they are enabled to learn when they are able to, and for as long as they are able to.
Health workers can support this by:
Providing a place for learning in the healthcare environment
Encouraging children and families to bring their own learning materials when they are admitted
to a hospital for more than a few days.
Supervising learning for periods of time during the day
Liaising with a childs teacher about health problems that may interfere with a childs school
attendance or make learning difficult. For example many children have a variety of temporary or
permanent physical disabilities, hearing or visual difficulties, or mobility problems.
Best practice is for health workers to have education/training about learning difficulties in children and
about the implications for learning of some health problems and disabilities.
References
United Nations General Assembly: Convention on the Rights of the Child. Articles 6, 28, 29, 31.
NewYork: United Nations; 1989 available from http://www.unicef.org/crc/crc.htm
World Health Organisation. Department of Child and Adolescent Health and Development/Unicef.
Management of the child with a serious infection or severe malnutrition guidelines for care at the first
referral level in developing countries. Geneva: WHO; 2000
Adams J, Gill S, Mcdonald M. Child Health. Reducing fear in hospital. Nursing Times 1991;87(1): 62-64
Azarnoff P. Preparation with Medically-oriented Play. In: Medically-oriented play for children in health
care: The issues. Paediatric Projects Incorporated, Monograph No 3, 1986: 21-34 (cant find this in any
more detail)
Barnes P. Thirty years of play in hospital. OMEP International Journal 1995; 27(1): 48-53
Bates TA, Broome M. Preparation of children for hospitalization and surgery: A review of the literature.
Journal of pediatric nursing 1986; 1(4): 230-239
Beardslee C, Kotchabhakdi P, Tlou S. Nursing care of children in developing countries: issues in
Thailand, Botswana and Jordan. Recent Advances in Nursing. 1987; 16: 31-60
Chan JM. Preparation for Procedures and Surgery through Play. Paediatrician 1980; 9(3-4): 210-219
Chaturvedi S, Prasad M, Singh JV, Srivastava BC. Mothers attitude towards childs health education and
play in ICDS and non-ICDS areas. Indian Pediatrics 1989 Sep;26(9):888-893
Moyles JR, editor. The Excellence of Play. Buckingham, Philadelphia: Open University Press; 1994
Curtis A. Play in different cultures and different childhoods. In: Moyles JR. The Excellence of Play.
Buckingham, Philadelphia: Open University Press; 1994.p27-36
77
Doverty N. Therapeutic use of play in hospitals. British Journal of Nursing 1992, 1(2): 77-80
Henkins MA, Abbott, DA. Game playing: A method for reducing Young childrens Fear of Medical
Procedures. 1986 (cant find this one)
Randall P. Encouraging childrens development through play. Prof Care Mother Child 1994;4(3): 81-83
Shields L. A review of the literature from developed and developing countries relating to the effects of
hospitalization on children and parents. Int Nurs Rev 2001;48(1): 29-37. Review
Vessey J. Therapeutic play and the hospitalised child. Journal of Ped Nurs 1990; 5(5): 328-333
Visintainer MA, Wolfer JA. Psychological Preparation for surgical pediatric patients: The effect on
childrens and parents stress responses and adjustment. Pediatrics 1975; 56(2):187-202
Zahr LK. Therapeutic play for hospitalised preschoolers in Lebanon. Pediatric Nursing 1998; 24(5): 449454
Withey H. The role of the Hospital Play Specialist within the multi-disciplinary team. June 2000.
available from http://www.nahps.org.uk/HPSroleMDT.htm
Northop D, Lang C, Whitman CV. Local action: creating health promoting schools. Geneva: WHO; 2000.
Hall DBM. The Child with a handicap. Oxford, Boston, St Louis, Mo: Blackwell Scientific
Publications;1984
McCarthy GT. Physical disability in childhood-an interdisciplinary approach to management. Edinburgh,
New York: Churchill Livingstone; 1992
78
Supporting criteria
1. The following important primary, secondary and tertiary activities are aimed at preventing ill treatment
and abuse:
Giving advice on parenting and other related issues to pregnant women, carers, young people,
children and others.
Systems to identify vulnerable families in which abuse might occur:
Referrals to systems in the community (if they exist) to support vulnerable families:
The prompt but confidential sharing of information and concern with other relevant disciplines
such as other health workers, social welfare services, police, schools, playgroups etc.
A knowledge of the countrys legal framework for child protection
Referral to a social welfare service (or similar support service-if it exists) that provides general
and emotional support to vulnerable families, and to abused children and their families
2. For suspected abuse:
A written statement (policy) to guide health workers which includes clearly defined procedures
for managing children suspected of being abused
Lead health workers (doctor and nurse) to coordinate activities with responsibility for policies,
clinical guidelines for managing the child and family, monitoring the quality of the service and
training
Clinical guidelines to help with the recognition, diagnosis and investigation of child abuse that
are available to all health workers
Systems for protecting and supporting an abused child
Systems for protecting and supporting the families of an abused child.
3. Keeping confidential written information about vulnerable families, abandoned children and abused
children. Best possible practice is to have a confidential register of all abused children which can be
accessed twenty-four hours a day:
Discussion
Many health strategies and other primary, secondary and tertiary prevention activities can support
vulnerable children and families and help prevent child abuse and ill treatment.
79
A system for
identifying vulnerable
families
Family support
systems eg home visits
Clear referral systems
to support services for
vulnerable families
Substance abuse
treatment programs
Community based
family centred support
assistance and
networks (social
welfare system)
Accessible information
about community
services available for
all families
Support services based
in schools
Early diagnosis
The working together of all
organisations involved with
abused children to ensure:
- medical treatment
- healthcare
- counselling
- management and support
of victims
- management and support
of families
- re-integration into the
community and schools
Adequate child protection laws
Child Friendly criminal justice
systems, including facilities for the
court attendance and participation
of potentially abused children
Children are more likely to be vulnerable, abused and/or ill-treated when environmental factors are
adverse, when parenting is not good enough or when they themselves have problems that make their
families more stressed, or their care more difficult.
Risk factors include:
Environment factors
Absolute or
relative poverty
War or other
natural
disasters (eg
famine,
earthquake, flood
etc.)
Family
displacement or
refugee status
Confinement to a
prison or other
institution
Excessive family
mobility
Parent factors
Child factors
80
A disability or learning
difficulties
Low birth weight/premature
birth
Prolonged separation from a
parent (such as admission to a
hospital) especially in the
neonatal period
Female sex (in some cultures
females are at risk of infanticide
and have limited opportunities
for education.)
One of a multiple birth
A difficult baby or child or
one who cries incessantly
Young age
Single unsupported
parent
Unwanted pregnancy
Poor parenting skills
Early exposure to
violence or abuse
themselves
Substance abuse
Inadequate pre-natal
care
Physical or mental
illness
Learning difficulties
Relationship problems
FAMILY
Female Sex
Prematurity
Separation or poor
bonding in neonatal
period
Unwanted
Disabled physically or
mentally
Delayed development,
particularly soiling and
wetting past
developmental age
Difficult temperament
(persistent screaming,
attention
deficit/hyperactivity
disorder etc.)
Size/density
Poor socioeconomic status
Social isolation
High levels of
stress
Family
abuse/history of
domestic violence
COMMUNITY/SOCIETY
Non-existent, non-enforced
child protection laws
Decreased value of
children (minority, gender,
disabled)
Social inequalities
Organised violence (wars,
small arms, high crime
rates)
High social acceptability of
violence
Media violence
Cultural norms
The legal framework required to protect children varies in different countries. In some there may be no
framework at all despite ratification of the UNCRC, and in others advanced laws especially for children,
for example the 1989 Children Act in England and Wales. Some countries that do have legislation do
not have any framework for enforcing this and others have minimal legislation. Child abuse is often
interpreted very differently and some countries do not have laws to protect children from enforced labour,
recruitment as soldiers or to protect them if they are refugees.
Many disadvantaged countries place child protection programs low on their priority list, as they have so
many other problems to solve such as border security, the provision of safe water and sanitation,
affordable education and health systems, adequate employment prospects and securing their economy.
However there is an obligation following ratification of the UNCRC for governments to move towards
protecting children in a transparent way, whatever their problems. The International Community must
continue to advocate for the global rights of children to be protected and the introduction of laws that will
protect children where none exist.
Abuse, neglect or exploitation is less likely to occur if a country:
Provides financial and other support for vulnerable children and families
Ensures equal access to, and opportunities for, free healthcare and education for all children
Supports educational programs that will improve parenting skills for the whole population
Programs that identify and support vulnerable children and families (see Standard 1)
Uses integrated, collaborative and standardised methods to diagnose, protect and support abused
children.
Health care providers have a key role, together with other groups that work with children and families, in
identifying, protecting and supporting vulnerable and abused children and their families. To do this
effectively individual health workers have a responsibility to acquire the skills necessary to understand
and use the preventive, diagnostic, protective and support systems that exist in their country, to advocate
for these when they are absent and to collaborate with their colleagues in the other agencies and
organisations that are involved with children.
81
References
United Nations General Assembly: Convention on the Rights of the Child. Articles 3, 11, 19, 20, 21, 25,
32, 33,34, 35, 36, 37, 39. NewYork: United Nations; 1989. Available from
http://www.unicef.org/crc/crc.htm
Southall DP, Coulter B, Ronald C, Nicholson S, Parke S, editors. International Child Health Care-A
practical manual for hospitals worldwide. Child Advocacy International. London: BMJ Books; 2002.
Report of the Consultation on Child Abuse Prevention WHO, Geneva, 29 31 March 1999. Available
from http://www.yesican.org/definitions/WHO.html
Parton N, Wattam C. Child sexual abuse: responding to the experiences of children. Chichester, New
York: Wiley; 1999
Polnay JC, editor. Child Protection in Primary Care. Abingdon: Radcliffe publishing; 2001
Reece R. Ludwig S, editors. Child Abuse: medical diagnosis and management 2 nd ed. Lippincott
Williams and Wilkins 2001
Meadow R. ABC of Child Abuse 3rd ed. London: BMJ Books; 1997
Goldstein S. The Sexual Exploitation of Children 2 nd ed. CRC Press 1998
Schwartz LL, Isser NK. Endangered Children: neonaticide, infanticide and filicide. CRC Press 2000
Benger JR, Pearce AV. Quality improvement report: Simple intervention to improve detection of child
abuse in emergency departments. BMJ 2002; 324: 780-782.
Peckover S. Domestic Violence and Children. BACCH Newletter, Spring 2002, p12-13. Available from
www.bacch.org.uk
Royal College of Paediatrics and Child Health. Fabricated or induced illness by carers. RCPCH, UK
Febrary 2002 (updated april 2003). Available from www.rcpch.ac.uk
Pereira D, Richman N. Helping Children in difficult circumstances A Teachers Manual (save the
children development manuals). London: Save the Children; 1996
Hobbs CJ, Wynne J. Physical Signs of Child Abuse A colour atlas. 2nd ed. London, Philadelphia:
Saunders; 2001
Unicef UK. End child exploitation faces of exploitation. Available from
http://www.endchildexploitation.org.uk/resources_publications.asp
Southall DP, OHare B. Empty arms: the effects of the arms trade on mothers and children. BMJ 2002;
325:1457-1461
Golden MH, Samuels MP, Southall DP. How to distinguish between neglect and deprivational abuse.
Arch Disease Childhood 2003:88 (2):105-107
82
Southall DP, Samuels MP, Golden MH. Classification of child abuse by motive and degree rather than
type of injury. Arch Disease Childhood 2003: 88 (2):101-104
Southall DP, Samuels MP, Bridson J. The police should take the lead on protecting children from
criminal abuse. BMJ 2003: 326:343
Southall DP, Plunkett MCB, Banks MW, Falkov AF, Samuels MP. Covert Video recordings of Lifethreatening Child Abuse: Lessons for Child Protection Pediatrics Nov 1997, Vol 100: No 5 :735-760
83
Supporting criteria
1. A system for immunising children, scheduled and catch-up immunisations that complies with the
countrys program is coordinated by a lead health worker. Includes the safe storage and transport of
vaccines and has standardised guidelines for the administration of vaccines and the management of
adverse effects.
2. A system for monitoring the nutritional status of children, including growth, ideally part of a
comprehensive integrated country program. The system includes standardised strategies for managing
children with problems.
3. A system for monitoring a childs physical (motor and sensory) and psychomotor (mental, emotional,
behavioural and social) development that is ideally part of any existing country program. It includes
standardised strategies for referring children with suspected problems to specialist referral services for
investigation and treatment.
4. Compliance with a countrys health screening programs for children and systems for providing advice
and healthcare for children with detected problems.
5. A health education program for children, and their carers that is appropriate, accessible and provides
relevant advice and information in understandable language and format
6. A safe motherhood program whose health workers liaise with skilled childrens health workers when
there are problems with an unborn child and a child at birth or after birth.
Discussion
A child has a right to the nurturing (the word nurse comes from to nurture) and care that will help him
or her survive, develop to his or her full potential and participate responsibly in society.
The responsibility for nurturing a child until they are fully developed lies with all adults. The childs
parents, supported by the State when this is necessary, have the major responsibility but all adults who
work with children also have a nurturing role. This is necessary if a child is to become a mature adult
84
capable of being a responsible member of their society, able to contribute to this societys development
and well-being, and themselves to be an adequate parent.
Best practice is for the State to support the child and parents through legislation that protects the child,
and also through other child and family services such as education, health and social welfare. The shared
efforts of all the services and agencies that work with and for children are needed if a childs development
is to be monitored and supported effectively. Preventive health services for children, such as a safe
motherhood program to protect the unborn child, the preventive component of WHOs program for the
Integrated Management of Childhood Illness (IMCI) and immunisation, health monitoring and health
screening programs for children are therefore of great importance.
Screening activities, whether or not they are part of a countrywide program, need to be supported by
systems that provide advice, counselling, support and appropriate healthcare for the child and family if a
problem or abnormality is detected.
Monitoring nutrition in the unborn baby and child is an essential component of any health provision. Best
practice is for the health worker to do this every time a pregnant woman or child is seen.
Monitoring child development is equally important and not costly. If one or more areas of development
are thought to be delayed this needs early confirmation, investigation, and effective treatment, with
standardised referral to specialist services where necessary. Unnecessary suffering due to a second child
having the same genetic health problem might be prevented if the problem is detected early.
Children with disabilities are often discriminated against within families and communities. Health
workers have an important role to play in increasing the communitys understanding of the capabilities
and needs of each individual child with a disability as well as increasing the communitys awareness of
some of their common causes.
85
Avoidable health problems, accidents and childhood pregnancies cause great fear, anxiety and suffering
to children and families. All health workers have an additional responsibility to provide health education
on these and other topics that promote a healthy lifestyle, to raise awareness in parents so that they can
give their child the best possible care and to act as advocates for children when necessary.
However, it is important that health advice is not prescriptive, that it is relevant to the individual child and
family and given at an appropriate time. For example it would not be appropriate to give such advice
when a child was very ill, but to wait until the child was recovering and the parents less distressed.
Health education materials made by health workers play workers and children.
Both primary and secondary health workers need to have education/training opportunities that equip them
with the knowledge and skills to meet these health preventive responsibilities. Audit of compliance with
policies, programs and systems of care is important if their objectives are to be achieved in the best
possible way.
References:
United Nations General Assembly: Convention on the Rights of the Child. Articles 6, 17, 23, 24, 33,
NewYork: United Nations; 1989. Available from http://www.unicef.org/crc/crc.htm
Integrated Management of Childhood Illness (IMCI) - a World Health Organisation Program for
delivering healthcare to children, supported by UNICEF. Geneva WHO available from
http://www.who.int/child-adolescent-health/integr.htm
Rootman I. Evaluation in Health Promotion: Principles and perspectives. Copenhagen: World Health
Organisation, Europe; 2001
Hall D, Elliman D. Health for all Children. 4 th Ed Oxford: Oxford University Press; 2003.
Unicef. A League table of Child poverty in Rich Nations. Innocenti report card issue no. 1 June 2000.
Unicef Innocenti Research centre, Florence, Italy. Available from www.unicef-icdc.org
A Critical Link: Interventions for physical growth and psycho-motor development. A Review.
Department of Child and Adolescent Health and Development. Geneva: WHO; 1999.
The State of the Worlds Children 2001-Early Childhood. UNICEF. Available from
http://www.unicef.org/sowc01
86
Hogg C. Health Services for children and young people. London: Action for sick children; 1996
World Confederation for Physical Therapy, World Federation of Occupational Therapists and WHO
Rehabilitation. Promoting the Development of Young Children with Cerebral Palsy a guide for mid
level rehabilitation workers. Geneva: World Health Organisation; 1993
McCarthy G. The Physically Handicapped Child: An Interdisciplinary Approach to Management.
London, Boston: Faber and Faber; 1984
WHO Recommended Surveillance Standards. 2nd Ed .Oct 1999. Available from www.who.int/emcdocuments/surveillance/whocdscsrisr992c.html
Howard G, Bogh C. Healthy Villages : A guide for Communities and Community Health Workers.
Geneva: WHO 2002.
McMaster P, McMaster H, Simunovic V, Selimovic N, Southall DP. Parent and young person held child
health record and advice booklets and their use in Bosnia and Herzegovena. International Child Health.
1995; 6:121-131
McMaster P, McMaster H, Southall DP. Personal child health record and advice booklet programme in
Tuzla, Bosnia Herzegovina. J. Royal Society of Medicine 1996:89(4): 202-204
Fuerstein M. Turning the Tide, Safe Motherhood, A District Action Manual. Oxford: MacMillan
Education Ltd; 1993
www.safemotherhood.org
Hubley J. Communicating Health, An action guide to health education and health promotion. Oxford:
TALC. MacMillan Education Ltd; 1993
87
STANDARD 12
Health care providers, organizations and individual health workers, share a responsibility to
advocate for children and to reduce the fear, anxiety and suffering of children and their families by
ensuring that they support breastfeeding and the best possible nutrition for children.
Supporting criteria
1. Lead health worker/s for giving support and advice about breastfeeding, feeding and nutrition using
locally available foods
2. Systems of care and policies for:
Protecting, promoting and supporting breastfeeding (The WHO/UNICEF Baby Friendly Ten Steps to
Successful Breastfeeding).
Assessing a childs nutritional status to identify a malnourished child and a child who is not growing
normally:
Meeting each childs nutritional needs, including, where necessary, giving micronutrient (vitamins
and minerals) supplements and advice on special feeds and diets
Ensuring safe food preparation and storage:
The management of malnutrition, including providing enteral and parenteral feeding when
appropriate.
Outreach programs from the hospital to the community in managing and preventing malnutrition.
3. Support for breastfeeding is provided:
In a maternity unit the Ten steps to successful breastfeeding have been implemented. Formal
accreditation as a WHO/UNICEF Baby Friendly Hospital is the best possible level of practice if this
is available in the country
In the community all systems of care are compatible with the Ten Steps to Successful
Breastfeeding. Formal WHO/UNICEF baby Friendly accreditation is the best possible level of
practice if this is available in the country
In a health facility providing secondary care support for breastfeeding for children attending or
resident in a health facility, or their siblings, is compatible with the Ten Steps to Successful
Breastfeeding. Formal WHO/UNICEF baby Friendly accreditation is the best possible level of
practice if if this is available in the country for paediatric wards
4. Other support for nutrition includes: in every health care environment enough safe drinking
water for every child, parents/carer and health worker
Provision of the following medically indicated dietary supplements at no cost to parents/carers:
Oral rehydration solutions, including ones appropriate for children with co-existing malnutrition
Oral and parenteral micro-nutrient supplements
Protein and energy supplements
Special feeds and diets
Usually (intravenous) parenteral fluids
The oral preparations required for the management of malnutrition
And in a hospital or other residential healthcare facility also includes:
Food security for children, pregnant women and breast feeding mothers
A separate health worker/s to prepare food in dedicated clean areas
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Discussion
The term food is used generically to describe all forms of provided nourishment
Under and over nutrition has a huge impact, not just on childhood survival, but also on the physical and
psychosocial health of children and their health and survival as adults. The commonest global cause of
death in the under fives is malnutrition, either alone or associated with diarrhoea, respiratory infections,
measles, malaria, and HIV/AIDS. Children who fail to grow to their full potential in the first two years
are unlikely ever to catch up (growth stunting). This stunting, which carries a later cost for adult health
and quality of life, is still prevalent in many countries.
Under nutrition increases the severity and length of an illness and can cause apathy, depression and
deterioration of social interaction. This is of particular significance in young children who would
normally be developing their physical, social and other skills at a rapid rate. There is substantial evidence
to show that under nutrition in young children, particularly in association with illness, leads to the
stopping or slowing of development and even a loss of skills that may never be fully regained.
At the other end of the scale, largely in the developed countries, over-nutrition and childhood obesity are
causing increasing health and quality of life problems.
Nutrition for a child begins ante-natally with attention to the mothers lifestyle and health during
pregnancy. This is also a good time for health workers to give health education about breastfeeding and
childcare as the quality of early nutrition is directly related to survival and later health. Following a recent
review of the evidence, the recommendation of the Global Strategy on infant and young children feeding
is: exclusive breastfeeding until six months of age followed by continued breastfeeding alongside
complementary feeding up to two years of age.
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Breastfeeding is best supported if maternity Units, childrens wards and community childrens services
follow the UNICEF/WHO Ten Steps to Successful Breastfeeding which are.
1.
2.
3.
4.
5.
Have a written breastfeeding policy that is routinely communicated to all healthcare staff
Train all healthcare staff in the skills necessary to implement the breastfeeding policy
Inform all pregnant women about the benefits and management of breastfeeding
Help mothers initiate breastfeeding soon after birth
Show mothers how to breastfeed and maintain lactation even if they are separated from their
babies
6. Give newborn no food or drink other than breastmilk, unless medically indicated
7. Practice rooming-in, allowing mothers and infants to remain together 24 hours a day
8. Encourage breastfeeding on demand
9. Give no artificial teats or dummies to breastfeeding infants
10. Foster the establishment of breastfeeding support groups and refer mothers to them on discharge
from the hospital or clinic
During the initiation of complementary feeding at or after six months of age, safe water, food security,
food safety and hygienic preparation of appropriate foods are paramount. Best practice is to recommend
and use foods that are locally available and suitable for the age and developmental level of the individual
child.
To encourage an appetite in ill children, food also needs to taste good and be well presented.
Parents/carers need to be responsive to the childs demand and pace of eating. An ill child may not have
their normal appetite, or be able to eat the foods normally accepted. Avoiding further deterioration by
encouraging and helping them to eat is a simple but important part of care that is often overlooked by
health workers.
It is essential that during every health contact:
The childs nutritional state is assessed, including evaluation of growth
The childs nutritional needs are correspondingly assessed, particularly in early childhood and
during an illness
Advice is given to carers about:
- How to meet the childs needs in a stimulating age-appropriate way using locally
available foods that are affordable
- Safe food preparation and storage
- Feeding techniques.
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To gain the necessary skills to provide this nutritional care, all health workers need to learn about
nutrition as part of their core and continuing training programs. Best practice is for this training to include
learning about the management of lactation, a knowledge of what is meant by nutrition and nutritional
status, what is needed for children to grow and develop normally and how best to treat a child with severe
malnutrition. It is also important to acquire the practical skills that will enable health workers to identify
and help a child with a feeding difficulty.
Malnourished children need nutritional support. The simplest and most cost-effective nutritional support
is to provide enough appropriate local food for each individual child. In occasional very severe cases,
when appropriate, the use of enteral or parenteral nutrition needs consideration. Parenteral (IV) nutrition
is only likely to be available in well-resourced health facilities and should only be used when there is
gastro-intestinal failure and nutritional needs cannot be met via the gastro-intestinal tract.
To minimise the deaths of children from severe malnutrition it is essential that all health workers have
received education/training in the management of severe malnutrition and follow the WHO recommended
procedures. In the early stages of treatment the risk of dying is high, sometimes because the treatments
and foods given are inappropriate, or associated dehydration, hypothermia, hypoglycaemia, infection and
electrolyte imbalance are not correctly treated
References
United Nations General Assembly: Convention on the Rights of the Child. Articles 3, 24, 26, 27
NewYork: United Nations; 1989. Available from http://www.unicef.org/crc/crc.htm
Golden MHN. Severe malnutrition. In Southall DP, Coulter B, Ronald C, Nicholson S, Parke S, editors.
International Child Health Care-A practical manual for hospitals worldwide. Child Advocacy
International. London: BMJ Books; 2002. p241-252
Department of Child and Adolescent Health and Development, World Health Organisation. Management
of the Child with A Serious Infection or Severe Malnutrition, Guidelines for care at the first referral level
for developing countries. Department of Child and Adolescent Health and Development. Geneva: WHO,
2000.p 80-91
World Health Organisation. Management of severe malnutrition: A manual for physicians and other
senior health workers. Geneva: WHO; 1999
A Critical Link: Interventions for physical growth and psycho-motor development. A Review.
Department of Child and Adolescent Health and Development. Geneva: WHO; 1999.
World Health Organisation. Nutrition, Health and Child Development research advances and policy
recommendations. Washington, D.C: PAHO, Pan American Sanitary Bureau, Regional Office of the
World Health Organization; 1998
Unicef UK. Bright Futures. Malnutrition: the news. UNICEF UK, Western Union; 2002.Available from
www.unicef.org.uk
World Health Organisation Division of child health and development. Evidence for the Ten Steps to
Successful Breast Feeding. Geneva: WHO; 1998
Royal College of Nursing. Breast Feeding in Paediatric Units: guidance for good practice. London: Royal
College of Nursing;1998. Available from http://www.babyfriendly.org.uk/paedunits.asp
91
92
COMMIT to CFH
ASSESS
Stage 1 Optional preliminary CFH assessment
ASSESS
Stage 2 Detailed assessment of level of practice of a selected Standard/s
(Basic, bronze, silver or gold level of practice)
Meeting for feedback and planning, if improvements are needed and wanted
IMPROVEMENT PLAN
IMPROVEMENTS
(With support if needed)
ASSESS
Stage 3 Re-assess selected Standard/s for progress
Repeat Stages 2 and 3 until all the CFH Standards are practiced
at the best possible level (gold)
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94
1.
2.
3.
4.
5.
6.
7.
8.
9.
10.
Organising and doing the assessments, including the administration and logistics
Organising the planning meetings and inviting the relevant people
Coordinating a collaborative plan for making improvements
Facilitating and supervising progress work in the participating clinical area/s
Liaising with the health workers responsible for support services and other key jobs relevant to
the Standard chosen for improvement
Supporting colleagues in the participating clinical areas who are trying to improve the care they
give
Co-ordinating education/learning if this is identified as needed by the assessment
Acting as a mentor for any health workers from another country working alongside local health
workers to help with the planned improvements
Providing regular feedback/reports on progress and prompt sharing of any problems or concerns
with relevant others, including the external assessor
Sharing information regularly with other important stakeholders in childrens health, including
the director of the health facility or service, relevant supporting organisation and other senior
childrens health workers.
95
96
Acknowledge changes, however small, so that health workers are motivated to continue making it
better for the children, their families and themselves
About assessment
Before an assessment it is important to:
Obtain consent for the program from the director (or equivalent) of the Health Facility and, if
relevant, also the countrys Ministry of Health. In some countries it is also useful to ask for
support from the WHO and UNICEF Regional and/or country offices.
Share information about the CFHI with the Health Facility director, and if relevant with the WHO
and UNICEF country representatives and the Ministry of Health
Do an initial brief self-audit against the CFH Standards. This is useful as it sensitizes other health
workers to CFH, identifies areas of health care that the health workers think they do well and
areas of care that health workers want to improve
Pre-assessment information for an external assessor that is helpful includes:
The language/s used in the health facility
A brief report on the services provided for children
The number of children born, seen and/or admitted during a year in the health facility
Mortality and morbidity statistics, if collected and any other data routinely collected
The number of doctors, nurses and others employed
The names of relevant service and other managers and coordinators of important jobs
The names of the senior doctors and nurses with important responsibilities
The results of a brief self audit carried out by the CFH coordinator and others
A prioritised problem list
After an assessment the assessor/s:
Bring/s together the results of the assessment and present/s these at meetings
Provide/s a written report of the assessment and circulate/s this to all involved (See appendix on
website for an example of a format for writing a report)
Contribute/s to any plan for improvements decided on by health workers in participating areas
Facilitate/s improvements if and when possible
The assessment process achieves these objectives by using a toolkit that seeks to understand by
observing, listening to and questioning the people who use and deliver the health care for children and
their families. The toolkit finds the problems and the possible solutions to them from the children, their
families and the health workers, and identifies the quality level of practice.
The assessment process focuses not on resources, but on how health workers manage and use the
resources that are available to them, and on their attitudes, skills, practices and knowledge levels.
How long does it take to do an assessment?
The number of assessors and the time needed for an assessment is dependant on the size of the healthcare
environment and the number of health workers employed. For most healthcare environments it should be
possible for two assessors to carry out both a first and a second stage assessment within one week, and a
third stage progress assessment in 2 3 days.
The views and opinions of a sufficient number of people will be needed to gain true representation. In a
large healthcare environment it helps if the number of participating clinical areas is initially limited,
97
choosing those with the most motivated health workers. Other clinical areas can join the program at a
later date.
The time needed can be minimized by:
Meticulous pre-assessment information gathering
Meticulous planning of an assessment, including estimating the number of questionnaires and the
number of interviews with senior health workers and managers that will be needed
Translating materials in advance if necessary
Arranging interpreters in advance if these are needed for the interviews
Why are there three stages to the assessment process?
There are three stages because each has a different objective.
A Stage 1 assessment is optional but is particularly relevant in countries where Child Friendly
Healthcare is least developed, resources are scarce and the level of practice for many aspects of
healthcare is likely to be basic. It gives preliminary information about the level of practice of all twelve
CFH Standards and complements the self-audit. It specifically:
Finds out which Standards are practiced well and which not so well
Identifies examples of good practice to share with others
Identifies areas of care that could be easily improved
Identifies the barriers to and forces for change
Identifies issues for advocacy
This information helps health workers choose and prioritise areas of healthcare within the CFH
standards for a more detailed assessment of how well they are practiced.
In disadvantaged countries a Stage 1 assessment can be used to help plan humanitarian aid
projects. It has advantages over an unstructured assessment as:
It is transparent and repeatable
Systematically identifies missing or limited essential resources
Seeks the views of all types, and levels of health worker
Seeks the views and opinions of the families that use the service, therefore provides a balance
between the needs and wishes of the families and the aspirations and wants of the health workers.
The CFH program may be the best way to identify appropriate sustainable humanitarian aid projects
A Stage 2 assessment assesses the chosen and prioritised Standard in detail. It will:
Identify a quality level of practice (basic, bronze, silver or gold)
Identify examples of good practice to share with others
Find out the problems and their possible solutions
Provide a framework to help health workers prioritise and plan needed, feasible and wanted
improvements
Further clarify issues for advocacy
A Stage 3 assessment is done after improvements have been made. It will:
Find out if the planned improvements have happened or not
Find out if the improvements made have achieved their objective: to make things better
Find out if the quality of practice is higher (for example has changed from basic to bronze)
Identify barriers to progress and problems encountered during improvement activities
Identify strategies for change that worked and the reasons why so that these can be shared with
others
Further clarify issues for advocacy
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Stages 2 and 3 can be repeated indefinitely until Child Friendly Healthcare is practiced at the best
possible level (all twelve Standards practiced at Gold level).
Achieving objectives and a higher level of care motivates health workers to make
further staged improvements
Levels of performance
Going for Gold is a well-known and used concept that works especially well in encouraging athletes to
strive for excellence and their best possible performance at the time and in the circumstances. The
concept of using a medal system to identify excellence therefore seemed appropriate and complied with
our objectives.
The three qualities of performance are gold, silver and bronze, with all other levels of practice called
basic practice.
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Diagram illustrating four levels of quality of care for each Child Friendly Standard.
Standard 12
Standard 1
Standard 2
Standard 11
Standard 10
Standard 3
Standard 4
Standard 9
Standard 8
Standard 5
Standard 7
Level 1
Basic
Level 2
Bronze
Standard 6
666
Level 3
Silver
Level 4
Gold
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and structured), questionnaires (including knowledge based questionnaires for some CFH Standards),
and, after a stage 2 assessment, benchmarking for any planned improvements.
Child Friendly Healthcare Tool 1
For use in the Stage 1 assessment. It has three parts.
Part 1:
This is a short yes/no check-list. It is to be completed either by the local CFH coordinator with help from
senior health workers responsible for the childrens services, the support services, important jobs (for
example palliative care, play etc), and other relevant health workers such as the senior childrens doctors
and nurses.or by an external assessor/s after he/her has talked to these senior health workers
If an external assessor completes the list, it is advisable for them to confirm what they have been told by
direct observation. To do this, the external assessor needs to visit all the clinical areas in a health facility
used by children and to see the facilities, systems of care, written statements about care, systems for data
management, audit and educational opportunities and all the written protocols, policies and clinical
guidelines. .
Part 2
This represents a semi-structured interview with health workers of all levels and types (professional and
non-professional, including students). It contains questions designed to find out about their concerns,
attitudes, opinions, knowledge levels and use of existing resources
Part 3
This is a semi-structured interview with parents/carers and when possible children, using short openended and semi-structured questions. This enables parents and children to express their views, ideas and
opinions about their healthcare experiences; both good and bad.
Child Friendly Healthcare Tool 2
This is used in the CFH Stage 2 and 3 assessments. It has four parts.
Part 1
This is a detailed check-list that systematically reviews the organization and management of facilities,
resources and other activities relating to each CFH Standard chosen for assessment
Part 2
This is a structured questionnaire (or interview) for each chosen standard . This is given to a random
selection of professional health workers to complete. It helps assess the skill levels, attitudes, practices
and education/training needs of health workers. For some of the Standards it includes knowledge related
questions.
Part 3
This is a semi-structured interview for each chosen standard with a random selection of parents/carers
and/or children concerning their experiences relating to this Standard.
101
Data management
Score =
Health workers:
Make timely and detailed records about every resuscitation
Collect and examine the outcomes of every resuscitation
Collect and examine the outcomes for children who are very ill
Collect and examine information about the probable cause of
the death
Total score = 4 Total possible score = 4 Percentage score is 100%
Yes
Yes
Yes
1
1
1
Yes
The total possible score for each part of the 3 of Tool 2 (A, B and C) is best calculated as a percentage of
the total score possible. The percentages for each of the three parts can be added and divided by 3 to
identify an overall percentage score that can be used to determine the level of practice (0 - 25% is basic
care, 26 - 50% is bronze, 51% - 75% is silver and 76 - 100% is gold).
Score as a percentage
Quality level of care for a Standard
0 25%
Basic care
26 50%
Bronze
51 75%
Silver
76 100%
Gold
For example:
The scores after Standard 3 was assessed in the Childrens Ward of hospital X (before
improvements made) were as follows:
Part A: Score = 45% = Bronze
Part B: Score = 75% = Silver
Part C: Score = 15% = Basic
Therefore average score = 45% = Bronze
After improvements were made, the scores for Standard 3 in this ward were:
Part A: Score = 55% = Silver
Part B: Score = 85% = Gold
Part C: Score = 40% = Bronze
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Part 4
This is a series of benchmarks made for a Standard that is prioritised for making improvements
Benchmarking is the process of measuring the current status of an organisation or an individuals
performance and comparing it with either past performance or to the accomplishment of others.
Benchmarking works best if each planned improvement is given four benchmarks.
The first is a statement about the current situation (basic care), the second and third stages are steps
towards the goal (bronze and silver), and the fourth is the best possible quality of care hoped for after
improvements have been made (gold)
Example of a benchmark
Basic practice
Current practice
Bronze
A first step towards
best practice
Silver
A second step
towards best practice
Gold
Best possible practice
(The improvement
planned)
Toilet scrupulously clean
throughout the 24 hours
Part 4 provides the framework for improvements. This framework can also be used as a simple way to
regularly monitor progress. It is a rapid method for seeing which objectives have been achieved either
partly or in full, and which have not.
An example of an improvement
Sink in neonatal ward before (basic quality)
)))quality)
Assessment meetings
Multidisciplinary meetings are essential before an assessment, for assessment feedback, and for planning
improvements. They need to be attended by the key people, have an agenda and a chair (leader),
usually the CFH coordinator.
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Information about the meeting, and any decisions made during the meeting, need to be shared with the
health workers they affect.
A meeting is useful before an assessment to:
Introduce an external assessor to key people, and sometimes the key people to each other as in
our experience health workers in important roles have not always met all the people they relate to
(putting names to faces).
Share information about CFH and the CFH assessment process
Answer questions
Plan a realistic timetable and the logistics for the assessment processes
The main objectives of a meeting after an assessment are to:
Provide feedback
Answer questions
Discuss issues and problems
Share ideas
Collaboratively plan prioritized, feasible and staged improvements
Plan a realistic timetable for these planned improvements
Decide a date for review of progress (a CFH Stage 3 assessment)
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To a certain extent, the issues raised by children and their families will always be influenced by
expectations and awareness of possible alternatives. However basic issues fundamental to either easing or
increasing fear, unhappiness and distress can usually be identified.
It is vitally important to protect the anonymity and confidentiality of everyone who is interviewed as this
allows children and families to express their views and opinions more freely. There are inherent problems
with seeking information wherever there is a likely imbalance of power between assessor and
participant. This is a particular problem within a health care setting, where participants may feel their
answers are not confidential or that care could be adversely affected. Families in many countries may
have never been asked for their opinion in such a way before and may live in a climate of
disempowerment and justified mistrust of officialdom. The interviewer must be impartial and trustworthy,
with an independent translator if necessary (not relatives of the family or healthcare staff). Any verbal or
written information acquired must not be traceable to an individual parent or child.
Families will respond best if they feel at ease, have privacy during an interview, are shown respect,
understand the purpose of the interview and feel able to interrupt or stop it if they or their child needs
attention.
The purposes of an interview should always be remembered. It is to gain an understanding of what is
important to each individual child and family, what has been particularly good or difficult, what might
make their experience better and what their ideas are about how to make things better for others with the
same problems, if they think this necessary. It is best to explain the program in a way that is
understandable. The interviewer needs to check that the child or parent/carer understands why they are
being interviewed, and what will happen to their contribution, by getting feedback and welcoming
questions. It is important to obtain consent for the interview after this explanation.
Questions need to be easily understood and may need to be omitted if they are not relevant, appropriate,
cause distress or the parent/carer or child does not wish to answer. It is important not to coerce any child
or family member into giving information or answering questions they feel uncomfortable about. If using
an interpreter, look at and talk to the child or parent, rather than to the interpreter, and look at the child or
parent when listening to the answers given through the interpreter to see if they are correct by watching
105
their body language. Use empathetic body language yourself, as showing care and respect will encourage
a child or parent to say what they really think or feel
It is useful to have some form of distraction, such as a toy or a picture, to engage and amuse younger
children when interviewing their parent.
Points of note concerning an interview with a young child
It is not appropriate to ask young children questions about every aspect of care (questions
developed during the pilot project were about Standards 4, 5, 6, 7 and 9).
It is always best to interview young children when they are with their parents or other familiar
carers.
The person asking the questions needs to be skilled at interacting with children
If a child appears upset or develops any distressing symptoms, it is best to thank them for their
help and withdraw rather than persist with the interview
Interviews need to be short.
The words used need to be simple and easily understood by the child
Interviewers checklist:
Find a private place to conduct the interview
Make sure the child or parent is sitting comfortably
Tell the child or parents/carers your name,
Explain who you represent and what work you normally do
Explain the reason for the interview giving a brief explanation of the CFH program (better
healthcare)
If you are an external assessor explain that you do not work in this healthcare environment and do
not personally know any of the health workers
Explain that anything they say will be confidential, and that although important things they say
may be shared with others, no-one will know who said these things
Ask the parent/s or carer if they still agree to talk, or will allow their child to talk to you-(if they
say no, respect this decision)
Get signed consent for the interview or a thumb print (this still represents an individual, and may
be more acceptable) - in some countries verbal consent is sufficient (See section 5 for an example
of a consent form).
How many children and parents/carers should be interviewed?
As many as possible from each healthcare environment that is being assessed and best chosen randomly
from those available (if only volunteers are interviewed there may be some bias in the answers they give.)
Ideally the same number of parent/carer/children as health worker interviewers provides balance.
It does not matter if different parents/carers and children are interviewed before and after improvements
are made. This commonly occurs due to time constraints, and will still allow comparative data to be
gained
How do health workers contribute to the assessment process?
Involving as many health workers as possible in an assessment reveals how they manage and use their
resources, helps understand their attitudes and assesses their skill and knowledge levels.
106
asked to contribute in the same way as others by completing questionnaires for chosen CFH
Standards.
Results may not genuinely reflect collective views if some health workers do not wish to participate or are
unable to. It is therefore important to gain prior authority from senior health workers to ensure that full
cooperation at all levels is possible.
Checklist for assessors:
Decide on the total number of questionnaires needed and then number these
Distribute and collect the numbered questionnaires
Explain the program to the participating health workers or design an information leaflet to be
handed out with each questionnaire
Arrange a collection time or deadline for completing the questionnaires
Agree on a method of collection
Keep a record of the name of each health worker who has been asked to complete a questionnaire
to check whether or not they have returned it
Make sure the questionnaires are confidential and an individual cannot be linked to a specific
questionnaire (no names or other identifiers on questionnaires)
Follow up any questionnaires not returned
How many completed questionnaires are needed?
In a small health facility or clinical area all nurses and doctors should complete the Stage 2
questionnaires.
In larger health care environments or clinical areas a representative sample is sought. Ideally this sample
is a manageable percentage of each type and seniority of health worker selected systematically and
randomly from employment or duty lists. In practice unless careful planning is possible, selection may be
more dependent on availability. In larger clinical environments ten nurses and doctors is the absolute
minimum number needed.
References
Department of Health. The essence of care Patient focussed benchmarking for health care practitioners
2001. Available from www.publications.doh.gov.uk/essenceofcare/essenceofcare.pdf
Gosling L, Edwards M. Toolkits: A practical guide to assessment, monitoring, review and evaluation (Development Manual 5).
London: Save the Children; 1998.
Richman N, Save The Children Fund. Communicating with Children. Helping Children in Distress.
London: Save the Children; 1993.
General Medical Council UK. Confidentiality: Protecting and providing information. London: General
Medical Council; 2004
Nursing and Midwifery Council UK. The NMC Code of Professional Conduct: standards for conduct,
performance and ethics. Nursing and Midwifery Council 2004. Available from http://www.nmcuk.org/nmc/main/splash.html
107
Section 4
Making it better
How to improve the care you give
Child Friendly Healthcare belongs to every the health worker that looks after children and
families whether they are involved in planning, organising, providing or giving care.
108
It's not the strongest of the species that survive, not the most
intelligent, but the one most responsive to change (Charles Darwin)
External barriers (usually outside the control of the health workers in a healthcare environment)
Adverse circumstances in the country (natural and man-made disasters)
Complex healthcare bureaucracy
Constantly changing policies at local and governmental level (instability)
A low budget and poor planning for childrens healthcare
Poorly integrated primary and secondary healthcare services
Many demands for change imposed by others
Low salaries. Low pay means that supplementary income generation, such as private practice, is
an important priority. This inevitably leads to inequity of care and a low commitment to provide
the same standard of healthcare to all children.
Poor job security so health workers fear voicing their opinions.
Limited opportunity for professional advancement and little recognition of worth.
Poor work environment (low investment in equipment and infrastructure)
The unreasonable expectations of people who use the health services (complaints/litigation)
A blame culture in society
Internal barriers (within the healthcare environment (can often be influenced by health workers)
Little or no consultation with the children, their families and the health workers giving or
supporting the care, by those planning services or systems of care. Often non-professional or
junior health workers lack a voice.
Poor sharing and unequal distribution of resources
Poor organisation of the material resources that are available
Poor maintenance, especially cleaning, of the healthcare environment
A vertical management structure with little delegation. This can restrict innovation and
development
No opportunities for education and for health workers to learn effective management and
organisation skills
No fair and open system for employing, dismissing or disciplining health workers
No system for the recognising and praising the contributions of individual health workers or
clinical areas
Poor organisation and no standardisation of systems of care
Poor organisation of human resources (frequent changes of carers, poor skill mixes)
Poor support systems for health workers
No, or little access to the world literature and the evidence-base for healthcare changes.
Few standards, policies, guidelines and other job aides
No opportunities made to review existing policies and guidelines to see if they achieve their
objectives (audit)
Barriers in individual health workers
A negative attitude and low morale
Difficult personal circumstances that are taken to work and affect performance or time spent
working
Poor time management
A lack of respect for others
Lack of knowledge and skills or awareness of what is possible
Reluctance to share skills, knowledge and resources
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110
During the pilot project for the CFHI when most of these forces that support change existed in a pilot
hospital, improvements in healthcare were continually being made and change was a process not an
event. When many of these forces were absent, although there were many visions for making it better,
very little actually happened.
About improving care
To make changes that lead to improved healthcare for children and their families the barriers need to be
overcome, and any forces that may help recognised and effectively used
Great works are performed not by strength but by perseverance Samuel Johnson
What helps to start, or speed up, the change process?
Any type of unfavourable assessment or audit
The setting of new Standards for undertaking aspects of healthcare by a countrys health
planners
The influence of an important person or group of people, such as a government minister or a
parents group
The appointment of a new health worker with vision, particularly if this new health worker is in a
position of authority in the organisation
A difficult or unpleasant experience that causes health workers to look back at what has happened
A complaint or suggestion made by a child or parent. In many countries children and parents are
still not listened to or heard
A learning opportunity or exposure to new experiences, such as a visit by an outsider who raises
awareness about some issue or opens the eyes of health workers to what is possible
111
New research evidence that shows that there is a better way of giving a particular aspect of care
Large changes need to be planned and resourced by those who plan and organise healthcare, but it is
important to remember that many small low, or no cost, improvements can always be made by each and
every health worker and often very small changes can have a huge impact on childrens well-being It is
these changes that the CFH improvement program focuses on.
An example of a small low-cost improvement of the environment
Child friendly curtains, cot covers and some balloons have improved the environment and
motivated health workers to do more in this excellent day care unit in Pakistan
Regarding change, remember that people can be excited about change but do not like to feel they are
being changed.
A smile costs nothing (The Minister of Health, Pakistan and others)
Positive welcoming child and family friendly behaviour in health workers can make a big difference to
how well a child and family respond to their individual health problem. Changing the negative attitudes
found in some health workers, however difficult; can be of huge benefit to children and families.
Attitudes and beliefs influence all aspects of healthcare. They are difficult to change but best practice for
every health worker is to have child and family friendly attitudes and behaviours, and to continually try to
change any negative or destructive attitudes seen in others, especially those that interfere with providing
the best possible care. You can do this by sharing your knowledge about Child Friendly Healthcare and
the evidence for this. This costs nothing except commitment and time.
When making improvements
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Prioritise aspects of care and start with a small but feasible project.
Use a staged (step by step) approach. Completing a project successfully and seeing how it makes
things better, gives the motivation, strength and confidence to tackle the next thing on the list.
Use a team approach to planning and implementing your ideas and solutions with a representative
from each group of health workers affected, and a representative to speak on behalf of the children
and families.
Share ideas, problems and solutions, both locally, nationally, and internationally, through
publications, advertisements, the media, and at paediatric meetings
Use human and material resources effectively (see section 5 looking after health workers). In
countries that have few, or not enough, skilled health workers or cannot afford to pay them, it is best
practice to train and employ less skilled people as basic health workers (not nurses or doctors). This
enables the more expensive skilled doctors and nurses free to see only the very ill children and those
with the most complex problems. In some countries such as Nepal , local people in isolated rural
areas are trained to provide basic healthcare, helped by clear guidelines that are designed to help them
recognise the patients that need to be referred to more skilled health workers at a distant centre. It is
also important to recognise that older retired very experienced and skilled health workers can still
contribute, but in less onerous ways than previously.
Actively support and acknowledge your colleagues
(See also Section 5 for more information about adversity and how to look after health workers)
Ill or unhappy health workers are not able to provide the best possible care and may leave the health
service. So best practice is to support others actively and also to have formal systems for supporting
and looking after the physical, mental and emotional health needs of health workers. This is cheap
compared to the cost of the loss of health workers to a health service. So support and value each of
your colleagues.
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Acknowledgement of health workers by both individual families and communities is also important as
appreciation of their care confirms that they are doing a good job. A culture for blame has a destructive
effect on all aspects of the healthcare provided. It can also cause great distress and disillusionment in the
health workers concerned.
Finally, public acknowledgement of good healthcare brings it to the attention of others, and by doing so
can validate a previously unrecognised or under-valued health service or activity. This acknowledgement
may also attract the resources needed to make it even better and enable the good healthcare to be shared
with others.
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Some of the examples of inappropriate aid seen during the pilot project:
Cupboards full of donated infusion pumps in one countrys main neonatal unit. All said to be
broken but in reality all were in working order. These were incompatible with the local electric,
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supply, the local health workers did not know how to use them, nor were they ready to change the
basic way they gave fluids. They were also unaware of the benefits such a change could bring.
An impassioned plea from a maintenance engineer asking that donors consult him before
donating equipment that he would have to maintain (no repair manuals in his language came with
the equipment), and in any case he would not be able to mend it as had no budget for spare parts.
Out of date drugs and disposables that were unfamiliar and not prescribed in the country. These
had to be destroyed at a cost to the health facility.
A donation of adult resuscitation and basic monitoring equipment to a childrens ward. There
was no training on how to use it the donation. The equipment was not passed on to the adult unit
where it could have been used more appropriately,
A donated computer system for medical records not in use for over a year as there was no funding
for it to be repaired, nor was the expertise available in the country to do this.
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The UK BMA/BMJ information fund this donates and sends educational materials (BMJ books,
CD-ROMs and journals) to successful applicants. It accepts and funds applications from institutions
not individuals. It also enables more than 100 of the worlds poorest countries to have electronic
access to the BMJ publishing groups 23 specialist based journals including its evidence- based
compendium, Clinical Evidence see www.bmj.com
Book aid international. This is a UK non-governmental organisation that distributes the ABC of
AIDS and The International Manual of Child Health to countries in Sub-Saharan Africa.
www.bookaid.org/resources/downloads/ar.pdf
TALC (teaching aids at low cost) is a UK non-governmental organisation that provides low cost
books and teaching equipment to health workers at all levels in disadvantaged countries. www.etalc.org or info@e-talc.org
FreeMedicalJournals.com www.freemedicaljournals.com
Health Internet Access to Research Initiative. www.healthinternetwork.org
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that provides basic monitoring and care for very ill children, it is more appropriate to focus on
improving this before teaching how to intubate and provide assisted ventilation.
Be capable of achieving the respect of local health workers
Be versatile in their approaches and working methods
Consider gender as this can be a factor that may affect a visiting health workers ability to engage the
local health workers
Be able to communicate well at all levels. If the language of the local people is not spoken this can be
a major handicap unless they are always accompanied by a very good interpreter.
Be able to set realistic goals for themselves
Be able to motivate others and teach by example
Support learning and skill building by providing training and educational materials, especially if these
are not or cannot be provided by the country
Be able to show the reasons why what they do might be better than the existing local practice
To act responsibly by ensuring that any teaching they do, or change they advocate, is appropriate to
the environment and resources and can be sustained after they leave
Be prepared to learn from the health workers they are visiting.
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A CFHI coordinator and interpreter in a ward play area. The same childrens area one year later
Sponsorship
Sponsoring or finding a sponsor for an individual health worker to improve their knowledge and skills in
a more advantaged country is another way of helping to make it better, but only if the health worker
returns to their own country after the learning experience to put this into practice. Often after a period of
sponsorship, a health worker fails to return, or is unable to use their new knowledge and skills as these are
not useful in their own country. Countries that host and train health workers from other countries have a
duty to teach the skills that are needed rather than those only relevant to their own health service. They
must encourage health workers to return to their country of origin.
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Expertise, resources, advocacy and shared learning opportunities can all be provided within a twinning
arrangement with a similar health facility, department, clinical area, service or individual in another
country. In both advantaged and disadvantaged countries, the sharing of experiences with colleagues can
be both supportive and effective in improving practice.
Advocacy
An important way for others to help is to advocate for health workers, children and families living in
disadvantaged countries. Advocacy by a visiting health worker may be successful, especially if this health
worker is respected. (See Section 5 for more information on issues for global advocacy)
References
Feeney P. Accountable Aid, Local Participation in Major Projects. Oxford: Oxfam; 1998.
Rifkin S, Pridmore P. Partners in Planning - Information, Participation and Empowerment. Oxford:
MacMillan Education Ltd; 2001
Fuerstein M. Partners in Evaluation - Evaluating development and community programmes with
participants. Oxford: MacMillan Education Ltd; 1986
Vas Dias S The complexity of Change: Developing Child and Family Centred Care in a Russian
Childrens Hospital. Clinical Child Psychology and Psychiatry. 1997. London: SAGE; 2 (3):343-352
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Section 5
Supporting materials
CFH Information Sheets
1.
2.
3.
4.
5.
6.
7.
8.
9.
10.
11.
An evaluation form
A format for writing an assessment report
A policy for preventing and managing a needle stick injury
Data that can be collected to provide information about a populations health
A toy safety policy
A consent form
Essential equipment, medical supplies and drugs for emergencies
Job aides
Organising and running a training course
Writing and funding a project proposal
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Adverse situations are difficult circumstances, for example, poverty and other social or difficult family
circumstances, including a health problem that requires hospitalisation.
An example of how an adverse situation can make a child feel
Humiliation is the worst feeling, to be excluded and ignored and to be compelled and not given the
space to express our needs, our feelings, our dreams. A working child in Karnataka, India.
Some facts about adversity
Outside intervention and/or help may be needed to stop or resolve the event or situation
It is not the magnitude of the adversity that counts but the effect that it has on the individual - what
may seem a small, insignificant thing for many people that can be easily absorbed, for a few people
may be a catastrophe with far reaching effects.
The impact that an adverse event or situation has on a child is dependant on many factors. These
include what else is happening in the persons life at the time, the persons ability to cope, their
degree of emotional and psychosocial vulnerability and the circumstances surrounding the adversity.
After the adverse event or situation is over, help may be needed to recover fully, especially if
resilience (self-healing) is not good
If adversity involves any type of loss, the grief process has to be endured and supported. Criticism
and comments such as pull your self together are not constructive and cause further damage to a
vulnerable adult or child. Understanding is needed and an ability to listen and be there for that
person until, and if, they are able to reach the other side of the grief process.
Only someone who has grieved themselves can fully appreciate the suffering that cannot be avoided
and is not the self inflicted suffering of choice. To be a victim or not, is more complex than merely
being a question of individual choice. Victims need support if they are to recover, some more than
others.
Coming to terms with adversity and finding forgiveness for ones own possible contribution to this
(if acknowledged), and for the contributions of others, can be a positive experience. It can lead to
more tolerance and understanding of others, and an improved ability to help others (an example set
by Nelson Mandela).
Not all child victims find the forgiveness necessary to come to terms with the adversity they
experienced and to move forwards. This failure to heal can cause long-term developmental and
mental health problems. They might never develop to their full potential, become emotionally
mature or contribute well to society.
Intervention to stop, or help a child cope with adversity, needs to:
Be appropriate to the event or situation
Be by people who have the appropriate resources, skills and attitudes
Build on and promote a childs own protective factors (coping strategies)
Avoid the term victim as this suggests helplessness, passiveness and defencelessness in the face
of adversity
Include listening, but ethical codes are also necessary to avoid further exposure to harm by
insensitive questioning of children after an adverse event
Combine cultural sensitivity and an understanding of developmental pathways
Be evaluated, particularly with regard to later development in childhood
The adverse event or situation usually causes many problems for the child and their family. These will
need solving either by themselves or with the help of their community and others (a team approach).
Some simple rules for solving problems
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1. Define the problem/s after listening to everyone affected (do not make assumptions about the cause of
a problem. If you do, it is likely that your solution will not work. Talking to everyone makes finding
the true cause/s of the problem more likely and therefore a workable solution more likely.)
2. If there is more than one problem, prioritise these (remember that the main problem may be due to
several different problems each with different causes, so break a problem down into all its different
parts and decide which are the most important to solve first)
3. Look for the barriers against solving the problem/s and the forces that may help, such as people
and/or materials (It is best to identify these before you start)
4. Decide on some possible solutions/courses of action (after talking to those affected and if possible
also to others who have faced similar problems. The more complex the problem, the more
consultation is necessary)
5. Consider/evaluate the possible solutions and select the best that is feasible, if possible with
everyones agreement (the problem that is easiest to solve may be best tackled first as success
encourages and motivates)
6. Try this out/implement/put into action (if there are lots of problems it is better to select only a few to
act on first. Trying to solve too many at the same time may lead to failure)
7. Evaluate the results to see if the problem has been solved (think about and identify the lessons
learned/the things that went well and the things that could be done differently or better next time)
8. If not, try out other possible solutions until it is solved
9. Review other problems from the list and repeat the process
10. Always acknowledge everyones efforts and share the solutions that worked for you with others.
Advocacy
Advocacy in the context of Child Friendly Healthcare means speaking on behalf of children and/or their
families who are either unable, or unwilling, to speak themselves about their needs, safety, or abuse of
their rights. It is acting as a voice for someone who has no voice or is unable to use it.
Some facts about advocacy
Its aim is to make things better for the child and/or their family
It is usually targeted at people who are able to make decisions and have influence
Anyone can advocate and most of us do so in our daily lives, in many different situations. Often we
are not aware of doing this.
Advocacy is for someone or some people.
It is usually done by someone, or done together with someone else, including with the child.
It can also be done through systems such as a law, healthcare standards or a health improvement
program (the UNCRC is the most important law that advocates for children).
It can be about anything, even small things, if these are causing a difficulty or a problem for a child
Advocacy can be at many different levels. It can be to other health workers in your daily work, the
family, the community, the local government or local organisations, the country government or
country organisations, the international organisations or to religious organisations.
Health workers are ideally placed because of their unique knowledge of a childs needs and best
interests. They have a responsibility to act as advocates for them.
It is important to have as many facts as possible concerning the problem consult widely beforehand
if possible and if the circumstances allow this
Advocacy must always consider a childs best interests
Best practice, if possible, is to use advocacy with the childs and/or their families consent/agreement
If done with the child or their family it can empower them, however care must be taken to avoid
making things worse for the child
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effect on healthcare. There is a need to find an independent tool to assess the impact of many of these
initiatives and report them. (See in Press Archives of Disease in Childhood)
Trans-nationals: This power is highlighted by their lobbying of the World Trade Organisation
(WTO) and the influence they have. There is a need for advocacy to ensure that the needs and
interests of the less powerful (usually the poor) are represented.
Foreign Aid: Some foreign aid does not actually result in sustainable development.
References
OHare BAM, Venables J, Southall DP: Child health in Africa: 2005 a year of hope? Archives of Disease
in Childhood in press
Fustukian S, Keith R, Penrose A. 80 Million Lives, Meeting the Millenium Development Goals in child
and maternal survival. London: Grow Up Free From Poverty Coalition / Save the Children; 2003
125
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Some of the aspects of childrens healthcare that benefit from audit include:
1. Deaths
2. How specific health problems have been managed, including how each individual child with this
problem has been cared for
3. Patient/carer and child (user) satisfaction (of service standards and other quality issues)
4. Adverse or critical events for example a serious infection acquired in the health facility, an
unexpected death, a prescribing mistake, something that has particularly upset health workers
and others
5. How children are referred to the specialty service/healthcare environment. and/or what happens
when a child is referred
6. Other agreed systems of care, policies, procedures, job aides etc.
How to audit deaths
Agree on how often to do this
Collect the total number of deaths since the last audit and the causes.
If there are more than a few deaths, select a sample of cases for discussion rather then attempting
to cover all cases so that maximum attention can be given to the lessons that can be learned from
each case.
Selection criteria can be based on:
Diagnoses - focus on one or two diagnostic problems at each meeting but covering all of the main
causes of death over the calendar year
Indicators - focus on areas where indicators show problems in care (for example if there are more
deaths in one clinical area, or for one clinical firm compared with another that is looking after
similar problems, focus on the area/team with the most deaths)
Priorities - focus on problems that should be overcome readily with existing resources
Avoidable deaths
Best practice is for everyone who was involved in the care of the child/children to attend. Each death
needs to be discussed and decisions made about:
The probable main cause of death
Other possible causes
Contributing conditions (other health related problems identified by health workers or caregivers)
Modifiable/avoidable factors are then identified and classified as:
- Carer or family related
- Administrative
- Related to poor care given by health workers in primary care
- Related to poor care given by health workers at referral centre - (triage, emergency care,
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diagnosis etc)
When the main causes of any problems have been identified, best practice is problem solving as a team.
Decide what steps can be taken to avoid similar deaths in future, agree on any feasible changes for
improvement, who will be responsible for coordinating these within an assigned time, the date they will
be reviewed and how to share the findings and plans with other health workers.
How to audit specific health problems in an individual child or group of children with the same
problem
It is important to review how health problems have been managed in an individual child or a group of
children with the same problem. This means looking at both the outcome for the child and at how the
case was managed from the onset of symptoms up to the time of the audit/exactly what happened and
when (integrated care pathway audit).
The health problem for audit is best decided on jointly at an earlier meeting and the relevant information
collected before the meeting. The same principles apply in that the purpose is to review each case to see if
there were any errors or problems that can be rectified so that they wont happen in the future and to
identify what did go well to share this.
Child and family satisfaction audit
Ideally each healthcare environment and service will have a mission statement clearly displayed in
clinical areas to inform healthcare users, and remind providers, about what is provided. This statement
may include such things as the intent to:
Have a maximum patient waiting time in outpatients
Have a caring attitude
Explain about health problems and their treatment
Provide child friendly facilities - toilets, cooking, washing, play facilities
Any of these intents can be the subject for an audit. To find out whether parents are satisfied with the
particular aspect of service provided, their views and opinions need to be collected before the audit
meeting. This can be achieved in a number of ways including using a questionnaire or individual
interview with a random selection of parents/carers, for example during routine discharge or exit
interviews.
Examples of possible questions include:
Were health worker attitudes caring/friendly?
Were there any unnecessary delays?
Was everything about your childs illness explained to you?
Were facilities adequate? (for example were the wards and toilets clean; was there always soap;
was there enough privacy; did you feel safe and secure; were the facilities for cooking, washing
and toilet facilities satisfactory)
Were you always asked for consent before a procedure?
The findings from questionnaires/interviews can be discussed at the audit meeting and changes made
if problems are identified.
Adverse or critical event audit
Examples of events that can benefit from this type of audit include:
Re-admissions within 48 hours of going home
Night deaths
Near misses where a child has nearly died
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Acquired infections
Incorrect drug treatment such as either the wrong drug or the wrong dose, or a drug given by the
wrong route.
Newborns with severe birth asphyxia
Serious accidents to patients or health workers
Children running away from a hospital
Self-discharges (children discharged by their family against the advice of health workers)
Other events considered important or distressing by health workers
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130
131
No rings (except wedding rings), nail varnish or watches are worn and sleeves are short or rolled
up during patient contact
Hand washing reminders at all sinks
An alcohol hand preparation available to use between patients, especially if hand washing is not
easily possible or needed frequently
To have a system to remind everyone to wash their hands (wall charts etc.)
To regularly audit hand washing to see if this best practice is achieved
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133
Yost, A J, Serkey, JM. Rule-makers who establish infection control standards. Nursing Clinics of North
America 1999;34(2): 527-533
Callaghan I. Bacterial contamination of nurses' uniforms: a study. Nursing Standard 1998; 13 (1): 37-42
Loh W. Ng VV. Holton, J Bacterial flora on the white coats of medical students J Hosp infect.2000.
45(1): 65-68
Neely AN, Maley,M. Survival of enterococci and staphylococci on hospital fabrics and plastic Journal of
Clinical Microbiology 2000 38(2): 724-6
http://clean-air-healthcare.co.uk
Perry C, Marshall R, Jones E.Bacterial contamination of uniforms. J Hosp Infect. 2001; 48(3): 238-41.
Otterstetter H. Water: so much and so little. Perspectives in health 2000: 5 (1) Pan American Health
Organization magazine.
Guidelines for Drinking Water Quality. 2nd ed. Geneva: WHO; 1996.
CFH Information Sheet 5: Clinical guidelines and other job aides - what are they, how to
develop them and how to make sure they are used?
In order to give the best possible care to children and families, paediatricians need to integrate the
highest quality scientific evidence with clinical expertise and the opinions of the family. Moyer VA.
Elliot EJ. Preface to Evidence Based Paediatrics and Child Health
Job aides are written or pictorial reminders about specific aspects of care.(see website for examples and
details) They help, or remind health workers how to, give the best possible health care for a specific
problem or issue. They include:
Guidelines for treating a specific health problem
Algorithms such as those for basic life support (BLS) and the Integrated Management of
Childhood Illnesses (IMCI)
Treatment pathways, drug doses.
Lists of signs and symptoms for triage categories.
Growth charts, developmental milestones.
Hand washing guidelines placed near all the sinks in a health facility
Guidelines and job aides:
Aim to improve healthcare outcomes
Help clinical judgement
Make the treatment of a specific health problem the same (when the same healthcare for a
specific health problem is given by every health worker, evaluation and comparison of care
methods are possible)
Need to be supported by up-to-date evidence.
Need to be linked to audit
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How to develop, introduce and update a clinical guideline or other job aide
1. Create a small multidisciplinary team (see information sheet 11 for information on team working) of
either interested volunteers or elected representatives from all the groups likely to be affected by them,
including a parent and child representative
2. Consult all the health workers likely to be affected by the introduction, or up-dating, of a guideline or
other job aide, and parents and children too, if possible, so that:
Any organisational or individual barriers to their introduction and use can be identified
Attempts to overcome these barriers can be made before their introduction
Ownership is shared (individuals are more likely to use the guideline if they feel they have
contributed to them and therefore share their ownership)
The opinions and views of those on the receiving end can be incorporated
3. Find and review all existing guidelines used by the clinical area, healthcare environment, country or
international community as:
It saves time to use or adapt an existing guideline rather than re-invent the wheel
It is sensible to comply with existing country guidelines, as long as they are evidence based and
up to date.
4. Find and use the evidence to support the proposed guideline/job aide:
For an existing guideline, review the evidence for this to make sure it is up-to-date and correct
(unless the guideline is from a reputable source, is well referenced and dated with a recent date)
Search the literature widely for quality evidence using the internet (if available) and reputable
sources of information
Remember to write down how this search was made and the information source/s
Interpret the evidence wisely and match it to the resources available
Translate the evidence into medical and nursing care for the health workers in the healthcare
environment
Use the written evidence to provide references for the guideline
5. Before introducing the guideline/job aide:
Get agreement from the director/chief of the healthcare environment, the heads of departments
and key clinical task coordinators for its use
Get agreement for the date for starting to use it
Finalise and all agree the content of the guideline and its references
Remember to date the guideline
Arrange education sessions for all health workers likely to be involved or affected
Arrange a date for its review or audit
6. Arrange an early review by the core working party to amend the guideline if necessary as:
The evidence for medical and nursing care can change as new research is published
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Local difficulties with following the guideline may occur and these will need identifying quickly,
as will their solutions
To achieve standardisation of practice, regular audit of compliance with the guideline is needed to
find the reasons for non-compliance and their solutions
References
Royal College of Paediatrics and Child Health. Standards for Development of Clinical Guidelines in
Paediatrics and Child Health. 2nd ed. London: Royal College of Paediatrics and Child Health; 2001
Janowski RF. Implementing national guidelines at local level. BMJ 2001; 322: 1258-1259
.
Gill G. Clinical Medicine. 1(4), 2001, p 307-308.
Woolf SH, Grol R, Hutchinson A, Eccles MP, Grimshaw JM. Clinical guidelines: Potential benefits,
limitations, and harms of clinical guidelines. BMJ 1999; 318: 527 - 530.
Interagency Guidelines for drug donation. 2nd ed. Geneva: WHO Department of Essential Drugs and
Medicines; 1999
www.drugdonations.org
Guidelines on medical equipment donations: www.echohealth.org.uk and
http://www.medequip.org/guidlines.htm
Royal College of Paediatrics and Child Health. CHERUB = Child Health Evidence Resources Update
Bulletin. quarterly bulletin RCPCH . Available at www.rcpch.ac.uk
Royal College of Paediatrics and Child Health: Clinical Guideline appraisals available from at
www.rcpch.ac.uk
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A Health Record is written information about the physical and/or mental health of a patient.
Keeping a written record of the healthcare given, and collecting other important health related
information is an essential part of a professional health workers job.
Reasons for keeping records
1. To inform others (children, parents/carers and health workers) about what has happened to a child
and/or what healthcare is planned. This contributes to consistent and seamless healthcare and avoids time
wasting duplication and unnecessary repetition if all health workers respect and use the health record.
Parents and children often feel frustrated when asked the same questions by a succession of
different health workers.
2. To obtain information about a population of children, for example children with disabilities, so
that their health needs can be assessed and appropriate intervention programs can be planned and
resourced
3. To obtain information about other important indicators for childrens health, such as
breastfeeding and immunisation rates, that can be used to:
Support advocacy for increased resources
Monitor performance of programs, services and individuals e.g. road traffic accidents
Monitor effectiveness of healthcare interventions
Confirm that standards of healthcare have been achieved at their best possible level of practice
Plan or change policies and systems of care
4. To facilitate research
When deciding what information to collect it is important to:
Consider what it is for or why it is wanted/needed and what questions about health issues it hopes
to answer
Only collect what is really wanted/needed, what is possible and practical to collect and not more
than is necessary
Imagine how it will be used and/or presented before designing the method and format for
collecting it. Make this as simple as possible
Consider confidentiality issues
Best practice is that any data collected is:
1. As accurate as possible and of adequate quality
2. Standardised throughout the healthcare environment, health service and/or country
3. Protected (sensitive personal data is kept confidential)
4. It is also important that appropriate data are collected to provide international organisations and
others with the information they request and/or need.
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Best practice for a health record or any other information recording system is for it to be:
As simple as possible
Easy to identify so that it can be found quickly when stored (for example each child from birth
can be given a health number that is used for all their health records. This individual numbering
also avoids duplication)
As few as possible for each child. To avoid duplication, best practice is for a single health record
to be used by all health professionals involved with the child.
Easily accessible to all health workers (and to the child and their parents/carers) but secure from
people who do not need to see it
Available when needed.
2. Standardised data collection and examination means that:
The same information is collected by everyone
The same way of recording the information is used (the same format is used for collecting
information throughout a health service)
The same information recording systems (health record, investigation request and other forms or
computer program) are used throughout the health facility/organisation
The data are analysed using the same methods (for example if a coding system is used for coding
health problems, it is best to use the same one throughout a country)
A good example of standardised data collection is for a country to also use parent held child
health records. This requires a policy to use these country-wide. This requires a commitment
from all health professionals to make an appropriate entry each time the child has a significant
health problem or health intervention, for example an immunisation or an admission to hospital.
Such records are especially useful when a child sees many different health professionals in a
variety of different healthcare settings as it ensures there is a complete record of the childs
healthcare with the parents/carers.
3. Data protection means:
Ensuring that sensitive recorded personal health information is kept confidential (cannot be read
or seen by others, or discussed with people who do not need to know).
Having a policy about this that is agreed and followed by all health workers.
Regular training about, and audit of, this policy to enable health workers to see if it is working
effectively.
Including in the policy advice about the storage of records, who is authorised to write in them,
who should be able look at them, what information from them can be shared and with whom.
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Having secure storage for records and a good system for monitoring those who access and borrow
records. Ideally health workers from a different clinical area or service should get permission
from a named person before accessing a record.
Never leaving records in a place where unauthorised others can see them.
Not writing childrens names with their diagnoses, or other sensitive information, in a place (such
as a board) that can be seen by other parents/carers or children.
Understanding and following any legislation about data protection.
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Computer systems
Using computers to record, store and collate information can improve patient care as information can be
shared and retrieved quickly thus minimising potentially harmful delays. However it is costly, needs a
back-up system and cannot be used without extra training for all health workers. To use computerised
systems effectively, the following are necessary:
A secure electricity supply
A budget for capital costs
A budget for maintenance and spares
A budget for printers and printer ink
A budget for telephone costs and Internet subscriptions
Standardisation of computer programs
Computer programs that are linked and produce what is needed
The expertise to maintain
The expertise to use
Training programs
A commitment from health workers
Without these, computerisation will cause additional problems for health workers and fail to meet its
objectives.
Data management activities contribute to, and support the best possible health care when
performed well. Therefore they need to be adequately resourced.
References
McMaster P, McMaster H, Simunovic V, Selimovic N, Southall DP. Parent and young person held child
health record and advice booklets and their use in Bosnia and Herzegovena. International Child Health.
1995; 6:121-131
140
McMaster P, McMaster H, Southall DP. Personal child health record and advice booklet programme in
Tuzla, Bosnia Herzegovina. J. Royal Society of Medicine 1996:89(4): 202-204
CFH Information sheet 7: Lifelong learning and how to put this into practice.
Wisdom, knowledge and skills are for sharing not owning
141
Informal learning such as using distance learning programmes, participating in audit, presenting
research, watching others (such as sitting-in with or being closely supervised by someone with
more experience and/or more skills), contributing to confidential enquiry panels, post-graduate
examining, writing books and articles and doing research
Self-learning such as using a library and reading books and journals, using the internet, making
reflective notes
Best practice is to regularly experience a combination of all these different types of learning, although in
practice it will depend on the resources and opportunities available to you.
Before starting to work in a new healthcare environment, it is especially important for a health worker to
be sure they have, or acquire quickly, the skills and knowledge to give the type of healthcare needed
safely. The provision of induction training about the policies, guidelines and systems of care used in the
new environment helps to ensure this. When induction training is not available or possible, close
supervision until the new health worker is sufficiently experienced and knowledgeable is an acceptable
alternative.
How can you put learning or new skills into practice?
Changes of practice and attitude do not always follow learning as:
Doing something differently never feels as comfortable as doing it the same familiar way
It is not appropriate
It turns out to be harder than you expect as:
You do not have the authority to persuade others to change
You have forgotten some of the details
You come up against an unexpected problem
Others criticise your efforts so you give up
You feel you are the only one making an effort
Others dont see the need for change
The system or the hierarchy get in the way
If you are a junior health worker it is easier to do this if you are helped, guided and supported by a senior
colleague (a mentor) who is committed to the changes in practice and attitude needed. Your mentor might
be your manager or a more senior health worker. Their role is to empower, enable and help your efforts
by:
o Supporting and encouraging you
o Making sure you have everything you need
o Helping you anticipate barriers to success and work out ways of dealing with them
o Publicising your successes
Things you can do to help your mentor:
Point out the benefits the children and families will get from the change (for example I know you
are concerned about .., when we make these changes they will do -----------).
Mentors need to know what the mentee and others can expect to see happening differently.
Ask the mentor how much and how often they want to hear about your progress dont assume.
The mentor may need a lot of detail in order to deal with colleagues, or may be happy to leave it
to you. The mentor may have reporting targets and deadlines that you dont know about. Once
you know, make sure you give what the mentor asks for.
Ask if there is any other way you can help
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It usually takes longer than you expect to make any significant changes in your own or others practice.
You can maximise your chances of getting a real and lasting improvement in practice by first planning to
USE what you learn by sharing this with others.
Sharing learning
Start by deciding what you need to share, why you need to share this, who to share it with and how you
can do this. It helps if learning aids are available (such as writing boards, flip-charts, overhead projectors
or power point technology); but these are not essential.
The most important reason for sharing learning is to influence changes in the way care is given to make
this better for children and families.
People you may need to share with include:
Professional colleagues at junior, equivalent and senior levels
Other health workers cleaners, security guards, maintenance, drivers etc
Children and their carers
Other people who can help you teachers, people of standing in the community
People who may disagree with you and can get in your way
Other people who have had the same learning experience
Ways you can share your learning include:
Informally discussing what you have learned with your colleagues
Organising a meeting about it or taking advantage of a meeting thats already happening, for example
a departmental meeting
Putting information on a bulletin board (paper or electronic), giving out leaflets or circulate a note
about it
Writing a newsletter about it (send to others on paper or by electronic mail), or writing an article to go
in an existing newsletter
Making up a story or a song about it, or getting the patients and their families to make one up
Making some pictures about it and using them to decorate the ward
Giving a formal presentation or organising a training course about it
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Being unhappy leads to discontent and demoralisation. Unhappy demoralised health workers are
unlikely to:
Be motivated to change
Be able to express their views and opinions freely, especially if they have no real job security
Improve the care they give to children and their families
Be able to give the best possible care
As it takes considerable effort, time and money for a health worker to become sufficiently skilled to
provide effective healthcare, health workers are a valuable resource for a country. It does not make sense
to have unhappy de-motivated or mentally ill health workers that leave either the health service or their
country.
To keep health workers happy and well it is especially important to have systems in place to protect them
from acquiring mental health problems due to their work, and to look after them when they do have these.
It is also important to have transparent employment procedures (including job security) and adequate
payment. These issues are a priority for those who plan and organise healthcare.
Other factors that contribute to a contented and motivated health worker
Job satisfaction and sense of achievement
Recognition and praise, when deserved
Good leadership with consistency and fairness from managers
Clarity of goals, the purpose of the job and expectations of performance
A culture that encourages flexibility and innovation
Being consulted/having a voice
A sense of belonging and a feeling that what you do matters
Being part of a successful team (team working) and knowing what constitutes success
Working with people who are loyal and supportive, especially if you do not have strong family
support
Pressure within reason
Varied and challenging work
Having the authority, skills and respect to do the job well
Learning new skills and having the opportunities to use these
Opportunities for advancement
Having a sense of morality, ethics, shared values and beliefs incorporated into your work
Being protected from work related health problems (for example being given advice about safe lifting, and
the prevention of and management of needle-stick injuries)
Having physical health problems looked after, especially if the problem is work related
Good terms of employment include:
Clearly stated goals and objectives for the job
Reasonable pay
Job security and transparent, fair and supportive disciplinary and dismissal procedures
Interesting and stimulating work and the opportunity to make good use of your talents and skills
A reasonable workload (that enables a good life-work balance)
Opportunities for advancement/promotion
A supportive culture and colleagues
Learning and skill building opportunities
Security and safety in the healthcare environment
A good working environment
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These all depend on the culture in the healthcare environment, the skill of the leaders/managers and the
allocated resources for the job.
More about stress
One of the commonest mental health problems in health workers is stress. Poor terms of employment
make stress more likely in any employee. However there are many additional causes of stress associated
with being a health worker. Stress and anxiety are greater in clinical jobs than non-clinical, and in some
specialities more than in others. Caring for children and families is especially stressful and requires
special attributes that include:
A genuine interest and empathy with children and their families
A friendly down to earth personality
Common sense
A lack of interest in private income, providing the remuneration is sufficient to live at least as
well as the average family. This is not the case in many countries where to survive health workers
have to depend on additional income generation. In these countries, inequity of healthcare is
inevitable.
A broad, all round knowledge of childrens healthcare
The ability to communicate with all types of people well, especially across professional, cultural
and ethnic boundaries and age groups
Particularly stressful events for health workers include:
Carrying out an invasive procedure, such as a blood test, in a child
Carrying out an invasive procedure in an upset child
Not being able to do the procedure (in the case of venous access, it is a good idea to always stop
after a maximum of three attempts, if this is possible, and let someone else try)
Giving parents bad news
Being on call without a senior health worker to provide support
Having to take responsibility before you are confident, or to deal with a situation when you do not
know what to do (doubt in reasonable amounts creates a thorough health worker, in excess a
tortured and inefficient one).
When you do not have the equipment, drugs or treatments that the child needs
When a child is very ill
When a child dies
Coping with distressed parents and families
Making a mistake
Having a complaint made against you
When there is too much to do and as a consequence you know that care is unsafe
Some other facts about the mental health of health workers in some countries:
Deaths from suicide, cirrhosis and road traffic accidents are higher in health workers than in the
general population
Women doctors are more likely to commit suicide than men, possibly as they are more
empathetic and patients increasingly demand empathy
Drug addiction and alcoholism are more common
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There are higher divorce rates and marriages are more at risk as health workers are often torn
between meeting patients needs and family needs (doctors are often described by their partners
as controlling perfectionists)
Mental illness may be present in greater than 30%, women being at greater risk, up to 46%.
Health workers, especially doctors, often feel that sharing their feelings with others is a sign of weakness
and therefore they try to cope alone when stressed and emotionally distressed. However, if their emotions
and feelings become overloaded they are unable to function properly due to associated detachment
(leading to cynicism and carelessness), a loss of short-term memory, sleep disturbance and difficulty with
decision-making. Carelessness leads to mistakes, complaints and in well-resourced countries, litigation.
These make the situation even worse and may lead to a persecutory anxiety. Another reaction to
emotional stress can be to work even harder and to take on more commitments leading to inevitable
burn-out.
Burn-out is the end point of stress. This is a complex of psychological responses to the particular
emotional stress of constant interaction with people in need. It especially affects health workers and other
people with similar work.
Summary of factors that can lead to discontent, stress and burn-out include:
Major changes in workplace
Little personal say about how to do the job
Poor communication up and down
Poor recognition of individual worth
Inability through personal circumstances to work flexible hours
Excessive hours of work
Competing demands on time
Inadequate resources
Lack of support programs
How to protect yourself against these mental health problems?
You can lessen the effects of stress and emotional distress and reduce the risk of burn-out and other
mental health problems by:
1. Structuring and prioritising your time
2. Sharing your responsibilities and commitments (delegating with the authority to undertake the
task)
3. Recognising stress and emotional distress and taking avoiding actions (developing stress coping
strategies)
4. Learning to say no
5. Being open to help
6. Protecting your marriage, family and friendships, and by getting support from those close to you
(secure family relationships and the support of close friends helps protect against stress).
7. Creating a forum for a group of colleagues to support each other (peer group support)
8. Using the local support/counselling services that are available, and if there are none advocating
for these
9. Being in the right job for you
10. Being happy with your job content and terms of employment
Activities that can reduce and/or prevent unhappiness, stress and burn-out include:
1. Regular small group meetings to discuss important current issues
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2. Special meetings after an upsetting or stressful event (such as a mistake, an accident in the health
facility or an unexpected death) to discuss this, stop it happening again and provide support for
those affected by the event.
3. Increased control of ones own job/s and autonomy in daily activities
4. Redesign of job to decrease or increase responsibilities
5. Introduction of flexible working hours
6. Formal orientation and induction training for new health workers
7. Employee support programs that include skilled counselling services
8. Multidisciplinary rehabilitation for those with burnout
9. Early vocational counselling so that a health worker is doing the job that is right for their skills,
talents and level of knowledge
Health workers are valuable; they have a greater risk of health problems therefore need looking
after properly.
Although health workers need to be looked after properly by their employers but they also have a
responsibility to be good employees.
How to be a good employee!
Take care of your work and your work takes care of you (Brigitte, South Africa)
Bad employees:
1. Complain and waste time
2. Are complacent: so be professional and sharpen your skills and add new ones.
3. Are invisible. Make an impression and be visible, volunteer for projects and help when others are
overloaded
4. Are negative. So dont say bad things about colleagues or seniors/managers. This backfires when
your unkind words finally reach their ears. If you have a grievance, control your emotions, calmly
work out what you want to say, then tell your manager or the person concerned.
5. Are unreliable. Managers value employees who are trustworthy and conscientious. Delivering on
every commitment you make is a key indicator of a reliable, responsible employee with integrity; so
do this.
6. Have a poor relationship with their manager. Your relationship with your manager/senior/leader is
critical for promotion. Do you make your managers life easier or harder? Do you take up concerns
directly with him or her, or do you discuss it with others who cannot do anything about it.
7. Blame others. If you make a mistake, take responsibility. Accepting responsibility for your actions
demonstrates your professional maturity.
8. Make the wrong friends. If you are in with the wrong crowd (the whiners, the laziest), break away.
Associate with the successful people.
9. Mix personal problems with the job. Marital problems, financial difficulties or other personal
problems should be left at home and not allowed to interfere with your work. However do tell your
manager if you have got special problems. They may and should be able to help.
10. Are disloyal. You dont have to agree with every decision, but managers and your seniors appreciate
loyal employees who understand the objectives and the problem, and who contribute actively to
meeting the objectives and solving the problems.
11. Are not conscientious or dont do their work properly. For example they do not always know about
or follow policies and guidelines. They spend time too much work time socialising with their
colleagues or they do not look carefully at what they do to make sure it is the best way to do it.
12. Are dishonest, for example use work materials for personal use, make personal telephone calls
without paying or are not honest about what they did or did not do.
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So make yourself visible, be honest, learn to welcome change, develop new skills, be flexible,
review what you do, respect others property and remember the power of good communication.
Finally a senior health worker or manager can abuse others by:
Arriving late, leaving early or frequently being absent, especially during busy periods
Being constantly away from their desk/office
Using stationery and equipment for personal use and/or making unauthorised private phone calls,
faxes, e-mails, photocopies etc
Making unauthorised trips or detours with company vehicles
Abusing relations with colleagues by constantly borrowing money or using their books, equipment
and other possessions without permission.
Leaving mistakes or unfinished work for others to sort out.
References:
Haman H, Irvine S. Making Sense of Personnel Management, Abingdon: Radcliffe Medical Press 1998
McManus IC, Winder BC, Gordon D. The causal links between stress and burnout in a longitudinal study
of UK doctors. Lancet. 2002 Jun 15; 359(9323): 2089-90.
Maslach, C. & Jackson, S. E. (1981). The measurement of experienced burnout. Journal of Occupational
Behavior, 2, 99-113.
148
Example 2
Neonatal Intensive Care Unit, Mulago Hospital, Kampala, Uganda The Ten Commandments of the
Newborn
149
150
Example 4
The childrens unit at Ulster hospital, Northern Ireland Adolescent charter
When you are in hospital:
- Where possible you will be cared for in a separate unit that is furnished to meet the needs of young
people
- You can wear your own clothes and bring in your own things
- You will be cared for by qualified staff who will try to understand your physical and emotional needs,
and respect your needs for privacy and independence
- You will be treated with sensitivity, honesty and tact at all times
- You will have the right to information and to make informed decisions regarding your care
- You will be able to discuss your physical and emotional needs in confidence
- You will be able to have your parents visit at any time and to stay overnight if you wish. You will be
able to have you family and friends visit
- You can refuse to take part in research or student teaching. You can ask for a second medical opinion
if you wish
- You will have facilities for recreational activities and a quiet area
All care will take into account your cultural and ethnic needs, disabilities and chronic illness (as
appropriate)
- You will be given house rules (drawn up by other young people) which you will be expected to follow
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152
What the goal is (usually this will be fully to solve the problem)
How it is going to be achieved (the details of the plan/plan the project)
Who is going to do it (delegation)
How you are going to ask or persuade others that it is a good idea and to do it (motivate them)
How are you going to see whether you have achieved the goal/s and solved the problem
When are you going to do the evaluation (usually after completion of the project)
How are you going to acknowledge/reward the team effort. You do not always need money or
materials for this. Open recognition and praise is very effective
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This team approach can be used in many different situations and at many different levels in a healthcare
environment or organisation. If there are many different teams in the same health facility all responsible
for a different vision, or with a different purpose, their team leaders need to communicate with each other.
Wherever possible they need to avoid duplication of activities and report to a leader responsible for all the
teams related to his/her area of responsibility.
Most teams work better when:
There is a leader to manage and coordinate the teams activities.
This leader is approved of and respected by all members of the team, or in a large team by a
clear majority
The team is as small as possible
Team members represent those most affected by its activities (it has a representative from each
group of health workers, or from each area affected, and includes a parent or older child patient
representative, if possible or appropriate)
Team members share a clear vision (such as improving the healthcare given), or purpose (such as
planning healthcare, organising a departments activities, solving problems etc.)There are agreed,
clearly defined goals or aims for achieving the vision or purpose The groups represented by team
members are consulted whenever possible before any action or decisions are taken on their behalf
A team member representing a group of health workers reports back to their own leader or
manager about the teams activities. For example a nurse reports to her senior/head nurse.
A team approach may solve a single problem quickly (See information sheet 10 for more information
about problem solving), however most teams have long-term visions and purposes. Teams like this need
to meet regularly. Progress with the goals and aims needs to be discussed, and further activities planned.
Great leaders are almost always great simplifiers, who can cut through argument, debate and doubt to
154
155
Autocratic leadership:
Works well when:
The situation is simple with a limited number of likely
problems
There is a single obvious best solution to most problems
There are a limited number of different issues involved
The situation is replicated in the same way frequently
Followers or team members all agree that the leader has unique
skills, talents, knowledge that is much superior to their own
The leader is willing to get involved in all the details
The leader has the capacity to be involved in the details
The followers changes frequently
The team, if there is one, is remote
An example of when autocratic leadership works well is a ward staffed with temporarily employed nurses
when it is best if there is tight control and rules about how things are done.
Laissez-faire leadership:
Works well when:
The team is composed of a small number of similar individuals
who share the same goals
One solution to a problem is as good as any other
The team members know each other very well and are in
frequent contact with each other
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Although there is a place for all these types of leadership, a healthcare environment is usually complex. It
encompasses many diverse issues and activities and is staffed by many skilled health workers leadership
is likely to work best.
If this collaborative leadership model is adopted it will result in more ideas, better insight and
cooperation, more manageable demands on the leader and the projects and solutions are more likely to
work and be sustainable. It is less likely to waste valuable time and energy.
When using this model of leadership, best practice for the leader is to:
Choose team members to represent each of the important functions and activities
Balance the team
Find out the individual strengths and unique skills of each team member
Use these strengths and skills effectively
Communicate well upwards and downwards to other health workers
Delegate authority but make it very clear what and how much is delegated - set the boundaries
clearly
Set up procedures for communicating (See example of a communication matrix)
An example of a communication matrix
Team Meeting
CAI Magazine
Advisory Committee Meetings
Minutes of committee
meetings
E-mail
Web Site
Presentations
Posters
Newsletter
Meeting/Hospitals
Telephone/Fax
Letters
Postal updates/fliers
Reports about pilot sites
Others
CAI Members
Parent Organisations
UK Ethics
Committees
Governmental
Departments
Media
Global Organisations
((WHO, UNICEF)
Other NGOs
Donors
Professional
Organisations
CFHI Advisory
Committee
Methods
The methods of communications considered most appropriate to use for the different groups
of people involved with the pilot project for the Child Friendly Healthcare Initiative
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3. Leadership based on accepted beliefs and moral values works best as it treats people equally,
respects everyone in the team and seeks and welcomes new ideas, initiatives and innovations. It is
open, humble and has integrity.
4. Leaders need to be in training every day of their lives. They have constantly to adapt to the
crises and problems that arise around them, but they also need to train for a purpose.
5. Full engagement in leadership requires coping strategies that draw on physical, emotional, mental
and spiritual (this means being in touch with your values) energy. Each of these sources of energy
needs training and rituals. Like physical training, all of these sources require recovery time
before you can draw on them again, for example
Physical recovery time is rest
Emotional recovery time can be focussing on a happy thought/experience from outside
Mental recovery time can be sleep or meditation
Spiritual recovery time can be time alone to reflect on your values and beliefs
All great leaders and sportsmen have recovery rituals for these energies. We are creatures of
habit, so build rituals to sustain your sources of energy and to avoid compromising recovery do
not take emotional baggage into your recovery times.
6. If you wake in the middle of the night, never look at the clock but use the strategies that work for
you to shut out any fear, anxiety and stress.
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Team members
Finance
Manager
Responsible
for
Facilities
Manager
Responsible for
Human
Chief
Resources
Nurse
Manager
Responsible
Responsible
for
for
Manager of
all Clinical
Services
Responsible
for
Administration
Manager
Responsible for
Management and
control (team
leader)
Estate management
Personnel
Nursing
Clinical
departments
Secretariat
Accounting
Engineering
Human
Resources
Quality
assurance
Laboratory
services
Legal services
Paymaster
Building
Manpower
Patient
services
Imaging
(Radiology)
Administration
Budgeting
Transport
Planning
Catering
Therapists
Data management
Procurement
Utilities
(electricity,
sanitation and
water)
Occupational
health
Information
Laundry
Pharmacy
Others
Maintenance
Cleaning
Waste disposal
Capital planning
Training
Training
Training (lead
for continuing
professional
development)
Training
Training
Training
Each team member is responsible for the areas listed above and for representing and supporting
(providing leadership to) their health workers. The leader of this team can be elected by the team
members, although in many countries this is usually the director of the health facility.
It is especially important for the head nurse to be in a health facility management team and to provide
professional leadership as nurses are:
A health facilitys single largest human resource
Present 24 hours a day
See all the strengths and weaknesses of the organisation
Know what patients need
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Unfortunately in many disadvantaged countries nurses have a low status, poor training (very basic, often
without any specialist training or very little), no professional organisations and are unable to contribute to
service planning and decision-making.
References
David Mencheon and Yi Mien Koh. Leadership and motivation. BMJ 2000 29 July Pages 2-3
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