Autism-A Resource Pack For School Staff PDF
Autism-A Resource Pack For School Staff PDF
Autism-A Resource Pack For School Staff PDF
Introduction 2
What is autism? 2
Recognising autism 5
Effective communication 8
Behaviour 9
Bullying 10
Transitions 11
School refusal 13
This pack can be of help to any member of staff working in an education setting. We include information
about autism, how it may affect children and young people in education settings, information on
strategies, interventions and useful resources from the NAS and other organisations. We hope our pack
will give you greater confidence in working with pupils who are on the autism spectrum.
Terminology
You have probably come across a variety of different terms for this complex condition. In this pack we
have used the term autism or autism spectrum to encompass autism, Asperger syndrome, autism
spectrum disorders and Pathological Demand Avoidance (PDA), unless specified.
What is autism?
People with autism have said that the world to them is a mass of people, places and events which they
struggle to make sense of, which can cause them considerable stress and anxiety. In particular,
understanding and relating to other people and taking part in everyday family and social life may be
harder for them. Many people appear to know, intuitively, how to communicate and interact with each
other, while people with autism might find this particularly difficult.
Autism is a lifelong developmental disability. It is part of the ‘autism spectrum’ and can also be referred
to as an autism spectrum disorder, or an ASD. The word ‘spectrum’ is used because, while all people
with autism share three main areas of difficulty, their condition may affect them in very different ways.
The three main areas of difficulty which all children and young people on the autism spectrum share are:
Autism is an ‘invisible’ disability – you cannot necessarily tell someone has it from looking at them.
Parents of children with autism often say that people simply think their child is naughty. Everyone with
autism can benefit from a timely diagnosis and access to appropriate services and support.
Children and young people on the autism spectrum may have difficulties with both verbal and non-verbal
communication. Some may have a very literal understanding of language, thinking people always mean
exactly what they say, or find it difficult to express themselves emotionally and socially. They may find it
difficult to use or understand:
Whilst some may be non-verbal and choose to use alternative means of communication, others may
have good language skills but find it hard to understand the give-and-take nature of conversations. They
may repeat what the other person has just said (known as echolalia) or not recognise when the other
person is bored.
People with autism often have difficulty recognising or understanding other people’s emotions and
feelings, and expressing their own. This can make it more difficult for them to fit in socially. Many
children and young people with autism will want to be sociable, but have difficulty with initiating and
sustaining friendships. They may:
> not understand normal social behaviour, which is intuitive for others – for example, they may
stand too close to their peers or start what may be considered to be an inappropriate subject
of conversation
> appear to be insensitive because they have not recognised how someone else is feeling
> prefer to spend more time alone than with others
> not seek comfort in expected ways or become withdrawn, disinterested and appear aloof
> appear to behave ‘strangely’ or not according to social expectations.
Social imagination allows us to understand and predict other people’s behaviour, make sense of abstract
ideas and to predict and adapt to change. Difficulties with social imagination must not be confused with a
lack of imagination. Many children and young people on the autism spectrum can be very creative.
Difficulty with social imagination means that people with autism can find it hard to:
> understand and interpret other people’s thoughts, feelings and actions
> predict what will or could happen next
> understand the concept of danger, for example that leaving a safe playground and running
onto a busy road may pose a threat to them
> engage in social imaginative play and activities - children with autism may appear to be taking
part in imaginative play, but could be repeatedly acting out scenes
> prepare for change
> cope in new or unfamiliar situations.
Children and young people with autism often prefer to have their own fixed routine as it helps them to
make sense of the world around them.
It can be more helpful for them to use a routine they have created themselves or which has been
mutually agreed, rather than one which has been imposed on them for convenience.
Rules and rituals can also be important and it may be difficult for a person with autism to take a new
approach to something. Children and young people on the autism spectrum will cope better with change
if they are prepared for it in advance.
Sensory sensitivities
Children and young people with autism may experience some form of sensory sensitivity. This can occur
in one or more of the seven senses – sight, sound, smell, touch, taste, balance and body awareness.
Their senses can be intensified (hypersensitive) or under-sensitive (hyposensitive). The degree of
difficulty varies from one individual to another and according to other factors such as mood and levels of
stress and stimuli.
For example, a child or young person with autism may find certain background sounds, which their peers
are able to ignore or block out, unbearably loud or distracting. This can cause stress and anxiety or even
physical pain and may affect their behaviour in the school environment.
People who are hyposensitive may not feel pain or extremes of temperature. Some may rock, spin or
flap their hands to stimulate sensation, to help with balance and posture or to deal with stress. This can
make them appear odd and they stand out to those without understanding.
Some people may have a hyposensitive body awareness system, making it harder for them to navigate
rooms and avoid obstructions or stand at an appropriate distance from others. They may appear to be
clumsy and have difficulty carrying out ‘fine motor’ tasks such as handwriting and tying shoelaces.
Highly-focused interests
Many children and young people with autism have intense interests. These can change over time or be
lifelong, and can be anything from Lego, animals or a particular TV programme to trains, music or
computers. Some may eventually be able to work or study in related areas. Highly-focused interests can
often be used to differentiate a given piece of work so that it motivates that child or young person to
learn. They can also be used as a focus for a reward chart or system.
Learning disabilities
People with autism may have learning disabilities, which can affect all aspects of their lives, from
studying in school to learning how to carry out basic personal care. As with autism, people can have
different ‘degrees’ of learning disability, so some may be able to live fairly independently with support,
while others may require lifelong and specialist support. However, all children and young people with
autism can, and do, learn and develop with the right sort of support.
Asperger syndrome is a form of autism. Children and young people with Asperger syndrome have fewer
problems with language and are often of average, or above average, intelligence. They do not usually
have accompanying learning disabilities, but may have a specific learning difficulty. Whilst not
Children and young people with PDA share difficulties with others on the autism spectrum in social
aspects of interaction, communication and imagination. However, the central difficulty for people with
PDA is the way they are driven to avoid demands and expectations. This is because they have an
anxiety-based need to be in control. Children and young people with PDA seem to have better social
understanding and communication skills than others on the spectrum and are able to use this to their
advantage. For further information please see www.autism.org.uk/pda and www.pdasociety.org.uk.
Recognising autism
As an education professional working with children and young people, you will come across pupils who
are on the autism spectrum, with or without a diagnosis. Take a look at this list of behaviours which
children on the autism spectrum may have. There may be a wider range than you thought. Pupils on the
autism a spectrum may:
> show ritualistic or repetitive play and behaviour, such as always lining toys up in a particular
order
> have difficulty with communicating (some children may not talk at all)
> have difficulty with engaging in imaginative play (although this may not be the case for
children with Pathological Demand Avoidance)
> behave in a self-injurious way, for example biting, pinching, kicking or pica (putting inedible
items in the mouth)
> appear to be of an average or above average intelligence, but unable to use it academically
A child does not need to show all these signs to be diagnosed as being on the autism spectrum and
some children who do not have autism may exhibit some of these behaviours.
Children and young people with autism can display different behaviour at home to when they are at
school. This is often because of underlying anxiety that has built throughout the school day. They feel
comfortable within their home environment and know that they are fully accepted. Here is where they are
able to release any frustrations they have been feeling at school.
Work closely with parents and carers, as they know their child best. They may have ideas on how you
can help their child or young person to feel more comfortable at school, which will have a positive impact
on their behaviour at home.
Children and young people with PDA may present with a different set of characteristics. For more
information please see www.pdasociety.org.uk/education/recognising-autism-spectrum-conditions-in-
the-early-years-ed
Further information on spotting and understanding the signs of Asperger syndrome or high functioning
autism can be found at www.westsussex.gov.uk/media/5180/ws1632-autism-help-sheets-spotting-the-
signs.pdf
> ensure that all staff are aware of a child or young person’s needs and the strategies and
interventions to be used with them
> adopt a whole school approach
> have open communication with the child or young person and their parents
> be aware that each child and young person with autism will have their own particular needs
and what works for one, may not work for another.
Each education setting will have a person who is responsible for co-ordinating and monitoring the
support given to children with SEN or ASN. This person is sometimes known as the school special
educational needs co-ordinator (SENCO) or support for learning principal or department head. If you
have concerns about a child or young person that you are teaching (either with or without a diagnosis of
autism) then you should discuss this with the SENCO or equivalent staff member. They will be able to
tell you the level of support that is currently being applied to this child. Some children and young people
will be on school support level, while others may have a statement of special educational needs,
education, health and care plan or coordinated support plan.
For information and advice on special educational needs, terminology and processes, please see the
code of practice for your nation.
For more help with identifying the sorts of adjustments you might need to make, see:
Autism in the primary classroom, Joy Beaney and Penny Kershaw, 2014
www.autism.org.uk/NAS495
Autism in the secondary classroom, Joy Beaney and Penny Kershaw, 2014
www.autism.org.uk/NAS658
Children and young people with PDA do not usually respond to the range of educational strategies that
help others on the autism spectrum. For more specific advice on working with a child or young person
with PDA please see www.autism.org.uk/pdaatschool and www.pdasociety.org.uk/education.
Homework
Children and young people with autism may have difficulties completing their homework. This may be
because:
> the child has problems with processing instructions and may not have been able to record
their homework correctly or have it recorded for them - it may be unclear what work needs to
be done when they get home
> they have a very rigid thought process and are unable to adapt to the change in working
environment
> the homework you have set is too difficult or they may forget a concept that you have taught
in school - this can lead to frustration and anger when trying to complete this work at home
> the homework you have set is too easy or repeats what you have already covered in class - a
child or young person with autism may not see the point in completing this homework and will
lack motivation to complete it.
You can help by thinking how you may be able to differentiate the homework for a pupil with autism to
make it more obtainable, giving them the feeling that they are able to achieve.
They don’t appear to pay attention when you are talking to them
> Always use their name at the beginning, when you are saying something, so that they know
you are talking to them.
> Make sure they are paying attention before you ask a question or give an instruction. They
may not be able to make eye contact, but may look at you or in your direction.
> If you are aware that they have an intense interest, then try to use this to engage them.
> Reduce the amount of communication that you use (including non-verbal: eye contact, facial
expressions, gestures, body language etc) when a child or young person is showing signs of
anxiety. It can be difficult for them to process information if they have high levels of anxiety.
> Use visual supports (eg symbols, timetables, Social Stories©) to help them to process the
information more easily.
> Speak clearly and precisely using short sentences. A child with autism can find it difficult to
filter out the less important information. If there is too much information, it can lead to
‘overload’, where no further information can be processed.
> Don’t use too many questions. A child or young person with autism may find ‘where’, ‘when’,
‘who’ and ‘why’ questions difficult.
> Be aware of the environment (noisy/crowded etc) that you are in. It may be affecting how
much they can process.
> Wait for the child or young person to respond or complete the task before repeating yourself
or giving further instruction. It can take up to 30 seconds for a child or young person with
autism to process information.
> Avoid using irony, sarcasm, figurative language, rhetorical questions, idioms etc. If you do
use them, explain what you have said and be clear about what you really mean to say.
> Reward and praise any spontaneous communication or appropriate behaviours that they
show eg “Good sharing”. By rewarding them, you are increasing the likelihood of it happening
again.
> Use role play. Role play can be a great way of showing appropriate frameworks for social
interaction and exploring how things can go wrong/what to avoid.
www.autism.org.uk/visualsupports
www.autism.org.uk/socialstories
www.autism.org.uk/environment
www.do2learn.com
www.asdvisualaids.com
www.pecs-unitedkingdom.com
Behaviour
The behaviour of some children and young people on the autism spectrum can be challenging. This
behaviour is often due to an underlying anxiety, frustration or sensory sensitivity. It is not always clear
what has caused them to behave in a particular way and it can be very hard to control the situation
without knowing the trigger and having appropriate strategies to use.
Over time, it is helpful to monitor this behaviour to see if you and the child or young person you are
working with can start to recognise when anxiety or frustration is starting to build within them. You can
then talk to the child and young person about what would help them to feel more comfortable and put
appropriate support in place.
ABC chart
On an ABC chart, you record the Antecedent (what happened beforehand, who was there, where the
child was, were there any sensory triggers), the Behaviour itself, and the Consequence (what happened
following the behaviour). This can be followed up with Communication – talking to all involved about how
the situation may have been handled in a more positive way.
Stress scale
Many children and young people with autism find it difficult to understand their emotions. The stress
scale can help to turn emotions into more concrete concepts that are presented in a visual way.
You could use a traffic light system, visual thermometer, or a scale of 1-5 to present emotions as colours
or numbers. For example, a green traffic light or a number 1 can mean 'I am calm'; a red traffic light or a
number 5, 'I am angry'.
The incredible five point scale (a stress scale) is available from our online shop at
www.autism.org.uk/NAS823
It is useful for children and young people on the autism spectrum to have an agreed safe and quiet place
for them to go to when they feel anxiety building or are overloaded by sensory stimuli. This may be
within a school inclusion unit, library or calmer area of the school and may not be the same for all pupils
with autism.
These are cards or passes that a child or young person has to indicate to teaching staff that they are
feeling anxious and need to leave the classroom. This strategy will have usually been agreed by the
SENCO, support for learning principal teacher or whoever has responsibility for special educational
needs or additional support needs in your school. It is important that the child or young person knows
where their agreed safe and quiet place is.
Some children and young people with autism find lesson changeover times particularly difficult. They can
become anxious due the unpredictability of this time and may find it difficult to cope with the noisy and
crowded environment. It may be appropriate for you to allow a pupil with autism to leave the class a little
earlier so that they can reach their next classroom before the crowd. It might also be useful to match
them with a mentor or buddy who can accompany them.
Circle of friends
Children and young people with autism can feel socially isolated. This may lead to low self-esteem and
behaviour that can challenge. Circle of friends is an approach used with pupils with autism in
mainstream schools to promote inclusion and interaction with their peers. For more information please
visit www.autism.org.uk/circleoffriends.
For children and young people with autism, social praise may not be enough to motivate and promote
acceptable behaviour. Whilst reward charts and systems are often used with younger pupils in schools, it
is a good idea to base these around the child’s interest, which can be intense in children and young
people with autism.
Children and young people with PDA need interventions and strategies that differ from those suggested
here. Please visit http://www.pdasociety.org.uk/education/educational-and-handling-guidelines for more
information.
Bullying
Children and young people have difficulty reading social situations, find it hard to predict other people’s
behaviour and can struggle to interpret body language and facial expressions. This can make them an
easy target for bullies. For information on bullying and strategies that can be used to help prevent it
please see Bullying and autism spectrum disorders at www.autism.org.uk/NAS877
Online bullying
Children and young people on the autism spectrum can find social networking, forums, emailing, instant
messaging, texting and online gaming an easier way to socialise. All children may be bullied via the
internet or mobile phones, however children and young people with autism may not be able to recognise
cyber bullying as easily due to their lack of social understanding.
> lack the structure and routine that they need to help make sense of the world around them
> are daunting due to the unpredictability of others and use of loud and noisy environments,
such as the dining hall
> focus on the use and development of social skills that children and young people with autism
have difficulty with
> are an opportunity for social isolation and bullying from others.
> Create opportunities for all pupils to develop an understanding of medical conditions, special
educational or additional support needs or disabilities that affect children and young people in
your school.
> Enforce a zero tolerance ‘no bullying’ policy and ensure that all staff (including those that
provide lunchtime supervision) are aware of the procedures within it.
> Offer autism awareness training to staff that will be looking after children and young people
during these unstructured times.
> Organise structured lunchtime clubs, focusing on shared interests.
> Use a buddy system or have a buddy bench in the playground.
Some pupils on the autism spectrum may find social interaction too demanding. If you have tried to help
a child or young person to form friendships through a lunchtime club or buddy system, but can see that
they would rather be alone, then try to accommodate them having this time in a quiet and safe area.
For information on autism awareness training that can be helpful for break and lunchtime supervision
staff, please visit www.autism.org.uk/askautism
Transitions
Transition from one education setting to another can cause anxiety in children and young people on the
autism spectrum, as can transition between year groups. Here are some tips that you may find helpful.
> Be aware of your and your school’s legal responsibilities in the transition process.
> Personalise the transition process to meet the needs of the young person you are working
with.
> Plan in advance, involving the team around the child or young person and, most importantly,
the child/young person and their parents.
> Use visual aids such as videos and photographs of key people and buildings in the education
setting or year group they are moving to.
> Organise visits to the new education setting so that the child or young person can become
familiar with the environment and teaching staff. If they are moving year groups then arrange
for them to spend time with their new teacher or teaching assistant in addition to the general
‘moving up’ experience given to all pupils.
> Organise peer support, eg a friendship group, buddy system or circle of friends.
Preparing for adult life and transition guide - Northern Ireland. Contact a family.
www.cafamily.org.uk/media/597218/ni_transition_currentlastupdatedsep12.pdf
Preparing for adult life and transition guide – Scotland. Contact a family.
www.cafamily.org.uk/media/379959/transitionscot_web_amended_11_feb_2014.pdf
Our Transition Support Service is a free service for parents and carers in England of children in year 9
and above that can help young people with making the transition from school to adult life or further
education. It provides confidential information, advice and support by phone or email and can help with
things such as an explanation of rights and entitlements, assistance with exploring options and
signposting to other services.
> Have someone that the child feels comfortable with meet them at the school gate or from
their parent’s car. This may be a teacher or a teaching assistant.
> Check that the child or young person with autism is getting enough and the right type of
support. The SENCO, support for learning principal teacher or person responsible for children
with SEN/ASN can give advice on this and start procedures for more support if needed.
> Allow them to use coping strategies such as time out cards and stress scales.
> Identify a quiet and safe place that they can use when things get too much.
> Arrange autism awareness training for all staff, including break and lunchtime support
supervisors. For more information on training of this type please visit
www.autism.org.uk/askautism
> Give the child an opportunity to discuss their feelings at the end of each school day. For
example, you could go through the timetable and ask the child to give each lesson a mark out
of 10. For those lessons they score low, ask them why.
> Have open communication with the child or young person’s parents. Ask them what they think
will help their child to feel more comfortable at school.
When supporting the child to come back to school after a period of school refusal, start off with the child
attending for an hour and then build it up gradually. This is better than putting pressure on the child to
attend for a whole day and them not coping.
Lesson guide
A two-lesson introduction to autism and Asperger syndrome. They include two case study sheets and
some games for introducing autism to a class.
www.autism.org.uk/lessonguide
Autism in the primary classroom, Joy Beaney and Penny Kershaw, 2014
Strategies and resources to support successful inclusion in primary schools.
www.autism.org.uk/NAS495
Autism in the secondary classroom, Joy Beaney and Penny Kershaw, 2014
Strategies and resources to support successful inclusion in secondary schools.
www.autism.org.uk/NAS658
MyWorld
Sign for free MyWorld information, advice and resources for teachers.
www.autism.org.uk/MyWorld
Ask autism
The Ask autism online training modules have been developed by people on the autism spectrum. Over
70 autistic people have developed and tested the material, ensuring everyone who uses the training
benefits from their unique insight.
www.autism.org.uk/askautism
Network Autism
A free online community for anyone who works regularly with children or adults with autism. Take part in
discussions and groups, read the latest research and collaborate with others in the UK and
internationally.
www.networkautism.org.uk.
SEND Gateway
An online portal offering education professionals free, easy access to high quality information, resources
and training for meeting the needs of children with special educational needs and disabilities (SEND).
www.sendgateway.org.uk
The Autism Education Trust (AET) helps raise awareness of the importance of appropriate educational
provision for children and young people on the autism spectrum through a range of dedicated events,
information sharing conferences, web-based resources and ongoing research and project work. The
AET is a partnership of organisations (including the NAS) with an interest in autism and works to
improve education for children with autism.
Transition toolkit
www.autismeducationtrust.org.uk/resources
Autism Toolbox
The Autism Toolbox is a resource to support the inclusion of children and young people with autism in
mainstream education services in Scotland.
www.autismtoolbox.co.uk
Teachers guide
www.pdasociety.org.uk/education/teachers-guide
Simple Strategies for Supporting Children with Pathological Demand Avoidance at School by Emma
Gore Langton, an educational psychologist, and Zoe Syson, of Positive PDA. Available from the PDA
society.
www.pdasociety.org.uk/education/new-educational-strategies-booklet-from-positive-pda
Can I tell you about autism? Jude Welton, illustrated by Jane Telford, 2014
A guide for friends, family and professionals (suitable for readers aged 7-15)
http://astore.amazon.co.uk/thenationalau-21/detail/1849054533
Can I tell you about Asperger Syndrome? Jude Welton, illustrated by Jane Telford, 2003
A guide for friends and family (suitable for readers age 7-15)
Can I tell you about PDA? Ruth Fidler and Phil Christie, illustrated by Jonathon Powell
A guide for friends and family (suitable for readers age 7-15)
www.jkp.com/uk/can-i-tell-you-about-pathological-demand-avoidance-syndrome.html
The Red Beast: Controlling Anger in Children with Asperger's Syndrome, K.I. Al-Ghani, 2008
An accessible, fun book that talks about anger.
http://astore.amazon.co.uk/thenationalau-21/detail/1843109433
The Panicosaurus: Managing Anxiety in Children Including Those with Asperger, K.I. Al-Ghani, 2012
A fun, easy-to-read and fully illustrated storybook will inspire children who experience anxiety.
http://astore.amazon.co.uk/thenationalau-21/detail/1849053561
Autism Helpline
Our Autism Helpline offers impartial, confidential information, advice and support for people on the
autism spectrum, their parents and family members.
NAS training
Our Training department offers courses on a range of educational issues, as well as accrediting external
courses, many of which have an educational focus.
NAS schools
The NAS runs eight not-for-profit schools for children and young people up to the age of 25, with widely
varying needs. We offer flexible placements to meet individual needs and circumstances. Our schools
also offer outreach and short breaks services.
NAS website
Our website contains a wealth of information about autism (including Asperger syndrome and
Pathological Demand Avoidance) and details the broad range of help and services offered by the NAS.
www.autism.org.uk
Network Autism
Free online community for anyone who works regularly with children or adults with autism. Take part in
discussions and groups, read the latest research and collaborate with others in the UK and
internationally.
www.networkautism.org.uk
Publications
The NAS sells a wide range of resources about autism spectrum disorders aimed at parents, people with
the disability and professionals.
Membership
The National Autistic Society membership keeps you up-to-date with information and developments in
the autism community. Our members play a vital role in the work of the charity and members receive
benefits that include our magazine, Your Autism Magazine, delivered four times a year, regular e-
newsletters, a 10% discount on NAS publications and up to £75 off NAS conferences.