Rajiv Gandhi University of Health Sciences, Bangalore, Karnataka Proforma For Registration For Subject For Dissertation
Rajiv Gandhi University of Health Sciences, Bangalore, Karnataka Proforma For Registration For Subject For Dissertation
Rajiv Gandhi University of Health Sciences, Bangalore, Karnataka Proforma For Registration For Subject For Dissertation
BANGALORE, KARNATAKA
BANGALORE -32
BANGALORE -32
1
6. BRIEF RESUME OF THE INTENDED WORK
6.1 INTRODUCTION
Autism is not a puzzle, nor a disease. Autism is a challenge but certainly not a
divesting one. It is about finding a way to survive in an overwhelming confusing world. It
is about developing differently in a different pace and with different leaps.1
There is every reason to assume that autism has always existed. However, the
word was first used by the Swiss psychiatrist, Eugen Bleuler, in 1911, and this concept
evolved enormously since then. Leo Kanner is generally believed to be the first person to
employ the term in the way we understand it today. 3
Autism is one of the three recognized disorders in the autism spectrum disorders
(ASD), the other two being Asperger syndrome and pervasive developmental disorder. In
rare cases, autism is strongly associated with agents that cause birth defects, other
controversial proposed environment causes such as heavy metals, pesticides or childhood
2
vaccines. It has a higher incidence in first born males from well educated bright families
in which the mother has a history of perinatal complications.2
Appropriate early intervention is important to treat child with autism. The parents,
physicians, and specialists should discuss what is best for the child. Parents should be
educated regarding behavioral techniques so that they can participate in all aspects of the
child's care and treatment. Counseling and support may be helpful for the parents. Special
education classes are available for autistic children. Medication can be recommended to
treat specific symptoms such as seizures, hyperactivity, extreme mood changes, or self-
injurious behaviors.4
School plays a significant role in children's mental health care. Teacher's assessment is
predictive of the child's subsequent mental health. Although it is difficult for both
teachers and parents to recognize especially depression in a child, observations made by
adults will complement the information received from the child. Teachers' knowledge of
mental health should be increased and clear-cut instructions should be provided for them
by health care professionals. Teacher’s assessments of child’s mental health should be
utilized to a greater extent than presently.6
3
6.2 NEED FOR THE STUDY
India is a home to almost 19% of the world’s children. More than one third of the
country’s population, around 480 million, is below the age of 25 years (54% of the
population). According to an assumption, 40% of these children are in need of care and
protection, which indicates the extent of the problem.7
The prevalence of autism in India was about 0.5 per 1000 during the 1990’s as
opposed to today’s 1-2 per 1000. Estimated prevalence to be approximately 6.6 per 1,000
(or 1/150) children in the United States, in 2008, and as many as 12 in 1,000 (or 1/80)
children with an ASD in Europe and Scandinavia. Among Asian country like Hong Kong
reported 1.68 cases of autism per 1000 for children less than 15 years. In Denmark
incidence of autism is increasing continuously it was about 0.5 new cases per 10,000
children in 1990’s and about 4.5 new per 10,000 children in 2000. In Germany a study
found that inpatient admission rates for children with ASD increased to 30% from 2000
to 2005.8
The etiology of autism is still unclear but recent studies suggest that genetics play
a major role in conferring susceptibility. Recent neuro imaging research studies indicate
that autism may be caused by atypical functioning in the central nervous system,
particularly in the limbic system: Amygdale and Hippocampus. In autistic children,
losses of language and/or social skills occur during the second year of life, usually
between 15 and 21 months of age. Co-morbidity with mental retardation, epilepsy,
disruptive behaviors and learning difficulty is very common. Although there is currently
no known cure for autism there is evidence to suggest that early intervention therapy can
improve functioning of autistic children. Judicious use of psychotropic drugs is necessary
to manage associated aggression, hyperactivity, self-mutilation, temper tantrums; but
drugs are not a substitute for behavioral and educational interventions. The family
physician can play an important role in detecting autism early, coordinating its
assessment and treatment, counseling the parents and classroom teacher, and monitoring
the child's progress on a long term basis.9
4
Autism is the third most common developmental disability whose incidence is
greater than that of Down’s Syndrome 2 and Cerebral Palsy. According to Cohen and
Volkmar (1997), no other childhood disability has such clearly defined and consistent
diagnostic criteria; indeed, the manifestations of autistic symptoms are remarkably
consistent across nations and cultures. Daley (2002) speculates that the reason why
autism is such a misunderstood and misdiagnosed condition is because it frequently falls
between the cracks of mental retardation and mental illness .Indeed, many of its
A study was conducted to identify the cases of autism among children with
language, communication and behavior disorder, to ascertain the associated co-
morbidities and create a sensitive awareness among various health care professionals in
All India Institute of Medical Science, New Delhi, India. 62 patients fulfilled the DSM
IV criteria for autism out of 72 referred. The result showed that male: female ratio was
8:1 and the important co-morbidities included mental challenged (95%), hyperactivity
(53%) and seizures (10%) cases. The researchers suggested that, autism does occur in
Indian children but diagnosis often missed hence, the health care professionals need to be
acquainted with knowledge regarding the developmental disabilities of autistic children
by a more structured teaching programme.11
5
A comparative study was conducted to determine the views of teachers and parent
on autism .Surveying of beliefs regarding various aspects of the disorder was done among
47 teachers and parents of autistic children. Parent and teacher responses were compared
to those obtained from a group of 22 "specialists" in autism, drawn from across the
country. Both parents and teachers were found to harbor misconceptions regarding
cognitive, developmental, and emotional features of autism.13
Children with autism can still perform daily functions and can be integrated in
normal classrooms while at school. However, this is predicated upon the teacher’s
willingness children and their patience to learn methods for teaching autistic children.
Autistic children learn a lot, even though they are limited due to their disability, autistic
children can really surprise us when it comes to how much knowledge they can retain.14
From the above mentioned information, it was found that autism is prevalent in
India and teachers are lacking knowledge regarding the disabilities of children with
autism. So the investigator found it relevant to provide a video assisted teaching
programme on autism which includes definition, incidence, etiology, risk factors, signs
6
and symptoms and role of parents and teachers in management of child with autism in
order to create awareness among rural primary school teachers and improve their
knowledge in assisting the autistic children.
Review of literature helps to know what is already known that is these helps in
developing a broad conceptual content into which the research problem will fit in. Main
goal is to develop a sound knowledge in development of nursing theory, education,
practice and research
The results of studies conducted in various aspects of autism are presented below:
6.2.1-Review of literature related to autism among children.
6.2.2-Review of literature related to knowledge of primary school teachers
regarding autism.
A study was conducted to assess the prevalence of autism spectrum disorder. The
Autism and Developmental Disabilities Monitoring (ADDM) Network collected data
from 11 ADDM Network sites in 2006 and compared with the child developmental
referral centre (CDC) data from 10 sites in 2002. It was found that 2,757 (0.9%) of
307,790 children aged 8 years residing in the 11 ADDM sites were identified as having
an ASD in 2006, indicating an overall average prevalence of 9.0 per 1,000 population.
The average prevalence of ASDs identified among children aged 8 years increased 57%
from 2002 to 2006. The researcher concluded that an increased prevalence of identified
ASDs among U.S. children aged 8 years and indicated the need to regard ASDs as an
urgent public health concern.16
7
A study was conducted to assess the incidence of childhood autism. Cumulative
incidence up to age 5 years was calculated for childhood autism among a birth cohort
from four successive years (1988 to 1991). The cumulative incidence recorded was 27.2
per 10,000 populations and by sex were 38.4 per 10,000 in males, and 15.5 per 10,000 in
females. The proportions of children with high-functioning autism who had Binet IQs of
70 and over and those with Binet IQs of 85 and over were 25.3% and 13.7%
respectively.17
A study was conducted to assess the increased prevalence rate of autism with
changes in diagnostic criteria. The patient acquiring an autism diagnosis was elevated in
periods between 1992 and 2005 in which the practices for diagnosing autism changed.
Using the probability of diagnostic change between 1992 and 2005 to generalize to the
population with autism, it was estimated that 26.4% of increase caseload. Through this
study it was concluded that changes in diagnostic practices is found to be associated with
increased case load of autism.18
A study was done to examine the treatment rates and patterns in children and
adolescents with ASDs. Data collected among 353 parents of children and adolescents
with ASD from public schools. Results showed that 46.7% of subjects had taken at least
one psychotropic medication in the past year, 17.3% of subjects had taken some type of
specially formulated vitamin or supplement, 15.5% on a modified diet, 11.9% had some
combination of psychotropic medication, and 4.8% had taken an anticonvulsant. The
result indicated that greater age, lower adaptive skills and social competence, and higher
levels of problem behavior were associated with greater medication use.19
8
A pilot study was done to evaluate the effectiveness of a group-based intervention
aiming at improving social and communication skills in individuals with ASD. A sample
of 17 children and adolescents received treatment according to the manualised Frankfurt
Social Skills Training (KONTAKT) for 11 months. Parent, teacher, expert and blind
expert ratings were assessed to judge outcome regarding peer interaction, autistic
behaviors, adaptive functioning and family burden before and after the treatment. The
participants exhibited improvements in social skills from 0.02 to 0.69 after treatment.
Findings indicated that KONTAKT might be useful for enhancing social skills and
reducing autism-related psychopathology over time in different contexts.21
9
Results highlight clear implications for pre-service and in-service educator training, and
the need for continued research to document evidence-based strategy use in public
schools for students with ASD.23
A study was done to assess the Knowledge, attitudes and practices on childhood
developmental and behavioral disorder (CDABD) among 503 pre-school teachers, aged
30-44 years. Result revealed that 56% of the teacher achieved a pass rate in knowledge.
The pass rate in aspects of ND (normal development), ASD and attention
deficit/hyperactive disorder, was 66%, 68% and 32%, respectively. The researchers
concluded that there is a deficit in knowledge of pre-school teachers regarding CDABD
and suggested for special need (SN) education, more training and resource support to
improve their knowledge and skills to aid integration.25
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such children. The researcher concluded that the pre-service learners need to be educated
regarding autism spectrum disorder. 26
6.5 OBJECTIVES:
Evaluation:
Effectiveness:
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Video assisted teaching programme:
Knowledge:
In this study, it refers to level of understanding of information about autism which
will be measured by the structured knowledge questionnaire.
Autism:
6.7 HYPOTHESIS:
H1: The mean post test knowledge score of primary school teachers will be higher than
the mean pretest knowledge score regarding autism.
H2: There will be significant association between selected socio demographic variables
with the mean pre and post test knowledge level of primary school teachers regarding
autism.
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Dependent variable:
In this study, dependent variable is knowledge of the primary school teachers
regarding autism.
6.8 ASSUMPTIONS:
6.9 DELIMITATIONS:
PROJECTED OUTCOME:
The video assisted teaching programme will be provide beneficial information in
improving the knowledge of primary school teachers regarding autism and the findings
13
will elicit the relationship between the information expected and the information received
by primary school teachers regarding autism.
KEY WORDS:
O1- Pre-test to assess the knowledge of primary school teachers regarding autism..
O2- post test to assess the knowledge of primary school teachers after administration of
video assisted teaching programme.
7.1.3 POPULATION
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Accessible population –primary school teachers working in selected schools.
7.1.4 SAMPLE:
The sample consists of the primary school teachers working at selected rural
schools, Bangalore.
Convenience sampling technique will be adopted to select the sample for the
study.
Inclusion criteria:
The study includes primary school teachers of selected government and private
schools in rural areas of Bangalore.
The teachers who are willing to participate in the study.
The teacher who can read and write Kannada.
Exclusion criteria:
The teachers who are not available at the time of data collection.
The data collection will be done with the help of structured knowledge questionnaire.
It consist of
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Section A- It consist of demographic data like age, gender, religion, qualification,
marital status, type of family, teaching experience, teaching classes and source of
information.
Section B- the investigator will collect the data by giving structured knowledge
questionnaire.
Content validity of the tool will be ascertained in consultation with guide and
experts like pediatrician, pediatrics nurse and psychologist. Reliability of the tool will be
ascertained by split half method. Prior to the study, written permission will be obtained
from the concerned authority.
After obtaining permission from the concerned authority an informed consent will
be obtain from the subject. The process of the study will be explained to the subjects.
After explaining the process of study, socio demographic data will be collected with the
help of a structured questionnaire. The knowledge of primary school teachers regarding
autism will be assessed by using structured knowledge questionnaire. Video assisted
teaching programme will be provided to primary school regarding autism on the same
day of pre test.
After 7 days post test will be conducted to evaluate the effectiveness of video
assisted teaching programme regarding autism among primary school teachers.
Data analysis will be done by using descriptive and inferential statistics. The
descriptive statistics like mean and standard deviation, frequency distribution and
percentage will be used to assess the demographic variables. The inferential statistics
like paired ’t’ test and chi square test (χ 2) will be used to compare the pre and post test
knowledge score and to find out the association between the mean pretest and posttest
knowledge scores with selected sociodemographic variables respectively.
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7.3 DOSE THE STUDY REQUIRES ANY INVESTIGATION OR
INTERVENTIONS TO BE CONDUCTED ON PATIENTS OR
OTHER HUMAN OR ANIMALS
Yes,
A video assisted teaching programme will be given to primary school teachers in
selected rural schools at Bangalore.
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SIGNATURE OF CANDIDATE
11.4 SIGNATURE
12.2 SIGNATURE
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