1 s2.0 S1413355521000538 Main
1 s2.0 S1413355521000538 Main
1 s2.0 S1413355521000538 Main
Brazilian Journal of
Physical Therapy
https://www.journals.elsevier.com/brazilian-journal-of-physical-therapy
MASTERCLASS
a
Department of Sports Science and Clinical Biomechanics, University of Southern Denmark, Odense M, Denmark
b
Chiropractic Knowledge Hub, Odense M, Denmark
c
Health Sciences Research Center, UCL University College, Odense M, Denmark
Received 14 January 2021; received in revised form 26 April 2021; accepted 6 May 2021
Available online 24 May 2021
KEYWORDS Abstract
Back pain; Background: A paradigm shift away from clinician-led management of people with chronic disor-
Behavior change; ders to people playing a key role in their own care has been advocated. At the same time, good
Delivery of health health is recognised as the ability to adapt to changing life circumstances and to self-manage.
care; Under this paradigm, successful management of persistent back pain is not mainly about clini-
Musculoskeletal cians diagnosing and curing patients, but rather about a partnership where clinicians help indi-
disease; viduals live good lives despite back pain.
Patient-centred Care; Objective: In this paper, we discuss why there is a need for clinicians to engage in supporting
Self-management self-management for people with persistent back pain and which actions clinicians can take to
integrate self-management support in their care for people with back pain.
Discussion: People with low back pain (LBP) self-manage their pain most of the time. Therefore,
clinicians and health systems should empower them to do it well and provide knowledge and
skills to make good decisions related to LBP and general health. Self-management does not
mean that people are alone and without health care, rather it empowers people to know when
to consult for diagnostic assessment, symptom relief, or advice. A shift in health care paradigm
and clinicians’ roles is not only challenging for individual clinicians, it requires organisational
support in clinical settings and health systems. Currently, there is no clear evidence showing
how exactly LBP self-management is most effectively supported in clinical practice, but core
elements have been identified that involve working with cognitions related to pain, behaviour
change, and patient autonomy.
© 2021 The Author(s). Published by Elsevier España, S.L.U. on behalf of Associação Brasileira de
Pesquisa e Pós-Graduação em Fisioterapia. This is an open access article under the CC BY license
(http://creativecommons.org/licenses/by/4.0/).
https://doi.org/10.1016/j.bjpt.2021.05.002
1413-3555/© 2021 The Author(s). Published by Elsevier España, S.L.U. on behalf of Associação Brasileira de Pesquisa e Pós-Graduação em
Fisioterapia. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).
Brazilian Journal of Physical Therapy 25 (2021) 396 406
management where people with chronic conditions play a often used interchangeably without clear definitions and with-
key role in their own care is advocated.1,2 At the same time, out presentation of the underlying theory.6,7 Therefore, we
good health is increasingly understood as the ability to adapt briefly introduce how we use these terms (Fig. 1).
to changing life circumstances and to self-manage in the Self-care is all the actions that people do to stay healthy
face of social, physical, and emotional challenges.3,4 In the (e.g. brushing teeth, sleeping well, eating healthy food),
case of persistent low back pain (LBP), such an approach and includes actions that aim to prevent disease, maintain
implies that successful interventions are not mainly about good health, and coping with illness and disability.8
clinicians diagnosing and curing patients, but about a part- Self-management has been defined as “the individual’s abil-
nership between individuals and clinicians that helps people ity to manage the symptoms, treatment, physical and psy-
engaging in valued activities.5 Thus, living with persistent or chological consequences, and lifestyle changes inherent in
recurrent LBP may involve care-seeking, but people manage living with a chronic condition,” and is the part of self-care
their health conditions outside the context of health care that relates to dealing with health conditions.9 11 Definitions
most of the time, and interventions for persistent LBP should of self-management emphasize the importance of interac-
enable them to do that well. tive, collaborative care between patient and healthcare pro-
In this paper, we discuss self-management in relation to fessionals allowing for patient empowerment rather than
LBP with a focus on the role of the clinician. one-way passive care from expert to patient.10 12Symptom
management is the actions initiated by the patient, a clini-
cian, or both to decrease the distress and consequences
Self-management terms caused by symptoms. It entails a collaborative relationship
between a patient and the healthcare provider to make deci-
Among clinicians and within the literature, terms like self-care, sions about for example medication or manual therapy
self-management, self-efficacy, and symptom management are interventions.9
Figure 1 How self-care, self-management, symptom-management, and health care are related. Self-management of disease,
including symptom-management, is part of self-care and may be performed in collaboration with health care providers. Illustration
based on Richard and Shea.10
397
A. Kongsted, I. Ris, P. Kjaer et al.
Self-care and self-management are concepts with ties to How can clinicians integrate self-management
Orem’s theory and Bandura's Social Cognitive Theory on self- support in LBP management?
efficacy.13 15 Self-efficacy is people's beliefs in their ability
to influence events that affect their lives. This core belief is Clinical guidelines generally recommend advice and informa-
the foundation of human motivation, performance accom- tion, manual therapy, and supervised exercises as treatments
plishments, and emotional wellbeing. Unless people believe for persistent LBP.37-39 These interventions are effective parts
they can produce desired outcomes by their actions, they of symptom management and may prevent relapse, but do
have little incentive to undertake activities in the face of not necessarily support patient autonomy and self-manage-
difficulties. Whatever factors may serve as guides and moti- ment. Below, we outline clinical actions that help integrate
vators, they are rooted in the core belief that one can make self-management support in LBP management including
a difference by one's actions. behaviour change techniques (i.e. strategies to help patients
The focus of this paper is on self-management of persistent adopt healthy behaviours) that are frequently incorporated in
LBP where this involves the interaction and communication self-management interventions, and actions to focus on
between the healthcare provider and the patient in a clinical patient autonomy and self-efficacy (Table 1).12,40 42 These
encounter, and we describe the engagement of the clinician as actions are aligned with intervention planning, intervention
‘self-management support’.9 Self-management support is pro- delivery, and clinical evaluation (Fig. 2).
vided in self-management interventions defined as interven-
tions that “aim to equip patients with skills to actively
participate and take responsibility in the management of their Self-management: planning
chronic condition to function optimally.”12
Let patients’ value-based goals direct care
398
Brazilian Journal of Physical Therapy 25 (2021) 396 406
Teach skills to solve Use exercises as a tool to train problem- To avoid dependency on the cli-
everyday problems. solving skills by patients exploring move- nician, as being the one know-
ment instead of being told what to do. ing what correct movement/
Encourage patients to try out a variety of posture is.
movements and activities. To enable patients to cope with
Help patients come up with solutions to everyday situations on their
everyday problems. own
To increase self-efficacy by
using operant conditioning, pos-
itive reinforcement and positive
experiences.
Set patients up for Use exposure to new/feared activities to To help patients reframe their
successful provide the experience of success. perspectives on low back pain.
experiences Discuss alternative perspectives on To challenge overly negative
feared activities or movements. beliefs.
To change thoughts or emotions
related to an activity.
Provide tools for man- Teach pain strategies as distraction, To support planning of active
agement of pain and breathing exercises, or mindfulness. behaviour with relapses and
emotions flare ups.
To enhance feeling of control.
Evaluation Evaluate and discuss Ask if the patient-valued goals have been To keep focusing on value-based
adjustments of goals achieved: goals and motivate for main-
Partly: “What went well?” tained engagement.
Not at all: “What are the barriers?”
Evaluate patients’ Ask questions about patients’ beliefs To raise awareness of more
understanding of back related to pain and what forms those appropriate back pain beliefs.
pain beliefs: “What do you think happens
when your back hurts?”
Assist patients in Discuss active tools to maintain self-man- To help patients sustain good
action planning aging of back problems. habits and prepare for relapses.
Prompt detailed planning of actions to
take when perusing goals is challenged
“How will you react when you back relap-
ses/has flare ups?”
“When will you need help from health
care and why?”
399
A. Kongsted, I. Ris, P. Kjaer et al.
Figure 2 Clinical actions in self-management support. Self-management support includes actions related to intervention planning,
delivery, and evaluation, and places demands on clinicians and organisations.
change their behaviour needs consideration to define education resources directed at clinicians and people with
achievable and realistic goals and action plans. For this pur- pain (see references for suggested readings, videos, podcasts
pose, five stages of behavioural change have been proposed: and web sites52 63), however, there is also a lot of misinfor-
Precontemplation (unawareness or denial with no intention mation about LBP.64 Therefore, clinicians should direct
of changing behaviours), Contemplation (ambivalent about patients to suitable sources of information where inappropri-
possibilities to change), Preparation (action planning, start ate messages and pain education using terminology relating
changing behaviour), Action (changing behaviours, using to spinal instability, postural abnormalities, wear and tear,
self-management strategies but not adopted as a new discs “popping” in and out, or restrictions on what patients
habit), and Maintenance (consolidating new behaviour and are ‘allowed’ to do or not are avoided.
self-management strategies in everyday life).47,48 Patients
in the first 2 or 3 stages may need more information and edu- Teach problem-solving skills
cation, whereas those in the last stages may need reassur-
ance and positive feedback. Supervised exercises can be used as a tool to practice prob-
Self-management support can be integrated into inter- lem-solving skills.65,66 When patients experience pain
vention planning by letting patient value-based goals and a during an exercise, difficulties in performing desired move-
focus on behaviour change direct management while shift- ments, or fear about their consequences, the clinician has
ing focus away from structure, pain, and impairments. an opportunity to explore their thoughts about causes and
consequences by encouraging patients to experiment with
moving in different ways. Exercises then become behaviou-
Self-management: delivery ral experiments that help patients reframe their beliefs and
emotions related to activity. Traditionally, however, clini-
Help patients make sense of their symptoms cians often correct patients when they perform exercises,
based on the assumption that benefits of exercises depend
Although empirical evidence is sparse, changing LBP on performing movements in very specific ways, when in
related behaviours seems intimately related to changing fact there is little evidence to support that the way exer-
beliefs.49 51 Patients perceive LBP as unpredictable and cises are performed relates to outcomes. Importantly, cor-
uncontrollable and difficult to make sense of, which hampers recting patients carry a risk of decreasing self-management
their ability to deal with it in an expedient way.31 Educating skills by communicating that exercising is difficult and
patients about pain mechanisms and management may there- potentially unsafe to do on your own. Thus patients may lose
fore prevent them from restricting their valued activities autonomy and self-efficacy and become fearful of doing
because of misbeliefs and fears. There are many useful pain something “wrong” or potentially harm themselves.
400
Brazilian Journal of Physical Therapy 25 (2021) 396 406
401
A. Kongsted, I. Ris, P. Kjaer et al.
and facilities that protect patient confidentiality when dis- patient-clinician relationship, goal setting, and activity
cussing personal matters. Finally, health systems need to planning. They further found that generally, self-manage-
support clinicians by providing reimbursement for time spent ment interventions based on a theory, for example, the
on patient education and on promoting behaviour change.74 fear-avoidance theory, or delivered according to a theory,
Notably, shifting the paradigm of care requires that clini- for example, cognitive behavioural therapy or social cogni-
cians are open to thinking differently about LBP care tive theory, were more effective than interventions that
throughout the clinical encounter. Table 2 lists some “dos were not based on or delivered according to a theoretical
and don’ts” illustrating that translating treatment into self- framework; that interventions of shorter duration (<6
management support may require profound shifts in clinical weeks40 or 8 weeks78) tended to be more effective than
cognition and habits. longer-lasting interventions; and that interventions where
Self-management support requires organisational change the whole or parts of the intervention was delivered over
and support from payers, educators, and clinic owners. the internet or other eHealth platform were as effective as
interventions delivered in person.40 Interventions delivered
over mobile devices seemed superior to interventions deliv-
ered over the internet via web-pages, but these types of
What is the evidence for self-management delivery had not been directly compared. There were also
interventions in people with LBP? no trials directly comparing eHealth delivery to person deliv-
ery of identical self-management interventions.78 There is a
Systematic reviews summarizing the evidence for the effec- lack of evidence to tell if self-management is best supported
tiveness of self-management interventions in people with per- by individual or group-based interventions. A systematic
sistent LBP report that there is considerable heterogeneity review found group-based interventions for LBP to be more
between studies and that the methodological quality is gener- effective than other types of care for pain relief,79 whereas
ally low to moderate. Nonetheless, across randomized clinical individual cognitive functional therapy for people with
trials, interventions to promote self-management are gener- chronic LBP was more effective in reducing disability than
ally found to have small to moderate effects on key clinical group-based exercise and education in a recent trial.80
outcomes such as pain intensity, back-related disability, and Despite a growing body of literature, most interventions
self-efficacy at least up to one year post-intervention.40,75 77 aiming to promote self-management in people with LBP are
Du et al.40 identified core elements of self-management not well described in reports. These interventions are often
interventions across trials that included problem-solving multifaceted and complex, so standardised reporting, for
skills, decision making, resource utilization, a focus on the example according to the Criteria for Reporting the
Principles
People self-manage most of the time
Enable them to do it well
Support patient autonomy
Act as a partner, be person-centred, avoid strong clinician control
Help patients develop self-efficacy
Provide and reinforce positive experiences
It is not only about back pain
Helping people to manage their pain in daily life supports their ability to maintain
good physical and mental health
Working with self-management requires the right setting
Trained clinicians, time for dialogue, and room for confidentiality are pre-requisites for self-management support
Clinical actions
Let patient value-based goals guide management
Focus on patient valued goals and shared decision making rather than on pain and dysfunction
Help patients make sense of their symptoms
Educate people about pain and pain behaviour and help them reframe negative perspectives
Teach skills to solve everyday problems
Give patients insights to help them overcome obstacles in everyday life
Provide tools for pain management
Focus on proactive pain behaviour techniques
Evaluate patient valued goals, action plans, and patients’ understanding of back pain
Move focus away from defining success as curing pain forever
402
Brazilian Journal of Physical Therapy 25 (2021) 396 406
Development and Evaluation of Complex Interventions in requires organisational support in clinical settings and
healthcare (CReDECI), should be adopted.81 In addition, health systems. Currently, there is no clear evidence show-
authors generally report on clinical outcomes such as pain ing how exactly LBP self-management is most effectively
intensity and back-related disability, but less often on supported in clinical practice, but core elements have been
behaviour related outcomes such as self-management skills, identified that involve working with cognitions related to
learning, and knowledge, which are more related to the pain, behaviour change, and patient autonomy.
goals of these interventions.40,75,82 One reason for this is the
lack of valid measurements tool to capture the complexity
of being able to self-manage.
Current evidence on self-management interventions for Declaration of Competing Interest
LBP are hampered by a lack of theoretical frameworks and
The authors have no conflict of interest to declare. AK’s
interventions are often poorly described. Still, the existing
position at University of Southern Denmark is partly funded
evidence suggests positive effects on a range of key out-
by the Foundation for Chiropractic Research and Post-gradu-
comes and that eHealth may have an important role to play.
ate Education. IRH’s position is financially supported by
income from clinician training in GLA:D Back.
403
A. Kongsted, I. Ris, P. Kjaer et al.
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