ADHD HANDBOOK

A free essential guide to services & support and to be

used in conjunction with our website
www.adhdrichmond.org

Donations welcome via our website

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 Content Pages

Pre-ADHD diagnosis 3-6

ADHD pathways - post-diagnosis 7-8
Interventions, strategies & therapies 9 – 13
For parents 14 - 15
Medication 16
Health Care 17
Education 18 - 19
Benefits & allowances 20 - 22
Activities 23 - 24
Local services and contacts A-Z 25 – 29
Further reading 30
Useful national links 31
Acronyms 32 - 33
About ADHD Richmond and Kingston 34

Updated: June 2019

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PRE-ADHD DIAGNOSIS

Many children go through phases where they are restless or inattentive. This is often completely
normal and does not necessarily mean they have ADHD.

Symptoms of ADHD tend to be first noticed at an early age, and may become more noticeable when
a child’s circumstances change, such as when they start school. Most cases are diagnosed in children
between the ages of 6 and 12.

Childhood ADHD is more commonly recognised & diagnosed in boys than girls. Girls with ADHD
often have a form of the condition where the main symptoms relate to problems with attention
rather than hyperactivity, which can cause less noticeable symptoms.

Children with ADHD can become easily frustrated because of executive function difficulties.

ADHD is a complex neurodevelopmental condition, a brain disorder due to lack of dopamine, which
starts during child development but frequently persists through adolescence and into adulthood.

ADHD frequently occurs alongside other conditions (comorbidities) such as anxiety, autism,
depression, dyslexia, dyspraxia, epilepsy, sensory processing disorder, Tourette’s syndrome and
especially in cases of untreated ADHD or late diagnosis - oppositional defiant disorder (ODD)

People with ADHD may also have additional problems such as sleep.

ADHD can occur in people of any intellectual ability including both those who are gifted (dual
exceptionality) and those with learning difficulties. Remember, children with ADHD are different
from one another in both their needs and the support or services required to meet them

Criteria

For someone to be diagnosed, he or she must have at least six (or more) of the following symptoms
before the age of 12. The symptoms must also exist for six months or more and to a degree that is
different from those considered normal for similarly aged children in an academic environment or
extra-curricular activity.

• Often fails to pay attention to details or makes careless mistakes in schoolwork, at work, or
during other activities
• Tends to have difficulty sustaining attention during tasks or recreational activities, such as in
class, in conversations, or during prolonged reading
• Does not seem to listen when spoken to directly, and seems to have other things on his or
her mind even when there is not an obvious distraction
• Fails to follow instructions and finish schoolwork, chores, or work duties (may start work but
be distracted quickly and easily evade it)
• Has difficulty organising tasks and activities and putting belongings in order. He or she
neglects work, has poor time-management skills, and does not meet deadlines
• Avoids and dislikes tasks that require sustained mental effort, such as schoolwork or chores
• Often loses things necessary for tasks or activities, such as school supplies, pencils, books,
tools, wallet, keys, working papers, glasses, or mobile phones
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 • Easily distracted by external stimuli
• Forgets daily activities, such as homework or doing errands, or in older teens and adults,
returning calls, paying bills, or keeping appointments

The symptoms are not solely a manifestation of oppositional behaviour, defiance, hostility, or failure
to understand tasks or instructions. To be diagnosed with ADHD, a person must also show six or
more of the following symptoms of hyperactivity and impulsivity:

• Fidgets with hands or feet or squirms in seat

• Frequently gets up in situations where he or she is expected to remain seated
• Runs around or climbs in situations where It is not appropriate (in teens or adults, this may
be limited to fidgeting)
• Unable to quietly play or engage in leisure activities
• Typically too “busy”, acting as if he or she has to do things
• Talks excessively
• Often responds unexpectedly or before a question is concluded or finishes someone else’s
thought
• Has difficulty waiting his or her turn
• Interrupts or intrudes on others; distracts others or does not realise he or she is bothering
anyone
• Keep in mind that the symptoms must also meet these criteria:
• Be present for at least six months
• Have started before the age of 12
• Be present in two or more places, such as at school and in the home
• Negatively affect day to day life
• Not occur solely due to a psychotic condition
• Not be better explained by another mental condition.

If your child is presenting, as described, you should consider raising your concerns with your child’s
teacher, their school’s special educational needs co-ordinator (SENCo) or your GP.

The Single Point of Access (SPA) of Achieving for Children is the first port of call for diagnosis of
ADHD Tel: 020 8547 5008 for advice from 8am to 6pm, Monday to Friday, or 020 8770 5000 out of
hours.

What happens in an assessment?

The young person, parents/carers & schools are asked to complete questionnaires to assist
professionals decide if a medical diagnosis is necessary or if there are other ways to help. Then a
conversation will be arranged to find out more about the young person today and in earlier
childhood. There’s no need to prepare; simply explain what life is like at home and at school.

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 The ADHD pre-diagnosis pathway

Teachers can be the first to spot ADHD but you can also ask
a GP, or any health professional, and social workers for
advice. They can refer your child to a specialist team via
the Single Point of Access (SPA) of Achieving for Children,
the Council backed community interest group.

The Single Point of Access (SPA) can be contacted directly

by you in seeking an ADHD assessment for your child. Tel:
020 8547 5008 Out of hours Tel: 020 8770 5000. If an
assessment is agreed you will be passed on.

Typically diagnosis is done by a community paediatrician

for 0-5 yr olds and the neurodevelopmental team for 5-18
yr olds. When a child is diagnosed, medication and other
interventions should be discussed. If a diagnosis is not
approved, you can ask for a second opinion.

Once a report is completed, a Support Plan should be

agreed with parents/carers. Recommendations for a range
of options should be made. You should also be directed to
services and support available.

A more detailed diagnosis pathway, from Achieving for Children is here.

ADHD Richmond and Kingston is there to support families and carers of children and young
people with ADHD. Further information on steps post diagnosis is set out below.

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As set out above, assessment & diagnosis is usually accessed via the NHS. However unfortunately,
there is often a long waiting list as a result some parents/carers decide to go privately.

Your GP may be able to recommend psychiatrists who practice privately and here are some contacts
we know:

• Prof Peter Hill - The First Floor, 127 Harley Street, London W1G 6AZ Tel: 020 7486 2332
• Dr Claire Scott is a consultant community paediatrician who has a private practice. Tel:
07796 783007 or email claire.scott@developmental-paediatrics.co.uk
• The Effra Clinic is based in London and it specialises in ADHD and autism spectrum disorder.
The staff includes two consultant child and adolescent psychiatrists with a shared passion
and specialism in ADHD and ASD. Tel: 020 3322 5532 Email: admin@effraclinic.co.uk
• LANC - Learning Assessment and Neurocare Centre, 60 Bloomsbury Street, London 01403
240002 Email: info@lanc.uk
• Nicola Ryan Mental Health Nurse Tel: 07866 388935 Email: nickishouse266@hotmail.com
• Dr Bettina Hohnen contact@drbettinahohnen.com
• Dr Bozhena Zoritch 07957909754 https://www.addmire.org/

Remember though if you receive a private diagnosis and the consultant recommends treatment with
medication, then your GP needs to refer you via SPA to CAMHS Tier 3 for NHS treatment.

COMORBIDITIES

Comorbidity is the medical term for two or more disorders that occur at the same time. In general,
individuals affected by ADHD often have other disorders that impact their ability to function
successfully. The comorbidity of ADHD with other disorders is between 60% and 80%. When
comorbid conditions are present, it can make the diagnosis of ADHD much more difficult to pinpoint
and the symptoms harder to treat.

Comorbid disorders that may occur alongside ADHD are: ASD/AS, Autism, Anxiety, Conduct
Disorder, Depression, Dyslexia, Dyspraxia, Obsessive Compulsive Disorder, Oppositional Defiant
Disorder, Sensory Integration Disorder, Speech/Communication problems, Tourette’s Syndrome or
PAD.

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 ADHD PATHWAYS – post
diagnosis

No two children or young people with ADHD are the same and therefore making a diagnosis requires
a specialist assessment, usually by a child psychiatrist or specialist paediatrician. The diagnosis is
made by analysing patterns of behaviour, observing the child, obtaining reports from home and at
school.

Receiving a diagnosis of ADHD for your child or teen can be a huge relief, or indeed a big cause for
concern. A diagnosis can help when explaining your child’s condition to other people. It can also
make it easier when you are stating your case to obtain appropriate support and access to services.
This may include: obtaining an Education, Health and Care Plan; accessing medical and social
services; reasonable adjustments under the Equality Act; and obtaining disability-related funding.

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 The ADHD post-diagnosis pathway to medication,
interventions, therapy & support
The Single Point of Access (SPA) of Achieving for Children
can offer you a further route to a range of Children’s
Services including enquiries about therapy and support.
Need help at any time? You, your SENCo, GP, or family
worker can ask for referral. Tel: 020 8547 5008 Out of
hours Tel: 020 8770 5000.Tel: 020 8547 5008 or out of
hours Tel: 020 8770 5000

The Child and Adolescent Mental Health Service (CAMHS),

which has diagnosed your child with ADHD, will discuss
medication and all other interventions and referral options
with you for an outline care plan.

123 Magic Parenting: Once your child (up to age 13 yrs) has
a diagnosis you are recommended to attend this course
which will help you understand managing ADHD and
behaviour. Book karen.williams@achievingforchildren.org.uk
020 8547 6965 or 07771 974388

Post-diagnosis workshop: ADHD Richmond and Kingston,

with the NHS, has developed a two-hour information session
which you are recommended to attend (after 123 Magic) to
learn about the impact, diagnosis, school, interventions &
local services. Book at bookings@adhdrichmond.org

The Emotional Health Service can provide Cognitive

Behaviour Therapy if your child also displays significant
emotional distress, low mood or anxiety. Contact via SPA

ADHD Richmond and Kingston is a local Support Group

for parents & carers of children and young people with
ADHD. We can help advise you on all matters relating to
ADHD e.g. sharing of information (strategies, education,
legal, funding and further contacts), supporting families
and carers (seminars, workshops, closed Facebook
forum) and empowering those with ADHD (regular
newsletter and information on support and services
available locally).
www.adhdrichmond.org

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 INTERVENTIONS,
STRATEGIES & THERAPIES

If your child has been given a diagnosis of ADHD, it is very natural to want to find out more about the
condition. Best practice is for diagnosticians to offer a programme of follow-up support, including
advice, and signposting to other services e.g. behaviour training for parents

A child with ADHD needs intervention across all situations where the difficulties occur including at
home, school, with friendships, and in the community.

It is very important for the family, teachers and professionals to understand the child’s condition;
how it affects them; and management strategies. As they grow up, the young person needs to be
aware of their condition and how to manage it.

Many children and young people could benefit from specific strategies and therapeutic intervention.
These may:

Art Psychotherapy

Art Psychotherapy offered by the Emotional Health Service working with children with ADHD and
their parents. Contact the Single Point of Access of Achieving for Children Tel: 020 8547 5008 Out of
hours Tel: 020 8770 5000

Challenging Behaviour

There are some information leaflets from The Challenging Behaviour Foundation, which will guide
you to some best practice: Sheets 1 2 3

Cognitive Behavioural Therapy (CBT)

CBT is a type of talking therapy that attempts to change how people think (cognitive) and what they
do (behavioural). It can either be carried out one-to-one with a therapist or in a group setting. The
Emotional Health Service offers CBT mainly for mental health difficulties. It’s important when asking
for CBT to stress your child also displays significant emotional distress, low mood or anxiety,
depression or sleeping issues NOT just ADHD! Referral can be made via the AFC website.

You may download this free eBook on Cognitive Behaviour Intervention and this free Workbook
from Pesky Gnats or try this online payable course from Brave Online and here is our friend, Dr Jade
Smith’s, book on Adapting CBT for Children with ADHD Find a therapist and our friends at The Effra
Clinic and Nicola Ryan offer CBT
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Counselling and Psycotherapy

The symptoms of ADHD can result in a variety of challenges ranging from broken friendships to low
self-esteem to anxiety or depression. Long or short-term counselling may help some to process
feelings and develop strategies for dealing with the effects of ADHD. Private psychotherapists are
available. Real Talk offers counselling for 5-18 yr olds in SW London and Off the Record provide a
service for 11-24 yr olds

Diet

We believe families should have a balanced diet of good quality nutritious fresh food. Sugary and
processed foods with artificial colourants and additives should be avoided where ever
possible. Equally fried foods with trans-fats should be kept to a minimum. ADHD children and
others with learning difficulties often encounter food intolerances which may also come from foods
which are nutritional and fresh.

By keeping a food diary parents can often see a link between food consumed and its adverse effect
on children eg. sore tummy after eating, deteriorating behaviour, etc. This can then be further
explored with an experienced health professional such as nutritionist or kinesiologist.

Educational Psychologists

They are available via school (see Education) or privately, see the Association of Child Psychologists
in Private Practice an example is Susanna Goncalves http://www.serutufutures.com

Be advised that there is no guarantee the LA would use an independent EP report for EHCP purposes

Emotional Health Service

This team of Achieving for Children works with children and young people up to the age of 19 years
old who have a Richmond or Kingston home address. The focus of this service is early intervention
and prevention, including consultation, training and short term direct therapeutic interventions.
Contact the Single Point of Access Tel: 020 8547 5008 Out of hours Tel: 020 8770 5000

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Exercise

Regular physical activity decreases the severity of ADHD symptoms and improves cognitive
functioning in children. It has a positive, measurable impact on their focus and mood. Exercise
breaks for children with ADHD are recommended. See our ACTIVITIES section.

Herbal Medicine

This may offer benefits for children with ADHD, for example in the areas of stress & sleep problems.
Contact The National Institute of Medical Herbalists Tel: 01392 426022 Email: info@nimh.org.uk

Homeopathy

This may also help with conditions such as dietary and sleep problems. Ask your GP or other
healthcare professional for a contact. It is also possible to search for a local homeopath through The
Alliance of Registered Homeopaths Tel: 01825 714506 Email: info@a-r-h.org

Music Therapy

Richmond Music Trust offers music therapy for ADHD/SEN. Contact: Richmond Music Trust. 7, Briar
Road, Twickenham TW2 6RB Tel: 020 8538 3866 Email: admin@richmondmusictrust.org.uk

Otakar Kraus Music Trust offers music therapy to children with special needs, regardless of ability or
age. These fun sessions encourage children to experience different ways to explore their imagination
in a musical context and to develop their communication and listening skills. The Otakar Kraus Music
Trust, 3 Twining Avenue, Twickenham. TW2 5LL Tel: 020 8894 2007 Email: info@okmtrust.co.uk

Neurofeedback

This treatment is valued by those who have tried it. Here’s our video of Dr Neil Rutterford, check out
his company here and see his PowerPoint: Dr Neil Rutterford – LANC – pp

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Occupational Therapy (OT)

Occupational Therapy can benefit children with ADHD with sensory skills, physical coordination,
organization, controlling energy levels, hyperactivity, working out anger and aggression, improving
focus, handwriting, social skills, time management. Tel: 020 8891 8136 Visit also occupational
therapy unit. For independent services visit The Royal College of Occupational Therapists Find out
how OT can help your ADHD child here

Osteopathy (including cranial osteopathy)

Osteopaths advocate gentle manipulation of the head which may relieve certain problems,
including stress and digestion difficulties. Contact: The General Osteopathic Council Tel: 020 7357
6655 Email: contactus@osteopathy.org.uk Try The Maris Practice.13, Baylis Mews, Amyand Park
Road, Twickenham. TW1 3HQ Tel: 020 8891 3400 Email: mail@themarispractice.com or treatments
is Nargis Ahmad - Ivy Tree Clinic - Tuesdays to Saturdays - 190, Kingston Road, Teddington. TW11
9JD. Tel: 020 8943 1728

Psychiatry

Referrals are normally made via your GP for both NHS and private. Visit The Royal College of
Psychiatrists

Psycho-education

The National Institute of Health and Care Excellence (NICE) and European guidelines recommend
psycho-education for the patient and their families as a first step in the treatment of ADHD. Your
child will be encouraged to discuss ADHD and how it affects them. It can help children, teenagers
and adults make sense of being diagnosed with ADHD and can help them cope and live with the
condition. Ask your Consultant or educational psychologist for more information.

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Psychologists

The NHS can offer psychological therapies (ask your GP or Consultant). Private ADHD child
psychologists in Richmond (and search beyond) can be found at the Association of Child
Psychologists in Private Practice - AChiPPP

Psychotherapists

Counsellors and Psychotherapists in and near Richmond and Kingston. Also the Institute of
Psychotherapy & Disability and Human-Givens

Sleep management

Good sleep hygiene is an important aspect of managing ADHD including optimising attention and
mood the following day. Sometime medication, a side effect of medication used to treat ADHD, can
cause sleep difficulties.

It’s important to remove all electronic visual devices from the bedroom at least 1 hour before
bedtime. ADHD children can benefit from listening to low-level music or talk radio at bedtime.

If good sleep hygiene alone is ineffective, medication such as a sleeping tablet (melatonin) may be
offered by your consultant psychiatrist or GP

Social skills

Many children with ADHD have trouble with social skills and building friendships. They may choose
not to socialise very much because it can be difficult, often because of impulsive acts, and this may
cause considerable anxiety. There are often difficulties understanding the unwritten 'social rules'.
How close do you stand to another person? Many find it hard to understand or interpret other
people's thoughts, feelings or actions, and therefore to understand their intentions. This type of
training involves your child taking part in certain ‘role play’ situations to teach them how to behave
in a social setting and how their behaviour affects others around them. Watch this video and see the
ADHD and social skills – Dr Lax Pericall slides from our Talk on Social Skills. Contact Richmond
Paediatric Speech and Language Therapy Department: Tel: 020 8973 3512 (for Kingston 020 8339
8000)

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Speech & Language (SaLT)

Those with ADHD may be good at basic communication but struggle with attention and listening;
coping with instructions; interacting appropriately for their age; understanding gestures, body
language and facial expressions; they may not be aware of what is socially appropriate. Contact
Richmond Community Healthcare Tel:020 8973 3512 or for the Kingston Team Tel: 020 8339 8000
Private therapists can be found at The Association of Speech and Language Therapists in
Independent Practice.

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 FOR PARENTS

As your child’s role model and most important source of strength, it is vital that you live a healthy
life. If you are overtired or have simply run out of patience, you risk losing sight of the structure and
support you have so carefully set up for your child with ADHD. Having a child with ADHD is highly
stressful and exhausting

Parenting courses

Parent training programmes are essential part of understanding ADHD. The NICE guidelines say you
should attend these courses, alongside any other treatments your child may be receiving. ADHD
Richmond and Kingston partnered with Achieving for Children to produce excellent 123 Magic
Parenting courses if your child is between 2-13 yrs. Register your interest with this
Parenting_Self_Referral_Form_Sept_14__1_

They are free of charge and we recommend both parents attend, even if it’s on separate occasions.

You will gain a better understanding about ADHD, learn how to better manage your child with ADHD
and also how children feel about the condition. There are 6 workshops in all and by the end you will
have met a group of parents who are dealing with exactly the same types of issues relating to the
condition. Contact Karen Williams Tel: 0208 5476965 or 07771 974388 Email:
karen.williams@achievingforchildren.org.uk

Post-diagnosis workshops

ADHD Richmond and Kingston has been awarded an NHS contract to provide, to Richmond & Kingston
parents of children with ADHD, free post-diagnosis information sessions. Book your place at
bookings@adhdrichmond.org

Wellbeing – Look after yourself

• Take care of yourself. Eat well, exercise, and find ways to reduce stress, whether it means
taking a nightly bath or practicing morning meditation. If you do get sick, acknowledge it and
get help.
• Seek support. One of the most important things to remember in rearing a child with ADHD is
that you don’t have to do it alone. Talk to your child’s doctors, therapists, and teachers. Join
our support group for parents of children with ADHD which offers a forum for giving and
receiving advice, and provides a safe place to vent feelings and share experiences.

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• Take breaks. Friends and family can be wonderful about offering to babysit, but you may feel
guilty about leaving your child, or leaving the volunteer with a child with ADHD. Next time,
accept their offer and discuss honestly how best to handle your child.

Richmond Carers Centre offer a variety of workshops & counselling for carers Tel: 020 8867 2380
Email: info@richmondcarers.org

Richmond Wellbeing Service is a free and confidential service for local people who experience
depression, anxiety, sadness, anger, extreme shyness, obsessive behaviour, phobias, relationship
difficulties or other psychological issues. It offers group workshops, counselling, self-help courses, a
range of talking therapies and computer-based therapies. The service is run through a partnership
between East London NHS Foundation Trust and Richmond Borough MIND. Contact: NHS Richmond
Wellbeing Service Richmond Royal Hospital, Kew Foot Road, Richmond upon Thames, TW9 2TE Tel:
020 8548 5550 / 020 3513 3266

Live Well Richmond is a free health improvement service available to anyone over the age of 16 who
either lives or is registered with a GP in Richmond. It offers free help and advice to help you develop
a healthy lifestyle and improve your health and wellbeing. Tel: 0208 487 1745 Email:
info@livewellrichmond.org.uk

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 MEDICATION

Medication can play an important role in managing moderate to severe ADHD. It can help reduce
hyperactivity and improve concentration. The consultants at the Mental Health Team in Richmond
and Kingston will discuss with you if medication is suitable. This decision is for you and your
child/teen. Try to think hard about the areas where your son or daughter is really finding things
difficult and ask the consultant if these areas will be improved by the use of a particular type of
medication, or if there are other therapies they can suggest. These may also go side by side with the
medication. Medication is not right for some children, and, in some cases, there may be other
investigations that will need to be carried out to find out if medication is suitable.

Watch our short video with Prof. Peter Hill

Medications used to treat ADHD are broadly divided in two groups: Stimulants, like methylphenidate
(Medikanet or Concerta are the brand names) used mainly in Richmond and Kingston and
dexamphetamine and non-stimulants like atomoxetine.

Stimulant medication (methylphenidate) is usually prescribed first. The type of stimulant prescribed
will depend on a number of things like the symptoms your child has, your choice of treatment, the
ease of giving the medication and even availability/cost of the medication.

ADHD is most often treated with stimulant medication which return dopamine to normal levels in
the brain. Medication does not cure ADHD – it can only reduce the difficulties it causes. Also, they
are very powerful drugs – some are classed as amphetamines – and can carry other health risks.

Sometimes medication can have side effects. The reported side effects of stimulant medication for
ADHD include difficulty sleeping and appetite loss (common), irritability and mood swings,
depression, headaches, upset stomach, dizziness, tics (uncommon), racing heartbeat and high blood
pressure (very rare). Sometimes growth slows down when children are on methylphenidate. For
these reasons, stimulant medication is only prescribed to children who have been professionally
assessed and diagnosed by an expert, and will be reviewed regularly.

Sometimes a child may respond to a different form of methylphenidate or other stimulant or non-
stimulant medications may be prescribed.

Most children and young people need the medication at least until they finish their education or
schooling. A few might need to take it even when they grow up in order to focus at work. Some
children need medications only at specific times, like for example while attending school and do not
have to take it on weekends or on school holidays, however, this needs to be discussed with your
doctor

Stopping medication can cause symptoms to return, and some young people can put themselves at
risk in terms of their education, their work, and socially by being impulsive and taking alcohol or
drugs.

Remember: if you have any questions regarding medication, do not hesitate to contact your
doctor

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 HEALTH CARE

Here are some of the health care services which may be useful to you:

Community Paediatrics (Hounslow and Richmond) is a specialist child health assessment and
diagnostic service to meet the needs of children with special or complex health needs. They work
very closely with other health professionals, such children’s therapies, and also offer joint
assessments as well as non-health specialists working in education and social care Tel: Tel: 020 3771
6100 Email: hrch.richmondcompaed@nhs.net

Emotional Health Service: Tier 2 CAHMS Service offers an early response to children and young
people experiencing poor emotional well-being and mild-moderate mental health issues. Contact
SPA Tel: 020 8891 7969 Out of hours Tel: 020 8770 5000

Hospital Passports: Patients who have learning disabilities can be given a Learning Disability Hospital
Passport by their GP or through their learning disability social services team, just in case they have to
be admitted to hospital. These passports can be used to list such important information as personal
details, capacity plus level and type of support required, best ways to communicate, behavioural
issues (and how to deal with them) past medical interventions, allergies, etc …

NHS Choices guide for people who have care and support needs, their carers and people who are
planning for their future care needs.

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 EDUCATION

For parents/carers:

A child or young person exhibiting symptoms of ADHD has special educational needs (SEN). They are
highly likely to require support and/or adjustments additional to their peers. Despite often being of
average or above intelligence, impaired ‘executive functions’ can make managing the demands of
the school environment, designed for a neurotypical child, really difficult. Common challenges
include: staying seated, sustained focused on learning tasks; not calling out during lessons;
relationships with peers and teachers; organisation and acting impulsivity particularly when anxious
or managing frustration.

Special educational provision may include help with learning and/or with navigating the school
environment. Examples include additional adult support or therapeutic intervention such as
occupational therapy, social communication and emotional literacy programmes or movement
breaks.

A child with ADHD should at the very least be on ‘SEN Support’ if their needs can be met from the
school’s own resources. They should have an Education Health and Care Plan if additional funding is
required to meet their needs or a specialist school placement is appropriate. Unfortunately, parents
are often given inaccurate information about their child’s entitlement to support, it is therefore
advisable to contact an organisation independent from school and the local authority for advice.
This help can be accessed for free via an independent charity such as IPSEA or SOS SEN or via an
education solicitor those on a low income may be eligible for legal aid.
Subject to few exceptions, a child with ADHD is entitled to the protection of the Equality Act 2010.
This means that reasonable adjustments should be made for him or her to avoid (so far as is
possible) the disadvantages they face in school e.g. in the application of the behaviour policy. They
should also not be discriminated against, that includes being treated unfavourably because of
something arising in consequence of their disability.
There is no doubt that navigating school life and accessing the SEN system can be a real challenge
and result in parents losing confidence in the education system. However, with their needs fully
identified and understood and with the right provision and placement to meet them, ADHD children
can successfully meet their full academic potential.
For more information, relevant to parents please see the Education tab on our website

For teachers/schools:
We can offer a variety of training packages for schools focusing on meeting the needs of students
with ADHD. Training is delivered by expert ADHD Advisory Teachers. They offer a range of options
from short twilights to a full days training and are happy to meet your school individual needs.
Contact us in the first instance to arrange @ communications@adhdrichmond.org
We also have a resource page designed specifically for teaching staff in how to help a pupil with
ADHD. Please visit our Teachers’ Info

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Read on for further useful education contacts:

Educational Psychology Service: If you need to get in contact with the service directly, please use
the most appropriate telephone number below (dependent upon the borough in which your child
attends school):
EPS Richmond base, 42 York Street Twickenham TW1 3BZ Tel: 020 8487 5464
EPS Kingston base, The Moor Lane Centre, Moor Lane, Chessington KT9 2AA Tel: 020 8547 6699

EHCP advice and help can be found in the Send Family Voices Golden Binder Further assistance is
offered free by Independent Support Partnership and by RUILS and also Kids Richmond & Kingston

IPSEA (Independent Parental Special Education Advice) offers advice on educational issues, EHC
Plans/Statements, tribunals, etc. General advice line: Tel: 0800 018 4016. Tribunal help line: Tel:
0845 602 9579

LEGAL: Part 1 of our Video of our legal SEN expert, education lawyer, Eva Akins of Russell-Cooke
Solicitors talking about Education & law with Part 2 of the video with Q & A. Here are Eva Akins’
Presentation Slides for ADHD talk 12.4.16 Eva also wrote this extensive list of examples of possible
adjustments that can be made at school for your child 101 reasonable Adjustments for ADHD.

SEN Advocacy: free legal advice on SEN and educational matters. MeToo&Co offers a SEN Advocacy
Clinic which takes place most Fridays from 9.30am to 2.30pm. Appointments can be booked via
email to helen@advocacyandmediation.co.uk or by calling 07702 189889

SENDIASS - Special Educational Needs and Disabilities Information Advice and Support Service or
SENDIASS is a free, confidential and impartial service for parents and carers, children and young
people (up to 25 years) Tel: 0208 831 6179 Email: RichmondKingston@kids.org.uk

SOS!SEN - an independent resource for special educational needs offers a free, independent,
confidential telephone helpline for parents and others looking for information and advice. Help with
preparing EHC Plans, interpreting the SEN Code of Practice and official letters, locating independent
professional experts, advising how to prepare tribunal appeals and helping with complaints to the
Local Government Ombudsman. There is a ‘walk-in’ advice centre in East Molesey available between
10.15am and 12.15pm on the third Wednesday of each month; please see the website for more
details. Fontenay, 11a, Creek Road, East Molesey, Surrey. KT8 9BE Helpline: 020 8538 3731 (Monday
to Friday 9.30am — 12.30pm and 2.00pm — 5.00pm) Email: admin@sossen.org.uk

20
 BENEFITS AND ALLOWANCES

There are a number of benefits available for ADHD children & young people as well as the family
members who provide care for them. Here’s an overview of Government benefits

Carer’s Allowance (CA) is paid to a carer who looks after an ADHD child more than 35 hours a week
and earns under a certain threshold. Here’s an overview. Conditions are: they must receive DLA at
the middle or highest care rate if they are under 16 years old, and for those aged 16 to 64, they have
to be in receipt of the daily living component of Personal Independence Payment. You will not be
able to receive Carer’s Allowance if you are claiming the State Pension or certain other benefits. You
can download a claim form or to complete your application online. For further information, contact:
Carer’s Allowance Unit. Mail Handling Site A, Wolverhampton. WV98 2AB Tel: 0345 608 4321
Textphone: 0345 604 5312 Email: cau.customer-services@dwp.gsi.gov.uk (Monday to Thursday,
8.30am to 5.00pm; Friday 8.30am to 4.30pm)

Cerebra has a useful website and Guides for Parents covers many topics, including claiming DLA for
children under 16. Email: enquiries@cerebra.org.uk

Cinema Exhibition Card (CEA) This is a cinema discount card for carers. Any responsible adult, who
goes to the cinema with the child who has ADHD, gets in free. To be eligible the child or young
person must be in receipt of DLA. Application forms can be picked up from cinemas. Prove of DLA
must be sent together with processing fee of £6 and passport photo of child. Please note children
must be 8 years or over to be eligible

Disability Facilities Grant is available up to £30,000 in England for your ADHD/SEN under 18 year old
child without parents’ income being taken into account. The DFG has certain criteria.

Disability Living Allowance (DLA) helps with the cost of caring for an eligible ADHD child, under 16
years of age, needing extra looking after and having had these difficulties for at least three months.
Just describe your child at his/her worst. Do not understate the problems and be particularly be
clear about night-time issues e.g. incontinence, difficulty going to sleep, waking up all the time,
tantrums, fits, lack of sleep, etc. (the higher benefit care rate for DLA is only paid for those with night
time problems). It will aid you to obtain a Disability Register Identity Card for your application. Order
a printed claim pack by calling the DLA Helpline: Tel: 0845 712 3456 Textphone: 0845 722 4433
(Monday to Friday, 8.00am to 6.00pm) Find out more about DLA.

Disability Register Identity Card (for children and young people) This is invaluable for ADHD
children and their parents in Richmond and Kingston to prove that their child is registered with their
local authority as disabled. The disability card can then be used to gain concessions on entrance fees
to places where disability concessions apply. Call 020 8547 5600 ext. 4179

Disabled Person’s Railcard - is valid for one or three years and entitles the holder to discounts of up
to one third off the price of a range of tickets; the same discount also covers tickets purchased by
the accompanying adult. Children aged 5 to 16 may also be eligible to hold a Disabled Person’s
Railcard; in such cases, they should be charged a child’s fare; the accompanying parent/carer
travelling at the discounted rate mentioned above. To qualify for a Disabled Person’s Railcard, the
person concerned has to receive DLA/PIP at the higher rate for getting around OR receive DLA/PIP at
the higher or middle rate for personal care. Contact Disabled Persons Railcard Office. PO Box 6613,

21
Arbroath, DD11 9AN Tel: 0345 605 0525 (Monday – Sunday, 7.00am to 10.00pm) Textphone: 0345
601 0132 Email: disability@atoc.org

Disabled Students Allowance: For those going into further education there is disabled funding
available

Family Fund: helps families who are raising a disabled (ADHD) or seriously ill child or young person
aged 17 or under. The child must present very severe conditions and not just ADHD. Visit their
website

Freedom Pass - Disabled Persons Freedom Passes are available to ADHD children over the age of 5
who is a permanent resident in the borough and meets the eligibility criteria. The Freedom Pass
entitles the holder to free travel on all London transport buses, London Underground, Docklands
Light Railway, Croydon Tramlink and train services in the London area (not the Heathrow Express),
plus concessionary fares on some of the Thames riverboats. Freedom Passes are also accepted by
English local bus companies outside London (9.30am to11.00pm Monday to Friday, all day weekends
and public holidays). Application forms are available from the Supported Transport Team 020 8831
6312/6191/6097 Email: accessibletransport@richmond.gov.uk Visit the Council website: See also
ZipCard

Free Early Education: The UK Government offers free early education for ALL 3/4 yr olds + for 2 yr
olds with special education needs (SEN) or an education health and care plan or if they get Disability
Living Allowance or with income support

Happy Days You can apply for days out or a UK family holiday break from Happy Days. Your child
must be between 3 and 17 years old

KIDS Sendiass (Richmond & Kingston) offers a Send Information Advice Service incl. benefits info.
Contact: RichmondKingston@kids.org.uk or on 0208 831 6179

Merlin's Magic Wand - worldwide charity for children arranging magical days out at Merlin
Entertainments attractions, such as LEGOLAND Resorts®, SEA LIFE Centres and Madame Tussauds

Merlin Pass and annual passes for other attractions such as Chessington World of Adventures,
Legoland, Alton Towers, Thorpe Park, the London Eye, London Dungeons, Madame Tussauds, and
Sea Life Centres can be applied for via the Short Breaks & Aiming High application form. The funding
is only available to the eligible child. Contact: nasima.sultana@achievingforchildren.org.uk

Personal Independence Payment (PIP) is replacing DLA for people aged between 16 and 64 years of
age (there are no current plans to replace DLA for children aged under 16). Those already receiving
DLA will not be automatically transferred to PIP, but will have to make a claim for the new benefit
when invited to do so. To qualify, individuals will have to score a certain number of points relating to
twelve activities i.e. preparing food, taking nutrition, managing therapies or monitoring a health
condition, washing and bathing, managing toilet needs or incontinence, dressing and undressing,
communicating verbally, reading and understanding signs, symbols and words, engaging with people
face-to-face, making budgeting decisions, planning and following journeys (used in the mobility
component test).

If you are claiming for the first time, ask to be sent a ‘How your condition affects you’ form. Contact:
Personal Independence Payment New Claims, Post Handling Site B Wolverhampton. WV99 1AH Tel:
0800 917 2222 Textphone: 0800 917 7777 (Monday to Friday, 8.00am to 6., 00pm) For general
information Tel: 0845 850 3322 Textphone: 0845 601 6677 (Monday to Friday, 8.00am to 6.00pm)

22
Richmond AID the Disability Action and Advice Centre 4 Waldegrave Road, Teddington, TW11 8HT
Tel: 020 8831 6080 will assist with form filling and benefits reviews, providing information, supplying
details of how to challenge a decision as well as lending a sympathetic and listening ear. Advice line:
020 8831 6070 Email: benefits@richmondaid.org.uk

Richmond Card is a card for Richmond borough residents (children and adults). You can get
discounts for various activities at leisure centres. The cost for children and young people is free,
however, for adults it is £18.50. If you register with the Richmond Carers Centre, you can get a
discount as a carer and pay just £6.90

Short Breaks and Aiming High (Kingston and Richmond) offers up to £300 for after school clubs,
holiday activities, sports and inclusion in mainstream settings programmes. Aiming_High_-
_Short_Break_Bid_Form_for_Individual_Children_2015___2016 Tel: 020 8547 6069

Skylarks (formerly MeToo&Co) offers a free benefits advice surgery in conjunction with Richmond
Aid on Friday mornings. They are a charity supporting children and young people with special needs
in South West London and also organise a wide selection of activities for children and parents.

TaxiCard offers subsidised travel in licensed taxis and private hire vehicles to London residents with
disabilities like ADHD. Here’s the criteria … Taxi Card Eligibility Criteria Sept 2017.doc

ZipCard give free travel on buses, trams & trains. Find out which one your child may be eligible for.

23
 ACTIVITIES

Please always check with any organisation that they have experience of ADHD and skilled staff to
look after your child

Achieving for Children activities list: specific events for young people

Action-attainment offer a sports-based programme of activities including kayaking, paddle-boarding

and ball sports for children and young people with social communication needs and their families.
Tel: 0208 392 9946 Email: info@action-attainment.com

Activity Station organises fun and exciting activities for people with disabilities in Richmond across
different age ranges, covering a wide variety of interests 07946 774423 Email:
activitystation@outlook.com

ADHD Richmond and Kingston activities list: our regularly updated list of all types of activities

Albany Outdoors: outdoor, adventure and water activity centre by the Thames in Kingston Email:
albanyoutdoors@achievingforchildren.org.uk Tel: 020 8547 6368

British Disabled Water-ski & Wakeboard Association offers fast fun on the water for those with
learning disabilities

Chessington World of Adventures: obtain a disabled pass for your child

Karate courses from Skylarks (formerly Me Too & Co) for 8 to 12 year olds – for children with
additional needs and siblings. The course is run by Sensei from the Busen Academy and beginners
are very welcome. Classes are free of charge and karate suits are also provided. Contact 07946
646033 Email: info@metooandco.org.uk

Kids Day Out: More general activities in Surrey

Kids.org may be able to find specific activities for you. Contact RichmondKingston@kids.org.uk or on
0208 831 6179

Marble Hill Park adventure playground – a fantastic outdoor area for SEN between Richmond &
Twickenham on Saturday mornings 10 – 12pm for 0-15 year olds:

Martial Arts: These Korean classes are very fast-paced, constantly switching activity. Perfect for a
distracted mind. Caters for all ages & genders.

MouseTrap discounted theatre seats for SEN & carers Email: relaxed@mousetrap.org.uk to be
added to their mailing list.

Knotsarts based out of East Sheen offers drama and social skills workshops which are fun and
inspiring and are specifically designed to encourage and enhance creative thinking as well as develop
social and communication skills and build self-confidence. Contact them via their website
www.knots arts.com or email hello@knotsarts.com or phone on 07947 212485
Richmond Mencap activities for local children with learning disabilities (8 to 17+) Tel: 020 8744 1923
and their Club 47 is for 12 to 17 year olds with additional needs & includes pool, table football, art,
creative art activities, indoor sports and team games. Meets every Friday 4-7pm. Contact: Club 47.

24
Whitton Youth Centre. 1 Britannia Lane, Twickenham. TW2 7JX Tel: 020 8744 1923 Email:
rmoffice342@gmail.com

Riding for the Disabled Association (RDA) is an excellent, therapeutic sport for ADHD children.
Contact Park Lane Stables Riding Centre, Teddington 07796 842 328

RISE (disability and inclusive sports) promotes sports and exercise activities for children and young
people with a multi-sports club, football, golf, swimming, tennis and trampolining 020 8831 6134 E:
rise@richmond.gov.uk

Skylarks (formerly Me Too & Co) is a local organisation focused providing a huge range of activities
for children and young peole with special needs in South West London . Contact them via their
website or Tel: 07946 646033 Email: info@skylarks.org.uk

TAZ holiday activities offers excellent outdoor learning skills on land and water

Wild Education: runs Forest School activities encouraging child led play & learning in a natural
Richmond environment

25
 LOCAL SERVICES AND
CONTACTS A-Z

Accessible Transport Unit (ATU) Freedom Passes are available to ADHD children. Disability and
Advice Centre (DAAC). 4, Waldegrave Road, Teddington. TW11 8HT Tel: 020 8831 6191 or 020 6191
6097 (general enquiries) Email: accessibletransport@richmond.gov.uk

Achieving for Children (AfC), our Richmond and Kingston children’s services, has a Local Offer
website for SEND setting out all the services and events available within the boroughs that are
relevant to children and young people with special needs including those with ADHD.
www.kr.afcinfo.org.uk

ADHD Richmond and Kingston is a voluntary, independent parent and carer support group for
children and young people with the neuro-developmental condition Attention Deficit Hyperactivity
Disorder & all its comorbidities. We hold monthly daytime & evening Talks. We have a website; an
open Facebook page; a closed private Facebook Forum ; a Twitter feed; and a YouTube channel.
www.adhdrichmond.org. Email: communications@adhdrichmond.org

Action-Attainment is a South West London based group aimed is about enabling children with
speech, language, communication and sensory needs to achieve and have active lives. They work
directly with families, community groups, schools and with professionals to provide understanding,
strategies and opportunities for learning, play and friendships. It also runs On the Ball which is a fun,
active, football based programme of family learning. Tel: 020 8392 9946 Email: info@action-
attainment.com

Buddy Up and Travel Buddy This Richmond AID project gives young people the confidence and
opportunity to access activities, to participate in their community, and to develop friendships along
the way. Buddy Up matches young people aged 14 to 18 with a volunteer Buddy, and Travel Buddy
does the same for those aged 14 to 25, supporting them to access activities and opportunities using
public transport. This project aims to give young people with additional needs and/or disabilities the
confidence to plan routes, travel to and from activities, and attend activities independently. Tel: 020
8831 6072 Email: info@richmondaid.org.uk

Carer’s Allowance (CA) is available to those caring for an ADHD child Tel: 0345 608 4321 Textphone:
0345 604 5312 (Monday - Thursday 8:30am to 5.00pm. Friday - 8:30am to 4:30pm)

Carers Hub Service - led and managed by the Richmond Carers Centre, it’s a group of nine charities
working together to provide a gateway to direct support, information and access to services for
unpaid carers in the Borough of Richmond

Child and Adolescent Mental Health Service (CAMHS) Richmond Royal Hospital, Kew Foot Road,
Richmond, Surrey TW9 2TE. Tel: 020 8891 7969 (SPA)

Child Benefit Helpline You get Child Benefit if you’re responsible for a child under 16 (or under 20 if
they stay in approved education or training).Tel: 0300 200 3100 Textphone: 0300 200 3103 (Monday
- Friday 8.00am to 8.00pm Saturday - 8.00am to 4.00pm

26
Childcare Brokerage Officers assist parents who are finding it hard to find a suitable childcare place
for have a child with additional needs. Tel:020 8547 6581 Email:
early.years@achievingforchildren.org.uk

Children’s Centres have Family Support Workers and Children’s and Family Workers, who apart from
offering general extra help, are also able to help families access specialist support. There are six
centres around the borough

Citizens Advice Bureau: Twickenham: 5th Floor, Regal House. 70, London Road, Twickenham. TW1
3QS Tel: 020 8712 7800 (Monday to Thursday, 10.00am - 3.00pm) Find your local office

Community Paediatricians Community Paediatrics (Hounslow and Richmond) is a specialist child

health assessment and diagnostic service to meet the needs of children with special or complex
health needs. Ham Clinic. Ashburnham Road, Ham, Surrey. TW10 7NF Tel: 020 8891 8188 Email:
hrch.richmondcompaed@nhs.net

Crossroads Care - charity providing ongoing support and respite for carers 1, Beverley Court, 26,
Elmtree Road, Teddington. TW11 8ST Tel: 020 8943 9421 Email:
richmonduponthames@crossroads.org.uk

Crossroads Saturday Club in Hampton during term time provides respite for parent/carers of
children and young people with additional needs aged between 8 and 18 years. The club is a safe
and secure environment to develop and enjoy social, creative and sporting activities. Tel: 020 8943
9421 Email: richmonduponthames@crossroads.org.uk

Disabled Living Allowance for Children (DLA) Tel: 0345 712 3456 Textphone: 0345 722 4433
(Monday - Friday, 8.00am to 6.00pm)

Educational Psychology Service: If you need to get in contact with the service directly, please use
the most appropriate telephone number below (dependent upon the borough in which your child
attends school):

• EPS Richmond base, 42 York Street Twickenham TW1 3BZ Tel: 020 8487 5464
• EPS Kingston base, The Moor Lane Centre, Moor Lane, Chessington KT9 2AA Tel: 020 8547 6699

Emotional Health Service: Tier 2 CAHMS Service offers an early response to children and young
people experiencing poor emotional well-being and mild-moderate mental health issues. Contact
SPA Tel: 020 8891 7969 Out of hours Tel: 020 8770 5000

Family Information Service (FIS) offers a free telephone and online service of information for
parents, carers, and professionals to assist with supporting children and young people up to 25 years
of age. Also impartial information, guidance and advice sessions at the Borough’s Children’s Centres
about the following: registered childcare options (e.g.: childminders, day nurseries, sessional care),
brokerage service for parents who are looking for childcare places, out of school and holiday care,
activities for children and young people from birth upwards, support groups, plus career
opportunities in childcare and play work. Tel: 020 8547 5215 Email: fis@achievingforchildren.org.uk

Fastminds is an adult ADHD support group for Kingston and Richmond meets every Thursday 1030-
1230 and their evening meetings are every 4th Monday 1900-2100. Email: info@adhdkingston.co.uk

Independent Support Partnership (c/o Richmond AID) help in applying for an EHC Plan or converting
from a Statement to an EHC Plan. Tel: 020 8831 6076 Email:
independent.support@richmondaid.org.uk

27
Integrated Service for Children with Disabilities (ISCD) Social Care, Short Breaks Service, Transitions
and Family Support Service, Participation and Engagement Service (Young People’s Service) are
some of the services offered by the ISCD, Windham Croft Centre for Children. 20, Windham Road,
Kew. TW9 2HP Tel: 020 8831 6470 Email: dct@richmond.gov.uk

IPSEA (Independent Parental Special Education Advice) Hunters Court, Debden Road, Saffron
Walden, Essex CB11 4AA General advice line: Tel: 0800 018 4016 Tribunal help line: 0845 602 9579

KIDS (SENDIASS ) SEND Information, Advice and Support Service, Windham Croft Centre. 20,
Windham Road, Kew. TW9 2HP Tel: 020 8831 6179 Email: RichmondKingston@kids.org.uk

Legal Advice Service (Richmond) Free legal service. Weekly sessions between 8.00pm and 9.00pm
each Wednesday at Duke Street Church, Duke Street, Richmond, TW9 1DH. Tel: 020 8891 2105
Email: rlas@rlas.org.uk

Mencap Richmond aims to improve the lives of children and adults with learning disabilities and
their family carers, provide services and support, represent their interests and campaign on their
behalf, raise awareness and understanding, promote social inclusion in the community. 342,
Richmond Road, East Twickenham.TW1 2DU Tel: 020 8744 1923 Email:
laura@richmondmencap.org.uk

Me Too & Co – see Skylarks

Moor Lane Centre. Moor Lane, Chessington. KT9 2AA Tel: 020 8547 6527 Email:
disabled.children@kingston.gov.uk

National Autistic Society (NAS) Richmond Branch A friendly parent-led group aiming to support
families in the borough living with autism spectrum disorders. Tel: 07810 505982 Email:
richmond@nas.org.uk

Occupational Therapy: can benefit children with ADHD – with sensory skills, physical coordination,
organization, controlling energy levels, hyperactivity, working out anger and aggression, improving
focus, handwriting, social skills, time management. For Richmond OT Tel: 0208 973 3480

Off The Record is a drop-in and after-school service offering free information, advice and guidance
plus appointment based counselling to children and young people aged 11 to 24 years of age. 2,
Church Street, Twickenham. TW1 3NJ Tel: 020 8744 1644 Email: info@otrtwickenham.com

Parenting 1,2,3 Magic courses - Karen Williams, Parenting Officer, AfC Tel: 0208 5476965 or 07771
974388 Email: karen.williams@achievingforchildren.org.uk

Preparing for Adulthood Programme (PfA) supports young people into adulthood with paid
employment, good health, independent living and friends, relationships and community inclusion.
First Floor, 30 - 32, Westgate Buildings, Bath. BA1 1EF Tel: 020 7843 6348 Email:
info@preparingforadulthood.org.uk Also contact Richmond & Kingston’s: Preparing for Adulthood

Psychologists: are available from the NHS – ask your GP or Consultant

Real Talk – counselling for 5-18 yr olds Tel: 020 8940 8578 Email: real-talk@relatelondonsw.org

Richmond AID (Advice and Information on Disability) is a charity run by and for people with
disabilities in the borough of Richmond upon Thames providing a variety of services that include an
advice service helpline, a benefits service, an employment project (job club), plus downloadable
publications and factsheets and a Disability Information Handbook. They have a free advice centre at
4 Waldegrave Road, Teddington. TW11 8HT Tel: 020 8831 6080 or 07894 215835 Advice Service
Helpline: 020 8831 6070 Email: info@richmondaid.org.uk
28
Richmond Carers Centre offers information and support through a helpline and workshops, runs a
Young Carers Project that organises trips out for siblings, produces a newsletter, offers
complementary therapies and help carers to apply for grants, etc. 5, Briar Road, Twickenham, Middx.
TW2 6RB. Carers Support Line: Tel: 020 8867 2380 (Mon to Fri, 9.30am - 4.00pm) 1 to 1 support
service available by appointment. Email: info@richmondcarers.org.uk

Richmond Directory has a list of local organisations providing a range of services

RUILS (Richmond Users Independent Living Scheme) Family Matters Service is offered to the parents
of children and/or young people who have additional needs living in Richmond. A support worker
aims to help by listening to parents’ worries and experiences in a non-judgmental way. Also offers a
befriending service; information on activities and services. Tel: 020 8831 6083 or 07963 633 326

School & Family Works – Families Helping Families - primary purpose is to advance the education
and promote the well-being of children who have additional needs and other members of families
who are often labelled ‘hard to reach’. Therapist & families work together to generate insight into
what behaviour means, resourcing each other with new ideas and strategies. Mark Griffiths Tel:
07540 806248 Email: mark@theschoolandfamilyworks.co.uk

Schools in Richmond with SEN provision: We recommend that you visit the school websites for full
information

SEN Advocacy: free legal advice on SEN and educational matters. MeToo&Co offers a SEN Advocacy
Clinic which takes place most Fridays from 9.30am to 2.30pm. Appointments can be booked via
email to helen@advocacyandmediation.co.uk or by calling 07702 189889

SEND Family Voices (SFV) are a mix of individual parents, plus leads from disability specific support
groups and specialist schools; they all offer their time on a voluntary basis and take responsibility for
representing the views of a wider group of parents. Their stated mission is "to bring people together
into a community to improve services, share support and strengthen the common voice" T: 07469
746145 Email: sendfamilyvoices@outlook.com

Single Point of Access (SPA) of Achieving for Children is your first port of call to Children’s Services
including enquiries about CAMHS Tel: 020 8547 5008 Out of hours Tel: 020 8770 5000

Skylarks (formerly Me Too & Co) is a parent-led charity which helps children and young people with
additional needs, and their families, in Richmond and surrounding areas. Play areas in a friendly and
welcoming environment; provide information and emotional support for their families and carers.
Tel: 07946 646033 Email: info@skylarks.org.uk Crossway Centre. 306, Richmond Road, East
Twickenham TW1 2PD

SOS!SEN - an independent resource for special educational needs offers a free, independent,
confidential telephone helpline for parents and others looking for information and advice. Help with
preparing EHC Plans, interpreting the SEN Code of Practice and official letters, locating independent
professional experts, advising how to prepare tribunal appeals and helping with complaints to the
Local Government Ombudsman. There is a ‘walk-in’ advice centre in East Molesey available between
10.15am and 12.15pm on the third Wednesday of each month; please see the website for more
details. Fontenay, 11a, Creek Road, East Molesey, Surrey. KT8 9BE Helpline: 020 8538 3731 (Monday
to Friday 9.30am — 12.30pm and 2.00pm — 5.00pm) Email: admin@sossen.org.uk

South West London Girls Connect has been created specifically to facilitate networking of parents,
as well as girls and women who have an ASD (including Asperger’s Syndrome and other similar
communication difficulties. Email: swlondongirlsconnect@gmail.com

29
30
St George's Hospital, Tooting provides ADHD services Tel: 020 8725 3727

Springfield University Hospital (CAMHS Tier 3) Tel: 020 3513 5000

Wellbeing Service - Richmond: offers a range of help and support Tel: 020 8548 5550

Windham Nursery has experience of children with SEN. Tel: 020 8831 6060 Email:
info@windham.sch.uk

31
 FURTHER READING

ADDISS (UK national charity) has books, DVDs and gift items. 020 8952 2800 http://addiss-
shop.com/

CEREBRA offers a free ADHD lending library

SEN Books is a specialist bookshop offering literature about ADHD, dyslexia, dyspraxia, autism
spectrum disorders and other learning difficulties. Tel: 01924 871697 Email: sales@senbooks.co.uk

Here are a selection of books that you may find of interest:

Title Author

Understanding ADHD Christopher Green and Kit Chee

1-2-3 magic effective discipline for children 2-12 Thomas Phelan

The hyper sensitive person Elaine N Aron

The explosive child Ross Green

Relationship development intervention Gustein and Sheney

Teaching your child the language of social success Duke, Nowick & Martin

The myth of laziness Mell Levine

The remarkable nutritional treatment for ADHD, dyslexia Dr Jacquline Stordy & Malcom
& dyspraxia Nicholl

How to teach and manage children with ADHD Fingan

The out of sync child Carol Stock Kranowitz

Could do better – How parents can help their children Noël Janis-Norton
succeed at school

Healing ADD Daniel G Amen

32
 USEFUL NATIONAL LINKS

ADDISS

ADHD Foundation

The Challenging Behaviour Foundation

Contact – for families with disabled children (ADHD)

Council for Disabled Children

Counselling Directory

Mind Ed – who can help us

National Autistic Society

NICE (National Institute for Health & Care Excellence)

One Place for special Needs (ADHD)

Royal College of Psychiatrists

SEN Magazine

Special Needs Jungle

The Hyperactive Children’s Support Group

Therapy Directory

Young Minds

33
 ACRONYMS

ADHD: Attention Deficit Hyperactivity Disorder.

AI: Autistic Impairment

APD: Auditory Processing Disorder; also: antisocial personality disorder

APE: Adaptive physical education

ASD/ASC: Autistic Spectrum Disorder/Autism Spectrum Condition

AS: Aspergers Syndrome

AT: Assistive Technology

BESD: Behavioural, Emotional & Social Difficulties

BIP: Behavioral Intervention Plan

BP: Bipolar Disorder

CAF: Common Assessment Framework

CAMHS: Child & Adolescent Mental Health Services

CAPD: Central Auditory Processing Disorder

CBT: Cognitive Behavioral Treatment

CCG: Clinical Commissioning Group

CD: Conduct Disorder

CI: Cognitive Impairment

CMH: Community Mental Health

CNS: Central Nervous System

CYP: Children & Young People

DD: Development Disorder

DSM: Diagnostic and Statistical Manual of Mental Disorders

DX: Diagnosis

EFD: Executive Functioning Disorder

EHCP: Education, Health & Care Plan

EI: Early Intervention or Emotional Impairment

EP: Educational Psychologist

GT/LD: Gifted and Learning Disabled

HFA: High Functioning Autism

34
HG: Highly Gifted

HI: Hearing Impaired

IEP: Individual Education Plan

IRP: Independent Review Panel

LA: Local Authority

LDA: Learning Difficulty Assessment

LLD: Language-based Learning Disability

LSA: Learning Support Assistant

MLD: Moderate Learning Difficulty

NLD: Nonverbal Learning Disability

NT: Neurotypical

OCD: Obsessive Compulsive Disorder

ODD: Oppositional Defiant Disorder

OFSTED: Office for Standards in Education, Children’s Services & Skills

OT: Occupational Therapist

PDA: Pathological Demand Avoidance

PMLD: Profound & Multiple Learning Difficulties

PRU: Pupil Referral Unit

PSHE: Personal, Social & Health Education

PSYCH: Psychologist

PT: Physical Therapist/therapy

SaLT: Speech & Language Therapy

SENco: Special Education Needs Co-ordinator

SEND: Special Education Needs & Disabilities

SI: Sensory Integration

SLI: Speech/Language Impairment

SPD: Sensory Processing Disorder

SPLD: Specific Learning Disability

SW: Social Worker

TA: Teaching Assistant

TAC/TAF: Team Around the Child or Team Around the Family

TS: Tourette’s Syndrome

35
 About ADHD Richmond
and Kingston

This ADHD Handbook has been produced by ADHD Richmond and Kingston.

ADHD Richmond and Kingston is an independent not-for-profit based in Richmond & Kingston
boroughs that supports parents and carers of children and young people with ADHD by:
• providing information,
• being an advocate and
• empowering those with ADHD.

We can help advise you on all matters relating to ADHD e.g. sharing of information (strategies,
education, legal, funding and further contacts), supporting families and carers (seminars,
workshops, closed Facebook forum) and empowering those with ADHD (regular newsletter and
information on support and services available locally).
We have over 600 families and professionals (teachers, healthcare professionals and academics)
who are members. We welcome everyone.
Our activities are funded by members’ donations and select grants and with the generous
support from volunteers. Donations can be made through our website. Also please let us know
if you are interested in volunteering as we have a wide range of roles where support is needed.
If interested email chair@adhdrichmond.org.

Website: www.adhdrichmond.org

Facebook (main page): facebook.com/AdhdRichmond

Facebook (closed forum): facebook.com/groups/AdhdRichmond

Twitter: twitter.com/AdhdRichmond

YouTube: www.youtube.com/user/AdhdRichmond

Easy Fundraising: https://www.easyfundraising.org.uk/causes/adhdrichmond

Email:

General matters communications@adhdrichmond.org

Bookings bookings@adhdrichmond.org

Volunteering chair@adhdrichmond.org

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