Jessica Cauchi - Peter Gerhardt - Justin B Leaf - Mary Jane Weiss - Clinician's Guide To Sexuality and Autism - A Guide To Sex Education For Individuals With Autism Spectrum Disorders-Elsevier (2023)
Jessica Cauchi - Peter Gerhardt - Justin B Leaf - Mary Jane Weiss - Clinician's Guide To Sexuality and Autism - A Guide To Sex Education For Individuals With Autism Spectrum Disorders-Elsevier (2023)
Jessica Cauchi - Peter Gerhardt - Justin B Leaf - Mary Jane Weiss - Clinician's Guide To Sexuality and Autism - A Guide To Sex Education For Individuals With Autism Spectrum Disorders-Elsevier (2023)
SEXUALITY AND
AUTISM
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Clinician’s Guide to
SEXUALITY AND
AUTISM
A Guide to Sex Education for
Individuals with Autism
Spectrum Disorders
JESSICA CAUCHI
Atlas Behaviour Consultation, Endicott College, Canada
PETER F. GERHARDT
The EPIC Programs, Endicott College, Canada
JUSTIN B. LEAF
Autism Partnership Foundation, Endicott College, United
States
This book and the individual contributions contained in it are protected under
copyright by the Publisher (other than as may be noted herein).
Notices
Knowledge and best practice in this field are constantly changing. As new research
and experience broaden our understanding, changes in research methods, professional
practices, or medical treatment may become necessary.
Practitioners and researchers must always rely on their own experience and knowledge
in evaluating and using any information, methods, compounds, or experiments
described herein. In using such information or methods they should be mindful of
their own safety and the safety of others, including parties for whom they have a
professional responsibility.
To the fullest extent of the law, neither the Publisher nor the authors, contributors, or
editors, assume any liability for any injury and/or damage to persons or property as a
matter of products liability, negligence or otherwise, or from any use or operation of
any methods, products, instructions, or ideas contained in the material herein.
ISBN: 978-0-323-95743-4
To individuals with autism and with other disability labels who have been
denied access to, and acknowledgement of, their sexuality for far too long.
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Contents
Acknowledgments xi
3. Interventions 17
The interventions 20
Conclusion 32
4. Age ranges 35
5. Body parts 37
Body partsdbio 41
Body partsdslang 42
vii
viii Contents
6. Menstrual care 43
Management of sanitary materials 46
Tracking of cycle 47
12. Consent 79
Demonstrating consent 83
Consent and assent recognition 85
Appendix
References 159
Index 167
Acknowledgments
The authors would like to thank Amy Gravino, Dr. Tracee Parker, and
Dr. Thomas Zane for their insightful comments at various points in this
process. They were all gracious with their time and talents and their efforts
are greatly appreciated.
xi
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PART ONE
Introduction and
foundational material
1
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CHAPTER 1
Abstract
Sexuality education is of paramount importance for all, but especially for people on
the Autism Spectrum. This book provides a comprehensive sexuality education cur-
riculum for learners of all ages with autism. With an emphasis on assent and respect,
this curriculum targets component skills across a variety of domains related to sex
education. A review of evidence-based teaching strategies is also included, with
reference to suggested methods for teaching throughout.
For decades, sex education has been, and continues to be, perhaps the most
controversial and complex instructional domain that (ideally) exists in
educational curricula (Kendall, 2014). The reasons behind this controversy
range from personal privacy to parent and/or student rights, community
norms and personal biases, to religious beliefs and prohibitions. Beyond the
controversy, human sexuality is complex in that it involves biology, psy-
chology, personal preferences and idiosyncrasies, personal and familial
values, sociocultural norms (Parchomiuk, 2022), and what may or may not
constitute pleasure on an individual basis. To that end, the World Health
Organization (2006) defines sexuality as being “experienced and expressed
in thoughts, fantasies, desires, beliefs, attitudes, values, behaviors, practices,
roles and relationships. [.] Sexuality is influenced by the interaction of
biological, psychological, social, economic, political, cultural, legal, his-
torical, religious and spiritual factors.” (World Health Organization, 2006).
In other words, human sexuality, and sex education, is complicated (e.g.,
Kendall, 2014).
At the same time, autism spectrum disorder (ASD) represents a complex
expression of neurodivergence that is different for each person on the
spectrum. The autism spectrum includes individuals with profound intel-
lectual disabilities on one end and individuals with above-average intelli-
gence on the other. It includes individuals with severely limited
communication skills and social awareness to those with fluent language
Clinician's Guide to Sexuality and Autism
ISBN 978-0-323-95743-4 © 2024 Elsevier Inc.
https://doi.org/10.1016/B978-0-323-95743-4.00007-2 All rights reserved. 3
4 Clinician's Guide to Sexuality and Autism
Source: Sex Ed State Law and Policy Chart: SIECUS State Profiles 2021.
https://siecus.org/wp-content/uploads/2021/12/2021-Sex-Ed-State-Law-
and-Policy-Chart-3.pdf.
This, in turn, results in an aspect of being human where there is high
interest but little research, few programs, or even agreed-upon parameters
for instruction/intervention.
The intent of sex education is to help individuals understand sexuality
and sexual health, learn how to make safe decisions while decreasing rates of
sexually transmitted diseases, and how to prevent sexual abuse (e.g.,
Schmidt et al., 2019). This, however, gets complex for autistic learners,
given each individual’s social, communication, and sensory profiles, which
appear to “interact with access to information, motivation to engage in
healthy sexual activities, and the development of skills needed to engage in
healthy sexual behavior” (Solomon et al., 2019, p. 339). In addition, much
of what constitutes the sex education provided to autistic learners is
knowledge-based (e.g., completing quizzes or worksheets) instead of based
in behavior skills training (BST) and dependent on the acquisition of the
actual skills (e.g., Davies et al., 2021; Sala et al., 2019). In other words,
successful outcomes are more often based on verbal responses to questions
rather than on the display of an actual, relevant skill or skill set (Gerhardt
et al., 2022) in the environment where it is most likely to be displayed. This
is also troubling given that high verbal adults may know the language of
sexuality, but this knowledge does not generally translate into the corre-
sponding behavior (e.g., Kellaher, 2015).
Therefore, the necessity for this book that you now hold in your hand.
by the society in which they live (Tolman, 2006). Collectively, this can be
understood as the right to access sexual pleasure (e.g., Alexander & Gomez,
2017). Calabrò et al. (2022) recently argued that autistic adults, just like the
rest of the neurodiversity continuum, have the right to experience the best
possible quality of life, including sexual well-being. The authors go on to
argue that autistic adolescents and adults may require access to a sex coach
which they define as “a trained professional who helps people with sexual,
intimacy and relationship issues, [.] but also guides their clients to fully
grasp their sexual potential through education, training, and communica-
tion” (p. 964). While this may be ideal, the continuing challenges to the
simple provision of sex education make it difficult to imagine how this
might become accepted practice in the near future.
Sexual pleasure, however, is about more than biology or physiology.
Emotional context and relationships play a major role in feeling sexual
pleasure or satisfaction. The sexual interest of adolescents and adults on the
spectrum is comparable to that of neurologically typical adolescents and
adults (e.g., Hancock et al., 2020) as is, to a somewhat lesser extent, the
desire to be in a relationship. Dewinter et al. (2017) surveyed 675 autistic
adolescents and adults and compared their reported sexual orientation and
intimate relationship experience with general population peers (n ¼ 8064).
The results indicated that a majority of respondents with and without ASD,
identified as congruent with their assigned gender at birth, have been
attracted to someone of the opposite gender, and have been in at least one
heterosexual intimate relationship. Autistic women reported a higher level
of same-sex attraction and, and the same time, did not necessarily identify as
female. About 50% of respondents with ASD reported being in a generally
satisfying relationship and those in a relationship tended to live with their
partner. Hancock et al. (2020) reported the results of a separate online study
and noted that while the autistic adults who responded reported a similar
level of interest in relationships to their general population peers, they also
reported fewer opportunities to meet potential new partners and had
shorter relationship duration. Importantly, they also reported learning less
about sexuality from their peers.
Conclusion
At least in North America, sex education continues to be controversial and
the sexual abuse and victimization of individuals on the spectrum, partic-
ularly females on the spectrum, remains unacceptably high (although,
8 Clinician's Guide to Sexuality and Autism
Abstract
This book is designed to be used with learners of all ages on the autism spectrum, with
education provided by behavior analysts, teachers and educators, and parents. This
chapter covers an outline of how to use the book to provide effective teaching in
sexuality education with an emphasis on individualization for specific learners.
unfortunately, too late. Many skills will take a significant amount of time to
teach, and it’s important that they are mastered before they are expected to
be used in everyday life. Including sex education as an early, and ongoing
part of an education or treatment plan for someone with autism will help
increase the likelihood that they will be safe, have an improved sense of
well-being, and have an overall positive quality of life down the line. In
addition, normalizing the discussion of these topics, as well as instruction in
sexuality-related skills, helps to demystify these skills for instructors, autistic
individuals, and family members. It is important to approach these skills as
normal, appropriate, and essential. The earlier those messages can be sent,
the earlier we are establishing the kind of positive, open environment that
will help in the acquisition of these skills.
him to label that body part on himself. Conversely, when targeting slang for
sexual acts, the learner’s parents may not be the most knowledgeable or
comfortable instructors.
A final consideration is the extent to which there may be unintentional
lessons being taught alongside the intended lesson. For example, if multiple
instructors are working with an individual in the bathroom to teach
menstrual care the skill may be acquired, but so will, potentially, an un-
derstanding and/or acceptance that it is appropriate for different people to
be in a private washroom with the student while she is performing a very
personal and private skill. From a safety perspective, this is not something
we would want the learner to be comfortable with; rather, we would like
them to learn that unfamiliar adults should not be in private washrooms
alone with you. There are many of these potential unintentional lessons
within sex education, and careful consideration should be given to who is
providing instruction, where instruction is provided, and how it is being
provided. The team should consider these issues for each and every skill.
How to teach?
As will be reviewed in the next chapter, there are many evidence-based,
behavior-analytic teaching strategies appropriate to teach skills to people with
autism. Within each domain, the recommended teaching strategies are listed.
These are cross-referenced with the strategies outlined in the following
chapter and are provided as a recommendation only; consider them to be
clinical suggestions. Overall, each skill should be broken down and taught to
the learner in the way that best matches his or her individual learning profile.
In many cases, sex education will be provided to a learner as a part of a
more comprehensive overall program of instruction. The clinician,
educator, or caregiver likely already knows effective teaching strategies for a
particular individual learner. The target skills within this book should be
taught using evidence-based strategies that best apply to that individual
learner. In many cases several teaching strategies are listed for the same skill
domain. In these cases, all teaching strategies may be appropriate and the
instructor should choose the one they think will be most effective based on
what they already know about the learner. It may be that the same
instructor teaches one skill to a particular learner using one teaching strategy
and the same skill to another learner using a different strategy. In other
words, interpret the information as guidelines and suggestions based upon
your knowledge and history with the learner in question.
12 Clinician's Guide to Sexuality and Autism
Other resources
Many additional resources are provided at the end of this book. This book
is meant to help instructors know what to teach within sex education, but is
not meant to be a resource about sexuality in and of itself. Resources related
How to use this book 15
Final considerations
Use real, direct, and clear language when teaching. Avoid innuendo
and euphemism. Likewise, real materials and realistic visuals should be used
wherever possible.
Consider independence as a spectrum rather than a binary
measure. While the best outcome may be for an individual to tolerate
wearing sanitary pads, recognize when they need to be changed, monitor
their cycle, and manage all needed materials; some learners may not attain
this level of mastery. It is suggested that teaching the individual to use
period underwear independently is preferential to requiring support to
complete all of the above skills from a paraprofessional. Likewise, a
nonvocal communicator may be taught to take photos on their phone of
relevant events in their day to share with a caregiver, instead of presuming
they are unable to recall and talk about their events. Creativity in pro-
gramming and a broad definition of independence will be important to
ensure each learner reaches their maximum potential.
Defining transfer to the natural environment as the end goal. A
limitation associated with teaching sexuality skills to autistic learners is
transferring individual skills to real-life environments. For example, learning
to put on a condom effectively and independently in practice alone in one’s
room is much different than doing so in a sexual situation with a partner
when one’s body is full of hormones, adrenaline, and overall excitement.
Simply put, just because the individual has been taught the skill doesn’t
mean they will be able to use it when they need it. Practicing in as close to
real-life as possible may help. Mastery criteria for safety skills and those with
high risk (e.g., proper use of menstrual materials, proper use of birth
control) should have stringent mastery criteria, while skills that are more
social in nature should be taught to a level of mastery that is common for
other peers in their setting (e.g., most of us stumble on first dates!).
16 Clinician's Guide to Sexuality and Autism
Interventions
Abstract
When teaching about sexuality to people, it is extremely important to utilize evidence-
based teaching strategies. This chapter will review several evidence-based teaching
strategies used commonly within the field of ABA including Behavioral Skills Training,
Teaching Interaction Procedure, Cool vs. Not Cool, Video Modeling, and others. It is
important to individualize teaching per the individual in all cases, and by providing an
overview in this manner it is our hope that the clinician will be able to create a
teaching plan that is evidence-based and well suited for the individual learner.
Keywords: ABA; Autism; Behavioral skills training; Discrete trial teaching; Evidence-
based practice; Learner; Parent coaching; Practitioner; Sex education; Video modeling.
As this book reflects, sex education is of the upmost importance for in-
dividuals diagnosed with autism spectrum disorder (ASD). Teaching the
concepts of sex, sexual health, and dating should occur as early as the learner
is ready for such instruction. These skills are often difficult to teach and
require the learner to make fine discriminations. For example, when
teaching a learner how to ask someone out on a date, they will have to pay
a great deal of attention to behavioral indicators of whether the other
person is interested in going on a date with them. Further, a learner might
also have to discriminate where to display certain skills and where not to
display certain skills. For example, if we were teaching a client about
masturbation we would want to teach them that they should engage in this
behavior in the privacy of their own room or home (if it is not a shared
space) as opposed to masturbating in public.
These discriminations are important to make because if the learner
makes an incorrect discrimination there may be serious negative conse-
quences. For example, in the previous examples, if a learner fails to
recognize the signs that a person is not interested in dating them, this can
result in everything from being ridiculed to involvement with the criminal
justice system. In the second example, if a learner fails to correctly
discriminate when to masturbate it can mean the difference of self-pleasure
Clinician’s Guide to Sexuality and Autism
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18 Clinician’s Guide to Sexuality and Autism
with behavior analysis. In this chapter we will provide the reader with a
description of different interventions that can be implemented and sug-
gestions on how they could be implemented. It should be noted that this is
not a comprehensive list; it is a description of those procedures that we have
found to be some of the most effective within our research and clinical
practice.
The interventions
Discrete trial teaching
One of the most common procedures in the field of behavior analysis is
discrete trial teaching (DTT; Lovaas, 1981, 1987). Discrete trial teaching is a
systematic teaching procedure that breaks skills down into smaller com-
ponents and teaches these steps one at a time. Discrete trial teaching consists
of the practitioner implementing a series of teaching trials within a given
session. These teaching trials consist of three mandatory components. First,
the practitioner provides an instruction/discriminative stimulus (e.g.,
“Name a person who is your friend”). Next, the learner responds to that
instruction (e.g., saying “Kenny”). Finally, the practitioner provides a
consequence based upon the learner’s response. If the learner responds
correctly, then the practitioner would provide reinforcement (e.g., a toy,
token, social praise). If the learner responds incorrectly, then the practi-
tioner would provide feedback (e.g., saying “no,” removing a token,
providing the correct answer).
Often, the learners we work with have difficulty in responding correctly
and, therefore, the practitioner might need to prompt the learner to
respond correctly. Thus, the fourth optional step of discrete trial teaching is
the provision of a prompt. When the practitioner provides a prompt, they
should do so following the instruction but prior to the learner’s response.
There are numerous ways a practitioner can provide a prompt (e.g., verbal,
gestural, multiple alternatives, physical, etc .). A practitioner should not be
providing or fading prompts without a system in place. Prompting systems
are guidelines of when a learner should provide a prompt and when an
instructor should fade a prompt (Cengher. et al., 2018; MacDuff et al.,
2001). There are many different prompting systems that are used for in-
dividuals diagnosed with ASD today. These include most-to-least
prompting (Fentress & Lerman, 2012; Longino et al., 2022), least-to-most
prompting (Libby et al., 2008), constant time delay (Miller & Test, 1989),
progressive time delay (Walker, 2008), simultaneous prompting (Waugh
Interventions 21
et al., 2011), and no-no prompt (Leaf et al., 2010). While research has
shown that these prompting systems are effective, they can be administered
in a very rigid manner. Ideally, prompts should be individualized and
applied in flexible ways.
As such, we would recommend practitioners use flexible prompt fading
when implementing discrete trial teaching (or any procedure for that
matter). When a practitioner uses flexible prompt fading, they make in-the-
moment decisions about if they should prompt, if they should not prompt,
and what prompt type to use (Leaf, Leaf, Alcalay, et al., 2016). Thus, with
this system a practitioner can use any of the prompt types at any time as they
see fit. However, this is not based upon a gut feeling or done randomly, but
rather following certain guidelines. First, the goal of the practitioner should
be to keep the learner responding correctly (prompted or unprompted) at
80% accuracy within a teaching session. Second, when a practitioner de-
cides to prompt, they should provide a prompt that they have deemed will
likely result in a correct response but that is the least assistive as possible.
Third, the goal should be that the practitioner reduces the provision of
prompts as quickly as possible. During each trial, the practitioner should ask
themselves if they believe the learner is going to respond correctly. If the
answer to that question is yes, then the practitioner would not provide a
prompt. If the answer to that question is no, then the practitioner should
decide what is the least assistive prompt necessary to elicit a correct
response. This should occur during every teaching trial. The reason for the
preference for flexible prompting is because it promotes independence and
guards against dependency on cues from the instructor.
Although discrete trial teaching is often associated with younger learners
or learners with more impacted cognition, the reality is it can and should be
used with learners of all types (Smith, 2001). It is a great approach as it is
systematic, breaks the skills down, and provides the learners with multiple
opportunities to learn the targeted skill. Research and clinical practice have
demonstrated that DTT can be effective in teaching conversation skills
(e.g., Ingvarsson & Hollobaugh, 2010), play and social skills (e.g., Nuzzolo-
Gomez et al., 2002; Shillingsburg et al., 2014), and language skills (e.g.,
Conallen & Reed, 2016; DiGennaro-Reed, Reed, Baez, & Maguire,
2011). It is also a procedure that can teach a variety of skills in regard to
sexual education. For example, it could be utilized to teach the learner to
discriminate among different relationships, how to talk to people they are
interested in dating, how to buy different sexual prevention and/or sex
toys, and to discriminate healthy and unhealthy sexual relationships and
22 Clinician’s Guide to Sexuality and Autism
exemplars can help increase the learner with generalizing their behavior to
the natural environment. Fifth, there does not need to be an equivalent
number of “cool” and “not cool” demonstrations. Rather, the practitioner
should decide if it is important to demonstrate more cool behaviors or not
cool behaviors. If the learner would benefit from seeing the behavior
demonstrated correctly then the practitioner would provide more cool
demonstrations. Conversely, if the learner is missing components of the
behavior or omitting important aspect of the behavior the practitioner
might elect to have more not cool demonstrations. Generally speaking,
there will be many demonstrations of cool behavior, to assist with
strengthening this aspect of skill development. Sixth, the practitioner does
not need to use the words “cool” or “not cool”; the practitioner can use
whatever language is appropriate to the learner’s culture and geographic
location. Finally, it is important for the practitioner to be aware that this
procedure may result in the learner displaying emotional responding. This is
because the learner may be sensitive to working on sexual behaviors, and
because the procedure implies the identification of past or current missteps.
Clinicians should frame this proactive positively, ensure that all practice is
done with compassion and sensitivity, and should adjust instruction to
ensure comfort.
The Cool versus Not Cool Procedure started out as a clinical procedure
used to teach a variety of social behaviors to autistic/individuals diagnosed
with ASD. However, in the past 10 years, research has been conducted on
the effectiveness of the Cool versus Not Cool Procedure (Ferguson et al.,
2021; Leaf et al., 2016; Cihon et al., 2021; Milne et al., 2017). In 2012, Leaf
and colleagues conducted the first empirical investigation to teach three
autistic individuals how to (1) interrupt; (2) change the game; (3) appro-
priate greetings; (4) joint attention; (5) changing the conversation; (6)
abduction prevention; and (7) eye contact. The results of this study indi-
cated that participants reached mastery criterion on 87.5% of skills. Since,
this original study multiple studies have been conducted on teaching social
interaction behaviors (i.e., compromising, sharing, and assertiveness) (Leaf
et al., 2015); social communication skills (i.e., providing verbal support,
chatting, and interrupting) (Milne et al., 2017); comparing the Cool versus
Not Cool Procedure to Social Stories (Leaf, Mitchell, et al., 2016); and play
skills (Leaf, Leaf, Milne, et al., 2016).
Although research has not directly evaluated the Cool versus Not Cool
Procedure for teaching sexual education, it has been implemented clinically
for several years and should be easily extended to skills related to the pursuit
Interventions 25
the learner repeat what they were going to talk about. For the purposes of
instruction, let’s consider an older adolescent negotiating with their parent
that they would like to go on dates without being accompanied by a
chaperone.
The second step is for the practitioner and the learner to come up with
meaningful rationales of why the learner should display the behavior. This
can be done by the practitioner stating one rationale and having the learner
repeat the rationale or by the practitioner asking the learner to come with
their own rationales. A rationale should be meaningful in that it reinforces
the learner and encourages them to want to engage in the targeted
behavior. Additionally, a good rationale usually takes the form of an “If
____ then _____ statement”. For example, a good rationale might be: “If
you tell your parents that you want to go on dates without a chaperone, it
might make you feel more comfortable on dates and reduce your annoy-
ance at your parents.” A good rationale could also serve as a self-reminder
of why a learner should engage in the behavior within the natural envi-
ronment. Further, a good rationale will allow the practitioner to fade
artificial reinforcement during teaching. Finally, a good rationale must be
meaningful and individualized to the learner’s needs and desires.
The third step of the teaching interaction procedure is breaking the
targeted skill down into smaller behavioral components. In other words, a
task analysis of the targeted behavior is created. For example, the practi-
tioner might break the skill of revealing that you are gay to your parents
into the following steps: (a) asking parents to talk; (b) finding a time to talk;
(c) finding a place to talk; (d) stating what you want to talk about;
(e) explaining that this is difficult to talk about; (f) stating what the
boundaries are of the conversation; (g) stating what you want to tell them;
and (h) attending to special considerations. The practitioner should break
the skill down into as many steps as are needed for the learner to understand
what they need to do in the natural environment. For some learners it will
require more steps and for others it will require less steps. During the first
teaching session, the practitioner will usually state the steps and have the
learner repeat the steps. During subsequent sessions, the practitioner will
just ask the learner to state the steps of the target behavior.
The fourth step of the teaching interaction procedure is the practitioner
demonstrating the target behavior to the learner. This demonstration is
identical to the demonstration in the Cool versus Not Cool Procedure. The
fifth step of the teaching interaction procedure is the practitioner having the
learner role-play the behavior. The role-play is also identical to the role-
Interventions 27
play component in the Cool versus Not Cool Procedure. The sixth and
final step of the teaching interaction procedure is the provision of feedback.
Feedback should include both positive reinforcement and corrective
feedback. This reinforcement should be based upon how the learner does
throughout the entire teaching interaction procedure, and should be
delivered with sensitivity and compassion.
Finally, special considerations should be anticipated and embedded into
instruction. In the case of this and other sexual skills, it is urgently important
to attend to safety risks. In this case, unchaperoned dating might be reserved
for circumstances where the dating partner is well-known. In addition,
unchaperoned dating might be restricted to safe neighborhoods, and might
not extend to the use of public transportation. Stages of independence can
be planned, and there can be a gradual loosening of restrictions as skills
develop, as time passes, and as experience accrues.
An important component of the teaching interaction procedure is for
the practitioner to find ways to promote generalization for the learner. This
can be done in numerous ways. First, the teaching interaction procedure
should be implemented by multiple therapists. Second, the teaching
interaction procedure should be implemented in different places and during
different times. Third, the teaching interaction procedure should increase
the provocativeness of the demonstration and role-play throughout the
course of intervention. This can be done by making initial role-plays or
demonstrations easy for the learner and gradually making it more and more
like the natural environment. For example, the practitioner might start off
by acting as a parent who asks no questions and agrees to changes in
chaperoning. Over time, the parent may ask more difficult questions or
respond not as positively.
The teaching interaction procedure was originally created as part of
Achievement Place and the teaching family model (Phillips, 1971, 1974;
Schumaker et al., 1983). Within the original conceptualization it was used
to teach juvenile offenders or those at risk for juvenile offense to improve
their behavior and overall quality of life (Phillips, 1971). Further, this
procedure was adopted as part of the curriculum used in Boys Town
(Dowd et al., 1994). The teaching interaction procedure has also been used
clinically since the 1970s to teach autistic individuals a variety of behaviors
including social skills, language development, adaptive behaviors, school
readiness behaviors, reduction of aberrant behaviors, and sexual education.
Finally, there has been a plethora of research conducted on the teaching
interaction procedure for autistic individuals. This research has evaluated
28 Clinician’s Guide to Sexuality and Autism
Video modeling
Another procedure that can be used in sexual education for autistic/in-
dividuals diagnosed with ASD is video modeling (Charlop et al., 2010),
sometimes referred to as video-based instruction (Cihak et al., 2012;
Grosberg & Charlop, 2014; Gutierrez et al., 2016; LeBlanc et al., 2003;
MacDonald et al., 2005; MacManus et al., 2015; Nikopoulous & Keenan,
2004; Plavnick et al., 2013; Travers & Tincani, 2010). In video modeling,
the learner watches a video of how they should display the target behavior.
Video modeling is beneficial for learners who have good attending skills
and generalized imitation (McCoy & Hermansen, 2007). The practitioner
should set up the video ahead of time and ensure that the video captures the
correct demonstration of the targeted skill, preferably in the learner’s natural
environment. For example, if the targeted skill was breaking up with your
significant other, the video should target this behavior in the environment
where this is most likely to happen.
The practitioner has multiple choices in how to create the video. First,
the practitioner needs to choose if the video is going to include actors or if
the video will include the learner themselves. Second, the practitioner
selects if they are going to film the targeted behavior like a movie or if they
are going to film it from the point of view of the learner. Third, the
practitioner decides what the focus of the scene is. Finally, the practitioner
can determine how many different variations the video model will consist
of. Additional variations can aid in the generality of the skill, and can also
ensure that the individual does not learn one, unchanging script in the
context of practice.
During video modeling the instructor tells the learner that they are
going to watch a movie of the targeted behavior. Next, the learner watches
the video in its entirety. Finally, the practitioner either asks comprehension
questions at the end of the video or role-plays the behavior with the
learner. The practitioner could also pause the movie at any time to high-
light certain important aspects to the learner or to answer any questions the
learner may have.
Video modeling has been used since the 1980s both in clinical practice
and in research. Researchers have demonstrated it can be effective for
teaching perspective skills (LeBlanc et al., 2003), requesting (Cihak et al.,
30 Clinician’s Guide to Sexuality and Autism
Parent coaching
Despite the plethora of teaching procedures available, the content of some
parts of sex education are, quite simply, not appropriate to be taught to an
individual by a professional. The intimate and personal nature of much of
the content of sex education makes it inaccessible and inappropriate to be
taught directly by a professional. ABA has demonstrated much success using
parent coaching models. This may be done using many of the same
techniques outlined above. Parents can be trained to use methods like Cool
versus Not Cool, or Behavioral Skills Training. Parent coaching may be as
simple as demonstrating teaching with similar skills and explaining how
parents would adapt that to a particular target (i.e., showing parents how
they would model washing their torso, arms, legs, etc.), then explaining
how to teach using similar strategies how to teach washing genitals to their
child.
As well as using parent coaching to teach new skills, parents should be
coached on the maintenance of skills being taught in other settings. For
example, when teaching a functional “no” response, it is important that the
rationale for this is explained to parents, and parents are also taught how to
Interventions 31
prompt and reinforce this skill in natural settings at home, as well as under
what conditions they should and shouldn’t teach the skill.
For some parents teaching sexuality skills is uncomfortable. Overall
coaching should be given to parents in how to talk about and teach in a
direct, clear way, as well as how to access further resources if needed to help
with their content knowledge if required.
Conclusion
This chapter provided you with a brief overview of different procedures
that can be implemented to teach sexual education to autistic/individuals
diagnosed with ASD. The interventions that are listed are not a compre-
hensive list as there are other procedures that can be used as well. These
procedures can include script fading (Krantz & McClannahan, 1993), video
prompting (Bennett et al., 2013), fluency instruction (Weiss, 2001), and
pivotal response training (Koegel et al., 2014). Finally, within the curric-
ulum portion of this book we will state what procedures are the most
appropriate to teach the different sexual educational skills that are provided
in the book. We encourage practitioners to use only those procedures that
have empirical support, are considered to be evidence-based procedures,
and are conceptually systematic with behavior analysis. As a final note,
please remember the importance of assessing and planning for safety con-
siderations in this area of instruction, and remember that mastery of skills
depends entirely on transfer to naturally occurring contexts.
PART TWO
Curriculum
33
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CHAPTER 4
Age ranges
Abstract
Throughout the curriculum portion of the book, each skill has suggested target ages
to teach. Age ranges are unrelated to whether the individual is in school currently,
rather refer to an age range. Appropriateness and need for skill will vary by individual
and as such, these age recommendations should be regarded as guidelines.
Keywords: Adolescence; Adult; Age ranges; Early adolescence; Preschool; School age.
Throughout the curriculum portion of the book, each skill has suggested
target ages to teach. Age ranges are unrelated to whether the individual is in school
currently, rather refer to an age range. Appropriateness and need for skill will vary by
individual and as such, these age recommendations should be regarded as guidelines.
The following are the age ranges outlined throughout.
Description Ages
Preschool 3e5
School age 6e10
Early adolescence 11e14
Adolescence 15e20
Adult 21þ
Body parts
Abstract
This domain will target knowledge of body parts. Knowing and using the correct
terminology for body parts is important to aid in communication to trusted adults and
healthcare professionals; being able to talk about body parts that hurt or are otherwise
unwell is essential. Additionally, being able to refer to body parts correctly is important
as it pertains to being able to report inappropriate interactions as related to safety and
abuse prevention.
Understanding and using slang for body parts also has importance; slang is used in
most social interactions and without understanding this terminology the individual
will be unable to participate in the interaction. It also means that if the individual
doesn’t understand the slang and the body part to which it refers, they will not be able
to understand the terminology being used. As such, it is important to understand the
stimulus equivalence of the correct terminology to any slang used in the individual’s
family or social communities.
Finally, an understanding of what type of language to use in what communicative
settings is important to maintain appropriate and effective interactions.
even result in people being put in situations they were not expecting or
understanding. Alternately, only using slang proficiently may result in poor,
disjointed, or even offensive communication to parents, medical pro-
fessionals, or other trusted adults.
When teaching slang, as with any other aspect of sexuality, even the
best-intentioned parents and professionals may not be the best reference
point. It is important to talk directly to the family members to find out if
there are casual or other special names that they use when discussing body
parts. Likewise, adults are, sadly, usually out of touch with the slang being
used by children and teens; ensuring that the slang being taught is the
terminology that is likely to actually be used by the learner is important.
Finally, slang changes over time. Preschool aged children may use words
like “pee pee” to mean “penis,” whereas adolescents may be more likely to
use something common like “dick” or even more silly like “hairy canary”
or “love muscle.” Ensuring that these are revisited and retaught over time
and context changes is important.
Teaching body parts may typically be done using Discrete Trial Teaching.
See Chapter 3 for further description of discrete trial teaching. Additionally,
particular targets pertaining to identifying body parts on oneself should be
taught by a parent or caregiver, not by a therapist of other professional. Being
aware of the secondary skills that are being taught throughout is incredibly
important; having a therapist or other professional in a private space teaching a
label of one’s penis on themselves may teach the learner to label their penis,
but inadvertently may also teach the learner that it is acceptable to be in a
private space with an unfamiliar adult. Using parent coaching strategies
outlined in Chapter 3 can help guide clinicians in ways to work with parents
so that parents can be the ones teaching their children to label their own
genitals. Modeling how to teach other body parts or using a Behavioral Skills
Training technique will help parents understand how to teach more private
body parts effectively. Clinicians must address this with parents/caregivers
though and not assume that parents/caregivers will teach these parts, also
ensuring that both “family” slang and correct terminology is taught.
At all ages, both the scientifically correct terminology and the age-
appropriate slang should be taught. Additionally at older ages, if slang has
changed for targets previously learned, teaching should update to this as
well.
Using as realistic and accurate photos as possible is important for
teaching, as well as multiple exemplars of each body part. Remember that
body parts look different on different people and should be representative
40 Clinician's Guide to Sexuality and Autism
Menstrual care
Abstract
This domain will target skills related to effective menstrual care. Skills in this domain
should be targeted early, as in some cases, tolerating menstrual products may take
some time. Independence should be prioritized and, as such, great individualization
may be required. Adaptations may include teaching to change menstrual products on
a time-based interval as opposed to teaching the discrimination of when a product
should be changed, using period underwear instead of other products, and using
visual supports.
Tracking of cycle
Skill one The individual identifies the onset of her Early
period. adolescence
Skill two The individual tracks her period using a Early
calendar, electronic or other method. adolescence
Skill three The individual identifies the onset of PMS Adolescence
symptoms and how to manage them.
Skill four The individual recognizes and demonstrates Adolescence
understanding of health concerns (pregnancy,
other health issues) related to missed or irregular
periods and can report to the appropriate
person
Teaching Video modeling, parent coaching, DTT
format
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CHAPTER 7
Abstract
This domain covers skills related to reproduction and birth control. An understanding
of reproduction and birth control is important to help protect against Sexually
Transmitted Infections (STIs) and unwanted pregnancy, as well as understanding how
to get pregnant should this be desired. Skills in this area include an understanding of
the process of reproduction, identification and use of different forms of birth control,
and the purchasing and storage of birth control.
Reproductive system
Skill one The individual can identify and label parts School age
of the reproductive system in picture/
diagram
Skill two The individual can describe the Early
reproductive system in terms of sequence of adolescence
events, and function of each component
Teaching DTT
format
Special Skills one and twodthis could take a varying amount of
considerations time depending on the learner. Instruction should begin no
later than the earliest signs of puberty
Birth control
Abstract
Health and hygiene are important as sexuality domain, both for personal safety and for
an individual’s overall dignity and quality of life. From a safety lens, the more inde-
pendent an individual is in self-care, the lower the need will be for any paid assistance.
As such, independence in this domain should be targeted early.
In terms of personal health management, it is important that individuals develop a
sense of autonomy to the greatest extent possible. The private nature of a person’s
sexuality means that it is important for the individual to recognize normal or abnormal
changes in their body or in individual health patterns, and to take the correct steps to
remedy it (even if those steps are only telling a trusted adult).
Hygiene
Skill one The individual can tolerate routine doctor School age
visits including:
o Doctor touching their body
o Doctor measuring height and weight
o Doctor listening to chest
o Doctor looking at eyes, ears, throat
Skill two The individual is tolerant of the following Early
medical procedures: adolescence
o Blood draw
Skill three The individual is tolerant of various medical Early
settings including clinics and hospitals adolescence
Skill four Female: Early
o The individual is tolerant of pap test and adolescence
other gynecological exams
o The individual is tolerant of breast exams
Male:
o The individual is tolerant of exams of the
penis and scrotum
Teaching Parent coaching, DTT, BST, TIP, Cool not Cool
format
Special Tolerance skills may require ongoing assessment teaching
considerations to maintain. For many skills, the frequency of required
demonstration based on medical need may be insufficient
to ensure maintenance of skill. This will vary by learner
and by skill and should be assessed for each individual.
Tolerance may look different for all learners, but is defined
here as: the individual remains in the presence of the
medical professional throughout the procedure, does not
attempt to leave the medical setting throughout the
procedure, and refrains from engaging in any behavior that
interferes with the practitioner’s ability to complete the
procedure.
Health and hygiene 59
Monitors health
Skill one The individual can recognize what their School age
own body parts usually look like and can
report small abnormalitiesdi.e., dirt, insect
bites, small scratches, etc.
Skill two The individual can report feeling unwell, School age
and give specifics regarding body parts that
hurt or feel uncomfortable
Skill three The individual can recognize irregularities Early
in menstrual cycles, and any abnormalities adolescence
in their genitals (i.e., lumps), or discharge
Skill four The individual monitors, makes, and Adolescence
attends regular health check-up
appointments
Skill five The individual (female) conducts regular Adolescence
breast exams
Skill six The individual (male) conducts regular Adolescence
testicular exams
Teaching Parent coaching, DTT, BST, TIP
format
Special Prioritization of independence in these areas may require
considerations the use of tools (i.e., teaching tools for menstruation
trackingdcalendar or app), or adaptation (i.e., attending
doctor appointments for physical check-ups is more
important than making them independently).
60 Clinician's Guide to Sexuality and Autism
Puberty
Abstract
This domain covers skills pertaining to the law. For good reason, laws related to sexual
acts are strict. This domain covers skills relating to awareness of, and obeying laws
related to age of consent, pornography, public sexual acts, and assault. It is important
to note that laws vary by jurisdiction and those teaching them should be aware of the
law in the geographic settings relevant to their learner.
Laws as a victim
Skill one The individual can state the age of consent Adolescence
for engaging in sexual acts, including any
variability across types of sexual act
Skill two The individual can identify if they are in Adolescence
the age of consent
Skill three The individual can describe the types and Adolescence
variations of acts that are included under
consent laws from the perspective of the
victim
Teaching Parent coaching, DTT
format
Special Age of consent varies based on jurisdiction. Additionally, it
considerations is important to teach to various sexual acts, even if the
client is not currently demonstrating interest in particular
acts
Laws as a Perpetrator
Skill one The individual can state the age of consent Adolescence
for engaging in sexual acts, including any
variability across acts
Skill two The individual can identify when familiar Adolescence
people are above the age of consent
Skill three The individual can provide a reasonable Adolescence
description of the types, and variations, of
such acts that are included under consent
laws from the perspective of the
perpetrator
Teaching Parent coaching, DTT
format
Special Age of consent varies based on jurisdiction. Additionally, it
considerations is important to teach to various sexual acts, even if the
client is not currently demonstrating interest in particular
acts
64 Clinician's Guide to Sexuality and Autism
Online activity
Abstract
This domain covers skills related to safety when engaging in online activity. The
prevalence of online activity continues to increase and is obviously not going away
anytime soon. Teaching safe online activity early is important. This section addresses
skills in navigation and safe use of apps and websites, and safe sharing of personal
information (textual and photos). This domain includes skills on safe and legal
streaming and downloading of content online, as well as skills related to unwanted
solicitations from others.
Keywords: Autism; Internet safety; Online activity; Online navigation; Privacy; School
interactions.
Overall goal • The individual can navigate and safely use dating
apps/websites
• The individual can demonstrate safe and legal
streaming and downloading of sexual content
• The individual demonstrates understanding of safe
sharing of personal information including texting and
photo sharing including recognition of solicitation of
sexual imagery and information.
• The individual can recognize when they are being
sent inappropriate sexual solicitations or unwanted
photos and blocks the sender
Teaching Discrete Trial Teaching, Cool vs. Not Cool, Teaching
methodologies Interaction Procedure, and Behavioral Skills Training
Special Online safety includes practice with age and socially
considerations appropriate online activity. It is important to teach these
in consultation with peer groups in regard to what similar
aged peers are actually playing. Additionally, families may
have rules and restrictions around online access which
should be addressed and honored where applicable
Cross-referenced This domain closely aligns with law and social skills.
skills Victimization is common for autistic individuals, and it
is essential that they are educated about self-protection
Privacy
Social interactions
Online navigation
Skill one The individual creates, uses, and safely stores Early
appropriate usernames and passwords for online adolescence
accounts
Skill two The individual independently accesses and Early
uses email adolescence
Skill three The individual proficiently and safely uses Early
age-appropriate social media adolescence
Skill four The individual proficiently and safely uses Early
age-appropriate online games adolescence
Skill five The individual demonstrates an understanding Adolescence
of the various privacy and sharing settings on
each app/site they use
Skill six The individual demonstrates an understanding Adolescence
of navigation within various apps (e.g., swiping
to respond, etc.)
Skill The individual demonstrates an understanding Adolescence
seven of the risks of downloading from various sites
(e.g., costs, virus risk, distribution of personal
information)
Teaching DTT, Cool versus Not Cool
format
CHAPTER 11
Sexual acts
Abstract
This domain covers sexual acts. An understanding of sexual acts and the formal and
casual language used to describe them is important, even if the individual has not
demonstrated interest in the particular act. Understanding vocabulary is important as it
pertains to the ability to give consent, and safety skills. Additionally, sexual acts may be
discussed in nonsexual social situations, observed in TV, movies, and other media, or
otherwise shared with the individual learner. Understanding the terminology and
scope of the acts is a vital component to these situations. Finally, an understanding of
various sexual acts will help inform an individual of their own interest (or disinterest) in
engaging in them, leading to overall satisfaction within their own sexual life. As with
masturbation, these skills should be targeted in consultation with the learner and the
learner’s family to ensure congruence with individual and family values and beliefs.
Keywords: Autism; Consent; Oral sex; Sexual acts; Sexual intercourse; Sexual Slang.
Vocabulary
Skill one The individual can label and describe the School age
following interactions using proper
terminology:
- Hugging
- Kissing on the cheek
- Quick kissing on the lips
- Cuddling
- Holding hands
Skill two The individual can label and describe using School age
slang (if applicable) the following
interactions:
- Hugging
- Kissing on the cheek
- Quick kissing on the lips
- Cuddling
- Holding hands
Skill three The individual can label and describe the School age
following interactions using proper
terminology:
- Kissing with tongue
- Over clothes touching of buttocks,
breasts, genitals
Skill four The individual can label and describe the School age
following interactions (if applicable) using
slang terminology:
- Kissing with tongue
- Over clothes touching of buttocks,
breasts, genitals
Skill five The individual can label and describe the Early
following interactions using proper adolescence
terminology
- Undressing another person
- Under clothes touching of buttocks,
breasts, genitals
- Oral sex acts (to a male)
- Oral sex acts (to a female)
- Vaginal penetration by finger
- Vaginal penetration by penis
- Vaginal penetration by other object (sex
toy)
- Anal penetration by finger
- Anal penetration by penis
- Anal penetration by other object (sex toy)
- Masturbation
(Continued)
Sexual acts 77
Skill six The individual can label and describe the Early
following interactions (if applicable) using adolescence
slang terminology
- Undressing another person
- Under clothes touching of buttocks,
breasts, genitals
- Oral sex acts (to a male)
- Oral sex acts (to a female)
- Vaginal penetration by finger
- Vaginal penetration by penis
- Vaginal penetration by other object (sex
toy)
- Anal penetration by finger
- Anal penetration by penis
- Anal penetration by other object (sex toy)
- Masturbation
Skill seven The individual uses appropriate terminology Adolescence
with appropriate audiences/in appropriate
settings
Teaching Parent coaching, DTT, TIP, BST
format
Special Age and situation-appropriate slang changes and will vary
considerations based on culture and social situations. Make sure that the
informants for slang choices are within the population that
the learner will use the slang (i.e., ask teenagers what
teenagers say, don’t try to guess). Different acts may have
more than one appropriate slang worddteach as many as
currently appropriate.
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CHAPTER 12
Consent
Abstract
Skills in this domain are related to how to provide or obtain consent and assent in a
variety of overt and covert sexual situations. Additionally, this domain covers skills
related to appropriately responding when consent and assent are given, and when
withdrawn. This domain also contains skills related to understanding of breaches of
consent as abuse and appropriate steps. This domain is so important. Demonstration
of, and recognition of, consent and assent in others is a skill that relies both on vocal
communication as well as nonverbal cues, which may be challenging for learners on
the autism spectrum. Teaching these skills early and often is vital.
Chapter 1 outlines some of the risks for people on the autism spectrum
as pertaining to a need sexuality education. Skills related to effectively
giving consent when desired as well as withholding consent when needed
are both incredibly important, and may be particularly challenging for
people on the autism spectrum. Effectively communicating desires is
important, and this requires both recognition of one’s own likes and dis-
likes, as well as effective communication of these. For some people with
ASD, they may never have been allowed to refuse a physical greeting, or
taught how to. If one is going to be able to give consent, they must first be
able to recognize and discuss actions, items, and interactions that they like
and do not like. They must have opportunity to practice giving and
withdrawing consent and assent in various situations, as well as refusing to
give consent at all. Historically, teaching about assent and honoring signs of
assent from individuals with ASD has been inexcusably underemphasized.
Effectively and confidently giving and withdrawing assent is extremely
important in preventing victimization, especially within sexual interactions.
Equally importantly, individuals must be able to recognize both overt
and subtle signs of giving and withdrawal of consent by others. While some
indices of consent and assent are loud, overt, and clear, others are subtle and
rely on interpretation of body language, tone of voice, and other nonverbal
cues. A pull away, a pause before saying “yes,” and a questioning tone in a
vocal agreement can all indicate a withdrawal of assent in an interaction and
must be honored as such. For people on the autism spectrum, such cues,
especially those that are at all nuanced, may be difficult to interpret
correctly, or sometimes to even notice at all. It becomes incredibly
important to teach these overtly and to a high degree of fluency.
Skills in the consent domain are closely related to those in both “abuse
prevention and reporting” and the law. The overlap is intentional as these
skills are of paramount importance for those with ASD.
Skills in the consent domain can be taught using a variety of teaching
methodologies including Discrete Trial Teaching, Cool versus Not Cool,
Teaching Interaction Procedure, Behavioral Skills Training, and Video
Modeling. All teaching strategies are outlined in Chapter 3 and as always
should be selected and individualized based on the learner.
Throughout this chapter, we use the terms “primary sexual experi-
ences” and “early sexual experiences” to denote the types of interactions or
experiences one might have early in relationshipsdholding hands, kisses,
hugs, and cuddles. It is important that the skills listed above apply to these
early experiences as well as those that are more complex. As well it is
Consent 81
Demonstrating consent
(Continued)
84 Clinician's Guide to Sexuality and Autism
Social skills
Abstract
This domain covers social skills that are particularly applicable to sexuality. Social skills
are an integral part of the human experience and as such are complex and may
require specified teaching. This is not an exhaustive list of social skills, rather those that
are especially relevant in the area of sexuality. Social skills are often specific to the
immediate social environment and community and as such these need to be carefully
considered. There is strong overlap between this domain and that of relationships as
well as individual preference.
Social skills are complex and are relevant across all aspects of an in-
dividual’s life. While this domain will only cover those that are directly
relevant to sexuality, there is significant overlap between these and social
skills that apply to other parts of an individual’s life.
The desire for social interaction is variable across people, and sometimes
clinicians make the mistake of waiting for an individual to demonstrate
particular social interest to begin teaching social skills. This is a mistake, as it
discounts the need to have social skills in order to access many of these
social environments. The social skills covered in this domain are necessary
for comfortable, positive sexual relationships.
Social skills 89
Social skills are often highly specific to the immediate social environ-
ment/community. Skills like particular slang used, types and amount of
social media use, places people hang out, social activities peer groups engage
in, etc., tend to vary from community to community. As such, the social
skills targeted to be taught should be those that reflect the community in
which they will be used. Whenever possible, consider using peers to
determine what skills should be taught and in what order.
This domain is closely related to types of relationships and these should
be taught in conjunction with each other. Socials skills are interactive,
meaning what the learner is expected or required to do is often in response
to someone else’s social behavior, which may vary greatly across people.
Teaching loosely and using a lot of examples will help ensure demonstra-
tion of the skills when needed.
Distinguishing between types of interactions as positive (joking, flirting)
and negative (bullying) can sometimes be challenging and should be tar-
geted in this area. As well, social interactions require a careful balance of
both compromise so that friends and partners get to have plans and activities
that they enjoy, as well as standing up for oneself.
There is literature and research available on teaching social skills and
individualization of teaching should be utilized with all learners. Social skills
can be taught using Discrete Trial Teaching, Cool versus Not Cool,
Behavioral Skills Training, Teaching Interaction Procedure, and Video
Modeling. See Chapter 3 for further description of these procedures.
By school age individuals should be learning to:
- The individual can determine between “mean” and “nice” things to say
to other same-age peers
- Determines “nice” and “mean” things same age peers say
- Recognize and describe interactions that do not include themselves (i.e.,
people giving compliments, playful teasing, mean teasing)
- Demonstrate use of compliments playful teasing, and mean teasing in
various situations
- Recognize when directed to them by others compliments [playful
teasing, mean teasing]
- Respond to compliments and playful teasing either reciprocally (giving a
compliment or teasing back) ort in another way that is matched to the
interaction (e.g., saying “thank you” to a compliment)
- Recognize mean teasing as an act of bullying and can respond by alert-
ing a parent or teacher.
- Initiate greetings with others
90 Clinician's Guide to Sexuality and Autism
Type of interactions
(Continued)
Social skills 93
Initiation of interactions
Skill one The individual initiates greetings with others School age
Skill two The individual initiates friendly interactions, School age
questions, or conversations with preferred others
Skill three The individual initiates requests to add someone School age
new on some variety of social media (both in
person and by e-request within the app/system)
Skill four The individual initiates requests to spend time School age
with others outside of their usual social setting
(i.e., hang out outside of school)
Skill five The individual initiates requests to exchange Early
contact information with safe others (phone adolescence
number, email address, etc.)
Skill six The individual plans time with others including Early
location, activity, time, transportation, etc. adolescence
94 Clinician's Guide to Sexuality and Autism
Responding to interactions
Making plans
Communicating preferences
Abstract
This domain covers skills related to sexual abuse prevention and reporting. With the
unfortunate reality that prevalence of abuse of people with autism spectrum disorders
remains disproportionately high, this domain is of the utmost importance. It includes
teaching skills related to recognition of acts that are abusive as well as precursors to
these acts from both the point of view of the recipient of the act, and the perpetrator
of the act. It also includes skills related to evaluating the safety of a situation in advance
of being in the situation. One of the most important skills to teach is a functional
protest, and several ways to teach this are outlined in this domain.
Finally, while avoiding abusive situations is obviously ideal, it is important that in-
dividuals with autism can report unsafe or risky events to a safe person, and accurately
recall the events. Skills that cover these areas are included as well.
Keywords: Autism spectrum; Consent; Protest; Self reporting; Sexual abuse; Sexual
acts.
Overall goals • The individual can recognize acts that are abusive
from the point of view of the recipient of the acts
• The individual can recognize acts that are potential
precursors to abusive acts from the point of view of
the recipient of the acts
• The individual can recognize acts that are abusive
from the point of view of the perpetrator of the acts.
• The individual can recognize acts that are potential
precursors to abusive acts from the point of view of
the perpetrator of the acts
• The individual can describe and demonstrate various
appropriate strategies for evaluating the safety of a
situation in advance of being in the situation
• The individual can functionally protest (protest in a
way that is effective per situation and makes the
listener stop)
• The individual can accurately recall events that have
transpired
• The individual can accurately discriminate events
that pose a safety risk
• The individual can identify a safe person and share
unsafe or risky events that transpired with them
Cross reference Consent, sexual acts, law, preferences
Teaching Discrete Trial Teaching, Cool vs. Not Cool, Teaching
methodologies Ineteraction Procedure, Behavioral Skills Training
Special While much of this is written for vocal-verbal
considerations communicators, many areas can be adapted to PECS,
voice output, or other augmentative users.
Possibly the most terrifying thoughts for parents and caregivers related
to sexuality and their children with autism pertain to sexual abuse. This is
with good reason. As outlined in Chapter 1, individuals on the autism
spectrum are at high risk of victimization, and must be taught skills to help
avoid sexually unsafe situations. This is a completely unacceptable situation,
and one that requires immediate societal attention and change. It is
imperative, however, to also teach skills related to sexual abuse prevention
to those on the autism spectrum.
The first steps in abuse prevention are recognizing acts that are abusive,
and also recognizing potential precursors to abusive acts. While some de-
terminations about abuse classification are easy to discern, others can be
very difficult. For example, sometimes abuse is committed by a trusted
adult. Sometimes the victim in an abusive situation doesn’t feel unsafe and
Sexual abuse prevention and reporting 99
- Select from an array which item was NOT recently (within past 3 min)
shown or manipulated
- Answer questions regarding an even that occurred within that day
including questions about people, location, what happened, etc.
- Describe events by generating information regarding setting, people,
and other information from events that occurred within that day.
- Answer yes/no and “I don’t know” questions about an event they
described
- Recognize by name and description extended family members (cousins,
aunts/uncles)
- Demonstrate appropriate interactions with extended family members
and refrain from them with nonfamily members (i.e., giving hugs) as
desired and where appropriate
- Determine what events are noteworthy or out of the ordinary
throughout their day (i.e., tell their parents they had a fire drill at school
but not that they ate lunch)
- Differentiate between strangers and community helpers.
- Label situations as safe/unsafe when depicted in video and pictures based
on their outcomes (e.g., “the ladder was unsafe. I know because the girls
fell”)
- Label situations as safe/unsafe when depicted in video based on poten-
tial for poor outcome (i.e., “the boy COULD fall out of the tree”)
- Label current or ongoing physical pain and discomfort in themselvesd
body part specific if relevant
- Label behavioral indicators of physical pain and discomfort in others.
By early adolescence individuals should be learning to:
- Recall information about an event, item, or activity that occurred
within the past 48 h
- Answer questions about an event, item, or activity that occurred within
the past 48 h
- Correct another person’s incorrect account of an event, item, or activity
that occurred within the past 48 h.
- Name or recognize a variety of trusted people in their lives.
- Recognize people in various positions of authority throughout their life
and the limits to their authority
- Make fluent in-the-moment decisions and choices about preferred and
neutral activities
- Generate possible precautions that could be put in place to minimize
safety risk
102 Clinician's Guide to Sexuality and Autism
Recall events
Skill one The individual can select from an array an School Age
item recently (within past 3 min) shown or
manipulated
Skill two The individual can select from an array School age
which item was NOT recently (within past
3 min) shown or manipulated
Skill three The individual can answer questions School age
regarding an event that occurred within that
day including questions about people,
location, what happened, etc.
Skill four The individual can describe events by School age
generating information regarding setting,
people, and other information from events
that occurred within that day
Skill five The individual can answer yes/no and “I School age
don’t know” questions about an event they
described
Skill six The individual can recall information about Early
an event, item, or activity that occurred adolescence
within the past 48 h
Skill seven The individual can answer questions about Early
an event, item, or activity that occurred adolescence
within the past 48 h
Skill eight The individual can correct another person’s Early
incorrect account of an event, item, or adolescence
activity that occurred within the past 48 h
Teaching DTT
format
Special Caution needs to be utilized to avoid suggestibility when
considerations teaching recall. As well, attention to saliency of
eventsdincreased saliency or preference within events may
skew objective recall and an aspect of the skill that needs
to be considered while teaching
Sexual abuse prevention and reporting 105
Safety assessment
Skill one The individual can label situations as safe/ School age
unsafe when depicted in video and pictures
based on their outcome (e.g., “the ladder
was unsafe. I know because the girls fell”)
Skill two The individual can label situations as safe/ School age
unsafe when depicted in video and pictures
based on potential for poor outcome (e.g.,
“the boy COULD fall out of the tree”)
Skill three The individual can make fluent in-the- Early
moment decisions and choices about adolescence
preferred and neutral activities
Skill four The individual can generate possible Early
precautions that could be put in place to adolescence
minimize safety risk
Skill five The individual is able to describe the risks Early
and rewards associated with various adolescence
decisions throughout their life
Skill six The individual demonstrates behavior that Early
takes appropriate precautions when entering adolescence
risky situations
Special Assessment of risk is ongoing and changes based on
considerations individual circumstance. The learner should be able to use
problem-solving and decision-making skills as opposed to
learning rote risk assessment.
Sexual abuse prevention and reporting 107
Abuse
Masturbation
Abstract
This domain covers skills related to masturbation. These skills should be targeted with
both male and female learners and should be addressed early. It is much easier to
teach guidelines around masturbation before they are necessary than to address these
skills once masturbation in problematic locations or harmful habits have already
developed. These skills should be targeted in consultation with the learner and the
learner’s family to ensure congruence with family values and beliefs. Care should be
taken to teach guidelines for masturbation with long-term application in mind; a
bathroom may be a private place in one’s home, but is not as private in a public gym
changeroom. As such, consideration to discrimination and generalization needs of the
learner is important.
Privacy
Effective masturbation
Sexual orientation
Abstract
Skills in this area are related to understanding of sexual identity in oneself and others.
Formal and slang vocabulary are included, as well as targets related to under what
conditions one should use each type of vocabulary and how to recognize and avoid
offensive language. This chapter has an additional section on identification of one’s
own sexual identity, and how and when to communicate that to others.
Gender identity
Abstract
Skills in this area are related to an understanding of gender with reference to oneself
and/or others. Formal and slang vocabulary are included in teaching, as well as targets
related to under what conditions one should use each type of vocabulary and how to
recognize and avoid offensive language. An additional section on identification of
one’s own gender identity, and how and when to communicate that to others is also
included.
Keywords: Autism; Binary gender; Gender dysphoria; Gender fluidity; Gender identity;
Sexual orientation.
Individual preferences
Abstract
This domain covers skills related to individual’s preferences in terms of menstrual care
products, masturbation aids, sexual intimacy, dating activities, and birth control. The
identification of preference, as well as the ability to make and communicate choices
related to preferences is greatly important to autonomy, and overall quality of life.
Menstrual care
Birth control
Masturbation aids
Dating activities
Skill one The individual identifies their own likes and School age
dislikes in terms of items and activities (e.g.,
types of movies they like to watch, food
they like)
Skill two The individual is respectful and School age
acknowledges the preferences of others,
even if different than their own
Skill three The individual plans dates that consider Early
their partner’s preferences adolescence
Skill four The individual advocates for their own Early
preferences in making plans with partners adolescence
Skill five The individual makes considerations to Early
safety and overall comfort when planning adolescence
for dating activities (i.e., plans to meet new
people in public places, plans for safe
transportation to dates)
Teaching Parent coaching, DTT, BST, TIP, Cool not Cool
format
Special There is much overlap here with social skills domainsdbe
considerations sure to cross-reference and target both.
134 Clinician's Guide to Sexuality and Autism
Sexual acts
Types of relationships
Abstract
This domain covers skills related to different types of relationships. It is sometimes
challenging to have clear definitions of the type of relationship one finds themselves
in, particularly if they desire to be in a different type of relationship. This domain covers
skills related to understanding different types of relationships and the behaviors
common within them. Skills also include demonstrating understanding of the fluent
and transient nature of relationships, and a recognition and management of rela-
tionship change.
o Peer/classmate
o Trusted adult (known)
o Trust adult (community person)
o Romantic/sexual interest
o Romantic/sexual interestdcasual
o Romantic/sexual interestdserious
o Ex-romantic/sexual partner
o Any additional types of relationships that might be relevant for that
individual’s life/culture
- Demonstrate understanding of fluiditydthat people may not necessarily
be in one type of relationship only (e.g., may move from friend to
romantic interest)
- Demonstrate understanding that people may be in different categories of
relationship at the same time (e.g., classmate and romantic interest)
- Demonstrate an understanding of expected behavior by people in
various types of relationships including:
o Physical interactions
o Types of language used
o Methods of contact
o Personal information sharing
o Other personal interactions (sharing food, loaning money)
- Demonstrate understanding of how people in various relationships act
toward one another. This includes:
o Physical interactions
o Types of language used
o Methods of contact
o Personal information sharing
o Other personal interactions (sharing food, loaning money)
- Demonstrate an understanding of how they should/can act with others
in various types of relationships. This includes:
o Physical interactions
o Types of language used
o Methods of contact
o Personal information sharing
o Other personal interactions (sharing food, loaning money)
138 Clinician's Guide to Sexuality and Autism
Types of relationships
(Continued)
140 Clinician's Guide to Sexuality and Autism
Expectations of relationships
(Continued)
142 Clinician's Guide to Sexuality and Autism
Abstract
This domain covers skills related to problem solving and critical thinking which are
important to short-term decision making (i.e., planning where to go on a date), longer-
term problem solving (i.e., how to deal with conflict with a partner in a respectful way),
and remaining safe (i.e., what should I do if I feel unsafe? Where can I find resources
about abuse?). Skills in this domain will cover teaching in-the-moment problem
solving, skills related to finding and procuring resources, and planning skills.
Skill one The individual collects and manages their School age
own items needed when leaving for an
activity immediately (e.g., “its time to go
swimming, get your things”dthey collect
their bathing suit, towel, etc., or “its cold
outside today”dgets hat and mitts)
Skill two The individual collects and manages own School age
items for future event (e.g., packs overnight
bag)
Skill three The individual finds contact information if School age
needed for social plans (address, phone
number of other people)
Skill four The individual carries, keeps charged, and Early
maintains responsibility for their own phone adolescence
Skill five The individual recognizes and discusses Early
potential safety concerns when making plans adolescence
Skill six The individual plans alternatives or adds Early
safeguards to unsafe situations adolescence
Teaching Parent coaching, DTT, BST, TIP, Cool not Cool
format
Special There is much overlap here with abuse prevention.
considerations
In-the-moment decisions
Resources
149
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CHAPTER 21
Resources
Abstract
This chapter includes resources for various components of teaching about sexuality for
people on the autism spectrum.
Online resources
https://researchautism.org/self-advocates/sex-ed-for-self-advocates/
Includes information related to:
- Puberty
- Consent
- Relationships and dating
- Sexual orientation
- ASD specific
www.kidshealth.org
- Puberty
- Reproduction
www.plannedparenthood.org
- Includes information related to:
o Birth control
o Abortion
o Gender and sexual orientation
o Terminology
o ASD-specific information
o reproduction
Www.urbandictionary.com
- Current and common slang definitions
www.medlineplu.gov
- Puberty
Clinician's Guide to Sexuality and Autism
ISBN 978-0-323-95743-4 © 2024 Elsevier Inc.
https://doi.org/10.1016/B978-0-323-95743-4.00022-9 All rights reserved. 151
152 Clinician's Guide to Sexuality and Autism
- Menstruation
www.aboutkidshealth.ca
- Reproduction
- Puberty
www.npr.org
- Gender identity and terminology
www.genderspectrum.org
- gender identity
www.bpl.org
hotline for LGBTQA þ related concerns
www.youthline.ca
- gender identity
- sexual orientation
www.pflag.org
- gender identity
- sexual orientation
Concluding thoughts
Abstract
This book has taken us through a number of topics relevant to sexuality and sexual
safety for autistic individuals. The goal of this book was to openly discuss and outline
the issues requiring our collective attention, with the hope that the sexual needs of
autistic individuals can be more widely acknowledged and consistently supported.
This book has taken us through a number of topics relevant to sexuality and
sexual safety for autistic individuals. The goal of this book was to openly
discuss and outline the issues requiring our collective attention, with the
hope that the sexual needs of autistic individuals can be more widely
acknowledged and consistently supported.
The state of sexuality education is woeful, for those who are neuro-
typical, and even more alarmingly, for those with disabilities. The topic
itself is controversial, which leads some families, teachers, and other care-
givers to avoid the topics. The world is unforgiving, however, and a lack of
information and education can have dire consequences. Autistic individuals
are more likely than others to have negative sexual experiences, to be
sexually abused, and to be exploited in other ways. It is essential that ed-
ucators and caregivers provide them with the information, skills, and
compassion they need to navigate their sexuality, claim their gender and
sexual identities, and secure their sexual health.
We have reviewed a wide variety of instructional methods that are well-
suited to delivering both content knowledge and social navigation skills.
The effective instructional methods that have been used to teach many
other skills are relevant in this context as well. It may be especially helpful
to examine some of the procedures noted for their utility in teaching
complex aspects of sexual health.
Including content in the areas associated with sexuality is part of a
comprehensive curriculum, and is necessary. We have provided a curricular
159
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Aljehany, M. S., & Bennett, K. D. (2020). A comparison of video prompting to least-to-
most prompting among children with autism and intellectual disability. Journal of Autism
and Developmental Disorders, 50(5), 1714e1724.
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Index
A H
Age ranges, 35 Human sexuality, 3
Applied behavior analysis (ABA), 152 gender identity, 122
Autism spectrum disorder (ASD), 3e4, Hygiene, 57
80
Autistic individuals, 155 I
Individual preferences
B birth control, 131
Behavioral skills training, 28e29 dating activities, 133
Birth control, 51e52, 131 masturbation aids, 132
Body parts menstrual care, 130
bio, 41 sexual acts, 134
slang, 42 Ineffective masturbation, 110
Intellectual Disability (ID), 6
C Internet safety, 66
Consent In-the-moment decisions, 146
and assent recognition, 85
demonstrating, 83e84 L
Conversation skills, teaching, 21e22 Laws
as perpetrator, 63
D related to pornography, 64
Dating activities, 133 related to public acts, 64
Discrete trial teaching, 20e22 as victim, 63
E M
“Early sexual experiences”, 80e81 Masturbation, 111
Effective instructional methods, 155 aids, 132
Effective masturbation, 113 effective, 113
Effective teaching strategies, 11 privacy, 112
Ethics Code for Behavior Analysts, 18 toy and material management and
Extraordinarily complex multidimen- hygiene, 113
sional matrix, 3e4 Menstrual care, 11, 44, 130
management of sanitary
G materials, 46
Gender identity tracking of cycle, 47
disclosure of, 125 Monitors health, 59
recognition of, 124
skills, 122 N
vocabulary related to, 126 Neurodiversity, 4
Goal selection process, 14 Nonvocal communicator, 15
167
168 Index
S V
Safety assessment, 106 Victimization, 5e6
Sanitary materials, management of, 46 Video modeling, 29e30, 72e73
Sex education, 9e10, 13 Violence, 5e6
Sexual abuse, 5e6, 98 Vocabulary
prevention and reporting, 98e99, gender identity, 126
101e102 sexual acts, 76e77
Sexual activities, 128 sexual orientation, 119