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This document contains resources that are provided for the reader’s convenience. The inclusion of these materials
is not intended to reflect its importance, nor is it intended to endorse any views expressed, or products or services
offered. These materials may contain the views and recommendations of various subject matter experts as well as
hypertext links, contact addresses and websites to information created and maintained by other public and private
organizations. The opinions expressed in any of these materials do not necessarily reflect the positions or policies
of the U.S. Departments of Education or Health and Human Services. The U.S. Departments of Education and
Health and Human Services do not control or guarantee the accuracy, relevance, timeliness, or completeness of
any outside information included in these materials.
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PURPOSE
All young children with disabilities i should have access to high-quality inclusive early childhood programs ii
that provide individualized and appropriate support so they can fully participate alongside their peers
without disabilities, meet high expectations, and achieve their full potential. The responsibility to ensure
that young children with disabilities and their families are included in high-quality early childhood
programs is shared by federal, State, and local governments, early childhood systems, early childhood
programs and providers, local educational agencies (LEAs), and schools.
This policy statement from the U.S. Departments of Education (ED) and Health and Human Services
(HHS) (the Departments) builds upon our earlier 2015 policy statement with renewed commitment and
urgency as children with disabilities continue to face significant barriers accessing and participating in
inclusive early childhood programs. This updated joint ED and HHS policy statement for States, iii LEAs,
schools, early intervention (EIS) providers, and early childhood programs advances the Departments’
position by:
• Reiterating the expectation for inclusion iv in high-quality early childhood programs;
• Setting the expectation that inclusion continues as children transition into elementary school;
• Continuing to increase public awareness and understanding of the latest science that supports
inclusion of children with disabilities in early childhood programs from the earliest ages;
• Reinforcing the legal foundations supporting inclusion in early childhood;
• Reiterating and updating recommendations for State and local agencies that implement Individuals
with Disabilities Education Act (IDEA) programs, Head Start, child care, home visiting,
preschools, and public schools for increasing inclusive early learning opportunities for all children;
• Updating models and exemplars of inclusion; and
• Identifying and sharing resources for States, LEAs, EIS providers, early childhood programs,
schools, early childhood personnel, v and families to support high-quality individualized
programming and inclusion of children with disabilities in early childhood programs.
Disability is a natural part of the human experience. Almost 45 million adults have a disability,1 and nearly
one out of six children are estimated to have a developmental delay. 2 A disability should not diminish
i As used in this document, “children with disabilities” refers to infants and toddlers with disabilities and children with disabilities served under the
Individuals with Disabilities Education Act (IDEA) as well as infants and toddlers and children with developmental delays and disabilities who are not
receiving services under the IDEA or who are going through the eligibility process to determine if they are eligible for IDEA services.
ii As used in this document, “early childhood programs” refer to those that provide early care and education to children birth through age five,
including but not limited to childcare centers, family child care, Early Head Start, Head Start, home visiting programs, and public and private
pre-kindergarten in-school and community-based settings.
iii As used in this document, “State” refers to the 50 States, the District of Columbia, the Commonwealth of Puerto Rico, outlying areas and
jurisdictions, and the freely-associated States.
iv A full description of “inclusion in early childhood programs” is on pages 6–7.
v As used in this document, “early childhood personnel” refers to professionals who provide early care and education services to children birth
through age five, including public or private preschool teachers, home and center-based child care providers, Head Start and Early Head Start
teachers, home visitors, early interventionists, early childhood special educators, and related services personnel.
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one’s right to participate in or contribute to society. Though this policy statement focuses on including
young children with disabilities in early childhood programs, it remains the Departments’ shared vision
that people of all abilities be included in all facets of society throughout their lives as it benefits not only
individuals with disabilities but also all individuals in our communities. Building a culture of inclusion for
individuals with disabilities begins at birth in early childhood programs and continues into schools,
communities, and places of employment. Inclusion in early childhood programs can set a trajectory for
inclusion across a lifespan. Consequently, there is a critical need to improve policies and programs to
support early childhood inclusion from birth and as children move into elementary school.
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OVERVIEW
The Departments’ September 2015 Policy Statement on Inclusion of Children with Disabilities in Early
Childhood Programs (policy statement) articulated a vision for increasing access to high-quality inclusive
early childhood programs for young children with disabilities. The Departments have held multiple
listening sessions since then with federal staff, State and local early childhood administrators, early
childhood programs and providers, families, technical assistance (TA) providers, advocates, faculty, and
researchers. During these sessions, participants shared that they used the 2015 policy statement to drive
changes in policies and practices to support the inclusion of young children with disabilities across
multiple levels of the early childhood system. Some examples include:
• Increased awareness of the benefits of early childhood inclusion led many States and local
communities to prioritize inclusion and improve policies and practices that support inclusion in
State and local system level plans.
• Early childhood programs and providers improved their policies, practices, and early learning
environments to support the inclusion of young children with disabilities and their families in their
programs and services.
• Higher education faculty and training and TA providers used the policy statement as an essential
component of trainings and professional development (PD) and TA support. They created new
resources and documents to highlight the policy statement and support implementation of its
recommendations.
• Families used the policy statement as a tool to bring awareness to the importance of inclusion,
and advocate for more inclusive services and practices across early childhood settings. Families
used resources developed from the policy statement to navigate early intervention and special
education processes and find more inclusive options for their young children with disabilities.
Despite these positive actions and the strong legal and research foundation to support inclusive early
learning, young children with disabilities and their families continue to face significant barriers to accessing
and participating in inclusive high-quality early childhood programs. Families of infants and toddlers with
disabilities report that they have difficulty finding and keeping child care, which can cause stress and
impact their employment opportunities. 3,4 Additionally, because of fewer options, children with
disabilities are more likely to enter child care at a later age, to attend for fewer hours, and to have less
access to child care programs than children without disabilities.5 In many systems, programs are not
structured to provide preschool children vi with disabilities access to early childhood special education
services in inclusive settings. In 2021, more than half (55.4 percent) of preschool children with disabilities
received early childhood special education services in settings separate from their peers without
disabilities. 6 Data trends over the past four decades indicate that the percentage of preschool children
with disabilities who receive early childhood special education services in inclusive early childhood
programs has remained largely unchanged. 7 In addition to children with disabilities’ limited access to
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As used in this document, “preschool children” refers to children ages three, four, and five, not yet in kindergarten.
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inclusive preschool settings, 8 there continue to be significant disparities in children’s access to high-quality
services and inclusive early childhood programs based on a child’s disability, support needs, race and
ethnicity, language, and geographic and economic circumstances. 9,10,11,12,13,14 Research and data collection
in early intervention highlight differences in children’s access to screening, evaluation, and services
especially for children of color, those from low-income families, those living in rural communities, and
those whose first language is not English. 15,16,17 Data indicate that young children of color do not have the
same levels of access to inclusive preschool services as their white peers. 18,19 Additionally, there are wide
variations across States in the percentage of children with disabilities served under the IDEA and the
percentage of children with disabilities who receive IDEA services in general early childhood programs.20
The COVID-19 pandemic further limited access to inclusive early childhood programs, with some
communities more significantly impacted. Program and classroom closures in some communities resulted
in fewer inclusive community-based early childhood programs for children with disabilities to attend. In
addition, workforce shortages have negatively affected early intervention and special education services,
with some systems indicating that staffing shortages are impacting the provision of inclusive services in
early childhood settings. These trends make it even more imperative that all levels of the system, from
the federal government to State and local systems and programs, take action to improve participation of
children with disabilities in, and their access to, inclusive early childhood settings.
In order to address the negative impacts of the pandemic and longstanding challenges facing young
children with disabilities, States and local communities must continue to build, enhance, and expand their
inclusive early childhood systems and programs. Doing so highlights the importance of designing systems
and programs to support the learning and development of all children. A high-quality early childhood
program is, in part, one that is inclusive, culturally and linguistically responsive, and provides a sense of
belonging for all children and their families. Nearly one in six or about 17 percent of children have a
developmental disability,21 but only approximately 3.7 percent of infants and toddlers with disabilities 22
and approximately four percent of preschoolers with disabilities are served under the IDEA. 23 Children
with disabilities and their families should be able to access and participate in any early childhood programs
and services available to children without disabilities. The IDEA outlines the responsibility of State lead
agencies and EIS providers and State educational agencies (SEAs) and LEAs to serve children with
disabilities in natural environments (under Part C) and in the least restrictive environment (LRE) (under
Part B) to the maximum extent appropriate, including serving children with disabilities in community-
based settings such as Head Start, Early Head Start, and community-based child care programs, as well as
other public or private early childhood preschool programs. It is important for children with disabilities
and their families to be intentionally included in high-quality early childhood programs, so they too reap
the benefits of high-quality early learning experiences. This means ensuring that policies, funding, and
program practices enable each and every child’s full participation and success in early care and education
systems. Serving children in a manner that engages their families is a cornerstone of early childhood
education, and State and local policies and practices should also take into consideration engaging all
families, including the 4.4 million parents with a disability, 24 to ensure that all families can fully participate
in their children’s early learning experiences.
By describing high-quality inclusive early childhood programs and highlighting how systems and programs
should operate based on research and legal requirements, the Departments make clear through this
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policy statement that all children with disabilities should have access to high-quality inclusive early
childhood programs regardless of type of disability, level of services and supports needed, race and
ethnicity, language, and geographic and economic circumstances.
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The following sections set a basic foundation for expanding children’s access to inclusive opportunities,
which can inform implementation of the State, LEA, EIS provider, early childhood program, and school
level recommendations provided in subsequent sections.
vii As used in this document, culturally and linguistically responsive practices involve recognizing and incorporating experiences, perspectives,
assets, and strengths all children bring into the early childhood setting and ensuring that learning experiences are relevant to all children.
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In addition to making learning and achievement gains, children with disabilities in inclusive early childhood
programs also demonstrate stronger social-emotional skills than their peers in separate settings. 46 These
social benefits are robust and can continue into elementary school and beyond. 47 Studies have found that
children with disabilities in inclusive classrooms demonstrated more social interactions with peers with
and without disabilities, had larger networks of friends, and were more socially competent compared to
children in separate settings. 48,49,50,51,52 Importantly, while studies indicate that inclusive services produce
benefits for children with disabilities, these desired outcomes are achieved only when young children
with disabilities are included several days per week in social and learning opportunities with peers
without disabilities, and specialized instructional strategies are used to meet children’s individual needs.53
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Systems supports such as resources for PD, ongoing coaching and collaboration, and time for
communication and planning are critical to ensure that programs and personnel can adequately meet the
needs of individual children. 54,55 Additionally, the developmental benefits of early childhood inclusion can
be lost if children are placed in separate settings in preschool, kindergarten, and elementary school. 56
Inclusion in early childhood settings followed by inclusion in elementary school can sustain these
developmental gains.
Children without disabilities also benefit from inclusive early childhood programs. Studies indicate that
children without disabilities show positive academic, developmental, social, and attitudinal outcomes
from inclusive experiences.57,58 Children without disabilities demonstrate greater compassion and
empathy and have a more positive perception of children with disabilities when peer interactions are
adequately supported by classroom teachers. 59,60,61 They can also develop a better conceptual
understanding of diversity and disability. 62,63,64,65 Specifically, children without disabilities have been shown
to exhibit more social skills, such as communication and cooperation, and fewer problem behaviors as a
result of peer-mediated interventions in inclusive settings. 66 When programs and teachers have the
capacity to individualize learning and can provide appropriate developmental supports for each child, all
children can benefit, because all children learn best with individualized supports. Children without
disabilities in high-quality inclusive early childhood settings also gain incidental benefits from interactions
with developmental specialists who can identify and address delays or other issues in development that
might otherwise not be identified and provide classroom structures, environmental supports, and
instructional accommodations that can benefit all children.
Similarly, under Part B of the IDEA, special education and related services are to be made available to all
children with disabilities ages three through 21, to the maximum extent appropriate, in the LRE, as
determined by the individualized education program (IEP) team and placement team based on an
viii Under Parts B and C of the IDEA, “all” means all eligible infants, toddlers, and children with disabilities in the State and includes those who are English
learners, immigrants (regardless of their immigration status), homeless, and in foster care, as well as those who reside on Indian reservations.
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individual child’s unique strengths and needs as described in the child’s IEP. The LRE provisions in the
IDEA further require a continuum of placement options be available to best meet the diverse needs of
children with disabilities and presumes that the first placement option considered for each child with a
disability is the regular classroom the child would attend if they did not have a disability. Thus, before a
child with a disability can be placed outside of the regular educational environment, the placement team
must consider the full range of supplementary aids and services that could be provided to facilitate the
child’s placement in the regular early childhood setting. Each LEA must ensure that a free appropriate
public education (FAPE) is provided in the LRE to every child with a disability, ages three through 21, in its
jurisdiction regardless of whether the LEA operates public general early childhood programs.
To provide FAPE in the LRE, the LEA may need to work with community-based early childhood settings
(e.g., Head Start and Early Head Start programs, community-based child care programs, and public or
private general early childhood or preschool programs) to provide special education and related services
in those community-based settings. Additionally, preschool children are often identified as having a
disability while participating in an early childhood program, such as Head Start or a public pre-
kindergarten program. In determining placement options for a child with a disability who already
participates in a regular public early childhood program, including publicly funded community-based
programs operated by a public agency or private entity other than an LEA, Part B of the IDEA presumes
that the first placement option considered is the current public early childhood setting the child is
attending, even if the LEA operates an equally inclusive early childhood program. In addition, the
placement team must consider any potential harmful effects on the child, such as the loss of learning and
impact on a child’s sense of belonging or emotional regulation if the child is moved or transported
between early childhood programs and IDEA services, and on the quality of services that they need
before removing the child from the current regular early childhood setting to a more restrictive setting.
Additionally, IDEA regulations specify that a child with a disability is not to be removed from education in
age-appropriate regular early childhood programs solely because of needed modifications in the general
education curriculum.
ix Religious organizations, and entities controlled by religious organizations (such as schools controlled by religious organizations), are exempt
from the requirements of Title III.
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Head Start Act and the Child Care and Development Block Grant Act
The Head Start Act and the Child Care and Development Block Grant Act (CCDBG) have specific
provisions and requirements that support high-quality inclusive opportunities for children with disabilities.
By statute, Head Start and Early Head Start programs must make at least 10 percent of their enrollment
opportunities available to children with disabilities. 68 The CCDBG requires States to develop strategies
for increasing the supply and quality of child care services for children with disabilities
(42 USC 9858(c)(2)(M)(iii).
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Data show that almost all infants and toddlers with disabilities served under the IDEA receive early
intervention services in the home. 71 IDEA’s Part C natural environments provision should not be
interpreted as only allowing early intervention services to be provided in eligible children’s homes.
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IFSP teams should consider fully the family circumstance and how the child’s outcomes may be met within
the child’s daily routines and activities, including in other settings where infants and toddlers spend time,
such as inclusive child care, early childhood programs, or other community settings where children without
disabilities are present.
Similarly, IDEA’s FAPE and LRE requirements should not be interpreted as prioritizing or allowing IDEA
preschool special education and related services to be delivered only in preschool programs operated in a
public-school building; child care, Head Start, other publicly-funded, and private early childhood settings
can be used to provide FAPE. For example, in 2022, children with disabilities accounted for
13.21 percent of Head Start program enrollment and 12.52 percent of Early Head Start program
enrollment, 72 yet some IEP teams make decisions to remove preschool children with disabilities from
their inclusive early childhood programs and transport them during the day to a separate setting for their
IDEA services, instead of providing services and supports in the child’s regular early childhood program. 73
Multiple transitions can have a detrimental impact on children’s learning. Additionally, some parents
indicate that they are only given the placement option of a separate setting, such as a special education
preschool classroom, and not the regular early childhood program their child would attend if they did not
have a disability, as required by IDEA. 74 By only focusing on delivering IDEA services in programs
operated in the public school, many school and LEA administrators may not be aware of the range of
early childhood programs in their community with whom they could collaborate to support FAPE in the
LRE. 75 A mixed delivery system of public and private high-quality early childhood programs is vital in
increasing the availability of inclusive opportunities for children with disabilities. Such a system relies on a
thorough understanding of IDEA provisions.
Variability in the training and educational opportunities accessible to all providers can have a substantial
impact on program quality.84,85 Knowledge and implementation of evidence-based practices that promote
positive outcomes for children with disabilities tie directly to program quality, and high-quality programs
in turn lead to better outcomes for children with disabilities. 86 Current systems of training, PD, and
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ongoing supports may not be sufficient to ensure all providers have adequate basic knowledge and
competencies in child development, early childhood pedagogy, and developmentally appropriate practice;
and how to individualize instruction, promote social-emotional and language development, manage
challenging behavior, and scaffold and generalize learning across activities and between peers. Training
should also address how to include and support children with disabilities and their families so providers
feel prepared to work with them,87, 88 as well as specifically focus on examining their attitudes and beliefs
on inclusion to understand how they may present barriers to inclusion.
For the early intervention and early childhood special education workforce, the variability in their level
and type of specialized training also impacts access to inclusion. Early childhood special educators’
attitudes and beliefs about the ability of early childhood programs and providers’ ability to provide
appropriate supports to children with disabilities can influence their decisions on inclusion. 89 Creating
inclusive environments requires trust and collaboration between early intervention and early childhood
special education providers and the general early childhood workforce. Early intervention and early
childhood special education providers should have access to training, PD, and system supports so they
can examine how their attitudes and beliefs impact their practice decisions and placement
recommendations. Their training and PD should also support them to collaborate with general early
childhood providers and successfully provide services in inclusive environments based on a firm
understanding of the quality supports and services provided by general early childhood programs such as
preschool, child care, and Head Start programs.
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services. 90,91 Additionally, children of color are less likely to receive early intervention services if found
eligible. Data indicates that young children of color do not have the same levels of access to inclusive
preschool services as their white peers. 92,93 One promising approach to addressing these disparities is for
early intervention and special education systems to increase the diversity of the workforce to reflect the
communities served and provide PD on culturally and linguistically responsive practice. Examples of such
practices include supporting bilingual language development and dual language modes such as spoken and
signed languages. Disaggregated data on demographic characteristics—such as family primary language,
race and ethnicity, or income—can support programs to develop and implement data-informed strategies
to address differences in services among populations of children and families. Early childhood data
systems may require enhancements in order to collect that data.
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A central tenet of an inclusive early childhood system is the commitment to ensure that each child’s
individual needs are supported appropriately, that each family’s goals for their children are considered,
and all have high expectations for each child. This tenet of quality applies to every child, including
dual language learners, immigrants (regardless of documentation status), refugees, migrants, and those
with special health care needs, living in poverty, experiencing homelessness, or in foster care. A culture of
inclusion sets the stage to implement the recommendations provided here and is the first step to
reaching the ultimate vision of providing access to and supporting full participation in high-quality inclusive
early learning opportunities for each and every child.
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The leadership team should develop and implement a strategic plan that reflects the shared vision. The
plan should establish expectations for high-quality inclusive programs, including program standards that
define inclusion; identify solutions to overcome barriers to inclusion in the State; address disparities in
access across communities; and include recommendations for EIS providers, LEAs, schools, and early
childhood programs to implement the shared vision for inclusion. Specifically, the strategic plan should
include how the State will support TA to EIS providers, LEAs, schools, and early childhood programs to
establish partnerships to address challenges that create barriers to inclusion and lead to unequal access to
inclusive opportunities. The strategic plan should also build on existing early childhood efforts in the State,
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including quality improvement efforts and efforts to expand access to high-quality early childhood
programs for all children. In developing the strategic plan, the leadership team should review and
coordinate existing State plans, such as CCDF State Plans, IDEA State Systemic Improvement Plans, x or
plans for specific grant programs (e.g., Preschool Development Grants Birth through Five, Early
Childhood Comprehensive Systems grants) to ensure that early childhood inclusion and the necessary
services and supports for children with disabilities are consistently addressed across plans. The leadership
should also review previous and current early childhood inclusion efforts to ensure that lessons learned
are applied. To support the implementation of the shared vision, the strategic plan should include how the
leadership team will work with local inclusion teams to collect, analyze, and report qualitative and
quantitative data on a routine basis. The plan should include mechanisms for communicating progress in
meeting the shared vision to all sectors and partners, including families, within the State.
x The State Systemic Improvement Plan (SSIP) is a reporting requirement for all States as part of their State Performance Plan/Annual Performance
Report under Part B or Part C of IDEA. The SSIP is a comprehensive multi-year plan developed by each State and is focused on improving results
for children with disabilities by measuring the State’s performance on measurable and rigorous targets in a State-identified area.
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revising, and eliminating policies to ensure that they support the implementation of federal and State
requirements include the following:
• Ensuring that the same early childhood programs, services, and experiences that children without
disabilities have access to within a State or local community enroll children with disabilities.
If State policy defines “preschool” as a minimum number of days and hours per week,
this same standard of preschool should hold for children with disabilities.
The principle of natural proportions xi should guide the design of inclusive early childhood
programs and classrooms—that is, children with disabilities are included in early
childhood programs and classrooms in proportion to their presence in the community.
State-funded early childhood programs should have explicit requirements for recruiting
and enrolling children with disabilities and require collaboration among early childhood
programs and schools to provide services and supports within those early
childhood programs.
A mixed delivery system of public and private early childhood programs, including child
care programs, should be used to ensure that FAPE requirements are met.
• Ensuring that the provision of IDEA services for children with disabilities are in environments and
activities in which all children would typically participate so that children with disabilities can
remain in the early childhood program for the whole day and throughout the week with their
peers without disabilities.
Transitions between service providers—such as schools and community-based early
childhood programs—should be minimized to lessen the burden on families, and
disruptions in service delivery and children’s developmental progress.
Families should not have to choose between remaining in their existing early childhood
program and receiving early intervention or special education services after children are
identified with a disability.
States should also examine their policies and guidance across programs to ensure that those policies
and guidance remove, rather than create, barriers to inclusion, are informed by quality data, respond
to the unique needs of communities and populations of children served across the State, and promote
cross-agency collaboration at the State and local levels. States should also build on existing structures
to establish and sustain alignment and coordination across early learning systems and early childhood
health systems to improve outcomes for children with disabilities.
xi Application of this principle does not anticipate or permit imposing caps or quotas on the number of children with disabilities in a program or
not individualizing services for children with disabilities under the IDEA.
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To support collaboration in serving children with disabilities, Minnesota developed a resource that
provides a cross-walk of individual and shared responsibilities for Head Start and LEAs in regard to
the identification, evaluation, service provision, and transitions for children with disabilities.
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partners by having a dissemination plan in place so that families regularly receive information and data in
family-friendly and accessible formats, and in families’ native langauges on what is included in the strategic plan
and the State’s progress in increasing inclusive opportunities.
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xii
As many programs have the same means-based eligibility requirements, ELE provides States with important avenues to ensure that children
eligible for Medicaid or the Children’s Health Insurance Program have a fast and simplified process for having their eligibility determined or
renewed. ELE permits States to rely on findings, for things like income, household size, or other factors of eligibility from another program
designated as an express lane agency (ELA) to facilitate enrollment in health coverage. ELAs may include Supplemental Nutrition Assistance
Program, School Lunch, Temporary Assistance for Needy Families, Head Start, National School Lunch Program, and Women, Infants, and
Children among others. A State may also use information from state income tax data to identify children in families that might qualify and so
that families do not have to submit income information. Express Lane Eligibility for Medicaid and CHIP Coverage | Medicaid.
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ESEA Title II, Part A funds for supporting effective instruction to expand the competencies of public
school personnel in providing inclusive early childhood education and inviting other local early
childhood personnel to participate in PD. 96
xiii Early Childhood Mental Health Consultation (ECMHC) is a multi-level preventive intervention that teams mental health professionals with
people who work with young children and their families to improve their social-emotional and behavioral health and development.
ECMHC builds the capacity of providers and families to understand the powerful influence of their relationships and interactions on
young children’s development.
xiv The Pyramid Model is a tiered intervention framework for supporting social-emotional and behavioral development. The first tier includes
practices to promote nurturing and responsive caregiving relationships with the child and high-quality supportive environments. The second
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capacity building paired with external specialized support, reduce and prevent expulsion and suspension
in early learning and school settings, reduce reports of teacher-rated challenging behaviors in young
children, and support the inclusion of children with disabilities. 98,99,100
tier includes explicit instruction in social skills and emotional regulation for children who require more systematic and focused instruction. The
third tier is for children with persistent challenging behaviors that are not responsive to interventions at other tiers and involves implementing
a plan of intensive, individualized interventions.
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States can use the indicators of high-quality inclusion for early care and education environments to inform
program standards. State quality rating frameworks should include these program standards and ensure
that the standards are applied at each level of a quality framework, as opposed to allowing standards
specific to the inclusion of children with disabilities to be optional or only applying standards on inclusion
at the highest level of a framework. In rating early childhood programs on standards of high-quality
inclusion, traditional environmental quality assessments may not be sufficient for assessing the quality of
the environment for children with disabilities. 101 States should supplement traditional environmental
assessments with tools that are designed to measure the quality of inclusion. Those tools should always
be part of the core assessment protocol of early childhood settings, not optional elements. States should
also incorporate inclusion standards in their child care licensing standards or in agreements they make
with providers who accept CCDF.
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community. As State lead agencies and SEAs monitor how local programs implement IDEA requirements,
they should ensure that family input is part of the monitoring process by collecting information from
families on how they were informed of their rights under the IDEA, how service decisions and placement
options were discussed with them, and their satisfaction with the process and the support they received
to navigate it. States should also examine disaggregated data to determine whether there are groups
within the State that have less access to services in the natural environment or in the LRE. In addition to
IDEA programs, other State early childhood agencies should have specific monitoring processes in place
to ensure that programs meet federal or State requirements on enrolling and serving children with
disabilities in inclusive settings and Section 504 and the ADA requirements.
The State leadership team should include activities within their strategic plan to build high-quality
inclusive early learning models. Activities could include: publicly recognizing systems that have developed
partnerships across sectors and programs to implement high-quality inclusive programs; using tiered
reimbursement in their quality rating and improvement systems for programs that demonstrate high-
quality inclusion; providing child care subsidy payment differentials per child with a disability included in a
general early childhood program; offering grant and contract opportunities for programs to strategically
plan for inclusion; offering trainings on children with disabilities and inclusion for continuing education
credit; providing tuition assistance for credit bearing courses on inclusion; and offering TA to programs to
implement inclusive practices.
In a comprehensive approach to support the early childhood workforce, the State leadership
team should establish or enhance structures and policies to attract and retain personnel, advance
career pathways, improve compensation, and improve workplace supports.
To bring new personnel into the field and to increase the diversity of the workforce, the State
leadership team should explore coordinated recruitment efforts and innovative models that
promote career advancement and alternative pathways. Grow-your-own programs can bring
racial, ethnic, cultural, and linguistic diversity to early childhood programs and schools by
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recruiting and preparing educators from within communities to become certificated educators
and providers. Other models include practice-based learning such as registered apprenticeships
and mentoring programs that leads toward a credential or degree. States should ensure that
there are pathways for providers across early care and education sectors to attain additional
credentials, degrees, and expertise, such as supporting articulation agreements between degree
programs in early childhood and early childhood special education programs, offering credit for
prior learning and experience, and providing more accessible coursework and academic
supports. Additionally, loan forgiveness and scholarship support can attract new personnel to
enter the early childhood field.
The National Academies of Science report, Transforming the Workforce for Children Birth Through
Eight, recommends that all service providers who work with young children have a common
knowledge and competency base. The strategic plan should include opportunities and supports,
such as paid time-off, for the early care and education workforce to build and enhance their
knowledge of child development and learning, the importance of consistent and nurturing
relationships, and the biological and environmental factors that influence development. Providers
should also have opportunities to attain competencies in engaging children in high-quality
interactions, promoting social-emotional development and mitigating challenging behaviors,
implementing trauma-informed and culturally and linguistically responsive practices, recognizing
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signs that children may need additional assessments and services, and using various tools and
techniques to promote learning. States should foster opportunities for early childhood personnel
to collaborate and consult with one another in inclusive early childhood settings. States should
also ensure that their efforts to build a common base of evidence-based practices—in
partnership with training programs and IHEs—include considerations for children with
disabilities, with specific attention to children who need more intensive service and supports and
children who are typically underserved, including dual language learners, those whose families live
in poverty, and those from racially and ethnically diverse backgrounds.
All early childhood personnel need to be prepared to support children with disabilities and
differentiate interventions, instruction, and supports for children based on their individual needs.
Doing so may require those personnel collaborate and team with professionals with specialized
training as appropriate. States should ensure that personnel standards, credentials, certifications,
and licensure requirements for general early childhood personnel, including directors or
principals, educators and providers, and paraprofessionals or aides, include competencies for
working with children with disabilities and their families in inclusive settings. States should ensure
their personnel standards reflect the standards of national professional organizations and contain
core knowledge and skills needed for working with young children and their families in cross-
sector early childhood systems. They should work with IHEs to align programs of study to the
State personnel standards and to criteria for licensure, certifications, and credentials. Additionally,
States should partner with IHEs—community colleges and 4-year institutions—and other training
entities to ensure that early childhood preparation certificate and degree programs weave
throughout the entire curriculum—including coursework and practicum experience—specific
pedagogy for children with disabilities, childhood assessment and instruction in inclusive settings,
and collaborating and teaming, rather than in a small number of supplemental courses or a
separate program. The State leadership team should encourage interdisciplinary preparation
among education and related services preparation programs and ensure that there are personnel
preparation programs within the State to prepare specialists to work with young children with
disabilities, including infants and toddlers and those with significant service and support needs
such as children with sensory disabilities. Additionally, States should consider supporting dual
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certification preparation programs, which certify graduates to work in both early childhood and
early childhood special education, thereby enhancing the competencies of the early childhood
workforce to individualize instruction and supports for all children in inclusive early
childhood programs.
States should ensure that their policies allow programs led by early childhood educators and
providers to serve children with disabilities. However, since many early childhood educators and
providers do not have specialized disability certifications, they should provide instruction in
consultation with and under the supervision of professionals with specialized training and
certifications—such as occupational therapists, physical therapists, and speech-language
pathologists or other related services providers; teachers of the deaf and hard of hearing;
teachers of the blind and visually impaired; orientation and mobility specialists; behavioral
specialists or early childhood mental health consultants; child care health consultants, early
childhood special educators; and early interventionists. States should consider promoting co-
teaching models where specialists and educators or providers work jointly with children in
inclusive settings, and coaching and mentoring to support educators and providers in developing
their competencies to include children with disabilities. They should also provide guidance and
TA on personnel and staffing policies to assist early childhood programs in navigating personnel
issues on inclusive service delivery, such as requirements for collaborative planning time for early
childhood, early intervention, and early childhood special education personnel, and supervision of
LEA general education personnel providing services in home-based and community settings.
States should ensure that existing early childhood PD and TA efforts always consider and address all
children with disabilities. States should supplement existing PD and TA efforts to ensure that
professionals working with young children can access information and obtain TA in evidence-based
inclusion practices. State leadership teams should identify and coordinate funding streams and resources
for PD and TA efforts and ensure that there are policies and guidance in place to build the capacity of
local early childhood programs to use cross-sector and cross-discipline PD and TA opportunities.
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programs to meet these requirements and the inclusion leadership team should ensure that there are
formal agreements that address these early childhood program requirements. EIS providers and LEAs
should recognize the expertise of early childhood program leaders and seek collaboration to meet shared
goals of inclusive early childhood programs across a range of settings. For example, Head Start and Early
Head Start programs are required to establish collaborative partnerships with community organizations,
which may include individuals and agencies that provide services to children with disabilities. 102 Formal
agreements between Head Start and EIS providers and LEAs are important to ensure that Early Head
Start and Head Start programs can meet their requirements to serve children with disabilities in their
programs and to ensure that children receive Part C and Part B services in Early Head Start and Head
Start programs. Further, the CCDBG requires States to describe how they will coordinate services
provided under CCDF with agencies providing services to children with disabilities in their care. 103
Formal agreements can support the provision of IDEA Part C and Part B services in child care settings,
including consultative support to child care providers to meet the CCDF requirements. Formal
agreements should also include how programs will work together to share resources; braid or layer
funding; collect, share, and analyze data with parent consent (if needed under applicable IDEA privacy
provisions); and support joint PD.
In addition, young children with disabilities and their families often require services that may be delivered
by providers outside of their early childhood programs. Formal collaborations between public and private
community partners—such as health systems, home visiting programs, pediatric medical homes, and
developmental specialists—may improve screening, evaluation, referral systems, and data sharing, and
may help ensure that children who need additional supports receive them as soon as possible. In
developing formal collaborations with community partners, the inclusion leaderships team should build on
and support existing coordinating bodies that strengthen the coordination of health and early learning
systems, including Health Resources and Services Administration’s Early Childhood Comprehensive
Systems Impact grants, and the Substance Abuse and Mental Health Services Administration’s Early
Childhood Mental Health Programs. Formal partnerships may also facilitate the use of wrap-around
services, a philosophy of care that involves providing intensive coordinated community-based services
designed to meet children’s specific social-emotional and behavioral health needs.
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The inclusion leadership team, schools and early childhood programs should also plan for how they will
build and enhance staff’s capacity to engage and build partnerships with families, including providing PD
to teachers and providers on forming strong goal-oriented relationships with families that are linked to
their child’s development, learning, and wellness and respecting and incorporating families’ cultures,
preferences, and priorities into children’s learning. They should also ensure administrative, custodial, and
xv
Title VI of the Civil Rights Act of 1964, including its implementing regulations, requires school districts to ensure meaningful communication
with parents who have limited English proficiency (LEP) in a language they can understand and to adequately notify parents who have LEP of
information about any program, service, or activity of a school district that is called to the attention of parents who are proficient in English.
A description of these obligations is available in Section J of joint guidance released by the U.S. Department of Education and the
U.S. Department of Justice, Dear Colleague Letter: English Learner Students and Limited English Proficient Parents (Jan. 7, 2015),
available at www.ed.gov/ocr/letters/colleague-el-201501.pdf..
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other support staff understand the program’s culture of inclusion and interact with families respectfully
and compassionately.
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Programs and schools should also have structures in place to support teams of early childhood educators,
providers, and specialized service personnel to come together to oversee children’s goals, coordinate
services, connect children and families with additional services as needed, and help families navigate
services for their children. For inclusion to be effective, it is critical to allocate staff time for coordination
and collaboration between the professionals who work with young children. This facilitates
comprehensive coordinated services, enables staff to understand their roles and responsibilities and the
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roles and responsibilities of others to facilitate children’s learning and development. As programs, schools,
and LEAs examine the staffing structures and policies across their systems and communities, they should
identify exemplars of collaborative teaming as models and ensure that there are no disparities across the
community in how staffing structures and policies facilitate access to inclusive opportunities and
collaboration. Additionally, TA can encourage collaboration and problem-solving among personnel from
early childhood programs, schools, and LEA, and can also support early childhood educators and
providers in increasing the quality of early learning experiences and care for all children while supporting
children with disabilities. TA services should be coordinated so that everyone is aware of the goals
developed through the TA, strategies for meeting the goals, and progress towards them.
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The inclusion leadership team should also work across early childhood programs and school systems,
and with IHEs and the State leadership team to ensure that the necessary infrastructures and supports
are in place to provide preparation and ongoing, shared PD for all staff—including LEA administrators,
early childhood program directors, school principals, family child care providers, early childhood
educators and providers, early interventionists, early childhood special educators, related services
providers, other specialized providers, and aides—to support the full participation of children with
disabilities in early childhood programs. The ongoing PD should include opportunities for practice-
based coaching and mentoring, to support the use of evidence-based inclusion practices with fidelity.
Programs with dedicated PD funds such as LEAs, EIS providers, and Head Start programs should
promote shared PD and ensure that PD on evidence-based inclusion practices is open to local early
childhood partners from child care and family child care settings, in addition to their own staff.
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• LEA Administrators, Early Childhood Directors, Principals, and Family Child Care
Network Leaders are critical to high-quality inclusive early childhood programs and schools.
These leaders establish priorities, policies and procedures; set the culture and climate of the
district, school, program or network; oversee staff development and morale; provide continuity
when staff turnover occurs; and take an active role in shifting perceptions of inclusion through
public awareness within the community. Beyond local leadership teams, key system leaders
should establish local learning communities with other local early childhood and school leaders to
share lessons learned, brainstorm challenges, and collaborate on solutions. Leaders should also
establish policies that require all staff to engage in PD specific to adopting a culture of inclusion
and supporting the individualized learning and developmental needs of children with disabilities.
They should also ensure that staff have specific time set aside for in-service training, practice-
based coaching and mentoring, and to engage in reflection, planning, problem-solving, and peer
learning on issues related to inclusion. Leaders should participate in regular PD opportunities
that include:
Putting structures in place to support the implementation of evidence-based
inclusion practices;
Implementing program-wide multi-tiered systems of support, such as the Pyramid
Model, a framework for positive behavior intervention and support;
Establishing a culture that is inclusive of all children and families;
Enacting strong polices for inclusion;
Building collaborative relationships and formal agreements of understanding; and
Budgeting and resource allocation strategies that support inclusion.
• Early Childhood Educators and Providers are essential to ensure that all children are afforded
high-quality early learning experiences and nurturing caregiving and early learning environments.
Supported by specialists and their LEA, school, or program leaders, EIS providers, early
childhood educators and providers should possess the competencies to meet the developmental
and learning needs of all children, including their social-emotional development and mental
health. Through intentional preparation, PD, and coaching and mentoring supports, such as
through consultation provided by infant and early childhood mental health consultants, early
childhood educators and providers can effectively serve all children’s individual needs.
The Early Childhood Education Environment Indicators offer key elements that are necessary for
implementing high-quality inclusive practices in early childhood settings and can guide PD.
Professional development opportunities offered to early childhood staff should always include
how the content applies to and can be individualized for children with disabilities. LEAs, schools,
and early childhood programs should strive to support their workforce and strengthen their
capacity in:
Implementing individualized instructional strategies that build on children’s strengths and
interests to reach developmental and learning goals for all children;
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Understanding universal
design and the principles of
R ESOURCE S POTLIGHT
universal design for learning The UDL Guidelines are a tool used in the
(UDL); xvi implementation of UDL. These guidelines offer a set
Using accessible materials and of concrete suggestions that can be applied to
making adaptations, ensure that all learners can access and participate in
accommodations, and meaningful, challenging learning opportunities.
modifications to instruction Additionally, the IRIS Center has a module on
and within activities—such as implementing the principles of UDL.
center-based play, learning
groups, outdoor play, or snack time—to fully support the participation of all children;
Integrating IFSP and IEP goals into children’s learning across everyday routines and
learning activities;
Implementing Division for Early Childhood (DEC) Recommended Practices, which
provide guidance to practitioners and families about how to promote children’s
development and improve learning outcomes; 106
Promoting language development and language acquisition, including sign language and
native language development for bilingual children;
Promoting social-emotional and behavioral development and mental health, by
promoting behavioral screening and referral, implementing positive behavior supports
and trauma-informed practices facilitating social learning opportunities and peer-
mediated interventions between children with disabilities and their peers, and addressing
challenging behaviors and mental health needs appropriately;
Forming strong, supportive, nurturing relationships with and among children and
their families;
Documenting and sharing developmental progress with families and other service providers;
Conducting ongoing developmental monitoring, universal developmental and behavioral
screenings at recommended ages, and any needed follow-up;
Engaging in collaborative partnerships with early interventionists, early childhood special
educators, related services providers, infant and early childhood mental health
consultants, and other specialized providers;
Coordinating with community-based service providers, including local disability support
agencies, children’s medical homes, health providers, and home visiting programs;
xvi Universal design is the philosophy of developing and designing physical environments to be accessible to the greatest extent possible, to the people
who use them, without the need for adaptation. Universal design for learning is an educational framework based on the learning sciences, which
informs the design and development of flexible instructional practices, materials, and tools that address the variability of all learners.
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Promoting the health and well-being of children, including understanding the needs of
children with special health care needs and providing documentation in medical action plans;
Having a strong understanding of cultural diversity and competencies in culturally and
linguistically responsive practice, and in employing self-reflective strategies to assess
interactions with children and families; and
Supporting successful transitions from infant and toddler programs to preschools, and
from preschools to kindergarten.
• Early Interventionists, Early Childhood Special Educators, and Related Services Personnel
play a unique role in supporting young children’s access to and full participation in inclusive early
childhood programs. Because the racial, ethnic, and linguistic diversity of personnel has the
potential to positively affect all children’s development and learning, inclusion leadership teams
should implement preparation, recruitment, and retention strategies that support a well-trained,
effective, and diverse workforce that provides services to children with disabilities and their
families. Early interventionists, early childhood special educators, related services providers, and
other specialized providers should be given opportunities to build their competencies on how to
co-teach, coach early childhood teachers, work within interdisciplinary teams, and implement
evidence-based inclusion practices across early childhood settings and within everyday routines.
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Share knowledge and expertise with families and early childhood educators and
providers to enhance their confidence, competence, and capacity to support the overall
development, learning, and inclusion of all children;
Co-teach in an early childhood program; and
Build trusting relationships with families and work with them to identify inclusive options
in the community and appropriate services and supports based on the unique needs of
their child.
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This should include measures and procedures for formative assessments that monitor children’s progress
in meeting their developmental and learning goals in inclusive settings. Programs should pair assessments
of children’s progress with environmental assessments of their early childhood classrooms, child care
settings, and home-based programs to ensure there are appropriate accommodations and supports for
children’s access and participation to enable them to reach their goals. To ensure full participation in
activities and routines and improve outcomes for children with disabilities, programs should also examine
their use of curricula, universal design for learning, and the fidelity with which educators and providers
implement evidence-based inclusion practices. In addition to collecting and using data to make decisions
and improve the quality of learning environments for children with disabilities, programs should assess
families’ sense of belonging, engagement and satisfaction with the program and services, and perceptions
of inclusion. Leaders should also examine the data to identify if there are any disparities among children’s
outcomes and families’ experiences based on disability, level of support need, race and ethnicity, language,
or income level. Additionally, programs should collect ongoing data on educators’ and providers’
perceptions of inclusion, their placement decisions within IFSP and IEP meetings, feelings of competence
and confidence in including children with disabilities and their families, and their satisfaction with the
support they receive from administrators. Programs can use results of all assessments to guide TA and
PD efforts to further enhance inclusion practices.
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10. Support the Transition into the Early Elementary School Grades
A smooth and successful transition to
kindergarten relates directly to children’s R ESOURCE S POTLIGHT
academic and social success in the early
The Head Start Early Childhood Knowledge and
elementary school grades. The inclusion
Learning Center has a number of resources that
leadership team, early childhood programs,
provide practical strategies that educators can
schools, and the LEA should partner to
implement during the key components of the
develop a community transition plan to
transition process. In addition, the Early Childhood
support seamless transitions from early
Technical Assistance Center has a practice brief on
childhood programs and services to the early
supporting the transition of children with disabilities
elementary school grades for children with
into kindergarten.
disabilities. A commitment to inclusion across
all systems should serve as the foundation of
the transition plan. Continuity of services and supports for children with disabilities can only be achieved
when families, leaders, and educators across settings work together to share information, create
alignment between systems, and develop shared policies, procedures, and practices. The inclusion
leadership team should support the development of formal agreements between early childhood
programs, schools, and LEAs. These agreements should include how the systems and programs will
engage in joint evidence-based transition practices; promote planning time between early childhood
educators and kindergarten teachers; share information on the child’s strengths, and the
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accommodations, special education and related services needed; share child data and records, including
IEPs; and engage in joint PD to improve transitions. The transition plan should also identify how systems
and programs will support families in understanding their rights and how to prepare for their child’s
transition, and how they will support families' adjustment once their children enter kindergarten. LEAs
should have procedures in place for IEP teams to support children’s transition into inclusive kindergarten
environments. These procedures should include how to plan for transition in the IEP; a decision-making
framework on whether IEP teams will develop and implement a single IEP that will transition with the
child into kindergarten or develop a preschool IEP and later assemble the school-age IEP team to develop
a subsequent school-age IEP for the child’s kindergarten year; and how to ensure that special education
and related services are not interrupted in the preschool to kindergarten transition.
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CONCLUSION
Equal opportunity is one of America’s most cherished ideals. Being fully included as a member of society
is the first step to equal opportunities throughout life and is every person’s right—a right supported by
our laws. As the country continues to move forward on the critical task of expanding access to high-
quality early childhood programs for all young children, it is imperative that children with disabilities be
included at the onset of each of these efforts so they can have equal opportunities to benefit fully from
these experiences. Inclusion supports children with disabilities in reaching their full potential. By building
the foundations for learning needed to succeed in school, inclusion helps children with disabilities be as
productive as possible as adults, increasing their employment and earnings, and lead healthier lives.
We must strengthen our early childhood system and address barriers to inclusion of children with
disabilities in order to achieve the vision that all young children with disabilities have access to high-quality
inclusive early childhood programs that provide individualized and appropriate support so they can fully
participate alongside their peers without disabilities, meet high expectations, and achieve their full
potential. We must have shared responsibility and commitment and robust collaboration among all levels
of the system to achieve this vision. All early childhood programs and services, including public and
private preschool, center, and family-based child care, Head Start, home visiting and IDEA programs—in
partnership with public education systems, State CCDF and other State-level early childhood program
leaders, families, and communities—play an important role in building a nationwide culture of inclusion
for all children with disabilities and their families. By striving toward this vision and implementing these
recommendations, we can move forward as a country in honoring the rights of all our youngest children
and living up to the American ideal of equal opportunity for all.
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U.S. Department of Education, Dear Colleague Letter on Implementation of IDEA Discipline Provisions
and Questions and Answers: Addressing the Needs of Children with Disabilities and IDEA’s Discipline
Provisions (Jul. 19, 2022)
This Dear Colleague Letter (DCL) and Q&A addresses disparities in the use
of discipline for children with disabilities and the implementation of IDEA’s
discipline provisions. This guidance supports SEAs’ and LEAs' efforts to fulfill
their obligations to appropriately meet the needs of children with
disabilities.
U.S. Department of Education, Supporting Students and Avoiding the Discriminatory Use of Discipline
under Section 504 and accompanying Fact Sheet (Jul. 19, 2022)
This guidance and accompanying fact sheet describes schools’ responsibilities under
Section 504 to ensure nondiscrimination against students based on disability when
imposing student discipline. Specifically, the guidance explains how compliance with
Section 504’s requirement to provide a free appropriate public education to students with disabilities can
assist schools in effectively supporting and responding to behavior that is based on a student’s disability
and that could lead to student discipline.
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U.S. Department of Education, Updated Dear Colleague Letter on Preschool Least Restrictive
Environments (Jan. 9, 2017)
This DCL reaffirms the Department’s position that all young children with
disabilities should have access to inclusive high-quality early childhood
programs where they are provided with individualized and appropriate
supports to enable them to meet high expectations. The DCL reviews the variety of preschool placement
options in which a FAPE could be provided and provides updated guidance on LRE.
U.S. Department of Education, OSEP Memorandum 16-07 Multi-Tier System of Supports and Preschool
Services (Apr. 29, 2016)
This memorandum affirms that a Response to Intervention process cannot be used
to delay or deny an evaluation for preschool special education services under
the IDEA.
U.S. Department of Education, Non-Regulatory Guidance Early Learning in the Every Student Succeeds
Act: Expanding Opportunities to Support our Youngest Learners (October 2016)
This guidance provides SEAs and LEAs with information to assist them in meeting their
obligations under the Elementary and Secondary Education Act (ESEA). It outlines how ESEA
can support early childhood education, including supporting young children with disabilities.
U.S. Department of Education and U.S. Department of Health and Human Services, Dear Colleague
Letter on IDEA Services in Head Start (Oct. 2, 2022).
This DCL affirms that State and local educational agencies and Head Start
programs have responsibilities for implementing IDEA to ensure that
children with disabilities enrolled in Head Start programs receive a FAPE in
the LRE.
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U.S. Department of Education and U.S. Department of Health and Human Services,
Dear Colleague Letter on Social Emotional Development and Mental Health (June 14, 2022)
This DCL provides recommendations to State, territorial, tribal, and local
policymakers and administrators of systems, agencies, and programs
responsible for young children’s health and well-being, social-emotional
development, and early learning.
U.S. Department of Health and Human Services, Delivering Service in School-Based Settings:
A Comprehensive Guide to Medicaid Services and Administrative Claiming (May 18, 2023)
This guidance details new flexibilities and consolidates existing guidance to
improve the delivery of covered Medicaid and Children’s Health Insurance
Program services to enrolled students in school-based settings. In addition
to the guidance, there is an informational bulletin.
Department of Justice
U.S. Department of Justice, Commonly Asked Questions about Child Care Centers and the ADA
(Feb. 28, 2020).
This document provides answers to common questions about how the
Americans with Disabilities Act applies to child care centers.
U.S. Department of Education and U.S. Department of Justice, Dear Colleague Letter on
English Learner Students and Limited English Proficient Parents (Jan. 7, 2015)
This joint guidance is designed to assist SEAs, school districts, and all public
schools in meeting their legal obligations to ensure that English Learners can
participate meaningfully and equally in educational programs and services.
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P O L I C Y S TAT E M E N T O N I N C L U S I O N O F C H I L D R E N W I T H D I S A B I L I T I E S I N E A R LY C H I L D H O O D P R O G R A M S
Department of Education
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IRIS Center
The IRIS Center develops and disseminates online resources about evidence-based
instructional and behavioral practices to support the education of all children, particularly
those with disabilities. Resources are designed for faculty, PD providers, or independent
learners and describe evidence-based instructional and intervention practices. Resources include
instructional modules on a variety of topics, including inclusive early childhood programs, inclusive school
environments, and accommodations.
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TIES Center
TIES is a national technical assistance center on inclusive practices and policies that
supports the movement of students with disabilities from less inclusive to more
inclusive environments. Resources include learning modules, tip sheets, and planning
tools, including an inclusive education road map.
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P O L I C Y S TAT E M E N T O N I N C L U S I O N O F C H I L D R E N W I T H D I S A B I L I T I E S I N E A R LY C H I L D H O O D P R O G R A M S
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P O L I C Y S TAT E M E N T O N I N C L U S I O N O F C H I L D R E N W I T H D I S A B I L I T I E S I N E A R LY C H I L D H O O D P R O G R A M S
National Center for a System of Services for Children and Youth with Special Health Care Needs
The National Center works to advance and strengthen the system of services for
CYSHCN, their families and caregivers at the community, State, and national levels.
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P O L I C Y S TAT E M E N T O N I N C L U S I O N O F C H I L D R E N W I T H D I S A B I L I T I E S I N E A R LY C H I L D H O O D P R O G R A M S
National Resource Center for Health and Safety in Child Care and Early Education (NRC)
The NRC maintains a database of national health and safety standards for early care
and education settings (CFOC), including Caring for Our Children with Special Health
Care Needs, and standards related to inclusion, medication administration, health
coordination, and care-plans.
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P O L I C Y S TAT E M E N T O N I N C L U S I O N O F C H I L D R E N W I T H D I S A B I L I T I E S I N E A R LY C H I L D H O O D P R O G R A M S
National Technical Assistance Center for Preschool Development Grants Birth to Five (PDG B-5 TA)
The PDG B-5 TA supports States, territories, and Tribes in building, enhancing, and
expanding birth through 5 mixed delivery systems and high-quality B-5 programs and
services. The Center provides technical assistance through a variety of formats
including a national convening, peer learning opportunities, workshops, webinars, toolkits, resource
documents and individual consultations. The Center has a webpage that houses resources on
Including Children with Special Needs.
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P O L I C Y S TAT E M E N T O N I N C L U S I O N O F C H I L D R E N W I T H D I S A B I L I T I E S I N E A R LY C H I L D H O O D P R O G R A M S
Center of Excellence for Infant & Early Childhood Mental Health Consultation (IECMHC)
IECMHC provides technical assistance to programs, communities, States, territories,
and tribal communities, and PD to individual mental health consultants to increase
access to high-quality mental health consultation throughout the country. Resources
and technical assistance are available for mental health consultants, program managers, and policymakers.
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Easter Seals
Easter Seals provides services, education, outreach, and advocacy so that people living with
disabilities can live, learn, work, and play in our communities. Easter Seals ABCs of Choosing
Child Care is a list of questions to help families research child care facilities. Easter Seals also
has a free, confidential online screening tool: Ages and Stages Questionnaire, Third Edition (ASQ-3) This
screening tool helps families guide and keep track of their children’s growth and development during the
first five years.
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Introduction
This booklet is for parents, caregivers,
and representatives of children younger
than age 18 who have disabilities
that may make them eligible for
Supplemental Security Income (SSI)
payments. It is also for adults with
disabilities since childhood (prior to
age 22) who might be entitled to Social
Security Disability Insurance (SSDI)
benefits. We call this SSDI benefit a
“child’s” benefit because it’s paid on a
parent’s Social Security earnings record.
This booklet will help you decide if you,
your child, or a child you know may be
eligible for SSI or SSDI.
1
SSI rules about income
and resources
We consider a child’s income and
resources when deciding if they are
eligible for SSI. We also consider the
income and resources of family members
living in the child’s household. These
rules apply if your child lives at home.
They also apply if your child is away at
school but returns home from time to
time and is subject to your control.
Your child’s income and resources, or the
income and resources of family members
living in the child’s household, may
exceed the amount allowed. If so, we
will deny the child’s application for SSI
payments.
We limit the monthly SSI payment to $30
when children are in a medical facility
and health insurance pays for their care.
SSI rules about disability
Your child must meet all the following
disability requirements to be considered
medically eligible for SSI:
• The child, if not blind, must not be
working or earning more than $1,550
a month in 2024. The child, if blind,
must not be working or earning more
than $2,590. This amount usually
changes every year.
• The child must have a medical
condition or a combination of
conditions, that results in “marked and
severe functional limitations.” This
2
means that the condition(s) must very
seriously limit the child’s activities.
• The child’s condition(s) must have been
disabling or be expected to be disabling
for at least 12 months; or the condition(s)
must be expected to result in death.
Providing information about your
child’s condition
When you apply for SSI payments for
your child based on a disability, we will
ask you for detailed information about
the child’s medical condition. We will
ask about how it affects the child’s
ability to perform daily activities. We will
also ask you to give permission to the
doctors, teachers, therapists, and other
professionals who have information
about your child’s condition to send the
information to us.
Please provide any of your child’s
medical or school records that you have.
This will help speed up the decision-
making process.
What happens next?
We send all the information you give us
to the Disability Determination Services
(DDS) office in your state. Doctors and
other trained staff in that state agency will
review the information. They will request
your child’s medical and school records
and any other information needed to
decide if your child meets our criteria
for disability.
3
The state agency may not be able to
make a disability determination using
only the medical information, school
records, and other facts they have. If so,
they may ask you to take your child for a
medical examination or test. We will pay
for the exam or test.
We may make immediate SSI
payments to your child
The state agency may take 6 to 8
months to decide if your child meets our
criteria for disability. For some medical
conditions, however, we make SSI
payments right away, for up to 6 months,
while the state agency decides if your
child meets the criteria for immediate
payment.
Some of the conditions include:
• Total blindness.
• Total deafness.
• Cerebral palsy.
• Down syndrome.
• Muscular dystrophy.
• Severe intellectual disability (child age
4 or older).
• Symptomatic HIV infection.
• Birth weight below 2 pounds, 10
ounces — We evaluate low birth
weight in infants from birth to
attainment of age 1 and failure to
thrive in infants and toddlers from
birth to attainment of age 3. We
use the infant’s birth weight as
documented by an original or certified
4
copy of the infant’s birth certificate
or by a medical record signed by
a physician.
Your child may get SSI payments right
away. If the state agency ultimately
decides that your child’s disability is not
severe enough for SSI, you won’t have
to pay back the SSI payments that your
child received.
SSI disability reviews
After your child starts receiving SSI, the
law requires that we review their medical
condition from time to time to verify that
their disability still meets our criteria.
We must do this review at each of the
following times:
• At least every 3 years for children
younger than age 18 whose
conditions are expected to improve or
for which improvement is possible.
• By age 1 for babies who are getting
SSI payments because of their low
birth weight. If we determine their
medical condition isn’t expected to
improve by their 1st birthday, we may
schedule the review for a later date.
We may perform a disability review even
if your child’s condition isn’t expected
to improve. When we do a review, you
must present evidence that your child’s
disability still severely limits their daily
activities. You must also demonstrate
that your child has been receiving
treatment that’s considered medically
necessary for their medical condition.
5
What happens when your child
turns age 18
In the SSI program, a child becomes an
adult at age 18. We use different medical
and non-medical rules when deciding if
an adult can get SSI disability payments.
For example, we don’t count the income
and resources of family members,
except of a spouse, when deciding
whether an adult meets the financial
limits for SSI. We count only the adult’s
and spouse’s income and resources. We
also use the disability rules for adults
when deciding whether an adult has a
disability.
• If your child is already receiving SSI
payments, we must review the child’s
medical condition when they turn age
18. We usually do this review during
the 1-year period that begins on your
child’s 18th birthday. We will use the
adult disability rules to decide whether
your 18-year-old is eligible for SSI.
• If your child wasn’t eligible for SSI
before their 18th birthday because
you and your spouse had too much
income or too many resources,
they may become eligible for SSI at
age 18.
For more information, read Supplemental
Security Income (SSI) (Publication
No. 05-11000).
6
Social Security Disability
Insurance benefits for adults
with disabilities since childhood
The SSDI program pays benefits to
adults who have a disability that began
before they became 22-years-old. We
consider this SSDI benefit a “child’s”
benefit because it is paid on a parent’s
Social Security earnings record.
For an adult with a disability to become
entitled to this “child’s” benefit, one of
their parents must:
• Be receiving Social Security
retirement or disability benefits.
• Have died and had worked to earn
enough to be eligible for Social
Security benefits.
Children who were receiving benefits
as a minor child on a parent’s Social
Security record may be eligible to
continue receiving benefits on that
parent’s record upon reaching age 18, if
they are determined to have a disability.
We make the disability determination
using the disability rules for adults.
SSDI Disabled Adult Child (DAC)
benefits continue as long as they have
a disability. Marriage of the DAC may
affect eligibility for this benefit. Your
child doesn’t need to have worked to get
these benefits.
7
How we determine if your
child over age 18 is entitled to
SSDI benefits
If your child is age 18 or older, we will
evaluate their disability in the same
way we would determine disability for
any adult. We send the application
to the DDS in your state that makes
the disability determination for us.
For detailed information about how
we determine disability for adults,
read Disability Benefits (Publication
No. 05-10029).
8
• The Social Security number of
the parent receiving retirement or
disability benefits, or the deceased
parent on whose record the SSDI
claim is being filed.
• The child’s Social Security number
and birth certificate.
You can help us make a determination by
doing the following:
• Tell us as much as you can about
your child’s medical condition(s).
• Give us the dates of visits to doctors
or hospitals, including the patient
account numbers for any doctors
or hospitals. Also include any other
information that will help us get your
child’s medical records.
• Provide us with copies of any medical
reports or information you have in
your possession.
NOTE: You don’t need to request
information from your child’s doctors.
We will contact them directly for reports
or information that we need to make a
decision about your child’s disability.
If your child is younger than age 18 and
applying for SSI, you must provide records
that show your income and resources.
You must also provide information on
the income and resources of your child
and others in the household. We also
will ask you to describe how your child’s
condition affects their ability to perform
daily activities. In addition, we will ask for
the names of teachers and any school
9
records, day care providers, and family
members who can provide information
about how your child functions.
In many communities, special
arrangements have been made with
medical providers, social service
agencies, and schools to help us get
the evidence we need to process your
child’s claim. Your cooperation in getting
records and other information, however,
will help us finish our job more quickly.
Employment support
programs for young people
with disabilities
We have many ways to encourage
young people who are receiving SSI
payments or SSDI benefits and want to
go to work.
Under SSI:
• When we figure your child’s monthly
SSI payment, we don’t count most
of your child’s income. If your child is
younger than age 22 and is a student
who regularly attends school, we
exclude even more of their earnings
each month. In 2024, students
younger than age 22 may exclude
$2,290 of their monthly earnings,
with an annual limit of $9,230, when
calculating their income for SSI.
These limits may increase each year.
• With a Plan to Achieve Self-Support
(PASS), a child who is age 15 or older
can save some income and resources
to pay for education and other things
10
needed to work. We don’t count the
saved income and resources when
we figure the amount of your child’s
payment. Read more about PASS at
www.ssa.gov/disabilityresearch/wi/
pass.htm.
• Because of a medical condition(s),
your child may need certain items
and services to work, such as a
wheelchair or a personal assistant.
When figuring your child’s SSI
payment, we won’t count some or all
the amounts paid for these items and
services in your child’s earnings.
• A child older than age 15 may get
help with rehabilitation and training.
• Medicaid coverage will continue
even if your child’s earnings are
high enough to stop the monthly SSI
payment as long as the earnings are
under a certain amount.
Under SSDI:
• An adult diagnosed with a disability
before age 22 can get the same
help with work expenses explained
above for a child receiving SSI. They
can also get help with rehabilitation
and training.
• Benefit payments may continue as
long as your child is not engaging
in substantial work. For 2024, we
consider your child to be doing
substantial work if their monthly
earnings are over $1,550 for non-blind
beneficiaries ($2,590 if they are blind).
11
You can get more information
about these programs by reading
www.ssa.gov/redbook or by calling us
toll-free at 1-800-772-1213.
12
Children’s Health
Insurance Program
The Children’s Health Insurance
Program enables states to provide
health insurance to children from
working families with incomes too high
for Medicaid, but too low to afford private
health insurance. The program provides
coverage for prescription drugs, vision,
hearing, and mental health services,
and is available in all 50 states and the
District of Columbia. Your state Medicaid
agency can provide more information
about this program or you can get more
information about coverage for your
children at www.insurekidsnow.gov or
by calling 1-877-543-7669.
13
Even if your child doesn’t get SSI, one of
these programs may be able to help you.
Local health departments, social service
offices, or hospitals should be able to
help you contact your local Children with
Special Health Care Needs program.
Contacting Us
The most convenient way to do business
with us is to visit www.ssa.gov to
get information and use our online
services. There are several things you
can do online: apply for benefits; start
or complete your request for an original
or replacement Social Security card;
get useful information; find publications;
and get answers to frequently asked
questions.
When you open a personal
my Social Security account, you have
more capabilities. You can review
your Social Security Statement, verify
your earnings, and get estimates of
future benefits. You can also print
a benefit verification letter, change
your direct deposit information (Social
Security beneficiaries only), and get a
replacement SSA-1099/1042S. If you
live outside the United States, visit
www.ssa.gov/foreign to access our
online services.
If you don’t have access to the internet,
we offer many automated services by
telephone, 24 hours a day, 7 days a
week, so you may not need to speak
with a representative.
14
If you need to speak with someone, call
us toll-free at 1-800-772-1213 or at our
TTY number, 1-800-325-0778, if you’re
deaf or hard of hearing. A member of
our staff can answer your call from 8
a.m. to 7 p.m., Monday through Friday.
We provide free interpreter services
upon request. For quicker access to a
representative, try calling early in the
day (between 8 a.m. and 10 a.m. local
time) or later in the day. We are less
busy later in the week (Wednesday to
Friday) and later in the month.
15
Introduction
This booklet explains some of your rights and
responsibilities when you receive Social Security Disability
Insurance (SSDI) benefits.
We suggest you take time now to read this booklet,
and then put it in a safe place so you can refer to it in
the future.
If you also receive Supplemental Security Income (SSI)
payments, read What You Need to Know When You
Get Supplemental Security Income (SSI) (Publication
No. 05-11011).
1
from serious accidents and illnesses. We’ll review
your case periodically to make sure you still have a
qualifying disability.
You’re responsible for telling us if any of the following occur:
• Your ability to work changes.
• You return to work.
• Your medical condition improves.
NOTE: Other changes you need to report to us are
described in the “What you must report to us” section.
3
To be safe, you should cash or deposit your check as
soon as possible after you receive it. You shouldn’t sign
your check until you are at the place where you’ll cash it.
If you sign the check ahead of time and lose it, the person
who finds it could cash it.
A government check must be cashed within 12 months after
the date of the check or it will be voided. After a year, if you’re
still entitled to the payment, we’ll replace the voided check.
Returning benefits not due
If you receive a check that you know isn’t due, take it to
any Social Security office or return it to the U.S. Treasury
Department at the address on the check envelope. You
should write VOID on the front of the check and enclose
a note telling why you’re sending the check back. If you
have direct deposit and receive a payment you should not
have gotten, call or visit your local Social Security office.
We’ll tell you how you can return it.
If you knowingly accept payments that aren’t due to you,
you may face criminal charges.
Paying taxes on your benefits
Some people who get Social Security benefits have to pay
taxes on their benefits. About one-third of our current
beneficiaries pay taxes on their benefits. You’ll be
affected only if you have substantial income in addition to
your Social Security benefits.
• If you file a federal individual income tax return and your
income is more than $25,000, you have to pay taxes.
• If you file a joint return, you may have to pay taxes if
you and your spouse have a combined income that is
more than $32,000.
• If you’re married and file a separate return, you’ll
probably pay taxes on your benefits.
For more information, contact the Internal Revenue Service.
4
How we will contact you
Generally, we use the mail or call you on the phone
when we want to contact you, but sometimes a Social
Security representative may come to your home. Our
representative will show you their identification before
talking about your benefits. For your protection, call your
local Social Security office to ask if someone was sent to
see you before you let the representative into your home.
A special note for people who are blind
You can choose to receive notices from us in one of the
following ways. Just let us know which you prefer.
• Standard print notice by first-class mail.
• Standard print notice by certified mail.
• Standard print notice by first-class mail and a follow-up
telephone call.
• Braille notice and a standard print notice by
first-class mail.
• Microsoft Word file on a data compact disc (CD) and a
standard print notice by first-class mail.
• Audio CD and a standard print notice by first-class mail.
• Large print (18-point size) notice and a standard print
notice by first-class mail.
To select one of these options, please contact us using
one of the following methods:
• Visit our website at www.ssa.gov/notices, and follow
the steps provided.
• Call us toll-free at 1-800-772-1213. If you are deaf
or hard of hearing, you may call our TTY number at
1-800-325-0778.
• Write or visit your local Social Security office.
5
If you’d like to receive notices in another way, please call
us at 1-800-772-1213, or visit your local Social Security
office so we can begin processing your request. If we’re
unable to approve your request, we’ll send the reason in
writing to you and tell you how to appeal the decision.
If you have a question about a Social Security notice,
you may call us toll-free at 1-800-772-1213 to ask for the
notice to be read or explained to you.
Cost-of-living adjustments
Each January, your benefits will increase automatically
if the cost of living has gone up. For example, if the cost
of living has increased by 2%, your benefits also will
increase by 2%. If you receive your benefits by direct
deposit, we’ll notify you in advance of your new benefit
amount. If you receive your benefits by check, we’ll
include a notice explaining the cost-of-living adjustment
with your check.
When you reach full retirement age
If you’re receiving SSDI benefits, your disability benefits
automatically convert to retirement benefits, but the
amount remains the same.
If you also receive a reduced surviving spouse benefit,
be sure to contact us when you reach full retirement age,
so that we can make any necessary adjustment in your
benefits.
NOTE: For more information about full retirement age,
read Retirement Benefits (Publication No. 05-10035).
6
Other benefits you may be able to get
SSI
If you have limited income and resources, you may be
able to get SSI. SSI is a federal program that provides
monthly payments to people age 65 or older and to
people who are blind or have a disability. If you get
SSI, you also may be able to get other benefits, such
as Medicaid and the Supplemental Nutrition Assistance
Program (SNAP).
For more information about SSI, read Supplemental
Security Income (SSI) (Publication No. 05-11000).
A word about Medicare
After you receive disability benefits for 24 months, you’ll
be eligible for Medicare. You will get information about
Medicare several months before your coverage starts.
If you have permanent kidney failure requiring regular
dialysis or a transplant or you have amyotrophic lateral
sclerosis (ALS), you may qualify for Medicare almost
immediately.
Help for low-income Medicare beneficiaries
If you get Medicare and have low income and few
resources, your state may pay your Medicare premiums
and, in some cases, other “out-of-pocket” medical
expenses. These expenses may include deductibles and
coinsurance. Only your state can decide if you qualify. To
find out if you do, contact your state or local welfare office
or Medicaid agency. Also, more information is available
from the Centers for Medicare & Medicaid Services by
calling the Medicare, toll-free number, 1-800-MEDICARE
(1-800-633-4227). If you’re deaf or hard of hearing, call
TTY 1-877-486-2048.
7
Supplemental Nutrition Assistance Program
You might be able to get help through the Supplemental
Nutrition Assistance Program (SNAP), formerly known
as food stamps. Visit www.fns.usda.gov/snap to find
out how to apply. For more information, read Nutrition
Assistance Programs (Publication No. 05-10100) or
Supplemental Nutrition Assistance Program Facts
(Publication No. 05-10101).
8
If you work while receiving disability payments
You should tell us if you take a job or become self-
employed, no matter how little you earn. Please let us
know how many hours you expect to work and when your
work starts or stops. If you still have a qualifying disability,
you’ll be eligible for a trial work period, and you can
continue receiving benefits for up to 9 months. Also, tell
us if you have any special work expenses because of your
disability (such as specialized equipment, a wheelchair or
even prescription drugs). Tell us if there’s any change in
the amount of those expenses.
If you receive other disability benefits
Social Security benefits for you and your family may be
reduced if you also are eligible for workers’ compensation
(including payments through the black lung program).
These benefits may also be reduced if you are eligible
for disability benefits from certain federal, state, or local
government programs. You must tell us if any of the
following occur:
• You apply for another type of disability benefit.
• You receive another disability benefit or a lump-sum
settlement.
• Your benefits change or stop.
If you’re offered services under the Ticket to
Work program
We may send you a “ticket” that you can use to get
services to help you go to work or earn more money. You
may take the “ticket” to your state vocational rehabilitation
agency or to an employment network of your choice.
Employment networks are private organizations that have
agreed to work with us to provide employment services
to beneficiaries with disabilities. Your participation in the
9
Ticket to Work program is voluntary and we provide the
services to you at no cost. For more information, read
Your Ticket to Work (Publication No. 05-10061).
If you move
When you plan to move, tell us your new address and
phone number as soon as you know them. Also, please
let us know the names of any family members who are
getting benefits and who are moving with you. Even if
you receive your benefits by direct deposit, we must
have your correct address so we can send letters and
other important information to you. Your benefits will be
stopped if we’re unable to contact you. You can change
your address with a personal my Social Security account.
To create a personal my Social Security account, visit,
www.ssa.gov/myaccount.
Be sure you also file a change of address with your
post office.
If you change direct deposit accounts
If you change financial institutions or open a new account,
be sure to say that you want to sign up for direct deposit.
You can also change your direct deposit online if you
have a personal my Social Security account. Or, we can
change your direct deposit information over the telephone.
Have your new and old bank account numbers handy
when you call us. They’ll be printed on your personal
checks or account statements. Changing this information
takes us about 30-60 days. Don’t close your old account
until you make sure your benefits are being deposited into
the new account.
If you’re unable to manage your benefits
Sometimes people are unable to manage their money.
When this happens, we should be notified. We can
arrange to send benefits to a relative or other person
who agrees to use the money to take care of the person
10
for whom the benefits are paid. We call the person who
manages someone else’s benefits a “representative
payee.” For more information, read A Guide for
Representative Payees (Publication No. 05-10076).
NOTE: People who have “power of attorney” for
someone don’t automatically qualify to be the person’s
representative payee.
To help protect what’s important to you, we now
offer the option to choose a representative payee in
advance. Advance Designation allows capable adult and
emancipated minor applicants and thoes who receive
Social Security benefits, SSI, and Special Veterans
Benefits to choose one or more persons to serve as their
representative payee in the future. If you need a
representative payee to assist with the management of
your benefits, we will first consider your advance
designees, but we must still fully evaluate them and
determine their suitability at that time.
If you get a pension from work not covered by
Social Security
If you start receiving a pension from a job for which you
didn’t pay Social Security taxes — for example, from the
federal civil service system, some state or local pension
systems, nonprofit organizations, or a foreign government
— your Social Security benefit may be reduced. Also, tell
us if the amount of your pension changes.
If you get married or divorced
If you get married or divorced, your Social Security
benefits may be affected, depending on the kind of
benefits you receive.
If your benefits are stopped because of marriage or
remarriage, they may be started again if the marriage ends.
11
If you get: Then:
Your own disability benefits Your benefits will continue.
Spouse’s benefits Your benefits will continue if you
get divorced and you are age 62
or over, unless you were married
less than 10 years.
Benefits for a surviving spouse Your benefits will continue if you
with a disability (including remarry when you are age 50
divorced surviving spouses) or older.
12
Your benefits usually stop when the youngest, unmarried
child in your care reaches age 16, unless the child has
a disability.
If you become a parent after entitlement
If you become the parent of a child or an adopted child
after entitlement let us know so that we may determine if
the child qualifies for benefits.
If a child receiving benefits is adopted
When a child who is receiving benefits is adopted by
someone else, let us know the child’s new name, the
date of the adoption decree, and the adopting parent’s
name and address. The adoption will not cause the child’s
benefits to stop.
If you have an outstanding warrant for your arrest
You must tell us if you have an outstanding arrest warrant
for any of the following felony offenses:
• Flight to avoid prosecution or confinement.
• Escape from custody.
• Flight-escape.
You can’t receive regular disability benefits, or any
underpayments you may be due, for any month in which
there is an outstanding arrest warrant for any of these
felony offenses.
13
If you’re convicted of a crime
Tell us right away if you’re convicted of a crime. Regular
disability benefits, or any underpayments that may be
due, aren’t paid for the months a person is confined for
a crime. However, any family members who are eligible
for benefits based on that person’s work may continue to
receive benefits.
Monthly benefits or any underpayments that may be due
usually aren’t paid to someone who commits a crime
and who is confined to jail, prison, penal institution,
or correctional facility. This applies if the person has
been found either:
• Not guilty by reason of insanity or similar factors
(such as mental disease, mental defect, or mental
incompetence).
• Incompetent to stand trial.
If you violate a condition of parole or probation
You must tell us if you’re violating a condition of your
probation or parole imposed under federal or state
law. You can’t receive regular disability benefits or any
underpayment that may be due for any month in which
you violate a condition of your probation or parole.
If you leave the United States
If you’re a U.S. citizen, you can travel to or live in most
foreign countries without affecting your Social Security
benefits. There are, however, a few countries where we
can’t send Social Security payments. These countries
are Azerbaijan, Belarus, Cuba, Kazakhstan, Kyrgyzstan,
Moldova, North Korea, Tajikistan, Turkmenistan,
and Uzbekistan. However, we can make exceptions
for certain eligible beneficiaries in countries other
than Cuba and North Korea. For more information
about these exceptions, please contact your local
Social Security office.
14
Let us know if you plan to go outside the United States
for a trip that lasts 30 days or more. Tell us the name of
the country or countries you plan to visit and the date you
expect to leave the United States.
We will send you special reporting instructions and tell
you how to arrange for your benefits while you’re away.
Be sure to notify us when you return to the United States.
If you aren’t a U.S. citizen, and you return to live in
the United States, you must provide evidence of your
noncitizen status to continue receiving benefits. If you
work outside the United States, different rules apply in
determining whether you can get your benefits.
For more information, read Your Payments While You are
Outside the United States (Publication No. 05-10137).
If your citizenship status changes
If you aren’t a U.S. citizen, let us know if you become a
U.S. citizen or if your status changes. If your immigration
status expires, you must give us new evidence that you
are still in the United States lawfully.
If a beneficiary dies
Let us know if a person receiving Social Security benefits
dies. Benefits aren’t payable for the month of death. That
means, for example, if the person died any time in July,
the check received in August (which is payment for July)
must be returned. If direct deposit is used, also notify the
financial institution of the death as soon as possible so it
can return any payments received after death.
Family members may be eligible for Social Security
survivors benefits when a person getting disability
benefits dies.
15
If you’re receiving Social Security and Railroad
Retirement benefits
If you’re receiving both Social Security and Railroad
Retirement benefits based on your spouse’s work, and
your spouse dies, you must tell us immediately. You’ll
no longer be eligible to receive both benefits. You’ll be
notified which survivor benefit you’ll receive.
16
You should tell us immediately if your child marries, is
convicted of a crime, drops out of school, changes from
full-time to part-time attendance, is expelled, suspended, or
changes schools. You should also tell us if your child has an
employer who is paying for your child to attend school.
In general, a student can keep receiving benefits during a
vacation period of 4 months or less if they plan to go back
to school full time at the end of the vacation.
If your child has a disability
Your child can continue to receive benefits after age
18 if they have a disability that begins before age 22.
Your child also may qualify for SSI. Contact us for
more information.
If you have a stepchild and get divorced
If you have a stepchild who is getting benefits based
on your work, and you divorce the child’s parent, you
must tell us as soon as the divorce becomes final. Your
stepchild’s benefits will stop the month after the divorce
becomes final.
17
• If improvement is possible, but can’t be predicted, we’ll
review your case about every 3 years.
• If improvement is not expected, we’ll review your case
every 7 years.
What happens during a continuing disability
review?
We’ll send a letter to you telling you that we’re conducting
a medical review. Soon after you receive the notice,
someone from your local Social Security office will contact
you to explain the review process and your appeal rights.
The Social Security representative will ask you to provide
information about your medical treatment and any work
that you may have done since you started receiving
disability benefits.
A team consisting of a disability examiner and a doctor
will review your case and request your medical reports. If
needed, we may ask you to have a special examination.
We’ll pay for the examination and some of your
transportation costs.
When we make a medical decision, we’ll send you a
letter. If we decide that you still have a qualifying disability,
your benefits will continue.
If we decide you no longer have a qualifying disability and
you disagree with our decision, you may file an appeal. If
you decide not to appeal the decision, your benefits will
stop 3 months after we decide that your disability ended.
For more information, read Your Right to Question the
Decision Made on Your Claim (Publication No. 05-10058).
18
Medicare while you test your ability to work. For more
information about the ways we can help you return to
work, read Working While Disabled—How We Can Help
(Publication No. 05-10095). Detailed information about
work incentives can be found in our Red Book (Publication
No. 64-030). Also visit our website, www.ssa.gov/work.
19
The money that you have in your ABLE account (up to
and including $100,000) does not count as a resource
under SSI rules. You can use money in an ABLE account
to pay for certain qualified disability expenses, such as
those for education, housing, transportation, employment
training, employment support, assistive technology, and
related services.
To learn more about ABLE accounts, please visit the
Internal Revenue Service’s website at www.irs.gov/
government-entities/federal-state-local-governments/
able-accounts-tax-benefit-for-people-with-disabilities.
Please note: Social Security provides this section
as a courtesy to help notify you of ABLE accounts.
However, Social Security is not affiliated with and
does not endorse any ABLE account provider or
its services.
20
Contacting Us
There are several ways to contact us, such as online,
by phone, and in person. We’re here to answer your
questions and to serve you. For nearly 90 years, we have
helped secure today and tomorrow by providing benefits
and financial protection for millions of people throughout
their life’s journey.
Visit our website
The most convenient way to conduct business with us is
online at www.ssa.gov. You can accomplish a lot.
• Apply for Extra Help with Medicare prescription drug
plan costs.
• Apply for most types of benefits.
• Start or complete your request for an original or
replacement Social Security card.
• Find copies of our publications.
• Get answers to frequently asked questions.
When you create a personal my Social Security account,
you can do even more.
• Review your Social Security Statement.
• Verify your earnings.
• Get estimates of future benefits
• Print a benefit verification letter.
• Change your direct deposit information (Social Security
beneficiaries only).
• Get a replacement SSA-1099/1042S.
If you live outside the United States, visit
www.ssa.gov/foreign to access our online services.
21
Call us
If you cannot use our online services, we can help you by
phone when you call our National toll-free 800 Number.
We provide free interpreter services upon request.
You can call us at 1-800-772-1213 — or at our TTY
number, 1-800-325-0778, if you’re deaf or hard of hearing
— between 8:00 a.m. – 7:00 p.m., Monday through
Friday. For quicker access to a representative, try calling
early in the day (between 8 a.m. and 10 a.m. local time)
or later in the day. We are less busy later in the week
(Wednesday to Friday) and later in the month. We
also offer many automated telephone services, available
24 hours a day, so you may not need to speak with a
representative.
If you have documents we need to see, they must be
original or copies that are certified by the issuing agency.
22
The following is the list where you can get free
diapers. The list is statewise and also has url link to
the website where you can get free diapers:
Alabama
Birmingham – Bundles of Hope Diaper Bank
Florence – Magnolia Church Bundle of Blessings
Huntsville – Food Bank of North Alabama
Mobile – Junior League of Mobile
Alaska
Anchorage – Alaska Adoption Services – Community Diaper Pantry
Arizona
Phoenix & Tuscon – Diaper Bank of Arizona
Arkansas
Bentonville – Diaper Bank of the Ozarks
Springdale – The Diaper Collective of Northwest Arkansas
California
Fresno – Central California Food Bank
Garden Grove –Community Action Partnership of Orange County
Goleta – LEAP: Learn Engage Advocate Partner
Lincoln – Lighthouse Counseling & Family Resource Center
Los Angeles – Good+ Foundation LA
Los Angeles – Los Angeles Regional Food Bank
Los Angeles – Open Arms Food Pantry and Resource Center
Martinez – Sweet Beginnings Family Resource Center
Oakland – SupplyBank.Org
Oxnard- Food Share
Riverside – Junior League of Riverside Diaper Bank
Sacramento – Sacramento Food Bank & Family Services
Salinas – Food Bank of Monterey County
San Diego – San Diego Food Bank
San Francisco – Help A Mother Out
Santa Rosa – Redwood Empire Food Bank
Colorado
Aurora – WeeCycle
Broomfield – A Precious Child
Centennial – Rocky Mountain Diaper Depot
Denver – Catholic Charities Archdiocese of Denver
Grand Junction – Diaper Depot
Greeley – United Way of Weld County
Loveland – The Nappie Project
Connecticut
Derby – TEAM
Madison – Bare Necessities
North Haven – The Diaper Bank of Connecticut
Putnam – IHSP-Diaper Bank of NECT
Stamford – Salvation Army Dry Bottoms Diaper Bank
Delaware
Wilmington – Catholic Charities Bayard House
District of Columbia
Greater DC Diaper Bank (Silver Spring, Maryland)
Florida
Boca Raton – The Diaper Bank-Covered South Florida
Cooper City – Greater Fort Lauderdale Diaper Bank
Fort Myers – Healthy Start Coalition of Southwest Florida, Inc.
Fort Pierce – Treasure Coast Food Bank
Greenacres- Healthy Mothers Healthy Babies Coalition
Jacksonville – Diaper Bank for Northeast Florida
Jacksonville – Safe Future Foundation, Inc
Miami – Miami Diaper Bank
Naples – Baby Basics of Collier County, Inc
Panama City – Junior League of Panama City
Pensacola – Junior League of Pensacola
St. Petersburg – Babycycle
Stuart – Martin County Healthy Start Coalition
Tallahassee – Women Empowering Each Other, Inc.
Tampa – Junior League of Tampa
Winter Garden – Central Florida Diaper Bank
Georgia
Athens – Athens Area Diaper Bank
Columbus – Junior League of Columbus Georgia
Gainesville – Diaper Bank of North Georgia
Norcross – Helping Mamas, Inc
Savannah – Over the Moon Diaper Bank
Hawaii
Honolulu – Aloha Diaper Bank
Kamuela – Hawai’i Diaper Bank
Idaho
Meridian – The Idaho Diaper Bank
Illinois
Chicago – Cradles to Crayons Chicago
Chicago- Share Our Spare
Evanston – Bundled Blessings Diaper Pantry
Galesburg – Loving Bottoms Diaper Bank
Lombard – First Things First, a program of The Outreach House
Quincy – Covered Bottoms Diaper Bank
Savoy – Bottom Line Diaper Bank, a program of the United Way of
Champaign County
Shiloh – Metro East Diaper Bank
Waukegan – Diaper Depot – Catholic Charities of the Archdiocese of Chicago
Waukegan – Keeping Families Covered
Indiana
Bloomington – All-Options Pregnancy Resource Center
Fort Wayne – The Shepherd’s Hand Community Outreach Center
Fort Wayne – Healthier Moms and Babies Inc.
Hammond – Franciscan Health Diaper Pantry
Indianapolis – Indiana Diaper Bank
Merriville – Diaper Resource Center at Food Bank of Northwest Indiana
Muncie – The Diaper Bank of East Central Indiana
Terre Haute – Covered With Love, Inc.
New Whiteland – Indiana Diaper Source
Iowa
Bettendorf – Hiney Heroes
Cedar Rapids – Eastern Iowa Diaper Bank
Des Moines – Start Small Project
Indianola – Short Years Diaper Bank
Ottumwa – Sieda Community Action Diaper Pantry
Muscatine – Community Diaper Bank
Kansas
Kansas City – HappyBottoms
Lawrence- Just Basics of Douglas County
Salina – Catholic Charities of Northern Kansas
Topeka – Community Action, Inc.
Kentucky
Louisville – Saint Bernadette Diaper Bank
Louisiana
Baton Rouge – Junior League of Baton Rouge Diaper Bank
Lafayette – Junior League of Lafayette Diaper Bank
New Orleans – Junior League of New Orleans Diaper Bank
Shreveport – Basic Necessities
Maine
Portland – Michael Klahr Jewish Family Services
Rockland – AIO Food & Energy Assistance
Maryland
Brooklandville – ShareBaby, Inc.
Millersville – Walk the Walk Foundation
Silver Spring – Greater DC Diaper Bank
St. Charles – Maryland Diaper Bank
Westminster – CarrollBaby
Massachusetts
Beverly – Bambino Basket
Boston – South Boston Neighborhood House
Greenfield – United Way of Franklin County Diaper Bank
Hyannis – A Baby Center
Huntington – It Take a Village
Lawrence – Neighbors in Need Diaper Bank
Lexington- Beantown Baby Diaper Bank
Needham – Baby Basics, Inc.
Newton – Cradles to Crayons – Boston
West Stockbridge – Berkshire Community Diaper Project, Austin Riggs Center
Worcester – Marie’s Mission
Michigan
Battle Creek – Battle Creek Diaper Initiative
Detroit – Metropolitan Detroit Diaper Bank
Grand Rapids – Great Start Parent Coalition of Kent County
Holland – Nestlings Diaper Bank
Kalamazoo – St. Luke’s Diaper Bank (c/o St. Luke’s Episcopal Church)
Kalamazoo – Care Collective of Southwest Michigan
Midland – The Diaper Alliance
Minnesota
Elko – Shakopee Community Assistance
Northfield – Community Action Center of Northfield
St. Paul – Diaper Bank of Minnesota
Mississippi
Clarksdale – Diaper Bank of the Delta
Missouri
Columbia – First Chance for Children
Fenton – Heroes Care
Kansas City – HappyBottoms
New Madrid – New Madrid County Family Resource Center
Osage Beach – The Changing Table
Springfield – Diaper Bank of the Ozarks
St. Louis – St. Louis Area Diaper Bank
Montana
Billings – Family Promise of Yellowstone Valley
Nebraska
Omaha – Nebraska Diaper Bank
Nevada
Las Vegas – Baby’s Bounty
Las Vegas – HELP of Southern Nevada’s Las Vegas Diaper Bank
New Hampshire
Pittsfield – Infant Toddler Diaper Pantry
New Jersey
Hillside – Community FoodBank of NJ
Lawrence Township – HomeFront Diaper Resource Center
Montclair – Modestly Cover Diaper Bank of Essex County NJ
New Brunswick – Central Jersey Diaper Bank of AECDC, Inc.
Paramus – Children’s Aid and Family Services, Inc.
Trenton – The Maker’s Place
Warren – Moms Helping Moms Foundation
New Mexico
Albuquerque – Junior League of Albuquerque Diaper Bank
Santa Fe – The Food Depot
New York
Albany – The Food Pantries of the Capital District
Buffalo – Every Bottom Covered
Elmira – Food Bank of the Southern Tier Diaper Bank Program
Melville – The Allied Foundation
Newburgh – Baby Steps Baby Pantry at Christ Lutheran Church
New York (Bronx) – The HopeLine (Resource Center for Community
Development, Inc.)
New York (Bronx) – Her Village, Inc.
New York (Brooklyn) – Little Essentials
New York (Brooklyn) – Expecting Relief
New York (Brooklyn) – Moms for Moms, NYC
New York (Manhattan) – Good+ Foundation
New York (Manhattan) – NYC Mamas Give Back
New York (Queens) – Queens Diaper Bank
Rochester – Junior League of Rochester Diaper Bank
Syracuse – CNY Diaper Bank
Scarsdale – Junior League of Central Westchester
White Plains – (914) Cares
North Carolina
Asheville- Babies Need Bottoms, Inc.
Durham – Diaper Bank of North Carolina
North Dakota
Fargo – Great Plains Food Bank
Ohio
Canton – Heart of Ohio Diaper Bank
Centerville – Hannah’s Treasure Chest
Cincinnati – Sweet Cheeks Diaper Bank
Cleveland – The Diaper Bank of Greater Cleveland
Columbus – Columbus Diaper Bank
Lancaster – Bottoms Up Diaper Drive
Plain City – The Diaper Angels (Jerome United Methodist Church)
Toledo – Junior League of Toledo – As We Grow
Trotwood – Gem City Diaper Bank
Youngstown – Project MKC
Oklahoma
Oklahoma City – Infant Crisis Services, Inc.
Shawnee – Legacy Parenting Center
Tulsa – Emergency Infant Services
Oregon
Portland – PDX Diaper Bank
Springfield- Lane County Diaper Bank
Pennsylvania
Allentown – Lehigh Valley Diaper Bank
Erie- Diaper Depot at the Erie Family Center
Harrisburg – Healthy Steps Diaper Bank
Norristown – Mitzvah Circle Foundation
Philadelphia – Center for Leadership, Development and Advocacy
Philadelphia – Cradles to Crayons, PA
Philadelphia – The Greater Philadelphia Diaper Bank
Philadelphia – Pamper And Diaper My Baby
Pittsburgh – Western Pennsylvania Diaper Bank
Scranton – St. Joseph’s Center
Puerto Rico
Carolina –Banco de Alimentos Puerto Rico, Inc.
Rhode Island
Providence – Project Undercover
South Carolina
Charleston – Bundles to Joy Diaper Bank
Charleston – Junior League of Charleston – Charleston Area Diaper Bank
Columbia – Power In Changing
Elgin – United for Baby
South Dakota
Rapid City – Volunteers of America Mommy’s Closet
Sioux Falls – Society of St. Vincent de Paul of Sioux Falls
Tennessee
Cordova (Memphis) – Sweet Cheeks Diaper Ministry
Knoxville – Helping Mamas
Lexington – Shiloh Distribution Center
Memphis – Mid-South Food Bank
Nashville – Nashville Diaper Connection
Texas
Amarillo – Joseph’s Project, a program of Catholic Charities of Texas
Panhandle
Austin – Austin Diaper Bank
Dallas – Hope Supply Co.
El Paso – Her Pantry Ministries
Fort Worth – Junior League of Fort Worth Diaper Bank
Galveston – Galveston Diaper Bank
Houston – Houston Diaper Bank
McKinney – Baby Booties Diaper Bank
San Antonio – Texas Diaper Bank
Spring – Northwest Houston Diaper Bank
Utah
Logan – Little Lambs Foundation for Kids
Sandy – Utah Diaper Bank
Vermont
Pawlet – Felicia’s Inc.
Virginia
Harrisonburg – Children’s Clothes Closet at Mission Central
Richmond – Urban Baby Beginnings Community Cares
Rockingham – Baby Hope, a program of Hope Distributed
Silver Spring (MD) – Greater DC Diaper Bank
Toms Brook – Shenandoah Lutheran Ministries
Vienna – Fairfax Diaper Bank
Virginia Beach – Greater Hampton Roads Diaper Bank
Washington
Battle Ground – Battle Ground Adventist Community Services
Bellevue – Babies of Homelessness
Issaquah – KidVantage
La Conner – The Diaper Bank of Skagit County
Olympia – Dry Tikes and Wet Wipes
Pasco – Tri-Cities Diaper Bank
Seattle – WestSide Baby
Spokane Valley – Inland NW Diaper Bank a program of Spokane Valley
Partners
Tacoma – Pierce County Early Childhood Network
West Virginia
Charleston – Diaper Drop Charities
Ripley – Ripley Nazarene Mission Baby Pantry
Welch – The Community Crossing, Inc.
Weston – Lewis County Diaper Pantry
Wisconsin
Eau Claire – United Way of the Greater Chippewa Valley
Elkhorn – Walworth County Diaper Bank
La Crosse – The Parenting Place, Inc.
Little Chute – Eastern Wisconsin Diaper Bank
Madison – Babies and Beyond
Madison – The Village Diaper Bank
Menasha – Fox Cities Diaper Bank, an initiative of United Way Fox Cities
Milwaukee – Milwaukee Diaper Mission
Milwaukee – United Way of Greater Milwaukee & Waukesha County
Sheboygan – BabyCare of The Sheboygan Evangelical Free Church
Wausau – The Neighbors’ Place