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Engaging With Patients and Carers: Alibasher D. Macalnas, RN

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ENGAGING WITH

PATIENTS AND
CARERS
ALIBASHER D. MACALNAS, RN

WHY ENGAGING
WITH PATIENTS AND
FAMILIES IS
IMPORTANT?

OPEN DISCLOSURE
Is a term used to describe honest
communication with patients and
carers after they have suffered harm.

INFORMED CONSENT
Enables the patient (or their carers) to
consider all the options they have in
relation to their care and treatment,
including alternatives to the course of
treatment proposed.

SPECT FOR AUTONOMY


Refers to a persons right to
make choices and act according to
their own values and beliefs.

WHAT PATIENT SHOULD KNOW?


The Diagnosis of the main problem
The Degree of uncertainty in the diagnosis or
problem
Risks involved in the treatment solution
Information on expected recovery time
Name, Position, Qualifications, and Experience of
the health-care workers who are providing the
care and treatment
Availability and costs of any service or
medications required

TOOLS FOR GOOD COMMUNICATION

Set the stage


Elicit Information
Give Information
Understand the patient perspective
End the encounter

CULTURE
Is a broad term that includes
language and customs, as well as
values, beliefs, behaviors, practices,
institutions and the ways in which
people communicates.

OPEN DISCLOSURE
Is a term used to describe the process of
informing patients and their families bad
outcomes of treatment, as distinguished
from bad outcomes that are expected from
a disease or injury being treated.

Principles of Open Disclosure


Openness and timelines of the communicator
Acknowledgement of the incident
Expression of regret/apology
Recognition of the reasonable expectations of
the patient and his/her support person
Support for staff
Confidentiality

S.P.I.K.E.S.
A communication tool used to
assist health professionals to
communicate bad news in
situations where the patients are
at the end of their life.

Setting:
Privacy
Involves Significant Others
Sit down
Listening Mode

Perception
Information
Knowledge
Empathy
Strategy and Summary

TEACHING STRATEGIES & ACTIVITIES


1. Interactive/Didactic lecture
2. Small group discussion
3. Simulation exercises

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