Audrey L'Espérance
CHUM Research Centre, Centre of Excellence on Partnership with Patients and the Public (CEPPP), Strategic advisor and research associate
Research associate and strategic adviser at the Centre of excellence on partnership with patients and the public, I completed a PhD in political science at the University of Ottawa and a two-year postdoctoral fellowship at the University of Toronto. I was visiting scholar at BIOS – Centre for the Study of Bioscience, Biomedicine, Biotechnology and Society at the London School of Economics and Political Science in the UK. My work focuses on the evaluation of patient and public partnership in the health ecosystem, experiential and embodied knowledge, expertise and policy-making processes in the health sector. Over the years, I had developed an expertise in program evaluation, public policy analysis and project management in various academic and public-health settings.
Most recently, I coordinated the Patient Engagement Evaluation Toolkit project. The Evaluation Toolkit project was a one-year project intending to: 1) do a systematic review existing evaluation instruments to assess public and patient engagement in health research and health-system transformation; 2) produce a patient and public engagement evaluation toolkit ; and, 3) develop a potential common research and/or evaluation agenda for patient and public engagement in Canada. Target users of the toolkit are SPOR SUPPORT Units, research networks and teams, patients and members of the public involved in research and health care projects and organizations.
My post-doctoral research was supported by the Fonds Québécois de la Recherche sur la Société et la Culture from April 2013 to March 2015. During my doctoral years, I also was awarded FQRSC doctoral research scholarship, the Population Health Improvement Research Network’s Ontario Doctoral Student in Population Health Award and the University of Ottawa Excellence Scholarship.
In addition to my current work and dissertation, I have conducted research on judicial mobilization and morality policies in a comparative perspective. I have eager interest for everything related to comparative public policy, health and ethical questions related to life cycles.
During my graduate training, I was a research assistant for number of professors on a vast array of projects. I had been a member of the Centre de Recherche sur les Politiques et le Développement Social (CPDS) at University of Montreal between 2005 and 2013, and I worked with Professor Christine Rothmayr on research projects generally related to the judicialisation of public policy processes and the relationship between courts and politics in Canada. Moreover, while working with my thesis supervisor Professor Orsini, I conducted qualitative interviews and constructed databases for the project “Health Policy from Below: Social Movements and Contested Illness in Canada and the United States” that explores citizen contestation in the health field.
In line with my research interests, I had the opportunity to teach in diverse environments, at the University of Ottawa and the University of Toronto Scarborough. I thought courses in Comparative Public Policy, the Honors Seminar in Public Administration, the Honors Seminar in Canadian Politics, Health Policy and politics in Canada, Institutions et Régulations Sociales de la Santé, and Vie politique au Québec.
Phone: 514-890-8000 ext. 31632
Address: 850 St-Denis, Montreal, Qc, Canada, H2X 0A9
Most recently, I coordinated the Patient Engagement Evaluation Toolkit project. The Evaluation Toolkit project was a one-year project intending to: 1) do a systematic review existing evaluation instruments to assess public and patient engagement in health research and health-system transformation; 2) produce a patient and public engagement evaluation toolkit ; and, 3) develop a potential common research and/or evaluation agenda for patient and public engagement in Canada. Target users of the toolkit are SPOR SUPPORT Units, research networks and teams, patients and members of the public involved in research and health care projects and organizations.
My post-doctoral research was supported by the Fonds Québécois de la Recherche sur la Société et la Culture from April 2013 to March 2015. During my doctoral years, I also was awarded FQRSC doctoral research scholarship, the Population Health Improvement Research Network’s Ontario Doctoral Student in Population Health Award and the University of Ottawa Excellence Scholarship.
In addition to my current work and dissertation, I have conducted research on judicial mobilization and morality policies in a comparative perspective. I have eager interest for everything related to comparative public policy, health and ethical questions related to life cycles.
During my graduate training, I was a research assistant for number of professors on a vast array of projects. I had been a member of the Centre de Recherche sur les Politiques et le Développement Social (CPDS) at University of Montreal between 2005 and 2013, and I worked with Professor Christine Rothmayr on research projects generally related to the judicialisation of public policy processes and the relationship between courts and politics in Canada. Moreover, while working with my thesis supervisor Professor Orsini, I conducted qualitative interviews and constructed databases for the project “Health Policy from Below: Social Movements and Contested Illness in Canada and the United States” that explores citizen contestation in the health field.
In line with my research interests, I had the opportunity to teach in diverse environments, at the University of Ottawa and the University of Toronto Scarborough. I thought courses in Comparative Public Policy, the Honors Seminar in Public Administration, the Honors Seminar in Canadian Politics, Health Policy and politics in Canada, Institutions et Régulations Sociales de la Santé, and Vie politique au Québec.
Phone: 514-890-8000 ext. 31632
Address: 850 St-Denis, Montreal, Qc, Canada, H2X 0A9
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Papers by Audrey L'Espérance
Patient and public engagement is growing, but evaluative efforts remain limited. Reviews looking at evaluation tools for patient engagement in individual decision making do exist, but no similar articles in research and health systems have been published.
Objective
Systematically review and appraise evaluation tools for patient and public engagement in research and health system decision making.
Methods
We searched literature published between January 1980 and February 2016. Electronic databases (Ovid MEDLINE, Embase, Cochrane Database of Systematic Reviews, CINAHL and PsycINFO) were consulted, as well as grey literature obtained through Google, subject‐matter experts, social media and engagement organization websites. Two independent reviewers appraised the evaluation tools based on 4 assessment criteria: scientific rigour, patient and public perspective, comprehensiveness and usability.
Results
In total, 10 663 unique references were identified, 27 were included. Most of these tools were developed in the last decade and were designed to support improvement of engagement activities. Only 11% of tools were explicitly based on a literature review, and just 7% were tested for reliability. Patients and members of the public were involved in designing 56% of the tools, mainly in the piloting stage, and 18.5% of tools were designed to report evaluation results to patients and the public.
Conclusion
A growing number of evaluation tools are available to support patient and public engagement in research and health system decision making. However, the scientific rigour with which such evaluation tools are developed could be improved, as well as the level of patient and public engagement in their design and reporting.
Book Reviews by Audrey L'Espérance
Media by Audrey L'Espérance
Patient and public engagement is growing, but evaluative efforts remain limited. Reviews looking at evaluation tools for patient engagement in individual decision making do exist, but no similar articles in research and health systems have been published.
Objective
Systematically review and appraise evaluation tools for patient and public engagement in research and health system decision making.
Methods
We searched literature published between January 1980 and February 2016. Electronic databases (Ovid MEDLINE, Embase, Cochrane Database of Systematic Reviews, CINAHL and PsycINFO) were consulted, as well as grey literature obtained through Google, subject‐matter experts, social media and engagement organization websites. Two independent reviewers appraised the evaluation tools based on 4 assessment criteria: scientific rigour, patient and public perspective, comprehensiveness and usability.
Results
In total, 10 663 unique references were identified, 27 were included. Most of these tools were developed in the last decade and were designed to support improvement of engagement activities. Only 11% of tools were explicitly based on a literature review, and just 7% were tested for reliability. Patients and members of the public were involved in designing 56% of the tools, mainly in the piloting stage, and 18.5% of tools were designed to report evaluation results to patients and the public.
Conclusion
A growing number of evaluation tools are available to support patient and public engagement in research and health system decision making. However, the scientific rigour with which such evaluation tools are developed could be improved, as well as the level of patient and public engagement in their design and reporting.