research-article

Understanding the challenges and opportunities for richer descriptions of stereotypical behaviors of children with asd: a concept exploration and validation

Authors:

Fatima A. Boujarwah,

Gregory D. Abowd,

Rosa I. ArriagaAuthors Info & Claims

ASSETS '10: Proceedings of the 12th international ACM SIGACCESS conference on Computers and accessibility

Pages 67 - 74

https://doi.org/10.1145/1878803.1878817

Published: 25 October 2010 Publication History

Abstract

Individuals with Autism Spectrum Disorder (ASD) often engage in stereotypical behaviors. In some individuals these behaviors occur with very high frequency and can be disruptive and at times self-injurious. We propose a system that can tacitly collect contextual data related to the individual's physiological state and their external environment, and map it to occurrences of stereotypies. A user study was conducted with children with ASD, parents, and caregivers to explore and validate this concept. A prototype of the system, developed through participatory design, was used in the study as a probe to elicit the information needs of these stakeholders, and provide a better understanding of the nuances involved in supporting those needs. Here we present the findings of this study, and four design recommendations; promoting ecological integration, addressing privacy concerns, supporting inference, and enabling customization.

References

[1]

CDC, Prevalence of Autism Spectrum Disorder - Autism and Developmental Disabilities Monitoring Network, 2006.

[2]

Diagnostic and Statistical Manual of Mental Disorders DSM-IV-TR Fourth Edition, American Psychiatric Association - June 2000.

[3]

Baumeister, A. and Forehand, R. "Stereotyped acts," in International Review of Research in Mental Retardation: VI. Ed., New York, 1973; pp. 55--96.

[4]

Lewis, M. H. and Bodfish, J. W. Repetitive behavior disorders in autism, Mental Retardation and Developmental Disabilities, 1998; vol. 4, pp. 80--89.

[5]

Bodfish, J. W., Symons, F. J., Parker, D. E. and Lewis, M. H. Varieties of repetitive behavior in autism: Comparisons to mental retardation, Journal of Autism and Developmental Disorders, 2000; vol. 30, pp. 237--243.

[6]

Lovaas, O. I., Litrownik, A., and Mann, R. Response latencies to auditory stimuli in autistic children engaged in self-stimulatory behavior, Behavior Res. And Therapy, 1971; vol. 9, pp. 39--49.

[7]

LaGrow, S. J. and Repp, A. C. Stereotypic responding: A review of intervention research, American Journal of Mental Deficiency, 1984; vol. 88, pp. 595--609.

[8]

Jones, R. S., Wint, D., and Ellis, N. C. The social effects of stereotyped behaviour, Journal of Mental Deficiency Res., 1990; vol. 34, pp. 261--8.

[9]

Kennedy, C. H. Evolution of stereotypy into self-injury, in Self-Injurious Behavior: Gene-Brain-Behavior Relationships, Washington, DC. 2002; pp. 133--143.

[10]

Hall, S. Thorns, T. and Oliver, C. Structural and Environmental Characteristics of Stereotyped Behaviors. American Journal on Mental Retardation, 2003; vol. 108, no. 6, pp. 391--402.

[11]

Durand, V. M. and Carr, E. Social influences on self-stimulatory behavior: Analysis and treatment application, Journal of Applied Behavior Analysis, 1987; vol. 20, pp. 119--132.

[12]

Groden, J., Goodwin, M. S., Baron, M. G., Groden, G., Velicer, W. F., Lipsitt, L. P., Hofmann, Stefan, S. G., Plummer, B. Assessing Cardiovascular Responses to Stressors in Individuals With Autism Spectrum Disorders. Focus on Autism and Other Developmental Disabilities, 2005; vol 20, no. 4, pp. 244--252.

[13]

Vollmer, T. R., & Smith, R. G. (1996). Some current themes in functional analysis research. Research in Developmental Disabilities vol 17, no. 3, 229--249.

[14]

Washington, DC: Center for Effective Collaboration and Practice. Sasso, G. M. et al., Use of descriptive and experimental analyses to identify the functional properties of aberrant behavior in school settings. Journal of Applied Behavior Analysis, 1992.

[15]

National Research Council. Educating children with autism. Washington: National Academy Press, 2001.

[16]

Quinn, M. M., Gable, R. A., Ritherford, R. B., Nelson, C. M., Howell, K. W. Addressing student problem behavior: An IEP team's introduction to functional behavioral assessment and behavior intervention plans (2nd ed.), 1998.

[17]

Fox, N. A., Henderson, H. A., Marshall, P. J., Nochols, K. E., Ghera, M. M. Behavioral Inhibition: Linking Biology and Behavior within a Developmental Framework. Annual Review of Psychology, 2005.

[18]

Berntson, G. G., Bigger, J. T., Eckberg, D. L., Grossman, P., Kaufmann, P. G., Malik, M., Nagaraja, H. N., Porges, S. W., Saul, J. P., Stone, P. H., Van der Molen, M. W. Heart Rate Variability: Origins, Methods, and Interpretive Caveats. Psychophysiology, 1997; vol 34, no. 6, pp. 623--648.

[19]

Westeyn, T. Vadas, K. Bian, X. Starner, T. and Abowd, G. D. Recognizing mimicked autistic self-stimulatory behaviors using HMMs. In IEEE International Symposium on Wearable Computers, pp. 164--169, 2005.

Digital Library

[20]

Albinali, F. Goodwin, M. and Intille, S. Recognizing Stereotypical Motor Movements in the Laboratory and Classroom: A Case Study with Children on the Autism Spectrum, In proceedings of the 11th conference on Ubiquitous Computing), (Orlando, FL, Sept 30-Oct 3, 2009).

Digital Library

[21]

Goodwin, M, Intille, S., Velicer, W., and Groden. J. Sensor-Enabled Detection of Stereotypical Motor Movements in Persons with Autism Spectrum Disorder. In Proceedings of the 7th International Conference on Interaction Design and Children, pp. 109--112, (Chicago, IL, 2008).

Digital Library

[22]

Olga, B. Sensory Perceptual Issues in Autism and Asperger's Syndrome: Different Sensory Experiences, Different Perceptual Worlds. An overview of sensory traits in the autism spectrum, Jessica Kingsley Publishers, London, 2003.

[23]

Hayes, G. R., Gardere, L., Abowd, G. D, and Truong, K. N. CareLog: A Selective Archiving Tool for Behavior Management in Schools. In proceeding of Computer Human Interaction, (Italy, 2008), pp. 685--694.

Digital Library

[24]

Video: http://www.youtube.com/watch?v=nOdXBY6ZLts

Cited By

Macías ACastro LCaro K(2024)A formative evaluation of human activity recognition technology for parent-child interactionsA formative evaluation of human activity recognition technology for parent-child interactionsAvances en Interacción Humano-Computadora10.47756/aihc.y9i1.1529:1(91-98)Online publication date: 30-Nov-2024
https://doi.org/10.47756/aihc.y9i1.152
Kumar PO'Connell FLi LByrne VChetty MClegg TVitak J(2023)Understanding Research Related to Designing for Children's Privacy and Security: A Document AnalysisProceedings of the 22nd Annual ACM Interaction Design and Children Conference10.1145/3585088.3589375(335-354)Online publication date: 19-Jun-2023
https://dl.acm.org/doi/10.1145/3585088.3589375
Hijab MBanire BNeves JQaraqe MOthman AAl-Thani D(2023)Co-design of Technology Involving Autistic Children: A Systematic Literature ReviewInternational Journal of Human–Computer Interaction10.1080/10447318.2023.226624840:22(7498-7516)Online publication date: 12-Oct-2023
https://doi.org/10.1080/10447318.2023.2266248
Show More Cited By

Index Terms

Understanding the challenges and opportunities for richer descriptions of stereotypical behaviors of children with asd: a concept exploration and validation
1. Human-centered computing
  1. Interaction design
    1. Interaction design process and methods
      1. User centered design

Recommendations

Children with ASD Prefer Observing Social Scenarios from Third-Person Perspective
Intelligent Robotics and Applications
Abstract
This study employed visual tracking technology to explore the effects of a third-person perspective on the fixation condition of social scenarioss in children with autism spectrum disorder (ASD). This study selected 24 ASD children and 24 ...
Online gaming, loneliness and friendships among adolescents and adults with ASD

Adolescents and adults with Autism Spectrum Disorder (ASD) are prone to experience poor friendships and loneliness. This group has also shown a particular interest for screen-based media and computer-games. Online multiplayer games have shown to promote ...
Audio-augmented paper for therapy and educational intervention for children with autistic spectrum disorder

Autism affects children@?s learning and social development. Commonly used rehabilitative treatments are aimed at stimulating the social skills of children with autism. In this article, we present a prototype and a pilot study on an audio-augmented paper ...

Comments

Information & Contributors

Information

Published In

cover image ACM Conferences

ASSETS '10: Proceedings of the 12th international ACM SIGACCESS conference on Computers and accessibility

October 2010

346 pages

ISBN:9781605588810

DOI:10.1145/1878803

General Chair:
Armando Barreto
Florida International University, USA
,
Program Chair:
Vicki L. Hanson
University of Dundee, UK

Copyright © 2010 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

Sponsors

SIGACCESS: ACM Special Interest Group on Accessible Computing

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 25 October 2010

Permissions

Request permissions for this article.

Request Permissions

Check for updates

Author Tags

Qualifiers

Research-article

Conference

ASSETS '10

Sponsor:

SIGACCESS

ASSETS '10: The 12th International ACM SIGACCESS Conference on Computers and Accessibility

October 25 - 27, 2010

Florida, Orlando, USA

Acceptance Rates

Overall Acceptance Rate 436 of 1,556 submissions, 28%

Contributors

Other Metrics

View Article Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

21
Total Citations
View Citations
573
Total Downloads

Downloads (Last 12 months)35
Downloads (Last 6 weeks)0

Reflects downloads up to 25 Jan 2025

Other Metrics

View Author Metrics

Citations

Cited By

Macías ACastro LCaro K(2024)A formative evaluation of human activity recognition technology for parent-child interactionsA formative evaluation of human activity recognition technology for parent-child interactionsAvances en Interacción Humano-Computadora10.47756/aihc.y9i1.1529:1(91-98)Online publication date: 30-Nov-2024
https://doi.org/10.47756/aihc.y9i1.152
Kumar PO'Connell FLi LByrne VChetty MClegg TVitak J(2023)Understanding Research Related to Designing for Children's Privacy and Security: A Document AnalysisProceedings of the 22nd Annual ACM Interaction Design and Children Conference10.1145/3585088.3589375(335-354)Online publication date: 19-Jun-2023
https://dl.acm.org/doi/10.1145/3585088.3589375
Hijab MBanire BNeves JQaraqe MOthman AAl-Thani D(2023)Co-design of Technology Involving Autistic Children: A Systematic Literature ReviewInternational Journal of Human–Computer Interaction10.1080/10447318.2023.226624840:22(7498-7516)Online publication date: 12-Oct-2023
https://doi.org/10.1080/10447318.2023.2266248
Jo EPark SBang HHong YKim YChoi JKim BEpstein DHong H(2022)GeniAuti: Toward Data-Driven Interventions to Challenging Behaviors of Autistic Children through Caregivers' TrackingProceedings of the ACM on Human-Computer Interaction10.1145/35129396:CSCW1(1-27)Online publication date: 7-Apr-2022
https://dl.acm.org/doi/10.1145/3512939
Colley MKränzle TRukzio E(2022)Accessibility-Related Publication Distribution in HCI Based on a Meta-AnalysisExtended Abstracts of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491101.3519701(1-28)Online publication date: 27-Apr-2022
https://dl.acm.org/doi/10.1145/3491101.3519701
Sharma SAchary KKinnula MNorouzi BKinnula HIivari NVentä-Olkkonen LHolappa J(2022)To Empower or Provoke? Exploring approaches for participatory design at schools for neurodiverse individuals in IndiaInternational Journal of Child-Computer Interaction10.1016/j.ijcci.2022.10052134(100521)Online publication date: Dec-2022
https://doi.org/10.1016/j.ijcci.2022.100521
Wang XTakashima KAdachi TKitamura YKitamura YQuigley AIsbister KIgarashi TBjørn PDrucker S(2021)Can Playing with Toy Blocks Reflect Behavior Problems in Children?Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems10.1145/3411764.3445119(1-14)Online publication date: 6-May-2021
https://dl.acm.org/doi/10.1145/3411764.3445119
Nuske HGoodwin MKushleyeva YForsyth DPennington JMasino AFinkel EBhattacharya ATan JTai HAtkinson‐Diaz ZBonafide CHerrington J(2021)Evaluating commercially available wireless cardiovascular monitors for measuring and transmitting real‐time physiological responses in children with autismAutism Research10.1002/aur.263315:1(117-130)Online publication date: 6-Nov-2021
https://doi.org/10.1002/aur.2633
Melo ÁRivero LSantos JBarreto RSantos CBento Villela MGasparini IUchôa Conte T(2020)PersonAutProceedings of the 19th Brazilian Symposium on Human Factors in Computing Systems10.1145/3424953.3426651(1-6)Online publication date: 26-Oct-2020
https://dl.acm.org/doi/10.1145/3424953.3426651
Schadenberg BLi JPetrović SReidsma DHeylen DEvers VBelpaeme TYoung JGunes HRiek L(2020)Helping Educators Monitor Autistic Children's Progress Across SessionsCompanion of the 2020 ACM/IEEE International Conference on Human-Robot Interaction10.1145/3371382.3378378(436-438)Online publication date: 23-Mar-2020
https://dl.acm.org/doi/10.1145/3371382.3378378
Show More Cited By

View Options

Login options

Check if you have access through your login credentials or your institution to get full access on this article.

Full Access

Get this Publication

View options

PDF

View or Download as a PDF file.

eReader

View online with eReader.

Figures

Tables

Media

View Table of Conten