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Patient Strategies as Active Adaptation: Understanding Patient Behaviors During an Emergency Visit

Published: 02 May 2017 Publication History

Abstract

Although the ability of patients to access their health information during ongoing care is considered crucial for better health outcomes and increased satisfaction, the current care model places patients in a passive role. To investigate the patient experience in the hospital environment where information is lacking and in accessible, we conducted an ethnographic study with patients, caregivers, and healthcare providers in the emergency care setting. We report the three types of information breakdowns ED patients encountered during their emergency visits and the strategies they developed to cope. Our findings reveal a rich picture of the coping mechanisms ED patients use to proactively adapt to the nature of the ED care context. This work expands upon our understanding of the unique information challenges ED patients face, as well as the important adapting behaviors they engage in; it also uncovers design opportunities for supporting crucial, yet unmet, patient information needs.

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  • (2025)Designing Patient-Centered Interventions for Emergency Care: Participatory Design StudyJMIR Formative Research10.2196/636109(e63610)Online publication date: 12-Feb-2025
  • (2021)Behavioral signs of an unintended error in nursing information sharing with electronic clinical pathways: a mixed research approachInformatics for Health and Social Care10.1080/17538157.2021.196601547:2(159-174)Online publication date: 24-Aug-2021
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      cover image ACM Conferences
      CHI '17: Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems
      May 2017
      7138 pages
      ISBN:9781450346559
      DOI:10.1145/3025453
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      Published: 02 May 2017

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      Author Tags

      1. adaptation
      2. hci
      3. health informatics
      4. hospital
      5. information technology
      6. patient coping strategies

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      View all
      • (2025)Designing Patient-Centered Interventions for Emergency Care: Participatory Design StudyJMIR Formative Research10.2196/636109(e63610)Online publication date: 12-Feb-2025
      • (2021)Behavioral signs of an unintended error in nursing information sharing with electronic clinical pathways: a mixed research approachInformatics for Health and Social Care10.1080/17538157.2021.196601547:2(159-174)Online publication date: 24-Aug-2021
      • (2020)The Patient Advice SystemProceedings of the ACM on Human-Computer Interaction10.1145/34151834:CSCW2(1-23)Online publication date: 15-Oct-2020
      • (2019)"I think we know more than our doctors"Proceedings of the ACM on Human-Computer Interaction10.1145/33592613:CSCW(1-22)Online publication date: 7-Nov-2019
      • (2019)Electronic Health Records Are More Than a Work ToolProceedings of the 2019 CHI Conference on Human Factors in Computing Systems10.1145/3290605.3300865(1-13)Online publication date: 2-May-2019
      • (2019)Beyond the Patient PortalProceedings of the 2019 CHI Conference on Human Factors in Computing Systems10.1145/3290605.3300596(1-14)Online publication date: 2-May-2019
      • (2018)Bridging Disconnected Knowledges for Community HealthProceedings of the ACM on Human-Computer Interaction10.1145/32743442:CSCW(1-27)Online publication date: 1-Nov-2018
      • (2018)Supporting Collaborative Health Tracking in the HospitalProceedings of the 2018 CHI Conference on Human Factors in Computing Systems10.1145/3173574.3174224(1-14)Online publication date: 21-Apr-2018

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