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Write for Life: Persisting in Online Health Communities through Expressive Writing and Social Support

Authors:

C. Estelle Smith,

Saumik Narayanan,

Robert A. Giaquinto,

Svetlana YaroshAuthors Info & Claims

Proceedings of the ACM on Human-Computer Interaction, Volume 1, Issue CSCW

Article No.: 73, Pages 1 - 24

https://doi.org/10.1145/3134708

Published: 06 December 2017 Publication History

Abstract

Expressive writing has been shown to improve physical, mental, and social health outcomes for patients struggling with difficult diagnoses. In many online health communities, writing comprises a substantial portion of the user experience, yet little work has explored how writing itself affects user engagement. This paper explores user engagement on CaringBridge, a prominent online community for writing about personal health journeys. We build a survival analysis model, defining a new set of variables that operationalize expressive writing, and comparing these effects to those of social support, which are well-known to benefit user engagement. Furthermore, we use machine learning methods to estimate that approximately one third of community members who self-identify with a cancer condition cease engagement due to literal death. Finally, we provide quantitative evidence that: (1) receiving support, expressive writing, and giving support, in decreasing magnitude of relative impact, are associated with user engagement on CaringBridge, and (2) that considering deceased sites separately in our analysis significantly shifts our interpretations of user behavior.

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Index Terms

Write for Life: Persisting in Online Health Communities through Expressive Writing and Social Support
1. Human-centered computing
  1. Collaborative and social computing
    1. Empirical studies in collaborative and social computing
  2. Human computer interaction (HCI)
    1. Empirical studies in HCI

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cover image Proceedings of the ACM on Human-Computer Interaction

Proceedings of the ACM on Human-Computer Interaction Volume 1, Issue CSCW

November 2017

2095 pages

EISSN:2573-0142

DOI:10.1145/3171581

Editors:
Clifford Lampe
University of Michigan
,
Jeff Nichols
Google
,
Karrie Karahalios
University of Illinois Urbana-Champaign
,
Geraldine Fitzpatrick
Vienna University of Technology
,
Uichin Lee
KAIST
,
Andres Monroy-Hernandez
Snap Inc.
,
Wolfgang Stuerzlinger
Simon Fraser University

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Published: 06 December 2017

Published in PACMHCI Volume 1, Issue CSCW

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