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Disclosure, Privacy, and Stigma on Social Media: Examining Non-Disclosure of Distressing Experiences

Published: 31 May 2020 Publication History
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  • Abstract

    Disclosures of distress and stigma on identified social media can be beneficial. Yet, many who may benefit from such disclosures do not engage in them. I examine factors that inform decisions to not disclose stigmatized experiences on identified social media. I conducted in-depth interviews with women in the US who used social media, had experienced pregnancy loss, and had not disclosed about their loss on identified social media. I detail six types of factors related to the self, audience, network, society, platform, and temporality that contribute to non-disclosure decisions. I show that the Disclosure Decision-Making (DDM) framework introduced in prior work explaining disclosures when they do occur, also explains non-disclosure decisions on social media. I show how DDM builds from and bridges prior privacy theories, namely, Communication Privacy Management and Contextual Integrity. I discuss design implications around removing barriers to disclosure to facilitate beneficial disclosures and reduce stigma.

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    cover image ACM Transactions on Computer-Human Interaction
    ACM Transactions on Computer-Human Interaction  Volume 27, Issue 3
    June 2020
    262 pages
    ISSN:1073-0516
    EISSN:1557-7325
    DOI:10.1145/3403634
    Issue’s Table of Contents
    Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

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    Publication History

    Published: 31 May 2020
    Online AM: 07 May 2020
    Accepted: 01 March 2020
    Revised: 01 December 2019
    Received: 01 June 2019
    Published in TOCHI Volume 27, Issue 3

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    Author Tags

    1. Communication Privacy Management
    2. Contextual Integrity
    3. Disclosure Decision-Making
    4. Self-disclosure
    5. feminist
    6. miscarriage
    7. pregnancy loss
    8. privacy
    9. reproductive health
    10. social media
    11. stigma
    12. well-being

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