research-article

On creating and sustaining alternatives: the case of Danish telehealth

Author:

Morten KyngAuthors Info & Claims

CA '15: Proceedings of The Fifth Decennial Aarhus Conference on Critical Alternatives

Pages 5 - 16

https://doi.org/10.7146/aahcc.v1i1.21297

Published: 17 August 2015 Publication History

Abstract

This paper presents and discusses an initiative aimed at creating direct and long lasting influence on the use and development of telemedicine and telehealth by healthcare professionals, patients and citizens. The initiative draws on ideas, insights, and lessons learned from Participatory Design (PD) as well as from innovation theory and software ecosystems. Last, but not least, the ongoing debate on public finances/economy versus tax evasion by major private companies has been an important element in shaping the vision and creating support for the initiative. This vision is about democratic control, about structures for sustaining such control beyond initial design and implementation and about continued development through Participatory Design projects. We see the "middle element", the structures for sustaining democratic control beyond initial design and implementation as the most important and novel contribution of the paper.

References

[1]

4S webpage. Available from: http://4S-online.dk.

[2]

Ehn, P. and M. Kyng, The Collective Resource Approach to Systems Design, in Computers and Democracy. 1987, Avebury: Aldershot, UK. p. 17--57.

[3]

Bødker, S., et al., Co-operative Design---perspectives on 20 years with 'the Scandinavian IT Design Model', in Proceedings of NordiCHI 2000. 2000: Stockholm, Sweden. p. 22--24.

[4]

Kyng, M., Users and computers: A contextual approach to design of computer artifacts. Scandinavian Journal of Information Systems, 1998. 10(1&2): p. 7--44.

Digital Library

[5]

Kyng, M., Bridging the Gap Between Politics and Techniques: On the next practices of participatory design. Scandinavian Journal of Information Systems, 2010. 22(1): p. 49--68.

[6]

Christensen, H. B., et al., Analysis and design of software ecosystem architectures -- Towards the 4S telemedicine ecosystem. Special issue on Software Ecosystems, 2014. 56(11): p. 1476--1492.

[7]

PalCom project webpage. Available from: http://www.ist-palcom.org/.

[8]

Statens Serum, I. and I. T. National Sundheds, Referencearkitektur for opsamling af helbredsdata hos borgeren. 2013, National Sundheds-IT: København.

[9]

The UNIK partnership conference. 2013; Available from: http://www.partnerskabetunik.dk/media/38318/opdateretinvitation.pdf.

[10]

Steventon, A., et al., Effect of telehealth on use of secondary care and mortality: findings from the Whole System Demonstrator cluster randomised trial. BMJ (Clinical research ed.), 2012. 344: p. e3874.

[11]

EU project Renewing Health. Available from: http://www.renewinghealth.eu/en/.

[12]

the Telecare Nord project on COPD. Available from: http://www.rn.dk/Sundhed/Til-sundhedsfaglige-og-samarbejdspartnere/TeleCare-Nord.

[13]

Tidd, J. and J. Bessant, Managing innovation: integrating technological, market and organizational change. Vol. 4th. 2009, New York: Wiley. 638.

[14]

Abernathy, W. and J. Utterback, Patterns of industrial innovation. MIT Technology Review, 1978(6): p. 40--47.

[15]

The BYTE awards: GRID System's GRiDPad. BYTE Magazine, 1990. 15(1): p. 285--286.

[16]

Christensen, C. M., The Innovator's Dilemma: When New Technologies Cause Great Firms to Fail. 1997, Harward: Harvars Business Press. 225.

Digital Library

[17]

Epic Systems Corporation. Available from: http://en.wikipedia.org/wiki/Epic_Systems.

[18]

Manikas, K. and K. M. Hansen, Software ecosystems -- A systematic literature review. Journal of Systems and Software, 2013. 86(5): p. 1294--1306.

Digital Library

[19]

F&oelig;lles vej frem for telemedicin til gl&oelig;de for både patienter og erhvervsliv. 02.02.2015; Available from: http://www.regioner.dk/aktuelt/nyheder/2015/februar/f%C3%A6lles+vej+frem+for+telemedicin+til+gl%C3%A6de+for+b%C3%A5de+patienter+og+erhvervsliv.

[20]

Porter, M. June 6, 2006, Mandag Morgen: Copenhagen, Denmark.

[21]

Goodwin, N., Jumping the gun in the telehealth steeplechase. 2012.

[22]

Piketty, T., Capital in the Twenty-First Century. 2014: Harvard University Press.

[23]

Mazzucato, M., The entrepreneurial state: debunking public vs. private sector myths. Anthem frontiers of global political economy. 2013, London: Anthem Press. 237.

[24]

Scandinavian J of Information Systems, 1998. 10.

[25]

Scandinavian J of Information Systems, 2003. 15.

[26]

Scandinavian J of Information Systems, 2010. 22.

[27]

Shapiro, D., Participatory design: the will to succeed, in Proceedings of the 4th decennial conference on Critical computing: between sense and sensibility. 2005, ACM: Aarhus, Denmark. p. 29--38.

Digital Library

[28]

Schwaber, K. Controlled Chaos: Living on the Edge 1996.

[29]

Nygaard, K., The 'Iron and metal project': trade union participation, in Computers Dividing Man and Work -- Recent Scandinavian Research on Planning and Computers from a Trade Union Perspective., Å. Sandberg, Editor. 1979, Swedish Center for Working Life, Demos Project report no. 13, Utbildningsproduktion: Malmö, Sweden. p. 94--107.

[30]

Bødker, S., et al., A Utopian Experience. Proceedings of the 1986 Conference on Computers and Democracy, 1987: p. 251--278.

[31]

Ehn, P. and M. Kyng, Cardboard Computers: Mocking-it-up or Hands-on the Future, in Design at work: Cooperative design of computer systems, J. Greenbaum and M. Kyng, Editors. 1991, Lawrence Erlbaum Associates, Inc.: Hillsdale, New Jersey, USA. p. 169--195.

Digital Library

[32]

Proceedings of PDC 2012, The Participatory Design Conference. 2012: Roskilde, Denmark.

[33]

Grönvall, E. and M. Kyng, Beyond Utopia: reflections on participatory design in home-based healthcare with weak users, in Proceedings of the 29th Annual European Conference on Cognitive Ergonomics. 2011, ACM: Rostock, Germany. p. 189--196.

Digital Library

[34]

Christensen, L. R. and E. Grönvall, Challenges and Opportunities for Collaborative Technologies for Home Care Work, in ECSCW 2011: Proceedings of the 12th European Conference on Computer Supported Cooperative Work, 24--28 September 2011, Aarhus Denmark, S. Bødker, et al., Editors. 2011, Springer London. p. 61--80.

[35]

Fitzpatrick, G. and G. Ellingsen, A Review of 25 Years of CSCW Research in Healthcare: Contributions, Challenges and Future Agendas. Computer Supported Cooperative Work (CSCW), 2012: p. 1--57.

Digital Library

[36]

Bertelsen, W. O., et al., Therapeutic Strategies - a Challenge for User Involvement in Design, in Workshop at NordiChi 2010, The 6th Nordic Conference on Human-Computer Interaction. 2010: Reykjavik, Iceland.

[37]

Gulliksen, J., et al., Key principles for user-centred systems design. Behaviour & Information Technology, 2003. 22(6): p. 397--409.

[38]

Beck, E. E., P for Political: Participation is Not Enough. Scandinavian Journal of Information Systems, 2002. 14(1): p. 77--92.

[39]

Iversen, O. S. and C. Dindler, Sustaining participatory design initiatives. CoDesign: International Journal of CoCreation in Design and the Arts, 2014. 10(3-4): p. 153--170.

[40]

iHospital. Det Interaktive Hospital. 2005; Available from: http://www.ihospital.dk/.

[41]

Cetrea. Clinical Logostics. 2015; Available from: http://www.cetrea.com/index.php/en/.

Cited By

Grönvall ELundberg S(2022)Designing for offline and online social work: Technology-mediated collaborative practices in and between municipalitiesProceedings of the 33rd European Conference on Cognitive Ergonomics10.1145/3552327.3552334(1-7)Online publication date: 4-Oct-2022
https://dl.acm.org/doi/10.1145/3552327.3552334
Gautam ATatar D(2022)Empowering Participation Within Structures of DependencyProceedings of the Participatory Design Conference 2022 - Volume 110.1145/3536169.3537781(75-86)Online publication date: 19-Aug-2022
https://dl.acm.org/doi/10.1145/3536169.3537781
Soden RLallemant DHamel PBarns K(2021)Becoming InterdisciplinaryProceedings of the ACM on Human-Computer Interaction10.1145/34492425:CSCW1(1-27)Online publication date: 22-Apr-2021
https://dl.acm.org/doi/10.1145/3449242
Show More Cited By

Index Terms

On creating and sustaining alternatives: the case of Danish telehealth
1. Human-centered computing
2. Software and its engineering

Recommendations

Understanding public transport design constraints by using mock-ups in stakeholder conversations
PDC '14: Proceedings of the 13th Participatory Design Conference: Short Papers, Industry Cases, Workshop Descriptions, Doctoral Consortium papers, and Keynote abstracts - Volume 2

This paper describes the interactions around design mock-ups with stakeholders in a complex urban design context. It discusses the use of mock-ups as a form of visual presentation to legitimate new ideas. Three types of mock-ups were prepared to ...
Innovating the field level of microfinance: a Pakistan case study
ICTD '10: Proceedings of the 4th ACM/IEEE International Conference on Information and Communication Technologies and Development

Microfinance Institutions (MFI) are sought to combine transparent sustainability with poverty reduction. Apart from this commonality, they can be as different as their markets, cultures and technologies. While much design for MFIs, nevertheless, ...
Telemedicine Use in Rural Native American Communities in the Era of the ACA: a Systematic Literature Review

Native American communities face serious health disparities and, living in rural areas, often lack regular access to healthcare services as compared to other Americans. Since the early 1970's, telecommunication technology has been explored as a means to ...

Comments

Information & Contributors

Information

Published In

cover image ACM Other conferences

CA '15: Proceedings of The Fifth Decennial Aarhus Conference on Critical Alternatives

August 2015

183 pages

Conference Chairs:
Olav W. Bertelsen,
Kim Halskov,
Program Chairs:
Shaowen Bardzell,
Ole Iversen

In-Cooperation

SIGCHI: ACM Special Interest Group on Computer-Human Interaction

Publisher

Aarhus University Press

Aarhus N

Publication History

Published: 17 August 2015

Check for updates

Author Tags

Qualifiers

Research-article

Conference

AA 2015

AA 2015: CRITICAL ALTERNATIVES 2015 The fifth decennial Aarhus conference

August 17 - 21, 2015

Aarhus, Denmark

Contributors

Other Metrics

View Article Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

14
Total Citations
View Citations
164
Total Downloads

Downloads (Last 12 months)12
Downloads (Last 6 weeks)0

Reflects downloads up to 20 Jan 2025

Other Metrics

View Author Metrics

Citations

Cited By

Grönvall ELundberg S(2022)Designing for offline and online social work: Technology-mediated collaborative practices in and between municipalitiesProceedings of the 33rd European Conference on Cognitive Ergonomics10.1145/3552327.3552334(1-7)Online publication date: 4-Oct-2022
https://dl.acm.org/doi/10.1145/3552327.3552334
Gautam ATatar D(2022)Empowering Participation Within Structures of DependencyProceedings of the Participatory Design Conference 2022 - Volume 110.1145/3536169.3537781(75-86)Online publication date: 19-Aug-2022
https://dl.acm.org/doi/10.1145/3536169.3537781
Soden RLallemant DHamel PBarns K(2021)Becoming InterdisciplinaryProceedings of the ACM on Human-Computer Interaction10.1145/34492425:CSCW1(1-27)Online publication date: 22-Apr-2021
https://dl.acm.org/doi/10.1145/3449242
Abou Amsha KBossen CGrönvall ELewkowicz M(2021)Computer-Supported KnotworkingProceedings of the ACM on Human-Computer Interaction10.1145/34491995:CSCW1(1-26)Online publication date: 22-Apr-2021
https://dl.acm.org/doi/10.1145/3449199
C Smith RBossen CDindler CSejer Iversen O(2020)When Participatory Design Becomes Policy: Technology Comprehension in Danish EducationProceedings of the 16th Participatory Design Conference 2020 - Participation(s) Otherwise - Volume 110.1145/3385010.3385011(148-158)Online publication date: 15-Jun-2020
https://dl.acm.org/doi/10.1145/3385010.3385011
Gautam ATatar D(2020)p for political: Participation Without Agency Is Not EnoughProceedings of the 16th Participatory Design Conference 2020 - Participation(s) Otherwise - Volume 210.1145/3384772.3385142(45-49)Online publication date: 15-Jun-2020
https://dl.acm.org/doi/10.1145/3384772.3385142
Hansen NDindler CHalskov KIversen OBossen CBasballe DSchouten B(2019)How Participatory Design WorksProceedings of the 31st Australian Conference on Human-Computer-Interaction10.1145/3369457.3369460(30-41)Online publication date: 2-Dec-2019
https://dl.acm.org/doi/10.1145/3369457.3369460
Meurer JMüller CSimone CWagner IWulf V(2018)Designing for SustainabilityComputer Supported Cooperative Work10.5555/3269986.327000327:3-6(495-537)Online publication date: 1-Dec-2018
https://dl.acm.org/doi/10.5555/3269986.3270003
Gautam AShrestha CKulak AHarrison STatar D(2018)Participatory tensions in working with a vulnerable populationProceedings of the 15th Participatory Design Conference: Short Papers, Situated Actions, Workshops and Tutorial - Volume 210.1145/3210604.3210629(1-5)Online publication date: 20-Aug-2018
https://dl.acm.org/doi/10.1145/3210604.3210629
Goagoses NKambunga AWinschiers-Theophilus H(2018)Enhancing commitment to participatory design initiativesProceedings of the 15th Participatory Design Conference: Short Papers, Situated Actions, Workshops and Tutorial - Volume 210.1145/3210604.3210613(1-5)Online publication date: 20-Aug-2018
https://dl.acm.org/doi/10.1145/3210604.3210613
Show More Cited By

View Options

Login options

Check if you have access through your login credentials or your institution to get full access on this article.

Full Access

Get this Publication

View options

PDF

View or Download as a PDF file.

eReader

View online with eReader.

Media

Figures

Other

Tables

View Table of Contents