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Designing for and with People with Dementia using a Human Rights-Based Approach

Published: 08 May 2021 Publication History
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  • Abstract

    User-centered design is typically framed around meeting the preferences and needs of populations involved in the design process. However, when designing technology for people with disabilities, in particular dementia, there is also a moral imperative to ensure that human rights of this segment of the population are consciously integrated into the process and respectfully included in the product. We introduce a human rights-based user-centered design process which is informed by the United Nations Convention on the Rights of Persons with Disabilities (CRPD). We conducted two editions of a three-day-long design workshop during which undergraduate students and dementia advocates came together to design technology for people with dementia. This case study demonstrates our novel approach to user-centered design that centers human rights through different stages of the workshop and actively involves people with dementia in the design process.

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    Cited By

    View all
    • (2023)Capturing usability problems for people living with dementia applying the DEMIGNED principles in usability evaluation methods (Preprint)JMIR Human Factors10.2196/54032Online publication date: 3-Nov-2023
    • (2023)Enriching Social Sharing for the Dementia Community: Insights from In-Person and Online Social ProgramsACM Transactions on Accessible Computing10.1145/358255816:1(1-33)Online publication date: 29-Mar-2023
    • (2022)Key Stakeholders’ Experiences and Perceptions of Virtual Reality for Older Adults Living With Dementia: Systematic Review and Thematic SynthesisJMIR Serious Games10.2196/3722810:4(e37228)Online publication date: 23-Dec-2022
    • Show More Cited By

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          cover image ACM Conferences
          CHI EA '21: Extended Abstracts of the 2021 CHI Conference on Human Factors in Computing Systems
          May 2021
          2965 pages
          ISBN:9781450380959
          DOI:10.1145/3411763
          Permission to make digital or hard copies of part or all of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for third-party components of this work must be honored. For all other uses, contact the Owner/Author.

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          Publication History

          Published: 08 May 2021

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          Author Tags

          1. CRPD
          2. Dementia
          3. Heuristics
          4. Human Rights
          5. User-Centered Design

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          • Extended-abstract
          • Research
          • Refereed limited

          Funding Sources

          • National Science Foundation Graduate Research Fellowship Program
          • U.S. Admin. for Community Living, NIDILRR, Dept. of Health & Human Services

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          Cited By

          View all
          • (2023)Capturing usability problems for people living with dementia applying the DEMIGNED principles in usability evaluation methods (Preprint)JMIR Human Factors10.2196/54032Online publication date: 3-Nov-2023
          • (2023)Enriching Social Sharing for the Dementia Community: Insights from In-Person and Online Social ProgramsACM Transactions on Accessible Computing10.1145/358255816:1(1-33)Online publication date: 29-Mar-2023
          • (2022)Key Stakeholders’ Experiences and Perceptions of Virtual Reality for Older Adults Living With Dementia: Systematic Review and Thematic SynthesisJMIR Serious Games10.2196/3722810:4(e37228)Online publication date: 23-Dec-2022
          • (2022)Culture Change, Human-Centered Design, and Ethical by Design as Transactional Cornerstone Concepts in the Development of Technology for Supporting AgingProceedings of the 15th International Conference on PErvasive Technologies Related to Assistive Environments10.1145/3529190.3535692(556-561)Online publication date: 29-Jun-2022
          • (2022)Disability InteractionsundefinedOnline publication date: 26-Mar-2022

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