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Tackling the Lack of a Practical Guide in Disability-Centered Research

Authors:

Emma J. McDonnell,

Kelly Avery Mack,

Kathrin Gerling,

Cynthia L. Bennett,

Robin N. Brewer,

Rua Mae Williams,

Garreth W. TigwellAuthors Info & Claims

ASSETS '23: Proceedings of the 25th International ACM SIGACCESS Conference on Computers and Accessibility

Article No.: 106, Pages 1 - 5

https://doi.org/10.1145/3597638.3615650

Published: 22 October 2023 Publication History

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Abstract

Accessibility research strives to develop technology that is useful for disabled people, but the research processes that we engage in do not always center disabled people in a way that allows us to shape artifacts so that they benefit disabled communities. In this workshop, we want to address core questions that are relevant in this context: How can research questions be defined in a way that shares power between research teams and technology users? How should research processes be designed to be broadly accessible for disabled people? And what are equitable ways of summarizing and sharing research findings in a way that allows disabled communities to critically appraise findings with us? Through discussion among all attendees, we want to develop a practical guide in disability-centered research that will be made available and further developed as a community resource when engaging in accessibility research.

References

[1]

Maryam Bandukda, Giulia Barbareschi, Aneesha Singh, Dhruv Jain, Maitraye Das, Tamanna Motahar, Jason Wiese, Lynn Cockburn, Amit Prakash, David Frohlich, and Catherine Holloway. 2022. A Workshop on Disability Inclusive Remote Co-Design. In Proceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility (Athens, Greece) (ASSETS ’22). Association for Computing Machinery, New York, NY, USA, Article 103, 5 pages. https://doi.org/10.1145/3517428.3550403

Digital Library

[2]

Giulia Barbareschi, Manohar Swaminathan, Andre Pimenta Freire, and Catherine Holloway. 2021. Challenges and Strategies for Accessibility Research in the Global South: A Panel Discussion. In X Latin American Conference on Human Computer Interaction (Valparaiso, Chile) (CLIHC 2021). Association for Computing Machinery, New York, NY, USA, Article 20, 5 pages. https://doi.org/10.1145/3488392.3488412

Digital Library

[3]

Cynthia L. Bennett and Daniela K. Rosner. 2019. The Promise of Empathy: Design, Disability, and Knowing the "Other". In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (Glasgow, Scotland Uk) (CHI ’19). Association for Computing Machinery, New York, NY, USA, 1–13. https://doi.org/10.1145/3290605.3300528

Digital Library

[4]

Robin N. Brewer, Christina Harrington, and Courtney Heldreth. 2023. Envisioning Equitable Speech Technologies for Black Older Adults. In Proceedings of the 2023 ACM Conference on Fairness, Accountability, and Transparency (Chicago, IL, USA) (FAccT ’23). Association for Computing Machinery, New York, NY, USA, 379–388. https://doi.org/10.1145/3593013.3594005

Digital Library

[5]

Emeline Brulé and Katta Spiel. 2019. Negotiating Gender and Disability Identities in Participatory Design. In Proceedings of the 9th International Conference on Communities & Technologies - Transforming Communities (Vienna, Austria) (C&T ’19). Association for Computing Machinery, New York, NY, USA, 218–227. https://doi.org/10.1145/3328320.3328369

Digital Library

[6]

Becca Dingman, Garreth W. Tigwell, and Kristen Shinohara. 2021. Interview and Think Aloud Accessibility for Deaf and Hard of Hearing Participants in Design Research. In Proceedings of the 23rd International ACM SIGACCESS Conference on Computers and Accessibility (Virtual Event, USA) (ASSETS ’21). Association for Computing Machinery, New York, NY, USA, Article 71, 3 pages. https://doi.org/10.1145/3441852.3476526

Digital Library

[7]

Jay T Dolmage. 2017. Academic ableism: Disability and higher education. University of Michigan Press.

[8]

Vinitha Gadiraju, Shaun Kane, Sunipa Dev, Alex Taylor, Ding Wang, Emily Denton, and Robin Brewer. 2023. "I Wouldn’t Say Offensive but...": Disability-Centered Perspectives on Large Language Models. In Proceedings of the 2023 ACM Conference on Fairness, Accountability, and Transparency (Chicago, IL, USA) (FAccT ’23). Association for Computing Machinery, New York, NY, USA, 205–216. https://doi.org/10.1145/3593013.3593989

Digital Library

[9]

Kathrin Gerling, Kay Kender, Katta Spiel, Saskia Van der Oord, Dieter Baeyens, Arno Depoortere, and Maria Aufheimer. 2022. Reflections on Ableism in Participatory Technology Design. In Mensch und Computer 2022 - Workshopband. Gesellschaft für Informatik e.V., Bonn.

[10]

Kathrin Gerling and Katta Spiel. 2021. A Critical Examination of Virtual Reality Technology in the Context of the Minority Body. In Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems (Yokohama, Japan) (CHI ’21). Association for Computing Machinery, New York, NY, USA, Article 599, 14 pages. https://doi.org/10.1145/3411764.3445196

Digital Library

[11]

Megan Hofmann, Devva Kasnitz, Jennifer Mankoff, and Cynthia L Bennett. 2020. Living Disability Theory: Reflections on Access, Research, and Design. In Proceedings of the 22nd International ACM SIGACCESS Conference on Computers and Accessibility (Virtual Event, Greece) (ASSETS ’20). Association for Computing Machinery, New York, NY, USA, Article 4, 13 pages. https://doi.org/10.1145/3373625.3416996

Digital Library

[12]

Stefan Sunandan Honisch and Gwen Thompson. 2022. Accessibility in Research: From Design to Dissemination. Retrieved July 06, 2023 from https://www.royalroads.ca/sites/default/files/2022-06/Accessibility%20in%20Research%20Toolkit.pdf

[13]

Sins Invalid. 2019. Skin, Tooth, and Bone: The Basis of Movement is Our People: A Disability Justice Primer. Retrieved July 06, 2023 from https://www.sinsinvalid.org/disability-justice-primer

[14]

Raul Krauthausen. 2023. 20 Forderungen an Politik und Wissenschaft zur Durchführung von Forschungsprojekten an und mit behinderten Menschen. Retrieved July 06, 2023 from https://raul.de/leben-mit-behinderung/20-forderungen-an-politik-und-wissenschaft-zur-durchfuehrung-von-forschungsprojekten-an-und-mit-behinderten-menschen/

[15]

Rua Williams Liz Jackson, Alex Haagaard. 2022. Disability Dongle. Retrieved July 06, 2023 from https://blog.castac.org/2022/04/disability-dongle/

[16]

Kelly Mack, Emma J. McDonnell, Leah Findlater, and Heather D. Evans. 2022. Chronically Under-Addressed: Considerations for HCI Accessibility Practice with Chronically Ill People. In Proceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility (Athens, Greece) (ASSETS ’22). Association for Computing Machinery, New York, NY, USA, Article 9, 15 pages. https://doi.org/10.1145/3517428.3544803

Digital Library

[17]

Jennifer Mankoff, Gillian R. Hayes, and Devva Kasnitz. 2010. Disability Studies as a Source of Critical Inquiry for the Field of Assistive Technology. In Proceedings of the 12th International ACM SIGACCESS Conference on Computers and Accessibility (Orlando, Florida, USA) (ASSETS ’10). Association for Computing Machinery, New York, NY, USA, 3–10. https://doi.org/10.1145/1878803.1878807

Digital Library

[18]

Leah Lakshmi Piepzna-Samarasinha. 2018. Care work: Dreaming disability justice. arsenal pulp press Vancouver.

[19]

SIGACCESS. 2023. Accessible Writing Guides. Retrieved July 06, 2023 from https://www.sigaccess.org/welcome-to-sigaccess/resources/accessible-writing-guide/

[20]

Katta Spiel and Kathrin Gerling. 2021. The Purpose of Play: How HCI Games Research Fails Neurodivergent Populations. ACM Trans. Comput.-Hum. Interact. 28, 2, Article 11 (apr 2021), 40 pages. https://doi.org/10.1145/3432245

Digital Library

[21]

Katta Spiel, Eva Hornecker, Rua Mae Williams, and Judith Good. 2022. ADHD and Technology Research – Investigated by Neurodivergent Readers. In Proceedings of the 2022 CHI Conference on Human Factors in Computing Systems (New Orleans, LA, USA) (CHI ’22). Association for Computing Machinery, New York, NY, USA, Article 547, 21 pages. https://doi.org/10.1145/3491102.3517592

Digital Library

[22]

Katta Spiel, Laura Malinverni, Judith Good, and Christopher Frauenberger. 2017. Participatory Evaluation with Autistic Children. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (Denver, Colorado, USA) (CHI ’17). Association for Computing Machinery, New York, NY, USA, 5755–5766. https://doi.org/10.1145/3025453.3025851

Digital Library

[23]

Cella M Sum, Rahaf Alharbi, Franchesca Spektor, Cynthia L Bennett, Christina N Harrington, Katta Spiel, and Rua Mae Williams. 2022. Dreaming Disability Justice in HCI. In Extended Abstracts of the 2022 CHI Conference on Human Factors in Computing Systems (New Orleans, LA, USA) (CHI EA ’22). Association for Computing Machinery, New York, NY, USA, Article 114, 5 pages. https://doi.org/10.1145/3491101.3503731

Digital Library

[24]

Rua Mae Williams, Louanne Boyd, and Juan E. Gilbert. 2023. Counterventions: A Reparative Reflection on Interventionist HCI. In Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems (Hamburg, Germany) (CHI ’23). Association for Computing Machinery, New York, NY, USA, Article 653, 11 pages. https://doi.org/10.1145/3544548.3581480

Digital Library

[25]

Rua M. Williams and Juan E. Gilbert. 2019. Advancing Diversity, Inclusion, and Social Justice Through Human Systems Engineering (1st ed.). CRC Press, Chapter “Nothing About Us Without Us” Transforming Participatory Research and Ethics in Human Systems Engineering. https://doi.org/10.1201/9780429425905

[26]

Anon Ymous, Katta Spiel, Os Keyes, Rua M. Williams, Judith Good, Eva Hornecker, and Cynthia L. Bennett. 2020. "I Am Just Terrified of My Future" — Epistemic Violence in Disability Related Technology Research. In Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems (Honolulu, HI, USA) (CHI EA ’20). Association for Computing Machinery, New York, NY, USA, 1–16. https://doi.org/10.1145/3334480.3381828

Digital Library

Cited By

Wellington MDew AFrawley PDavid JO’Shea A(2025)Engaging People with Intellectual Disability in Participatory Action Research: Co-Developing Sex Educational ResourcesSexuality and Disability10.1007/s11195-024-09886-343:1Online publication date: 24-Jan-2025
https://doi.org/10.1007/s11195-024-09886-3
Gerling KRauschenberger MTannert BWeber G(2024)The next decade in accessibility researchi-com10.1515/icom-2024-001523:2(231-237)Online publication date: 27-May-2024
https://doi.org/10.1515/icom-2024-0015
Fernandes KAlharbi RSum CKameswaran VSpektor FThuppilikkat APetterson AMarathe MHamidi FChandra PFarzan RLópez CCardoso Llach DQuercia DMustafa MNiu SWong-Villacrés M(2024)Organizing for More Just and Inclusive Futures: A Community DiscussionCompanion Publication of the 2024 Conference on Computer-Supported Cooperative Work and Social Computing10.1145/3678884.3687143(689-692)Online publication date: 11-Nov-2024
https://dl.acm.org/doi/10.1145/3678884.3687143
Show More Cited By

Index Terms

Tackling the Lack of a Practical Guide in Disability-Centered Research
1. Human-centered computing
  1. Accessibility
    1. Accessibility design and evaluation methods
    2. Accessibility theory, concepts and paradigms

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cover image ACM Conferences

ASSETS '23: Proceedings of the 25th International ACM SIGACCESS Conference on Computers and Accessibility

October 2023

1163 pages

ISBN:9798400702204

DOI:10.1145/3597638

Copyright © 2023 Owner/Author.

Permission to make digital or hard copies of part or all of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for third-party components of this work must be honored. For all other uses, contact the Owner/Author.

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SIGACCESS: ACM Special Interest Group on Accessible Computing

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Association for Computing Machinery

New York, NY, United States

Publication History

Published: 22 October 2023

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ASSETS '23

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SIGACCESS

ASSETS '23: The 25th International ACM SIGACCESS Conference on Computers and Accessibility

October 22 - 25, 2023

NY, New York, USA

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ASSETS '23 Paper Acceptance Rate 55 of 182 submissions, 30%;

Overall Acceptance Rate 436 of 1,556 submissions, 28%

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Cited By

Wellington MDew AFrawley PDavid JO’Shea A(2025)Engaging People with Intellectual Disability in Participatory Action Research: Co-Developing Sex Educational ResourcesSexuality and Disability10.1007/s11195-024-09886-343:1Online publication date: 24-Jan-2025
https://doi.org/10.1007/s11195-024-09886-3
Gerling KRauschenberger MTannert BWeber G(2024)The next decade in accessibility researchi-com10.1515/icom-2024-001523:2(231-237)Online publication date: 27-May-2024
https://doi.org/10.1515/icom-2024-0015
Fernandes KAlharbi RSum CKameswaran VSpektor FThuppilikkat APetterson AMarathe MHamidi FChandra PFarzan RLópez CCardoso Llach DQuercia DMustafa MNiu SWong-Villacrés M(2024)Organizing for More Just and Inclusive Futures: A Community DiscussionCompanion Publication of the 2024 Conference on Computer-Supported Cooperative Work and Social Computing10.1145/3678884.3687143(689-692)Online publication date: 11-Nov-2024
https://dl.acm.org/doi/10.1145/3678884.3687143
Le L(2024)"I Am Human, Just Like You": What Intersectional, Neurodivergent Lived Experiences Bring to Accessibility ResearchProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675651(1-20)Online publication date: 27-Oct-2024
https://dl.acm.org/doi/10.1145/3663548.3675651
McDonnell EFindlater L(2024)Envisioning Collective Communication Access: A Theoretically-Grounded Review of Captioning Literature from 2013-2023Proceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675649(1-18)Online publication date: 27-Oct-2024
https://dl.acm.org/doi/10.1145/3663548.3675649
Baltaxe-Admony LDuval JRingland K(2024)DREEM: Moving from Empathy to Enculturation in Disability Related Human-Centered DesignProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675642(1-17)Online publication date: 27-Oct-2024
https://dl.acm.org/doi/10.1145/3663548.3675642
McVelia JWeidner FGellersen H(2024)VR/AR for Users with Tic Disorders: Challenges and Opportunities2024 IEEE International Symposium on Mixed and Augmented Reality Adjunct (ISMAR-Adjunct)10.1109/ISMAR-Adjunct64951.2024.00057(239-242)Online publication date: 21-Oct-2024
https://doi.org/10.1109/ISMAR-Adjunct64951.2024.00057

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