- Silver Spring, Maryland, United States
- Bruce Fries is an entrepreneur and advocate for patients with chronic illness. His experience includes business startups, operations management, systems integration, sales and marketing, public relations, workflow automation, book publi... moreBruce Fries is an entrepreneur and advocate for patients with chronic illness. His experience includes business startups, operations management, systems integration, sales and marketing, public relations, workflow automation, book publishing, and proposal development. He founded the Patient Centered Care Advocacy Group as a vehicle to facilitate collaboration among Lyme disease patient advocacy organizations and develop a unified approach for advocating with Congress and the Executive Branch. His hobbies include cave exploration, gardening, photography, automotive mechanics, metal working, and heavy equipment.edit
Research Interests:
Research Interests:
Join the digital audio revolution! Tens of millions of users are embracing digital music, and with Digital Audio Essentials, you can, too. Nearly every personal computer built in the last few years contains a CD-burning drive; MP3 and... more
Join the digital audio revolution! Tens of millions of users are embracing digital music, and with Digital Audio Essentials, you can, too. Nearly every personal computer built in the last few years contains a CD-burning drive; MP3 and other portable player sales dominate the consumer electronics industry; and new networkable stereo equipment lets you use your digital music collection to power your home entertainment system. Whether it's downloading music, ripping CDs, organizing, finding, and creating higher quality music files, buying music players and accessories, or constructing a home stereo system, Digital Audio Essentials helps you do get it done. An indispensable reference for music enthusiasts, digital archivists, amateur musicians, and anyone who likes a good groove, Digital Audio Essentials helps you avoid time-consuming, costly trial and error in downloading audio files, burning CDs, converting analog music to digital form, publishing music to and streaming from the W...
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Research Interests:
Lyme disease is the most commonly reported vector-borne illness in the United States , with 329,000 new cases annually and an annual economic burden of more than $3.6 billion in increased health care and disability costs. CDC worked... more
Lyme disease is the most commonly reported vector-borne illness in the United States , with 329,000 new cases annually and an annual economic burden of more than $3.6 billion in increased health care and disability costs.
CDC worked closely with the IDSA to develop guidelines for the diagnosis and treatment of Lyme disease. These guidelines have been the subject of intense controversy , including an antitrust investigation by the state of Connecticut and hundreds of protests .
CDC provides preferential treatment to IDSA by endorsing and promoting IDSA’s 2006 guidelines for Lyme disease while withholding information from the medical community, the insurance industry, and the general public, about more comprehensive guidelines for Lyme disease published by the International Lyme and Associated Diseases Society (ILADS) in 2014.
CDC officials who provide the preferential treatment are also members of IDSA, the organization receiving the preferential treatment— a glaring and long-standing conflict of interest.
Unlike the ILADS guidelines, the IDSA guidelines do not comply with the National Academy of Medicine (formerly the Institute of Medicine) Standards for Developing Trustworthy Clinical Practice Guidelines or with the Grading of Recommendations Assessment, Development and Evaluation Working Group (GRADE) standard for rating the quality of evidence and recommendations.
The National Academy of Medicine report, Clinical Practice Guidelines We Can Trust, cites the 2006 IDSA Lyme guidelines to illustrate the problems of conflicts of interests, lack of transparency, and scientific bias in guidelines development.
Despite the fact that the IDSA guidelines are based on outdated science, are not compliant with current standards, and have been delisted from the National Guideline Clearinghouse, CDC continues to endorse and promote them, while withholding information about the ILADS guidelines, which contain information on evidence-based treatments that could improve the health of thousands of chronically ill patients throughout the world.
Due to restrictions imposed by the IDSA guidelines, patients are misdiagnosed, refused treatment, and denied insurance coverage. Hundreds of thousands of Lyme patients experience a greatly diminished quality of life; a tragedy compounded by financial hardships from out-of-pocket costs and lost income. The burden on individuals as well as on our economy is enormous, the suffering is widespread, and much of this is preventable.
CDC worked closely with the IDSA to develop guidelines for the diagnosis and treatment of Lyme disease. These guidelines have been the subject of intense controversy , including an antitrust investigation by the state of Connecticut and hundreds of protests .
CDC provides preferential treatment to IDSA by endorsing and promoting IDSA’s 2006 guidelines for Lyme disease while withholding information from the medical community, the insurance industry, and the general public, about more comprehensive guidelines for Lyme disease published by the International Lyme and Associated Diseases Society (ILADS) in 2014.
CDC officials who provide the preferential treatment are also members of IDSA, the organization receiving the preferential treatment— a glaring and long-standing conflict of interest.
Unlike the ILADS guidelines, the IDSA guidelines do not comply with the National Academy of Medicine (formerly the Institute of Medicine) Standards for Developing Trustworthy Clinical Practice Guidelines or with the Grading of Recommendations Assessment, Development and Evaluation Working Group (GRADE) standard for rating the quality of evidence and recommendations.
The National Academy of Medicine report, Clinical Practice Guidelines We Can Trust, cites the 2006 IDSA Lyme guidelines to illustrate the problems of conflicts of interests, lack of transparency, and scientific bias in guidelines development.
Despite the fact that the IDSA guidelines are based on outdated science, are not compliant with current standards, and have been delisted from the National Guideline Clearinghouse, CDC continues to endorse and promote them, while withholding information about the ILADS guidelines, which contain information on evidence-based treatments that could improve the health of thousands of chronically ill patients throughout the world.
Due to restrictions imposed by the IDSA guidelines, patients are misdiagnosed, refused treatment, and denied insurance coverage. Hundreds of thousands of Lyme patients experience a greatly diminished quality of life; a tragedy compounded by financial hardships from out-of-pocket costs and lost income. The burden on individuals as well as on our economy is enormous, the suffering is widespread, and much of this is preventable.
Research Interests:
Truth-Out op-ed about propaganda campaign by the authors of the Infectious Diseases Society of America (IDSA) guidelines for diagnosis and treatment of Lyme disease.