Interest in how qualitative health research might be used more widely to inform health policy and... more Interest in how qualitative health research might be used more widely to inform health policy and medical practice is growing. Synthesising findings from individual qualitative studies may be one method but application of conventional systematic review methodology to qualitative research presents significant philosophical and practical challenges. The aim here was to examine the feasibility of synthesising qualitative research using qualitative methodology including a formative evaluation of criteria for assessing the research to be synthesised. Ten qualitative studies of adult patients' perspectives of diabetes were purposefully selected and questions proposed by the critical appraisal skills programme (CASP) adapted and used to assess papers prior to synthesis. Each study was reviewed independently by two experienced social scientists. The level of agreement between reviewers was determined. Three papers were excluded: one because it turned out not to be qualitative research, one because the quality of the empirical work was poor and one because the qualitative findings reported were also recorded in another paper already included. The synthesis, which had two distinct elements, was conducted using the meta-ethnographic method. Firstly, four papers containing typologies of patient responses to diabetes were synthesised. Secondly, six key concepts were identified from all seven papers as being important in enabling a person with diabetes to achieve a balance in their lives and to attain a sense of well-being and control. These included: time and experience, trust in self, a less subservient approach to care providers, strategic non-compliance with medication, effective support from care providers and an acknowledgement that diabetes is serious. None of the studies included in the synthesis referenced any of the early papers nor did they appear to have taken account of or built upon previous findings. This evaluation confirmed that meta-ethnography can lead to a synthesis and extension of qualitative research in a defined field of study. In addition, from it a practical method of qualitative research assessment evolved. This process is promising but requires further testing and evaluation before it could be recommended for more widespread adoption. r There are never enough bricks and there are too few good synthesizers who wish to search out the bricks and thus put the wall together. These worthy people are usually too busy working on their own data!.
The nature and effects of stigma have been widely discussed in the context of mental illness, and... more The nature and effects of stigma have been widely discussed in the context of mental illness, and references to stigma are commonly used to explain a wide array of social processes. For example, it is often claimed that stigmatisation affects aspects of personal identity, that it underpins unjust and discriminatory behaviour, and that it is responsible for a reluctance among members of the lay public to disclose the presence of treatable psychiatric symptoms and problems to health professionals. A widespread reluctance to disclose symptoms of 'emotional problems' to health professionals is in fact well documented. Yet the reasons for such patterns of behaviour are far from clear. However, in this paper, on the basis of qualitative data collected from primary care attendees in Wales (N=127), the authors suggest that appeals to stigma are inadequate to explain the phenomenon. More likely, it seems, is that members of the lay public have markedly different images from health professionals of what constitutes a mild to moderate psychiatric problem. Consequently, it is argued that the phenomenon of non-disclosure could be viewed more accurately as a problem of alternative taxonomic systems than of fear of stigma. The implications of the argument for health practice and theory are outlined.
In a cluster randomised controlled trial of a policy to provide community breastfeeding support g... more In a cluster randomised controlled trial of a policy to provide community breastfeeding support groups in Scotland, breastfeeding rates declined in 3 of 7 intervention localities. From a preliminary study, we expected breastfeeding outcomes to vary and we prospectively used qualitative and quantitative methods to ask why. Ethnographic in-depth interviews, focus groups, observations and survey data were analysed to build seven embedded case studies. A pyramidal model of how primary health service organisations implemented the policy was constructed prior to knowing trial outcomes to minimise bias. Informed by a realist approach, the model explained variation in (a) policy implementation (b) the breastfeeding outcomes, whereas the quantity of intervention delivered did not. In the three localities where breastfeeding rates declined, negative aspects of place including deprivation, unsuitable premises and geographical barriers to inter-professional communication; personnel resources including staff shortages, high workload and low morale; and organisational change predominated (the base model tiers). Managers focused on solving these problems rather than delivering the policy and evidence of progress to the higher model tiers was weak. In contrast, where breastfeeding rates increased the base tiers of the model were less problematic, there was more evidence of leadership, focus on the policy, multi-disciplinary partnership working and reflective action cycles (the higher model tiers). We advocate an ethnographic approach to the design and evaluation of complex intervention trials and illustrate how this can assist in developing an explanatory model. More attention should be given to the complex systems within which policies and interventions occur, to identify and understand the favourable conditions necessary for a successful intervention.
In recent years official policy in the U.K. has been marked by a shift in emphasis from curative ... more In recent years official policy in the U.K. has been marked by a shift in emphasis from curative to preventive medicine, with increasing stress being laid on the role of the individual in maintaining his/her health. However, we lack empirical data on the extent to which the concept of individual responsibility for health is accepted by various groups in our society and such data is essential before effective strategies for health education can be implemented. It is argued that readiness to accept responsibility for one's health depends partly on the views held about the aetiology of illness, and this proposition is explored using material on causation and the circumstances where blame is attributed, derived from semi-structured interviews with a sample of 41 working class mothers (Socioeconomic Group 9). Roughly half the sample held fatalistic views on the aetiology of illness and thought they were only morally accountable in very restricted circumstances. These women tended to be less well-educated than the rest of the group and they were less likely to be buying their own homes. The results are discussed in relation to current health education policies, consultation behaviours in primary medical care and consumer attitudes to the services provided by their doctors.
Using a sample of lower working class mothers from South Wales, U.K. data is presented on the ext... more Using a sample of lower working class mothers from South Wales, U.K. data is presented on the extent to which procedures, (behaviours which involve health professionals and services) and practices (behaviours which involve the individuals in day to day lifestyle choices) are interrelated and likely to be practised by the same people. The socio-demographic variables associated with each category separately and with the whole range of preventive behaviour are also described. The British data is considered in the light of current research on preventive health behaviour (PHB) which has relied heavily for both empirical data and theoretical insight on studies conducted in U.S.A. No evidence is found to support the proposition that PHB is undimensional nor on the other hand is there convincing support for the existence of hypothesized independent dimensions. It is argued that the failure of present theory to predict more than a comparatively small part of the variance in PHB has positive implications for researchers and health educators alike.
To describe the responses of family doctors and nurses to applying an innovative clinical techniq... more To describe the responses of family doctors and nurses to applying an innovative clinical technique and technology in the context of a randomised controlled trial. Multi-faceted descriptive analysis of professional responses in the experimental arm of the trial. 29 family practices involving 30 doctors and 33 nurses over a 3-year time scale and 200 patients with type II diabetes. A new visual agenda-setting technology and other visual aids applied using the techniques of negotiation and motivational interviewing. Uptake of training, use of the method, group discussions, willingness to accept consultation recordings. 100% of clinicians welcomed two or more formal training sessions. The agenda-setting technology was used frequently by 71% of clinicians and occasionally by a further 22%. High levels of engagement with the method occurred among nurses but many doctors also reported benefits. Family doctors and nurses in Wales have found a new technology to facilitate negotiation in diabetes consultation acceptable and useful. Analysis of outcome is now awaited.
Journal of Health Services Research & Policy, 2002
To demonstrate the benefits of applying meta ethnography to the synthesis of qualitative research... more To demonstrate the benefits of applying meta ethnography to the synthesis of qualitative research, by means of a worked example. Four papers about lay meanings of medicines were arbitrarily chosen. Noblit and Hare's seven-step process for conducting a meta ethnography was employed: getting started; deciding what is relevant to the initial interest; reading the studies; determining how the studies are related; translating the studies into one another; synthesising translations; and expressing the synthesis. Six key concepts were identified: adherence/compliance; self-regulation; aversion; alternative coping strategies; sanctions; and selective disclosure. Four second-order interpretations (derived from the chosen papers) were identified, on the basis of which four third-order interpretations (based on the key concepts and second-order interpretations) were constructed. These were all linked together in a line of argument that accounts for patients' medicine-taking behaviour and communication with health professionals in different settings. Third-order interpretations were developed which were not only consistent with the original results but also extended beyond them. It is possible to use meta ethnography to synthesise the results of qualitative research. The worked example has produced middle-range theories in the form of hypotheses that could be tested by other researchers.
... LINDSAY PRIOR,a FIONA WOOD,b JONATHON GRAY,b ROISIN PILL b ... 10 Elderly Age at menarche 3 M... more ... LINDSAY PRIOR,a FIONA WOOD,b JONATHON GRAY,b ROISIN PILL b ... 10 Elderly Age at menarche 3 Menarche before age 11 Age at menopause 2 Menopause after age 54 Age at fi rst full pregnancy 3 First child in early 40s Family history $ 2 Cancer in fi rst-degree relative ...
Background The common mental disorders of depression and anxiety often remain undetected in gener... more Background The common mental disorders of depression and anxiety often remain undetected in general practice. Psychiatric screening instruments have been recommended to assist detection.
Objective To look at how communication by health professionals about infant feeding is perceived ... more Objective To look at how communication by health professionals about infant feeding is perceived by ®rst time mothers.
Abstract Data are presented on the responses given to the direct question 'what are the thre... more Abstract Data are presented on the responses given to the direct question 'what are the three most important things you do to protect your health?'from a sample of 204 British working class women.(This approach replicates an earlier American study which ...
To understand why a complex breastfeeding coaching intervention, which offered health professiona... more To understand why a complex breastfeeding coaching intervention, which offered health professional-facilitated breastfeeding groups for pregnant and breastfeeding mothers and personal peer coaches, was more effective at improving breastfeeding rates in some areas than others. This controlled intervention study was designed, implemented and evaluated using principles from action research methodology. We theoretically sampled 14 health professionals with varying levels of involvement and 12 consented to be interviewed. We analysed data from 266 group diaries kept by health professionals, 31 group observations, 10 audio-recorded steering group meetings and field notes. Women's perspectives were obtained by analysing qualitative data from one focus group, 21 semi-structured qualitative interviews and responses to open-survey questions. The intervention was more effective at improving breastfeeding rates in areas where health visitors and midwives were committed to working together to implement the intervention, where health professionals shared group facilitation and where inter- and intra-professional relationships were strong. The area where the intervention was ineffective had continuity of a single group facilitator with breastfeeding expertise and problematic relationships within and between midwife and health visitor teams. No one style of group suited all women. Some preferred hearing different views, others valued continuity of help from a facilitator with breastfeeding expertise. We hypothesise that involving several local health professionals in implementing an intervention may be more effective than a breastfeeding expert approach. Inter- and intra-health professional relationships may be an important determinant of outcome in interventions that aim to influence population behaviours like breastfeeding.
Breastfeeding initiation in Scotland in 2000 was 63 percent, compared with over 90 percent in Nor... more Breastfeeding initiation in Scotland in 2000 was 63 percent, compared with over 90 percent in Norway and Sweden. Although peer support is effective in improving exclusivity of breastfeeding in countries where over 80 percent of women initiate breastfeeding, the evidence for effectiveness in countries with lower initiation is uncertain. Our primary aim was to assess whether group-based and one-to-one peer breastfeeding coaching improves breastfeeding initiation and duration. Action research methodology was used to conduct an intervention study in 4 geographical postcode areas in rural northeast Scotland. Infant feeding outcomes at birth and hospital discharge; at 1, 2, and 6 weeks; and at 4 and 8 months were collected for 598 of 626 women with live births during a 9-month baseline period and for 557 of 592 women with live births during a 9-month intervention period. Groups met in 5 locations, with 266 groups meeting in the period when intervention women were eligible to attend. Data on place of birth and length of postnatal hospital stay were also collected. Control data from 10 other Health Board areas in Scotland were compared. An intention-to participate survey about coaching participation was completed by 206 of 345 women initiating breastfeeding. Group attendance data were collected by means of 266 group diaries. There was a significant increase in any breastfeeding of 6.8 percent from 34.3 to 41.1 percent (95% CI 1.2, 12.4) in the study population at 2 weeks after birth compared with a decline in any breastfeeding in the rest of Scotland of 0.4 percent from 44 to 43.6 percent (95% CI -1.2, 0.4). Breastfeeding rates increased compared with baseline rates at all time points until 8 months. However, the effect was not uniform across the 4 postcode areas and was not related to level of deprivation. Little difference was seen in receipt of information and knowledge about the availability of coaching among areas. All breastfeeding groups were well attended, popular, and considered helpful by participants. A minority of women (n = 14/206) participated in formal one-to-one coaching. Women who received antenatal, birth, and postnatal care from community midwife-led units were more likely to be breastfeeding at 2 weeks (p = 0.007) than women who received some or all care in district maternity units. Group-based and one-to-one peer coaching for pregnant women and breastfeeding mothers increased breastfeeding initiation and duration in an area with below average breastfeeding rates.
Interest in how qualitative health research might be used more widely to inform health policy and... more Interest in how qualitative health research might be used more widely to inform health policy and medical practice is growing. Synthesising findings from individual qualitative studies may be one method but application of conventional systematic review methodology to qualitative research presents significant philosophical and practical challenges. The aim here was to examine the feasibility of synthesising qualitative research using qualitative methodology including a formative evaluation of criteria for assessing the research to be synthesised. Ten qualitative studies of adult patients' perspectives of diabetes were purposefully selected and questions proposed by the critical appraisal skills programme (CASP) adapted and used to assess papers prior to synthesis. Each study was reviewed independently by two experienced social scientists. The level of agreement between reviewers was determined. Three papers were excluded: one because it turned out not to be qualitative research, one because the quality of the empirical work was poor and one because the qualitative findings reported were also recorded in another paper already included. The synthesis, which had two distinct elements, was conducted using the meta-ethnographic method. Firstly, four papers containing typologies of patient responses to diabetes were synthesised. Secondly, six key concepts were identified from all seven papers as being important in enabling a person with diabetes to achieve a balance in their lives and to attain a sense of well-being and control. These included: time and experience, trust in self, a less subservient approach to care providers, strategic non-compliance with medication, effective support from care providers and an acknowledgement that diabetes is serious. None of the studies included in the synthesis referenced any of the early papers nor did they appear to have taken account of or built upon previous findings. This evaluation confirmed that meta-ethnography can lead to a synthesis and extension of qualitative research in a defined field of study. In addition, from it a practical method of qualitative research assessment evolved. This process is promising but requires further testing and evaluation before it could be recommended for more widespread adoption. r There are never enough bricks and there are too few good synthesizers who wish to search out the bricks and thus put the wall together. These worthy people are usually too busy working on their own data!.
The nature and effects of stigma have been widely discussed in the context of mental illness, and... more The nature and effects of stigma have been widely discussed in the context of mental illness, and references to stigma are commonly used to explain a wide array of social processes. For example, it is often claimed that stigmatisation affects aspects of personal identity, that it underpins unjust and discriminatory behaviour, and that it is responsible for a reluctance among members of the lay public to disclose the presence of treatable psychiatric symptoms and problems to health professionals. A widespread reluctance to disclose symptoms of 'emotional problems' to health professionals is in fact well documented. Yet the reasons for such patterns of behaviour are far from clear. However, in this paper, on the basis of qualitative data collected from primary care attendees in Wales (N=127), the authors suggest that appeals to stigma are inadequate to explain the phenomenon. More likely, it seems, is that members of the lay public have markedly different images from health professionals of what constitutes a mild to moderate psychiatric problem. Consequently, it is argued that the phenomenon of non-disclosure could be viewed more accurately as a problem of alternative taxonomic systems than of fear of stigma. The implications of the argument for health practice and theory are outlined.
In a cluster randomised controlled trial of a policy to provide community breastfeeding support g... more In a cluster randomised controlled trial of a policy to provide community breastfeeding support groups in Scotland, breastfeeding rates declined in 3 of 7 intervention localities. From a preliminary study, we expected breastfeeding outcomes to vary and we prospectively used qualitative and quantitative methods to ask why. Ethnographic in-depth interviews, focus groups, observations and survey data were analysed to build seven embedded case studies. A pyramidal model of how primary health service organisations implemented the policy was constructed prior to knowing trial outcomes to minimise bias. Informed by a realist approach, the model explained variation in (a) policy implementation (b) the breastfeeding outcomes, whereas the quantity of intervention delivered did not. In the three localities where breastfeeding rates declined, negative aspects of place including deprivation, unsuitable premises and geographical barriers to inter-professional communication; personnel resources including staff shortages, high workload and low morale; and organisational change predominated (the base model tiers). Managers focused on solving these problems rather than delivering the policy and evidence of progress to the higher model tiers was weak. In contrast, where breastfeeding rates increased the base tiers of the model were less problematic, there was more evidence of leadership, focus on the policy, multi-disciplinary partnership working and reflective action cycles (the higher model tiers). We advocate an ethnographic approach to the design and evaluation of complex intervention trials and illustrate how this can assist in developing an explanatory model. More attention should be given to the complex systems within which policies and interventions occur, to identify and understand the favourable conditions necessary for a successful intervention.
In recent years official policy in the U.K. has been marked by a shift in emphasis from curative ... more In recent years official policy in the U.K. has been marked by a shift in emphasis from curative to preventive medicine, with increasing stress being laid on the role of the individual in maintaining his/her health. However, we lack empirical data on the extent to which the concept of individual responsibility for health is accepted by various groups in our society and such data is essential before effective strategies for health education can be implemented. It is argued that readiness to accept responsibility for one's health depends partly on the views held about the aetiology of illness, and this proposition is explored using material on causation and the circumstances where blame is attributed, derived from semi-structured interviews with a sample of 41 working class mothers (Socioeconomic Group 9). Roughly half the sample held fatalistic views on the aetiology of illness and thought they were only morally accountable in very restricted circumstances. These women tended to be less well-educated than the rest of the group and they were less likely to be buying their own homes. The results are discussed in relation to current health education policies, consultation behaviours in primary medical care and consumer attitudes to the services provided by their doctors.
Using a sample of lower working class mothers from South Wales, U.K. data is presented on the ext... more Using a sample of lower working class mothers from South Wales, U.K. data is presented on the extent to which procedures, (behaviours which involve health professionals and services) and practices (behaviours which involve the individuals in day to day lifestyle choices) are interrelated and likely to be practised by the same people. The socio-demographic variables associated with each category separately and with the whole range of preventive behaviour are also described. The British data is considered in the light of current research on preventive health behaviour (PHB) which has relied heavily for both empirical data and theoretical insight on studies conducted in U.S.A. No evidence is found to support the proposition that PHB is undimensional nor on the other hand is there convincing support for the existence of hypothesized independent dimensions. It is argued that the failure of present theory to predict more than a comparatively small part of the variance in PHB has positive implications for researchers and health educators alike.
To describe the responses of family doctors and nurses to applying an innovative clinical techniq... more To describe the responses of family doctors and nurses to applying an innovative clinical technique and technology in the context of a randomised controlled trial. Multi-faceted descriptive analysis of professional responses in the experimental arm of the trial. 29 family practices involving 30 doctors and 33 nurses over a 3-year time scale and 200 patients with type II diabetes. A new visual agenda-setting technology and other visual aids applied using the techniques of negotiation and motivational interviewing. Uptake of training, use of the method, group discussions, willingness to accept consultation recordings. 100% of clinicians welcomed two or more formal training sessions. The agenda-setting technology was used frequently by 71% of clinicians and occasionally by a further 22%. High levels of engagement with the method occurred among nurses but many doctors also reported benefits. Family doctors and nurses in Wales have found a new technology to facilitate negotiation in diabetes consultation acceptable and useful. Analysis of outcome is now awaited.
Journal of Health Services Research & Policy, 2002
To demonstrate the benefits of applying meta ethnography to the synthesis of qualitative research... more To demonstrate the benefits of applying meta ethnography to the synthesis of qualitative research, by means of a worked example. Four papers about lay meanings of medicines were arbitrarily chosen. Noblit and Hare's seven-step process for conducting a meta ethnography was employed: getting started; deciding what is relevant to the initial interest; reading the studies; determining how the studies are related; translating the studies into one another; synthesising translations; and expressing the synthesis. Six key concepts were identified: adherence/compliance; self-regulation; aversion; alternative coping strategies; sanctions; and selective disclosure. Four second-order interpretations (derived from the chosen papers) were identified, on the basis of which four third-order interpretations (based on the key concepts and second-order interpretations) were constructed. These were all linked together in a line of argument that accounts for patients' medicine-taking behaviour and communication with health professionals in different settings. Third-order interpretations were developed which were not only consistent with the original results but also extended beyond them. It is possible to use meta ethnography to synthesise the results of qualitative research. The worked example has produced middle-range theories in the form of hypotheses that could be tested by other researchers.
... LINDSAY PRIOR,a FIONA WOOD,b JONATHON GRAY,b ROISIN PILL b ... 10 Elderly Age at menarche 3 M... more ... LINDSAY PRIOR,a FIONA WOOD,b JONATHON GRAY,b ROISIN PILL b ... 10 Elderly Age at menarche 3 Menarche before age 11 Age at menopause 2 Menopause after age 54 Age at fi rst full pregnancy 3 First child in early 40s Family history $ 2 Cancer in fi rst-degree relative ...
Background The common mental disorders of depression and anxiety often remain undetected in gener... more Background The common mental disorders of depression and anxiety often remain undetected in general practice. Psychiatric screening instruments have been recommended to assist detection.
Objective To look at how communication by health professionals about infant feeding is perceived ... more Objective To look at how communication by health professionals about infant feeding is perceived by ®rst time mothers.
Abstract Data are presented on the responses given to the direct question 'what are the thre... more Abstract Data are presented on the responses given to the direct question 'what are the three most important things you do to protect your health?'from a sample of 204 British working class women.(This approach replicates an earlier American study which ...
To understand why a complex breastfeeding coaching intervention, which offered health professiona... more To understand why a complex breastfeeding coaching intervention, which offered health professional-facilitated breastfeeding groups for pregnant and breastfeeding mothers and personal peer coaches, was more effective at improving breastfeeding rates in some areas than others. This controlled intervention study was designed, implemented and evaluated using principles from action research methodology. We theoretically sampled 14 health professionals with varying levels of involvement and 12 consented to be interviewed. We analysed data from 266 group diaries kept by health professionals, 31 group observations, 10 audio-recorded steering group meetings and field notes. Women's perspectives were obtained by analysing qualitative data from one focus group, 21 semi-structured qualitative interviews and responses to open-survey questions. The intervention was more effective at improving breastfeeding rates in areas where health visitors and midwives were committed to working together to implement the intervention, where health professionals shared group facilitation and where inter- and intra-professional relationships were strong. The area where the intervention was ineffective had continuity of a single group facilitator with breastfeeding expertise and problematic relationships within and between midwife and health visitor teams. No one style of group suited all women. Some preferred hearing different views, others valued continuity of help from a facilitator with breastfeeding expertise. We hypothesise that involving several local health professionals in implementing an intervention may be more effective than a breastfeeding expert approach. Inter- and intra-health professional relationships may be an important determinant of outcome in interventions that aim to influence population behaviours like breastfeeding.
Breastfeeding initiation in Scotland in 2000 was 63 percent, compared with over 90 percent in Nor... more Breastfeeding initiation in Scotland in 2000 was 63 percent, compared with over 90 percent in Norway and Sweden. Although peer support is effective in improving exclusivity of breastfeeding in countries where over 80 percent of women initiate breastfeeding, the evidence for effectiveness in countries with lower initiation is uncertain. Our primary aim was to assess whether group-based and one-to-one peer breastfeeding coaching improves breastfeeding initiation and duration. Action research methodology was used to conduct an intervention study in 4 geographical postcode areas in rural northeast Scotland. Infant feeding outcomes at birth and hospital discharge; at 1, 2, and 6 weeks; and at 4 and 8 months were collected for 598 of 626 women with live births during a 9-month baseline period and for 557 of 592 women with live births during a 9-month intervention period. Groups met in 5 locations, with 266 groups meeting in the period when intervention women were eligible to attend. Data on place of birth and length of postnatal hospital stay were also collected. Control data from 10 other Health Board areas in Scotland were compared. An intention-to participate survey about coaching participation was completed by 206 of 345 women initiating breastfeeding. Group attendance data were collected by means of 266 group diaries. There was a significant increase in any breastfeeding of 6.8 percent from 34.3 to 41.1 percent (95% CI 1.2, 12.4) in the study population at 2 weeks after birth compared with a decline in any breastfeeding in the rest of Scotland of 0.4 percent from 44 to 43.6 percent (95% CI -1.2, 0.4). Breastfeeding rates increased compared with baseline rates at all time points until 8 months. However, the effect was not uniform across the 4 postcode areas and was not related to level of deprivation. Little difference was seen in receipt of information and knowledge about the availability of coaching among areas. All breastfeeding groups were well attended, popular, and considered helpful by participants. A minority of women (n = 14/206) participated in formal one-to-one coaching. Women who received antenatal, birth, and postnatal care from community midwife-led units were more likely to be breastfeeding at 2 weeks (p = 0.007) than women who received some or all care in district maternity units. Group-based and one-to-one peer coaching for pregnant women and breastfeeding mothers increased breastfeeding initiation and duration in an area with below average breastfeeding rates.
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Papers by Roisin Pill