maedeh masoudinejad
Noore Touba, IT, Alumnus
Background: Beta thalassemia major is the most prevalent genetic disease in Mazandaran province. The national prevention program is successful, however our patients grow older and their managements get more complicated. Paper based... more
Background: Beta thalassemia major is the most prevalent genetic disease in Mazandaran province. The national prevention program is successful, however our patients grow older and their managements get more complicated. Paper based clinical notes are being used and there are some electronic data banks mainly for financial matters. This registry (ETR Mazandaran) is designed to be a reliable data bank for epidemiologic and clinical data for beta thalassemia major patients living in the province. This registry will be a source for health system decision makers.
