British Journal of Occupational Therapy, Apr 12, 2023
Introduction: The British Journal of Occupational Therapy ( BJOT) recently introduced a requireme... more Introduction: The British Journal of Occupational Therapy ( BJOT) recently introduced a requirement for authors to report Patient and Public Involvement (PPI). The public and people using health and social care services have knowledge which holds value in research beyond use as data. Involvement in research process can help shape the generation of critical evidence informing policies and practices; however, little is known about prior PPI reporting. Method: A scoping review was conducted identifying public involvement in research published in BJOT between 2015 and 2021. An electronic search was conducted using key terms. Data were extracted in duplicate or triplicate using GRIPP2 short form checklist. Results: Twenty-five studies were identified which reported public involvement, this was 6% of research published in BJOT. Patients and public were mainly involved in study steering or advisory groups and their primary activity was developing or piloting study materials. There were low levels of reporting the aim, outcome and critical reflections on involvement activities. Main approaches to involvement were consultation (37%) and collaboration (30%). There was inconsistent use of language and terms. Recommendations: Consistent PPI reporting using Guidance for Reporting Involvement of Patients and the Public (GRIPP 2), critical reflection of impact of PPI, acknowledgement of public contributors, future scoping review investigating impact of BJOT PPI authorship guidelines.
Deciding Together is a public consultation by the NHS Newcastle Gateshead Clinical Commissioning ... more Deciding Together is a public consultation by the NHS Newcastle Gateshead Clinical Commissioning Group (CCG) which sought the views of local mental health services users and carers on the different ways specialist mental health services could be arranged. The CCG also gathered feedback from mental health professionals and service providers around the best ways to arrange services in the future. The variety of approaches used in this wider work included surveys, focus groups, in-depth interviews and the presentation of a series of scenarios to service users and carers. On behalf of Newcastle Gateshead CCG Northumbria University undertook work to design a tool and use it to conduct in-depth interviews. This report focusses on these in-depth interviews which captured the lived experience of both mental health service users and carers.
Menschen, die unter chronischen Einschrankungen leiden, sind dauerhaft auf die Unterstutzung von ... more Menschen, die unter chronischen Einschrankungen leiden, sind dauerhaft auf die Unterstutzung von Gesundheitsdiensten und sozialen Pflege- bzw. Gemeinschaftsdiensten angewiesen. In Grosbritannien hat das Department of Health die Erarbeitung inklusiver Ansatze vorgeschlagen, um sowohl den Betroffenen besser helfen als auch finanzielle Einsparungen aufseiten der Dienstleistungserbringer sicherstellen zu konnen. Vor diesem Hintergrund wurden Personen mit unterschiedlicher Gruppenzugehorigkeit (Nutzer/innen neuro-rehabilitativer Dienstleitungen, Dienstleistungsanbieter/innen, Personen, die in weiteren Unterstutzungsdiensten tatig sind sowie universitare Forscher/innen) zur Teilnahme in einem partizipativen Forschungsprojekt eingeladen, um gemeinsam herauszufinden, was Inklusion fur Menschen bedeuten konnte, die dauerhaft Gesundheitsdienste in Anspruch nehmen mussen. Die folgenden Prozesse liefen herkommlichen Vorstellungen von Inklusion und inklusiver Praxis tlw. zuwider: Es wurde deutli...
Assumptions are our taken for granted interpretation of the world. They are identified as importa... more Assumptions are our taken for granted interpretation of the world. They are identified as important in reasoning, sense making, behaviour and action. Anecdotal evidence from users of neurological rehabilitation services suggest that assumptions influence how they are perceived and related to, impacting on their experiences of inclusion. This study investigates the assumptions held by service users and staff about neurological rehabilitation, examines their influence on inclusion and explores the conditions influencing change in assumptions. This doctoral study drew largely on data generated as part of a funded research project, which investigated perceptions of inclusion and inclusive practice in neurological rehabilitation. Both the funded research project and this study adopted a participatory action research approach, using photography, mapping, diaries, interviews and focus groups to generate data. Additional data was generated for this doctoral study through a workshop and refl...
British Journal of Occupational Therapy, Apr 12, 2023
Introduction: The British Journal of Occupational Therapy ( BJOT) recently introduced a requireme... more Introduction: The British Journal of Occupational Therapy ( BJOT) recently introduced a requirement for authors to report Patient and Public Involvement (PPI). The public and people using health and social care services have knowledge which holds value in research beyond use as data. Involvement in research process can help shape the generation of critical evidence informing policies and practices; however, little is known about prior PPI reporting. Method: A scoping review was conducted identifying public involvement in research published in BJOT between 2015 and 2021. An electronic search was conducted using key terms. Data were extracted in duplicate or triplicate using GRIPP2 short form checklist. Results: Twenty-five studies were identified which reported public involvement, this was 6% of research published in BJOT. Patients and public were mainly involved in study steering or advisory groups and their primary activity was developing or piloting study materials. There were low levels of reporting the aim, outcome and critical reflections on involvement activities. Main approaches to involvement were consultation (37%) and collaboration (30%). There was inconsistent use of language and terms. Recommendations: Consistent PPI reporting using Guidance for Reporting Involvement of Patients and the Public (GRIPP 2), critical reflection of impact of PPI, acknowledgement of public contributors, future scoping review investigating impact of BJOT PPI authorship guidelines.
Deciding Together is a public consultation by the NHS Newcastle Gateshead Clinical Commissioning ... more Deciding Together is a public consultation by the NHS Newcastle Gateshead Clinical Commissioning Group (CCG) which sought the views of local mental health services users and carers on the different ways specialist mental health services could be arranged. The CCG also gathered feedback from mental health professionals and service providers around the best ways to arrange services in the future. The variety of approaches used in this wider work included surveys, focus groups, in-depth interviews and the presentation of a series of scenarios to service users and carers. On behalf of Newcastle Gateshead CCG Northumbria University undertook work to design a tool and use it to conduct in-depth interviews. This report focusses on these in-depth interviews which captured the lived experience of both mental health service users and carers.
Menschen, die unter chronischen Einschrankungen leiden, sind dauerhaft auf die Unterstutzung von ... more Menschen, die unter chronischen Einschrankungen leiden, sind dauerhaft auf die Unterstutzung von Gesundheitsdiensten und sozialen Pflege- bzw. Gemeinschaftsdiensten angewiesen. In Grosbritannien hat das Department of Health die Erarbeitung inklusiver Ansatze vorgeschlagen, um sowohl den Betroffenen besser helfen als auch finanzielle Einsparungen aufseiten der Dienstleistungserbringer sicherstellen zu konnen. Vor diesem Hintergrund wurden Personen mit unterschiedlicher Gruppenzugehorigkeit (Nutzer/innen neuro-rehabilitativer Dienstleitungen, Dienstleistungsanbieter/innen, Personen, die in weiteren Unterstutzungsdiensten tatig sind sowie universitare Forscher/innen) zur Teilnahme in einem partizipativen Forschungsprojekt eingeladen, um gemeinsam herauszufinden, was Inklusion fur Menschen bedeuten konnte, die dauerhaft Gesundheitsdienste in Anspruch nehmen mussen. Die folgenden Prozesse liefen herkommlichen Vorstellungen von Inklusion und inklusiver Praxis tlw. zuwider: Es wurde deutli...
Assumptions are our taken for granted interpretation of the world. They are identified as importa... more Assumptions are our taken for granted interpretation of the world. They are identified as important in reasoning, sense making, behaviour and action. Anecdotal evidence from users of neurological rehabilitation services suggest that assumptions influence how they are perceived and related to, impacting on their experiences of inclusion. This study investigates the assumptions held by service users and staff about neurological rehabilitation, examines their influence on inclusion and explores the conditions influencing change in assumptions. This doctoral study drew largely on data generated as part of a funded research project, which investigated perceptions of inclusion and inclusive practice in neurological rehabilitation. Both the funded research project and this study adopted a participatory action research approach, using photography, mapping, diaries, interviews and focus groups to generate data. Additional data was generated for this doctoral study through a workshop and refl...
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Papers by Helen Atkin