Books by Courtney Addison
Personhood in the age of Biolegality, 2020
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Published peer reviewed articles by Courtney Addison
What and where is ethics in gene therapy? Historical debates have identified a set of ethical iss... more What and where is ethics in gene therapy? Historical debates have identified a set of ethical issues with the field, and current regulatory systems presume a discrete ethics that can be achieved or protected. Resisting attempts at demarcation or resolution, we use the notions of “ordinary” or “everyday” ethics to develop a better understanding of the complexities of experimental gene therapy for patients, families, and practitioners and create richer imaginings of ethics in the gene therapy sphere. Drawing on ethnographic research in several clinical trials, we show that patients/parents can acquire some control in difficult medical situations, and practitioners can attune their care to their patients’ needs. The human provenance of gene therapy practice, and the irreducible sociality of ethics, means that understanding the ethics of this medical field also requires understanding the everyday worlds and relationships of those at its heart.
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New Genetics and Society
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Human gene therapy aims to cure disease by inserting or editing the DNA of patients with genetic ... more Human gene therapy aims to cure disease by inserting or editing the DNA of patients with genetic conditions. Since foundational genetic techniques came into use in the 1970s, the field has developed to the point that now three therapies have market approval, and over 1800 clinical trials have been initiated. In this paper I present a brief history of human gene therapy, showing how the ethical and practical viability of the field was achieved by key scientific and regulatory actors. These parties carefully articulated gene therapy's scope, limiting it to therapeutic interventions on somatic cells, and cultivated alliances and divisions that bolstered the field's legitimacy. At times these measures faltered, and then practitioners and sometimes patients would invoke an ethical imperative, posing gene therapy as the best solution to life and death problems. I suggest that we consider how boundary-work stretches out from science to enlist diverse publics, social formations, and the natural world in the pursuit of legitimacy.
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Science, 2015
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Other writing by Courtney Addison
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Conference presentations by Courtney Addison
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MA dissertation by Courtney Addison
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Books by Courtney Addison
Published peer reviewed articles by Courtney Addison
Other writing by Courtney Addison
Access at http://somatosphere.net/2015/06/ethics-etc-in-a-box-how-a-disinfectant-spray-became-my-friend-and-ally.html
Conference presentations by Courtney Addison
MA dissertation by Courtney Addison
Access at http://somatosphere.net/2015/06/ethics-etc-in-a-box-how-a-disinfectant-spray-became-my-friend-and-ally.html