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2020
Background: The resources involved in delivering a clinical trial in residential aged care facilities (RACFs) are significant and the success of a trial is dependent upon adequate planning, including appropriate timelines for each component of the study and the required budget. The main aim of this paper is to describe process and resource assessment during recruitment, collection of outcome measures and intervention delivery and present learnings and considerations for conducting trials in RACFs with people living with dementia. Methods: We collected data across 24 clusters in 12 RACFs over 18 months during a cluster randomised controlled trial which was testing the effectiveness of music interventions in people living with dementia. Data were collected on resources required for recruitment and assessment of baseline data, as well as data on reasons for participant non-attendance at the interventions. Results: Results show that time between contacting next of kin and receiving form...
Contemporary Clinical Trials Communications
Resource assessment in trials undertaken in residential care homes: Experiences from the Australian MIDDEL cluster randomised controlled trial research team2020 •
2008 •
Residents of residential aged care facilities live out the last days of their lives in an institutional environment. These facilities can potentially liberate and/or constrain. The voice of actual residents has been little explored to date. Critical gerontology, which underpins the study, demands that researchers endeavour to understand the lived experience of the older person. This thesis focuses on the impact of the built environment on older people (without dementia) who live in residential aged care facilities. Based on original research undertaken in Victoria and some of the latest thinking from Australia and overseas the study was undertaken using mixed methods. The research involved a review of the literature, in depth small group interviews with residents, staff, family and carers, and surveys and a best practice forum with architects and managers. The research identified and explored the key areas of concern for each of these stakeholders, considering how residential aged c...
2008 •
This research focused on the physical design (architectural) needs of older people who live in nursing homes in Australia - it including interviews with residents, staff, families and consultations with architects and a survey of aged care managers.
2016 •
2013 •
Journal of Empirical …
Ethical Perspectives on Emerging Assistive Technologies: Insights From Focus Groups With Stakeholders In Long-Term Care Facilities2009 •
2019 •
International Journal of Nursing Studies
“Behind Closed Doors with open minds?”: A qualitative study exploring nursing home staff’s narratives towards their roles and duties within the context of sexuality in dementia2017 •
BMC Geriatrics
Mobile X-ray services in nursing homes as an enabler to healthcare-in-place for residents: informal carers’ viewsBackground Informal carers (ICs) of residents living in nursing homes (NH) have a key role in the care of residents, including making decisions about and providing care. As radiology has a role in decision making about care, it is important to understand IC’s perspectives about resident’s use of mobile X-ray services (MXS). The aim was to explore the perspectives of ICs of residents living in nursing homes about the use of MXS. Methods From November 2020 to February 2021, twenty ICs of residents living in four nursing homes in different areas of one Australian city participated. Their perspectives of MXS, including benefits and barriers, were explored in semi-structured interviews. Data were analysed using thematic analysis. Results ICs were resident’s children (80%) and spouses (20%). One resident had received a MXS. Four themes were developed: (1) a priority for resident well-being, where ICs were positive about using MXS, because residents could receive healthcare without transfe...
What counts as consent? Sexuality and ethical deliberation in residential aged care
What counts as consent? Sexuality and ethical deliberation in residential aged care Final Project Report2020 •
Canadian Journal on Aging / La Revue canadienne du vieillissement
Obtaining Informed Consent from Continuing Care Residents: Issues and Recommendations2001 •
Ethics and Social Welfare
Ethical Underpinnings of Sexuality Policies in Aged Care: Centralising Dignity2018 •
2019 •
2006 •
Journal of Aging Studies
The missing family: Staff perspectives on and responses to familial noninvolvement in two diverse nursing homes2006 •
BMC health services research
Nursing staff interactions during the older residents' transition into long-term care facility in a nursing home in rural Norway: an ethnographic study2015 •
2011 •
2021 •
2021 •
2017 •
Journal of Contemporary Ethnography
Negotiating Boundaries and RolesChallenges Faced by the Nursing Home Ethnographer2008 •
Research in Gerontological Nursing
Informed Consent to Research in Long-Term Care Settings2009 •
2013 •
International Journal of Environmental Research and Public Health
Palliative Care, Intimacy, and Sexual Expression in the Older Adult Residential Care Context: “Living until You Don’t”2022 •
2020 •
2010 •
2011 •
2018 •
Health Technology Assessment
Probiotics for Antibiotic-Associated Diarrhoea (PAAD): a prospective observational study of antibiotic-associated diarrhoea (including Clostridium difficile-associated diarrhoea) in care homes2014 •
International Journal of Geriatric Psychiatry
Pain in care home residents with dementia: an exploration of frequency, prescribing and relatives' perspectives2014 •
Journal of Clinical Nursing
Experiences faced by next of kin during their older family members’ transition into long-term care in a Norwegian nursing home2013 •
The ITHACA Toolkit for monitoring Human Rights and General Health Care in mental health and social care institutions
The ITHACA Toolkit for monitoring Human Rights and General Health Care in mental health and social care institutions2010 •
2011 •
2014 •