SURVIVED: One Millimetre at a Time
By Pamela Dunn
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About this ebook
At the age of 43, Dr Pam was a fit and healthy chiropractor dedicated to her profession and her patients. Along with her career she also juggled family commitments, a wonderful social life and lived her days to the fullest.
After another busy day in the office, she was feeling a little under the weather. Thinking it was just the flu, she a
Pamela Dunn
Dr Pamela Dunn was born and raised in Michigan in the United States. She has lived in Australia for over 25 years. She graduated as a chiropractor from RMIT, in Melbourne, Victoria. She spent 20 years as a practicing chiropractor in Perth, Western Australia. She is currently using low level laser therapy (lLLLT) to help patients in various forms of natural healing. She is inspired to bring more awareness to Guillain Barre Syndrome and other autoimmune conditions.
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SURVIVED - Pamela Dunn
CHAPTER ONE – GBS WTF
It is during our darkest moments that we must focus to see the light.
~ Aristotle
A BIT OF BACKGROUND
GBS WTF is the original title I would like to have named this book. It deserves it.
Guillain Barre Syndrome (pronounced gee-yan-buh-rey), or GBS for short, is a rare, relatively unknown syndrome that most people haven’t heard of. Unless you know someone who has had it, or you have unfortunately had it yourself, chances are you haven’t heard of it. It’s similar to Multiple Sclerosis (MS) except in MS the body slowly deteriorates with little to no chance of reversal; in GBS you hit rock bottom and have an opportunity to slowly get better and recover.
I knew of it because of my chiropractic background. I studied it in Neurology when I went to Chiropractic University. In the 5-year chiropractic program, it probably got about 10-15 minutes of a mention on the day in class. Ironically, I remember thinking at the time, that would really be awful – to only be able to ‘think & blink’.
Almost 20 years later, I found myself in that exact situation.
GBS is an autoimmune disorder where the body’s immune system attacks the nervous system and in turn demyelinates the neurons (nerve cells). Demyelination is when the myelin, or protective coating, is stripped from the nerves. The nerves need the myelin sheaths for the transmission of electrical impulses. When the nerves can’t communicate with the brain on the superhighway from brain to spinal cord and back - then there are numerous complications that follow. The nervous system ends up in a state of extreme chaos, including paralysation.
A myriad of symptoms and treatments follow, depending on the severity and depending on the individual. I will share my personal experience throughout this book.
The irony here is the nervous system involvement. For me, as a chiropractor, this is the most important system of the body. Since I was a child of 9 years old, I dedicated my life’s purpose to helping people by adjusting their spines and extremities to assist in relieving nerve interference. My GBS experience furthered my appreciation of the nervous system and human body even more.
I have never valued my health and wellbeing more than I do now, every single day. GBS has given me a new outlook on life, and I try to remember to take it day by day, which GBS has taught me literally…one millimetre at a time.
THE BEGINNING
My life was busy. My life had its stresses and strains, but doesn’t everyone’s? I felt I was managing it all pretty well. I was a daughter, sister, wife, friend and mother of a 16 year-old daughter at the time. I had a busy suburban chiropractic practice and a country chiropractic practice. I managed to fit in my friends on the social calendar and make time to enjoy life the best I could.
(Christmas 2012 – Mark, Marina and I)
Admittedly, I had been running on all cylinders but I thought that was normal. I was in my early 40s and felt I was juggling everything quite efficiently. I’m the type of person that doesn’t complain, tries to keep a positive attitude, eat well, exercise, sleep well and generally look after myself the best I can. I have a very independent nature, and my family and friends would agree I can be quite stubborn too.
(April 2013 - 3 months before GBS diagnosis)
The weekend before I was diagnosed with GBS, I travelled to Sydney to attend a workshop and ended up having free time to have a long weekend by myself. I ended up having a wonderful time and enjoyed it immensely as I truly enjoy my own company. I saw aspects of this amazing city through different eyes. I was in a different place in my life compared to years ago when different priorities were taking up my time.
(July 2013 – weekend before GBS diagnosis)
I had some personal reflection time during the free time from the workshop that allowed me to do some soul searching and connect with nature.
In hindsight, I did have some pretty significant stressful events leading up to my diagnosis of GBS, yet I still believed that I was coping. I wasn’t able to identify how much of an impact these events may or may not have had on my health. After all, I was eating well and exercising. Looking after the physical, but was I looking after the mental/emotional state?
So I put my metaphoric ‘Superwoman cape’ back on and got back to my ‘normal’ routine.
Flying back to Perth (29 July 2013), I had mixed feelings of not wanting to leave that day due to wanting more time in Sydney, versus getting back to the world that was so busy and hectic. Whilst I was happy to see my husband Mark and my daughter Marina, I was apprehensive about going back to work the very next day, even though I loved the drive out to my country practice and the people from the town.
I felt sluggish that Tuesday, but put it down to ‘needing another day’ to unwind from the trip before jumping back into it. As the years go by, I am reminded that this is becoming more and more important. My dear friend commented I looked tired but again I blamed it on ‘jet lag’ from travelling over east to Sydney and back over the weekend.
The next day (31 July 2013) was scheduled to be my last full Wednesday in my chiropractic practice. I had organised a few weeks before to have that as the last full day, as in starting at 8:30am and finishing by 7:00pm. I was listening to my body and such a long day was becoming increasingly more difficult. I felt less than average that day and even though I went home at lunchtime and lay down for an hour, I still struggled that afternoon. I noticed that I had weird sensations in my legs from the knees down while I was standing and treating patients. These were weird sensations that I had never experienced before. Both legs were affected equally and I felt like I needed to sit down or even lay down, but kept going as there were patients scheduled.
When I finished with my last patients, I told the receptionist I was not feeling well and that I was going home to have a bath and go straight to bed. Thursday was my normal day off and whilst I had numerous errands and plans, I cancelled all of them and told myself I was staying home to rest and replenish the energy I was lacking. I did that but I didn’t feel any better. In fact, I was slowly getting worse. Normally I would make some healthy soup, drink herbal teas, and take some Chinese herbs, thinking that I was getting a flu or cold, and rest. Usually 24 hours later I would be fine. Unfortunately this was not the case. I felt quite weak by that Thursday afternoon as well. A bit confused by this, I actually felt unable to go into the office the next day to see patients, and for the first time in my almost 20 year long career as a chiropractor, I had the receptionist cancel my patients due to my not being well enough to attend. Even when I slammed my foot in the door many years ago and broke my toe, I still went to the office with a swollen foot, limping to see patients. Some people may think that is ludicrous, but I know myself and I was capable then, but not this time.
Friday