Inclusion North Bulletin

Issue Number 157

24th January 2018
In this bulletin you will hear about some of the work
Inclusion North is doing and information about what is
happening across the country.

Inclusion North News

A Fond Farewell to Barrie Warner

Barrie Warner has been a Director at Inclusion North

for many years.

He is retiring which we understand but we will miss

him.

Barrie has brought his determination, expertise and

support to the role.

This comes from being a family carer in Wakefield and

his background in HR services. He also was part of a
team that set up a local horticultural service back in
1992 that is still going strong!

We will miss Barrie’s persistence, support and

knowledge from our Board of Directors.
 Inclusion North are getting a new website

One of the important things for us to do this year is

change our website.

We have set up a Steering Group to make the

decisions about a new website.

The group has people with a learning disability, family

carers and people who work for Inclusion North on it.

What is wrong with our website now?

• There is too much on it.

• It is too hard to find anything.
• You can’t search for things on it
• It doesn’t work well on mobile phones.
• It isn’t very easy to read
• It doesn’t really say who we are and what we do
• It doesn’t show all the great work we are doing

What do we want from a new website?

• Makes it clear who we are and what we do

• Very easy to use and find things
• It works on a mobile phone
• It is easy for the team to update
• It links to our Twitter and Facebook
• It looks modern and interesting
• It is easy to update

The steering group are choosing a company to build

this for us 2nd February.
We will keep you updated on what is happening
through the Bulletin
 Talking Travel Takeover

What’s it all about?

During the 26th February – 2nd March Inclusion North

will be focusing on travel and the barriers to travel for
people with a learning disability, autism or both.

This will involve:

• Lots of travel twittering

• Special ‘Travel’ bulletin

• New Talking Travel section on the Inclusion North

website

• #sharedjourneys feature and films

We need your help!! Get involved in talking about

travel
We need your stories for the bulletin. Let us know your
stories about:
 • Shared journeys - have you had a good
experience? Have you had a bad experience?
What makes a good and bad journey and how
does it affect your day? Have you got to know
other passengers on your journey? Have you
made friendships?

• We want your top tips about travel

• We want to know if you use any apps for travel,

and what you like and don’t like about them

We also want to know if your group will do any

activities around travel during our Talking Travel
Takeover week?
When do we need this by?

By Wednesday 14th February at 5pm.

We will try to feature as many of your stories as

possible.

Who do I send the information to?

Either, Kirsty Morgan or Lucy Virgo

Email kirsty@inclusionnorth.org
or Telephone 07539 063 467

Email lucyvirgo@inclusionnorth.org
or Telephone 07944 185 771
 GDPR – General Data Protection Regulation

There are new rules that we must follow about how we

look after your personal information.

Personal Information is your Name, Address, Email

Address, and anything that means people can find out
who you are and things about you.

We call this your Contact Details.

The new rules cover work email addresses as well as

personal email addresses.

These rules are the Law and Inclusion North needs to

make some changes to make sure we are doing things
right.

We need to keep a record of:

You agreeing to be on our Bulletin Mailing List

Or
Asking to be removed from our Bulletin Mailing List
And
Asking to receive any other information from Inclusion
North that we think would be good for you to know
about.

These rules have to be in place by the 26th May 2018.

To get ready for the new rules we are asking that you
let us know:
• If you still want to receive the Bulletin
 • If you no longer want to receive the Bulletin

• If you want to receive other Inclusion North

information that we think would be good for you to
know about

• Information given to us from other people or

organisations we think would be good for you to
know about

If you can email samta@inclusionnorth.org with the

completed form

or post to
Sam Dhruv, Administrator
Inclusion North, Woodhouse Community Centre
197 Woodhouse Street, Leeds, LS6 2NY

If you do not let us know we will have to remove you

from our list at the end of April 2018.

We keep your contact details safe and store it for 5

years. We do this even if you say you no longer want
to receive information from us, unless you ask for it to
be removed from our records.

We keep your contact details to make sure you get the

bulletin and other information you agree to receive
from Inclusion North.
The form is attached to the Email or included with your
paper copy of the Bulletin.
 Developing our skills together

On Wednesday 17th January, a group of Tomorrow’s

Leaders graduates met with Kellie and Angela.
They talked about how we can all support and work
together to develop our leadership skills.

We agreed to:

• Use our own experience and expertise – we have

loads of skills and talents that we can share with
each other
• Work in creative ways – we don’t want every
session to be like a training session. We want to
have workshops, sharing events and use different
venues.
• Pay some of the graduates to make sure
everyone gets the invites, the sessions are well
organised and that someone is able to host them.

Are you a Tomorrow’s Leaders graduate that couldn’t

make it to the session?

We would still like to hear your ideas about leadership

development.

Please contact Angela

email:angela@inclusionnorth.org
or telephone: 07487 729237
 Family Carers Survey – Summary report

Inclusion North has been working to understand more

of the issues faced by family carers of adults with a
learning disability, autism or both.
Part of this work has been done through a survey.
There were 45 responses:
36 from family carers
1 from a professional who works with families
8 who are both
We are using this information to think how Inclusion
North offers support to family carers.
Family Advisors will work on this between now and
April 2018 and we will use it to plan our work for the
rest of the year.

This is what we found:

Issue People in agreement
Reduced funding 34
Communication 31
Understanding of professionals 29
Invisible carers 27
Isolation 23
Welfare benefits 23
Accuracy of online information 22
Move from children to
adult services, transition 20
Accessing direct payments 20
Transport 18
Staff, getting and keeping them 17
Employment 16
Transforming Care 9

Family Carers also told us about other things that

were difficult for them -

• Process and time it takes for diagnosis and the

knowledge those involved have of autism
• Cares needs not being recognised.
• Training for supporters that is specific to their
relative
• Meaningful activities for their relative
• Values and culture of services leading to distrust
and a lack of openness
• How the Care Act is being used
• Opportunities for carers to come together
• Individuals and carers not fully involved care
decisions and arrangements

What is Inclusion North going to do about what we

have been told?

1. Follow up with areas where there was no

response
2. Inclusion North bulletin to give information each
month about the difficulties identified by carers
3. Family Carers section of the Inclusion North
website updated to provide better information
4. Care Act training
5. Find an opportunity for Family Carers to come
together two times per year
6. Continue to encourage co-production in local
areas through all our connections and work
7. Plan the rest of our work this year around the
most important things family carers have told us
 Policy News
SCIE – Growing innovative models of health care
and support for adults

SCIE recommendations for new models of health care

and support for adults.

SCIE are the Social Care Institute for Excellence they

have some recommendations for new models of health
care and support for adults.

They think that the government need to have

a health and care system that has a plan for the future.
The plan should:
• Be good and person centred
• Look at what works well and use it to make things
better for people
• Make sure there is money to do this
• Make sure every service uses things that work
well
They think the Government and organisations they
work with across the country should:
• Look at the Care Act vision for wellbeing
• Look at new ways to pay providers

• Create new funds to test new ways of working in

local areas

• Work with user led organisations to make sure

that people who use personal budgets and
personal health budgets holders can make real
choices about their budgets
 • Share ideas with everyone

• Have a learning network with information, training

and support, to help local authorities and local
partners test out new ideas and share what works
well

• Develop national measuring tools for wellbeing

that can be used by providers and commissioners

• Have one place to share what works well in

health care and support

Local areas should:

• Learn from others and change ways of working

using person and community centred approaches

• Have the money to try new ideas and if they work

have the money to continue to do the things that
work well

• For commissioning plans to be co-produced with

people who use the services

• Make sure there is money for the things that work

well and show why the money should be spent on
the things that work well

• Pay providers who help people to have good lives

by helping them to be independent, look after
themselves well and have good support from
people around them

You can see the full report here

http://bit.ly/2mZ4Joa
 Stopping Over-Medication of People with a
learning disability, autism or both

The STOMP group is run by the NHS England

Learning Disability Programme.

This is a short round-up of what’s happening around

this project.

Derbyshire Healthcare NHS Foundation Trust has

made a set of 5 short films about STOMP. To view
these films please click on the link
http://bit.ly/2FXk0gT

STOMP will be having some events in different places

– our local events are:

8th March
At NAS Professional Conference, Harrogate

9th March
At Yorkshire & Humber Conference, Lee

For more information, please email

sarah.bowes1@nhs.net
 Health News
Transforming Communities – Your right to a
good life

This event is about some of the work of the

Transforming Care programme and what it means for
people with a learning disability, autism or both and
their families.

It is about people’s rights and empowering people and

families to get a good life in their local communities, for
years to come.

There will be talks, workshops, information and rooms

where you can chill out for a while.

Aims for the day

• Empower people to know about their rights
• Share good examples of projects and people
living better lives
• Help make sure the work keeps happening, even
after the Transforming Care finishes
• Share information and resources.

Its taking place on

Tuesday, 6th March 2018

From 10 am until 3:30 pm

At
The Studio
Cannon Street
Birmingham

For booking your place, please click on the link

http://bit.ly/2FLmkHD

Or Telephone 0113 825 1077

Booking is required, there is a limit of 3 places per

booking.

If you need more places than this, please contact

them.

If you need help with the cost of your travel, please

telephone them on
0113 825 1077
or
email england.improvinghealthquality@nhs.net
You can also ask them to book your train tickets.

If you have any access needs or questions about the

event or venue, please let them know as soon as
possible.
 NHS England

This is a NHS England Learning Disability and Autism

Forum event.

They will talk about letting NHS staff know you need
support.

They want to share about how the NHS can share

information about your support needs.

The event is for

• People with a learning disability
• Autistic people
• Families and carers

It will be on Thursday 8th February, 2018.

At Manchester United Football Club

Manchester

You can watch a video of this invitation on

http://bit.ly/2l0lXQf

The venue is accessible.

To book a place, please click on the link

http://bit.ly/2CXw3sq

For an easy read booking form, please email

engage@nhs.net

Or telephone 0113 824 9686.

Please book your place before 24th January 2018.

 Feeling Down – Looking After My Mental
Health

The Foundation for people with a learning disability

aims to make sure that people with a learning disability
continue to have better lives.

They have a report about the mental health of people

with a learning disability and can offer support and
information to them and to their families about getting
help to use mental health services.

This guide has been made because people with a

learning disability said that they want more support and
control over their own mental health.

This guide talks about why it is important to look after

your mental health.

This guide talks about

1. What is mental health

• What does it feel like to be down, worried or
depressed
• Why you might feel down, worried or depressed
• How you feel when you are down, worried or
depressed
• Why sleep is important

2. How to keep yourself feeling well

3. What to do when you are worried about your mental
health and who can you talk to?

Some places that might be able to help

• Citizen Advice Bureau

• Mencap
• Community Duty Social worker
• Samaritans
• Your doctor
• IAPT (Improving Access to Psychological
Therapies)

4. Planning a visit to your GP

• GP Information Pack
• Tips to help you to prepare for your visit to your GP

5. GP Information Pack
• How to communicate
• Questions for your GP
• Medicine and Tablet list
• Questions for your GP to answer
• GP visit record

To view this guide in Easy read please contact

Foundation for people with a Learning Disability

By Telephone 020 7803 1100

Or Email info@fpld.org.uk

Website www.learningdisabilities.org.uk
 Yorkshire And Humber Events
Come and try Mixed Ability Bowls

This is a fun, free and friendly event for people of all

ages and abilities.

Mixed Ability activities aim to help with health and

wellbeing through exercise and making friends. It
allows people who face a range of barriers to take part.
To join clubs, teams and sports and play alongside
people without a disability, promoting physical fitness,
belonging and a sense of wellbeing.

At
York and District Indoor Bowls Club
(Opposite LIDL)
302 Thanet Road
York
YO24 2NW

Players include families, carers and people recovering

from or living with illness or disability, aged 9 to 90.

All equipment will be provided

On
31st January 2018
From 1 pm until 4 pm

For more information, Telephone 01904 704180

Or website http://bit.ly/2EU8y4c
 Mind the Gap

Skip Rap is an angry love song about grit, endurance

and creativity.

Alan Clay delivers the performance about what it’s like

to be treated like trash and how you find your way out
of the junk in his debut solo show Sip Rap.

Skip Rap explores how the experiences clash and

merge and continue to shape art, views and life.

On stage, Alan will be joined by MC, poet and theatre-

maker Testament (Blake Remixed, WOKE)

It will take place

On Friday 2nd and 3rd February 2018.

From 7:30 pm until 8:30 pm

At
MTG Studios
Silk Warehouse
Patent Street
Bradford
BD9 4SA

This show is suitable for 14+ age

Ticket Price: £10 / £8

For booking tickets, please click on the link

http://bit.ly/2DrmaqO
 Storytelling Event

CHANGE is a human rights organisation led by people

with a learning disability

CHANGE is having a storyline event about decision

making.

• Storytelling is an important way of finding out about

peoples lives
• Decision making is important, and it affects our life
• Sometimes we make decisions for ourselves
• Sometimes other people might make decisions for
us

This event will take place in Leeds

At

Holiday Inn Express

Leeds City Centre

Leeds

On Wednesday, 31st January 2017

From 10:30 am until 4:00 pm

Refreshments and Lunch will be provided.

They want to hear your stories. Nobody has to tell a
story if they don’t want to.

They will make a film about the day, if you don’t want
to be filmed just tell them. Nobody will ask why.

The film will tell a story about people with a learning

disability and their experiences of decision making. It
will be shared on the internet.

For more information about the film,

please contact Lucy Series

telephone 029 2087 4342

Or

Email SeriesL@cardiff.ac.uk

If you want to bring someone to support you, please tell

them in advance so they can make sure there is space
and food for them.

Please tell them in advance, if you need special food or

there is anything you do not eat.

For more information and if you want to attend,

please contact Shanika

Email shanika@changepeople.org

Or

Telephone 0113 242 6619

 Valentine’s Day Planning Party
Connect in the North

Connect in the North are planning a Valentine’s Day

Party.
This is a chance for you to tell them how they can make
people with a learning disability lives better.

This is a chance to have fun.

Lunch will be provided free.

It will take place on:

Wednesday, 14th February 2018

From 10 am until 2:30 pm

To book your place, please contact:

Connect in the North
Bridge House
Balm Road
Leeds LS10 2TP
Or
Telephone
0113 270 3233
 Learning Disability Dance Group

Dance Action Zone Leeds (DAZL) have a new

Inclusive Competitive Dance Team.

The DAZL Diamond Inclusive Dance Team.

Competitive Dance means going to competitions to

dance.

The dancing is Cheer and Urban Dance.

The dance team is for people with a learning disability

aged 14 years to 25 years.

The team classes will start on Tuesday 6th February

2018.

The team will meet every Tuesday.

From 5pm until 6.30pm

At Middleton Community Centre

Middleton Park Avenue
Leeds
LS10 3ST

There is a £1 contribution to each session.

The first competition will be in Leeds on the 9th and

10th June.

For more information

Telephone 0751 9018675

Email community@dazl.org.uk
 North East Events
Mental Health Conference

Sunderland People First are working with an

organisation called Time to Change.

Time to Change help people think and talk about mental

health.

People with a learning disability autism or both may find

it difficult to talk about mental health or find out about
support.

They want to listen to people with a learning disability,

autism or both about mental health. They would like to
use people’s experiences to change how others think
and talk about mental health.

There will be lots of activities and ways that people can

share their thoughts and experiences during the day.

This is taking place on:

Friday, 9th March 2018

From 10 am until 3 pm

At
Leechmere Training Centre

Lunch will be provided.

To book your place,

please telephone 0191 5214123
 Impact Youth Group

Tree Tops Children’s Occupational Therapy have a

group. This group is about helping people who suffer
from anxiety, low self-esteem, poor social skills and
socialising issues.

Aims of the Group are

• Provide a secret Facebook account where young
adults can talk to other people in a confidential
forum.

• To share information and experiences, which

allow support to be given to members.

• Meet regularly so young adults can discuss and

pass information, which will help all members in
their daily lives

• Meet with the members to develop their social

skills through interaction, this will improve their
quality of life.

To join or for more information,

email impactyouthgroup18@gmail.com
 The Opportunity Café

The Opportunity Café opened during Learning

Disability Week in 2017.
This Café is run by people with a learning disability.
The North East Cumbria Learning Disability Network
along with NHS England took the opportunity to re-
open the café with a focus on creating much needed
jobs for people with a learning disability.
It is located at
4 The Waterfront, Newburn
Newcastle Upon Tyne
NE15 8NY
You can find a small film about the Opportunity Café at
the NHS England website, please click on the link to
view this film http://bit.ly/2FQNNYC

What is coming up next

26th February Talking Travel Takeover

until 2nd March

If you would like to know more about any of these

events, contact Sam on 0113 244 4792

Or

email samta@inclusionnorth.org
If you would like any information on any of our
meetings, training or projects you can contact the
office on:
Tel: 0113 244 4792

E-mail: info@inclusionnorth.org

Or you can write to us at:

Inclusion North CIC
Woodhouse Community Centre
197 Woodhouse Street
Leeds, LS6 2NY

You can visit our website at: www.inclusionnorth.org

Or you can contact any member of the Inclusion North

team:

Karen Parry
Chief Executive Officer
Tel: 07375 034291
Email: karen@inclusionnorth.org

Kellie Woodley
Tel: 07876 145 390
Email: Kellie@inclusionnorth.org

Lucy Virgo
Tel: 07944 185771
Email: Lucyvirgo@inclusionnorth.org
Angela Ellis
Tel: 07487 729237
Email: Angela@inclusionnorth.org

Kirsty Morgan
Tel: 07539 063467
Email: kirsty@inclusionnorth.org

Rebecca Cole
Tel: 07496 229661
Email: rebecca@inclusionnorth.org

Melissa Peacock
Tel: 0113 2444792
Email: melissa@inclusionnorth.org

Sam Dhruv
Tel: 0113 2444792
Email: samta@inclusionnorth.org

Linda Dickinson
Tel: 0113 2444792
Email: linda@inclusionnorth.org
Shain Wells
Tel: 0113 2444792
Email: shain@inclusionnorth.org

Sandy Marshall
Tel: 07767776125
Email: sandy@inclusionnorth.org

Gill Cline
Tel: 0113 2444792
Email: gill@inclusionnorth.org
Inclusion North Member Areas 2017-18

If you live in one of these areas, you can come to our

member events.

Yorkshire and the Humber

Barnsley
Bradford
Calderdale
Doncaster
Leeds
North Lincolnshire
North Yorkshire
Sheffield
Wakefield

North East

Darlington
Durham
Gateshead
Hartlepool
Middlesbrough
Newcastle
North Tyneside
Northumberland
Redcar and Cleveland
South Tyneside
Stockton
Sunderland