Planning Life After High School For Students On The Autism Spectrum
Planning Life After High School For Students On The Autism Spectrum
Planning Life After High School For Students On The Autism Spectrum
A Guide for
Tennessee Families
Introduction
You and your family have already travelled a journey from a
diagnosis of an autism spectrum disorder (ASD) through health
services, early intervention, and special education. You have
navigated your way through many specialized services. You have
learned to be your child’s number one advocate. Wherever your
student may be on the spectrum, you have seen progress and
you have contributed to that progress. Take time to celebrate all
that you’ve accomplished together.
The next step is for your student and you to begin preparing for
your student’s transition into adulthood. Young people on the
autism spectrum have challenges similar to those that other
youth face, as well as individual challenges related to ASD.
There is a lot to consider: further education or training, work, housing,
transportation, recreation, friendships, finances, and support services.
This guide is intended to help your family start early to plan for the future.
The guide includes answers to questions that youth and family members
ask, plus resources for additional information.
How do services for adults with ASD differ from those for children?
Based on the federal Individuals with Disabilities Education Act (IDEA), once students on the autism
spectrum are determined to be eligible, they are entitled to receive special education services through
the year when the student turns 22. After students complete secondary education, they are no longer
entitled to services. Instead they must meet varying eligibility requirements for adult services. An adult
may meet eligibility criteria for services in one agency but not in another. Many agencies and programs
have waiting lists. Even eligible adults may have long waits before receiving services. Youths and
families must advocate for and request adult services. They will not be provided automatically.
The IDEA Law (2004) requires schools to plan for a student’s transition to adulthood by age 16, or
earlier if the IEP Team thinks it is appropriate. Tennessee rules require that transition planning begin no
later than age 14. Families need to advocate for transition planning and services in IEP meetings.
Strengths and needs of students on the autism spectrum vary greatly. Strategies and tools are
available so that students of various abilities can take part in transition planning (see Resources).
Students give input so that plans fit their interests, strengths, and needs. This creates a more
student-centered plan. It also prepares students to advocate for themselves after leaving high school.
The website of The Arc of Tennessee offers Conservatorship and Alternatives to Conservatorship:
A Guide for Families. The website of the Tennessee Division of Intellectual Disabilities Services
provides a Conservatorship Information Form and information on the Conservatorship Association
of Tennessee. See Resources.
Providing experiences in potential post-school environments during the high school years can help
prepare students with ASD. Examples include work (e.g., job training or part-time job), recreation (e.g.,
going to a gym), and independent living (e.g., residential camp). By exploring these different environ-
ments, students and families can identify potential challenges, needed supports, and areas of success.
As required by the Americans with Disabilities Act, colleges and universities make academic
accommodations for students with ASD or other disabilities. Consult with the disability services
office at schools you are considering. Some colleges and universities are developing programs
to attract capable students with ASD. Explore choices via the Internet and national and state ASD
advocacy organizations. See Resources section.
Adults with ASD who are well-prepared academically may nevertheless have a difficult time
maintaining employment after college graduation because of difficulties in social relationships.
Even if your student with ASD is able to attend college, it is still important to foster communication
and social skills needed to obtain and retain a job.
Learn about your state and community services and eligibility requirements. Use autism-specific
and disability information and referral services. Network with families of children and adults with
ASD through your local chapter of the Autism Society of America. See Resources.
SSI eligibility is a gateway to a variety of transition services for students with disabilities. Income
eligibility differs according to the age of the student. If a student is younger than 18, his or her parents’
income and resources are considered in determining financial need. Income requirements vary
depending on the number of parents and children in the household. Once a student is 18 or older,
parents’ income no longer matters. If you applied for SSI benefits for your child before 18 and were
denied because of family income, you should reapply when your child is 18. If you think your child is
qualified for SSI, you should contact your local Social Security Office.
The Division of Rehabilitation Services (DRS) provides a Transition School to Work Program that
provides Vocational Rehabilitation (VR) services to eligible high school students with disabilities who
are interested in employment after leaving high school. The goal is a smooth, seamless transition from
high school to after-high school employment.
VR-eligible students may receive guidance from a VR counselor, as well as other transition services
that lead to employment. Examples include vocational assessment, assistive technology evaluation,
postsecondary training, and/or job placement. Training might include on-the-job training, training at
Tennessee community rehabilitation centers, or training in vocational or technical schools or in colleges
or universities.
High school teachers, guidance counselors, family members, or students should request that a DRS
counselor become involved early in the transition planning process but no later than 12 to 18 months
prior to exiting school. For more information, contact the regional DRS Office in your area. See
Resources.
Due to limited resources, Tennessee operates under a legally mandated Order of Selection and
currently can serve only individuals with the "most significant disabilities." The VR Counselor
determines eligibility with the help of medical examinations, psychological examinations, vocational
evaluations, and other diagnostic information secured by the agency to determine the nature and
extent of the disability. Applicants who receive SSI (Supplemental Security Income) or SSDI (Social
Security Disability Insurance) benefits based on disability or blindness are presumed to be eligible
if they intend to go to work, but further diagnostic assessments may be required to determine if
they have “a most significant disability.”
Educators can partner with families by providing ideas and helping with supports. For example,
video and peer modeling can be used to teach activities of daily living such as grocery shopping
and making change.
Planning and individualized supports should be provided to help students with ASD prepare for
meaningful employment. During middle and high school, students with ASD should take part in
volunteer jobs, summer employment, unpaid or paid internships, in-school work experiences,
and job shadowing. Preparing for a new setting and providing supports will help accommodate a
student’s sensory, social, communication, or cognitive challenges.
A complete transition assessment can help students and families identify areas of interests and
abilities. An assessment can aid in transition planning by establishing measurable postsecondary goals
and by identifying the services needed to reach these goals.
Become well-informed about resources at the community and state level and learn how to network
effectively among these resources.
A 2-year, nonresidential certification program for students with intellectual disabilities. Provides
Developmental Disabilities
individualized programs of study in the areas of education, social skills, and vocational training.
kc.vanderbilt.edu/site/nextstep
(615) 343-0822, Email: NextStep@vumc.org
Regional offices in Camden, Chattanooga, Columbia, Cookeville, Jackson, Johnson City, Knoxville,
Division of Rehabilitation Services (DRS)
Advances universal access for people with disabilities in employment, education, and life.
Boling Center for Developmental Disabilities at Memphis
www.cde.tennessee.edu
(865) 974-9400, Email: cde@tennessee.edu
National Resources
❏ Beach Center on Disability–Affiliate of the Life Span Institute and Department of
❏ Going to College
Resource for teens with disabilities.
www.going-to-college.org
❏ Going To Work: A Guide to Social Security Benefits and Employment for Young
Booklet by the Institute for Community Inclusion. Provides basic information about Social Security
People with Disabilities (2010 Edition)
disability and health benefit programs, discusses what happens to Social Security disability
and health benefits when a young person goes to work, and explains how to maximize a young
person's options when he or she goes to work.
www.communityinclusion.org/article.php?article_id=211
Provides free online interactive resources that translate research about the education of students
Graduate University
with disabilities into practice. Materials cover various evidence-based topics, including behavior,
RTI (Response to Intervention), learning strategies, progress monitoring, and transition.
iris.peabody.vanderbilt.edu/resources.html
(800) 831-6134 (IRIS Central), Email: iris@vanderbilt.edu
❏ National Information Center for Children and Youth with Disabilities (NICHCY)
NICHCY resources include a Transition Summary–Transition Planning: A Team Effort (TS10,
January 1999, Resources Updated 2002; 24 pages); and a Fact Sheet: Transition-Age Special
Education Students and SSI: What Parents Should Know.
www.nichcy.org
(800) 695-0285, Email: nichcy@aed.org
❏ Pacer Center
Has several transition projects, multiple links to websites with transition resources, and publications
on transition.
www.pacer.org
(800) 537-2237
Conducts research and provides training and technical assistance for professionals, families, and
at Boston
students related to postsecondary education for individuals with intellectual and other develop-
mental disabilities. Provides a searchable database of postsecondary education options.
www.thinkcollege.net
Books
❏ Baker, J. (2005). Preparing for life: Complete guide to transitioning to adulthood for those with
autism and Asperger’s syndrome. Arlington, TX: Future Horizons, Inc.
❏ Bruey, C. T., & Urban, M. B. (2009). The autism transition guide: Planning the journey from school
to adult life. Port Chester, NY: National Professional Resources, Inc.
For families and professionals, provides ideas and strategies applicable to a broad range of
individuals on the autism spectrum.
❏ Grigal, M. & Hart, D. (2010). Think College: Postsecondary options for students with intellectual
disabilities. Baltimore: Paul H. Brookes.
❏ Hughes, C., & Carter, E. W. (2000). Transition handbook: Strategies high school teachers use that
work! Baltimore: Paul H. Brookes.
Compilation of more than 500 research-based, teacher-tested, transition support strategies that
have been proven to work for teachers, employment specialists, families, and students.
❏ Lollar, D. (Ed.) (2010). Launching into adulthood: An integrated response to support transition of
youth with chronic health conditions and disabilities. Baltimore: Paul H. Brookes.
Features several authors from the Association of University Centers on Disabilities network who
make research-based recommendations to streamline access to services, meet young people's
individual needs, and improve long-term outcomes.
❏ Thompson, J. R., Bryant, B., Campbell, E. M., Craig, E. M., Hughes, C., Rothholz, D., Schalock, R.
L., Silverman, W., Tassé, M. J., & Wehmeyer, M. L. (2004). Supports Intensity Scale: Users man-
ual. Washington, DC: American Association on Mental Retardation. See also www.siswebsite.org.
The Supports Intensity Scale (SIS) is an assessment tool that evaluates practical support
requirements of a person with an intellectual disability. It consists of an 8-page Interview and Profile
form that tests support needs in 87 areas, and a 128-page Users Manual. SIS is comprehensive
and is a positive interview process.
❏ Wagner, S. (2009). Inclusive programming for high school students with autism or Asperger’s
syndrome. Arlington, TX: Future Horizons, Inc.
This publication was made possible by Grant No. T73MC00050 from the Maternal and Child Health Bureau (MCHB),
Health Resources and Services Administration (HRSA), Department of Health and Human Services (HHS). Its contents
are solely the responsibility of the authors and do not necessarily represent the official views of the MCHB, HRSA, HHS.
Printed June 2010. Cover photos ©sjlocke, iStockphoto.com and ©bobbieo, iStockphoto.com