Article - Wjpps - 1467357631 Social Media
Article - Wjpps - 1467357631 Social Media
Article - Wjpps - 1467357631 Social Media
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care providers also face limitations and barriers if they want to share patient health stories
using social media.
KEYWORDS: Social media, World Health Organisation, Centers for Disease Control,
Physicians, HCPs,
INTRODUCTION
Technological advances in health care have resulted in enthusiasm and apprehension. The
general public sees social media as efficient and accessible, but health care has been slow to
embrace this advance in communication.[1] The use of social media by health professionals to
deliver patient care has garnered much debate over the past few years since the creation and
viral expansion of multiple online social media sites. The term ―social media‖ was derived
from the evolution of Web 2.0 applications that are inherently open and social in nature and
integrate user-added value into traditional Web platforms.[2] Healthcare culture is rapidly
changing and patients are beginning to be part of the healthcare system rather than the object
of it. Patient-empowering technology, like social media, has started to change the way we
practice medicine and will continue to do so. Internet and mobile social media are the process
in which people use online applications and platforms to share content. links, and information
through dialogue. The rapid emergence of social media in the past 10 years has been
accompanied by a flood of individuals and businesses in every industry seeking to use new
tools to communicate with peers, family, friends, colleagues, and potential customers. To say
that social media is transforming the way people communicate hardly overstates the
situation.[3] Although health activity on social media lags behind non-health related activity, it
is expected to reach its full potential, and to catch up in the near future.[4]
Social media are now providing a space to discuss medical conditions outside of the
healthcare providers’ office.[5] Patients and their families use social media technologies to
share their experiences and their findings and educate others with similar conditions. They
repackage the information they find for others, creating forums for knowledge discovery and
Social media provides a forum for reporting personal experiences, asking questions, and
receiving direct feedback for people living with a disease. Through social media, support
groups have found a new platform for organizing as patients and family caregivers share their
experiences, seek consolation online, and connect with other.[6,8] Indeed, 620 breast cancer
groups exist on Facebook, containing a total of 1,090,397 members. 46.7 % of these groups
were created for patient/caregiver support.[9] Healthcare professionals are also using social
media tools, with a growing number of physicians in this group. For example, individual
physicians can reach their patients through Twitter to update them with therapeutic
advancements, to answer disease-related questions, or simply to provide advice or
reminders.[8]
These features provide social media with the ability to facilitate communication and
information sharing among healthcare providers themselves and their consumers. Social
media can, therefore, accelerate innovation via clinical trial recruitment and research
collaboration. It can also play a significant role in health outcome by monitoring both patients
and populations, in addition to managing care and wellness. Though they came into this arena
late, healthcare organizations, physicians, and other care providers are using this powerful set
of tools at different levels with varying perspectives. There is enough evidence to support the
view that the use of social media in health care is growing. For example, the number of
articles indexed on PubMed has nearly doubled every year for the last 4 years.[11]
sites increased by 43% and continued to become the single greatest time-consuming Internet
activity.[13]
YouTube
A media sharing platform that allows users to view and share videos with a global audience.
It can provide quick bursts of information or entertainment (or both). YouTube has more than
1 billion unique users who visit each month, and 100 h of videos are uploaded every
minute.[15]
Twitter
A micro-bloggingsite that allows users to communicate with each other and share information
through short 140-character messages or ―tweets.‖ It is one of the fastest growing sites, with
255 million monthly active users and 500 million tweets sent per day.[16]
LinkedIn
A dynamic business-oriented platform where people share credentials and professional
accomplishments and discover potential colleagues. It grows by more than two new accounts
every second.[17]
Wikipedia
A free online encyclopedia that anyone can edit. While it is one of the most comprehensive
sources of online knowledge, it can also be a frequent source of misinformation.
WhatsApp Messenger
A cross-platform mobile messaging application which allows users to exchange messages.
Because it uses the internet data plan used for E-mail and web browsing, it carries no cost.
Besides basic messaging, the users of this application can create groups, send each other
unlimited images, video, and audio media messages. WhatsApp users now send 1 billion
messages each day.[18]
The many uses of social media applications in health include: Access to educational
resources by health providers and patients.[21-23]
Physicians most often join online communities where they can read news articles, listen to
experts, research medical developments, consult colleagues regarding patient issues, and
network.[29] There they can share cases and ideas, discuss practice management challenges,
make referrals, disseminate their research, market their practices, or engage in health
advocacy.[26,30] A growing minority of physicians also uses social media to communicate
directly with patients to augment clinical care.[29,30] A survey of more than 4,000 physicians
conducted by the social media site QuantiaMD found that more than 90% of physicians use
some form of social media for personal activities, whereas only 65% use these sites for
professional reasons.[26,29] Nearly a third of physicians have reported participating in social
networks.[28]
Unlike physicians, pharmacists have been relatively slow to adopt social media. Much of the
growth in the professional use of social media among this group appears to involve
pharmacist-specific social networks. Surveys have shown that many pharmacists use
Facebook. Although this use is most often for personal communications, more than 90 pages
on Facebook are related to the pharmacy profession, such as the Pharmacists Interest Page,
the American Pharmacists Association, and the Cynical Pharmacist. Only 10% of
pharmacists use Twitter, and a search for ―pharmacist‖ on LinkedIn identified 274,981
profiles.[31]
Hospitals across the country are turning to social media as a means of distributing their
message, educating their patients, and marketing their services. Barry[34] identified the
primary social media uses for 1800 hospitals using social media: supplying information to a
general audience (97%), providing content about the entire organization (93%), announcing
news and events (91%), furthering public relations (89%), and promoting health (90%).
Hospital systems such as the Mayo Clinic, Henry Ford Health System, Innovis, and Scripps
Health use blogs—or interactive, informal communication Web-based pages, linked with
Facebook, Twitter, and YouTube—to expand their reach to patients.[35]
The importance of social media for health organisations relates to their need to manage their
online reputation while combating then spread of misinformation and opinions based on
fallacy. While a growing body of scholarly evidence links online heath information to
positive health- related behaviors, the growth and ease of social media platforms has also
resulted in concerns about the quality and reliability of information provided through this
medium.[36] For example, one study examining urinary incontinence resources on Facebook,
Twitter, and YouTube found that the majority of information provided was not useful,
consisting of advertisements for commercial products. These were in head to head
competition with the fewer evidence--‐based YouTube videos from reputed health--‐care
professionals and professional organisations.[37]
There are many existing examples of successful health organisation efforts in both the public
and private sectors. Private health--‐care organisations, such as the Mayo Clinic,[38]
government public health agencies, such as the United States Centers for Disease Control
(CDC)[39] and internationally, notably the World Health Organisation (WHO) have all
developed successful social media programs which continue to grow.[40].
Professional medical societies such as the American Society of Clinical Oncology (ASCO)
have been successfully using social media sites like Twitter to report clinical news from
scientific sessions, to discuss treatment issues, and to facilitate a broader dialogue amongst
physicians and healthcare professionals.[47] Additionally, studies have indicated that social
media can have tremendous value vis-a-vis epidemiological surveillance, allowing for
reporting cases in real time and permitting the monitoring of outbreaks around the world. [48]
Overall, there is a growing pull amongst physicians to utilize social media as a means of
ensuring the proper dissemination of information to their patients in order to counteract
scientifically questionable publications and educational videos.[49] Social media can facilitate,
enhance, and improve physician–patient communication by allowing physicians and
organizations to become more accessible and approachable.[50] Patients report that access to
online health information makes them feel empowered because they have the knowledge to
ask their physicians well-informed questions.[50]
Given time-restricted consultations, patients perceive the Internet to be particularly useful for
confirming and expanding on information. Patients see the Internet as an additional resource
to support existing and valued relationships with their physician.[51]
Professional Education
The communication capabilities provided by social media are also being used to improve
clinical education. The high usage rate of social media by 18- to 29-year-olds has motivated
the adaptation of clinical curricula to reflect the changing habits and culture of incoming
students.[52,53] Many studies have described the use of social media tools to enhance clinical
students’ understanding of communication, professionalism, and ethics. Universities are also
using social media to recruit students, to increase access to academic libraries, and to create
virtual classrooms and office hours, as well as other unique learning experiences.[54]
Social media are also being widely implemented in undergraduate pharmacy curricula. One-
third of pharmacy programs have reported using Twitter in some capacity. A 2011 survey
also found that 38% of pharmacy faculty members use Facebook for teaching, with half
reporting that they plan to use social media in the future. In one example, an instructor in a
geriatric pharmacotherapy course at the University of Rhode Island used Facebook to
encourage class discussions and to connect students with senior citizens who had volunteered
to participate in the course. This experience improved student perceptions of older adults and
also introduced the senior citizens to Facebook. At Auburn University, instructors established
Twitter handles so that pharmacy students could participate in class discussions
anonymously. By semester’s end, 81% of students felt Twitter had let them express opinions
they wouldn’t have shared otherwise, although 71% thought that Twitter had been
distracting.[52]
Online social media platforms have also influenced the educational experience for nurses,
with one survey reporting that 53% of nursing schools are now using these tools. For
example, Twitter has been used to enhance the clinical decision-making skills of nursing
students in critical care situations. The students viewed videos of clinical scenarios and
tweeted their observations on the patient’s condition for instructor feedback.[54]
Patient Care
Although there has been a reluctance among HCPs to use social media for direct patient care,
this practice is slowly being accepted by clinicians and health care facilities. For example,
Georgia Health Sciences University has provided patients with access to a platform called
Web View, which allows the patients to reach their doctors to ask questions or to request
prescription refills.[57,58]
Recent studies have found that physicians have begun to develop an interest in interacting
with patients online.[29] Some physicians are using social media, including Twitter and
Facebook, to enhance communication with patients.[57] Approximately 60% of physicians
were found to favor interacting with patients through social media for the purpose of
providing.[29] However, other studies have shown that considerable resistance still exists to
using social media to interact with patients. In a survey of approximately 480 practicing and
student physicians, 68% felt it was ethically problematic to interact with patients on social
networks for either personal or professional reasons patient education and health monitoring,
and for encouraging behavioral changes and drug adherence, with the hope that these efforts
will lead to ―better education, increased compliance, and better outcomes.[58]
• Message control
The speed at which messages can spread through the social media allows for a little time to
think, react, and control situations as could be done in traditional media. Therefore, it is
important to think carefully before posting any information. If unsure about the content of
your post, ask someone who can provide guidance. For example, the communication
department may be of help.
Patients need to fully understand that any advice provided on social media sites is limited by
the fact that it is not based on their individual medical history. At this point, guidelines that
explain to what extent physicians can provide care online and what they are liable for have
not been established or implemented. In the United States, physicians are licensed by
individual states. However, on social media sites such as AmericanWell.com, which provides
video conferencing between physicians in the continental United States and patients in
Hawaii, health information is available for anyone regardless of their location[64]
Health care providers also face limitations and barriers if they want to share patient health
stories using social media. The Health Insurance Portability and Accountability Act (HIPAA)
of 1996 ensures patient confidentiality, stating that physicians can use patient data without
their consent only for 3 purposes: ―treatment, payment, or health care operations.‖ Therefore,
HIPAA requires physicians to obtain patient consent before displaying information
anywhere, including public and restricted networks.[65]
Legal Issues
The widespread use of social media has introduced new legal complexities. A number of
constitutional rights can be applied to the use of social media, such as freedom of speech,
freedom from search and seizure, and the right to privacy; however, these rights can be
successfully challenged.[54] In 2009, a U.S. District Court upheld the expulsion of a nursing
student for violating the school’s honor code by making obscene remarks about the race, sex,
and religion of patients under her care. The court concluded that the school’s honor code and
confidentiality agreement signed by each nursing student governed the standards of
acceptable behavior, dismissing the student’s claim that her right to freedom of speech had
been violated. A similar ruling was made in a case in which a student posted pictures of
herself as a drunken pirate on MySpace.[54]
Physicians and other healthcare providers should not discuss patients’ illnesses, medical
conditions, or personal information online without the patients’ permission. The permission
when obtained, should be clearly stated in the post.[66] Use a disclaimer to state that the
posted opinions represent your own views, not those of your employer.[67]
Legal cases should never be discussed on social media because most current case law dictates
that such information is ―discoverable,‖ although this may depend on the purpose for which
the information is sought.[26,54]
• Time barrier
• Time is valuable, especially for physicians and other healthcare providers. Trying to keep
up with every Twitter or Facebook update is timeconsuming and almost impossible. It is
better to organize incoming information and create lists that allow you to focus on certain
themes rather than read every update. For example, organize by specialty or level of
importance.[69]
Do not try to do everything; address those societal needs that you think are most important, or
that motivate you. The use of social media during your free time undoubtedly brings added
responsibility, so using it to focus on issues that are relevant to you makes it easier to sustain
the effort.[69]
The Federation of State Medical Boards (FASB) published a guidance document on the
appropriate use of social media in medical practice in 2011. This document emphasizes
protection of patient privacy and confidentiality; professionalism and transparency; the
avoidance of dispensing medical advice online; and the caveat that once information is placed
online, it can be distributed interminably.[26]
The National Council of State Boards of Nursing (NCSBN) also issued its White Paper: A
Nurse’s Guide to the Use of Social Media in 2011. This document includes practical
guidelines for governing the appropriate use of social media in the health care environment
by nurses.[54]
Table: 3[30,58]
Context Concept
• Share only information from credible sources.
Content credibility
• Refute any inaccurate information you encounter
• Remember that the content you author may be
discoverable.
Legal concerns
• Comply with federal and state privacy laws.
• Respect copyright laws
Licensing concerns • Know professional licensure requirements for your state
• Do not contact patients with requests to join your
network.
Networking
• Direct patients who want to join your personal network to
practices
a more secure means of communication or to your
professional site.
• Avoid providing specific medical advice to nonpatients.
• Make appropriate disclosures and disclaimers regarding
Patient care
the accuracy, timeliness, and privacy of electronic
communications
• Avoid writing about specific patients.
• Make sure you are in compliance with state and federal
privacy laws.
Patient privacy
• Obtain patient consent when required.
• Protect patient information through ―de-identification.‖
• Use a respectful tone when discussing patients
• Use the most secure privacy settings available.
Personal privacy
• Keep personal and professional profiles separate
• Disclose any in-kind or financial compensation received.
Professional ethics
• Do not make false or misleading claims
• Identify yourself on professional sites.
Self-identification • Make sure that your credentials are correctly stated.
• Specify whether or not you are representing an employer.
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