Restraints and Seclusion: Challenge the Assumptions

The Dynamics of Nonviolent Care

Restraints and Seclusion: Challenging the Assumptions

Assumption Restraints keep the people we serve safe

Reality 142 deaths in the US from 1988 – 1998 due to S/R, reported by the Hartford Courant (Weiss, et. al, 1998 ) 111 fatalities over 10 years in New York facilities due to restraints (Sundram, 1994 as cited by Zimbroff, 2003 ) At least 16 children (<18 y.o.) died in restraints in Texas programs from 1988 – 2002 (American-Statesman, May 18, 2003 ) At least 14 people died and at least one has become permanently comatose while being subjected to S/R from July 1999 to March 2002 in California (Mildred, 2002 )

Reality The IOM estimates 44,000 – 98,000 medical error-related deaths occur each year. JCAHO receives only 400 medical-error death reports per year – less than 1% of the IOM estimate . JCAHO implemented a Restraint Death Sentinel Event database in 1996. In the first 10 years, 138 restraint deaths reported. Applying IOM estimate to JCAHO data, there could be as many as 1,380 restraint deaths per year in the US A more conservative estimate from Harvard Center for Risk Analysis: 50-150 deaths in the US each year due to S/R (NAMI, 2003 ) Retrieved from: http://www.jointcommission.org/NR/rdonlyres/167DD821-A395-48FD-87F9-6AB12BCACB0F/0/Medical_Liability.pdf

Reality Rick Griffin , 36 , of Stockton, CA was 6’3” and weighed 340 pounds. While hospitalized in the county psychiatric health facility he became extremely agitated. Eight staff members wrestled him to the floor and bound him in leather restraints. He died from cardio-respiratory failure. (NAMI, 2003 )

Reality Joey & his mother James White, 17, & Joey Aletriz, 16 , died at the same residential program in Pennsylvania in December 2005 & February 2006, respectively, after being restrained by staff in the prone position. Both died from positional asphyxia. According to Joey’s mother: “I didn't send my son there to be killed. My Joey needed help, and this is what he got instead.” Retrieved from http://www.nbc10.com/news/6885605/detail.html

Reality Gloria Huntley, 31 , died in a state hospital, having been kept in restraints for 558 hours during the last 2 months of her life. Diagnosed with asthma and epilepsy, she was nevertheless restrained over and over again because of angry outbursts at hospital staff. (Weiss et al., 1998 )

Reality On Tanner Wilson’s, 9, first day at a program staff broke his leg while physically restraining him. After surgery, he returned to the program with a walker. His leg was later broken a 2 nd time. Eighteen months after being admitted, Tanner died while being restrained in a "routine physical hold.” He died of asphyxiation –suffocated to death. He was 11 years old. Retrieved from http://www.inclusiondaily.com/news/institutions/ia/iowa.htm

Assumption Seclusion keeps the people we serve safe

Reality Roshelle Clayborne, 16, died at a residential treatment program. She wrote to her grandmother 7 months after being admitted, begging to come home, fearing she would die there. Later, Roshelle was physically restrained in the prone position and given IM medication. With 8 staff watching, she lost control of her bodily functions, was rolled in a blanket, and carried to the seclusion room. Five minutes passed before a staff member noticed she had not moved and was dead. According to her grandmother, “ … Roshelle had her share of problems, but good God, no one deserves to die like that.” Retrieved from http://www.charlydmiller.com/LIB05/1998hartfordcourant11.html

Reality In October 2001, Ben Bartow, 41, died in restraints and seclusion at an Oregon hospital. According to an aide, Ben was allowed 1 can of soda a day -- he had 2. The next day, when Ben was not allowed a soda he became agitated. 6-10 staff "dog piled" on top of Ben. He was handcuffed, and given IM medication. Ben’s body went limp. He was carried into the seclusion room and put in restraints. Sometime later, staff noticed that Ben was cyanotic and dead. Several staff who participated in the restraint testified they never heard of “positional asphyxia”. Retrieved from http://www.cartercenter.org/healthprograms/1992_adoc6.htm

Reported Injuries and Deaths Injuries including: Coma Broken bones Bruises Cuts requiring stitches Facial damage Deaths due to: Asphyxiation Strangulation Cardiac arrest Blunt trauma Drug overdoses or interactions Choking (Mildred, 2002 )

Restraints keep staff safe Assumption

Reality For every 100 mental health aides, 26 injuries were reported in a three-state survey done in 1996 The injury rate in health care is higher than for workers in: Lumber Construction Mining industries (Weiss et al., 1998; US Dept. of Labor, 2005 )

Reality In October 2002, Jean-Max Auguste, 50, a mental health worker was kicked in the chest while attempting to physically restrain a patient in the prone position with 2 other staff at Greystone Park Psychiatric Center in New Jersey. He was pronounced dead less than 30 minutes later. Mr. Auguste died from sudden cardiac arrest secondary to blunt force trauma to the chest. Retrieved from http://query.nytimes.com/gst/fullpage.html?res=9C06E1DE113FF932A05753C1A9649C8B63

Reality Staff training to reduce the use of restraints resulted in: 13.8% reduction in annual restraint rates 54.6% decrease in average duration of restraint per admission 18.8% reduction in staff injuries (Forster, Cavness, & Phelps, 1999 )

Assumption Restraints are only used when absolutely necessary and for safety reasons

Reality Andrew McClain was 11 years old and weighed 96 pounds when two aides at Elmcrest Psychiatric Hospital sat on his back and crushed him to death. Andrew’s offense? Refusing to move to another breakfast table. (Lieberman, Dodd, & De Lauro, 1999 )

Reality Edith Campos , age 15, 110 pounds suffocated to death after being held face down by 2 staff after resisting an aide at the Desert Hills Center for Youth and Families. Edith’s offense? Refusing to hand over an “unauthorized” personal item. The item was a family photograph. (Lieberman, Dodd, & De Lauro, 1999 )

Reality Mark Bittner, 30, mental retarded, resided at a Developmental Center and was awaiting community placement. He died after less than 12 minutes in a prone restraint, on the floor. Mark’s offense? He refused being escorted to the gym, by a new staff member. He was physically restrained by 4 staff. The Medical Examiner found more than 20 contusions, lacerations, bruises, and hemorrhages on his body. Retrieved from http://www.mdlcbalto.org/Rosewood.pdf

Reality 1,040 surveys received from individuals following their New York State hospitalization Of the 560 who had been restrained or secluded: 73% stated that at the time they were not dangerous to themselves or others ¾ of these individuals were told their behavior was inappropriate (not dangerous) (Ray, Myers, and Rappaport,1996)

Assumption Unit staff know how to recognize a potentially violent situation (Mohr & Anderson, 2001 )

Reality Research on nurses’ decisions based on clinical cues of patient agitation, self-harm, inclinations to assault others, and destruction of property Nurses agreed only 22% of the time

Reality When data analyzed for agreement due to chance alone, agreement reduced to 8% Nurses with least clinical experience (less than 3 years) made most restrictive recommendations (Holzworth & Wills, 1999 )

Assumption Staff know how to de-escalate potentially violent situations (Mohr & Anderson, 2001 )

Reality From 81 debriefings following the use of seclusion or restraint, staff responses to what could have prevented the use of S/R included: 36% blamed the patient Example: “He could have listened and followed instructions” 15% took responsibility Example: “I wish I could have identified his early escalation”

Reality Other responses included: 15% provided no response 12% were at a loss Example: “I don’t see anything else…all alternatives used.” 11% blamed the system Example: “Need to make a plan for shift change” 9% blamed the level of medication (Petti et al., 2001 )

Reality Behavioral analysis to explore contextual variables related to the use of mechanical restraints on children found: Most frequent antecedent to the use of mechanical restraints was staff-initiated encounter with the person Luiselli, Bastien, and Putnam (1998)

Reality 221 reported incidents of aggression and violence over a 6 month period in 3 acute psychiatric units analyzed: De-escalation used less than 25% of the time Semistructured interviews identified lack of training Duxbury (2002)

Reality Audit found that 31% of direct care staff sampled did not receive mandatory training in preventing and managing crisis situations over the last 3 years. (NYAPRS, 2002 )

Reality JCAHO Sentinel Event Database of Restraint Deaths The single most frequent contributing factor to restraint deaths (> 90%) was a lack of basic staff orientation & training in managing behavioral crises Retrieved from: http://www.jointcommission.org/NR/rdonlyres/E0619D1D-0548-4300-8C05-37049FCC62D5/0/se_rc_restraint_deaths.gif

Assumption Restraint and seclusion are not used as, or meant to be, punishment (Mohr & Anderson, 2001 )

Reality Strictly defined “physical punishment consists of infliction of pain on the human body, as well as painful confinement of a person as a penalty for an offense” (Hyman, 1995 , 1996 ) The involuntary overpowering, isolation, application and maintenance of a person in restraints is an aversive event from both the standpoint of logic and from that of the victim (Miller, 1986 ; Mohr & Anderson, 2001 )

Reality 41 patients who had been secluded during their hospitalization were interviewed One year after discharge, they were asked to draw pictures related to their hospitalization 20 of 41 spontaneously drew pictures of their seclusion room experience – none were specifically asked to do this Revealed themes associated with fearfulness, terror, and resentment (Wadeson & Carpenter, 1976 )

Reality Feelings of bitterness and resentment toward seclusion prevailed at one year follow-up sessions Material interpreted from drawings of hallucinations while in seclusion contrasted sharply, reflecting: excitement pleasure spirituality distraction and withdrawal into a reassuring inner world (Wadeson & Carpenter, 1976 )

Reality Cambridge Hospital Child Assessment Unit Eliminated mechanical restraint, medication restraint and seclusion. Analyzed 28 episodes of physical restraint (“holds”) under 5 minutes over 3-month period 68% of holds < 1 minute Children perceive duration: 5 minutes – 1 hour Interviewed much later, the intensity of affect (fear, rage) returns (Regan, 2003 )

Reality People who were secluded experienced: vulnerability, neglect and a sense of punishment (Martinez et al., 1999 ) People who were secluded also stated that “anger and agitation were the result of being placed in seclusion” (Martinez et al., 1999 ) Secluded persons expressed feelings of fear, rejection, boredom and claustrophobia (Mann, Wise, & Shay, 1993 )

Reality Analysis of six studies reported 58 – 75% conceptualized seclusion as punishment by staff Many persons-served believed: Seclusion was used because they refused to take medication or participate in treatment program Frequently, they did not know the reason for seclusion (Kaltiala-Heino et al., 2003 )

Reality New York State survey found that 94% of those secluded or restrained had at least one complaint about their experience 62% did not feel protected from harm 50% alleged unnecessary force 40% felt they had been psychologically abused, ridiculed or threatened (Ray, Myers, & Rappaport, 1996 )

Assumption Seclusion and restraint are used without bias and only in response to objective behavior

Reality Research indicates that cultural and social bias may exist. Those more likely to be secluded: Blacks and Asian descent ( Price, David & Otis, 2004 ) Those more likely to be restrained: Younger and on more medications (LeGris, Walters, & Browne, 1999 ) Younger, male gender, and Black or Hispanic descent ( Donovan et al., 2003 ; Brooks et al., 1994 )

Reality David “Rocky” Bennett, 38 Died in restraint in a UK hospital in 1998. He was racially-abused by a white consumer in the hospital and lashed out at a nurse. He was held in prone restraint by 5 staff for 25 minutes and died. An inquest into his death found significant “institutional racism” in the NHS. ( www.blink.org.uk)

Reality Rocky’s death and Inquiry lead to national 5-year plan, Delivering Race Equality in Mental Health Care, to be fully implemented by 2010 . Two of the Inquiry’s key recommendations included: limiting restraint time (<3 minutes) addressing institutional racism

Reality December 2005 UK publishes, Count Me In , the 1 st national census of inpatient psychiatric hospitals African-Caribbeans represent 3% of the general population but 10% of mental health patients. They are also: 44% more likely to be committed Twice as likely to be sent by the Court 70% more likely to be referred for counseling 20-25% more likely to be detained than whites 29% higher restraint rate 50% higher seclusion rate Retrieved from www.blink.org.uk/print.asp?key=10522

Reality Data from a Pennsylvania study showed that females were restrained at a higher rate than males in non-behavioral health settings (Karp, 2002 )

Reality New York study showed that the use of seclusion and restraint varied widely across all facilities in the state because of the: “… disparate clinical perspectives on the advisability of seclusion and restraint and the limited comparative monitoring of restraint and seclusion practices in institutional settings.” (Ray & Rappaport, 1995 )

Reality Factors that had a greater influence on the use of seclusion than demographic and clinical factors were: Clinical biases Staff role perceptions, and Administrator attitudes Supported by more recent Harvard Review Cultural disparities appear to exist (Fisher, 1994 ; Busch & Shore, 2000 )

Assumption Seclusion and restraint are “therapeutic interventions” and based on clinical knowledge (Mohr & Anderson, 2001 )

Reality Cochrane Review (2000) 2,155 articles, no controlled studies S/R efficacy and therapeutic value not established Serious adverse effects cited (Sailas & Fenton, 2000 )

Reality Seclusion perceptions: Nurse’s believe seclusion was: Very necessary Not very punitive Highly therapeutic Patient’s believe seclusion was: Used frequently for minor disturbances Used so staff could exert power and control Made them feel punished Had very little therapeutic value (Meehan, Bergen & Fjeldsoe, 2004 )

Reality Semi-structured interviews with 24 previously secluded patients indicated: 21% described it as dehumanizing and humiliating 16% commented on loneliness and isolation 54% reported nothing beneficial When asked what was bad about seclusion: 42% commented on the physical starkness, lack of toilet and running water, sleeping on a mat on the floor The majority reported that seclusion bothered them more than any other experience in the hospital (Binder & McCoy, 1983 )

Reality Punitive and isolating behaviors tend to be associated with a significant increase in negative behaviors and significant decrease in positive behaviors (Natta et al., 1990 ) Individuals who lack the capacity to understand contingency-based interventions may actually have counterproductive outcomes (Papolos & Papolos, 1999 )

Reality In study of classroom interventions used with adolescents who had mental retardation: When physical restraint was used as consequence for inappropriate classroom behavior, rates of the problem behavior increased in all sessions for each student. Student’s play and positive behavior also decreased. (Magee & Ellis,2001)

Reality May 26, 2006 Angie Arndt, 7, was in a therapeutic day program in WI for less than a month when she was restrained in the prone position by 2 staff using a therapeutic hold on the “Safe Room” floor. She died within 5 minutes from positional asphyxia and cardiac arrest. Murder charges are being considered by the District Attorney. In her obituary, Angie was described as: “… a girl known for her beautiful smile. She enjoyed camping, walks, listing to her music, dancing, imitating her sister Sasha and playing with her friends, especially cousin Vanessa. She loved food and her dolls. She was a joy to be around and has touched many lives.” Retrieved from http://wcco.com/local/local_story_160104804.html ; http://209.236.225.83/54848LN/LadysmithNews.taf?function=detail&Department=Obituaries&Layout1_uid2=22332

Conclusion Numerous unfounded beliefs exist Harm in restraints and seclusion are well documented; positives are not substantiated Biases exist in the system Not evidence-based practice Significant culture change is required

Conclusion The worst punishment deemed possible in prisons is seclusion/solitary confinement In psychiatric hospitals and treatment settings, people who behave inappropriately are placed in seclusion Perhaps the only difference is that in psychiatry we call it “therapeutic”

Confirmed Restraint Related Deaths Under Age 18 Years 1995-2007

Andrew McClain 11 years old Traumatic asphyxia and chest compression; face-down restraint with arms crossed over chest.

Candace Newmaker 10 years old Traumatic asphyxia and chest compression; face-down restraint with arms crossed over chest.

Chris Campbell 13 years old Restrained 4 times in his last 24 hours....Cause of death undetermined.

Dustin Phelps 14 years old Strapped in a blanket in a bed

Edith Campos 15 years old Restraint Asphyxia

Gareth Myatt 15 years old Traumatic asphyxia and chest compression; face-down restraint

Jimmy Kanda 6 years old Strangulation while in restraint hold

Kelly Young 17 years old Positional asphyxiation Kelly. died in a restraint "basket" hold and taken down to floor

Linda Harris 14 years old Stopped breathing after being physically restrained by male worker

Tristan Sovern 16 years old Asphyxiation during restraint Workers restrained Sovern face down on the floor

Angellika "Angie" Arndt 7 years old Stopped breathing after being placed in prone restraint position

Anthony Green 15 years old Bobby Joe Randolph 17 years old Bobby Sue Thomas 17 years old Brandon Hadden 18 years old Casey Collier 17 years old Cedric Napoleon 14 years old Charles "Chase" Moody,Jr. 17 years old Carlton Eugene Thomas 17 years old Darryl Thompson 15 years old Dawn Renay Perry16 years old Diane Harris 17 years old Donderey Rogers 14 year old Earl Smith 9 years old Eddie Lee 15 years old Eric Roberts 16 years old Garrett Halsey 16 years old Jamal Odum 9 years old Jamar Griffiths 15 years old Jason Tallman 12 years old Jeffrey Bogrett 9 years old Jeffery Demetrius 17 years old Jerry McLaurin 14 years old Joshua Ferarini 13 years old Joshua Sharpe 17 years old Kristal Mayon-Ceniceros 16 years old Krystal Tibbetts 3 years old Kyle Young 16 years old. Latasha Bush 15 years old Leroy Prinkley 14 years old Maria Mendoza 14 years old Mark Draheim 14 years old Matthew Goodman 14 years old Mark Soares 16 years old Martin Lewis Anderson 14 years old Michael Garcia 12 years old Michael Ibarra-Wiltsie 12 years old Omega Leach 17 years old Orlena Parker 15 years old Paul Choy 16 years old Rochelle Clayborne 16 years old Randy Steele 9 years old Robert Rollins 12 years old Roxanna Gray 17 years old Sabrina E. Day 15 years old Shirley Arciszewski 12 years old Shinaul McGraw 12 years old Stephanie Duffield 16 years old Timothy Thomas 9 years old Tanner Wilson 11 years old Thomas Mapes 17 years old Travis Parker 13 years old Tristan Sovern 16 years old Wauketta Wallace 12 years old William "Eddie" Lee 15 years old Willie Wright 9 years old

Restraints and Seclusion: Challenge the Assumptions

Restraints and Seclusion: Challenge the Assumptions

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Restraints and Seclusion: Challenge the Assumptions