Philip McCallion
SUNY: University at Albany, School of Social Welfare, Faculty Member
- Philip McCallion Ph.D is a Distinguished Professor in the School of Social Welfare, co-director of the Center for Exc... morePhilip McCallion Ph.D is a Distinguished Professor in the School of Social Welfare, co-director of the Center for Excellence in Aging & Community Wellness at the University at Albany and faculty Executive for the Quality & Technical Assistance Center of New York which manages delivery, quality, bi-directional feedback and evaluation of evidence-based intervention programs including those for diabetes prevention and management.
He is co-principal investigator of the Intellectual Disability Supplement to the Irish Longitudinal Study on Aging, a Visiting Professor at Trinity College Dublin, a John A Hartford Foundation Social Work Faculty Scholar and Mentor, and a member of the Steering Committee of the National Task Group on Intellectual Disabilities and Dementia.
Professor McCallion's translational research extends to:
• System design work on improving systems integration, creating aging prepared communities and on embedding evidence-based health promotion, self-management, care transitions, options counseling, screening and participant-directed practices in services delivery.
• Evaluation of the implementation of non-pharmacological interventions for persons with dementia and of psycho-educational interventions for family caregivers.
• Development of innovative demonstration projects designed to maintain aging persons with intellectual disabilities in the community.
• Increasing the reach of palliative care programs.
Professor McCallion has over 140 publications and has received over $30,000,000 in grants and awards from the U.S. National Institute on Aging, and National Institute on Drug Abuse, U.S. Administration on Community Living/Administration on Aging, John A. Hartford Foundation, Joseph P. Kennedy Jr., Foundation, Retirement Research Foundation, Alzheimer's Association, U.S. Agency for Health Quality Research, U.S. Health Resources and Services Administration, New York State Health Foundation, Health Research Board of Ireland, Irish Hospice Foundation, The Atlantic Philanthropies- Ireland and New York State's Department of Health, Office for the Aging, Office for People with Developmental Disabilities, Office for Children and Family Services and Developmental Disabilities Planning Council.edit
Background Increased participation in 'the community' has long been accepted as a route for providing people with intellectual disabilities (PWID) with a better life but there have been concerns that many PWID placed in the... more
Background Increased participation in 'the community' has long been accepted as a route for providing people with intellectual disabilities (PWID) with a better life but there have been concerns that many PWID placed in the community still live isolated lives. More recently, emerging evidence internationally identified that people with ID were often being physically integrated within their communities and wider society without becoming fully included members of those communities (Chowdurry & Benson, 2011; Kozma, et al., 2009; Verdonschot et al., 2009;). Recent evidence looking at outcomes for people with ID moving from institutional to community settings identify generally positive outcomes whilst acknowledging the continued low inclusion within wider non-disabled society (Chowdurry & Benson, 2011). Current policy developments and service provision in Ireland and elsewhere remain committed to the movement of people with ID from institutional, congregated settings to communit...
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Abstract: The growing number of individuals with intellectual disabilities (ID) affected by Alzheimer disease and related dementias has raised major problems for care providers. How can quality care be provided to these individuals? This... more
Abstract: The growing number of individuals with intellectual disabilities (ID) affected by Alzheimer disease and related dementias has raised major problems for care providers. How can quality care be provided to these individuals? This paper examines group home-...
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Research Interests: Psychology, Aging, Intellectual Disability, Ireland, Humans, and 19 moreChronic Disease, Female, Male, Lung Diseases, Developmental disabilities, Mental Disorders, Risk factors, Aged, Prevalence, Middle Aged, Longitudinal Studies, Adult, Morbidity, Public health systems and services research, Neoplasms, Cardiovascular Diseases, Risk Factors, Nervous System Diseases, and Gastrointestinal Diseases
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There have been growing reports of older women and men caring for their grandchildren and great grandchildren. Many of these grandparents are caring for children with developmental disabilities. To systematically examine the effectiveness... more
There have been growing reports of older women and men caring for their grandchildren and great grandchildren. Many of these grandparents are caring for children with developmental disabilities. To systematically examine the effectiveness of a support group intervention for such grandparents, we recruited 97 grandparents through three agencies in New York City and assigned them to treatment and wait list control conditions. Significant reductions in symptoms of depression and increases in sense of empowerment and caregiving mastery were found for the treatment group. Similar effects were found for the control subjects when they later received the intervention.
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Historically, there has been higher and earlier mortality among people with intellectual disability as compared to the general population, but there have also been methodological problems and differences in the available studies. Data... more
Historically, there has been higher and earlier mortality among people with intellectual disability as compared to the general population, but there have also been methodological problems and differences in the available studies. Data were drawn from the 2012 National Intellectual Disability Database and the Census in Ireland. A standardized mortality ratio (SMR) was calculated, as well as average age at death. Ratios and differences were further examined for the influence of age, gender and level of intellectual disability. Mortality in persons with intellectual disability was four times higher and they were, on average, dying 19 years earlier than peers in the general population. Women with intellectual disability were living longer than males with intellectual disability, but differences in survival as compared to the general population were greater for these women. There was little change in average age at death over 10 years, and death was earlier the more severe the level of i...
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Monitoring population trends including mortality within subgroups such as people with intellectual and developmental disabilities and between countries provides crucial information about the population's health and insights into... more
Monitoring population trends including mortality within subgroups such as people with intellectual and developmental disabilities and between countries provides crucial information about the population's health and insights into underlying health concerns and the need for and effectiveness of public health efforts. Data from both US state intellectual and developmental disabilities service system administrative data sets and de-identified state Medicaid claims were used to calculate average age at death and crude mortality rates. Average age at death for people in state intellectual and developmental disabilities systems was 50.4-58.7 years and 61.2-63.0 years in Medicaid data, with a crude adult mortality rate of 15.2 per thousand. Age at death remains lower and mortality rates higher for people with intellectual and developmental disabilities. Improved case finding (e.g. medical claims) could provide more complete mortality patterns for the population with intellectual and dev...
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Background The Irish Longitudinal Study on Ageing (TILDA) found that older people who were most socially integrated had the highest QOL measures, while the least integrated had the lowest QOL. The Intellectual Disability Supplement to... more
Background The Irish Longitudinal Study on Ageing (TILDA) found that older people who were most socially integrated had the highest QOL measures, while the least integrated had the lowest QOL. The Intellectual Disability Supplement to TILDA (IDS-TILDA) found that older people with ID had very different social networks than the general population, putting them at increased risk of social exclusion. Methods This study examined the composition of social networks for older people with ID in Ireland, and compared those networks to those of the general population. Data was drawn from wave 2 of IDS-TILDA (n=708), and comparisons were with wave 2 data from TILDA. The influence of gender, age, level of ID and type of residence was also considered. Results Less than 1% of older people with ID reported having a spouse/partner, with similarly low numbers having children of their own, a sharp contrast with general older population reports. Less than a third (32%) of IDS-TILDA participants report...
Introduction: Increased participation in 'the community' has long been accepted as a route for providing people with intellectual disabilities (PWID) a better life but there have been concerns that many PWID placed in the... more
Introduction: Increased participation in 'the community' has long been accepted as a route for providing people with intellectual disabilities (PWID) a better life but there have been concerns that many PWID placed in the community still live isolated lives. This paper examines the experiences of community for PWID in Ireland. Methods: Ethics for a large longitudinal study on ageing among people with an intellectual disability was sought and granted from both the University and service providers. Data was collected from a representative sample of 753 PWID aged 40 and over, randomly selected from Ireland's National Intellectual Disability Database. The first wave of the study included a series of questions for PWID on aspects of their community living experience and the linkage between community living and their experience of quality of life. Results: People interviewed lived in community settings (semi-independently, in community group homes or with families). Although l...
Background Increased participation in 'the community' has long been accepted as a route for providing people with intellectual disabilities (PWID) with a better life but there have been concerns that many PWID placed in the... more
Background Increased participation in 'the community' has long been accepted as a route for providing people with intellectual disabilities (PWID) with a better life but there have been concerns that many PWID placed in the community still live isolated lives. More recently, emerging evidence internationally identified that people with ID were often being physically integrated within their communities and wider society without becoming fully included members of those communities (Chowdurry & Benson, 2011; Kozma, et al., 2009; Verdonschot et al., 2009;). Recent evidence looking at outcomes for people with ID moving from institutional to community settings identify generally positive outcomes whilst acknowledging the continued low inclusion within wider non-disabled society (Chowdurry & Benson, 2011). Current policy developments and service provision in Ireland and elsewhere remain committed to the movement of people with ID from institutional, congregated settings to communit...
Background Monitoring population trends including mortality within subgroups such as people with intellectual and developmental disabilities and between countries provides crucial information about the population's health and insights... more
Background Monitoring population trends including mortality within subgroups such as people with intellectual and developmental disabilities and between countries provides crucial information about the population's health and insights into underlying health concerns and the need for and effectiveness of public health efforts.Methods Data from both US state intellectual and developmental disabilities service system administrative data sets and de-identified state Medicaid claims were used to calculate average age at death and crude mortality rates.ResultsAverage age at death for people in state intellectual and developmental disabilities systems was 50.4–58.7 years and 61.2–63.0 years in Medicaid data, with a crude adult mortality rate of 15.2 per thousand.Conclusions Age at death remains lower and mortality rates higher for people with intellectual and developmental disabilities. Improved case finding (e.g. medical claims) could provide more complete mortality patterns for the p...
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The literature on influences of community versus congregated settings raises questions about how social inclusion can be optimised for people with intellectual disability. This study examines social contacts for older people with... more
The literature on influences of community versus congregated settings raises questions about how social inclusion can be optimised for people with intellectual disability. This study examines social contacts for older people with intellectual disability in Ireland, examining differences in social connection for adults with intellectual disability and other adults. Data were drawn from the IDS-TILDA study in Ireland. A nationally representative sample (n = 753) included adults aged 40 years and older, with additional comparison with general population participants. Predictors of social contacts were explored. Residence, level of intellectual disability and age were significant factors determining social contact. People in institutional residences, older respondents and those with severe/profound intellectual disability had the lowest levels of contact; older adults with intellectual disability had much lower rates than general population counterparts. Community-dwelling people with intellectual disability have greater social contact than those living in institutions, but levels are below those for other adults in Ireland.