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Addressing the subtleties in dementia care: pre-study & evaluation of a GPS monitoring system

Published: 26 April 2014 Publication History

Abstract

In this work we present a user-centered development process for a GPS-based monitoring system to be used in dementia care. Our research covers a full design process including a qualitative-empirical pre-study, the prototyping process and the investigation of long-term appropriation processes of the stable prototypes in three different practice environments. Specifically, we deal with the problem of 'wandering' by persons suffering from late-phase dementia. Although GPS tracking is not a novel technological objective, the usage of those systems in dementia care remains very low. The paper therefore takes a socio-technical stance on development and appropriation of GPS technology in dementia care and assesses the practical and ideological issues surrounding care to understand why. We additionally provide design research in two different settings, familial and institutional care, and report on the design of a GPS-based tracking system reflecting these considerations. What comes to the fore is the need for ICT to reflect complex organizational, ideological and practical issues that form part of a moral universe where sensitivity is crucial.

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References

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  • (2024)A Step Toward Better Care: Understanding What Caregivers and Residents in Assisted Living Facilities Value in Health Monitoring SystemsProceedings of the ACM on Human-Computer Interaction10.1145/36372908:CSCW1(1-29)Online publication date: 26-Apr-2024
  • (2024)Experiences of Deploying a Citywide Crowdsourcing Platform to Search for Missing People with DementiaProceedings of the 30th Annual International Conference on Mobile Computing and Networking10.1145/3636534.3649356(200-214)Online publication date: 29-May-2024
  • (2024)Design Opportunities for Care Transitions in Dementia: Understanding Informal Caregivers’ Experiences Through a Practice-Informed ApproachProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642556(1-13)Online publication date: 11-May-2024
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cover image ACM Conferences
CHI '14: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
April 2014
4206 pages
ISBN:9781450324731
DOI:10.1145/2556288
Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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Published: 26 April 2014

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Author Tags

  1. autonomy
  2. dementia
  3. evaluation
  4. gps monitoring system
  5. privacy

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CHI '14: CHI Conference on Human Factors in Computing Systems
April 26 - May 1, 2014
Ontario, Toronto, Canada

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CHI '14 Paper Acceptance Rate 465 of 2,043 submissions, 23%;
Overall Acceptance Rate 6,199 of 26,314 submissions, 24%

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Cited By

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  • (2024)A Step Toward Better Care: Understanding What Caregivers and Residents in Assisted Living Facilities Value in Health Monitoring SystemsProceedings of the ACM on Human-Computer Interaction10.1145/36372908:CSCW1(1-29)Online publication date: 26-Apr-2024
  • (2024)Experiences of Deploying a Citywide Crowdsourcing Platform to Search for Missing People with DementiaProceedings of the 30th Annual International Conference on Mobile Computing and Networking10.1145/3636534.3649356(200-214)Online publication date: 29-May-2024
  • (2024)Design Opportunities for Care Transitions in Dementia: Understanding Informal Caregivers’ Experiences Through a Practice-Informed ApproachProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642556(1-13)Online publication date: 11-May-2024
  • (2024)Family Caregiver Experiences of Using a Mobile App for Music-based Training to Support Dementia CareProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642308(1-16)Online publication date: 11-May-2024
  • (2024)Overview of Usable Privacy Research: Major Themes and Research DirectionsThe Curious Case of Usable Privacy10.1007/978-3-031-54158-2_3(43-102)Online publication date: 20-Mar-2024
  • (2023)How does HCI Understand Human Agency and Autonomy?Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580651(1-18)Online publication date: 19-Apr-2023
  • (2023)Using Tracking Device on Patients with Dementia: A Systematic Review2023 International Conference on Integration of Computational Intelligent System (ICICIS)10.1109/ICICIS56802.2023.10430274(1-4)Online publication date: 1-Nov-2023
  • (2023)How I want technology used in my care: Learning from documented choices of people living with dementia using a dyadic decision making toolInformatics for Health and Social Care10.1080/17538157.2023.225206648:4(387-401)Online publication date: 7-Sep-2023
  • (2022)Privacy Research with Marginalized GroupsProceedings of the ACM on Human-Computer Interaction10.1145/35555566:CSCW2(1-33)Online publication date: 11-Nov-2022
  • (2022)Control Matters in Elder Care Technology: Evidence and Direction for Designing It InProceedings of the 2022 ACM Designing Interactive Systems Conference10.1145/3532106.3533471(1831-1848)Online publication date: 13-Jun-2022
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