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Navigating Illness, Finding Place: Enhancing the Experience of Place for People Living with Chronic Illness

Authors:

Sylvia Janicki,

Jennifer MankoffAuthors Info & Claims

COMPASS '21: Proceedings of the 4th ACM SIGCAS Conference on Computing and Sustainable Societies

Pages 173 - 187

https://doi.org/10.1145/3460112.3471955

Published: 23 September 2021 Publication History

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Abstract

When chronic illness, such as Lyme disease, is viewed through a disability lens, equitable access to public spaces becomes an important area for consideration. Yet chronic illness is often viewed solely through an individualistic, medical model lens. We contribute to this field of study in four consecutive steps using Lyme disease as a case study: (1) we highlight urban design and planning literature to make the case for its relevance to chronic illness; (2) we explore the place-related impacts of living with chronic illness through an analysis of interviews with fourteen individuals living with Lyme disease; (3) we derive a set of design guidelines from our literature review and interviews that serve to support populations living with chronic illness; and (4) we present an interactive mapping prototype that applies our design guidelines to support individuals living with chronic illness in experiencing and navigating public and outdoor spaces.

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Cited By

Su ZKamath STirakitsoontorn PChen Y(2024)Creating Safe Places: Understanding the Lived Experiences of Families Managing Cystic Fibrosis in Young ChildrenProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642334(1-18)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642334
Morris MBrown JS. nurius PYee SMankoff JConsolvo S(2023)“I Just Wanted to Triple Check… They were all Vaccinated”: Supporting Risk Negotiation in the Context of COVID-19ACM Transactions on Computer-Human Interaction10.1145/356993830:4(1-31)Online publication date: 12-Sep-2023
https://dl.acm.org/doi/10.1145/3569938
James SArmstrong MAbdallah ZO'Kane A(2023)Chronic Care in a Life Transition: Challenges and Opportunities for Artificial Intelligence to Support Young Adults With Type 1 Diabetes Moving to UniversityProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580901(1-16)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3580901

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COMPASS '21: Proceedings of the 4th ACM SIGCAS Conference on Computing and Sustainable Societies

June 2021

462 pages

ISBN:9781450384537

DOI:10.1145/3460112

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Published: 23 September 2021

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Cited By

Su ZKamath STirakitsoontorn PChen Y(2024)Creating Safe Places: Understanding the Lived Experiences of Families Managing Cystic Fibrosis in Young ChildrenProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642334(1-18)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642334
Morris MBrown JS. nurius PYee SMankoff JConsolvo S(2023)“I Just Wanted to Triple Check… They were all Vaccinated”: Supporting Risk Negotiation in the Context of COVID-19ACM Transactions on Computer-Human Interaction10.1145/356993830:4(1-31)Online publication date: 12-Sep-2023
https://dl.acm.org/doi/10.1145/3569938
James SArmstrong MAbdallah ZO'Kane A(2023)Chronic Care in a Life Transition: Challenges and Opportunities for Artificial Intelligence to Support Young Adults With Type 1 Diabetes Moving to UniversityProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580901(1-16)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3580901

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