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"Knowledge Comes Through Participation": Understanding Disability through the Lens of DIY Assistive Technology in Western Kenya

Published: 07 April 2022 Publication History

Abstract

People with disabilities in Low- and Middle-Income Countries (LMICs) have limited access to digital assistive technologies (ATs). Most ATs in LMICs are manufactured elsewhere and are expensive and difficult to maintain. Do-It-Yourself Assistive Technologies (DIY-ATs) designed, customized, and repaired by non-technical users offer exciting directions in these contexts. We have been exploring the possibilities and challenges of DIY-ATs in Western Kenya, using community-engaged workshops in rural and urban special education schools for the past three years. We present findings from a concluding-stage research activity: a multiple stakeholder focus group where teachers, disability advocates, and representatives from the local government and technology innovation hubs, discussed the possibilities and challenges of addressing disability issues through DIY-ATs in this context. Participants identified opportunities for DIY-ATs for social inclusion, disability assessment, and inclusive education, and shared concerns about their sustainability, safety, and contextual relevance.

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References

[1]
Jonathan Bean and Daniela Rosner. 2014. Making: movement or brand? Interactions 21, 1 (January 2014), 26--27.
[2]
Cynthia L. Bennett, Keting Cen, Katherine M. Steele, and Daniela K. Rosner. 2016. An intimate laboratory? In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems, ACM, New York, NY, USA.
[3]
Eva Brandt, Thomas Binder, and Elizabeth B-N Sanders. 2015. Tools and techniques. In Routledge International Handbook of Participatory Design. Routledge.
[4]
Catherine Holloway, Victoria Austin, Giulia Barbareschi, Felipe R. Barajas, Lucie Pannell, Dafine M. Ramirez, Richard Frost, Iain McKinnon, Chris Holmes, Rosemary Frazer, Maria Kett. Nora Groce, Mark Carew, Ola Abu Alghaib, Chapal Khasnabis, Emma Tebbutt, Emily Kobayashi, Frederik Seghers. 2018. Scoping research Report on Assistive Technology - On the road for universal assistive technology coverage. Prepared for the UK Department for International Development, Geneva.
[5]
Harry Collins, Robert Evans, and Mike Gorman. 2007. Trading zones and interactional expertise. Stud. Hist. Philos. Sci. B Stud. Hist. Philos. Modern Phys. 38, 4 (December 2007), 657--666.
[6]
Christopher Csikszentmihalyi, Jude Mukundane, Gemma F. Rodrigues, Daniel Mwesigwa, and Michelle Kasprzak. 2018. The space of possibilities. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems, ACM, New York, NY, USA.
[7]
Carl DiSalvo, Andrew Clement, and Volkmar Pipek. 2012. Communities: Participatory Design for, with and by communities. In Routledge international handbook of participatory design. Routledge, 202--230.
[8]
Arseli Dokumaci. 2018. Disability as method: Interventions in the habitus of ableism through media-creation. Disabil. Stud. Q. 38, 3 (September 2018).
[9]
Ndubuisi Ekekwe. 2015. Harvard Business Review. Retrieved March 8, 2021 from Africa's Maker Movement Offers Opportunity for Growth. https://hbr.org/2015/05/africas-maker-movement-offers-opportunity-for-growth
[10]
Dan Goodley, Rebecca Lawthom, Kirsty Liddiard, and Katherine Runswick-Cole. 2019. Provocations for Critical Disability Studies. Disabil. Soc. 34, 6 (July 2019), 972--997.
[11]
Foad Hamidi, Melanie Baljko, and Isabel Gómez. 2017. Using participatory design with proxies with children with limited communication. In Proceedings of the 19th International ACM SIGACCESS Conference on Computers and Accessibility, ACM, New York, NY, USA.
[12]
Foad Hamidi, Melanie Baljko, Toni Kunic, and Ray Feraday. 2015. TalkBox: a DIY communication board case study. J. Assist. Technol. 9, 4 (December 2015), 187--198.
[13]
Foad Hamidi, Patrick Mbullo, Deurence Onyango, Michaela Hynie, Susan McGrath, and Melanie Baljko. 2018. Participatory design of DIY digital assistive technology in Western Kenya. In Proceedings of the Second African Conference for Human Computer Interaction: Thriving Communities, ACM, New York, NY, USA.
[14]
Eric Hersman. Eric Hersman. VentureBurn. Retrieved March 8, 2020 from The need for both makerspaces and incubators in Africa: http://ventureburn.com/2013/02/the-need-for-both-makerspaces-and-incubators-in-africa/
[15]
Megan Hofmann, Julie Burke, Jon Pearlman, Goeran Fiedler, Andrea Hess, Jon Schull, Scott E. Hudson, and Jennifer Mankoff. 2016. Clinical and maker perspectives on the design of assistive technology with rapid prototyping technologies. In Proceedings of the 18th International ACM SIGACCESS Conference on Computers and Accessibility, ACM, New York, NY, USA.
[16]
Megan Hofmann, Kristin Williams, Toni Kaplan, Stephanie Valencia, Gabriella Hann, Scott E. Hudson, Jennifer Mankoff, and Patrick Carrington. 2019. Occupational therapy is making. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems, ACM, New York, NY, USA.
[17]
Jonathan Hook, Sanne Verbaan, Abigail Durrant, Patrick Olivier, and Peter Wright. 2014. A study of the challenges related to DIY assistive technology in the context of children with disabilities. In Proceedings of the 2014 conference on Designing interactive systems, ACM, New York, NY, USA.
[18]
Amy Hurst and Jasmine Tobias. 2011. Empowering individuals with do-it-yourself assistive technology. In The proceedings of the 13th international ACM SIGACCESS conference on Computers and accessibility - ASSETS '11, ACM Press, New York, New York, USA.
[19]
Hilary Hutchinson, Heiko Hansen, Nicolas Roussel, Björn Eiderbäck, Wendy Mackay, Bo Westerlund, Benjamin B. Bederson, Allison Druin, Catherine Plaisant, Michel Beaudouin-Lafon, Stéphane Conversy, and Helen Evans. 2003. Technology probes. In Proceedings of the conference on Human factors in computing systems - CHI '03, ACM Press, New York, New York, USA.
[20]
Seray B. Ibrahim, Asimina Vasalou, and Michael Clarke. 2018. Design opportunities for AAC and children with severe speech and physical impairments. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems, ACM, New York, NY, USA.
[21]
Lilly Irani, Janet Vertesi, Paul Dourish, Kavita Philip, and Rebecca E. Grinter. 2010. Postcolonial computing. In Proceedings of the 28th international conference on Human factors in computing systems - CHI '10, ACM Press, New York, New York, USA.
[22]
Alexandra N. Jefferds, Nahom M. Beyene, Nekram Upadhyay, Puneet Shoker, Jonathan L. Pearlman, Rory A. Cooper, and Joy Wee. 2010. Current state of mobility technology provision in less-resourced countries. Phys. Med. Rehabil. Clin. N. Am. 21, 1 (February 2010), 221--242.
[23]
Alison Kafer. 2013. Feminist, Queer, Crip. Indiana University Press.
[24]
Os Keyes, Josephine Hoy, and Margaret Drouhard. 2019. Human-Computer Insurrection: Notes on an Anarchist HCI. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (CHI '19), Association for Computing Machinery, New York, NY, USA, 1--13.
[25]
Lynn Kirabo, Elizabeth J. Carter, and Aaron Steinfeld. 2020. You are asking me to pay for my legs. In Proceedings of the 3rd ACM SIGCAS Conference on Computing and Sustainable Societies, ACM, New York, NY, USA.
[26]
Lynn Kirabo, Elizabeth Jeanne Carter, Devon Barry, and Aaron Steinfeld. 2021. Priorities, technology, & power: Co-designing an inclusive transit agenda in Kampala, Uganda. In Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems, ACM, New York, NY, USA.
[27]
Henry Lieberman, Fabio Paternò, and Volker Wulf. 2006. End User Development. Springer Science & Business Media.
[28]
Jennifer Mankoff, Megan Hofmann, Xiang "anthony"Chen, Scott E. Hudson, Amy Hurst, and Jeeeun Kim. 2019. Consumer-grade fabrication and its potential to revolutionize accessibility. Commun. ACM 62, 10 (September 2019), 64--75.
[29]
Rebecca Matter, Mark Harniss, Tone Oderud, Johan Borg, and Arne H. Eide. 2017. Assistive technology in resource-limited environments: a scoping review. Disabil. Rehabil. Assist. Technol. 12, 2 (February 2017), 105--114.
[30]
Carole McGranahan. 2016. Theorizing Refusal: An Introduction. Cult. Anthropol. 31, 3 (August 2016), 319--325.
[31]
Janis Lena Meissner, John Vines, Janice McLaughlin, Thomas Nappey, Jekaterina Maksimova, and Peter Wright. 2017. Do-it-yourself empowerment as experienced by novice makers with disabilities. In Proceedings of the 2017 Conference on Designing Interactive Systems, ACM, New York, NY, USA.
[32]
Karyn Moffatt, Joanna McGrenere, Barbara Purves, and Maria Klawe. 2004. The participatory design of a sound and image enhanced daily planner for people with aphasia. In Proceedings of the 2004 conference on Human factors in computing systems - CHI '04, ACM Press, New York, New York, USA.
[33]
Dafne Zuleima Morgado-Ramirez, Giulia Barbareschi, Maggie Kate Donovan-Hall, Mohammad Sobuh, Nida' Elayyan, Brenda T. Nakandi, Robert Tamale Ssekitoleko, Joyce Olenja, Grace Nyachomba Magomere, Sibylle Daymond, Jake Honeywill, Ian Harris, Nancy Mbugua, Laurence Kenney, and Catherine Holloway. 2020. Disability design and innovation in computing research in low resource settings. In The 22nd International ACM SIGACCESS Conference on Computers and Accessibility, ACM, New York, NY, USA.
[34]
Erick Oduor, Carman Neustaedter, Tejinder K. Judge, Kate Hennessy, Carolyn Pang, and Serena Hillman. 2014. How technology supports family communication in rural, suburban, and urban kenya. In Proceedings of the 32nd annual ACM conference on Human factors in computing systems - CHI '14, ACM Press, New York, New York, USA.
[35]
Erick Oduor, Peninah Waweru, Jonathan Lenchner, and Carman Neustaedter. 2018. Practices and technology needs of a network of farmers in tharaka nithi, Kenya. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems, ACM, New York, NY, USA.
[36]
Joyojeet Pal, Anandhi Viswanathan, Priyank Chandra, Anisha Nazareth, Vaishnav Kameswaran, Hariharan Subramonyam, Aditya Johri, Mark S. Ackerman, and Sile O'Modhrain. 2017. Agency in assistive technology adoption. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems, ACM, New York, NY, USA.
[37]
Jeremiah Parry-Hill, Patrick C. Shih, Jennifer Mankoff, and Daniel Ashbrook. 2017. Understanding volunteer AT fabricators. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems, ACM, New York, NY, USA.
[38]
Kavita Philip, Lilly Irani, and Paul Dourish. 2012. Postcolonial computing. Sci. Technol. Human Values 37, 1 (January 2012), 3--29.
[39]
Volkmar Pipek, Universität Siegen, Volker Wulf, and Fraunhofer-Institut für Angewandte Informationstechnik FIT and Universität Siegen. 2009. Infrastructuring: Toward an integrated perspective on the design and use of information technology. J. Assoc. Inf. Syst. 10, 5 (May 2009), 447--473.
[40]
Halley P. Profita, Abigale Stangl, Laura Matuszewska, Sigrunn Sky, and Shaun K. Kane. 2016. Nothing to hide. In Proceedings of the 18th International ACM SIGACCESS Conference on Computers and Accessibility, ACM, New York, NY, USA.
[41]
Ravihansa Rajapakse, Margot Brereton, and Laurianne Sitbon. 2018. Design artefacts to support people with a disability to build personal infrastructures. In Proceedings of the 2018 Designing Interactive Systems Conference, ACM, New York, NY, USA.
[42]
Danielle Ribeiro, Stephanie R. Cimino, Amanda L. Mayo, Matt Ratto, and Sander L. Hitzig. 2021. 3D printing and amputation: a scoping review. Disabil. Rehabil. Assist. Technol. 16, 2 (February 2021), 221--240.
[43]
Jeff Shrager. 2007. The evolution of BioBike: Community adaptation of a biocomputing platform. Stud. Hist. Philos. Sci. 38, 4 (December 2007), 642--656.
[44]
David Smith. 2012. Kenya building a digital future in Africa's silicon Savannah. The Guardian. Retrieved March 8, 2021 from Retrieved from https://www.theguardian.com/world/2012/oct/30/kenya-silicon-savannah-digital-technology
[45]
Susan Leigh Star and Geoffrey C. Bowker. 2018. How to Infrastructure. In Handbook of New Media: Social Shaping and Consequences of ICTs. SAGE Publications, Ltd, 1 Oliver's Yard, 55 City Road London EC1Y 1SP, 151--162.
[46]
Susan Leigh Star and James R. Griesemer. 1989. Institutional ecology, 'translations' and boundary objects: Amateurs and professionals in Berkeley's Museum of Vertebrate Zoology, 1907--39. Soc. Stud. Sci. 19, 3 (August 1989), 387--420.
[47]
Lucy Suchman. 2002. Located accountabilities in technology production. Scandinavian journal of information systems 14, 2 (2002), 7.
[48]
United Nations Committee on the Rights of Persons with Disabilities. 2010. Compendium on Convention on the Rights of Persons with Disabilities. Kenya National Commission on Human Rights, Geneva.
[49]
Mark Warschauer and Morgan Ames. 2010. CAN ONE LAPTOP PER CHILD SAVE THE WORLD'S POOR? J. Int. Aff. 64, 1 (2010), 33--51.
[50]
Heike Winschiers-Theophilus and Nicola J. Bidwell. 2013. Toward an Afro-centric indigenous HCI paradigm. Int. J. Hum. Comput. Interact. 29, 4 (March 2013), 243--255.
[51]
Heike Winschiers-Theophilus, Shilumbe Chivuno-Kuria, Gereon Koch Kapuire, Nicola J. Bidwell, and Edwin Blake. 2010. Being participated. In Proceedings of the 11th Biennial Participatory Design Conference on - PDC '10, ACM Press, New York, New York, USA.
[52]
World Health Organization. 2010. Community-based rehabilitation guidelines. WHO, Geneva.
[53]
Mike Wu, Ron Baecker, and Brian Richards. 2005. Participatory design of an orientation aid for amnesics. In Proceedings of the SIGCHI conference on Human factors in computing systems - CHI '05, ACM Press, New York, New York, USA.
[54]
Global Disability Innovation Hub. Retrieved March 8, 2021 from Africa's First Innovation Ecosystem dedicated to Assistive Technology launched In Nairobi, Kenya https://www.disabilityinnovation.com/news/worlds-first-innovation-ecosystem-dedicated-to-assistive-technology-to-be-launched-in-nairobi-kenya.

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    cover image Proceedings of the ACM on Human-Computer Interaction
    Proceedings of the ACM on Human-Computer Interaction  Volume 6, Issue CSCW1
    CSCW1
    April 2022
    2511 pages
    EISSN:2573-0142
    DOI:10.1145/3530837
    Issue’s Table of Contents
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    Published: 07 April 2022
    Published in PACMHCI Volume 6, Issue CSCW1

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    Author Tags

    1. DIY assistive technologies
    2. Kenya
    3. community engagement
    4. disability
    5. participatory design

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    • (2023)Supporting Social Inclusion with DIY-ATs: Perspectives of Kenyan Caregivers of Children with Cognitive DisabilitiesACM Transactions on Accessible Computing10.1145/361637816:3(1-27)Online publication date: 21-Sep-2023
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