research-article

#ActuallyAutistic Twitter as a Site for Epistemic Resistance and Crip Futurity

Author:

Josh GubermanAuthors Info & Claims

ACM Transactions on Computer-Human Interaction, Volume 30, Issue 3

Article No.: 38, Pages 1 - 34

https://doi.org/10.1145/3569891

Published: 10 June 2023 Publication History

Editorial Notes

The authors have requested minor, non-substantive changes to the VoR and, in accordance with ACM policies, a Corrected Version of Record was published on July 1, 2023. For reference purposes, the VoR may still be accessed via the Supplemental Material section on this citation page.

Abstract

The Internet has, for several decades, played a critical role in autistic self-advocacy and community building. This semi-autoethnographic, interpretivist study turns to #ActuallyAutistic Twitter to examine autistic concerns about autism research, how these concerns differ from those of autism researchers, and how autistics interact with autism research and researchers. I find that #ActuallyAutistic Twitter discourses align with the neurodiversity paradigm, while dominant autism discourses in the academy align with the medical model of disability. Though both orientations towards autism research sometimes share research priorities, they represent fundamentally irreconcilable approaches to these priorities and autism, more broadly. I explore how autistics on Twitter interact with non-autistic researchers and how the tenor of these interactions varies according to which research paradigm a particular researcher subscribes. I conclude with a discussion of how HCI researchers interested in autism can operationalize these findings by approaching their work through the framework of crip technoscience.

Supplementary Material

3569891-vor (3569891-vor.pdf)

Version of Record for "#ActuallyAutistic Twitter as a Site for Epistemic Resistance and Crip Futurity" by Josh Guberman, ACM Transactions on Computer-Human Interaction, Volume 30, No. 3 (TOCHI 30:3).

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Cited By

Jaiswal AWashington P(2024)Using #ActuallyAutistic on Twitter for Precision Diagnosis of Autism Spectrum Disorder: Machine Learning StudyJMIR Formative Research10.2196/526608(e52660)Online publication date: 14-Feb-2024
https://doi.org/10.2196/52660
Taylor JBruckman A(2024)Mitigating Epistemic Injustice: The Online Construction of a Bisexual CultureACM Transactions on Computer-Human Interaction10.1145/364861431:4(1-34)Online publication date: 19-Sep-2024
https://dl.acm.org/doi/10.1145/3648614
Zisk A(2024)Meaningful Engagement with Neurodivergent Public WorkThe Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies10.1007/978-3-031-66127-3_19(325-338)Online publication date: 29-Sep-2024
https://doi.org/10.1007/978-3-031-66127-3_19
Show More Cited By

Index Terms

#ActuallyAutistic Twitter as a Site for Epistemic Resistance and Crip Futurity
1. Human-centered computing
  1. Accessibility
    1. Accessibility theory, concepts and paradigms
2. Social and professional topics
  1. Professional topics
    1. Computing profession
      1. Codes of ethics
  2. User characteristics
    1. People with disabilities

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cover image ACM Transactions on Computer-Human Interaction

ACM Transactions on Computer-Human Interaction Volume 30, Issue 3

June 2023

544 pages

ISSN:1073-0516

EISSN:1557-7325

DOI:10.1145/3604411

Editors:
Kristina Höök
KTH Royal Institute of Technology, Sweden
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Kasper Hornbæk
University of Copenhagen, Denmark

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Published: 10 June 2023

Online AM: 27 October 2022

Accepted: 08 August 2022

Revised: 14 June 2022

Received: 02 August 2021

Published in TOCHI Volume 30, Issue 3

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Jaiswal AWashington P(2024)Using #ActuallyAutistic on Twitter for Precision Diagnosis of Autism Spectrum Disorder: Machine Learning StudyJMIR Formative Research10.2196/526608(e52660)Online publication date: 14-Feb-2024
https://doi.org/10.2196/52660
Taylor JBruckman A(2024)Mitigating Epistemic Injustice: The Online Construction of a Bisexual CultureACM Transactions on Computer-Human Interaction10.1145/364861431:4(1-34)Online publication date: 19-Sep-2024
https://dl.acm.org/doi/10.1145/3648614
Zisk A(2024)Meaningful Engagement with Neurodivergent Public WorkThe Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies10.1007/978-3-031-66127-3_19(325-338)Online publication date: 29-Sep-2024
https://doi.org/10.1007/978-3-031-66127-3_19
Alper MRauchberg JSimpson EGuberman JFeinberg S(2023)TikTok as algorithmically mediated biographical illumination: Autism, self-discovery, and platformed diagnosis on #autisktokNew Media & Society10.1177/14614448231193091Online publication date: 19-Aug-2023
https://doi.org/10.1177/14614448231193091
Dotch EJohnson JBlack RHayes G(2023)Understanding Noise Sensitivity through Interactions in Two Online Autism ForumsProceedings of the 25th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3597638.3608413(1-12)Online publication date: 22-Oct-2023
https://dl.acm.org/doi/10.1145/3597638.3608413

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