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The Emotional Work of Doing eHealth Research

Published: 06 May 2017 Publication History

Abstract

Within Human-Computer Interaction (HCI), researchers have become more aware of the interplay between the work they are doing and their own health and wellbeing. These issues have been discussed mostly in the context of HCI research around sensitive issues (Sensitive HCI). We argue that researcher wellbeing needs to be considered in all eHealth and mHealth research. Here, we focus on the emotional labour required by the political and organisational structures of eHealth research, and illustrate it with autoethnographic observations from two research studies, a trial of an eMentalHealth intervention, and an evaluation of a health insurance scheme in Tanzania. Based on a review of relevant literature from health and social care research, we suggest a process for supporting emotional work that can be adapted to other application contexts.

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    cover image ACM Conferences
    CHI EA '17: Proceedings of the 2017 CHI Conference Extended Abstracts on Human Factors in Computing Systems
    May 2017
    3954 pages
    ISBN:9781450346566
    DOI:10.1145/3027063
    Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

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    Publication History

    Published: 06 May 2017

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    Author Tags

    1. codes of good practice
    2. ehealth
    3. emotional labour
    4. research process
    5. researcher wellbeing
    6. sensitive hci

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    • Research-article

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    • European Union Seventh Framework Programme
    • The Alan Turing Institute / EPSRC

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    CHI '17
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    CHI EA '17 Paper Acceptance Rate 1,000 of 5,000 submissions, 20%;
    Overall Acceptance Rate 6,164 of 23,696 submissions, 26%

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    Cited By

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    • (2024)On the Design Risks of Empathy FatigueProceedings of the 3rd Empathy-Centric Design Workshop: Scrutinizing Empathy Beyond the Individual10.1145/3661790.3661798(34-39)Online publication date: 11-May-2024
    • (2024)Co-Designing Emotion: Supporting Positive Affect in a Culturally Sensitive Application for African-American Heart HealthExtended Abstracts of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613905.3650893(1-6)Online publication date: 11-May-2024
    • (2024)Understanding fraudulence in online qualitative studies: From the researcher's perspectiveProceedings of the CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642732(1-17)Online publication date: 11-May-2024
    • (2022)"Do You Ladies Relate?": Experiences of Gender Diverse People in Online Eating Disorder CommunitiesProceedings of the ACM on Human-Computer Interaction10.1145/35551456:CSCW2(1-32)Online publication date: 11-Nov-2022
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    • (2022)Researcher Wellbeing and Best Practices in Emotionally Demanding ResearchExtended Abstracts of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491101.3503742(1-6)Online publication date: 27-Apr-2022
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    • (2021)“This is the story of me”: Designing audiovisual narratives to support reflection on cancer journeysProceedings of the 2021 ACM Designing Interactive Systems Conference10.1145/3461778.3462005(1031-1045)Online publication date: 28-Jun-2021
    • (2020)A gender analysis of interaction in online work meeting toolsProceedings of the 19th Brazilian Symposium on Human Factors in Computing Systems10.1145/3424953.3426647(1-6)Online publication date: 26-Oct-2020
    • (2020)Designers in White Coats: Deploying Ovum, a Fertility Tracking DeviceProceedings of the 2020 CHI Conference on Human Factors in Computing Systems10.1145/3313831.3376528(1-13)Online publication date: 21-Apr-2020
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