Location via proxy:   [ UP ]  
[Report a bug]   [Manage cookies]                
skip to main content
10.1145/3661790.3661798acmotherconferencesArticle/Chapter ViewAbstractPublication PagesempathichConference Proceedingsconference-collections
research-article
Open access

On the Design Risks of Empathy Fatigue

Published: 26 June 2024 Publication History

Abstract

This paper explores the nuanced dynamics of empathy in HCI, focusing on its application in designing technologies for individuals facing chronic or stigmatized illnesses. We explore three case studies from our past and current work involving: (1) children living with HIV; (2) online health communities on CaringBridge and Reddit; and (3) burnout among professional spiritual care providers. Drawing from these case studies, we examine instances where empathy, although well-intentioned, can lead to negative consequences such as fatigue, distress, or even harm for both recipients and providers. We highlight the importance of striking a balance between empathetic support and maintaining a sense of normalcy for users, and we advocate for designs that focus on more actionable and pragmatic responses rather than overly emotional needs or desires. Furthermore, we emphasize the necessity of integrating strategies for managing empathy fatigue and promoting self-care among caregivers and professionals (including researchers) into design processes. By carefully implementing a thoughtful and balanced approach to considering empathy in design, the HCI community can ensure that empathetic technologies truly enhance user experiences and contribute positively to health and well-being.

References

[1]
Michael R. Andreychik and Nicole Migliaccio. 2015. Empathizing With Others’ Pain Versus Empathizing With Others’ Joy: Examining the Separability of Positive and Negative Empathy and Their Relation to Different Types of Social Behaviors and Social Emotions. Basic and Applied Social Psychology 37, 5 (Sept. 2015), 274–291. https://doi.org/10.1080/01973533.2015.1071256 Publisher: Routledge _eprint: https://doi.org/10.1080/01973533.2015.1071256.
[2]
Heinz L. Ansbacher and Rowena R. Ansbacher (Eds.). 1956. The individual psychology of Alfred Adler. Basic Books, Inc., Oxford, England. Pages: ix, 503.
[3]
Sangwon Bae, Jinkyu Jang, and Jinwoo Kim. 2013. Good Samaritans on social network services: Effects of shared context information on social supports for strangers. International Journal of Human-Computer Studies 71, 9 (Sept. 2013), 900–918. https://doi.org/10.1016/j.ijhcs.2013.04.004
[4]
Alemitu Bezabih, Kathrin Gerling, Workeabeba Abebe, and Vero Vanden Abeele. 2023. Challenges and Opportunities for Interactive Technology to Support Parents of HIV-Positive Children in Ethiopia in the Disclosure Process. In Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems(CHI ’23). Association for Computing Machinery, New York, NY, USA, 1–17. https://doi.org/10.1145/3544548.3580756
[5]
Paul Bloom. 2016. Against empathy: the case for rational compassion (first edition ed.). Ecco, an imprint of HarperCollins Publishers, New York, NY. OCLC: ocn964448730.
[6]
Grant Bollmer. 2017. Empathy machines. Media International Australia 165, 1 (Nov. 2017), 63–76. https://doi.org/10.1177/1329878X17726794 Publisher: SAGE Publications Ltd.
[7]
Moira Burke and Mike Develin. 2016. Once More with Feeling: Supportive Responses to Social Sharing on Facebook. In Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing(CSCW ’16). Association for Computing Machinery, New York, NY, USA, 1462–1474. https://doi.org/10.1145/2818048.2835199
[8]
Luce Drouet, Kerstin Bongard-Blanchy, Carine Lallemand, and Vincent Koenig. 2022. The Measure of Empathy in Design: How Do We Trigger Empathy among Designers and Beyond? (2022).
[9]
Fernanda Herrera, Jeremy Bailenson, Erika Weisz, Elise Ogle, and Jamil Zaki. 2018. Building long-term empathy: A large-scale comparison of traditional and virtual reality perspective-taking. PLoS ONE 13, 10 (Oct. 2018), e0204494. https://doi.org/10.1371/journal.pone.0204494
[10]
Martijn J.L. Kors, Gabriele Ferri, Erik D. van der Spek, Cas Ketel, and Ben A.M. Schouten. 2016. A Breathtaking Journey. On the Design of an Empathy-Arousing Mixed-Reality Game. In Proceedings of the 2016 Annual Symposium on Computer-Human Interaction in Play(CHI PLAY ’16). Association for Computing Machinery, New York, NY, USA, 91–104. https://doi.org/10.1145/2967934.2968110
[11]
Merlijn Kouprie and Froukje Sleeswijk Visser. 2009. A framework for empathy in design: stepping into and out of the user’s life. Journal of Engineering Design 20, 5 (Oct. 2009), 437–448. https://doi.org/10.1080/09544820902875033 Publisher: Taylor & Francis _eprint: https://doi.org/10.1080/09544820902875033.
[12]
Ruoyun Lin and Sonja Utz. 2017. Self-disclosure on SNS: Do disclosure intimacy and narrativity influence interpersonal closeness and social attraction?Computers in Human Behavior 70 (May 2017), 426–436. https://doi.org/10.1016/j.chb.2017.01.012
[13]
Stephen Lindsay, Katie Brittain, Daniel Jackson, Cassim Ladha, Karim Ladha, and Patrick Olivier. 2012. Empathy, participatory design and people with dementia. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems(CHI ’12). Association for Computing Machinery, New York, NY, USA, 521–530. https://doi.org/10.1145/2207676.2207749
[14]
Fannie Liu, Geoff Kaufman, and Laura Dabbish. 2019. The Effect of Expressive Biosignals on Empathy and Closeness for a Stigmatized Group Member. Proceedings of the ACM on Human-Computer Interaction 3, CSCW (Nov. 2019), 201:1–201:17. https://doi.org/10.1145/3359303
[15]
Tuuli Mattelmäki, Kirsikka Vaajakallio, and Ilpo Koskinen. 2014. What Happened to Empathic Design?Design Issues 30, 1 (Jan. 2014), 67–77. https://doi.org/10.1162/DESI_a_00249
[16]
Alemitu Mequanint Bezabih, Kathrin Gerling, Workeabeba Abebe, and Vero Vanden Abeele. 2022. The Challenge of (Non-)Disclosure: Exploring the Lived Experience of Ethiopian Adolescents with HIV and Their Attitudes Toward Technology. In CHI Conference on Human Factors in Computing Systems. ACM, New Orleans LA USA, 1–19. https://doi.org/10.1145/3491102.3502132
[17]
Sylvia A. Morelli, Matthew D. Lieberman, and Jamil Zaki. 2015. The Emerging Study of Positive Empathy. Social and Personality Psychology Compass 9, 2 (2015), 57–68. https://doi.org/10.1111/spc3.12157 _eprint: https://onlinelibrary.wiley.com/doi/pdf/10.1111/spc3.12157.
[18]
Carolien E Postma, Elly Zwartkruis-Pelgrim, Elke Daemen, and Jia Du. 2012. Challenges of Doing Empathic Design:. (2012).
[19]
Sydney Pratte, Anthony Tang, and Lora Oehlberg. 2021. Evoking Empathy: A Framework for Describing Empathy Tools. In Proceedings of the Fifteenth International Conference on Tangible, Embedded, and Embodied Interaction. ACM, Salzburg Austria, 1–15. https://doi.org/10.1145/3430524.3440644
[20]
Gale H. Prinster, C. Estelle Smith, Chenhao Tan, and Brian C. Keegan. 2023. Community Archetypes: An Empirical Framework for Guiding Research Methodologies to Reflect User Experiences of Sense of Virtual Community. https://doi.org/10.48550/arXiv.2310.02515 arXiv:2310.02515 [cs].
[21]
Mark Russell and Matt Brickell. 2015. The “Double-Edge Sword” of Human Empathy: A Unifying Neurobehavioral Theory of Compassion Stress Injury. Social Sciences 4, 4 (Dec. 2015), 1087–1117. https://doi.org/10.3390/socsci4041087 Number: 4 Publisher: Multidisciplinary Digital Publishing Institute.
[22]
Ashish Sharma, Inna W. Lin, Adam S. Miner, David C. Atkins, and Tim Althoff. 2021. Towards Facilitating Empathic Conversations in Online Mental Health Support: A Reinforcement Learning Approach. In Proceedings of the Web Conference 2021(WWW ’21). Association for Computing Machinery, New York, NY, USA, 194–205. https://doi.org/10.1145/3442381.3450097
[23]
Eva Sharma and Munmun De Choudhury. 2018. Mental Health Support and its Relationship to Linguistic Accommodation in Online Communities. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems(CHI ’18). Association for Computing Machinery, New York, NY, USA, 1–13. https://doi.org/10.1145/3173574.3174215
[24]
C. Estelle Smith. 2022. Sacred be thy tech: thoughts (and prayers) on integrating spirituality in technology for health and well-being. Interactions 29, 4 (June 2022), 68–72. https://doi.org/10.1145/3543893
[25]
C. Estelle Smith, Avleen Kaur, Katie Z. Gach, Loren Terveen, Mary Jo Kreitzer, and Susan O’Conner-Von. 2021. What is Spiritual Support and How Might It Impact the Design of Online Communities?Proceedings of the ACM on Human-Computer Interaction 5, CSCW1 (April 2021), 43:1–43:42. https://doi.org/10.1145/3449117
[26]
C. Estelle Smith, Hannah Miller Hillberg, and Zachary Levonian. 2023. "Thoughts & Prayers" or " & ": How the Release of New Reactions on CaringBridge Reshapes Supportive Communication in Health Crises. Proceedings of the ACM on Human-Computer Interaction 7, CSCW2 (Oct. 2023), 244:1–244:39. https://doi.org/10.1145/3610035
[27]
Mark A. Stebnicki. 2007. Empathy Fatigue: Healing the Mind, Body, and Spirit of Professional Counselors. American Journal of Psychiatric Rehabilitation 10, 4 (Nov. 2007), 317–338. https://doi.org/10.1080/15487760701680570 Publisher: Routledge _eprint: https://doi.org/10.1080/15487760701680570.
[28]
Morgan D. Stosic, Danielle Blanch-Hartigan, Tamara Aleksanyan, Jennifer Duenas, and Mollie A. Ruben. 2022. Empathy, friend or foe? Untangling the relationship between empathy and burnout in helping professions. Journal of Social Psychology 162, 1 (Jan. 2022), 89–108. https://doi.org/10.1080/00224545.2021.1991259 Publisher: Taylor & Francis Ltd.
[29]
Antti Surma-aho and Katja Hölttä-Otto. 2022. Conceptualization and operationalization of empathy in design research. Design Studies 78 (Jan. 2022), 101075. https://doi.org/10.1016/j.destud.2021.101075
[30]
Xin Tong, Servet Ulas, Weina Jin, Diane Gromala, and Chris Shaw. 2017. The design and evaluation of a body-sensing video game to foster empathy towards chronic pain patients. In Proceedings of the 11th EAI International Conference on Pervasive Computing Technologies for Healthcare(PervasiveHealth ’17). Association for Computing Machinery, New York, NY, USA, 244–250. https://doi.org/10.1145/3154862.3154869
[31]
Helen Wilkinson, Richard Whittington, Lorraine Perry, and Catrin Eames. 2017. Examining the relationship between burnout and empathy in healthcare professionals: A systematic review. Burnout Research 6 (Sept. 2017), 18–29. https://doi.org/10.1016/j.burn.2017.06.003
[32]
Pamela Wisniewski, Karla Badillo-Urquiola, Zahra Ashtorab, and Jessica Vitak. 2020. Happiness and Fear: Using Emotions as a Lens to Disentangle How Users Felt About the Launch of Facebook Reactions. ACM Transactions on Social Computing 3, 4 (Oct. 2020), 20:1–20:25. https://doi.org/10.1145/3414825
[33]
Maria K. Wolters, Zawadhafsa Mkulo, and Petra M. Boynton. 2017. The Emotional Work of Doing eHealth Research. In Proceedings of the 2017 CHI Conference Extended Abstracts on Human Factors in Computing Systems(CHI EA ’17). ACM, New York, NY, USA, 816–826. https://doi.org/10.1145/3027063.3052764 event-place: Denver, Colorado, USA.
[34]
Peter Wright and John McCarthy. 2008. Empathy and experience in HCI. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems(CHI ’08). Association for Computing Machinery, New York, NY, USA, 637–646. https://doi.org/10.1145/1357054.1357156
[35]
Xiaoxiao Zhang. 2022. Predictive Power of Game Experience on Empathy with People Living with HIV/AIDS: A Survey Evaluation of Serious Game Education’s Effect. In Proceedings of the 6th International Conference on Education and Multimedia Technology(ICEMT ’22). Association for Computing Machinery, New York, NY, USA, 318–323. https://doi.org/10.1145/3551708.3551730 event-place: Guangzhou, China.

Recommendations

Comments

Information & Contributors

Information

Published In

cover image ACM Other conferences
EmpathiCH '24: Proceedings of the 3rd Empathy-Centric Design Workshop: Scrutinizing Empathy Beyond the Individual
May 2024
75 pages
ISBN:9798400717888
DOI:10.1145/3661790
This work is licensed under a Creative Commons Attribution International 4.0 License.

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 26 June 2024

Check for updates

Author Tags

  1. CaringBridge
  2. Empathy
  3. HIV
  4. Reddit
  5. chronic illness
  6. design
  7. fatigue
  8. health
  9. mental health
  10. online health communities
  11. self-care
  12. spiritual care
  13. spirituality
  14. stigma
  15. wellbeing

Qualifiers

  • Research-article
  • Research
  • Refereed limited

Funding Sources

Conference

EmpathiCH 2024

Contributors

Other Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

  • 0
    Total Citations
  • 206
    Total Downloads
  • Downloads (Last 12 months)206
  • Downloads (Last 6 weeks)56
Reflects downloads up to 28 Dec 2024

Other Metrics

Citations

View Options

View options

PDF

View or Download as a PDF file.

PDF

eReader

View online with eReader.

eReader

HTML Format

View this article in HTML Format.

HTML Format

Login options

Media

Figures

Other

Tables

Share

Share

Share this Publication link

Share on social media