research-article

Patterns of Patient and Caregiver Mutual Support Connections in an Online Health Community

Authors:

Zachary Levonian,

Sourojit Ghosh,

Hannah Miller Hillberg,

Saumik Narayanan,

Svetlana YaroshAuthors Info & Claims

Proceedings of the ACM on Human-Computer Interaction, Volume 4, Issue CSCW3

Article No.: 275, Pages 1 - 46

https://doi.org/10.1145/3434184

Published: 05 January 2021 Publication History

Abstract

Online health communities offer the promise of support benefits to users, in particular because these communities enable users to find peers with similar experiences. Building mutually supportive connections between peers is a key motivation for using online health communities. However, a user's role in a community may influence the formation of peer connections. In this work, we study patterns of peer connections between two structural health roles: patient and non-professional caregiver. We examine user behavior in an online health community---CaringBridge.org---where finding peers is not explicitly supported. This context lets us use social network analysis methods to explore the growth of such connections in the wild and identify users' peer communication preferences. We investigated how connections between peers were initiated, finding that initiations are more likely between two authors who have the same role and who are close within the broader communication network. Relationships---patterns of repeated interactions---are also more likely to form and be more interactive when authors have the same role. Our results have implications for the design of systems supporting peer communication, e.g. peer-to-peer recommendation systems.

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Index Terms

Patterns of Patient and Caregiver Mutual Support Connections in an Online Health Community
1. Human-centered computing
  1. Collaborative and social computing
    1. Empirical studies in collaborative and social computing
  2. Human computer interaction (HCI)
    1. Empirical studies in HCI

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cover image Proceedings of the ACM on Human-Computer Interaction

Proceedings of the ACM on Human-Computer Interaction Volume 4, Issue CSCW3

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December 2020

1825 pages

EISSN:2573-0142

DOI:10.1145/3446568

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Published: 05 January 2021

Published in PACMHCI Volume 4, Issue CSCW3

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Prinster GSmith CTan CKeegan B(2024)Community Archetypes: An Empirical Framework for Guiding Research Methodologies to Reflect User Experiences of Sense of Virtual Community on RedditProceedings of the ACM on Human-Computer Interaction10.1145/36373108:CSCW1(1-33)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3637310
Petterson AJaimes Rodriguez IDoggett OChandra P(2024)Networks of care in digital domestic labour economiesProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642200(1-16)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642200
Shi JKhoo Z(2023)Online health community for change: Analysis of self-disclosure and social networks of users with depressionFrontiers in Psychology10.3389/fpsyg.2023.109288414Online publication date: 28-Mar-2023
https://doi.org/10.3389/fpsyg.2023.1092884
Kornfield RLattie ENicholas JKnapp AMohr DReddy M(2023)"Our Job is to be so Temporary": Designing Digital Tools that Meet the Needs of Care Managers and their Patients with Mental Health ConcernsProceedings of the ACM on Human-Computer Interaction10.1145/36100937:CSCW2(1-28)Online publication date: 4-Oct-2023
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Jin YCai WChen LDai YJiang T(2023)Understanding Disclosure and Support for Youth Mental Health in Social Music CommunitiesProceedings of the ACM on Human-Computer Interaction10.1145/35796297:CSCW1(1-32)Online publication date: 16-Apr-2023
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Pater JCoupe ANova FPfafman RCarroll JBrouwer ABohn CLi JTodd NChang FGuha S(2023)Social Media is not a Health Proxy: Differences Between Social Media and Electronic Health Record Reports of Post-COVID SymptomsProceedings of the ACM on Human-Computer Interaction10.1145/35796247:CSCW1(1-25)Online publication date: 16-Apr-2023
https://dl.acm.org/doi/10.1145/3579624
Kim MSaha KDe Choudhury MChoi D(2023)Supporters First: Understanding Online Social Support on Mental Health from a Supporter PerspectiveProceedings of the ACM on Human-Computer Interaction10.1145/35795257:CSCW1(1-28)Online publication date: 16-Apr-2023
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Ghosh SFroelich NAragon C(2023)“I Love You, My Dear Friend”: Analyzing the Role of Emotions in the Building of Friendships in Online Fanfiction CommunitiesSocial Computing and Social Media10.1007/978-3-031-35927-9_32(466-485)Online publication date: 23-Jul-2023
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Ghosh SAli MBatra AGuo CJain MKang JKharchenko JSuravajhela VZhou VAragon C(2023)“Do we like this, or do we like like this?”: Reflections on a Human-Centered Machine Learning Approach to Sentiment AnalysisArtificial Intelligence in HCI10.1007/978-3-031-35891-3_5(63-82)Online publication date: 23-Jul-2023
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